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No-shows in dental care – perspectives on adolescents' attendance pattern

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No-shows in dental care – perspectives on adolescents' attendance pattern

To my family

Örebro Studies in Medicine 202

ANIDA FÄGERSTAD

No-shows in dental care – perspectives on adolescents' attendance pattern

© Anida Fägerstad, 2019

Title: No-shows in dental care – perspectives on adolescents' attendance pattern

Publisher: Örebro University 2019 www.oru.se/publikationer

Print: Örebro University, Repro 10/2019

ISSN 1652-4063 ISBN 978-91-7529-307-3

Cover image: Anida Fägerstad

Abstract Anida Fägerstad (2019): No-shows in dental care – perspectives on adoles-cents’ attendance pattern. Örebro Studies in Medicine 202. All children and adolescents living in Sweden have free dental care with reg-ular check-ups. Yet, missed and cancelled dental appointments are not unu-sual. The overall aim was to explore potential explanatory factors associated with non-regular dental care and to seek a deeper understanding of why some adolescents fail to attend their dental appointments.

An integrative review (Paper I) identified and summarized different sets of environmental, individual and situational factors that could be associated with dental avoidance or non-attendance. Paper II found similar levels of dental fear between children and adolescents (8-19 yrs) with a Swedish or a non-Swedish background. The occurrence and patterns of missed dental ap-pointments among 16–19-year-olds were investigated in Paper III, where we report that 13.1% of 23 522 booked dental appointments were missed in 2012. Boys had more missed appointments than girls, while no age differ-ences were found. In a case-control design, adolescents with missed appoint-ments more often had sociodemographic load, dental fear or dental behav-iour management problems, poor oral health, emergency visits, tooth extrac-tions, operative treatments, and over the past years, more missed and can-celled appointments. A history of missed and cancelled dental appointments predicted future missed and cancelled appointments. Twelve adolescent girls with missed appointments were interviewed in Paper IV and described sev-eral potential barriers or facilitators to accessing dental care. They high-lighted that knowing what will happen during the dental visit was decisive to whether or not they would attend their appointments.

In conclusion, factors specifically associated with dental avoidance still need to be investigated. Dental fear should still be seen as potential causal factor for dental avoidance. Missed and cancelled dental appointments should never be ignored since they could predict future missed and cancelled appointments. The results indicate that missed dental appointments among adolescents remain a challenge for Swedish dental care.

Keywords: adolescents, avoidance, dental attendance, dental care, dental fear, dental health services, oral health, utilization. Anida Fägerstad, School of Health Sciences, Örebro University, SE-701 82 Örebro, Sweden, [email protected]

Table of Contents

LIST OF PUBLICATIONS ........................................................................ 9

LIST OF ABBREVIATIONS ................................................................... 10

PREFACE................................................................................................ 11

INTRODUCTION .................................................................................. 12

BACKGROUND ..................................................................................... 13 Oral health .............................................................................................. 13 Dental health services .............................................................................. 14

Dental health services in Sweden ......................................................... 14 Adolescence and health behaviour .......................................................... 15

Adolescents and oral health behaviour ................................................ 16 Dental fear/anxiety .................................................................................. 16 Dental attendance among adolescents ..................................................... 17

Consequences of non-regular dental attendance .................................. 18

RATIONALE .......................................................................................... 20

AIMS ....................................................................................................... 21

MATERIALS AND METHODS ............................................................. 22 Study design ............................................................................................ 23 Settings and study population ................................................................. 23

Paper I ................................................................................................. 23 Paper II ............................................................................................... 24 Paper III .............................................................................................. 24 Paper IV .............................................................................................. 25

Data collection ........................................................................................ 26 Paper I ................................................................................................. 26 Paper II ............................................................................................... 28 Paper III .............................................................................................. 29 Paper IV .............................................................................................. 29

Analyses .................................................................................................. 30 Integrative review analysis .................................................................. 30 Quantitative data analyses .................................................................. 31 Qualitative data analysis ..................................................................... 31

Ethical considerations ............................................................................. 32

RESULTS ................................................................................................ 34 Manifestations of dental avoidance or non-attendance (Paper I) ............. 34 Background and concomitant factors associated with dental avoidance or non-attendance (Paper I) ..................................................................... 36

Environmental factors ......................................................................... 37 Individual factors ................................................................................ 37 Situational factors ............................................................................... 38

Dental fear among children and adolescents with a Swedish vs. non-Swedish background (Paper II) ......................................................... 38 Missed dental appointments among adolescents (Paper III) ..................... 40

Differences between cases and controls − findings from the dental records ................................................................................................ 40

Triggers for deciding to meet or miss dental appointments (Paper IV) .... 43

DISCUSSION .......................................................................................... 46 Main findings and reflections .................................................................. 46 Partly different sets of factors associated with dental avoidance or non-attendance (Paper I) ................................................................................. 47 No differences in dental fear among children and adolescents with a Swedish vs. a non-Swedish background (Paper II) ................................... 48 The importance of a history of missed and cancelled appointments (Paper III) ................................................................................................ 49 The ambiguous will to take on adult responsibility for dental care (Paper IV) ................................................................................................ 50 Methodological considerations ................................................................ 52

Paper I ................................................................................................. 52 Paper II ................................................................................................ 53 Paper III .............................................................................................. 53 Paper IV .............................................................................................. 54

CONCLUSIONS ..................................................................................... 56

CLINICAL IMPLICATIONS .................................................................. 57

IMPLICATIONS FOR FUTURE RESEARCH ........................................ 59

AKNOWLEDGMENTS .......................................................................... 60

REFERENCES ........................................................................................ 62

APPENDICES.......................................................................................... 76

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LIST OF PUBLICATIONS

This thesis is based on the following papers, which are referred to in the text by their Roman numerals:

I. Fägerstad A, Windahl J, Arnrup K. Understanding avoidance and non-attendance among adolescents in dental care – an in-tegrative review. Community Dental Health. 2016;33:1–13.

II. Fägerstad A, Lundgren J, Arnrup K. Dental fear among chil-dren and adolescents in a multicultural population – a cross-sectional study. Swedish Dental Journal. 2015;39:109–120.

III. Fägerstad A, Lundgren J, Windahl J, Arnrup K. Dental avoid-ance among adolescents – a retrospective case-control study based on dental records in the public dental service in a Swe-dish county. Acta Odontologica Scandinavica. 2018;19:1–8.

IV. Fägerstad A, Lundgren J, Arnrup K, Carlsson E. Barriers and facilitators for adolescents girls to take on adult responsibility for dental care – a qualitative study. International Journal of Qualitative Studies on Health and Well-being. 2019;14:1-11.

Papers I, II, III and IV are reprinted with the permission of the copyright holders.

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LIST OF ABBREVIATIONS ANOVA analysis of variance

BMI body mass index

CFSS-DS Children’s Fear Survey Schedule – Dental Subscale

DBMP dental behaviour management problem

DF dental fear

FDI Fédération Dentaire Internationale (World Dental Federation)

IQR interquartile range

OR odds ratio

PDC public dental clinic

SCB Statistics Sweden

SD standard deviation

SDT Self-Determination Theory

SES socio-economic status

WHO World Health Organization

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PREFACE Since 2001, when I started my journey as a dental hygienist, I have had the opportunity to meet and treat many children and adolescents in the clinical setting. When I started working at the public dental clinic (PDC) Wivallius in Örebro, back in 2008, I had the privilege to meet individuals from differ-ent parts of the world and with different cultural backgrounds.

When meeting with adolescents, I was often asked when they would start to pay for their dental visits. The impression I got was that not many ado-lescents would attend their dental appointments if they had to pay for them.

I also noticed that many dental appointments were either missed or can-celled and I wondered why. Was it because of dental fear (DF), or was it due to something else?

My first reflection was that DF is a huge reason for dental non-attend-ance or for lack of regular attendance. However, it was not until I started preparation for this thesis that I began to search for more nuanced answers.

When I first started working on this thesis, I wanted to know more about DF, especially among children and adolescents at PDC Wivallius. This led to Paper II. After reading many research articles, another question emerged: what prevents some adolescents from attending booked dental appoint-ments? In Sweden, dental care for children and adolescents is free of charge, so why not take the advantage of that opportunity? Which other possible explanations for no-shows could there be? This became the focus of this thesis, and resulted in Papers I, III and IV.

My journey as a doctoral student has come to an end and can be summa-rized in this thesis, but I sincerely hope that this is just a beginning of another journey.

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INTRODUCTION “My last dental visit went well. I have a better picture of the dentist now. I got a lot of help and what is it called? More … what is it called? Help how to take care of … Because I have very bad teeth. I hated the dentist very much before. And … I was scared to go to the dentist before. Then I got criticized by the dentist when I got to the dental clinic. But actually, the dentist … or the dental hygienist, or whatever … is very good. And … it makes me safer about going to the dentist. I’ve been afraid of the dentist since … I was 5 years old. Then it has not got any better … with all those negative dental visits. That just made it even worse. Before, I needed to … When I got the letter with the booked dental appoint-ment, I called the clinic and cancelled … Because it becomes like an anxiety-loaded thing I need to do. Sometimes I forget my dental appointments and sometimes I just avoid go-ing to the dentist. It is because I am afraid and because I know that I do not take care of my teeth like I’m supposed to. I just don’t prioritize going to the dentist. Now when I still don’t need to pay to go to the dentist … I don’t take care of my teeth properly. Now I get problems with my teeth. So I have a lot of cavities that need to be fixed … But … I try to change my routines so that they will be better so that I don’t need to go to the dentist very often in the future when I will need to pay for my dental visits.”

This is part of an interview with an adolescent girl regarding her experiences of dental care and her thoughts about her future dental visits.

Missed appointments (“no-shows”) in dental care may lead to delays in dental treatments that in turn may contribute to negative consequences for the individual’s oral health. In addition, every missed dental appointment constitutes a financial burden for the dental clinic and affects the produc-tivity and distribution of dental personnel resources. Moreover, these missed dental appointments prevent other patients from receiving care.

Health behaviour patterns developed in adolescence can have an impact on health throughout adult life. To find out what prevents adolescents from attending their dental appointments is of importance and the main purpose of this thesis.

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BACKGROUND

Oral health According to the World Health Organization (WHO), oral health is integral to general health1. Oral health means being free of chronic oro-facial pain, oral and pharyngeal cancer, oral tissue lesions, birth defects such as cleft lip and palate, and oro-dental trauma and noma1. A new definition of “oral health” was adopted in 2016 by the General Assembly of the Fédération Dentaire Internationale (FDI) (World Dental Federation), namely: “Oral health is multifaceted and includes the ability to speak, smile, smell, taste, touch, chew, swallow, and convey a range of emotions through facial ex-pressions with confidence and without pain, discomfort, and disease of the craniofacial complex.”2.

Oral health is usually discussed in relation to the two most important global oral health burdens, caries and periodontitis3.

For the majority of adolescents in Sweden, oral health has been reported to be good4. Self-perceived oral health in adolescents living in Sweden has been investigated in some studies, revealing that the majority of adolescents perceived their oral health as good5-8. In a study by Ericsson et al.5 90% of 19-year-olds (more girls than boys) perceived their oral health as good. However, some studies report poor oral health in the form of gingivitis and high scores of plaque among 19-year-olds in Sweden5, 9-11. Moreover, boys reportedly have more plaque and gingivitis compared with girls5, 9-11. Other studies found that caries disease was more common among children and adolescents with low socio-economic status (SES)4 and among children and adolescents with a non-Swedish background12, 13.

A qualitative study conducted in Sweden showed that 15–19-year-olds were not aware of “oral health” as a term. Yet they stated that oral health is important and described it mostly as the health of teeth14. When inter-viewing adolescents regarding their oral health, Östberg et al.8 identified two aspects of oral health, action (the physical things we do that affect the condition of the mouth) and condition (the status of the mouth). Oral health as an action was mostly associated with tooth brushing, while condition was related to good oral health (i.e. no caries disease) and appearance of the teeth (i.e. aesthetics).

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Dental health services Dental health services differ between countries in terms of organization, ac-cessibility, availability and cost. In most Western industrialized countries, dental health services are available for the population, offering preventive and curative care through private or public systems. Dental health services in developing countries are mostly available at regional and central hospi-tals in urban centres, with almost no priorities given to either preventive or curative care. In many countries in Africa, Asia and Latin America, dental health services are limited to pain relief and emergency care mainly because of shortage of dental personnel15. Other countries offer free dental care for children and adolescents up to a specified age16-19, while some offer insur-ance for specific dental treatments20-22.

Dental health services in Sweden The Swedish dental health services are regulated by law and government regulations. According to the National Dental Service Act (Tandvårdslagen) of 1985:12523, “the goal of dental health care is good oral health and dental health care on equal terms for the entire population”24. The county councils administer the dental health service for children and adolescents in Sweden. They have a planning responsibility to ensure that all children and adoles-cents get their regular dental check-ups and receive dental care when needed. Children and adolescents are free to choose which (public or pri-vate) dental clinic they want to attend, where they can meet dentists, dental hygienists and dental nurses for individualized preventive and curative care. Besides regular dental check-ups and individualized care, public dental health services are also working with health promotion efforts at child care centres, preschools, and primary and secondary schools25.

To ensure access to dental health services regardless of SES or insurance status, all children and adolescents living in Sweden are offered free dental care with regular check-ups at intervals determined by individual risk as-sessments19. The frequency of the check-ups depends on the condition of the individual’s oral health and risks or need for treatment. This means that children and adolescents with poor oral health are invited to visit the dental clinic more often than those with good oral health. To improve oral health among children and adolescents26 the dental health services focus on pre-vention27.

Until 2016, all children and adolescents 0–19 years old had access to free dental care in Sweden. The National Dental Service Act was revised after

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that year, and, according to clause 7, dental care today is free of charge for all children and adolescents up to and including the year they turn 23.

Adolescence and health behaviour The US National Library of Medicine defines an adolescent as a person be-tween 13 and 18 years of age28. According to the World Health Organiza-tion (WHO), an adolescent is an individual between 10 and 19 years old29. In this thesis, the main focus is on adolescents between 13 and 19 years of age.

Child development involves biological, emotional and psychological changes30. In middle childhood (8–12 years), children can apply logical rea-soning30. Abstract thinking starts around 11–12 years of age31. During mid-dle childhood, children see their parents as having the knowledge and power to make important decisions32. They also begin to establish their own iden-tity32 and start to take more responsibilities33. The relationship with their peers start to become important in children’s social and emotional develop-ment32.

Adolescence is a period of physical, psychological, sociocultural and cog-nitive development and a period of transition from childhood to adult-hood34. A goal for many adolescents is to be free from their parents and to have control over their own lives35. Even though they want to be independ-ent, most adolescents still want to have a close relationship with their par-ents36. The entire adolescence may feel like a time of balancing between de-pendence on and independence from family, peers and community37. The relationship with peers and social responsibilities become more central, while the relationship with family becomes less prominent35. Further, the opinions of peers become more important than opinions of the family38. The development of social skills is of importance in finding friendships, romance and employment35.

At the beginning of adolescence, parents are mostly responsible for all aspects of adolescents’ health. At the end of adolescence, that responsibility transfers from the parents to the adolescents themselves37. During this pe-riod, adolescents may establish health behaviours that can affect health throughout their life34. Health risk behaviours such as smoking, alcohol and drug use, certain sexual behaviours, and eating disorders can have an impact on health in both the short and the long term. Missed dental appointments (no-shows) may be seen as another risk behaviour that may be established during adolescence and can have negative oral health consequences39-43.

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Adolescents and oral health behaviour Oral health self-care behaviours such as tooth brushing and use of fluori-dated toothpaste have been found to have an effect on oral health status44.

A positive relationship between self-care and oral health has been found in several studies among adolescents5-8, 14, 45, 46. Ericsson et al.5 found that 76% of adolescents living in Sweden brushed their teeth at least twice a day. Moreover, 84% of the adolescents believed that they were taking good care of their teeth and 60% declared that cleaning their teeth was very im-portant5. The importance of having clean, healthy teeth in social situations influenced oral hygiene behaviour the most47. What motivated adolescents to take care of their teeth was the appearance of white teeth8, which can be seen as a symbol of good oral health14. The appearance of the teeth could also affect adolescents’ self-image and contribute to their self-confidence14,

48, 49. Moreover, good oral health in general has been found to be an im-portant aspect of and prerequisite to success in life48 and to getting a good job48, 49.

However, despite the fact that tooth brushing is important to adolescents, they sometimes brush their teeth only once or less than once a day. Forget-fulness and lack of time are the main reasons for non-regular tooth brush-ing8, 14.

The oral health behaviour of girls has been found to be better than that of boys5, 6, 45, 50, 51. Furthermore, girls have been shown to have better knowledge about caries and gingivitis than boys6, 52. Non-regular eating habits, consumption of sweet drinks or sweet food every day, risky alcohol habits and overweight have been reported to be more common among non-attending adolescents than among those who regularly visit dental care53.

Dental fear/anxiety Different terms have been used to cover the concepts of dental fear (DF) and dental anxiety. As summarized by Klingberg and Broberg54, “DF” refers to a normal emotional reaction to one or more specific threatening stimuli in the dental situation, while “dental anxiety” relates to a state of apprehen-sion that something dreadful is going to happen during dental treatment. “Dental phobia” represents a severe type of dental anxiety (i.e. marked and constant anxiety in relation either to clearly discernible situations/objects such as drilling or injections, or to the dental situation in general)54. How-ever, the concepts are often applied interchangeably in the literature54. In this thesis, the term used is “DF”.

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Dental fear is likely to be of multifactorial origin55 and several potential aetiological factors have been proposed, including general fear (in younger children)54, 56-60 and temperamental aspects (e.g. impulsivity, shyness, nega-tive emotionality)54, 61. Pain and negative experiences of past dental treat-ment58, 61-66 have been considered major triggers for DF. Issues related to socio-economic factors67-69, parental DF 57, 61, 67, 68, 70, 71, family and child rear-ing (e.g. living with young mothers, living in single-parent families)54, 70 and culture68, 72-74 can be potential risk factors for development of DF.

Several studies have reported that DF is more common in girls46, 58, 59, 61,

62, 65, 66, 74-77 and younger children43, 57, 76, 78, 79, but others have failed to show any relationship between DF and gender60, 80, 81 or age74, 77, 82, 83.

Dental fear can lead to avoidance of dental care84-87 and serious oral health problems for the patient63, 84, 85. The reported prevalence of DF among children and adolescents from several countries in Europe, North America, Asia and Africa varies from <2% to >20%54, 88.

Dental attendance among adolescents Despite the fact that dental care for children and adolescents living in Swe-den is free, reports on missed and cancelled dental appointments are not unusual. Currently, there is no nationwide register of information on missed dental appointments for children and adolescents, which makes it difficult to study the phenomenon at the national level. In one Swedish county, the prevalence of missed appointments among 19-year-olds was reported to be 11.0%4. The same report revealed that many of those 19-year-olds would only visit a dentist because of pain or other problems4.

Painful and unpleasant dental experiences can develop into DF87, 89, 90 and, in turn, can lead to non-regular dental attendance14, 91. In a group of 15-year-olds in the city of Jönköping, Sweden, 2.9% of the girls and 1.7% of the boys reported that they had not been to the dentist in 3–5 years or more and the reason was DF61. A recently published Norwegian study re-vealed that 7.5% of adolescents between 15 and 18 years of age reported that they had missed a dental appointment because of DF65.

Non-regular dental attendance (as indicated by different study-specific measures) has been shown to increase with increasing age41, 92-95 and to be more common among boys than among girls41, 53, 92, 94-96.

Further, a positive association between low SES and non-regular dental attendance has been reported in previous studies53, 97-101. According to the

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National Board of Health and Welfare in Sweden, factors such as low pa-rental SES, living in a single-parent family, having young parents or having parents with low educational level increase the risk for missed dental ap-pointments among children and adolescents101. A Swedish study by Hall-berg et al.102 investigated why some parents fail to take their children to the dentist. The study revealed that parents who felt overloaded in daily life did not prioritize taking their children for dental care. These parents themselves were non-regular dental attenders and gave low priority to their own oral health102.

