Researcher's Guide 2004 (entire document) - united states ...

United StatesRenal Data System

National Institutes of HealthNational Institute of Diabetes

and Digestive and Kidney DiseasesDivision of Kidney, Urologic,

and Hematologic Diseases

Resear

cher

’s G

uide

to th

e U

SRD

S D

atab

ase

2004 A

DR E

ditio

n

2 Introductionh

PREFACEThe Researcher’s Guide is intended for researchers within andoutside of the USRDS Coordinating Center (CC) who areundertaking research using data from the USRDS database.Particular emphasis is given to the USRDS Standard AnalysisFiles (SAFs), which are the primary vehicle by which research-ers can use the USRDS data.

We have attempted to include in the Researcher’s Guide mostof the information needed to select and use the SAFs for aresearch project. The Table of Contents describes the con-tents of the guide’s sections.

ACKNOWLEDGEMENTSMost of the original data for the USRDS are provided by theCenters for Medicare and Medicaid Services through the In-teragency Agreement between the NIDDK/DKUHD of theNational Institutes of Health, and the Bureau of Data Man-agement and Strategy of the Centers for Medicare and Med-icaid Services. The United States Renal Data System offers itsgrateful appreciation to everyone who contributed to theUSRDS database and this guide, especially all the ESRD pro-fessionals and Networks on whose reporting of data this en-terprise ultimately rests.

Allan J. Collins, MD, FACPDirector, USRDS Coordinating CenterUniversity of Minnesota, Hennepin County Medical Center

Bertram Kasiske, MDDeputy Director, USRDS Coordinating Center; University ofMinnesota, Hennepin County Medical Center

Lawrence Y.C. Agodoa, MDCo-Project Officer, USRDS; Director, End-stage RenalDisease Program, DKUHD

Paul W. Eggers, PhDCo-project Officer, USRDS; Program Director, Kidney andUrology Epidemiology, NIDDK

Cheryl Arko, BASenior Systems Analyst/Programmer

Delaney Berrini, BSAssistant Editor

Shu-Cheng Chen, MSDirector of Information Systems,USRDS

Edward Constantini, MASenior Editor

Frederick Dalleska, MSSenior Systems Analyst/Programmer

James Ebben, BSManager, Data Systems

Susan Everson, PhDSenior Editor

Eric Frazier, BSSystems Analyst/Programmer, Webmaster

David Gilbertson, PhDDirector of Analytical Services

Suying Li, MSBiostatistician, Economist

Shuling Li, MSBiostatistician

Jiannong Liu, PhDSenior Biostatistician

Tricia Roberts, MSBiostatistician

Jon Snyder, MSBiostatistician

SUGGESTED CITATIONThe suggested citation for this report is as follows:

♦ United States Renal Data System, Researcher’s Guide tothe USRDS Database, National Institutes of Health, Na-tional Institute of Diabetes and Digestive and KidneyDiseases, Bethesda, MD, 2004.

Publications based upon USRDS data reported here or sup-plied upon request must include the citation as noted aboveand the following notice:

♦ The data reported here have been supplied by the UnitedStates Renal Data System (USRDS). The interpretationand reporting of these data are the responsibility of theauthor(s) and in no way should be seen as an officialpolicy or interpretation of the U.S. government.

3H2004 USRDS Researcher’s Guide

CONTENTS4 Introduction

7 Getting Started

21 Section 1 · ESRD Data Sources and the USRDS Database System

24 Section 2 · ESRD Patients

25 Section 3 · Treatment History

28 Section 4 · Payor History

30 Section 5 · Transplant Process & Outcomes

31 Section 6 · Morbidity & Hospitalization

33 Section 7 · Survival & Mortality

34 Section 8 · Providers

APPENDICES

37 USRDS Products & Services

49 Medicare Claims

59 Statistical Methods

65 Data File Descriptions

209 Data Formatting

275 ESRD Data Forms

279 Special Study Data Forms

283 DMMS Wave I Study forms

287 DMMS Wave II Study forms

291 DMMS Waves III-IV & DMMS FACS Study forms

295 Glossary

4 Introductionh

INTRODUCTIONThis Researcher’s Guide to the USRDS Database is designed toassist those interested in using USRDS data to perform theirown analyses.The material addressed in this guide is as follows:

♦ Getting Started: examples of datasets and steps to helpyou start constructing analyses.

♦ Section 1, ESRD Data Sources & the USRDS DatabaseSystem: general description of the data available to theUSRDS and the processes involved in their creation.

♦ Section 2, ESRD Patients: methodologies used to defineESRD patients.

♦ Section 3, Treatment History: methods used to create atreatment history for each patient.

♦ Section 4, Payor History: methods for analyzing insur-ance payor information.

♦ Section 5, Transplant Process and Outcomes: methodsfor analyzing transplant patients and their outcomes.

♦ Section 6, Morbidity and Hospitalization: methods foranalyzing morbidity and hospitalization.

♦ Section 7, Survival & Mortality: methods for analyzingsurvival and mortality

♦ Section 8, Providers: description of the Facility data-base, which contains information on dialysis facilitiesin the U.S.

The appendix of the Researcher’s Guide contains eleven sec-tions:

♦ Data products and descriptions.♦ Detailed discussion of the Medicare Claims.♦ Statistical methods used by the USRDS, along with ref-

erences.

♦ Data files available to researchers complete with datadictionaries.

♦ Data Formatting.♦ ESRD Data Forms which contains Centers for Medi-

care and Medicaid Services (CMS, formerly HCFA:Health Care Financing Administration), United Net-work for Organ Sharing (UNOS), and CDC (Centersfor Disease Control and Prevention) ESRD data forms.

♦ Special Study ESRD data forms.♦ DMMS Wave I Study forms.♦ DMMS Wave II Study forms.♦ DMMS Waves III-IV & FACS Study forms.♦ A detailed glossary.

HISTORY OF THE USRDSThe first USRDS contract was awarded in 1988 to the UrbanInstitute in Washington, D.C. which worked in conjunctionwith investigators at the University of Michigan at Ann Arbor.Under a new contract created in 1999, the USRDS was dividedinto a Coordinating Center (CC) and four Special StudiesCenters (SSCs), each of which continues to be operated un-der the direction of the National Institute of Diabetes andDigestive and Kidney Diseases (NIDDK) at the National In-stitutes of Health (NIH).

The CC and Cardiovascular SSC contracts were awarded in1999 to the Minneapolis Medical Research Foundation, andare directed by Allan Collins MD and Charles Herzog MD,respectively, while the Economic SSC was awarded to the Uni-versity of Iowa and is under the direction of LawrenceHunsicker MD. The Nutrition SSC was awarded in 2000 tothe University of California at San Francisco, and is directedby Glenn Chertow MD, and the Rehabilitation SSC wasawarded at the same time to Emory University, and is directed

Structure of the USRDSdatabase

CMS Facility

Data

CMS EPO Data

CMS Part B SAF Claims: Physician/

Supplier, DME

UNOS Transplant

Data

CMS PMMIS/REBUS

CMS Part A SAF Claims: IP, OP, SNF,

HH, Hospice

USRDS database

Data analyses

USRDS Researcher’s

SAF CDs

USRDS Annual Data

Report

USRDS custom

data files

Comorbidity profile

Modality/payor

sequence

Patient profile

ESRD cohort

finder files

UNOS transplant

data

Claims data: Part A, Part B,

& EPO

Transplant profile

USRDS Special

Studies data

Common Standard Re-usable Working Set Library

USRDS web-based applications

Network SIMS

CMS Facility

Data

CMS EPO Data

CMS Part B SAF Claims: Physician/

Supplier, DME

UNOS Transplant

Data

CMS PMMIS/REBUS

CMS Part A SAF Claims: IP, OP, SNF,

HH, Hospice

USRDS database

Data analyses

USRDS Researcher’s

SAF CDs

USRDS Annual Data

Report

USRDS custom

data files

Comorbidity profile

Modality/payor

sequence

Patient profile

ESRD cohort

finder files

UNOS transplant

data

Claims data: Part A, Part B,

& EPO

Transplant profile

USRDS Special

Studies data

Common Standard Re-usable Working Set Library

USRDS web-based applications

Network SIMS


by Nancy Kutner PhD.

CHANGES TO THE RESEARCHER’S GUIDEAfter the 1999 USRDS contract was awarded to the Minne-apolis Medical Research Foundation, the USRDS CC deemedit appropriate to review and revise the format of theResearcher’s Guide in order to assist researchers using theUSRDS Standard Analysis Files (SAFs). Along with obviouschanges in the guide’s style and format, efforts to fine tune thedatabase and identify as many patients as possible have alsoled to the use of slightly different analytical methods.

The Data File Descriptions has been reorganized to better as-sist researchers. USRDS _ID variables are now found at thetop of each file and all other variables are arranged belowalphabetically. All DMMS Wave files are organized accordingto individual Special Study Questionnaires.

USRDS WEBSITE: WWW.USRDS.ORGThe USRDS website provides users with access to PDF files ofthe printed Annual Data Report (ADR), Excel files of the Ref-erence Tables and the data underlying the graphs and statemaps, and PowerPoint slides of USRDS presentations andADR figures. (Because of the size and complexity of the ADRfiles, downloading time for large portions of the book may besubstantial; estimated times using a 56 kbs modem are pro-vided next to the file names.)

