Attu lrtifit Dinbilil\ R(hal,ilir,,'i, ,,,-'

REHAI}ILITATION FACILITIES AVA ILABLE FOR CHII,DREN wlTHAUTISM,?DD IN- BANGALORE CITY ' ASURVEY

Ujwalo Aluri.a Prathibha Kann l

ABSTRACT

The ain ol he stu.t\ Ms to co\ate the infornation on rchabitilatior se^'ices

oailabte for .hildrch vith Autisnl/PDD in Bangalore Ciry A Petsanlinlervie\, \'i!h apen.e,ldett questions was loml lated Parents al 30 childrcn

with Auli.r1l /PDD wre chasen for the interview Ansbers were transcribed

iD a rcsponv for . The results ol the survev an nvnoSe ent of Ll1ildrcr| with

autis,h. in Ea4atore Cily indicated thdt mott Pdtents itlitialry consrLed llet

p..liat cian rc?a till. Aeir cllild's Problen All lhe Pto.f.ssionals canelted

are rcp. ert to ha\,. diagnosed nrc clliLdrett otl the basis of interviewing the

parcnts and observii| the thild Centres Ptovidin| rchabiLitation services

Jbt cl1il(tren wth Atllist /PDD are fetr ih nwnber Behavioural' Camnunication

aKt Sptciol ed\cation progruntnes are the nlanaeement services that are

availed of narrkaltr. Jollo\red b! tnedicat tnanISenent, but lete sefuices

atz nat arailable at anl on; centrc' we conclude that rehabilitation setuices

throash teatu approach et a sD1le roof is nost urgentl, needed fol'h ldryr ' '1" . \ , ' rsr t PDD in Ba\gol , . c i t )

I \TIIODLCTIO\lur isnr anc r : , . r .Lrr .d pef l as i \e developnrenkl d isorde^ r re charr ' ( t ' ised b! parrehs ot

d.h! xnd de\ irncc in rhedelelopmcnl ofsocicl. communicalive, and cosnitive skills. !vhich

mrnifest ih lhe fifs( years oi life There is no k no$ n specific cause of xulis nr' The cunenl

re(rirch links ii lo biologicil/ neurological causes. An accLrrale d;rlnosis is based on

.|rivations oi tii. child s .ommL, n icrtion. bthrviour rnd socirl de\'.hpmenr' There is no

: ln ! iexppr l ) th . \ l r i .h isef fect i !e i ra l le \ i . ( in !svrnplomsofru l isnr i f r l lc rses becroscol

rh. sp.crrum nrrL, , . o l xut i rn xnd the mdf l co l r l r inar ions Nhich Lrn occut l t hx5 beed

r. fo: r id Ih indiv idur ls s i th r r t inn le !pofd \ ' . l l loh ighlv s l ruc lure. t - r l tc i r l ised edu'ar ior

.ml f ' t l 'x r io ! : r i r r i l i ix r io i . lnrhewe\1. lh . 'k ' r rcsc\ . I r l )p .c i r lcr l f 's tor ch i ld |ef * i t l i

. : . r r isnr /PLlDrhr [ , l l r l l re iesrr \ i .es.Thef . i r :shxtd l )be.n.Lnysus{r i fedt ' r . ( r to i ler i r i !r h . f t r r r l i r r c h i l l e f $ i r h A u r i n n I L n d / o r P D D i n I n d i i t . D u I i n g r h € l r n f e v ' ! e x r \ . p r r e n r \: , , 1 ! i i ,er .orc! \nrn i i l iv rL lux ls . in rhe l r r ler .o 'o lo l ;unci l ies hrYc in i t i ' r r 'd inre ' f ibn:

. i . s r x f l i s l : r i r r . f r : . s . a i . . s C i r . i l h c i i . r . l * i n r h c n L : r r l ' : r o f r h L L . l r c r h . L f ! L l r r ! c " " i, l . . r i i i c d . i . \ r h . r i ) l ) D r n d r h e n b l s t N i l r . k o l Q ! i c e s i r i s f . . . \ ! l r ! t h \ c h 3 Y ( t ' : :