One Swedish study53 reported that dental non-attendance was more com-mon among foreign-born adolescents than among those born in Sweden.

In the adolescent population, reported reasons for non-regular dental at-tendance were long waiting time for dental treatments49, lack of time103, treatment not needed103, 104, fear of the dentist49, 103, 105, parental responsibil-ity to book (i.e. lack of own ability to schedule) an appointment105, lack of transportation105, difficulty getting an appointment, and costs49, 103-105. Among adults, DF106-108, insurance and cost106-108, lack of time106, 109, forget-fulness107, no need to go107, being too busy110, having no problems with teeth108, 110 and not liking the dentist106 have been reported as reasons for non-regular dental attendance.

In the literature, different terms such as “missed” or “cancelled dental appointments”, “avoidance”, “non-attendance” and “non-utilization” have been used to cover the concept of no-shows in dental care. In this the-sis, the term “no-show” includes missing dental appointments without can-celling or rescheduling them.

Consequences of non-regular dental attendance Non-regular dental care may have a negative effect on both patients’ oral health and dental clinics. Missed and cancelled dental appointments can contribute to individual negative consequences for oral health16, 39-43, 111 and lead to emergency dental care16, 39, 41-43, 111, 112.

Among adults with high DF, long-standing avoidance of dental care has been associated with feelings of guilt and shame, which in turn enhance both avoidance and DF, and a vicious circle is established84.

Every missed and cancelled dental appointment may constitute a finan-cial burden for the dental clinic113. Also, missed and cancelled appointments may prevent other patients from receiving dental care114. For the patients, broken appointments and non-regular dental care may lead to prolonged

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intervals between seeing the dentist, discontinuity of dental care112 and de-lays in dental treatment115.

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RATIONALE Many health behaviour patterns including dental attendance patterns are established during adolescence. Adolescents are individuals who will soon make their own decisions regarding whether to go or not to go for dental care, once they need to pay for their dental treatments. In this transition period from childhood to adulthood, adolescents with missed and cancelled dental appointments should be seen as a risk group as non-regular dental attendance can have a long-standing negative impact on oral health.

Although the phenomena of missed appointments, avoidance behaviours and non-attendance among adolescents have been investigated and associ-ated with a variety of background and other factors it remains to be estab-lished what exactly really prevents adolescents from going to the dentist. In order to enable good oral health and a continuation of regular dental care into adulthood, it is of preventive importance to investigate the factors that are associated with non-regular dental care among adolescents. Further, to get a deeper understanding of what facilitates or prevents adolescents from attending their dental appointments, it is also important to explore their own experiences regarding dental care.

As previously mentioned, one factor that is associated with non-regular dental attendance among adolescents is DF. Most studies on DF in Sweden have been performed on Swedish-speaking participants, excluding partici-pants from our growing population of new inhabitants from a non-Swedish background. Therefore, the possibility to investigate DF in a multicultural population and compare Swedish youths with young people with a non-Swedish background was of special interest.

This thesis aims to contribute to the knowledge about the individual and the societal, costly problem of missed appointments in dental care. It is hoped to give some insights into signs to be aware of and suggest some things we can do to help adolescents overcome the barriers to attending appointments. These insights and suggestions may be of importance, not only for dental care and the dental personnel, but also for other health ser-vices that interact with adolescents.

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AIMS The overall aim of this doctoral thesis was to explore potential explanatory factors associated with non-regular dental care and to seek a deeper under-standing of why some adolescents fail to attend their dental appointments.

Specific aims were:

• to review articles exploring manifestations of avoidance of dental care, or non-attendance to dental appointments, to identify back-ground and concomitant factors specifically associated with dental avoidance among adolescents (13–19 years old) (Paper I);

• to explore self-rated DF in a multicultural population of child and adolescent dental patients (8–19 years old), with gender, age and SES into account, and also to investigate whether the level of DF, as measured using the Children’s Fear Survey Schedule – Dental Subscale (CFSS-DS), differed between patients with a non-Swedish background and patients with a Swedish background (Paper II);

• to investigate the occurrence and pattern of missed dental appoint-ments among 16–19-year-old adolescents in a Swedish county; to explore associations between background and concomitant factors and missed appointments; and, further, to investigate if these pat-terns of associations differed between areas with different socio-demographic profiles (Paper III); and

• to explore and describe experiences of and views about dental care among adolescent dental patients with a recent history of missed dental appointments at public dental clinics (PDCs) in a Swedish county (Paper IV).

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MATERIALS AND METHODS The empirical studies (Papers II–IV) in this thesis were performed in Örebro County, Sweden, from June 2011 to September 2018. Örebro County has 301 890 inhabitants (population for the year 2018)116, of whom 69 436 are children and adolescents between the ages of 0 and 19116. Dental care is provided by PDCs and by private dentists. Approximately 90% of children and adolescents in the county get their dental care, including regular check-ups and treatments, at one of the PDCs117 (Figure 1).

One of the PDCs located in a multicultural area in the city of Örebro was chosen as the setting for the study presented in Paper II. Settings for Papers III and IV included all PDCs in the county. During the period when data collection for Paper III was conducted, there were 23 PDCs in the county. In 2017, the number of PDCs in the county increased to 24 (Paper IV).

Figure 1. Public dental clinics (PDCs) in Örebro County and within the city of Öre-bro, 2017 (maps provided by Cecilia Pierre Tallroth, communications strategist at Public Dental Health Services in Region Örebro County).

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Study design Paper I was an integrative review, which is a method that allows broad in-clusion of diverse data sources118. The study in Paper II had a cross-sectional design including boys and girls between 8 and 19 years old. The first part of Paper III was based on data on booked and missed dental appointments among boys and girls aged 16–19 years during 2012 and the second part had a case-control design based on the retrospective data from the dental records. An inductive, descriptive design with a qualitative approach was used in Paper IV including 16–19-year-old girls.

Settings and study population

Paper I The study presented in Paper I is an integrative review of articles on dental avoidance or non-attendance among adolescents. The integrative review process parallels systematic reviewing by specifying the question or research problem, and involving a thorough and systematic literature search, data evaluation, data analysis and presentation of the results118.

In our literature search we used the databases PubMed, CINAHL Plus with Full text, and PsycINFO. A systematic search was done using the MeSH terms “dental health care” OR “health care services/dent*” with use of the asterisk as an open-ended term and key words often used in the liter-ature for the topics of this study aim, such as “dental avoidance”, “dental attendance”, “dental non-attendance”, “dental utilization”, “dental no-show”, “dental appointments”, “missed dental appointments”, “dental visit” and “dental priority”. The Boolean operators AND and OR were used to cover all key word pair combinations (e.g. “dental AND avoidance” OR “dental AND attendance”) (Appendix I). The search of the articles was limited to peer-reviewed quantitative or qualitative studies in English, pub-lished in 1994–2014 and covering adolescent populations (13–19-year-olds). The main literature search took place in May 2014 with assistance from a librarian at the Medical Library at Orebro University, and was up-dated in June 2014 and January 2015. In total, 3002 articles were identified; 2984 during the search of electronic databases and 18 from hand searches. Reference lists of relevant articles were skimmed for related publications, but no additional studies were identified. After removing duplicates, 2067 articles were included in the further evaluation.

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Paper II This study about DF was performed at a PDC located in a multicultural area of Örebro city During 2011 when data collection was made, the pop-ulation of this area was almost 6500, of whom 2600 were children and adolescents. Approximately 70% of the inhabitants had an immigrant back-ground and the main groups were Somalis and Iraqis. More than 100 dif-ferent languages were spoken in the area. Therefore, this area was found to be very suitable for the study.

All 8–19-year olds who were invited for a regular dental check-up exam-ination at the clinic from June to October 2011 were consecutively enrolled in the study. Altogether 492 patients received written information about the study together with a dental appointment letter. Of these, 315 patients (179 boys and 136 girls) were, in conjunction with their visit at the clinic, asked to participate and 304 agreed. A total of 177 patients (84 boys and 93 girls: 85 aged 8–12 years, 53 aged 13–16 years, and 39 aged 17–19 years) did not receive an invitation to participate because of: delays of ≥20 minutes (n=91), no-shows (n=21), or, for 8–14-year-olds, attendance without their parents (required for agreement to study participation when aged below 15-years; (n=31)). Further, although an interpreter service was routine, three patients were not asked to participate because they did not understand Swedish and no interpreter was present, and 31 patients had moved out of the area. Due to missing data, three responders of the 304 were excluded, leaving 301 for analysis (172 boys and 129 girls; 98 aged 8–12 years, 96 aged 13–16, and 107 aged 17–19 years).

Paper III This study was based on data on individuals who were 16–19 years old in 2012. The inclusion criteria were that they had to have had at least one scheduled appointment for a dental examination or treatment at any of the PDCs (n=23) in Örebro County during 2012. In total, 10 158 individuals met this criterion. A list of booked and missed appointments for all these individuals during 2012 was used to compute the frequency of missed den-tal appointments during 2012.

For the case–control design, a computer-based, non-stratified random se-lection of 749 cases with at least one missed appointment according to the list of booked and missed appointments during 2012 was made. From the same list, age-, gender- and PDC-matched controls without missed appoint-ments during 2012 were identified. After checking that they met the inclu-sion criteria, 522 case-control pairs of adolescents were included in the

ANIDA FÄGERSTAD No-shows in dental care

25

case–control design. Two hundred and twenty-seven pairs were excluded because the missed appointment could not be confirmed (n=166) or because of no history of booked appointments (n=52), no control available (n=1) and no access to digital records (n=8).

Further, based on the number and percentage of missed and/or cancelled appointments during 2012, two subgroups of cases were defined: those who had missed at least two appointments or missed one and cancelled at least two appointments were categorized as serious avoiders if the rate of missed/cancelled appointments exceeded 20% of their booked appoint-ments for the year (n=232). All other cases (n=290) were classified as mod-erate avoiders.

Dental records for the period 2009–2012 were reviewed for all case-con-trol pairs.

Paper IV This study was based on interviews with 16–19-year old girls. The inclusion criterion was that there had to be notes in their dental records on missed dental appointment(s) at any of the PDCs (n=24) in Örebro County during the preceding 3 months in 2018.

Potential participants were purposefully selected aiming for diversity of gender, age, and PDC’s location in areas with different sociodemographic profiles (urban, small towns, rural, and low and average/high SES) to find a variety of ways of experiencing the phenomenon we wanted to study.

In total, 2335 adolescents missed their dental appointments during the period from January to September 2018. The eligible participants (n=152) were first sent an information letter (Appendix II) within 3 months of the missed appointment; then, about 1 week later, they were contacted by phone by the author of this thesis, and asked whether they were interested in participating in the study.

A telephone call was made, according to the protocol, to all 152 to whom the letter had been sent, but contact could be established with only 18 (one boy and 17 girls); the others were not reachable. Finally, twelve girls from eight PDCs agreed to participate in face-to-face or telephone interviews (Ta-ble 1).

26

ANIDA FÄGERSTAD No-shows in dental care

Table 1. Participants’ characteristics and demographics Participants Age,

yrs Type of interview PDC’s location and sociodemographic

profile of the area 1 19 Face-to-face Small town Average/high SES 2 19 Face-to-face Rural Average/high SES 3 16 Face-to-face Urban Low SES 4 18 Face-to-face Urban Average/high SES 5 18 Face-to-face Urban Average/high SES 6 19 Face-to-face Urban Average/high SES 7 17 Face-to-face Urban Average/high SES 8 18 Face-to-face Small town Average/high SES 9 19 Telephone Urban Average/high SES 10 18 Telephone Small town Average/high SES 11 19 Telephone Urban Average/high SES 12 19 Telephone Rural Average/high SES

PDC=public dental clinic; SES=socioeconomic status.

Data collection

Paper I A first screening of the 2067 identified titles was done by the first author (A.F.). This resulted in exclusion of 1930 articles that did not meet the in-clusion criteria. Abstracts of the remaining 137 articles were independently screened by two authors (A.F. and K.A.). If the abstract was missing or did not provide sufficient information, the full article was retrieved for further examination. The remaining 53 articles that appeared to meet the inclusion criteria were thereafter independently reviewed in full text by all three au-thors (A.F., J.W. and K.A.). Of these 53 articles, 31 were excluded because they did not meet the inclusion criteria, leaving 22 articles for evaluation of quality and relevance (see PRISMA flow chart diagram, Figure 2119). At the final stage of data collection, the quality of these remaining 22 full-text ar-ticles was further evaluated using a pre-set protocol (Appendix III) con-structed by combining two review templates for quantitative studies120, 121 as there is no gold standard for quality evaluation in an integrative re-view118. The protocol included assessments of inclusion and exclusion crite-ria, aims, study design, study population, selection methods, measurements, and analysis and result reporting. Study quality and relevance to the aim of this review were each classified as high, moderate or low.

ANIDA FÄGERSTAD No-shows in dental care 27

To qualify for high quality a study had to meet the following criteria: the drop-out rate had to be stated and to be <20%; and, where applicable, con-sideration of confounders had to be included. For classification of high rel-evance, a study had to meet the following criteria: it had to contain relevant material; further, the results had to be clearly described and be consistent with the aims of the review.

All three authors (A.F., J.W. and K.A.) independently evaluated the 22 articles. Uncertainties were resolved by discussion until consensus was reached. One article was excluded because of both low quality and low rel-evance. Therefore, 21 articles were finally included in the review.

Figure 2. Process of literature selection through the different phases of the review process. (after Moher et al. 2009).

Research articles identified through database searches PubMed (n=2049)

CINAHL Plus with Full text (n=582) PsycINFO (n=353)

Scre

enin

g In

clud

ed

Elig

ibili

ty

Iden

tifi

cati

on Additional research articles

identified through hand search (n=18)

Research articles remaining after removal of duplicates

Titles screened (n=2067)

Abstracts reviewed (n=137)

Research articles excluded (n=84)

• Not meeting the objective of the review (n=53)

• Wrong age group (n=26) • Emergency settings (n=5)

Full-text articles assessed for eligibility

(n=53)

Full-text articles excluded (n=31)

• Not meeting the objective of the review (n=13)

• Wrong age group (n=18)

Research articles included in quality evaluation

(n=22)

Research articles included in the review

(n=21)

Full-text articles excluded (n=1)

• Low quality and relevance

Research articles excluded (n=1930)

• Not meeting the

inclusion criteria

28

ANIDA FÄGERSTAD No-shows in dental care

Paper II For assessment of DF, the CFSS-DS was used for self-ratings122, meaning that accompanying parents did not take part in the ratings. The CFSS-DS is one of the most frequently used tools for parental ratings or self-ratings of children’s DF122. It has been validated and used among different cultures and populations74, 79, 82, 123-125. It consists of 15 items ranging from 1 (“not afraid at all”) to 5 (“terrified”), giving a sum score range of 15–75. A sum score of ≥38 on the CFSS–DS has commonly been used as “standard” cut-off43, 54, 122 since it has been found to be indicative of DF126. Ten Berge et al.77 defined a sum score of 32 as borderline or indicating risk for DF (Appendix IV).

Background and SES information was obtained by the treating dental personnel asking the children and adolescents who agreed to participate in the study and their accompanying parents, about their and the parents’ country of birth and the parents’ occupation and level of education (Appen-dix V).

For those who required language assistance, a professional interpreter was present during the information session, explaining about the study and the study procedure, as well as during the questionnaire completion phase. All data were collected by dental personnel before the children and adoles-cents were clinically examined.

Definition of “Non-Swedish” and “Swedish background” Patients’ and parents’ country of birth was used to form the categories of “non-Swedish” (i.e. foreign-born with foreign-born parents, or Swedish-born with foreign-born parents) and “Swedish” (i.e. Swedish-born with one foreign-born parent and one Swedish-born parent or with both parents Swe-dish-born), according to the definition by Statistics Sweden (SCB)127.

Hollingshead’s four-factor index of social position Data on parents’ occupation and education level were combined into a measure of SES using a Swedish translation of Hollingshead’s four-factor index of social position128, modified by Broberg129. In this study, we used an extended version of the index, which includes also parents with no regular occupation130. In cases where information was available for only one parent, the index computed for that parent was used. Hollingshead’s index ranges from 8 to 66 points and was, in the analysis, classified into three categories (“low SES” = 8–29.25; “average SES” = 29.5–40.75; and “high SES” = 41.0–66 points), according to the distribution in the Dahlin–Vilhelmsson

ANIDA FÄGERSTAD No-shows in dental care

29

sample where each category represents one-third of the total scores and may be considered Swedish norms130.

Paper III

Lists of booked, missed and cancelled dental appointments In this study, the list of booked, missed (i.e. no show) and cancelled (patient-initiated cancellations) dental appointments during 2012 was reported to the first author (A.F.) by a controller at Public Dental Health Services in Region Örebro County.

The dental records The dental records for the period 2009–2012 for the case-control pairs were reviewed. Data were extracted on number and type of dental visits and treatments, oral health status, records of general health problems or tobacco use, as well as missed and cancelled appointments. Further, where available, data on family and everyday situation, and notes on DF or dental behaviour management problems (DBMPs) were also registered.

All extractions from the dental records were made by the first author (A.F.), according to a pre-set protocol (Appendix VI).

Sociodemographic profile The 23 PDCs were grouped into three location categories (urban, small towns, and rural) based on the population density of 2012, according to SCB131. The PDCs were also grouped into two SES categories (low SES and average/high SES) based on a cluster distribution of different sociodemo-graphic profiles in the areas where they were located132.

Paper IV

The interviews Data were collected between February and September 2018 through twelve individual, open-ended, semi-structured interviews using an interview guide developed for this purpose (Appendix VII). The questions in the interview guide focused on missed dental appointments, barriers and facilitators to accessing dental care, attitudes to oral health, and peer and parental influ-ence on dental attendance.

Because of difficulties in scheduling time for the interviews, some of the individuals stated that they preferred a telephone interview over a face-to-

30

ANIDA FÄGERSTAD No-shows in dental care

face interview. Therefore, an appointment was arranged for face-to-face in-terviews with eight participants while four participants were interviewed by telephone. The interviews were conducted in Swedish and carried out by the first author (A.F.) in a quiet room at the research centre. Face-to-face inter-views lasted between 12 and 38 minutes (mean 23 minutes) and telephone interviews lasted from 14 to 19 minutes (mean 16 minutes). All interviews were digitally recorded. None of the participants had had any previous con-tact with the first author (i.e. they had not been treated by A.F. at any time).

After having conducted all the interviews, which were analysed consecu-tively, the first author, together with co-authors E.C. and K.A., checked whether any new topics had emerged during the last interviews, or whether any additional information could be found.

Analyses

Integrative review analysis Using an appropriate data analysis method is a critical consideration in the integrative review process118. The guiding framework for Paper I was the five-stage systematic integrative review process developed by Cooper133, consisting of:

• problem formulation • data collection • evaluation of data points • data analysis and interpretation • public presentation of the results.

Data from primary sources were ordered, coded, categorized and summa-rized in order to answer the research question118. Furthermore, data consid-ering factors with proposed or potential relationships with any of the out-comes (defined as avoidance or non-attendance) were extracted, processed and tabulated. Background data were compared factor by factor. Where they were similar, factors were first ordered in groups, and then coded and categorized. Summarizing related categories led to different themes.

All authors (A.F., J.W. and K.A.) were involved in the data analysis process.

ANIDA FÄGERSTAD No-shows in dental care

31

Quantitative data analyses For Papers II and III, descriptive statistics were given as medians, means (standard deviation (SD)) and frequency tables. Group differences were an-alysed using non-parametric and parametric tests for two (chi square test, Fisher’s exact test, Mann-Whitney U-test, Student’s t-test) or more (Krus-kal-Wallis test, analysis of variance (ANOVA)) groups. In Paper II, multi-variate comparisons were performed using logistic regression analyses (with ENTER method).

In Paper III, the frequency of missed dental appointments during 2012, at both booking and individual level, by gender, age, and clinic, was com-puted from the lists of booked and missed dental appointments. Multivari-ate comparisons of cases and controls were performed using logistic regres-sion analyses (using the ENTER and Forward stepwise methods), with group as outcome variable and selected factors (see Paper III) as potential discriminatory variables.