CIRS (COHORT ID RETRIEVAL SYSTEM)CIRS is designed for those renal researchers with an activeData Use Agreement (DUA) with the USRDS. It is designed toquickly extract a matching cohort list into a downloadablefile. Using a simple query interface, users are able to selecttheir cohort characteristics, submit the query, and downloada Comma Separated (CSV) text file containing a list of thatcohort’s unique ID’s. For access, a person must have a currentDUA and have been assigned a password.

Note: To use this feature or obtain a DUA, you must havereceived one of the USRDS Standard Analysis Files (SAFs).Contact the USRDS for further information.

RENDERThe USRDS Renal Data Extraction and Referencing (RenDER)System is an online data querying application accessiblethrough the USRDS website, allowing access to a wealth ofinformation regarding end-stage renal disease (ESRD) in theUnited States. It quickly returns an accurate table of data oran interactive map based upon the user’s query specifications.Tables can be copied into a spreadsheet application on theuser’s computer for further manipulation and investigation,and map images can be copied or saved to local applications.A database file download (which can be opened/imported bymost spreadsheet applications) of the mapped data is offeredas well.

The USRDS RenDER System has been designed to allow easieraccess to some of the most frequently requested data. TheADR thoroughly covers many of the statistics regarding ESRD.

However, the report cannot reasonably contain some of themore detailed tables often requested by researchers. RenDERallows users to “drill down” into the data behind many of thetables published in the ADR, allowing cross interactionsamong various demographic fields. For more information,visit the USRDS website to access the RenDER tutorial.

WHAT’S NEW? STANDARD ANALYSIS FILES

Changes to the 2004 Facility Data FileThis year the USRDS has added nine variables from the 2002CDC Facility survey plus two variables indicating the pres-ence of the CMS Survey data and/or the CDC Survey data.

The survey indicator variables are INHCFA and INCDC. Ifthe CMS Survey is present for a provider, then INHCFA=1. Ifthe CDC Survey is present, then INCDC=1. For any providerone or both surveys may be present.

CautionWhen either of the indicator variables equals zero (0) all thevalues of the variables that correspond to that indicator vari-able are missing. CDC variables added:

♦ INCDC♦ INHCFA♦ DREUSE♦ DXGERMA♦ DXGERMF♦ DXGERMG♦ DXGERMH♦ DXGERMO♦ DXGERNR♦ DSTCNTCT♦ DSTVAC

Beginning with the 2002 CMS survey, the following aredropped CMS variables:

♦ CTRTXPLT♦ CTR_LOSS♦ CTR_OUT♦ CTR_TOT♦ CTR_US♦ CTR_SENT♦ FYEND♦ INDTXPLT♦ IND_LOSS♦ INT_OUT♦ IND_TOT♦ IND_US♦ IND_SENT♦ MED_VA♦ NTHTXPLT♦ NTH_LOSS♦ NTH_OUT♦ NTH_TOT♦ NTH_US

* TXWAIT is the total number of observations betweenTXWAIT_KI & TXWAIT_KP.

SAF 2000 2001 2002 2003 2004

PATIENTS 1,090,121 1,158,891 1,270,001 1,367,309 1,516,251

RESIDENC 1,511,564 1,680,216 1,786,251 2,006,657 2,215,953

MEDEVID 384,474 461,354 564,305 669,587 786,297

RXHIST 3,553,830 4,619,179 7,946,100 9,745,224 10,630,350

FACILITY 38,987 42,830 46,853 51,038 55,547

TX 186,765 206,750 226,398 245,821 256,315

TXWAIT 153,447 167,743 214,190 243,651 *313,446

6 Introductionh

♦ NTH_SENT♦ OPATXPLT♦ OPA_LOSS♦ OPA_OUT♦ OPA_TOT♦ OPA_US♦ OPA_SENT♦ PCRTCODE♦ PCRTDATE♦ PTERMCODE♦ PTRMDATE♦ TDSCRD♦ TERMCODE♦ TOTTXPLT♦ TOT_LOSS♦ TOT_OUT♦ TOT_US♦ TOT_SENT♦ TRSCRCH♦ TYPOWNER

See the Data File Descriptions section, ‘CMS/CDC ESRD nnualFacility’ for a description of these added and dropped vari-ables.

Gett

ing S

tarte

d

8 Getting Startedh


INTRODUCTIONThis section is designed to help researchers use the USRDS SAF datasets for the first time.

Work on a typical study consists of determining the study variables, selecting the variables from the datasets where they arestored, merging the selected variables into one or more datasets for analysis, and finally performing the statistical analysesof the data. This introduction begins with simple examples. Later examples are more complex, including the use of a basicSAS macro. We suggest that you quickly scan the examples to obtain a feel for the contents of this portion of the Researcher’sGuide and then use them as templates when appropriate.

All data is stored in SAS datasets, which have been created in the Window environment and can therefore be used only onthe Windows operating system. If you wish to use the datasets on another computer platform the data must be moved toand converted to SAS datasets for that platform. If you wish to use another data analysis system a conversion must be madeto a format compatible with that system.

The basic SAS code used in these examples will help you get started, but if SAS is new to you be prepared to educateyourself, get help from an associate, or take one or more SAS classes.

There are two issues that experienced and new SAS users must know before any processing can take place.♦ Where is the SAS dataset?♦ Where is the SAS catalog of FORMATS?

For the rest of this section, the datasets and the FORMAT catalog are assumed to be in the same directory, namely, C:\SAF.Two SAS statements are needed to point to this information:

LIBNLIBNLIBNLIBNLIBNAME safAME safAME safAME safAME saf 'c:\saf 'c:\saf 'c:\saf 'c:\saf 'c:\saf ';';';';'; * Dir * Dir * Dir * Dir * Direeeeeccccctttttooooorrrrry loy loy loy loy locatcatcatcatcatioioioioion on on on on offfff the data; the data; the data; the data; the data;LIBNLIBNLIBNLIBNLIBNAME LIBRAME LIBRAME LIBRAME LIBRAME LIBRARARARARARY 'c:\safY 'c:\safY 'c:\safY 'c:\safY 'c:\saf ';';';';'; * Dir * Dir * Dir * Dir * Direeeeeccccctttttooooorrrrry loy loy loy loy locatcatcatcatcatioioioioion on on on on offfff f f f f fooooorrrrrmat catalomat catalomat catalomat catalomat catalog;g;g;g;g;

You should always assume that these two statements are required in all code. See the Formats section for additionalinformation. The datasets and the format catalog may be in different directories.

Basic SAS UseYou may first want to find what variables in the dataset are of interest. The SAS CONTENTS procedure generates a list ofall variables in the dataset and a label associated with each variable. While the information in this label will usually beenough to tell you whether the variable will be of use, PROC CONTENTS is always the best method for obtaining the latestvariable list, as there is always the possibility of last minute updates that may not be reflected in the printed documentation.(See Data File Descriptions, page 65.)

Note: In the following program examples SAS keywords are in uppercase. In lowercase are the datasets, comments, andvariables in which you want SAS to perform operations.

To determine the contents of the PATIENTS dataset, or any dataset, use the following code: (Remember the requirementof the two LIBNAMEs discussed in the Introduction.)

PRPRPRPRPROOOOOC CONTENTC CONTENTC CONTENTC CONTENTC CONTENTS DS DS DS DS DAAAAATTTTTA=saf.patA=saf.patA=saf.patA=saf.patA=saf.patieieieieients;nts;nts;nts;nts; TITLE1 'D TITLE1 'D TITLE1 'D TITLE1 'D TITLE1 'DAAAAATTTTTASETASETASETASETASET::::: saf.pat saf.pat saf.pat saf.pat saf.patieieieieients';nts';nts';nts';nts';RRRRRUN;UN;UN;UN;UN;

After you know what variables are available you'll want to know what the data looks like. Use the SAS procedure PRINT tolist all observations of the dataset.

PROC PRINT data=saf.patients;PROC PRINT data=saf.patients;PROC PRINT data=saf.patients;PROC PRINT data=saf.patients;PROC PRINT data=saf.patients; TITLE1 'D TITLE1 'D TITLE1 'D TITLE1 'D TITLE1 'DAAAAATTTTTASETASETASETASETASET::::: saf.pat saf.pat saf.pat saf.pat saf.patieieieieients;nts;nts;nts;nts;RRRRRUN;UN;UN;UN;UN;

A dataset can have thousands of observations. To print the first 500 of those observations use the following code:

PRPRPRPRPROOOOOC PRINT DC PRINT DC PRINT DC PRINT DC PRINT DAAAAATTTTTA=saf.patA=saf.patA=saf.patA=saf.patA=saf.patieieieieients (OBS=500);nts (OBS=500);nts (OBS=500);nts (OBS=500);nts (OBS=500);

10 Getting Startedh

TITLE1 'D TITLE1 'D TITLE1 'D TITLE1 'D TITLE1 'DAAAAATTTTTASETASETASETASETASET::::: saf.pat saf.pat saf.pat saf.pat saf.patieieieieients';nts';nts';nts';nts';RRRRRUN;UN;UN;UN;UN;

To print a group of observations other than the first N observations, use the following code; this example prints the observations1500-2000, inclusive.