. : ! \ l ! r n : t r r . i : ' : , : i ! ( . \ i ! r r r r r i r . l i r : l r : ' r f i r r r l . r i n e | . \ l f u i r r : r r : r r r ' t ' t i : : r ' i ' l ' r i '

r , , . . ! r h . r . l r . r l i l i L . , . ' , l : . . . , : r , , i , , i n . . , 1 \ o l r i ! - . . . i r i : . 1 . r ' r r n r d . ( ' l r l ' ' ' l r ' r ' ' : \ ' r '

; . i t ,o , i , . bLJ t . : tu . R , , rb . ta t I Jd , , . t , . , t

METHODDara for the study was coltecred from the fotlowing cen(res:

ASHA (Academy of Severe Handjcaps and Auosml

DEC (Developmenrat centre for Exceptionat Chitdren)

SRCISH (Dr S.R Chandrashekar tnstirure ofSpeech and Hearing)

These three centres werechosen forthe study as rhey provide rhe rehdiljta(ion ser!ices formaxrmum n u mber ot chjldren wirh Autjsnr,?DD in Bangalore Cily.lhe cenkcs werc vervposljve about rhe survey and were helpful in arrangi"g ,]," i""i{r*, f__u ",

,l"rlcemres responded wnh fuI co-operation.

SUBJECTSParents of30 childrcn wirh Aurisrn/pDD lvere interviewed.

TOOLSA,p*sonal inrerview with open_ended quesdons ws formulated. T.he llsr ot queslionsaddressed the followins areas:

(a) demographicdata(b) medicalhisrory

(d) professionatsconsuhed(e) diagnoslic and assessmenr prccedurcs used(f) intervenrion/managem€nr skaregiesusedand(g) Suggestionsro inprove rehabilirarion se.vices

lheiroutcome ?t!(i-'*'

A N r\ LYSIS'Ihe pa.enr's anss'ers rvere r..nscribed ii ! rcjporse lornr rnd anaty:ed

RESULTSThc fesLrl6 oflhe srudy a.e presented in Tabtes I lo 3d foltowc{t by I des.im;.r.i rh.\jior

!!;

t :l "i,.

II

I

Asia Ituific Diyll)iti^ ltthrhilituk,t ! at

?:a

:;i: - i - i.:-,:.ir:. r:--i-!'=::iii:€''j

l l l \ i ' L l I \ . I I l ( ! i l

arl

E &

9 a

3. !. a

IL

II a

I Il.

--;i

i' ! .I

I rI

Il \

i l

.'

r:

*x

g

1.

Y!!4 !!::t:!:' : !:,t,, i",',',',' I ibk l :

g ivcs rhc in formal ioD on.r - , , ,^ , .^ ,Aul ism/pDD.

. . . . . - . - .orogr (hurufr t ' f in ic uf (h i j , t rerr s i rh

Table 2: professionals consulted

*r''*****t**;$g*ffi lirl:ffi

Table 2: professionals Consulted

trlr*'*:tir{#t1i4k$**i"ft#*iti#[**i*,*rrnifiil il..,fi:,':i"J;]:,il!;.ff

'eponed ro have oragnos€d chirdr.n b..d o nren,iewin!

fr $iliiffi *ti;i,i*,"iffi lil*,:',#ilFs

Consulred

NeurcJogisr

I I I I I iv

l

t2

8 54 6 3

rpeech pnlholosisr

\ 2 3

I N o : t 1 ( X ) t

' l !1 ,1! :J : In !ervenl io 'Vtrunrg0'nen!

.\\tr t lt 4k D^uLttn) RatuDntarar Jo,nu

; l, r.tr.i lntqeNnr P(s.rirMIh. chrld hJdunLi':lrDt

l t \ L ' i . l r I \ ' : ! l . '

Aed Pa(ili. Diytbiinr Retabilnation !o\ntu!