All statistics were performed using IBM SPSS statistics version 21.0 (SPSS Inc., Chicago, IL, US) (Paper II) and version 22.0 (SPSS Inc., Chicago, IL, US) (Paper III). The level of significance was set at p<0.05.

Qualitative data analysis In Paper IV, the data were analysed using qualitative content analysis with an inductive approach guided by Graneheim & Lundman134.

Two authors (A.F. and E.C.) read through each interview several times to gain a sense of the data before continuing with the analysis. Thereafter, the meaning units including statements relevant to the study aim were ex-tracted from the transcripts. The meaning units were then condensed, ab-stracted and labelled with a code. The codes were compared for similarities and dissimilarities and grouped into categories and subcategories. The pre-liminary subcategories and categories were discussed several times by two of the authors (A.F. and E.C.) and revised. These subcategories and catego-ries were also presented and discussed with the other co‐authors (K.A. and J.L.) who had a validating role throughout the analysis process. In the last step, the underlying meaning and the latent content of the categories were formulated into a theme.

32

ANIDA FÄGERSTAD No-shows in dental care

Ethical considerations Paper I is an integrative review and therefore the study did not require eth-ical vetting. Results in Paper I are presented without distortion. The studies reported in Papers II, II and IV were approved by the regional ethical review board (reference numbers 2011/060, 2013/476 and 2017/281, respectively). All studies in this thesis were performed in accordance with the principles stated in the Declaration of Helsinki135.

In Paper II, in accordance with the Swedish Ethical Review of Research Involving Humans (SFS 2003:460, §18)136, patients or, if <15 years old, their parents received written information about the aims and procedures of the study together with the appointment letter. Verbal information about the study and an assurance that participation was voluntary, was given in conjunction with their visit at the dental clinic. They also were verbally in-formed that they could choose not to participate in, or withdraw from, the study without any consequences for their future dental care. Children and adolescents (8–19 years) and, where applicable, their parents were consec-utively asked if they would participate in the study (Paper II).

The study presented in Paper III was based on the dental records for 16–19-year-old adolescents. Since all data from the dental records were ex-tracted only once, and anonymously, no informed consent was needed and the regional ethical review board had no objections to the study. Moreover, since all adolescents in the study described in Paper IV were between 16 and 19 years of age, no parental consent was needed for participation, in ac-cordance with an ethical vetting law in Sweden (SFS 2003:460, §18)136. Ad-olescents were given both written and verbal information about the study and were assured that their participation was voluntary and that they could withdraw from the study at any time without giving any reason, and with-out consequences for their future dental care.

Written informed consent was obtained for both Paper II and Paper IV. Since children and adolescents and, where possible, their accompanying parents in Paper II answered the questions about their and their parents’ country of birth and their parents’ occupation and level of education, those questions could be perceived as sensitive. Further, in the interview study (Paper IV), the adolescents were asked what prevented them from attending their dental appointments, which might raise issues of the integrity. More-over, it may be very sensitive for adolescents to talk about their missed den-tal appointments or about their confidence in dental personnel. However, for both papers (II, IV), the potential harm was considered minor, compared against the probable gains from those studies137.

ANIDA FÄGERSTAD No-shows in dental care

33

The material that was collected for Papers II, III and IV has only been used for the purpose of this thesis. All data were available only to the re-search group. Questionnaires (Paper II) as well as pre-set protocols (Paper III) were archived and kept in a locked cabinet in a storage room. Further-more, the computerized files with data from studies II and III as well as digitally recorded interviews (Paper IV) were stored at Örebro County’s IT server.

34

ANIDA FÄGERSTAD No-shows in dental care

RESULTS The studies included in this thesis differ with regard to their aims, design, data collection method and data analysis and are therefore presented separately.

Manifestations of dental avoidance or non-attendance (Paper I) Research articles included in the integrated review provided an overview of manifestations of avoidance of dental care (dental avoidance) or non-at-tendance of dental appointments (dental non-attendance) (Table 2). Dental avoidance as an outcome was defined as “cancelled” or “missed appoint-ments” in a system where dental care is free for adolescents and with a recall system in which appointment booking is initiated by the dental care pro-vider16-19. For the outcome defined as “dental non-attendance” (including non-utilization), a variety of manifestations of non-regular dental care138-142 were allowed (Table 2). Seven studies from Sweden (n=2) and Norway (n=5), countries where dental care is free for children and adolescents, in-vestigated factors associated with the outcome dental avoidance. The other 14 studies were from different parts of the world, with different dental care systems, and investigated dental non-attendance (Table 2).

Tab

le 2

. O

verv

iew

of

man

ifes

tati

ons

clas

sifi

ed a

s de

ntal

avo

idan

ce o

r de

ntal

non

-att

enda

nce.

Ext

ract

ions

mad

e fr

om t

he 2

1 ar

ticl

es i

n-cl

uded

in t

he in

tegr

ativ

e re

view

Aut

hor,

yea

r C

ount

ry

Typ

e of

man

ifes

tati

ons

Den

tal a

void

ance

Skar

et e

t al

. 199

894, 1

99914

9 , 2

00087

N

orw

ay

Mis

sed

and

canc

elle

d de

ntal

app

oint

men

ts

Vik

a et

al.

2006

91

Nor

way

<4

0% p

roba

bilit

y of

bei

ng w

illin

g to

pro

ceed

wit

h tr

eatm

ent

if a

n in

ject

ion

was

nee

ded

Skar

et e

t al

. 200

790

Nor

way

N

o lik

elih

ood

of g

oing

to

the

dent

ist

in a

sit

uati

on w

ith

toot

hach

e

Gus

tafs

son

et a

l. 20

1014

4 Sw

eden

M

isse

d an

d ca

ncel

led

dent

al a

ppoi

ntm

ents

Öst

berg

et

al. 2

01051

Sw

eden

M

isse

d de

ntal

app

oint

men

ts

Den

tal n

on-a

tten

danc

e

Hon

kala

et

al. 1

99713

8 Fi

nlan

d N

o de

ntal

vis

its

duri

ng t

he la

st 2

yea

rs

Mac

greg

or e

t al

. 199

7152

Uni

ted

Kin

gdom

N

o de

ntal

vis

its

Vig

nara

jah

1997

151

Ant

igua

, Wes

t In

dies

O

ccas

iona

l vis

its,

onl

y vi

sits

whe

re t

here

is a

den

tal p

robl

em, n

ever

bee

n to

a d

enti

st

Zim

mer

-Gem

beck

et

al. 1

99714

3 U

S N

o vi

sits

to

the

dent

ist

in t

he p

ast

2 ye

ars

Frei

re e

t al

. 200

1147

Bra

zil

Goi

ng t

o th

e de

ntis

t m

ainl

y w

hen

havi

ng a

pro

blem

Yu

et a

l. 20

0114

2 U

S L

ast

dent

al e

xam

inat

ion

mor

e th

an 2

yea

rs a

go, n

ever

had

a d

enta

l exa

min

atio

n

Scot

t et

al.

2002

150

Can

ada

No

visi

ts in

the

last

yea

r

Oku

llo e

t al

. 200

4141

Uga

nda

Not

rec

eivi

ng d

enta

l car

e in

the

pas

t 2

year

s

Lev

in e

t al

. 200

789

Isra

el

Onl

y oc

casi

onal

vis

its,

do

not

visi

t a

dent

al c

linic

at

all

Lop

ez &

Bae

lum

200

7139

Chi

le

Nev

er s

een

a de

ntis

t

Vin

gilis

et

al. 2

00714

5 C

anad

a N

o de

ntal

vis

its

over

the

pas

t 12

mon

ths

Lu

et a

l. 20

1114

8 C

hina

N

ot h

avin

g a

dent

al v

isit

at

the

age

of 1

2-15

yea

rs, n

ot h

avin

g a

dent

al v

isit

at

the

age

of 1

5-18

yea

rs

Mak

& D

ay 2

01114

0 C

hina

N

ot v

isit

ing

the

dent

ist

in m

ore

than

12

mon

ths

Dav

oglio

et

al. 2

01314

6 B

razi

l N

ot g

oing

to

dent

al s

ervi

ces

ANIDA FÄGERSTAD No-shows in dental care

35

36 ANIDA FÄGERSTAD No-shows in dental care

Background and concomitant factors associated with dental avoidance or non-attendance (Paper I) Factors associated with the outcomes dental avoidance or non-attendance were categorized into three common themes: Environmental factors (socio-demographic status, SES, cultural background, and societal factors); Indi-vidual factors covering four categories (psychosocial factors, personal char-acteristics, attitudes, and lifestyle factors); and Situational factors formed by dental and medical experiences and history of attendance (Table 3).

Table 3. Overview of themes, categories and factor codes related to factors identified in the reviewed articles as associated with the outcomes dental avoidance or dental non-attendance

Theme Category Factor code

Environmental factors Sociodemographic status Gender

Age

Language

Daily living

Socioeconomic status Family socioeconomic status

Insurance status

Education expenses

Individual occupation

Cultural background Ethnicity

Religion

Societal factors Community

Access to and availability of dental care

Individual factors Psychosocial factors Social interaction

Self-efficacy, sense of coherence

Personal professional support

Personal characteristics Fear/anxiety

Temperament

Attitudes Negative attitudes

Priorities

Lifestyle factors Oral health habits

Tobacco use

Alcohol use

BMI

Situational factors Dental and medical experiences Oral health status

Pain

History of attendance Family dental attendance patterns

Individual dental attendance patterns BMI=body mass index.

ANIDA FÄGERSTAD No-shows in dental care

37

Gender, age and DF emerged as three main factors associated with the out-comes dental avoidance and non-attendance. Gender was evaluated in nine studies, four of which investigated dental avoidance while five investigated non-attendance. Age, a second factor associated with both outcomes, was investigated in nine studies, six in relation to missed and cancelled dental appointments (avoidance). Dental fear was investigated in six studies show-ing that high dental anxiety was associated with dental avoidance (three studies) as well as non-attendance. The following presentation of the results will be structured based on themes and, within the themes, factors associated with both outcomes, avoidance specifically and non-attendance exclusively.

Environmental factors Being a boy was repeatedly associated with dental avoidance as well as non-attendance51, 87, 90, 94, 138-142. Moreover, both missed or cancelled dental ap-pointments (avoidance) and non-regular dental visits (non-attendance) were found to increase with increasing age94, 138, 141-143.

Further, daily living (i.e. living in a single-parent family, living with un-married parents, having siblings)140, 142, 144, 145, low family SES143, 144, 146, low parental education51, 139, 141, 142, 144, 147, 148, unemployed parents142) and indi-vidual occupation (i.e. occupation not specified, working, school involve-ment87, 94, 145, 149) were factors associated with both outcomes.

Missed/cancelled dental appointments (avoidance) in Norwegian stud-ies87, 94, 149 as well as non-regular dental visits (non-attendance) in the US143 were more common among adolescents in rural areas; by contrast, a Swe-dish51 and an Ugandan141 study reported that no plan for future regular den-tal visits (avoidance) and non-regular dental visits (non-attendance), respec-tively, were more common among adolescents in urban areas141.

Factors such as language spoken at home (not speaking English in the US142), insurance status (being uninsured142, 150), education expenses139, eth-nicity (being non-White, being foreign-born140, 142, 143) and religion141 were investigated only in studies concerning the outcome dental non-attendance.

Individual factors Within individual factors, DF/dental anxiety was found to contribute to dental avoidance and less frequent dental visits (non-attendance)87, 89-91, 144,

151. Poor oral health habits51, 138, 139, 142, 146 and tobacco use51, 139, 145, 146 were

38 ANIDA FÄGERSTAD No-shows in dental care

also associated with both outcomes. Other lifestyle factors, i.e. alcohol con-sumption and body mass index (BMI)145, were only investigated in associa-tion with non-attendance.

Dental avoidance was found to be more common among adolescents with negative attitudes to dentists87, 90 and those who did not prioritize going for dental care51, 87. Furthermore, adolescents with dental avoidance had ex-periences of personal professional support (i.e. from a school psychologist, social worker or other psychosocial professional)144 and higher scores on two temperamental dimensions, namely self-rated sociability and parent-rated impulsivity144.

Psychosocial factors such as low sense of coherence147, and poor self-es-teem146, 152 and social interaction (high level of social support, involvement in fights)145 were found to be associated with non-attendance.

Situational factors Poor oral health status was more frequent among adolescents with dental avoidance behaviour and those with lower rates of dental utilization (non-attendance)87, 94, 139, 145, 149.

A higher frequency of missed or cancelled dental appointments (avoid-ance) was found among those with unfinished dental treatment at age 18 years87, 94, 149 and among those who experienced dental pain91, 149.

Studies investigating non-attendance reported positive associations with a history of a non-regularly attending family150 and individual non-regular attendance pattern148.

Dental fear among children and adolescents with a Swedish vs. non-Swedish background (Paper II) Among children and adolescents who participated in the study in Paper II, 187 (62%) had a non-Swedish background and 114 (38%) had a Swedish background, according to the SCB definition153. The group with a non-Swe-dish background consisted of 102 foreign-born individuals and 85 Swedish-born individuals with foreign-born parents. The Swedish background group included 101 Swedish-born children/adolescents with Swedish-born parents and 13 Swedish-born children or adolescents with one foreign-born parent. A total of 172 boys (108 with a non-Swedish and 64 with a Swedish back-ground) and 129 girls (79 with a non-Swedish and 50 with a Swedish back-ground) participated in the study.

ANIDA FÄGERSTAD No-shows in dental care 39

Socio-economic status scores were significantly lower in the group with a non-Swedish background compared with those with a Swedish back-ground (23.9 vs. 33.6; p<0.001). Applying the SES categories130, 64.5% (n=191) had “low” SES while 16.9% (n=50) had “average” and 18.6% (n=55) had “high” SES. The distributions across SES categories differed sig-nificantly between the group with a non-Swedish background (76.5%, 13.1%, and 10.4%, respectively; p<0.001) and the group with a Swedish background (45.1%, 23.0%, and 31.9%, respectively; p<0.001), with the majority of participants reporting low SES belonging to the non-Swedish background group.

Regarding DF, the overall mean (SD) CFSS–DS score was 23.8 (7.5), me-dian 22 (interquartile range (IQR) 18–38, total range 15–53), for the whole study group of children and adolescents (Table 4). The mean scores were similar between the two groups (23.9 and 23.7, respectively, for children and adolescents with a non-Swedish vs. Swedish background) (Table 4).

Overall, girls had significantly higher CFSS–DS scores compared with boys (p=0.001) (Table 4). The gender differences were clear and statistically significant (p-values 0.013–0.028) also when separated by group (non-Swe-dish and Swedish) (Table 4). Differences between the age groups were not significant.

Table 4. Dental fear given as Children’s Fear Survey Schedule – Dental Subscale (CFSS-DS) sum score means and medians and frequency distributions, with cut-off scores ≥32 and ≥38, by background and gender and age

CFSS–DS sum score

All N Mean SD Median

Non-Swedish background 187 23.9 6.9 23.0

Swedish background 114 23.7 8.4 21.0

Boys 172 22.5 7.0 21.0

Girls 129 25.5 7.7 24.0

8–12 yrs 98 24.8 7.1 24.0

13–16 yrs 106 24.3 8.5 22.0

17–19 yrs 107 22.5 6.7 21.0

All 301 23.8 7.5 22.0

CFSS-DS=Children’s Fear Survey Schedule – Dental Subscale; SD=standard deviation

40

ANIDA FÄGERSTAD No-shows in dental care

Logistic regression analyses in four steps were performed using a separate model per step. The first two models including background group (non-Swedish vs. Swedish) and the addition of gender revealed no impact on DF from those variables. In the third step, age was added, showing increased DF with younger age. The fourth step included SES, and showed an associ-ation, although non-significant, between SES and DF. Socio-economic sta-tus turned out to be the only variable causing a change in the odds ratio (OR) estimate for background (decreased from 0.96 in Model 1 to 0.71 in Model 4), further strengthening the picture of no increased risk for DF in the group with a non-Swedish background. With both background group (non-Swedish vs. Swedish) and background variables (gender, age, SES) taken into account, the only consistent “predictor” of DF was younger age.

Missed dental appointments among adolescents (Paper III) In 2012, a total of 23 522 dental appointments were booked for 10 158 adolescents (16–19-year-olds) at 23 PDCs in the county. Of these booked dental appointments, 13.1% were missed, with a significantly higher pro-portion of missed appointments among boys than among girls (14.6% vs. 11.4%; p<0.001). Missed appointments varied by age, between 12.7% and 13.5% (not significant), and ranged from 9.6% to 19.1% for the 23 PDCs.

The mean number of booked appointments per individual was 2.3 (range 1–24). Among those with at least one missed appointment, the mean num-ber of missed appointments was 1.4 (range 1–11). Altogether 21.3% (n=2162) of the adolescents (23.4% of the boys and 18.9% of the girls; p<0.001) had missed at least one dental appointment during 2012. When divided by age, the proportions of adolescents with missed appointments were similar. The proportions of adolescents with missed dental appoint-ments per clinic varied between 5.3% and 11.7%.

Differences between cases and controls − findings from the dental records In this part of the study reported in Paper III, 522 case–control pairs were included, 215 (41.2%) pairs of girls and 307 (58.8%) pairs of boys. Alto-gether, 219 (42.0%) case–control pairs were born in 1993, 112 (21.5%) in 1994, 92 (17.6%) in 1995, and 99 (19.0%) in 1996. In total, 262 (50.2%) case–control pairs came from PDCs located in the urban area, 167 (32.0%) came from PDCs located in small towns, and 93 (17.8%) came from clinics located in rural areas of the county. Based on the sociodemographic areas the PDCs were located in, in 2012 a total of 201 (38.5%) case–control pairs

ANIDA FÄGERSTAD No-shows in dental care

41

had their bookings at clinics located in areas with low SES, while 321 (61.5%) pairs had bookings at clinics in areas with average/high SES.

Adolescents identified as cases had a significantly higher number of den-tal visits, as well as cancelled dental appointments, than adolescents identi-fied as controls, during 2012. The mean number of missed dental appoint-ments in 2012 among cases was 1.5 (SD 0.94).

The dental records revealed that the proportion of adolescents with a record of sociodemographic load was almost five times higher among cases than among controls (7.1% vs. 1.5%; p<0.001) (Table 5). Dental fear and/or DBMPs were recorded significantly more often for cases, as was use of tobacco. Cases also had more oral health problems (i.e. more caries dis-ease and gingivitis) and more emergency visits, tooth extractions, and oper-ative treatments compared with controls.

As in 2012, the mean number of dental visits during the period 2009–2011 was higher for the cases and the cases also had a higher mean number of previous missed and cancelled appointments compared with controls.

In the case group, serious avoiders had a significantly higher number of dental visits, as well as missed and cancelled dental appointments, compared with adolescents identified as moderate avoiders (Table 5).

Comparisons between the subgroups of serious and moderate avoiders revealed that a recorded history of DF/DBMPs, tobacco use, caries disease, emergency visits and operative treatment was significantly higher for the group of serious avoiders than for moderate avoiders (Table 5).

Tab

le 5

. Fin

ding

s fr

om t

he d

enta

l rec

ords

, gro

uped

into

env

iron

men

tal/m

edic

al, i

ndiv

idua

l/lif

esty

le, a

nd s

itua

tion

al fa

ctor

s an

d re

port

ed b

y gr

oup

(cas

es v

s. c

ontr

ols)

and

cas

e su

bgro

ups

(ser

ious

vs.

mod

erat

e av

oide

rs).

C

ontr

ols

(v

alid

N=5

17–5

22)

Cas

es

(val

id N

=517

–522

) C

ases

vs.

co

ntro

ls

Seri

ous

avoi

ders

(v

alid

N=2

30–2

32)

Mod

erat

e av

oide

rs

(val

id N

=282

–290

)

Seri

ous

vs.

mod

erat

e av

oide

rs

Seri

ous

vs.

mod

erat

e av

oide

rs v

s.

cont

rols

n %

n

%

p n

%

n %

p

p En

viro

nmen

tal/

med

ical

fact

ors

Soci

odem

ogra

phic

load

8

1.5

37

7.1

<0.0

01

21

9.1

16

5.5

0.12

<0

.001

Med

ical

load

15

5 29

.7

166

31.9

0.