PRPRPRPRPROOOOOC PRINT DC PRINT DC PRINT DC PRINT DC PRINT DAAAAATTTTTA=saf.patA=saf.patA=saf.patA=saf.patA=saf.patieieieieients (FIRSTnts (FIRSTnts (FIRSTnts (FIRSTnts (FIRSTOBS=1500 OBS=2000);OBS=1500 OBS=2000);OBS=1500 OBS=2000);OBS=1500 OBS=2000);OBS=1500 OBS=2000); TITLE1 'D TITLE1 'D TITLE1 'D TITLE1 'D TITLE1 'DAAAAATTTTTASETASETASETASETASET::::: saf.pat saf.pat saf.pat saf.pat saf.patieieieieients';nts';nts';nts';nts';RRRRRUN;UN;UN;UN;UN;

A dataset can contain hundreds of variables. Print selected variables using the 'VAR' statement. For example:

PRPRPRPRPROOOOOC PRINT DC PRINT DC PRINT DC PRINT DC PRINT DAAAAATTTTTA=saf.patA=saf.patA=saf.patA=saf.patA=saf.patieieieieients (OBS=500);nts (OBS=500);nts (OBS=500);nts (OBS=500);nts (OBS=500); VVVVVAR usrAR usrAR usrAR usrAR usrds_id seds_id seds_id seds_id seds_id sex rx rx rx rx raaaaaccccce incye incye incye incye incyearearearearear;;;;; TITLE1 'D TITLE1 'D TITLE1 'D TITLE1 'D TITLE1 'DAAAAATTTTTASETASETASETASETASET::::: saf.pat saf.pat saf.pat saf.pat saf.patieieieieients';nts';nts';nts';nts';RRRRRUN;UN;UN;UN;UN;

By now you have probably noticed that there are two parts to the 'data=' expression. The first is the directory location, definedby the LIBNAME, and the second is the dataset name. The first part of the expression implies that the dataset is permanent.Later examples will not include this part, and the datasets you create will disappear when you leave SAS. If you wish topermanently save a dataset be sure to include the first part of the expression.

FormatsThis section discusses the use of SAS formats with respect to the USRDS data. Information in a dataset may be coded. Thismeans that the variable GENDER may have the values 'F', 'M', or 'U', where 'F' is the coded value for female, 'M' is the value formale, and 'U' is for unknown. Using one character instead of several is done to save disk storage, but because the coded valuesare not always easy for users to understand a format is assigned to translate them. Many variables have been assigned formatsby the USRDS.

In each program you need to tell SAS where these formats are. Assume that the format catalog is in the directory C:\SAF. Thenthe following SAS LIBNAME makes the formats accessible to your SAS programs.

LIBNLIBNLIBNLIBNLIBNAME LIBRAME LIBRAME LIBRAME LIBRAME LIBRARARARARARY 'c:\safY 'c:\safY 'c:\safY 'c:\safY 'c:\saf ';';';';'; * Dir * Dir * Dir * Dir * Direeeeeccccctttttooooorrrrry loy loy loy loy locatcatcatcatcatioioioioion on on on on offfff f f f f fooooorrrrrmat catalomat catalomat catalomat catalomat catalog;g;g;g;g;

The SAS keyword LIBRARY must be used since it tells SAS to look for formats in the directory, C:\SAF. There are othermethods for accomplishing this, but this one is usually the easiest.

If you do not know where the formats are or you wish to bypass the use of formats, use the following two SAS statements beforeany SAS procedures are run.

LIBNLIBNLIBNLIBNLIBNAME LIBRAME LIBRAME LIBRAME LIBRAME LIBRARARARARARYYYYY;;;;;OPTIONS NOFMTERROPTIONS NOFMTERROPTIONS NOFMTERROPTIONS NOFMTERROPTIONS NOFMTERR

Bypassing the use of formats allows you to see the raw data instead of the formatted values, which may be useful when you needto write SAS IF statements to control the flow of your program in a SAS data step.

See Data Formatting (page 209) for a tabular list of the formats with their coded values.

Comment LinesThroughout this section you will see comment lines in the SAS code, such as:

/* Comment line *//* Comment line *//* Comment line *//* Comment line *//* Comment line */* Comment line;* Comment line;* Comment line;* Comment line;* Comment line;

The phrase 'comment line' may refer to any descriptive comment. The use of comments is optional but strongly recommended.


The SAF DirectoryThroughout this section SAF has been used as the permanent SAS LIBNAME. It is assumed that all of the USRDS SAF datasetsand catalogs have been placed in this directory. If the datasets have been placed in the WINDOWS directory C:\SAF, then thefollowing SAS LIBNAME would point to the SAF datasets.

LIBNLIBNLIBNLIBNLIBNAME safAME safAME safAME safAME saf 'c:\saf 'c:\saf 'c:\saf 'c:\saf 'c:\saf ';';';';';NNNNNototototote:e:e:e:e: The datase The datase The datase The datase The datasets mats mats mats mats may by by by by be loe loe loe loe loaaaaadddddeeeeed intd intd intd intd into ano ano ano ano any diry diry diry diry direeeeeccccctttttooooorrrrryyyyy,,,,, w w w w with the dirith the dirith the dirith the dirith the direeeeeccccctttttooooorrrrry in the LIBNy in the LIBNy in the LIBNy in the LIBNy in the LIBNAME cAME cAME cAME cAME changhanghanghanghangeeeeedddddaaaaaccccccccccooooorrrrrdingdingdingdingdinglllllyyyyy.....

LIBNAME core_cd 'C:\USRDS\CORE_CD\SAF';LIBNAME core_cd 'C:\USRDS\CORE_CD\SAF';LIBNAME core_cd 'C:\USRDS\CORE_CD\SAF';LIBNAME core_cd 'C:\USRDS\CORE_CD\SAF';LIBNAME core_cd 'C:\USRDS\CORE_CD\SAF';LIBNAME hosp_cd 'C:\USRDS\HOSP_CD\SAF';LIBNAME hosp_cd 'C:\USRDS\HOSP_CD\SAF';LIBNAME hosp_cd 'C:\USRDS\HOSP_CD\SAF';LIBNAME hosp_cd 'C:\USRDS\HOSP_CD\SAF';LIBNAME hosp_cd 'C:\USRDS\HOSP_CD\SAF';LIBNAME in_cd 'C:\USRDS\IN\SAF';LIBNAME in_cd 'C:\USRDS\IN\SAF';LIBNAME in_cd 'C:\USRDS\IN\SAF';LIBNAME in_cd 'C:\USRDS\IN\SAF';LIBNAME in_cd 'C:\USRDS\IN\SAF';LIBNAME cpm_cd 'C:\USRDS\CPM\SAF';LIBNAME cpm_cd 'C:\USRDS\CPM\SAF';LIBNAME cpm_cd 'C:\USRDS\CPM\SAF';LIBNAME cpm_cd 'C:\USRDS\CPM\SAF';LIBNAME cpm_cd 'C:\USRDS\CPM\SAF';LIBNAME library 'C:\USRDS\CORE_CD\SAF';LIBNAME library 'C:\USRDS\CORE_CD\SAF';LIBNAME library 'C:\USRDS\CORE_CD\SAF';LIBNAME library 'C:\USRDS\CORE_CD\SAF';LIBNAME library 'C:\USRDS\CORE_CD\SAF';

Example 1 - Incident CohortExample 1 - Incident CohortExample 1 - Incident CohortExample 1 - Incident CohortExample 1 - Incident CohortCreate a patient cohort of incident patients from 1990 to 1999, which will be usedCreate a patient cohort of incident patients from 1990 to 1999, which will be usedCreate a patient cohort of incident patients from 1990 to 1999, which will be usedCreate a patient cohort of incident patients from 1990 to 1999, which will be usedCreate a patient cohort of incident patients from 1990 to 1999, which will be usedin the following examples.in the following examples.in the following examples.in the following examples.in the following examples.

DDDDDAAAAATTTTTA inc90_99 (KEEP=usrA inc90_99 (KEEP=usrA inc90_99 (KEEP=usrA inc90_99 (KEEP=usrA inc90_99 (KEEP=usrds_id esrds_id esrds_id esrds_id esrds_id esrddatddatddatddatddate inc_ye inc_ye inc_ye inc_ye inc_year rear rear rear rear rxgxgxgxgxgrrrrroup);oup);oup);oup);oup);SET core_cd.rxhist60;SET core_cd.rxhist60;SET core_cd.rxhist60;SET core_cd.rxhist60;SET core_cd.rxhist60;

BY usrds_id begdate;BY usrds_id begdate;BY usrds_id begdate;BY usrds_id begdate;BY usrds_id begdate;

FORMAFORMAFORMAFORMAFORMAT esrT esrT esrT esrT esrddatddatddatddatddate MMDDe MMDDe MMDDe MMDDe MMDDYY10.;YY10.;YY10.;YY10.;YY10.;

IF (FIRSTIF (FIRSTIF (FIRSTIF (FIRSTIF (FIRST.usr.usr.usr.usr.usrds_id) ds_id) ds_id) ds_id) ds_id) ANDANDANDANDAND (MDY(1,1,1990) <= begdate <= MDY(12,31,1999)); (MDY(1,1,1990) <= begdate <= MDY(12,31,1999)); (MDY(1,1,1990) <= begdate <= MDY(12,31,1999)); (MDY(1,1,1990) <= begdate <= MDY(12,31,1999)); (MDY(1,1,1990) <= begdate <= MDY(12,31,1999));

esrddate = begdate;esrddate = begdate;esrddate = begdate;esrddate = begdate;esrddate = begdate;inc_year = YEAR(esrddate);inc_year = YEAR(esrddate);inc_year = YEAR(esrddate);inc_year = YEAR(esrddate);inc_year = YEAR(esrddate);