Table 3: Intervention / managementBehavioural, communicarion and special educatic.e,ces, th!, a, e avaired or ̂*i.irry r r s *"r,r.'rli.:-t;Ul il: jn"'fi fl*l%Til:i [:,'j"'i#::tJ:T,',ilil:ili:"::,1ffi ,ff :Ii]'".' ; ;;.,,;",;il. il;;i i,:;;;These rehabitirarive services are p.ovided at diffel

5-;lt::* j:r.fi ffi #nfra:,:::T;ff [:1""$,:xrt",,* Il{jfi :ilrn hrdships in rerms ol l im.. .oney unJ rrunroonTable 3a: Medical managemenr

Respiridon

EtnolSeranaseDimerhylelycilre(D\{G)

I .1 l i r r ! i . . J ro \s \

i lo \ r1 l -1 e Nc I ! l l ! i

Il t

51. Nol Altoparhy

. Megavirffnins

. Berhadoxin

. ZE\itr

. Fludacsyrup

.i

A,r , p . . , Jh Dr t i ' i t ) R . hLL i t . t . . t L , t . t t r

1)l) le 3.r i Yrdical iUanagem(nt

No \ignillcant cha'rges h:rve been reported by parents consequenr ro rhe intake ofaitopalhicnredicines. A\ refo ed ir the ljrerarure, effons ro find eflbcrive medicalions hale beenrarlely unjucce*fu1so far. as they have tit0e or noeftecr on rhe behavioLjrofthese chitdren.Llence, Dlosr re\carchers betieve thar therapisrs shoutd lly behavioural inrerventions iirst,especially !vhcn so.king wirh youngchjtdren.

Good lpperire and sleep has beeD reporred in chitdren under Ayuryedic and Homeopathic

Table 3l l r Ps\ chologicat /Behavioural Managemenr

!n b.h.viourthemp! r' _ i,jdi.d.s itrjprovemcnriorhc!^.n pccN{l!.roX i!(.i.r n! improve,n$r

Trble lb: l 's\ f h0logicr l /Reha\ ' ioorr l l Iat l genrent:, ! . r r r !c o l . l \L ' , , r i r ! l { i \e . r rs r r . re loned e h ! \ . u .der r !De

51No

Cogni-tion

Soc;al Behaviou.

Ivr ' , 2/week - thr

l l n rdR 2/week - lhrs

i yfs/nl 2 % \'ts 2/week- 3hrs6 5r t l l rs 3/ week

zyrsZ/week - thr

l ( l : \ , . . I ) r , :/ \e3k - ,1h|sl : i : l l l \

\ ^1nl:/ \'eek

l 6 .l/$eel - lhrs

2hrs: l l i0 \ rs ln i \ a ' l^\e(t . lhrl ! : l -1 : ( , \^

I 3^veekv r s / n i I I h .

i i l l l \ r i r I t , .

-

ro O yerrs. w;rh rhe freqJenc) of sejsions beinp zrhrs indrcdres '|he rack ;t rn ;" 'r ' ;; l ; i l ; i#::\ 'o s/weer or r 'r ') r-ou'|s du'|arron

. py prosrdmme. whrdr i , cruc id l

,mprcvement 6 reponed in ch ildren allendinp beharo o yec.s wnh a irequenc;; i ; ; ; ; ; i l ; . f i : : i :u' 'he,apy'rom am'1,mrmof I year

Table 3ci Communicafioni speech and Ianguage ! ierapy

r ii a

I

:

i

n ! La r akon .nu r ) o f sp . . r h r he . Joep . c ! [ , h r n , X , " , ] ( . r . ,

" o , _p r , " .m . ; ;

/ indjc{s inp,ovcmcir in {h" r,,;;;;;;;