45

82

35.3

84

29

.1

0.13

0.

228

Indi

vidu

al/l

ifes

tyle

fac

tors

D

F/D

BM

Ps

34

6.5

75

14.4

<0

.001

48

20

.7

27

9.3

<0.0

01

<0.0

01

T

obac

co u

se

85

16.3

13

8 26

.5

<0.0

01

73

31.5

65

22

.5

0.02

1 <0

.001

Si

tuat

iona

l fac

tors

Ora

l hea

lth

Car

ies

dise

ase

245

46.9

32

7 63

.0

<0.0

01

161

69.4

16

6 57

.8

0.00

7 <0

.001

Gin

givi

tis

142

27.2

24

9 48

.1

<0.0

01

116

50.2

13

3 46

.3

0.38

<0

.001

T

reat

men

ts

Em

erge

ncy

visi

ts

130

25.1

15

9 31

.1

0.03

5 83

36

.1

76

27.0

0.

026

0.00

8

Ext

ract

ions

46

8.

8 70

13

.5

0.01

6 37

16

.0

33

11.5

0.

139

0.01

5

Ope

rati

ve t

reat

men

t 23

9 45

.9

307

59.4

<0

.001

15

1 65

.4

156

54.5

0.

013

<0.0

01

Den

tal a

void

ance

M

ean

SD

Mea

n SD

p

Mea

n SD

M

ean

SD

p p

N

umbe

r of

pre

viou

s de

ntal

vi

sits

7.

2 7.

21

9.0

7.79

<0

.001

11

.4

8.77

7.

2 6.

32

<0.0

01

<0.0

01

N

umbe

r of

pre

viou

s m

isse

d de

ntal

app

oint

men

ts

0.4

0.88

1.

8 2.

47

<0.0

01

2.3

2.86

1.

3 2.

00

<0.0

01

<0.0

01

N

umbe

r of

pre

viou

s ca

n-ce

lled

dent

al a

ppoi

ntm

ents

1.

7 2.

34

2.9

3.66

<0

.001

4.

2 4.

38

1.9

2.53

<0

.001

<0

.001

DF=

dent

al f

ear;

DB

MP=

dent

al b

ehav

ior

man

agem

ent

prob

lem

; SD

=sta

ndar

d de

viat

ion

42

ANIDA FÄGERSTAD No-shows in dental care

ANIDA FÄGERSTAD No-shows in dental care 43

Variables with significant differences between cases and controls in the bivariate analyses were included in logistic regression analyses. In the first step with separate models per each of five variable groups, the only included variables without discriminatory capacity between the cases and controls were emergency visits and previous dental visits. When sequentially adding groups of variables to each other, starting with environmental/medical fac-tors and individual/lifestyle factors (DF/DBMPs, tobacco use) (Model 2) and then situational factors (oral health) (Model 3), all of the variables were stable as discriminators between the cases and controls. In the fourth step, the treatment variables were added, showing no impact on dental avoidance (i.e. for the cases); all other variables remained as stable discriminators. In the fifth step, when the history of dental visits and missed and cancelled appointments was entered into the model, the impact of DF/DBMPs, to-bacco use, caries disease, treatment variables, and previous dental visits was no longer significant. The final (forward stepwise) analysis showed that so-ciodemographic load, poor oral health, and previous signs of dental avoid-ance were stable discriminators between the cases and controls, all other available aspects taken into account.

Triggers for deciding to meet or miss dental appointments (Paper IV) The participants in this study, adolescent girls, described their experiences of and views about dental care. They expressed several conditions that could hinder or facilitate their dental visits. They pointed out the im-portance of dental care as well as the importance of knowing what will happen at the dental clinic. Yet they expressed ambivalent feelings about their responsibility to go to the dental visits. All these experiences could be formulated into the theme “Triggers for adolescent girls to take on or not take on adult responsibility for dental care”. The theme included five cate-gories consisting of 15 subcategories (Table 6).

44 ANIDA FÄGERSTAD No-shows in dental care

Table 6. Overview of the theme, categories and subcategories illustrating adoles-cent girls’ views on Swedish dental care

Triggers for adolescent girls to take on or not take on adult responsibility for dental care

Pain and discomfort Attractive and healthy teeth

Feeling safe and secure Taking on the responsibility

Free of charge

Effects of previous negative dental experiences

The importance of healthy teeth

Understanding what will happen at the dental clinic

To be reminded Make sure to go for dental care while it’s free

Negative peer influence

Having someone ac-company you to the dental clinic

Ambivalence about taking on the responsibility

Wouldn’t pay for it

Having dental instruments in the mouth

Having confidence in dental personnel

Prioritizing other things over dental care

Being criticized by dental personnel

Transportation difficulties

Difficulties getting in contact

“Pain and discomfort” emerged as one category. The participants stated that they were not afraid of the dentist. Yet being at the dental clinic was often described as an unpleasant experience. They also described feelings of pain when having X-rays or being treated by a dentist who is rough. Nega-tive dental experiences such as getting local anaesthesia and having had op-erative dental treatment in the past made them unsure whether or not they would go for dental care in the future. Negative peer influences such as frightening each other and talking negatively about dental personnel could sometimes make the participants more afraid than they were before talking to their peers.

Another category, named “Attractive and healthy teeth”, described an awareness that oral health could have an effect on health in general and that good oral health was a prerequisite to feeling good. Going to the dental clinic was a way for the participants to get an update about their oral health status. They wanted to keep their teeth healthy even in the distant future, when they got old. Moreover, the appearance of healthy, white and clean teeth was of highest concern when participating in social interaction.

A third category was labelled “Feeling safe and secure”. The participants frequently expressed the importance of knowing what would happen during the dental visit, both during the present visit and during the next visit, in

ANIDA FÄGERSTAD No-shows in dental care

45

order to feel safe and secure. They also preferred to be treated by the same dental personnel so that they would know what to expect. Being treated by dental personnel who were friendly and who would let the participants be involved in their dental treatment was described as important. Other aspects such as having a parent or a friend who could accompany the participants to the dental clinic were appreciated as this made them feel more safe and relaxed. Sometimes the participants cancelled their dental appointments be-cause they were afraid of being criticized by dental personnel for not taking care of their oral health. They also felt exposed and vulnerable when having dental personnel, sometimes “total strangers”, hanging over their faces.

“Taking on the responsibility” for making and attending appointments was a category under which varying degrees of independence and maturity of the participants were summarized. Sometimes the participants described themselves as responsible for their dental visits and contacts with dental care. Others stated that their parents should still be responsible for their dental care and that the dental clinic should always contact their parents. The participants also described difficulties remembering the appointment time. Usually their parents reminded them of their dental visits, and they also got short message service (SMS) text reminders from the dental clinic. Despite these reminders, the participants did not always prioritize their den-tal visits. Working, going to school, going to the doctor, or being with friends sometimes had higher priority than going to the dental clinic. For those who did tend to go to their dental visits, difficulties with transporta-tion to the dental clinic were sometimes seen as a barrier to accessing dental care. Another difficulty was getting in contact with the dental clinic to re-schedule a dental appointment.

Finally, a category described as “Free of charge” showed that the partic-ipants appreciated the fact that dental care for all children and adolescents in Sweden is free. They believed that because dental care is free more ado-lescents attend their booked dental appointments than would be the case if they had to pay for the visit. Moreover, free dental care also made it possible for the participants to maintain regular dental visits and seek help when they had problems with their teeth. However, the participants were doubt-ful whether they would go to their dental appointments once the visits were no longer free of charge.

46

ANIDA FÄGERSTAD No-shows in dental care

DISCUSSION

Main findings and reflections The overall aim of this doctoral thesis was to explore potential explanatory factors associated with non-regular dental care and to seek a deeper under-standing of why some adolescents fail to attend their dental appointments. Four studies were carried out.

The main findings are listed below: • Partly different sets of factors were found for the different out-

comes, with focus on individual and situational factors for the out-come dental avoidance, and environmental and individual factors for the outcome dental non-attendance (Paper I).

• There were no differences in self-rated dental fear between chil-dren/adolescents with a non-Swedish and a Swedish background (Paper II).

• Missed dental appointments were found to be more common among boys than among girls (Papers I, III).

• The relationship between age and dental avoidance reported in the integrative review (Paper I) could not be confirmed in the case-con-trol study (Paper III).

• Sociodemographic factors (Papers I, III), dental fear and dental be-haviour management problems (Papers I, III, IV), poor oral health status (Papers I, III), dental treatment experiences (Papers I, III) and a history of missed and cancelled appointments (Papers I, III) were found to be associated with dental avoidance.

• A history of missed and cancelled dental appointments predicted future missed and cancelled appointments (Paper III).

• The adolescent girls described potential barriers or facilitators to accessing dental care that were summarized in five categories: Pain and discomfort; Attractive and healthy teeth; Feeling safe and se-cure; Taking on the responsibility; and Free of charge (Paper IV).

• Knowing what would happen at the dental clinic determined whether or not the interviewed girls attended their dental appoint-ments (Paper IV).

ANIDA FÄGERSTAD No-shows in dental care

47

Even though the main focus of this thesis was on dental avoidance, all four studies had different expressions of fear in common. For instance, in a mul-ticultural population investigated in Paper II, no differences in DF were found between children and adolescents with a non-Swedish background and children and adolescents with a Swedish background. In Paper I, DF/dental anxiety was found to be associated with both outcomes defined as dental avoidance or non-attendance. Based on the dental records reported in Paper III, DF or DBMPs were shown to be more documented in adoles-cents with avoidance behaviours. Dental fear was not directly expressed in Paper IV, but the participating girls expressed different kinds of fear. These expressions could be described as fear based on not knowing what will hap-pen at the dental clinic, fear of not meeting the same dental personnel, fear of pain, and fear of not having attractive and white teeth.

Partly different sets of factors associated with dental avoidance or non-attendance (Paper I) Although this integrative review contributed to an overview of factors asso-ciated with the outcomes dental avoidance or non-attendance, we also found that studies conducted in a context of free dental care for children and adolescents are rare.

We also found partly different sets of factors for the different outcomes, with focus on individual (psychosocial and psychological factors, personal characteristics, attitudes, and lifestyle factors) and situational (dental and medical experiences, history of attendance) factors for the outcome dental avoidance. For the outcome dental non-attendance, the focus was on envi-ronmental (sociodemographic status, SES, cultural background, and socie-tal factors) and individual factors. It can be assumed that financial barriers may prevent individuals from attending their dental appointments, which may be one possible explanation why environmental factors were more in-vestigated in countries where dental care for children and adolescents is not free of charge. The studies conducted in the Scandinavian countries, where adolescents do not need to be concerned about the costs for their dental visits, revealed low prioritizing of dental care visits and negative attitudes towards dental personnel as barriers to accessing dental care51, 90. One pos-sible explanation for why some adolescents do not prioritize going to their dental visits may be a short perspective on future oral health as many ado-lescents in Scandinavia have low caries experience154 and they perceive their oral health as good8.

48

ANIDA FÄGERSTAD No-shows in dental care

In this review, some of the factors (language spoken at home, ethnicity, and religion) were investigated only in relation to the outcome non-attend-ance, and in countries and cultures where the dental care system is different from the Swedish system where care is easily available and free of charge for children and adolescents. Against the backdrop of Sweden today being a multicultural country with a growing proportion of inhabitants from non-Swedish backgrounds who may be unfamiliar with the Swedish dental care system, the question emerges whether these factors may have an impact on dental avoidance also in Swedish dental care.

No differences in dental fear among children and adolescents with a Swedish vs. a non-Swedish background (Paper II) In this study, the mean overall sum scores for the CFSS–DS were well in agreement with normal values reported in a Swedish population155 and pre-vious studies43, 54, 77. During the work on this thesis, two studies were pub-lished regarding occurrence and severity of DF156 and changes in DF over a 2-year period157 in children with a non-Swedish background compared with children with a Swedish background. The results156 from the first study showed higher DF among 7-year-olds with a non-Swedish background com-pared with their Swedish peers, which was inconsistent with our findings. However, our results, revealing no differences in DF between these two groups, were similar to the results of Dahlander et al.’s longitudinal study157. Unfortunately, due to differences in study populations regarding age and birth country of the participants (and their parents), and measures (parental ratings vs. self-ratings), these two studies may not be fully comparable to each other.

Previous studies have reported differences in DF between children with a foreign background and children with a native background. In an earlier Swedish study, Mejàre & Mjönes158 found that DF was more common in Turkish children born in Sweden than in either Swedish children born in Sweden or Turkish children born in Turkey158. Findings from the Nether-lands77 revealed that DF was more pronounced in a subgroup of children with a non-Western European background compared with Western Euro-pean children77. Further, Fuks et al.73 reported that children of Arabic origin were more dentally anxious than children of American or European origin.

ANIDA FÄGERSTAD No-shows in dental care

49

The importance of a history of missed and cancelled appointments (Paper III) The study reported in Paper III revealed that 21.3% of all adolescents (23.4% of boys and 18.9% of girls) had missed at least one dental appoint-ment during 2012.

The finding that boys were more likely to miss their dental appointments is in concordance with other studies6, 87, 90, 94. Poor oral health has been shown to be more common among boys5, 6, 159 and is also a factor associated with dental avoidance.

No association between age and dental avoidance was found in the pre-sent study, contradicting the results of a Norwegian study by Skaret et al.94. This may be explained by the fact that our study included a narrower age span and that the assessments were based on 1 year, 2012, while the Nor-wegian study investigated missed/cancelled dental appointments across the age span of 12–18 years.

Dental avoidance was shown to be more common among adolescents with a record of sociodemographic load, which is consistent with previous findings. For example, one Swedish study144 revealed that dental avoidance among adolescents referred to specialized paediatric dentistry because of DBMPs was more common when living with a single parent. Further, stud-ies from Norway87, 94, 149 reported that missed/cancelled dental appointments were more common among adolescents who had no specified occupation.

The impact of DF on missed dental appointments has also been shown in a recent Norwegian study65 which revealed that missed dental appointments due to DF were 3.4 times higher among adolescents with high levels of DF than among non-anxious adolescents. However, in our study, the effect of DF/DBMPs as discriminator for avoidance behaviour in cases became clear during the first four steps of the logistic regression analysis, although a de-crease in OR was observed when other groups of factors with potential im-pact were sequentially entered. An interesting finding was made in the fifth step, when the history of dental visits and missed and cancelled appoint-ments was entered into the model and the impact of DF/DBMPs was no longer significant. In fact, signs of previous dental avoidance, by itself ac-counting for 21% of the explained variance (first model), and being a sig-nificant part of the final model, explaining 3 additional percentage points of the variance, emerged as the most prominent discriminator. Conse-quently, although the model appears to offer only modest explanatory

50

ANIDA FÄGERSTAD No-shows in dental care

value, we consider it an important finding that a history of missed and can-celled dental appointments predicted future missed and cancelled appoint-ments.

The ambiguous will to take on adult responsibility for dental care (Paper IV) The results from Paper III indicate a need for further research on barriers and, at least as importantly, facilitators to adolescents’ use of dental care in Sweden, which question is presented in Paper IV.

The findings of this study give an insight into some of the barriers and facilitators to regular dental care. Despite the fact that participants had missed dental appointments in the past, they still expressed the importance of dental care. Yet they prioritized going to doctor, going to school, work-ing, and being with friends over attending their dental appointments, which was also found in other studies conducted in Scandinavian countries51, 87.

During the interviews, the adolescent girls expressed that negative dental experiences (e.g. being treated roughly by the dentist and having sharp den-tal instruments put in the mouth) made them unsure whether they would go to their dental visits in the future. It is well known that negative dental ex-periences during childhood can affect dental visits later in life since painful and unpleasant dental experiences can develop into DF87, 89, 90 and, in turn, lead to non-regular dental attendance14, 91. Other aspects described as barri-ers to dental visits were seeing dental personnel as strangers, as well as hav-ing to keep the mouth open for a long time because it made the participants feel vulnerable and exposed.

For the girls in our study, the appearance of healthy, white and clean teeth was of highest concern when participating in social interaction. Simi-lar findings were reported in a Swedish study by Östberg et al.8 showing that the appearance of the teeth was the highest concern for boys and girls and the greatest motivation for taking care of the teeth. These results are not surprising because adolescents are constantly exposed to media images of ideal beauty160.

The ambiguity surrounding who is responsible for the adolescents’ dental visits was an interesting finding. Some participants stated that their parents were responsible for taking them to the dentist while others said that going to the dentist was their own responsibility. No matter whose responsibility the dental visits were, the study participants still wanted their parents to

ANIDA FÄGERSTAD No-shows in dental care

51

have contact with the dental clinic on their behalf. The degree of responsi-bility for their own dental care may depend on adolescents’ developmental stage during the transition period between adolescence and adulthood. What we need to keep in mind is that adolescents’ autonomy is not the same as their independence from their parents. The ability of individuals to make their own decisions and manage on their own improves greatly during ado-lescence36. Additionally, when children enter adolescence, their parents are still largely responsible for all aspects of their health. By the time these in-dividuals reach the end of adolescence, they have sole responsibility for their health37.

During the interviews, the participants frequently stated that knowing what will happen at the dental clinic was the most important aspect affect-ing whether they would go to the dental clinic. A feeling of safety when visiting the dental clinic could be facilitated in several ways. For instance, according to the girls, continuity in seeing the same dental personnel was important in helping them develop trust and feel secure during the visit to the dentist. The participants also described that having a parent or friend accompany them to the dental clinic had a positive impact on their dental visits.

What facilitated or hindered participants in Paper IV from attending their dental appointments may be illustrated by aspects of Self-Determination Theory (SDT)161, 162. According to SDT, we have innate psychological needs that are the basis for self-motivation, and we tend to seek situations that satisfy our needs. One of these innate needs is the need to feel competent and several participants in the present study expressed that it was important for them to feel prepared and competent about what would happen at the dental clinic. Dental personnel who allow their patients to be involved in their own dental treatment may contribute to increased perceived compe-tence and feelings of capability to handle a potentially unpleasant dental visit.

In the study reported in Paper IV, another factor that facilitated regular dental attendance was having continuity of care, which helped many of the participants go back to the dental clinic. This aspect could be seen as an example of relatedness, which is another of the needs described by SDT. The third need identified by SDT is autonomy and, as described above, the need to feel agency and to do things that are coherent with one’s own values is a theme that emerged in the interviews. The wish to take on increasing responsibility for one’s own dental health can be understood as a need for autonomy.

52

ANIDA FÄGERSTAD No-shows in dental care

Although we cannot validate SDT as we are not testing this theory in this thesis, it may help us to create an SDT-based intervention that can help adolescents to attend their dental appointments by focusing on their psy-chological as well as dental needs.

Methodological considerations Most knowledge on non-regular dental care among both children and ado-lescents relies on quantitative research methods. The studies included in this thesis had different designs, and included both quantitative and qualitative approaches. The combination of these research methods may be considered a strength of this thesis. Both quantitative and qualitative research methods have their strengths and limitations. However, a combination of the re-search methods163, 164 may give a broader picture of adolescents’ barriers to accessing dental care.

Paper I The integrative review method was used in Paper I, allowing us to identify factors associated with the outcomes of dental avoidance and non-attend-ance.

A possible limitation could be the difficulty that emerged when separat-ing the outcomes dental avoidance, dental non-attendance and dental non-utilization in the literature. The distinctions between the outcomes were not always clear. However, the decision was made that dental avoidance should be defined as an individual’s choice to not attend dental care in a context where this care is available free of charge. In the literature, dental non-at-tendance and non-utilization were inseparable and were therefore combined to describe all forms of non-regular dental care. For a clearer picture, an overview of manifestations classified as dental avoidance or dental non-at-tendance is presented in Table 2.