RRRRRUN;UN;UN;UN;UN;

PRPRPRPRPROOOOOC FREQ DC FREQ DC FREQ DC FREQ DC FREQ DAAAAATTTTTA=inc90_99;A=inc90_99;A=inc90_99;A=inc90_99;A=inc90_99;TTTTTABLES inc_yABLES inc_yABLES inc_yABLES inc_yABLES inc_yearearearearear;;;;;TITLE 'Frequency Distribution of Incident Patients 1990 - 1999: Rxhist60 file';TITLE 'Frequency Distribution of Incident Patients 1990 - 1999: Rxhist60 file';TITLE 'Frequency Distribution of Incident Patients 1990 - 1999: Rxhist60 file';TITLE 'Frequency Distribution of Incident Patients 1990 - 1999: Rxhist60 file';TITLE 'Frequency Distribution of Incident Patients 1990 - 1999: Rxhist60 file';RRRRRUN;UN;UN;UN;UN;

PRPRPRPRPROOOOOC FREQ DC FREQ DC FREQ DC FREQ DC FREQ DAAAAATTTTTA=inc90_99;A=inc90_99;A=inc90_99;A=inc90_99;A=inc90_99;TTTTTABLE inc_yABLE inc_yABLE inc_yABLE inc_yABLE inc_year * rear * rear * rear * rear * rxgxgxgxgxgrrrrroup;oup;oup;oup;oup;TITLE 'Frequency Distribution of Incident Patients 90-99 by Modality';TITLE 'Frequency Distribution of Incident Patients 90-99 by Modality';TITLE 'Frequency Distribution of Incident Patients 90-99 by Modality';TITLE 'Frequency Distribution of Incident Patients 90-99 by Modality';TITLE 'Frequency Distribution of Incident Patients 90-99 by Modality';RRRRRUN;UN;UN;UN;UN;

ExExExExExampampampampample 2 - Ile 2 - Ile 2 - Ile 2 - Ile 2 - Incncncncncideideideideident Pnt Pnt Pnt Pnt Patatatatatieieieieients Dnts Dnts Dnts Dnts Distististististrrrrribibibibibututututution bion bion bion bion by Dy Dy Dy Dy Deeeeemogmogmogmogmogrrrrraphic dataaphic dataaphic dataaphic dataaphic data

PRPRPRPRPROOOOOC FREQ DC FREQ DC FREQ DC FREQ DC FREQ DAAAAATTTTTA=cA=cA=cA=cA=cooooorrrrre_ce_ce_ce_ce_cd.patd.patd.patd.patd.patieieieieients;nts;nts;nts;nts;TTTTTABLE incagABLE incagABLE incagABLE incagABLE incageeeeec sec sec sec sec sex rx rx rx rx raaaaaccccce dise dise dise dise disgggggrrrrrpppppc;c;c;c;c;WHERE (incyear = 1999);WHERE (incyear = 1999);WHERE (incyear = 1999);WHERE (incyear = 1999);WHERE (incyear = 1999);TITLE 'Frequency Distribution of 1999 Incident Patients by Demographic Data';TITLE 'Frequency Distribution of 1999 Incident Patients by Demographic Data';TITLE 'Frequency Distribution of 1999 Incident Patients by Demographic Data';TITLE 'Frequency Distribution of 1999 Incident Patients by Demographic Data';TITLE 'Frequency Distribution of 1999 Incident Patients by Demographic Data';RRRRRUN;UN;UN;UN;UN;

12 Getting Startedh

ExExExExExampampampampample 3 - Ple 3 - Ple 3 - Ple 3 - Ple 3 - Point Point Point Point Point Prrrrreeeeevvvvvalealealealealent Cnt Cnt Cnt Cnt CooooohorhorhorhorhortttttCreate a patient cohort of point prevalent dialysis patients who were alive onCreate a patient cohort of point prevalent dialysis patients who were alive onCreate a patient cohort of point prevalent dialysis patients who were alive onCreate a patient cohort of point prevalent dialysis patients who were alive onCreate a patient cohort of point prevalent dialysis patients who were alive on1/1/19991/1/19991/1/19991/1/19991/1/1999

DDDDDAAAAATTTTTA pA pA pA pA prrrrre_99 (KEEP=usre_99 (KEEP=usre_99 (KEEP=usre_99 (KEEP=usre_99 (KEEP=usrds_id rds_id rds_id rds_id rds_id rxgxgxgxgxgrrrrroup);oup);oup);oup);oup);SET core_cd.rxhist60;SET core_cd.rxhist60;SET core_cd.rxhist60;SET core_cd.rxhist60;SET core_cd.rxhist60;

BY usrds_id begdate;BY usrds_id begdate;BY usrds_id begdate;BY usrds_id begdate;BY usrds_id begdate;

IF (begdate <= MDY(1,1,1999)) ANDIF (begdate <= MDY(1,1,1999)) ANDIF (begdate <= MDY(1,1,1999)) ANDIF (begdate <= MDY(1,1,1999)) ANDIF (begdate <= MDY(1,1,1999)) AND ((enddate = .) OR (enddate >= MDY(1,1,1999))) AND ((enddate = .) OR (enddate >= MDY(1,1,1999))) AND ((enddate = .) OR (enddate >= MDY(1,1,1999))) AND ((enddate = .) OR (enddate >= MDY(1,1,1999))) AND ((enddate = .) OR (enddate >= MDY(1,1,1999))) AND (rxgroup NOT IN ('D' 'X')) THEN (rxgroup NOT IN ('D' 'X')) THEN (rxgroup NOT IN ('D' 'X')) THEN (rxgroup NOT IN ('D' 'X')) THEN (rxgroup NOT IN ('D' 'X')) THEN OUTPUT OUTPUT OUTPUT OUTPUT OUTPUT;;;;;


PRPRPRPRPROOOOOC FREQ DC FREQ DC FREQ DC FREQ DC FREQ DAAAAATTTTTA=pA=pA=pA=pA=prrrrre_99;e_99;e_99;e_99;e_99;TTTTTABLE rABLE rABLE rABLE rABLE rxgxgxgxgxgrrrrroup;oup;oup;oup;oup;TITLE 'FTITLE 'FTITLE 'FTITLE 'FTITLE 'Frrrrreeeeeqqqqqueueueueuency Distncy Distncy Distncy Distncy Distrrrrribibibibibuuuuutttttioioioioion on on on on offfff 1-1-99 P 1-1-99 P 1-1-99 P 1-1-99 P 1-1-99 Poooooint Pint Pint Pint Pint Prrrrreeeeevvvvvalealealealealent Pnt Pnt Pnt Pnt Patatatatatieieieieients bnts bnts bnts bnts by My My My My Mooooodalitdalitdalitdalitdality';y';y';y';y';RRRRRUN;UN;UN;UN;UN;

ExExExExExampampampampample 4 - 1995 Ile 4 - 1995 Ile 4 - 1995 Ile 4 - 1995 Ile 4 - 1995 Incncncncncideideideideident Pnt Pnt Pnt Pnt Patatatatatieieieieient Snt Snt Snt Snt Surururururvvvvviiiiivvvvval Ral Ral Ral Ral Ratatatatates (Kes (Kes (Kes (Kes (Kapapapapaplan Mlan Mlan Mlan Mlan Meeeeeieieieieier)r)r)r)r)CalculatCalculatCalculatCalculatCalculate a 5-ye a 5-ye a 5-ye a 5-ye a 5-year sear sear sear sear surururururvvvvviiiiivvvvval ral ral ral ral ratatatatates oes oes oes oes offfff 1995 inc 1995 inc 1995 inc 1995 inc 1995 incideideideideident dialnt dialnt dialnt dialnt dialyyyyysis psis psis psis psis patatatatatieieieieients using Knts using Knts using Knts using Knts using KapapapapaplanlanlanlanlanMeier methodMeier methodMeier methodMeier methodMeier method

DDDDDAAAAATTTTTA inc_95_s;A inc_95_s;A inc_95_s;A inc_95_s;A inc_95_s;MERGE inc90_99MERGE inc90_99MERGE inc90_99MERGE inc90_99MERGE inc90_99 (IN = x1) (IN = x1) (IN = x1) (IN = x1) (IN = x1)

core_cd.patients (IN = x2 KEEP=usrds_id died tx1date); core_cd.patients (IN = x2 KEEP=usrds_id died tx1date); core_cd.patients (IN = x2 KEEP=usrds_id died tx1date); core_cd.patients (IN = x2 KEEP=usrds_id died tx1date); core_cd.patients (IN = x2 KEEP=usrds_id died tx1date);BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;

IF x1 AND x2;IF x1 AND x2;IF x1 AND x2;IF x1 AND x2;IF x1 AND x2;

* Extract only 1995 incident dialysis patients.;* Extract only 1995 incident dialysis patients.;* Extract only 1995 incident dialysis patients.;* Extract only 1995 incident dialysis patients.;* Extract only 1995 incident dialysis patients.;IF (inc_year = 1995) AND (rxgroup ^= 'T');IF (inc_year = 1995) AND (rxgroup ^= 'T');IF (inc_year = 1995) AND (rxgroup ^= 'T');IF (inc_year = 1995) AND (rxgroup ^= 'T');IF (inc_year = 1995) AND (rxgroup ^= 'T');