Table3c: Comnrunication: speech and ianguage therapr-

*iil[rTili:rlft:;{t|i"::jt,!i",i..,,,"fir:r::iirl;",:],ij.,{:i:::::iiiiri" . " " ' " t " , : . , " , . . , n 0 : ; " . i , : j , ^ i j ' . : ' r j l ; , i : ' , . , ; . . " , ] , - , , , -

l l l . , I t ; \ , , . _ f r u l ,

slNo

I

Duntion CommunicarionSocial

SpanHyper-

8mths 2/week - thr2 4mths 3/week

3 IY.yts 2/week45mins

5yrs/m 2yn 3/wesk- th.6 lnr 2/week

lyr10 lvr 2/week - lhrl l 7-ru

9rnrh/m2/$'e."k

14 8)rVm 3mths 2/weeL , lh.I Xt l 8yrs/m 3mths* 2/qeel . lhr X

l 9 :,/$eek- lhr2 l t0yrvm ) y f 2/week22 1oyn/m 3yrs 2/seek28 I2yrs/m Tyrs 3/weet - lhr

hia Pocllic Disabilil\' ttchuLtin!tu tournal

, rhe lrc\ .'t inrc.\i\c.:\s in the rhe.rpy prosrammc, shich is inpofla.r iar rhJ child s overarl

,/ l.nsuaeedeYelopmenr.

r' Improvernent in lcms of comprehension has been rcponed ;n ch;ldren dtending speech the|apyiora minimum ol l months to 7 years witl a frequency of2 hours 10 3 houB per week.

Table 3d: Special education

sl S@ialE(pe_ ieli h

skilh'1 3mrhr5days/wl

l t j l / 2 J ^

l 56hft

t'7 8yrs/n l /2nnhs5dayYwl6hr!

l 9 l l /2mIhs X X X X

20 9v2 2mrhs6hn

X X X X

l 0 Shrswk6hrs

t.l t 0 X x x x

l+ l 0 lus 5days/wk

t5 l \ r s idryYwk

t6X X X \

/ lndiclr., nnFo\.rn.nrin de sir€n !rpe$ \ - ndi.xt.sno inprovcmenr d !ll.

Table 3d: Special educationIl children in r|e rle nnge of6 yem to il yr are Nponed lo h!\e ri..i\ cJ specirl .ducrrioor$,Sing tru l L : nroul,hs io .r ).ds q ilh the lrequen.y oi sessions trins Sh trsl\ eck ro l0

Po. ili. Di nlbili t I R th.hi! j 1,,,. -

'mprcveDenr is reponed ri cfuldren ah.ndi" "

.-^.,.onhs Lo a yeds ;i,h ; r.;;;;;;ilffi ;i,:ffi i:f #im c,ass r,on " nin j, m or r

SUMMARY AND CONCLUSION

f##{'jfl #il,r ji#T{'ird:T],*il#iilirri;rr,r,il"1r,.^.[#:*'ffi H:ffi#*i*rm:*x, ,l:*ftr{r,*urh::;f#*ir'"#H##f j:?r",ffffi :#ili:i","":r#.T:,iljffir"::."";f;ff :1

g,;**"T:ifllxrlrt*m:a*,x*:*i#"',xnr*,"#"ift,*;ffi '*tf::l:i#ffi t":'#*'P:"#nr".ilr*:##."xft f ffi #Ht:lf#i::.,i",,'*i'1;l"kisl$*,*:i:i#f "r,"#HIf #

" Dr. S.R. Chan(_".,*,;i;',llli::,J:l:.J":n ;j,T, .H0,,,',,;*,,=.,i.il',I il:; :::,.:fu :,Ti :l;: i::,;

ACKNOWLEDGEMENTSr f rs | l !ov_$Js cJn ied our us J pJn o f Masrer .s I

*1.';*1;* *"ri3,Trtilrl::.:l::,irJi,;" " l i

I

Ij

It :t;