Another possible limitation was the inclusion only of studies of 13–19-year-olds. However, when analysing and evaluating the data the decision was made to encompass a wider age span if the information on the cho-sen13–19 age range was identified and reported in the articles. Differences in lifestyles, maturity and priorities between younger and older adolescents within the 13–19 age group may well have an impact, resulting in different factors associated with dental avoidance at different ages.

One strength of the integrative review is that it allowed us to combine studies with different designs, which may have contributed to a broader

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knowledge of the phenomenon we wanted to study. A second strength is that, despite the differences regarding organization, accessibility, availabil-ity and costs of dental health care, as well as classifications of SES and pa-rental educational level, this approach allowed us to identify factors associ-ated with dental avoidance or non-attendance/non-utilization. A further strength was the way in which the critical appraisal of the articles was car-ried out, since all three authors independently reviewed, evaluated and dis-cussed the articles until consensus was reached, which increased the trust-worthiness of the study.

Paper II The CFSS-DS was used in Paper II to measure DF among children and ad-olescents. Previous studies have shown that the CFSS–DS, although re-garded as mainly one-dimensional, may cover subscales to allow fear of highly invasive procedures to be separated from other, more non-specific fears77, 82, 165. Consequently, using only the sum score, i.e. using the CFSS–DS as a one-dimensional construct, may underestimate specific fears of in-jections, for example, or of other invasive treatment steps.

The use of self-ratings instead of parental ratings of the CFSS–DS can be seen as a strength. A previous study by Luoto et al.166 showed that parents had poor knowledge of, and could not evaluate, their children’s DF. Paren-tal ratings have also been questioned by Gustafsson et al.124, who showed poor agreement between parental ratings and children’s self-ratings.

Low SES was common in the whole sample and particularly in the non-Swedish group, where >75% of participants were characterized by low SES. This relatively limited variation may be a shortcoming. Therefore, evalua-tion of the possible impact of SES on DF should benefit from including a wider range of SES.

Paper III One strength of Paper III was the use of lists of booked and missed appoint-ments that were extracted from the database and reported to the first author (A.F.) by a controller, since most previous studies are based on self-reports on dental visits.

The study was based on dental records, which routinely document factors such as oral health status, emergency visits, invasive dental treatments (ex-tractions and operative treatment) and previous dental visits, as well as his-tory of missed and cancelled dental appointments. However, despite the fact that we used the data from the dental records, possible incompleteness of,

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and uncertainty in, this type of routine dental records may hamper the va-lidity of the data. Potential discriminatory variables may be underreported, in particular for adolescents with an uncomplicated attendance pattern. There is a risk that dental personnel may not be consistent in registering conditions such as sociodemographic load or DF/DBMPs, and may in fact be unaware of them unless patients openly show DF or some other kind of problem during dental visits.

All data from the dental records were extracted only once, and anony-mously. A note was made in each of the reviewed dental records to avoid double documentation. None of the extracted data could be tracked to spe-cific individuals included in the study because no lists were kept of the den-tal records that had been examined. For this reason, no intra-examiner re-liability assessments were conducted.

The large sample size and the randomization of cases and controls may also be seen as a strength since this resulted in a representative sample dis-tribution across all 23 PDCs in the county. The 23 PDCs represent different living areas, i.e. urban, small town, and rural, and areas with low and mod-erate/high SES, which further strengthens the study.

Paper IV The trustworthiness of the study reported in Paper IV has been outlined in the article, and will therefore be discussed only briefly in the following. To ensure trustworthiness of this study, trustworthiness criteria such as trans-ferability, credibility, dependability and confirmability were used167. One aspect of credibility is to include participants who have experienced the phe-nomenon under study and who can talk about it. Purposive sampling was conducted to achieve diversity of participant age and gender and PDC loca-tion in areas with different sociodemographic profiles, and thus obtain broad data. Further, we have explained and described the selection of the participants, data collection and analysis in detail, allowing readers to de-termine whether our results are transferable to other contexts. To ensure the dependability of the study, we used semi-structured interviews and de-scribed the questions in the interview guide. What may be worth mentioning is that the first author (A.F.) carried out the interviews. Thus, her back-ground as a registered dental hygienist with a pre-understanding of free den-tal care for children and adolescents may have had an impact on the inter-views and data analysis. However, the first author (A.F.) tried to put the pre-understanding aside by being as objective as possible in order to analyse and interpret the results as transparently as possible. To increase the study’s

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dependability, the analysis was performed together with one of the co-au-thors (E.C.), who is a registered nurse. The other co-authors, K.A., who is a dentist and specialist in paediatric dentistry, and J.L., who is a psycholo-gist, had a validating role throughout the analysis process by discussing each category and subcategory, as well as the main theme, to reach consensus. Further, two independent researchers reviewed the study design, analysis and findings, which is important in terms of confirmability.

The study findings in Paper IV have provided some insight into how ad-

olescent girls with low rates of missed dental appointments experience den-tal care. Our intention was to interview girls and boys aged 16–19 who repeatedly missed their dental appointments. This objective proved to be challenging. We failed to get in contact with boys in general and with ado-lescents who had missed their dental appointment repeatedly over a long period. The lack of information regarding treatment experiences and the history of missed dental appointments among this group could be consid-ered as a limitation, especially with respect to the results of Paper III. There-fore, we may have missed some aspects of the phenomenon under study. Considering the fact that missed dental appointments are more common among boys than among girls51, 87, 90, 94, it would probably have given a wider perspective regarding experiences of dental care if we had managed to in-clude boys in the study. However, although only girls agreed to participate and the heterogeneity of the group of participants was therefore limited, the present study can be considered to increase the knowledge about adolescent girls’ experiences of dental care in a Swedish context.

Four of the included girls preferred to participate in a telephone interview since they could not find time for a face-to-face interview. Interviewing ad-olescent girls by phone was experienced as challenging, as we could not observe their body language and the interaction between the participants and the interviewer was therefore limited to their statements and voices. However, the telephone interview has been reported to be an effective method of data collection168. This method may have affected the length of these interviews, which were shorter than face-to-face interviews.

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CONCLUSIONS There is a wide range of potential explanatory factors associated with dental avoidance or non-attendance. Regarding dental avoidance among adoles-cents in a context of free dental care, the main factors we found are individ-ual and situational, pointing to the importance of individualized approaches and treatments.

Dental fear emerges as one important potential causal factor, and, im-portantly, a history of missed and cancelled appointments turns out to be the strongest predictor of future attendance behaviour. Therefore, early signs of fear or avoidance should never be ignored.

A problematic everyday situation may contribute to a higher risk of avoidance behaviour, as will poor oral health and high treatment needs.

Fears in the context of dental care include not only fear of dental treat-ments, pain or discomfort. Feelings of insecurity, related to not knowing who will be treating them, whether they will be blamed or reprimanded, and what will happen may be important triggers for no-shows, at least among adolescent girls. Although the adolescent girls expressed a will to take on an adult responsibility regarding booking and attending their dental appointments so as to keep their teeth healthy and attractive, they may need, and appreciate, support from their parents to keep to regular dental attend-ance.

It is hoped that the results of this thesis add some pieces to the puzzle of no-shows among adolescents in dental care. However, the question of what really causes some of them, more boys than girls, to repeatedly miss their appointments, risking their oral health, still remains a challenge for dental care.

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CLINICAL IMPLICATIONS Adolescence is a transition period when health risk behaviours may be es-tablished. Dental personnel need to be aware of why some adolescents fail to attend their dental appointments and of factors that may be associated with the phenomenon, bearing in mind that adolescents are unique individ-uals with different needs and preferences. Relevant and proactive clinical approaches in dental health care may lead to individual benefits among chil-dren and adolescents, in the form of reduced fear, and prevent negative oral health behaviours. They may also give socio-economic benefits, such as bet-ter and more efficient use of the dental health care resources.

There is a need to provide adolescent dental patients with information and involvement already when planning for their dental visits and treat-ments, to ensure that they understand what will happen during their visits. Some information can be included in the appointment letter. However, to be able to individualize the information and involve the adolescent in plan-ning their dental visit, it is important to be aware of the adolescent’s every-day life and situation (e.g. living in a single-parent family, low SES, and individual occupation), needs, expectations and previous experiences of dental visits/care and personnel. This information can be obtained in differ-ent ways, one of which is to develop a web or mobile application (app) with focus on the individual’s informational needs and expectations. Depending on how the adolescent responds, there is also the possibility within the app to connect the answers given to different ways of describing and explaining the planned dental examination with pedagogical images, video clips, and so on. This may contribute to increased feelings of involvement, preparation and ability to handle a potentially unpleasant dental visit.

Furthermore, it is, as far as possible, important to try to achieve continu-ity in dental personnel, as this may facilitate regular dental care. Continuity can contribute to adolescents’ feelings of safety and security when visiting the dental clinic and thus we may establish a good relationship with these patients.

What also remains important is to be observant to an early pattern of missed and cancelled dental appointments as they might predict future missed and cancelled dental appointments. These early signs of avoidance should never be accepted or ignored as continuous dental avoidance can jeopardize adolescents’ oral health. Bearing in mind adolescents’ insecurity regarding the responsibility for dental visits and contacts with dental care,

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it is important to implement a clinical routine where dental personnel al-ways try to get in contact with non-regular adolescent attenders in close proximity to a missed appointment. Routine SMS text reminders are already being sent, but we may need to consider other alternatives. These clinical efforts may help not only to prevent missed dental appointments, but they may also help in planning for dental personnel resources.

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IMPLICATIONS FOR FUTURE RESEARCH This thesis has shown factors that facilitate dental care attendance in ado-lescents, and it describes factors that prevent adolescents from attending their dental appointments. The thesis further emphasizes the importance of DF and of paying attention to early signs of non-regular dental attendance. However, there are still some knowledge gaps that call for further research, which are suggested below.

Although a wide variety of environmental, individual and situational fac-tors associated with dental avoidance among adolescents have been identi-fied, preconditions specifically associated with the present outcome of den-tal avoidance still need to be investigated. In the Swedish context of growing proportions of individuals from a non-Swedish background, the possible impact of cultural background (i.e. language, ethnicity, religion) deserves further research.

As the results of this thesis are based on an adolescent population, it would be interesting to investigate no-shows among young adults once they need to pay for their dental care. Does the frequency of missed appoint-ments increase when individuals need to pay for their dental care? Further-more, since missed dental appointments have a negative financial effect on dental clinics, future research should also include financial aspects.

This thesis provides an insight into how adolescent girls with low rates of missed dental appointments experience dental care in Sweden. Future re-search should focus on both genders and on adolescents’ experiences of Swedish dental care to get a broader picture of the studied phenomenon. It would also be desirable to include adolescents with a consistent pattern of missed or cancelled appointments, as we did not manage to get in touch with them. One possible way of getting in contact with these individuals may be to recruit them in school. Another alternative for recruiting adoles-cent participants would be to advertise future research via the social media 169, 170. Further, using online focus groups 171, 172 among adolescents may be a preferable way of data collection from participants that are hard to reach using the traditional methods.

Since the girls in our study frequently expressed the need to feel safe and secure, it would also be interesting to examine dental personnel’s percep-tions regarding meeting and communicating with adolescent dental pa-tients. In this context, we need to consider whether SDT-based interventions developed for dental attendance may be suitable.

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AKNOWLEDGMENTS My journey as a doctoral student now comes to an end and it is time for me to express my sincere gratitude to those who supported me through this thesis: Kristina Arnrup, Associate Professor, my main supervisor, who encour-aged me to continue with this thesis. Thank you for taking me under your wings and for teaching me what research is about. It was a privilege hav-ing you as my mentor and having access to your knowledge and expertise. Thank you for your patience and your time, for listening and for support-ing me in my decisions, both in research and in private life. I will always be grateful for these years and mostly for you believing in me. Jesper Lundgren, Associate Professor, my co-supervisor, who supported me through this thesis. Thank you for your feedback and for all the dis-cussions we had over the telephone. My co-supervisor Jenny Windahl, PhD, for your feedback and support through all these years. Thank you for being there for me, especially at the end of writing the framework for this thesis. Your advice and your sup-port have meant a lot to me. Eva Carlsson, PhD, who introduced me to qualitative research. Thank you for accepting to be a part of my research (Paper IV) and for standing by me when I was confused. All my former co-workers at PDC Wivallius, for helping me with the data collection for Paper II: you know who you are. Dental nurse Kristina Ekman, for helping me with Excel. You did a great job, and I do not know how I would have managed without you. Daniel Pichler and Ulf Johansson at the University Health Care Research Centre, Örebro, who helped me with the transcripts of the interviews for Paper IV. PKatri Ståhlnacke, PhD, for your interest in this thesis, for your advice and for all the conversations we had through the years. Thank you for be-ing one of the experts at my introductory chapter seminar.

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All my co-workers at Specialist Paediatric Dentistry in Örebro who were supportive and who told me to take it easy and to remember that there are other things in life than studies. Lillemor Dimberg, PhD, Jir Barzangi, PhD, Jacob Jonsson Sjögren, PhD Student and Anna Bäck, Secretary, for support and interesting discussions. Jessica Eriksson, controller at Public Dental Health Services, for supplying me with the lists for Papers III and IV. My close friends from the 90s, Tinka and Daca, for your interest in my work and for your endless support. Thank you for being there through all these years and thank you for your unconditional love and friendship. All my other friends, colleagues and relatives who have been showing an interest in this thesis. Thank you all. You know who you are. My father Meho and his partner Sabiha. Thank you for all your endless support. Special thanks go to my father, who has always been there for me, coming all the way from Malmö to help me with the kids and with the house. Benny and Carina Fägerstad, my father-in-law and his wife, who were there to help us drive our kids to their many spare time activities. And finally, to my beloved family who stood by me all these years and es-pecially at the end of writing this thesis. My husband Johan and our daughters Emma, Hanna and Filippa. Thank you for your unconditional love even during these hectic times. Sorry for my bad mood sometimes, but I promise you that it will be better now. You are my whole world and I love you so much. I also wish to express my appreciation to all children and adolescents who participated in the studies. You made this thesis possible. This thesis would not have been possible without grants from: the Public Dental Health Service, Region Örebro County, Sweden; ALF-founded re-search, Region Örebro County, Sweden; Örebro University, Sweden; and the Swedish Dental Hygienist Association (SDHA).

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ract

]) AN

D vi

sit[T

itle/

Abst

ract

])) A

ND (

( "1

994/

01/0

1"[P

Dat]

: "20

15/0

1/31

"[PD

at] )

AND

Eng

lish[

lang

] AND

( yo

ung

adul

t[MeS

H] O

R ad

oles

cent

[MeS

H] )

)) Fi

lters

: Pub

licat

ion

date

from

19

94/0

1/01

to 2

015/

01/3

1; E

nglis

h; Y

oung

Adu

lt: 1

9-24

yea

rs; A

dole

scen

t: 13

-18

year

s

25

03:2

6:17

#35

Add

Sear

ch ((

(((de

ntal

hea

lth s

ervi

ces[

Title

/Abs

tract

] AND

( ( "

1994

/01/

01"[

PDat

] : "

2015

/01/

31"[

PDat

] ) A

ND E

nglis

h[la

ng] A

ND (

youn

g ad

ult[M

eSH]

OR

adol

esce

nt[M

eSH]

) )))

OR

((((h

ealth

car

e ut

iliza

tion[

Title

/Abs

tract

] AND

( ( "

1994

/01/

01"[

PDat

] : "

2015

/01/

31"[

PDat

] ) A

ND E

nglis

h[la

ng] A

ND (

youn

g ad

ult[M

eSH]

OR

adol

esce

nt[M

eSH]

) )))

AND

den

t*[Ti

tle/A

bstra

ct])

AND

( ( "

1994

/01/

01"[

PDat

] : "

2015

/01/

31"[

PDat

] ) A

ND E

nglis

h[la

ng] A

ND (

youn

g ad

ult[M

eSH]

OR

adol

esce

nt[M

eSH]

) )))

AND

( ( "

1994

/01/

01"[

PDat

] : "

2015

/01/

31"[

PDat

] ) A

ND E

nglis

h[la

ng] A

ND (

youn

g ad

ult[M

eSH]

OR

adol

esce

nt[M

eSH]

) )))

AND

(ado

lesc

ents

[Titl

e/Ab

stra

ct] A

ND (

( "19

94/0

1/01

"[PD

at] :

"20

15/0

1/31

"[PD

at] )

AND

Eng

lish[

lang

] AND

( yo

ung

adul

t[MeS

H] O

R ad

oles

cent

[MeS

H] )

)) Fi

lters

: Pub

licat

ion

date

from

199

4/01

/01

to 2

015/

01/3

1; E

nglis

h; Y

oung

Adu

lt: 1

9-24

yea

rs; A

dole

scen

t: 13

-18

year

s

9 03

:24:

05

#34

Add

Sear

ch ((

dent

al h

ealth

ser

vice

s[Ti

tle/A

bstra

ct] A

ND (

( "19

94/0

1/01

"[PD

at] :

"20

15/0

1/31

"[PD

at] )

AND

Eng

lish[

lang

] AND

( yo

ung

adul

t[MeS

H] O

R ad

oles

cent

[MeS

H] )

))) O

R (((

(hea

lth c

are

utili

zatio

n[Ti

tle/A

bstra

ct] A

ND (

( "19

94/0

1/01

"[PD

at] :

"20

15/0

1/31

"[PD

at] )

AND

Eng

lish[

lang

] AND

( yo

ung

adul

t[MeS

H] O

R ad

oles

cent

[MeS

H] )

))) A

ND d

ent*[

Title

/Abs

tract

]) AN

D ( (

"19

94/0

1/01

"[PD

at] :

"20

15/0

1/31

"[PD

at] )

AND

Eng

lish[

lang

] AND

( yo

ung

adul

t[MeS

H] O

R ad

oles

cent

[MeS

H] )

)) Fi

lters

: Pub

licat

ion

date

from

199

4/01

/01

to 2

015/

01/3

1; E

nglis

h; Y

oung

Adu

lt: 1

9-24

yea

rs; A

dole

scen

t: 13

-18

year

s

65

03:2

2:40

#33

Add

Sear

ch ((

heal

th c

are

utili

zatio

n[Ti

tle/A

bstra

ct] A

ND (

( "19

94/0

1/01

"[PD

at] :

"20

15/0

1/31

"[PD

at] )

AND

Eng

lish[

lang

] AND

( yo

ung

adul

t[MeS

H] O

R ad

oles

cent

[MeS

H] )

))) A

ND d

ent*[

Title

/Abs

tract

] Filt

ers:

Pub

licat

ion

date

from

199

4/01

/01

to 2

015/

01/3

1; E

nglis

h; Y

oung

Adu

lt: 1

9-24

yea

rs;

Adol

esce

nt: 1

3-18

yea

rs

34

03:2

1:44

Appendix I

76

ANIDA FÄGERSTAD No-shows in dental care

APPENDICES

ANIDA FÄGERSTAD No-shows in dental care

77

rece

nt q

uerie

s

Sear

ch

Add

to

build

er

Que

ry

Item

s fo

und

Tim

e

#32

Add

Sear

ch ((

heal

th c

are

utili

zatio

n[Ti

tle/A

bstra

ct] A

ND (

( "19

94/0

1/01

"[PD

at] :

"20

15/0

1/31

"[PD

at] )

AND

Eng

lish[

lang

] AND

( yo

ung

adul

t[MeS

H] O

R ad

oles

cent

[MeS

H] )

))) A

ND d

ent F

ilter

s: P

ublic

atio

n da

te fr

om 1

994/

01/0

1 to

201

5/01

/31;

Eng

lish;

You

ng A

dult:

19-

24 y

ears

; Ado

lesc

ent:

13-1

8 ye

ars

6 03

:20:

47

#31

Add

Sear

ch ((

(den

tal h

ealth

ser

vice

s[Ti

tle/A

bstra

ct] A

ND (

( "19

94/0

1/01

"[PD

at] :

"20

15/0

1/31

"[PD

at] )

AND

Eng

lish[

lang

] AND

( yo

ung

adul

t[MeS

H] O

R ad

oles

cent

[MeS

H] )

))) A

ND (h

ealth

car

e ut

iliza

tion[

Title

/Abs

tract

] AND

( ( "

1994

/01/

01"[

PDat

] : "