* Calculate the survival time (in month) of each incident patient.;* Calculate the survival time (in month) of each incident patient.;* Calculate the survival time (in month) of each incident patient.;* Calculate the survival time (in month) of each incident patient.;* Calculate the survival time (in month) of each incident patient.;t = (MIN(died, tx1date, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(died, tx1date, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(died, tx1date, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(died, tx1date, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(died, tx1date, MDY(12,31,1999)) - esrddate + 1) / 30.4375;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;

* Determine whether the patient is censored.;* Determine whether the patient is censored.;* Determine whether the patient is censored.;* Determine whether the patient is censored.;* Determine whether the patient is censored.;c = (MIN(died, tx1date, MDY(12,31,1999)) = died);c = (MIN(died, tx1date, MDY(12,31,1999)) = died);c = (MIN(died, tx1date, MDY(12,31,1999)) = died);c = (MIN(died, tx1date, MDY(12,31,1999)) = died);c = (MIN(died, tx1date, MDY(12,31,1999)) = died);


PRPRPRPRPROOOOOC LIFETEST DC LIFETEST DC LIFETEST DC LIFETEST DC LIFETEST DAAAAATTTTTA=inc_95_s METHOD=KM NOA=inc_95_s METHOD=KM NOA=inc_95_s METHOD=KM NOA=inc_95_s METHOD=KM NOA=inc_95_s METHOD=KM NOTTTTTABLE PLABLE PLABLE PLABLE PLABLE PLOOOOOTTTTTS=(s) OUTS=(s) OUTS=(s) OUTS=(s) OUTS=(s) OUTSURSURSURSURSURV=sV=sV=sV=sV=surururururv95;v95;v95;v95;v95;TIME t*c(0);TIME t*c(0);TIME t*c(0);TIME t*c(0);TIME t*c(0);TITLE '1995 ITITLE '1995 ITITLE '1995 ITITLE '1995 ITITLE '1995 Incidncidncidncidncideeeeent Dialnt Dialnt Dialnt Dialnt Dialyyyyysis Psis Psis Psis Psis Patatatatatieieieieients 5-Ynts 5-Ynts 5-Ynts 5-Ynts 5-Year Sear Sear Sear Sear Surururururvvvvviiiiivvvvval Ral Ral Ral Ral Ratatatatates';es';es';es';es';RRRRRUN;UN;UN;UN;UN;


ExExExExExampampampampample 5 - Mle 5 - Mle 5 - Mle 5 - Mle 5 - Meeeeerrrrrggggge we we we we with Mith Mith Mith Mith Meeeeedical Edical Edical Edical Edical Evvvvvideideideideidencncncncnce file (CMS 2728)e file (CMS 2728)e file (CMS 2728)e file (CMS 2728)e file (CMS 2728)DDDDDeeeeemonstmonstmonstmonstmonstrrrrratatatatate a we a we a we a we a waaaaay ty ty ty ty to eo eo eo eo exxxxxtttttrrrrracacacacact ct ct ct ct co-moro-moro-moro-moro-morbbbbbid cid cid cid cid conditonditonditonditonditions frions frions frions frions from the Mom the Mom the Mom the Mom the Meeeeedical Edical Edical Edical Edical Evvvvvideideideideidencncncncnce filee filee filee filee filefor a pre-defined study cohortfor a pre-defined study cohortfor a pre-defined study cohortfor a pre-defined study cohortfor a pre-defined study cohort

DDDDDAAAAATTTTTA meA meA meA meA medddddeeeeevvvvvid;id;id;id;id;SET core_cd.medevid (KEEP=usrds_id cancer cararr carfailSET core_cd.medevid (KEEP=usrds_id cancer cararr carfailSET core_cd.medevid (KEEP=usrds_id cancer cararr carfailSET core_cd.medevid (KEEP=usrds_id cancer cararr carfailSET core_cd.medevid (KEEP=usrds_id cancer cararr carfail

cva diabins diabprim dysrhyt hyper ihd cva diabins diabprim dysrhyt hyper ihd cva diabins diabprim dysrhyt hyper ihd cva diabins diabprim dysrhyt hyper ihd cva diabins diabprim dysrhyt hyper ihd mi pulmon pvasc); mi pulmon pvasc); mi pulmon pvasc); mi pulmon pvasc); mi pulmon pvasc);

BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;

IF (FIRSTIF (FIRSTIF (FIRSTIF (FIRSTIF (FIRST.usr.usr.usr.usr.usrds_id);ds_id);ds_id);ds_id);ds_id);RRRRRUN;UN;UN;UN;UN;

DDDDDAAAAATTTTTA me_2728;A me_2728;A me_2728;A me_2728;A me_2728;MERGE medevid (IN=x1)MERGE medevid (IN=x1)MERGE medevid (IN=x1)MERGE medevid (IN=x1)MERGE medevid (IN=x1)

core_cd.patients (IN=x2 KEEP=usrds_id died tx1date); core_cd.patients (IN=x2 KEEP=usrds_id died tx1date); core_cd.patients (IN=x2 KEEP=usrds_id died tx1date); core_cd.patients (IN=x2 KEEP=usrds_id died tx1date); core_cd.patients (IN=x2 KEEP=usrds_id died tx1date);BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;

IF x1 AND x2;IF x1 AND x2;IF x1 AND x2;IF x1 AND x2;IF x1 AND x2;RRRRRUN;UN;UN;UN;UN;

DDDDDAAAAATTTTTA inc98_me;A inc98_me;A inc98_me;A inc98_me;A inc98_me;MERGE inc90_99 (IN=x1 WHERE=(inc_year = 1998))MERGE inc90_99 (IN=x1 WHERE=(inc_year = 1998))MERGE inc90_99 (IN=x1 WHERE=(inc_year = 1998))MERGE inc90_99 (IN=x1 WHERE=(inc_year = 1998))MERGE inc90_99 (IN=x1 WHERE=(inc_year = 1998))

me_2728 (IN=x2); me_2728 (IN=x2); me_2728 (IN=x2); me_2728 (IN=x2); me_2728 (IN=x2);BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;

IF x1 AND x2;IF x1 AND x2;IF x1 AND x2;IF x1 AND x2;IF x1 AND x2;RRRRRUN;UN;UN;UN;UN;

ExExExExExampampampampample 6 - 1998 Ile 6 - 1998 Ile 6 - 1998 Ile 6 - 1998 Ile 6 - 1998 Incncncncncideideideideident Pnt Pnt Pnt Pnt Patatatatatieieieieient Snt Snt Snt Snt Surururururvvvvviiiiivvvvval Ral Ral Ral Ral Ratatatatates (Kes (Kes (Kes (Kes (Kapapapapaplan Mlan Mlan Mlan Mlan Meeeeeieieieieier)r)r)r)r)Show another survival rate calculation stratified by patient co-morbid conditionShow another survival rate calculation stratified by patient co-morbid conditionShow another survival rate calculation stratified by patient co-morbid conditionShow another survival rate calculation stratified by patient co-morbid conditionShow another survival rate calculation stratified by patient co-morbid condition

DDDDDAAAAATTTTTA inc_98_s;A inc_98_s;A inc_98_s;A inc_98_s;A inc_98_s;SET inc98_me;SET inc98_me;SET inc98_me;SET inc98_me;SET inc98_me;


IF (UPCASE(cancer) IN ('1' '2' 'Y' 'N'));IF (UPCASE(cancer) IN ('1' '2' 'Y' 'N'));IF (UPCASE(cancer) IN ('1' '2' 'Y' 'N'));IF (UPCASE(cancer) IN ('1' '2' 'Y' 'N'));IF (UPCASE(cancer) IN ('1' '2' 'Y' 'N'));

IF (UPCASE(cancer) IN ('1' 'Y')) THENIF (UPCASE(cancer) IN ('1' 'Y')) THENIF (UPCASE(cancer) IN ('1' 'Y')) THENIF (UPCASE(cancer) IN ('1' 'Y')) THENIF (UPCASE(cancer) IN ('1' 'Y')) THENcan = 1;can = 1;can = 1;can = 1;can = 1;

ELSEELSEELSEELSEELSEcan = 0;can = 0;can = 0;can = 0;can = 0;

* Calculate the survival time (in month) of each incident patient.;* Calculate the survival time (in month) of each incident patient.;* Calculate the survival time (in month) of each incident patient.;* Calculate the survival time (in month) of each incident patient.;* Calculate the survival time (in month) of each incident patient.;t = (MIN(died, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(died, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(died, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(died, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(died, MDY(12,31,1999)) - esrddate + 1) / 30.4375;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;

* Determine whether the patient is censored.;* Determine whether the patient is censored.;* Determine whether the patient is censored.;* Determine whether the patient is censored.;* Determine whether the patient is censored.;c = (MIN(died, MDY(12,31,1999)) = died);c = (MIN(died, MDY(12,31,1999)) = died);c = (MIN(died, MDY(12,31,1999)) = died);c = (MIN(died, MDY(12,31,1999)) = died);c = (MIN(died, MDY(12,31,1999)) = died);