2015

/01/

31"[

PDat

] ) A

ND E

nglis

h[la

ng] A

ND (

youn

g ad

ult[M

eSH]

OR

adol

esce

nt[M

eSH]

) )))

AND

(ado

lesc

ents

[Titl

e/Ab

stra

ct] A

ND (

( "19

94/0

1/01

"[PD

at] :

"20

15/0

1/31

"[PD

at] )

AND

Eng

lish[

lang

] AND

( yo

ung

adul

t[MeS

H] O

R ad

oles

cent

[MeS

H] )

)) Fi

lters

: Pub

licat

ion

date

from

199

4/01

/01

to 2

015/

01/3

1; E

nglis

h; Y

oung

Adu

lt: 1

9-24

yea

rs; A

dole

scen

t: 13

-18

year

s

0 03

:20:

15

#30

Add

Sear

ch a

dole

scen

ts[T

itle/

Abst

ract

] Filt

ers:

Pub

licat

ion

date

from

199

4/01

/01

to 2

015/

01/3

1; E

nglis

h; Y

oung

Adu

lt: 1

9-24

yea

rs; A

dole

scen

t: 13

-18

year

s 74

894

03:1

8:30

#29

Add

Sear

ch h

ealth

car

e ut

iliza

tion[

Title

/Abs

trac

t] Fi

lters

: Pub

licat

ion

date

from

199

4/01

/01

to 2

015/

01/3

1; E

nglis

h; Y

oung

Adu

lt: 1

9-24

yea

rs; A

dole

scen

t: 13

-18

year

s 11

19

03:1

8:19

#28

Add

Sear

ch d

enta

l hea

lth s

ervi

ces[

Title

/Abs

tract

] Filt

ers:

Pub

licat

ion

date

from

199

4/01

/01

to 2

015/

01/3

1; E

nglis

h; Y

oung

Adu

lt: 1

9-24

yea

rs; A

dole

scen

t: 13

-18

year

s 31

03

:17:

58

#27

Add

Sear

ch ((

((((((

(den

tal[T

itle/

Abst

ract

]) AN

D av

oida

nce[

Title

/Abs

tract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

atte

ndan

ce[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

non-

atte

ndan

ce[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

utili

zatio

n[Ti

tle/A

bstra

ct]))

OR

((den

tal[T

itle/

Abst

ract

]) AN

D no

-sho

w[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

appo

intm

ents

[Titl

e/Ab

stra

ct]))

OR

((den

tal[T

itle/

Abst

ract

]) AN

D m

isse

d ap

poin

tmen

ts[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

visi

t[Titl

e/Ab

stra

ct])

Filte

rs: P

ublic

atio

n da

te fr

om 1

994/

01/0

1 to

201

5/01

/31;

Eng

lish;

Yo

ung

Adul

t: 19

-24

year

s; A

dole

scen

t: 13

-18

year

s

1204

03

:13:

16

#26

Add

Sear

ch ((

((((((

(den

tal[T

itle/

Abst

ract

]) AN

D av

oida

nce[

Title

/Abs

tract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

atte

ndan

ce[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

non-

atte

ndan

ce[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

utili

zatio

n[Ti

tle/A

bstra

ct]))

OR

((den

tal[T

itle/

Abst

ract

]) AN

D no

-sho

w[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

appo

intm

ents

[Titl

e/Ab

stra

ct]))

OR

((den

tal[T

itle/

Abst

ract

]) AN

D m

isse

d ap

poin

tmen

ts[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

visi

t[Titl

e/Ab

stra

ct])

Filte

rs: P

ublic

atio

n da

te fr

om 1

994/

01/0

1 to

201

5/01

/31;

Eng

lish;

Yo

ung

Adul

t: 19

-24

year

s

402

03:1

3:13

#25

Add

Sear

ch ((

((((((

(den

tal[T

itle/

Abst

ract

]) AN

D av

oida

nce[

Title

/Abs

tract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

atte

ndan

ce[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

non-

atte

ndan

ce[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

utili

zatio

n[Ti

tle/A

bstra

ct]))

OR

((den

tal[T

itle/

Abst

ract

]) AN

D no

-sho

w[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

appo

intm

ents

[Titl

e/Ab

stra

ct]))

OR

((den

tal[T

itle/

Abst

ract

]) AN

D m

isse

d ap

poin

tmen

ts[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

visi

t[Titl

e/Ab

stra

ct])

Filte

rs: P

ublic

atio

n da

te fr

om 1

994/

01/0

1 to

201

5/01

/31;

Eng

lish

3967

03

:07:

35

#24

Add

Sear

ch ((

((((((

(den

tal[T

itle/

Abst

ract

]) AN

D av

oida

nce[

Title

/Abs

tract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

atte

ndan

ce[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

non-

atte

ndan

ce[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

utili

zatio

n[Ti

tle/A

bstra

ct]))

OR

((den

tal[T

itle/

Abst

ract

]) AN

D no

-sho

w[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

appo

intm

ents

[Titl

e/Ab

stra

ct]))

OR

((den

tal[T

itle/

Abst

ract

]) AN

D m

isse

d ap

poin

tmen

ts[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

visi

t[Titl

e/Ab

stra

ct])

Filte

rs: P

ublic

atio

n da

te fr

om 1

994/

01/0

1 to

201

5/01

/31

4205

03

:06:

27

#23

Add

Sear

ch ((

((((((

(den

tal[T

itle/

Abst

ract

]) AN

D av

oida

nce[

Title

/Abs

tract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

atte

ndan

ce[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

non-

atte

ndan

ce[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

utili

zatio

n[Ti

tle/A

bstra

ct]))

OR

((den

tal[T

itle/

Abst

ract

]) AN

D no

-sho

w[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

appo

intm

ents

[Titl

e/Ab

stra

ct]))

OR

((den

tal[T

itle/

Abst

ract

]) AN

D m

isse

d ap

poin

tmen

ts[T

itle/

Abst

ract

])) O

R ((d

enta

l[Titl

e/Ab

stra

ct])

AND

visi

t[Titl

e/Ab

stra

ct])

5563

03

:04:

15

78

ANIDA FÄGERSTAD No-shows in dental care

re

cent

que

ries

Sear

ch

Add

to

build

er

Que

ry

Item

s fo

und

Tim

e

#22

Add

Sear

ch ((

(((((d

enta

l vis

it) A

ND m

isse

d de

ntal

app

oint

men

ts) A

ND d

enta

l app

oint

men

ts) A

ND d

enta

l util

izat

ion)

AND

den

tal n

o-sh

ow) A

ND d

enta

l non

-at

tend

ance

) AND

den

tal a

ttend

ance

) AND

den

tal a

void

ance

0

02:5

8:37

#21

Add

Sear

ch d

enta

l vis

it 35

48

02:5

8:15

#20

Add

Sear

ch m

isse

d de

ntal

app

oint

men

ts

59

02:5

8:09

#19

Add

Sear

ch d

enta

l app

oint

men

ts

2152

02

:58:

01

#18

Add

Sear

ch d

enta

l util

izat

ion

8866

02

:57:

52

#17

Add

Sear

ch d

enta

l no-

show

14

02

:57:

32

#16

Add

Sear

ch d

enta

l non

-atte

ndan

ce

46

02:5

7:17

#15

Add

Sear

ch d

enta

l atte

ndan

ce

943

02:5

7:10

#14

Add

Sear

ch d

enta

l avo

idan

ce

644

02:5

7:03

#13

Add

Sear

ch ((

(den

tal[T

itle/

Abst

ract

]) AN

D at

tend

ance

[Titl

e/Ab

stra

ct]))

AND

((de

ntal

[Titl

e/Ab

stra

ct])

AND

avoi

danc

e[Ti

tle/A

bstra

ct])

25

02:5

6:50

#12

Add

Sear

ch ((

(den

tal[T

itle/

Abst

ract

]) AN

D ut

iliza

tion[

Title

/Abs

tract

])) A

ND ((

dent

al[T

itle/

Abst

ract

]) AN

D no

n-at

tend

ance

[Titl

e/Ab

stra

ct])

2 02

:56:

43

#11

Add

Sear

ch ((

(den

tal[T

itle/

Abst

ract

]) AN

D ap

poin

tmen

ts[T

itle/

Abst

ract

])) A

ND ((

dent

al[T

itle/

Abst

ract

]) AN

D no

-sho

w[T

itle/

Abst

ract

]) 5

02:5

6:34

#10

Add

Sear

ch ((

(den

tal[T

itle/

Abst

ract

]) AN

D vi

sit[T

itle/

Abst

ract

])) A

ND ((

dent

al[T

itle/

Abst

ract

]) AN

D m

isse

d ap

poin

tmen

ts[T

itle/

Abst

ract

]) 1

02:5

6:25

#9

Add

Sear

ch ((

((((((

(den

tal[T

itle/

Abst

ract

]) AN

D vi

sit[T

itle/

Abst

ract

])) A

ND ((

dent

al[T

itle/

Abst

ract

]) AN

D m

isse

d ap

poin

tmen

ts[T

itle/

Abst

ract

])) A

ND

((den

tal[T

itle/

Abst

ract

]) AN

D ap

poin

tmen

ts[T

itle/

Abst

ract

])) A

ND ((

dent

al[T

itle/

Abst

ract

]) AN

D no

-sho

w[T

itle/

Abst

ract

])) A

ND ((

dent

al[T

itle/

Abst

ract

]) AN

D ut

iliza

tion[

Title

/Abs

tract

])) A

ND ((

dent

al[T

itle/

Abst

ract

]) AN

D no

n-at

tend

ance

[Titl

e/Ab

stra

ct]))

AND

((de

ntal

[Titl

e/Ab

stra

ct])

AND

atte

ndan

ce[T

itle/

Abst

ract

])) A

ND ((

dent

al[T

itle/

Abst

ract

]) AN

D av

oida

nce[

Title

/Abs

tract

])

0 02

:56:

07

#8

Add

Sear

ch (d

enta

l[Titl

e/Ab

stra

ct])

AND

visi

t[Titl

e/Ab

stra

ct]

2395

02

:54:

39

#7

Add

Sear

ch (d

enta

l[Titl

e/Ab

stra

ct])

AND

mis

sed

appo

intm

ents

[Titl

e/A

bstra

ct]

31

02:5

4:26

#6

Add

Sear

ch (d

enta

l[Titl

e/Ab

stra

ct])

AND

appo

intm

ents

[Titl

e/Ab

stra

ct]

659

02:5

4:10

#5

Add

Sear

ch (d

enta

l[Titl

e/Ab

stra

ct])

AND

no-s

how

[Titl

e/Ab

stra

ct]

10

02:5

3:51

#4

Add

Sear

ch (d

enta

l[Titl

e/Ab

stra

ct])

AND

utili

zatio

n[Ti

tle/A

bstra

ct]

1781

02

:53:

25

#3

Add

Sear

ch (d

enta

l[Titl

e/Ab

stra

ct])

AND

non-

atte

ndan

ce[T

itle/

Abst

ract

] 37

02

:52:

56

#2

Add

Sear

ch (d

enta

l[Titl

e/Ab

stra

ct])

AND

atte

ndan

ce[T

itle/

Abst

ract

] 85

9 02

:52:

36

#1

Add

Sear

ch (d

enta

l[Titl

e/Ab

stra

ct])

AND

avoi

danc

e[Ti

tle/A

bstra

ct]

434

02:5

2:13

78

ANIDA FÄGERSTAD No-shows in dental care

ANIDA FÄGERSTAD No-shows in dental care

79

Sear

ch h

isto

ry P

sycI

NFO

Se

arch

ID

#

Sear

ch T

erm

s Se

arch

Opt

ions

L

ast R

un V

ia

Res

ults

S17

S2

OR

S4

OR

S9

OR

S12

OR

S14

O

R S

16

Sear

ch m

odes

- Fi

nd a

ll m

y se

arch

term

s

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

353

S16

de

ntal

AN

D v

isit

Li

mite

rs -

Peer

Rev

iew

ed; R

efer

ence

s Ava

ilabl

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- Fi

nd a

ny o

f my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

163

S15

de

ntal

AN

D v

isit

Li

mite

rs -

Peer

Rev

iew

ed; R

efer

ence

s Ava

ilabl

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- Fi

nd a

ny o

f my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

200

S14

de

ntal

AN

D m

isse

d ap

poin

tmen

ts

Lim

iters

- Pe

er R

evie

wed

; Ref

eren

ces A

vaila

ble;

Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Find

any

of m

y se

arch

term

s

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

32

S13

de

ntal

AN

D m

isse

d ap

poin

tmen

ts

Lim

iters

- Pe

er R

evie

wed

; Ref

eren

ces A

vaila

ble;

Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Find

any

of m

y se

arch

term

s

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

45

S12

de

ntal

AN

D a

ppoi

ntm

ents

Li

mite

rs -

Peer

Rev

iew

ed; R

efer

ence

s Ava

ilabl

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- Fi

nd a

ny o

f my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

26

80

ANIDA FÄGERSTAD No-shows in dental care

S11

de

ntal

AN

D a

ppoi

ntm

ents

Li

mite

rs -

Peer

Rev

iew

ed; R

efer

ence

s Ava

ilabl

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- Fi

nd a

ny o

f my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

35

S10

de

ntal

AN

D n

o-sh

ow

Lim

iters

- Pe

er R

evie

wed

; Ref

eren

ces A

vaila

ble;

Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Find

any

of m

y se

arch

term

s

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

0

S9

dent

al A

ND

util

izat

ion

Li

mite

rs -

Peer

Rev

iew

ed; R

efer

ence

s Ava

ilabl

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- Fi

nd a

ny o

f my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

145

S8

dent

al A

ND

util

izat

ion

Li

mite

rs -

Peer

Rev

iew

ed; R

efer

ence

s Ava

ilabl

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- Fi

nd a

ny o

f my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

161

S7

dent

al A

ND

util

izat

ion

Li

mite

rs -

Peer

Rev

iew

ed; E

nglis

h La

ngua

ge;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- Fi

nd a

ll m

y se

arch

term

s

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

198

S6

dent

al A

ND

non

-atte

ndan

ce

Lim

iters

- Pe

er R

evie

wed

; Eng

lish

Lang

uage

; Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Find

all

my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

0

S5

dent

al A

ND

non

-atte

ndan

ce

Lim

iters

- Pe

er R

evie

wed

; Eng

lish

Lang

uage

; Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Find

all

my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

0

80

ANIDA FÄGERSTAD No-shows in dental care

ANIDA FÄGERSTAD No-shows in dental care

81

S4

dent

al A

ND

atte

ndan

ce

Lim

iters

- Pe

er R

evie

wed

; Eng

lish

Lang

uage

; Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Find

all

my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

45

S3

dent

al A

ND

atte

ndan

ce

Lim

iters

- Pe

er R

evie

wed

; Eng

lish

Lang

uage

; Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Find

all

my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

49

S2

dent

al A

ND

avo

idan

ce

Lim

iters

- Pe

er R

evie

wed

; Eng

lish

Lang

uage

; Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Find

all

my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

43

S1

dent

al A

ND

avo

idan

ce

Lim

iters

- Pe

er R

evie

wed

; Eng

lish

Lang

uage

; Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Find

all

my

sear

ch te

rms

Inte

rface

- EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- Adv

ance

d Se

arch

D

atab

ase

- Psy

cIN

FO

68

82

ANIDA FÄGERSTAD No-shows in dental care

Sear

ch h

isto

ry C

INA

HL

Plu

s w

ith

Full

Tex

t

Sear

ch I

D#

Se

arch

Ter

ms

Se

arch

Opt

ions

L

ast

Run

Via

R

esul

ts

S22

((

dent

al A

ND

vis

it)

AN

D (

S6 O

R

S9 O

R S

11 O

R S

13 O

R S

14 O

R

S16

OR

S18

OR

S20

)) O

R (

S20)

Se

arch

mod

es -

Fin

d al

l my

sear

ch t

erm

s

Inte

rfac

e -

EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- A

dvan

ced

Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

h Fu

ll T

ext

582

S21

(d

enta

l AN

D v

isit

) A

ND

(S6

OR

S9

OR

S11

OR

S13

OR

S14

OR

S16

O

R S

18 O

R S

20)

Se

arch

mod

es -

Fin

d al

l my

sear

ch t

erm

s

Inte

rfac

e -

EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- A

dvan

ced

Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

h Fu

ll T

ext

582

S20

de

ntal

AN

D v

isit

L

imit

ers

- Pe

er R

evie

wed

; Eng

lish

Lan

guag

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- F

ind

all m

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arch

ter

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Inte

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EB

SCO

host

Res

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atab

ases

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arch

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- A

dvan

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Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

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ll T

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582

S19

de

ntal

AN

D v

isit

L

imit

ers

- Pe

er R

evie

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; Eng

lish

Lan

guag

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- F

ind

all m

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arch

ter

ms

Inte

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e -

EB

SCO

host

Res

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atab

ases

Se

arch

Scr

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- A

dvan

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Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

h Fu

ll T

ext

1,18

0

S18

de

ntal

AN

D m

isse

d ap

poin

tmen

ts

Lim

iter

s -

Peer

Rev

iew

ed; E

nglis

h L

angu

age;

Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Fin

d al

l my

sear

ch t

erm

s

Inte

rfac

e -

EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

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- A

dvan

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Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

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ll T

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3

S17

de

ntal

AN

D m

isse

d ap

poin

tmen

ts

Lim

iter

s -

Peer

Rev

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ed; E

nglis

h L

angu

age;

Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Fin

d al

l my

sear

ch t

erm

s

Inte

rfac

e -

EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

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- A

dvan

ced

Sear

ch

14

82

ANIDA FÄGERSTAD No-shows in dental care

ANIDA FÄGERSTAD No-shows in dental care

83

Dat

abas

e -

CIN

AH

L P

lus

wit

h Fu

ll T

ext

S16

de

ntal

AN

D a

ppoi

ntm

ents

L

imit

ers

- Pe

er R

evie

wed

; Eng

lish

Lan

guag

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- F

ind

all m

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arch

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Inte

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e -

EB

SCO

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Res

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atab

ases

Se

arch

Scr

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- A

dvan

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Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

h Fu

ll T

ext

174

S15

de

ntal

AN

D a

ppoi

ntm

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L

imit

ers

- Pe

er R

evie

wed

; Eng

lish

Lan

guag

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- F

ind

all m

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arch

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Inte

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e -

EB

SCO

host

Res

earc

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atab

ases

Se

arch

Scr

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- A

dvan

ced

Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

h Fu

ll T

ext

451

S14

de

ntal

AN

D n

o-sh

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Lim

iter

s -

Peer

Rev

iew

ed; E

nglis

h L

angu

age;

Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Fin

d al

l my

sear

ch t

erm

s

Inte

rfac

e -

EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

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- A

dvan

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Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

h Fu

ll T

ext

5

S13

de

ntal

AN

D u

tiliz

atio

n

Lim

iter

s -

Peer

Rev

iew

ed; E

nglis

h L

angu

age;

Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Fin

d al

l my

sear

ch t

erm

s

Inte

rfac

e -

EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- A

dvan

ced

Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

h Fu

ll T

ext

1,10

1

S12

de

ntal

AN

D u

tiliz

atio

n

Lim

iter

s -

Peer

Rev

iew

ed; E

nglis

h L

angu

age;

Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Fin

d al

l my

sear

ch t

erm

s

Inte

rfac

e -

EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- A

dvan

ced

Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

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ll T

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3,08

8

84

ANIDA FÄGERSTAD No-shows in dental care

S11

de

ntal

AN

D n

on-a

tten

danc

e

Lim

iter

s -

Peer

Rev

iew

ed; E

nglis

h L

angu

age;

Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Fin

d al

l my

sear

ch t

erm

s

Inte

rfac

e -

EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

- A

dvan

ced

Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

h Fu

ll T

ext

6

S10

de

ntal

AN

D n

on-a

tten

danc

e

Lim

iter

s -

Peer

Rev

iew

ed; E

nglis

h L

angu

age;

Pu

blis

hed

Dat

e: 1

9940

101-

2015

0131

Se

arch

mod

es -

Fin

d al

l my

sear

ch t

erm

s

Inte

rfac

e -

EB

SCO

host

Res

earc

h D

atab

ases

Se

arch

Scr

een

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dvan

ced

Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

h Fu

ll T

ext

6

S9

dent

al A

ND

att

enda

nce

L

imit

ers

- Pe

er R

evie

wed

; Eng

lish

Lan

guag

e;

Publ

ishe

d D

ate:

199

4010

1-20

1501

31

Sear

ch m

odes

- F

ind

all m

y se

arch

ter

ms

Inte

rfac

e -

EB

SCO

host

Res

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atab

ases

Se

arch

Scr

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ced

Sear

ch

Dat

abas

e -

CIN

AH

L P

lus

wit

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ll T

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102

S8

dent

al A

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att

enda

nce

Se

arch

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es -

Fin

d al

l my

sear

ch t

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s

Inte

rfac

e -

EB

SCO

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Res

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84

ANIDA FÄGERSTAD No-shows in dental care

ANIDA FÄGERSTAD No-shows in dental care

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ANIDA FÄGERSTAD No-shows in dental care

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87

Appendix II

Informationsbrev till dig som är 16-19 år angående studien om hur

ungdomar i Örebro län uppfattar tandvården

Hej,

Jag heter Anida Fägerstad och arbetar som tandhygienist på barntandvården i Örebro.

Förutom mitt jobb som tandhygienist är jag också forskarstudent vid Örebro

universitet där jag bland annat undersöker vad det är som gör att en del ungdomar inte

kommer till tandvården.

Jag planerar att undersöka hur ungdomar mellan 16 och 19 år, som ibland inte

kommer på sina tandvårdsbesök, uppfattar tandvården. Till min hjälp har jag fått listor

på uteblivna tandvårdsbesök bland 16-19 åringar under 2017. Det är så jag har fått

ditt namn. Nu behöver jag komma i kontakt med och intervjua cirka 20 ungdomar

som går på någon av folktandvårdsklinikerna i Örebro län. Intervjun beräknas ta ca 45

minuter och spelas in. Vid behov av tolk så ordnar jag det.

Jag kommer att ta kontakt med dig via telefon för att berätta mer om studien och fråga

om du skulle vilja delta i den. Då har du också möjlighet att ställa frågor till mig om

det är något du undrar över.

Hälsningar

Anida Fägerstad Doktorand, Örebro universitet Leg. tandhygienist, Folktandvården Region Örebro län, Centrum för specialisttandvård Tel. 019-602 40 37 e-post: [email protected] Projektansvarig och handledare: Kristina Arnrup Forskningshandledare, docent, övertandläkare Centrum för specialisttandvård Odontologiska forskningsenheten Tel. 019-602 40 36 e-post: [email protected]

86

ANIDA FÄGERSTAD No-shows in dental care

ANIDA FÄGERSTAD No-shows in dental care

87

Appendix III

Protokoll för artikelgranskning

Artikel nr:…………. Granskare:………………………………………….. Författare:……………………………………………………………………………………….………………………………………………………………………………………………….. Titel:…………………………………………………………………………………………….………………………………………………………..………………………………………… År:……….. Tidskrift:…………………………………………………………… Land där studien är genomförd: ……………………………………………………………………… Inklusionskriterier

Exklusionskriterier

Quantitative or qualitative research □

Intervention studies □

Published between 1994-2014 □ The perceptions of dental health personnel □

Peer-reviewed primary research reports □ Reporting of a study in duplicate papers □

Factors influencing dental avoidance or non-

attendance/non-utilization □

Audit/review/analysis of case notes □

Adolescents 13-19 yrs □

Syftet med studien

…………………………………………………………………………………………………

…………………………………………………………………………………………………

…………………………………………………………………………………………………

…………………………………………………………………………………………………

Är frågeställningarna tydligt beskrivna? Ja □ Nej □ Dental attendance/utilization/visits eller non-attendance/non-utilization/non-visits inkluderas i huvudsyfte □ inkluderas i bisyfte □ utgör enbart bifynd i studien □

88

ANIDA FÄGERSTAD No-shows in dental care

ANIDA FÄGERSTAD No-shows in dental care

89

Studiedesign: Kvalitativ □ Kvantitativ □ RCT □ Fall-kontroll □ Kohort □ Prospektiv □ Retrospektiv □ Longitudinell □ Tvärsnitt □ Undersökningsgruppen Typ av studiegrupp…………………………………………………………………………… Kommentar…………………………………………………………………………………… Vilka är inklusionskriterierna? …………………………………………………………………………………………………

…………………………………………………………………………………………………

Vilka är exklusionskriterierna? …………………………………………………………………………………………………

…………………………………………………………………………………………………

Person karakteristika

Antal…………………. Ålder…………….. Flickor………………Pojkar……………… Informant………………………………….. Urvalsmetod Randomiserat □ Snöbollsurval □

Kvoturval □ Strategiskt urval □

Klusterurval □ Teoretiskt urval □

Konsekutivt □ Övrigt □……………………………………………..

Är urvalet tydligt beskrivet? Ja □ Nej □ Urvalet ej alls beskrivet □ Är powerberäkning gjord? Ja □ Nej □ Ingen uppgift □

Ej relevant □

88

ANIDA FÄGERSTAD No-shows in dental care

ANIDA FÄGERSTAD No-shows in dental care

89

Mätmetoder Vilka mätmetoder användes? …………………………………………………………………………………………………

…………………………………………………………………………………………………

…………………………………………………………………………………………………

…………………………………………………………………………………………………

Analys och redovisning (utifrån review frågeställning) Faktorer…………………………………………………………………………………………

………………………………………………………………………………………………….

………………………………………………………………………………………………….

Outcomes

Dental attendance □

Non-attendance □

Avoidance □

Utilization □

Non-utilization □

Dental visits/appointments □

Vilken typ av statistisk metod har använts?

…………………………………………………………………………………………………

…………………………………………………………………………………………………

…………………………………………………………………………………………………

Hur stort var bortfallet?

.......................................................................................................................................................

.......................................................................................................................................................

......................................................................................................................................................

90 ANIDA FÄGERSTAD No-shows in dental care

Resultat (attendance/utilization/visits eller non-attendance/non-utilization/non-visits)

…………………………………………………………………………………………………

…………………………………………………………………………………….……………

…………………………………………………………………………………….

Confounders (utöver vad som betraktas som faktorer) beaktade

Ja □ Nej □

Tandvårdsrädsla □

Socioekonomisk status □

Kulturella faktorer □

Personliga faktorer □

Familjefaktorer □

Icke-relevant □

Annan□…………………………………………………………………………………………

…………………………………………………………………………………………………

…………………………………………………………………………………………………

Preliminär kvalitetsbedömning:

Metod Hög □ Medel □ Låg □

Relevans Hög □ Medel □ Låg □

Kommentar:…………………………………………………………………………………….

………………………………………………………………………………………………….

………………………………………………………………………………………………….

90 ANIDA FÄGERSTAD No-shows in dental care ANIDA FÄGERSTAD No-shows in dental care 91

Appendix IV

………………………...………….. ………………… Barnets/ungdomens personnummer Din signatur

CFSS-DS Ungdomars tandvårdsrädsla För att få reda på hur orolig eller rädd Du känner dig när Du ska gå till tandläkaren ber vi dig svara på de här frågorna.

Hur rädd är Du i följande situationer? Sätt kryss i den ruta som stämmer bäst från “1= inte alls rädd” till “5= livrädd”.

inte bara alls lite ganska mycket liv-

rädd rädd rädd rädd rädd 1 2 3 4 5

1. när du är hos tandläkaren

2. när du är hos doktorn

3. för att få spruta eller bedövning

4. när någon undersöker dina tänder eller mun

5. när Du gapar hos tandläkaren

6. när någon Du inte känner kommer för nära inpå Dig eller tar i Dig

7. när någon Du inte känner tittar på Dig

8. när tandläkaren borrar i Din tand

9. när Du ser tandläkaren borra i någon annans tand

10. för att höra tandläkarborren

11. när någon håller instrument i Din mun

12. för att kväljas, sätta i halsen

13. för att behöva åka till sjukhus

14. för personer i vita sjukhus- eller tandläkarkläder

15. när någon gör rent eller fluorlackar Dina tänder

TACK för att du har besvarat dessa frågor!

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ANIDA FÄGERSTAD No-shows in dental care

Appendix V

Intervjuprotokoll

Datum: ……………………… Patientens personnummer:

Typ av undersökning

Tdl

Thyg

Patientens födelseland: …………………………………………………………………………

Skola och klass patienten går i: …………………………………………………………………

Moderns födelseland: …………………………………………………………………………...

Faderns födelseland …………………………………………………………………………...

Moderns skolgång Faderns skolgång

Mindre än 9 år Mindre än 9 år

Grundskolan Grundskolan

Gymnasieutbildning Gymnasieutbildning

Universitetsutbildning Universitetsutbildning

Moderns yrke/ sysselsättning: ………………………………………………………

Faderns yrke/sysselsättning: ………………………………………………………...

Signatur uppgiftslämnare:…………………………………………….

92

ANIDA FÄGERSTAD No-shows in dental care

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93

Appendix VI

Studie ID Datum reg F-år-mån Kön O Pojke O Flicka

Klinik Klinikbyte O JA O NEJ

Övrigt

2009 2010 2011 2012 Antal besök Antal besök Antal besök Antal besök ATV= Tdl-2klin= Thyg-2klin= Tsk-2klin= Sampass= STV=

ATV= Tdl-2klin= Thyg-2klin= Tsk-2klin= Sampass= STV=

ATV= Tdl-2klin= Thyg-2klin= Tsk-2klin= Sampass= STV=

ATV= Tdl-2klin= Thyg-2klin= Tsk-2klin= Sampass= STV=

Kallelse/bokning (n) Kallelse/bokning (n) Kallelse/bokning (n) Kallelse/bokning (n) 11= 12= 13= 21= 22= 23= 24= 31= 32= 33=

11= 12= 13= 21= 22= 23= 24= 31= 32= 33=

11= 12= 13= 21= 22= 23= 24= 31= 32= 33=

11= 12= 13= 21= 22= 23= 24= 31= 32= 33=

Ub/åb (n); orsak Ub/åb (n); orsak Ub/åb (n); orsak Ub/åb (n); orsak 11= 21= 22= 23= 24= 31= 32= 33= 40=

11= 21= 22= 23= 24= 31= 32= 33= 40=

11= 21= 22= 23= 24= 31= 32= 33= 40=

11= 21= 22= 23= 24= 31= 32= 33= 40=

Beh yrke, personer (n) Beh yrke, personer (n) Beh yrke, personer (n) Beh yrke, personer (n) Tdl= Thyg= Tsk= Ötdl= Ort ass=

Tdl= Thyg= Tsk= Ötdl= Ort ass=

Tdl= Thyg= Tsk= Ötdl= Ort ass=

Tdl= Thyg= Tsk= Ötdl= Ort ass=

Us/ktr* (n) Us/ktr* (n) Us/ktr* (n) Us/ktr* (n) 11= 12= 13=

11= 12= 13=

11= 12= 13=

11= 12= 13=

Prof/dep/ utr* (n)

Prof/dep/ utr* (n)

Prof/dep/ utr* (n)

Prof/dep/ utr* (n)

21= 22= 23= 24= 25= 26=

21= 22= 23= 24= 25= 26=

21= 22= 23= 24= 25= 26=

21= 22= 23= 24= 25= 26=

94

ANIDA FÄGERSTAD No-shows in dental care

Lagn/ex* (n) Lagn/ex* (n) Lagn/ex* (n) Lagn/ex* (n) 31= 32= 33= 34= 35=

31= 32= 33= 34= 35=

31= 32= 33= 34= 35=

31= 32= 33= 34= 35=

Övriga åtg* (n) Övriga åtg* (n) Övriga åtg* (n) Övriga åtg* (n) 41= 42= 43= 51= 52= 61= 71= 81= 82= 91=

41= 42= 43= 51= 52= 61= 71= 81= 82= 91=

41= 42= 43= 51= 52= 61= 71= 81= 82= 91=

41= 42= 43= 51= 52= 61= 71= 81= 82= 91=

Akut besök (n), orsak/kod

Akut besök (n), orsak/kod

Akut besök (n), orsak/kod

Akut besök (n), orsak/kod

O NEJ O JA, beskriv ……………………………………

O NEJ O JA, beskriv ……………………………………

O NEJ O JA, beskriv ……………………………………

O NEJ O JA, beskriv ……………………………………

Tdvrädsla/ DBMP

Tdvrädsla/ DBMP

Tdvrädsla/ DBMP

Tdvrädsla/ DBMP

O NEJ O JA, beskriv ……………………………………

O NEJ O JA, beskriv ……………………………………

O NEJ O JA, beskriv ……………………………………

O NEJ O JA, beskriv ……………………………………

Övrigt Övrigt Övrigt Övrigt

Följeslagare

Följeslagare

Följeslagare

Följeslagare

O NEJ O JA, ……………….……… O Ingen uppgift

O NEJ O JA, ……………….……… O Ingen uppgift

O NEJ O JA, ……………….……… O Ingen uppgift

O NEJ O JA, ……………….……… O Ingen uppgift

Tolk Tolk

Tolk

Tolk

O NEJ O JA, beställd O JA, annan ………………

O NEJ O JA, beställd O JA, annan……………….

O NEJ O JA, beställd O JA, annan………………

O NEJ O JA, beställd O JA, annan…………….

94

ANIDA FÄGERSTAD No-shows in dental care

ANIDA FÄGERSTAD No-shows in dental care

95

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ANIDA FÄGERSTAD No-shows in dental care

Appendix VII

Intervjuguide

Syftet med studien är att beskriva hur ungdomar 16-19 år som bor i en mellansvensk region uppfattar tandvården. De övergripande frågeställningarna är:

• Vad hindrar ungdomarna från att gå på sina tandvårdsbesök? • Vad får ungdomarna att gå på/prioritera sina tandvårdsbesök?

Berätta om den senaste gången du besökte tandvården.

o Berätta vad du kommer ihåg av besöket? o Hur tog du dig dit? o Vad gällde det? o Hur var det? o Vad tyckte du om besöket? o Hur känns det i allmänhet när du går till tandvården?

Berätta om den senaste gången du hade missat att gå till tandvården.

o Vad gällde det besöket? Vad hände då? Varför gick du inte? Har du missat tandvårdsbesök förut? Varför? Berätta vad, om det är något mer/annat, som kan få dig att inte gå på dina bokade tandvårdsbesök? Vad tror du skulle få andra ungdomar att inte gå till tandvården trots att de har en bokad tid? Berätta vad det är som får dig, eller skulle få dig, att gå till tandvården? Vad är viktigt? Hur viktigt? Vad betyder det för dig att ha bra tänder? Hur pratar ni kompisar emellan om era tänder, hur ni sköter tänderna eller själva tandvårdsbesöken och behandlingarna? Hur ser du i allmänhet på föräldrarnas roll när det gäller ungdomarna och tandvården? Hur tänker du om att tandvården för ungdomar är kostnadsfri?

o Hur viktigt är det för dig att tandvården är kostnadsfri? Varför då/På vilket sätt?

Avslutningsfråga: Berätta gärna om det är något som jag inte har frågat och som du vill prata om.

Publications in the series

Örebro Studies in Medicine

1. Bergemalm, Per-Olof (2004). Audiologic and cognitive long-term sequelae from closed head injury.

2. Jansson, Kjell (2004). Intraperitoneal Microdialysis. Technique and Results.

3. Windahl, Torgny (2004). Clinical aspects of laser treatment of lichen sclerosus and squamous cell carcinoma of the penis.

4. Carlsson, Per-Inge (2004). Hearing impairment and deafness. Genetic and environmental factors – interactions – consequences. A clinical audiological approach.

5. Wågsäter, Dick (2005). CXCL16 and CD137 in Atherosclerosis.

6. Jatta, Ken (2006). Inflammation in Atherosclerosis.

7. Dreifaldt, Ann Charlotte (2006). Epidemiological Aspects on Malignant Diseases in Childhood.

8. Jurstrand, Margaretha (2006). Detection of Chlamydia trachomatis and Mycoplasma genitalium by genetic and serological methods.

9. Norén, Torbjörn (2006). Clostridium difficile, epidemiology and antibiotic resistance.

10. Anderzén Carlsson, Agneta (2007). Children with Cancer – Focusing on their Fear and on how their Fear is Handled.

11. Ocaya, Pauline (2007). Retinoid metabolism and signalling in vascular smooth muscle cells.

12. Nilsson, Andreas (2008). Physical activity assessed by accelerometry in children.

13. Eliasson, Henrik (2008). Tularemia – epidemiological, clinical and diagnostic aspects.

14. Walldén, Jakob (2008). The influence of opioids on gastric function: experimental and clinical studies.

15. Andrén, Ove (2008). Natural history and prognostic factors in localized prostate cancer.

16. Svantesson, Mia (2008). Postpone death? Nurse-physician perspectives and ethics rounds.

17. Björk, Tabita (2008). Measuring Eating Disorder Outcome – Definitions, dropouts and patients’ perspectives.

18. Ahlsson, Anders (2008). Atrial Fibrillation in Cardiac Surgery.

19. Parihar, Vishal Singh (2008). Human Listeriosis – Sources and Routes.

20. Berglund, Carolina (2008). Molecular Epidemiology of Methicillin-Resistant Staphylococcus aureus. Epidemiological aspects of MRSA and the dissemination in the community and in hospitals.

21. Nilsagård, Ylva (2008). Walking ability, balance and accidental falls in persons with Multiple Sclerosis.

22. Johansson, Ann-Christin (2008). Psychosocial factors in patients with lumbar disc herniation: Enhancing postoperative outcome by the identification of predictive factors and optimised physiotherapy.

23. Larsson, Matz (2008). Secondary exposure to inhaled tobacco products.

24. Hahn-Strömberg, Victoria (2008). Cell adhesion proteins in different invasive patterns of colon carcinoma: A morphometric and molecular genetic study.

25. Böttiger, Anna (2008). Genetic Variation in the Folate Receptor-α and Methylenetetrahydrofolate Reductase Genes as Determinants of Plasma Homocysteine Concentrations.

26. Andersson, Gunnel (2009). Urinary incontinence. Prevalence, treatment seeking behaviour, experiences and perceptions among persons with and without urinary leakage.

27. Elfström, Peter (2009). Associated disorders in celiac disease.

28. Skårberg, Kurt (2009). Anabolic-androgenic steroid users in treatment: Social background, drug use patterns and criminality.

29. de Man Lapidoth, Joakim (2009). Binge Eating and Obesity Treatment – Prevalence, Measurement and Long-term Outcome.

30. Vumma, Ravi (2009). Functional Characterization of Tyrosine and Tryptophan Transport in Fibroblasts from Healthy Controls, Patients with Schizophrenia and Bipolar Disorder.

31. Jacobsson, Susanne (2009). Characterisation of Neisseria meningitidis from a virulence and immunogenic perspective that includes variations in novel vaccine antigens.

32. Allvin, Renée (2009). Postoperative Recovery. Development of a Multi-Dimensional Questionnaire for Assessment of Recovery.

33. Hagnelius, Nils-Olof (2009). Vascular Mechanisms in Dementia with Special Reference to Folate and Fibrinolysis.

34. Duberg, Ann-Sofi (2009). Hepatitis C virus infection. A nationwide study of assiciated morbidity and mortality.

35. Söderqvist, Fredrik (2009). Health symptoms and potential effects on the blood-brain and blood-cerebrospinal fluid barriers associated with use of wireless telephones.

36. Neander, Kerstin (2009). Indispensable Interaction. Parents’ perspectives on parent–child interaction interventions and beneficial meetings.

37. Ekwall, Eva (2009). Women’s Experiences of Gynecological Cancer and Interaction with the Health Care System through Different Phases of the Disease.

38. Thulin Hedberg, Sara (2009). Antibiotic susceptibility and resistance in Neisseria meningitidis – phenotypic and genotypic characteristics.

39. Hammer, Ann (2010). Forced use on arm function after stroke. Clinically rated and self-reported outcome and measurement during the sub-acute phase.