14 Getting Startedh

PRPRPRPRPROOOOOC LIFETEST DC LIFETEST DC LIFETEST DC LIFETEST DC LIFETEST DAAAAATTTTTA=inc_98_s METHOD=KM NOA=inc_98_s METHOD=KM NOA=inc_98_s METHOD=KM NOA=inc_98_s METHOD=KM NOA=inc_98_s METHOD=KM NOTTTTTABLE PLABLE PLABLE PLABLE PLABLE PLOOOOOTTTTTS=(s) OUTS=(s) OUTS=(s) OUTS=(s) OUTS=(s) OUTSURSURSURSURSURV=sV=sV=sV=sV=surururururv98;v98;v98;v98;v98;TIME t*c(0);TIME t*c(0);TIME t*c(0);TIME t*c(0);TIME t*c(0);STRSTRSTRSTRSTRAAAAATTTTTA can;A can;A can;A can;A can;TITLE '1998 ITITLE '1998 ITITLE '1998 ITITLE '1998 ITITLE '1998 Incidncidncidncidncideeeeent Dialnt Dialnt Dialnt Dialnt Dialyyyyysis Psis Psis Psis Psis Patatatatatieieieieients 2-Ynts 2-Ynts 2-Ynts 2-Ynts 2-Year Sear Sear Sear Sear Surururururvvvvviiiiivvvvval Ral Ral Ral Ral Ratatatatates bes bes bes bes by cy cy cy cy co-moo-moo-moo-moo-morrrrrbbbbbiditiditiditiditidity';y';y';y';y';RRRRRUN;UN;UN;UN;UN;

ExExExExExampampampampample 7 - Wle 7 - Wle 7 - Wle 7 - Wle 7 - Waitlist Aaitlist Aaitlist Aaitlist Aaitlist Accccccccccess Ress Ress Ress Ress RatatatatateeeeeDetermine waitlist access rate of 1998 incident dialysis patients, who wereDetermine waitlist access rate of 1998 incident dialysis patients, who wereDetermine waitlist access rate of 1998 incident dialysis patients, who wereDetermine waitlist access rate of 1998 incident dialysis patients, who wereDetermine waitlist access rate of 1998 incident dialysis patients, who wereregistered in the transplant waitlist, to the end of 12/31/1999registered in the transplant waitlist, to the end of 12/31/1999registered in the transplant waitlist, to the end of 12/31/1999registered in the transplant waitlist, to the end of 12/31/1999registered in the transplant waitlist, to the end of 12/31/1999

DDDDDAAAAATTTTTA inc_98_wA inc_98_wA inc_98_wA inc_98_wA inc_98_w;;;;;MERGE inc98_me (IN=x1)MERGE inc98_me (IN=x1)MERGE inc98_me (IN=x1)MERGE inc98_me (IN=x1)MERGE inc98_me (IN=x1)

core_cd.txwait (IN=x2 KEEP=usrds_id begin); core_cd.txwait (IN=x2 KEEP=usrds_id begin); core_cd.txwait (IN=x2 KEEP=usrds_id begin); core_cd.txwait (IN=x2 KEEP=usrds_id begin); core_cd.txwait (IN=x2 KEEP=usrds_id begin);BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;

IF x1;IF x1;IF x1;IF x1;IF x1;

* Extract only 1998 incident dialysis patients.;* Extract only 1998 incident dialysis patients.;* Extract only 1998 incident dialysis patients.;* Extract only 1998 incident dialysis patients.;* Extract only 1998 incident dialysis patients.;IF (rxgroup ^= 'T');IF (rxgroup ^= 'T');IF (rxgroup ^= 'T');IF (rxgroup ^= 'T');IF (rxgroup ^= 'T');

* Make sure all dialysis patients who were not put on the waitlist;* Make sure all dialysis patients who were not put on the waitlist;* Make sure all dialysis patients who were not put on the waitlist;* Make sure all dialysis patients who were not put on the waitlist;* Make sure all dialysis patients who were not put on the waitlist;* get to be censored at the end of follow-up period.;* get to be censored at the end of follow-up period.;* get to be censored at the end of follow-up period.;* get to be censored at the end of follow-up period.;* get to be censored at the end of follow-up period.;IF x1 AND ^x2 THEN begin = MDY(1,1,2000);IF x1 AND ^x2 THEN begin = MDY(1,1,2000);IF x1 AND ^x2 THEN begin = MDY(1,1,2000);IF x1 AND ^x2 THEN begin = MDY(1,1,2000);IF x1 AND ^x2 THEN begin = MDY(1,1,2000);

* Calculate the waitlist access time (in month) of each incident patient.;* Calculate the waitlist access time (in month) of each incident patient.;* Calculate the waitlist access time (in month) of each incident patient.;* Calculate the waitlist access time (in month) of each incident patient.;* Calculate the waitlist access time (in month) of each incident patient.;t = (MIN(begin, died, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(begin, died, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(begin, died, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(begin, died, MDY(12,31,1999)) - esrddate + 1) / 30.4375;t = (MIN(begin, died, MDY(12,31,1999)) - esrddate + 1) / 30.4375;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;IF (t < 0) THEN t = 0;

* Determine whether the patient is censored.;* Determine whether the patient is censored.;* Determine whether the patient is censored.;* Determine whether the patient is censored.;* Determine whether the patient is censored.;c = (MIN(begin, died, MDY(12,31,1999)) = begin);c = (MIN(begin, died, MDY(12,31,1999)) = begin);c = (MIN(begin, died, MDY(12,31,1999)) = begin);c = (MIN(begin, died, MDY(12,31,1999)) = begin);c = (MIN(begin, died, MDY(12,31,1999)) = begin);


PRPRPRPRPROOOOOC LIFETEST DC LIFETEST DC LIFETEST DC LIFETEST DC LIFETEST DAAAAATTTTTA=inc_98_w METHOD=KM NOA=inc_98_w METHOD=KM NOA=inc_98_w METHOD=KM NOA=inc_98_w METHOD=KM NOA=inc_98_w METHOD=KM NOTTTTTABLE PLABLE PLABLE PLABLE PLABLE PLOOOOOTTTTTS=(s) OUTS=(s) OUTS=(s) OUTS=(s) OUTS=(s) OUTSURSURSURSURSURV=wait98;V=wait98;V=wait98;V=wait98;V=wait98;TIME t*c(0);TIME t*c(0);TIME t*c(0);TIME t*c(0);TIME t*c(0);TITLE '1998 ITITLE '1998 ITITLE '1998 ITITLE '1998 ITITLE '1998 Incidncidncidncidncideeeeent Dialnt Dialnt Dialnt Dialnt Dialyyyyysis Psis Psis Psis Psis Patatatatatieieieieients nts nts nts nts WWWWWaitlist aitlist aitlist aitlist aitlist AAAAAccccccccccess Ress Ress Ress Ress Ratatatatates';es';es';es';es';RRRRRUN;UN;UN;UN;UN;


ExExExExExampampampampample 8 - Tle 8 - Tle 8 - Tle 8 - Tle 8 - Toooootal Atal Atal Atal Atal Admission Rdmission Rdmission Rdmission Rdmission Ratatatatateeeee

* 1. Create the patient driver for hospitalization rates;* 1. Create the patient driver for hospitalization rates;* 1. Create the patient driver for hospitalization rates;* 1. Create the patient driver for hospitalization rates;* 1. Create the patient driver for hospitalization rates;* OR USE PRE* OR USE PRE* OR USE PRE* OR USE PRE* OR USE PREVIOUSLVIOUSLVIOUSLVIOUSLVIOUSLY CREAY CREAY CREAY CREAY CREATED FILE - IF SO TED FILE - IF SO TED FILE - IF SO TED FILE - IF SO TED FILE - IF SO WE MUST DWE MUST DWE MUST DWE MUST DWE MUST DO THIS STEPO THIS STEPO THIS STEPO THIS STEPO THIS STEP* * * * * ANYWANYWANYWANYWANYWAAAAAYYYYY;;;;;DDDDDAAAAATTTTTA drA drA drA drA driiiiivvvvveeeeerrrrr;;;;;

SET core_cd.patients (WHERE=(incyear=1998));SET core_cd.patients (WHERE=(incyear=1998));SET core_cd.patients (WHERE=(incyear=1998));SET core_cd.patients (WHERE=(incyear=1998));SET core_cd.patients (WHERE=(incyear=1998));

sfu = first_se + 91;sfu = first_se + 91;sfu = first_se + 91;sfu = first_se + 91;sfu = first_se + 91;efu = MIN(died, first_se+455);efu = MIN(died, first_se+455);efu = MIN(died, first_se+455);efu = MIN(died, first_se+455);efu = MIN(died, first_se+455);

IF (died NE .) AND (died < sfu) THEN DELETE;IF (died NE .) AND (died < sfu) THEN DELETE;IF (died NE .) AND (died < sfu) THEN DELETE;IF (died NE .) AND (died < sfu) THEN DELETE;IF (died NE .) AND (died < sfu) THEN DELETE;FORMAFORMAFORMAFORMAFORMAT sfu eT sfu eT sfu eT sfu eT sfu efu MMDDfu MMDDfu MMDDfu MMDDfu MMDDYY10.;YY10.;YY10.;YY10.;YY10.;

RRRRRUN;UN;UN;UN;UN;PRPRPRPRPROOOOOC SORC SORC SORC SORC SORT DT DT DT DT DAAAAATTTTTA=drA=drA=drA=drA=driiiiivvvvveeeeerrrrr;;;;;

BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;RRRRRUN;UN;UN;UN;UN;

*2. Link to hospitalization file and gather all hosps within period of interest;*2. Link to hospitalization file and gather all hosps within period of interest;*2. Link to hospitalization file and gather all hosps within period of interest;*2. Link to hospitalization file and gather all hosps within period of interest;*2. Link to hospitalization file and gather all hosps within period of interest;* INCL* INCL* INCL* INCL* INCLUDES ONLUDES ONLUDES ONLUDES ONLUDES ONLY PTY PTY PTY PTY PTS S S S S WITH HOSPWITH HOSPWITH HOSPWITH HOSPWITH HOSPITITITITITALIZALIZALIZALIZALIZAAAAATIONS;TIONS;TIONS;TIONS;TIONS;PROC SQL;PROC SQL;PROC SQL;PROC SQL;PROC SQL;

CREACREACREACREACREATE TTE TTE TTE TTE TABLE hospdat ABLE hospdat ABLE hospdat ABLE hospdat ABLE hospdat ASASASASASSELECT * FROM driver a, hosp_cd.hosp (KEEP=usrds_id clm_from clm_thru) bSELECT * FROM driver a, hosp_cd.hosp (KEEP=usrds_id clm_from clm_thru) bSELECT * FROM driver a, hosp_cd.hosp (KEEP=usrds_id clm_from clm_thru) bSELECT * FROM driver a, hosp_cd.hosp (KEEP=usrds_id clm_from clm_thru) bSELECT * FROM driver a, hosp_cd.hosp (KEEP=usrds_id clm_from clm_thru) bWHERE a.usrds_id=b.usrds_id AND a.sfu<=clm_thru AND a.efu>=b.clm_from;WHERE a.usrds_id=b.usrds_id AND a.sfu<=clm_thru AND a.efu>=b.clm_from;WHERE a.usrds_id=b.usrds_id AND a.sfu<=clm_thru AND a.efu>=b.clm_from;WHERE a.usrds_id=b.usrds_id AND a.sfu<=clm_thru AND a.efu>=b.clm_from;WHERE a.usrds_id=b.usrds_id AND a.sfu<=clm_thru AND a.efu>=b.clm_from;

QQQQQUITUITUITUITUIT;;;;;

PRPRPRPRPROOOOOC SORC SORC SORC SORC SORT DT DT DT DT DAAAAATTTTTA=hospdat;A=hospdat;A=hospdat;A=hospdat;A=hospdat;BY usrds_id clm_from clm_thru;BY usrds_id clm_from clm_thru;BY usrds_id clm_from clm_thru;BY usrds_id clm_from clm_thru;BY usrds_id clm_from clm_thru;


DDDDDAAAAATTTTTA rA rA rA rA ratatatatate;e;e;e;e;SET hospdat;SET hospdat;SET hospdat;SET hospdat;SET hospdat;


RETRETRETRETRETAIN n_hos n_aAIN n_hos n_aAIN n_hos n_aAIN n_hos n_aAIN n_hos n_adm edm edm edm edm expxpxpxpxptttttime rime rime rime rime rt_at_at_at_at_adm;dm;dm;dm;dm;

IF FIRSTIF FIRSTIF FIRSTIF FIRSTIF FIRST.usr.usr.usr.usr.usrds_id THENds_id THENds_id THENds_id THENds_id THENDO;DO;DO;DO;DO; /* INITIALIZE RET/* INITIALIZE RET/* INITIALIZE RET/* INITIALIZE RET/* INITIALIZE RETAIN AIN AIN AIN AIN VVVVVARIABLES FOR EAARIABLES FOR EAARIABLES FOR EAARIABLES FOR EAARIABLES FOR EACH USRDS_ID */CH USRDS_ID */CH USRDS_ID */CH USRDS_ID */CH USRDS_ID */

n_hos=0;n_hos=0;n_hos=0;n_hos=0;n_hos=0;n_adm=0;n_adm=0;n_adm=0;n_adm=0;n_adm=0;exptime=0;exptime=0;exptime=0;exptime=0;exptime=0;rt_adm=0;rt_adm=0;rt_adm=0;rt_adm=0;rt_adm=0;

END;END;END;END;END;

* FOR HOSP* FOR HOSP* FOR HOSP* FOR HOSP* FOR HOSPITITITITITALIZALIZALIZALIZALIZAAAAATIONS OTIONS OTIONS OTIONS OTIONS OVERLVERLVERLVERLVERLAPPAPPAPPAPPAPPING STUDING STUDING STUDING STUDING STUDY STY STY STY STY STARARARARART ONLT ONLT ONLT ONLT ONLY COUNTY COUNTY COUNTY COUNTY COUNT* HOSP* HOSP* HOSP* HOSP* HOSPITITITITITAL DAL DAL DAL DAL DAAAAAYYYYYS,S,S,S,S, NO NO NO NO NOT T T T T AS AS AS AS AS ADMISSION;ADMISSION;ADMISSION;ADMISSION;ADMISSION;

IF (clm_from<sfu<=clm_thru) THEN n_hos=n_hos+(MIN(clm_thru,efu)-sfu+1);IF (clm_from<sfu<=clm_thru) THEN n_hos=n_hos+(MIN(clm_thru,efu)-sfu+1);IF (clm_from<sfu<=clm_thru) THEN n_hos=n_hos+(MIN(clm_thru,efu)-sfu+1);IF (clm_from<sfu<=clm_thru) THEN n_hos=n_hos+(MIN(clm_thru,efu)-sfu+1);IF (clm_from<sfu<=clm_thru) THEN n_hos=n_hos+(MIN(clm_thru,efu)-sfu+1);

* IF * IF * IF * IF * IF WITHIN STUDWITHIN STUDWITHIN STUDWITHIN STUDWITHIN STUDY PY PY PY PY PERIOD COUNT DERIOD COUNT DERIOD COUNT DERIOD COUNT DERIOD COUNT DAAAAAYYYYYS (UP TS (UP TS (UP TS (UP TS (UP TO STUDO STUDO STUDO STUDO STUDY END) Y END) Y END) Y END) Y END) ANDANDANDANDAND* ADMISSIONS;* ADMISSIONS;* ADMISSIONS;* ADMISSIONS;* ADMISSIONS;

ELSE IF (sfu<=clm_from<=efu) THENELSE IF (sfu<=clm_from<=efu) THENELSE IF (sfu<=clm_from<=efu) THENELSE IF (sfu<=clm_from<=efu) THENELSE IF (sfu<=clm_from<=efu) THEN DO; DO; DO; DO; DO;

n_hos=n_hos+(MIN(clm_thru,efu)-clm_from); n_hos=n_hos+(MIN(clm_thru,efu)-clm_from); n_hos=n_hos+(MIN(clm_thru,efu)-clm_from); n_hos=n_hos+(MIN(clm_thru,efu)-clm_from); n_hos=n_hos+(MIN(clm_thru,efu)-clm_from); n_adm=n_adm+1; n_adm=n_adm+1; n_adm=n_adm+1; n_adm=n_adm+1; n_adm=n_adm+1;END;END;END;END;END;

IF LIF LIF LIF LIF LASTASTASTASTAST.usr.usr.usr.usr.usrds_id THENds_id THENds_id THENds_id THENds_id THEN /* OUTPUT ONE RECORD PER USRDS_ID *//* OUTPUT ONE RECORD PER USRDS_ID *//* OUTPUT ONE RECORD PER USRDS_ID *//* OUTPUT ONE RECORD PER USRDS_ID *//* OUTPUT ONE RECORD PER USRDS_ID */

16 Getting Startedh

DO;DO;DO;DO;DO;exptime=(efu-sfu-n_hos)/365;exptime=(efu-sfu-n_hos)/365;exptime=(efu-sfu-n_hos)/365;exptime=(efu-sfu-n_hos)/365;exptime=(efu-sfu-n_hos)/365;IF exptime>0 then rt_adm=n_adm*1000/exptime;IF exptime>0 then rt_adm=n_adm*1000/exptime;IF exptime>0 then rt_adm=n_adm*1000/exptime;IF exptime>0 then rt_adm=n_adm*1000/exptime;IF exptime>0 then rt_adm=n_adm*1000/exptime;ELSE IF (exptime<0) THEN exptime=0;ELSE IF (exptime<0) THEN exptime=0;ELSE IF (exptime<0) THEN exptime=0;ELSE IF (exptime<0) THEN exptime=0;ELSE IF (exptime<0) THEN exptime=0;OUTPUTOUTPUTOUTPUTOUTPUTOUTPUT;;;;;

END;END;END;END;END;RRRRRUN;UN;UN;UN;UN;

*3.*3.*3.*3.*3. COMBINE RESUL COMBINE RESUL COMBINE RESUL COMBINE RESUL COMBINE RESULT T T T T WITH ORIGINWITH ORIGINWITH ORIGINWITH ORIGINWITH ORIGINAL INCIDENT SAMPLE TAL INCIDENT SAMPLE TAL INCIDENT SAMPLE TAL INCIDENT SAMPLE TAL INCIDENT SAMPLE TO INCLO INCLO INCLO INCLO INCLUDE PTUDE PTUDE PTUDE PTUDE PTSSSSS* * * * * W/O HOSPW/O HOSPW/O HOSPW/O HOSPW/O HOSPITITITITITALIZALIZALIZALIZALIZAAAAATIONS;TIONS;TIONS;TIONS;TIONS;DDDDDAAAAATTTTTA rA rA rA rA ratatatatatealealealealeall;l;l;l;l;