40. Westman, Anders (2010). Musculoskeletal pain in primary health care: A biopsychosocial perspective for assessment and treatment.

41. Gustafsson, Sanna Aila (2010). The importance of being thin – Perceived expectations from self and others and the effect on self-evaluation in girls with disordered eating.

42. Johansson, Bengt (2010). Long-term outcome research on PDR brachytherapy with focus on breast, base of tongue and lip cancer.

43. Tina, Elisabet (2010). Biological markers in breast cancer and acute leukaemia with focus on drug resistance.

44. Overmeer, Thomas (2010). Implementing psychosocial factors in physical therapy treatment for patients with musculoskeletal pain in primary care.

45. Prenkert, Malin (2010). On mechanisms of drug resistance in acute myloid leukemia.

46. de Leon, Alex (2010). Effects of Anesthesia on Esophageal Sphincters in Obese Patients.

47. Josefson, Anna (2010). Nickel allergy and hand eczema – epidemiological aspects.

48. Almon, Ricardo (2010). Lactase Persistence and Lactase Non- Persistence. Prevalence, influence on body fat, body height, and relation to the metabolic syndrome.

49. Ohlin, Andreas (2010). Aspects on early diagnosis of neonatal sepsis.

50. Oliynyk, Igor (2010). Advances in Pharmacological Treatment of Cystic Fibrosis.

51. Franzén, Karin (2011). Interventions for Urinary Incontinence in Women. Survey and effects on population and patient level.

52. Loiske, Karin (2011). Echocardiographic measurements of the heart. With focus on the right ventricle.

53. Hellmark, Bengt (2011). Genotypic and phenotypic characterisation of Staphylococcus epidermidis isolated from prosthetic joint infections.

54. Eriksson Crommert, Martin (2011). On the role of transversus abdominis in trunk motor control.

55. Ahlstrand, Rebecca (2011). Effects of Anesthesia on Esophageal Sphincters.

56. Holländare, Fredrik (2011). Managing Depression via the Internet – self-report measures, treatment & relapse prevention.

57. Johansson, Jessica (2011). Amino Acid Transport and Receptor Binding Properties in Neuropsychiatric Disorders using the Fibroblast Cell Model.

58. Vidlund, Mårten (2011). Glutamate for Metabolic Intervention in Coronary Surgery with special reference to the GLUTAMICS-trial.

59. Zakrisson, Ann-Britt (2011). Management of patients with Chronic Obstructive Pulmonary Disease in Primary Health Care. A study of a nurse-led multidisciplinary programme of pulmonary rehabilitation.

60. Lindgren, Rickard (2011). Aspects of anastomotic leakage, anorectal function and defunctioning stoma in Low Anterior Resection of the rectum for cancer.

61. Karlsson, Christina (2011). Biomarkers in non-small cell lung carcinoma. Methodological aspects and influence of gender, histology and smoking habits on estrogen receptor and epidermal growth factor family receptor signalling.

62. Varelogianni, Georgia (2011). Chloride Transport and Inflammation in Cystic Fibrosis Airways.

63. Makdoumi, Karim (2011). Ultraviolet Light A (UVA) Photoactivation of Riboflavin as a Potential Therapy for Infectious Keratitis.

64. Nordin Olsson, Inger (2012). Rational drug treatment in the elderly: ”To treat or not to treat”.

65. Fadl, Helena (2012). Gestational diabetes mellitus in Sweden: screening, outcomes, and consequences.

66. Essving, Per (2012). Local Infiltration Analgesia in Knee Arthroplasty.

67. Thuresson, Marie (2012). The Initial Phase of an Acute Coronary Syndrome. Symptoms, patients’ response to symptoms and opportunity to reduce time to seek care and to increase ambulance use.

68. Mårild, Karl (2012). Risk Factors and Associated Disorders of Celiac Disease.

69. Fant, Federica (2012). Optimization of the Perioperative Anaesthetic Care for Prostate Cancer Surgery. Clinical studies on Pain, Stress Response and Immunomodulation.

70. Almroth, Henrik (2012). Atrial Fibrillation: Inflammatory and pharmacological studies.

71. Elmabsout, Ali Ateia (2012). CYP26B1 as regulator of retinoic acid in vascular cells and atherosclerotic lesions.

72. Stenberg, Reidun (2012). Dietary antibodies and gluten related seromarkers in children and young adults with cerebral palsy.

73. Skeppner, Elisabeth (2012). Penile Carcinoma: From First Symptom to Sexual Function and Life Satisfaction. Following Organ-Sparing Laser Treatment.

74. Carlsson, Jessica (2012). Identification of miRNA expression profiles for diagnosis and prognosis of prostate cancer.

75. Gustavsson, Anders (2012): Therapy in Inflammatory Bowel Disease.

76. Paulson Karlsson, Gunilla (2012): Anorexia nervosa – treatment expectations, outcome and satisfaction.

77. Larzon, Thomas (2012): Aspects of endovascular treatment of abdominal aortic aneurysms.

78. Magnusson, Niklas (2012): Postoperative aspects of inguinal hernia surgery – pain and recurrences.

79. Khalili, Payam (2012): Risk factors for cardiovascular events and incident hospital-treated diabetes in the population.

80. Gabrielson, Marike (2013): The mitochondrial protein SLC25A43 and its possible role in HER2-positive breast cancer.

81. Falck, Eva (2013): Genomic and genetic alterations in endometrial adenocarcinoma.

82. Svensson, Maria A (2013): Assessing the ERG rearrangement for clinical use in patients with prostate cancer.

83. Lönn, Johanna (2013): The role of periodontitis and hepatocyte growth factor in systemic inflammation.

84. Kumawat, Ashok Kumar (2013): Adaptive Immune Responses in the Intestinal Mucosa of Microscopic Colitis Patients.

85. Nordenskjöld, Axel (2013): Electroconvulsive therapy for depression.

86. Davidsson, Sabina (2013): Infection induced chronic inflammation and its association with prostate cancer initiation and progression.

87. Johansson, Benny (2013): No touch vein harvesting technique in coronary by-pass surgery. Impact on patency rate, development of atherosclerosis, left ventricular function and clinical outcome during 16 years follow-up.

88. Sahdo, Berolla (2013): Inflammasomes: defense guardians in host-microbe interactions.

89. Hörer, Tal (2013): Early detection of major surgical postoperative complications evaluated by microdialysis.

90. Malakkaran Lindqvist, Breezy (2013): Biological signature of HER2-positive breast cancer.

91. Lidén, Mats (2013): The stack mode review of volumetric datasets – applications for urinary stone disease.

92. Emilsson, Louise (2013): Cardiac Complications in Celiac Disease.

93. Dreifaldt, Mats (2013): Conduits in coronary artery bypass grafting surgery: Saphenous vein, radial and internal thoracic arteries.

94. Perniola, Andrea (2013): A new technique for postoperative pain management with local anaesthetic after abdominal hysterectomy.

95. Ahlstrand, Erik (2013): Coagulase-negative Staphylococci in Hematological Malignancy.

96. Sundh, Josefin (2013): Quality of life, mortality and exacerbations in COPD.

97. Skoog, Per (2013): On the metabolic consequences of abdominal compartment syndrome.

98. Palmetun Ekbäck, Maria (2013): Hirsutism and Quality of Life with Aspects on Social Support, Anxiety and Depression.

99. Hussain, Rashida (2013): Cell Responses in Infected and Cystic Fibrosis Respiratory Epithelium.

100. Farkas, Sanja (2014): DNA methylation in the placenta and in cancer with special reference to folate transporting genes.

101. Jildenstål, Pether (2014): Influence of depth of anaesthesia on post-operative cognitive dysfunction (POCD) and inflammatory marker.

102. Söderström, Ulf (2014): Type 1 diabetes in children with non-Swedish background – epidemiology and clinical outcome

103. Wilhelmsson Göstas, Mona (2014): Psychotherapy patients in mental health care: Attachment styles, interpersonal problems and therapy experiences

104. Jarl, Gustav (2014): The Orthotics and Prosthetics Users´ Survey: Translation and validity evidence for the Swedish version

105. Demirel, Isak (2014): Uropathogenic Escherichia coli, multidrug-resistance and induction of host defense mechanisms

106. Mohseni, Shahin (2014): The role of ß-blockade and anticoagula-tion therapy in traumatic brain injury

107. Bašić, Vladimir T. (2014): Molecular mechanisms mediating development of pulmonary cachexia in COPD

108. Kirrander, Peter (2014): Penile Cancer: Studies on Prognostic Factors

109. Törös, Bianca (2014): Genome-based characterization of Neisseria meningitidis with focus on the emergent serogroup Y disease

110. von Beckerath, Mathias (2014): Photodynamic therapy in the Head and Neck

111. Waldenborg, Micael (2014): Echocardiographic measurements at Takotsubo cardiomyopathy - transient left ventricular dysfunction.

112. Lillsunde Larsson, Gabriella (2014): Characterization of HPV-induced vaginal and vulvar carcinoma.

113. Palm, Eleonor (2015): Inflammatory responses of gingival fibroblasts in the interaction with the periodontal pathogen Porphyromonas gingivlis.

114. Sundin, Johanna (2015): Microbe-Host Interactions in Post-infectious Irritable Bowel Syndrome.

115. Olsson, Lovisa (2015): Subjective well-being in old age and its association with biochemical and genetic biomarkers and with physical activity.

116. Klarström Engström, Kristin (2015): Platelets as immune cells in sensing bacterial infection.

117. Landström, Fredrik (2015): Curative Electrochemotherapy in the Head and Neck Area.

118. Jurcevic, Sanja (2015): MicroRNA expression profiling in endometrial adenocarcinoma.

119. Savilampi, Johanna (2015): Effects of Remifentanil on Esophageal Sphincters and Swallowing Function.

120. Pelto-Piri, Veikko (2015): Ethical considerations in psychiatric inpatient care. The ethical landscape in everyday practice as described by staff.

121. Athlin, Simon (2015): Detection of Polysaccharides and Polysaccharide Antibodies in Pneumococcal Pneumonia.

122. Evert, Jasmine (2015): Molecular Studies of Radiotheray and Chemotherapy in Colorectal Cancer.

123. Göthlin-Eremo, Anna (2015): Biological profiles of endocrine breast cancer.

124. Malm, Kerstin (2015): Diagnostic strategies for blood borne infections in Sweden.

125. Kumakech, Edward (2015): Human Immunodeficiency Virus (HIV), Human Papillomavirus (HPV) and Cervical Cancer Prevention in Uganda: Prevalence, Risk factors, Benefits and Challenges of Post-Exposure Prophylaxis, Screening Integration and Vaccination.

126. Thunborg, Charlotta (2015): Exploring dementia care dyads’ person transfer situations from a behavioral medicine perspective in physiotherapy. Development of an assessmement scale.

127. Zhang, Boxi (2015): Modulaton of gene expression in human aortic smooth muscle cells by Porphyromonas gingivalis - a possible association between periodontitis and atherosclerosis.

128. Nyberg, Jan (2015): On implant integration in irradiated bone: - clinical and experimental studies.

129. Brocki, Barbara C. (2015): Physiotherapy interventions and outcomes following lung cancer surgery.

130. Ulfenborg, Benjamin (2016): Bioinformatics tools for discovery and evaluation of biomarkers. Applications in clinical assessment of cancer.

131. Lindström, Caisa (2016): Burnout in parents of chronically ill children.

132. Günaltay, Sezin (2016): Dysregulated Mucosal Immune Responses in Microscopic Colitis Patients.

133. Koskela von Sydow, Anita (2016): Regulation of fibroblast activity by kera-tinocytes, TGF-β and IL-1α –studies in two- and three dimensional in vitro models.

134. Kozlowski, Piotr (2016): Prognostic factors, treatment and outcome in adult acute lymphoblastic leukemia. Population-based studies in Sweden.

135. Darvish, Bijan (2016): Post-Dural Puncture Headache in Obstetrics. Audiological, Clinical and Epidemiological studies.

136. Sahlberg Bang, Charlotte (2016): Carbon monoxide and nitric oxide as antimicrobial agents – focus on ESBL-producing uropathogenic E. coli.

137. Alshamari, Muhammed (2016): Low-dose computed tomography of the abdomen and lumbar spine.

138. Jayaprakash, Kartheyaene (2016): Monocyte and Neutrophil Inflammatory Responses to the Periodontopathogen Porphyromonas gingivalis.

139. Elwin Marie (2016): Description and measurement of sensory symptoms in autism spectrum.

140. Östlund Lagerström, Lina (2016): ”The gut matters” - an interdisciplinary approach to health and gut function in older adults.

141. Zhulina, Yaroslava (2016): Crohn’s disease; aspects of epidemiology, clini-cal course, and fecal calprotectin.

142. Nordenskjöld, Anna (2016): Unrecognized myocardial infarction and car-diac biochemical markers in patients with stable coronary artery disease.

143. Floodeen, Hannah (2016): Defunctioning stoma in low anterior resection of the rectum for cancer: Aspects of stoma reversal, anastomotic leakage, anorectal function, and cost-effectiveness.

144. Duberg, Anna (2016): Dance Intervention for Adolescent Girls with Inter-nalizing Problems. Effects and Experiences.

145. Samano, Ninos (2016): No-Touch Saphenous Veins in Coronary Artery Bypass Grafting. Long-term Angiographic, Surgical, and Clinical Aspects.

146. Rönnberg, Ann-Kristin (2016): Gestational Weight Gain. Implications of an Antenatal Lifestyle Intervention.

147. Erik Stenberg (2016): Preventing complications in bariatric surgery.

148. Humble, Mats B. (2016): Obsessive-compulsive disorder, serotonin and oxytocin: treatment response and side effects.

149. Asfaw Idosa, Berhane (2016): Inflammasome Polymorphisms and the Inflammatory Response to Bacterial Infections.

150. Sagerfors, Marcus (2016): Total wrist arthroplasty. A clinical, radiographic and biomechanical investigation.

151. Nakka, Sravya Sowdamini (2016): Development of novel tools for prevention and diagnosis of Porphyromonas gingivalis infection and periodontitis.

152. Jorstig, Stina (2016): On the assessment of right ventricular function using cardiac magnetic resonance imaging and echocardiography.

153. Logotheti, Marianthi (2016): Integration of Functional Genomics and Data Mining Methodologies in the Study of Bipolar Disorder and Schizophrenia.

154. Paramel Varghese, Geena (2017): Innate Immunity in Human Atherosclerosis and Myocardial Infarction: Role of CARD8 and NLRP3.

155. Melinder, Carren Anyango (2017): Physical and psychological characteristics in adolescence and risk of gastrointestinal disease in adulthood.

156. Bergh, Cecilia (2017): Life-course influences on occurrence and outcome for stroke and coronary heart disease.

157. Olsson, Emma (2017): Promoting Health in Premature Infants – with special focus on skin-to-skin contact and development of valid pain assessment.

158. Rasmussen, Gunlög (2017): Staphylococcus aureus bacteremia, molecular epidemiology and host immune response.

159. Bohr Mordhorst, Louise (2017): Predictive and prognostic factors in cervical carcinomas treated with (chemo-) radiotherapy.

160. Wickbom, Anna (2017): Epidemiological aspects of Microscopic Colitis.

161. Cajander, Sara (2017): Dynamics of Human Leukocyte Antigen – D Related expression in bacteremic sepsis.

162. Zetterlund, Christina (2017): Visual, musculoskeletal and balance symptoms in people with visual impairments.

163. Sundelin, Heléne E.K. (2017): Comorbidity and Complications in Neurological Diseases.

164. Wijk, Lena (2017): Enhanced Recovery After Hysterectomy.

165. Wanjura, Viktor (2017): Register-based studies on cholecystectomy. Quality of life after cholecystec-tomy, and cholecystectomy incidence and complications after gastric bypass.

166. Kuchálik, Ján (2017): Postoperative pain, inflammation and functio-nal recovery after total hip arthroplasty. Prospective, randomized, clinical studies.

167. Ander, Fredrik (2017): Perioperative complications in obese patients. A thesis on risk reducing strategies.

168. Isaksson, Helena (2017): Clinical studies of RNA as a prognostic and diagnostic marker for disease.

169. Fengsrud, Espen (2017): Atrial Fibrillation: Endoscopic ablation and Postoperative studies.

170. Amcoff, Karin (2018): Serological and faecal biomarkers in inflam-matory bowel disease.

171. Kennedy, Beatrice (2018): Childhood bereavment, stress resilience, and cancer risk: an integrated register-based approach.

172. Andersson, Karin (2018): Metal artifacts in Computed Tomography- impact of reduction methods on image quality and radiotherapy treatment planning.

173. Calais, Fredrik (2018): Coronary artery disease and prognosis in relation to cardiovascular risk factors, interventional techniques and systemic atherosclerosis.

174. Meehan, Adrian (2018): Lithium-associated hyperparathyroidism: Prevalence, Pathophysiology, Management.

175. Björkenheim, Anna (2018): Catheter ablation for atrial fibrillation – effects on rhythm, symptoms and health-related quality of life.

176. Andersson, Tommy (2018): Atrial fibrillation and cause of death, sex differences in mortality, and anticoagulation treatment in low-risk patients.

177. Christos Karefylakis (2018): Vitamin D and its role in obesity and other associated conditions.

178. Eriksson, Carl (2018): Epidemiological and therapeutic aspects of inflammatory bowel disease.

179. Arinell, Karin (2018): Immobilization as a risk factor for arterial and venous thrombosis.

180. Ganda Mall, John-Peter (2018): Non-digestible Polysaccharides and Intestinal Barrier Function - specific focus on its efficacy in elderly and patients with Crohn’s disease.

181. Wickberg, Åsa (2018): Adjuvant treatments to prevent local recurrence after breast-conserving surgery for early breast cancer – radiation, endocrine- or brachytherapy.

182. Dahlberg, Karuna (2018): e-Assessed follow-up of postoperative recovery – development, evaluation and patient experiences.

183. Ziegler, Ingrid (2018): Quantitative detection of bacterial DNA in whole blood in bloodstream infection.

184. Carling, Anna (2018): Impaired balance and fall risk in people with multiple sclerosis.

185. Hildén, Karin (2018): Gestational diabetes, obesity and pregnancy outcomes in Sweden.

186. Björkman Hjalmarsson, Louise (2018): Aspects of neonatal septicaemia – prevention and complications.

187. Lindstedt, Katarina (2019): A life put on hold – Inside and outside perspectives on illness, treatment, and recovery in adolescents with restrictive eating disorders.

188. Röckert Tjernberg, Anna (2019): Celiac Disease and Infections.

189. Göransson, Carina (2019): Developing and evaluating an interactive app to support self-care among older persons receiving home care.

190. Jerlström, Tomas (2019): Clinical Aspects of Cystectomy and Urinary Diversion.

191. Ugge, Henrik (2019): Inflammation and prostate carcinogenesis: influence of immune characteristics and early adulthood exposure to inflammatory conditions on prostate cancer risk.

192. Jonsson, Marcus (2019): Physiotherapy and physical activity in patients undergoing cardiac or lung cancer surgery.

193. Göras, Camilla (2019): Open the door to complexity – safety climate and work processes in the operating room.

194. Ahl, Aline Rebecka Irene (2019): The Association Between Beta-Blockade and Clinical Outcomes in the Context of Surgical and Traumatic Stress.

195. Kardeby, Caroline (2019): Studies of platelet signalling and endothe-lial cell responses using unique synthetic drugs.

196. Sundin, Per-Ola (2019): A life-course approach to chronic kidney disease – risks and consequences.

197. Wennberg, Pär (2019): Pain management in older persons with hip fractures.

198. Fischer, Per (2019): Hemi and total wrist arthroplasty.

199. Sadeghi, Mitra (2019): Resuscitative endovascular balloon occlusion of the aorta; Physiology and clinical aspects of an emerging technique.

200. Tevell, Staffan (2019): Staphylococcal prosthetic joint infections: similar, but still different.

201. Fernberg, Ulrika (2019): Arterial stiffness and cardiovascular risk factors in young adults.

202. Fägerstad, Anida (2019): No-shows in dental care – perspectives on adolescents’ attendance pattern.