MERGE driver (IN=x1) rate (IN=x2);MERGE driver (IN=x1) rate (IN=x2);MERGE driver (IN=x1) rate (IN=x2);MERGE driver (IN=x1) rate (IN=x2);MERGE driver (IN=x1) rate (IN=x2);BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;

IF x2=0 THENIF x2=0 THENIF x2=0 THENIF x2=0 THENIF x2=0 THENDO;DO;DO;DO;DO;

n_hos=0;n_hos=0;n_hos=0;n_hos=0;n_hos=0;n_adm=0;n_adm=0;n_adm=0;n_adm=0;n_adm=0;rt_adm=0;rt_adm=0;rt_adm=0;rt_adm=0;rt_adm=0;exptime=(efu-sfu+1)/365;exptime=(efu-sfu+1)/365;exptime=(efu-sfu+1)/365;exptime=(efu-sfu+1)/365;exptime=(efu-sfu+1)/365;

END;END;END;END;END;IF x1 THEN OUTPUTIF x1 THEN OUTPUTIF x1 THEN OUTPUTIF x1 THEN OUTPUTIF x1 THEN OUTPUT;;;;;


*4.*4.*4.*4.*4. CAL CAL CAL CAL CALCULCULCULCULCULAAAAATE MEAN TE MEAN TE MEAN TE MEAN TE MEAN ADMISSIONS PADMISSIONS PADMISSIONS PADMISSIONS PADMISSIONS PER 1000 PT ER 1000 PT ER 1000 PT ER 1000 PT ER 1000 PT YRS BY GENDER;YRS BY GENDER;YRS BY GENDER;YRS BY GENDER;YRS BY GENDER;PRPRPRPRPROOOOOC TC TC TC TC TABABABABABULULULULULAAAAATE DTE DTE DTE DTE DAAAAATTTTTA=rA=rA=rA=rA=ratatatatatealealealealeall;l;l;l;l;VVVVVAR rAR rAR rAR rAR rt_at_at_at_at_adm;dm;dm;dm;dm;CLASS sex;CLASS sex;CLASS sex;CLASS sex;CLASS sex;WEIGHT exptime;WEIGHT exptime;WEIGHT exptime;WEIGHT exptime;WEIGHT exptime;TTTTTABLE seABLE seABLE seABLE seABLE sex=''*rx=''*rx=''*rx=''*rx=''*rt_at_at_at_at_adm=''*mean*f=8.1;dm=''*mean*f=8.1;dm=''*mean*f=8.1;dm=''*mean*f=8.1;dm=''*mean*f=8.1;KEYLABEL mean='';KEYLABEL mean='';KEYLABEL mean='';KEYLABEL mean='';KEYLABEL mean='';TITLE1 'TTITLE1 'TTITLE1 'TTITLE1 'TTITLE1 'Total otal otal otal otal AAAAAdmissiodmissiodmissiodmissiodmission rn rn rn rn ratatatatates pes pes pes pes peeeeer 1,000 patr 1,000 patr 1,000 patr 1,000 patr 1,000 patieieieieient ynt ynt ynt ynt yearearearearears';s';s';s';s';RRRRRUN;UN;UN;UN;UN;


Example 9 - First Admission RateExample 9 - First Admission RateExample 9 - First Admission RateExample 9 - First Admission RateExample 9 - First Admission Rate

*1.*1.*1.*1.*1. U U U U Using hospitalizatsing hospitalizatsing hospitalizatsing hospitalizatsing hospitalizatioioioioion data frn data frn data frn data frn data frooooom abm abm abm abm abooooovvvvve,e,e,e,e, calculat calculat calculat calculat calculate FIRST He FIRST He FIRST He FIRST He FIRST Hospitalizatospitalizatospitalizatospitalizatospitalizatioioioioion rn rn rn rn ratatatatates;es;es;es;es;DDDDDAAAAATTTTTA frA frA frA frA fratatatatate;e;e;e;e;

SET hospdat;SET hospdat;SET hospdat;SET hospdat;SET hospdat;BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;

RETRETRETRETRETAIN n_aAIN n_aAIN n_aAIN n_aAIN n_adm edm edm edm edm expxpxpxpxptttttime rime rime rime rime rt_at_at_at_at_adm flag;dm flag;dm flag;dm flag;dm flag;

IF FIRSTIF FIRSTIF FIRSTIF FIRSTIF FIRST.usr.usr.usr.usr.usrds_id THENds_id THENds_id THENds_id THENds_id THENDO;DO;DO;DO;DO; /* INITIALIZE RET/* INITIALIZE RET/* INITIALIZE RET/* INITIALIZE RET/* INITIALIZE RETAIN AIN AIN AIN AIN VVVVVARIABLES FOR EAARIABLES FOR EAARIABLES FOR EAARIABLES FOR EAARIABLES FOR EACH USRDS_ID */CH USRDS_ID */CH USRDS_ID */CH USRDS_ID */CH USRDS_ID */

n_adm=0;n_adm=0;n_adm=0;n_adm=0;n_adm=0;exptime=0;exptime=0;exptime=0;exptime=0;exptime=0;rt_adm=0;rt_adm=0;rt_adm=0;rt_adm=0;rt_adm=0;flag=0;flag=0;flag=0;flag=0;flag=0;


* FOR HOSP* FOR HOSP* FOR HOSP* FOR HOSP* FOR HOSPITITITITITALIZALIZALIZALIZALIZAAAAATIONS OTIONS OTIONS OTIONS OTIONS OVERLVERLVERLVERLVERLAPPAPPAPPAPPAPPING STUDING STUDING STUDING STUDING STUDY STY STY STY STY STARARARARART SET EXPOSURET SET EXPOSURET SET EXPOSURET SET EXPOSURET SET EXPOSURE* TIME T* TIME T* TIME T* TIME T* TIME TO ZERO ZERO ZERO ZERO ZERO TO TO TO TO TO EXO EXO EXO EXO EXCLCLCLCLCLUDE FRUDE FRUDE FRUDE FRUDE FROM ROM ROM ROM ROM RAAAAATE;TE;TE;TE;TE;

IF (clm_from<=sfu<=clm_thru) THENIF (clm_from<=sfu<=clm_thru) THENIF (clm_from<=sfu<=clm_thru) THENIF (clm_from<=sfu<=clm_thru) THENIF (clm_from<=sfu<=clm_thru) THENDO;DO;DO;DO;DO;

exptime=0;exptime=0;exptime=0;exptime=0;exptime=0;flag=1;flag=1;flag=1;flag=1;flag=1;


* IF * IF * IF * IF * IF WITHIN STUDWITHIN STUDWITHIN STUDWITHIN STUDWITHIN STUDY PY PY PY PY PERIOD COUNT ERIOD COUNT ERIOD COUNT ERIOD COUNT ERIOD COUNT ADMISSION ADMISSION ADMISSION ADMISSION ADMISSION AND CALAND CALAND CALAND CALAND CALCULCULCULCULCULAAAAATETETETETE* EXPOSURE TIME;* EXPOSURE TIME;* EXPOSURE TIME;* EXPOSURE TIME;* EXPOSURE TIME;

ELSE IF (sfu<clm_from<=efu) AND flag=0 THENELSE IF (sfu<clm_from<=efu) AND flag=0 THENELSE IF (sfu<clm_from<=efu) AND flag=0 THENELSE IF (sfu<clm_from<=efu) AND flag=0 THENELSE IF (sfu<clm_from<=efu) AND flag=0 THEN DO; DO; DO; DO; DO;

exptime=(clm_from-sfu+1)/365;exptime=(clm_from-sfu+1)/365;exptime=(clm_from-sfu+1)/365;exptime=(clm_from-sfu+1)/365;exptime=(clm_from-sfu+1)/365;n_adm=n_adm+1;n_adm=n_adm+1;n_adm=n_adm+1;n_adm=n_adm+1;n_adm=n_adm+1;flag=1;flag=1;flag=1;flag=1;flag=1;


IF LIF LIF LIF LIF LASTASTASTASTAST.usr.usr.usr.usr.usrds_id THENds_id THENds_id THENds_id THENds_id THEN /* OUTPUT ONE RECORD PER USRDS_ID *//* OUTPUT ONE RECORD PER USRDS_ID *//* OUTPUT ONE RECORD PER USRDS_ID *//* OUTPUT ONE RECORD PER USRDS_ID *//* OUTPUT ONE RECORD PER USRDS_ID */DO;DO;DO;DO;DO;

IF exptime>0 then rt_fadm=n_adm*1000/exptime;IF exptime>0 then rt_fadm=n_adm*1000/exptime;IF exptime>0 then rt_fadm=n_adm*1000/exptime;IF exptime>0 then rt_fadm=n_adm*1000/exptime;IF exptime>0 then rt_fadm=n_adm*1000/exptime;OUTPUTOUTPUTOUTPUTOUTPUTOUTPUT;;;;;

END;END;END;END;END;RRRRRUN;UN;UN;UN;UN;

*3.*3.*3.*3.*3. COMBINE RESUL COMBINE RESUL COMBINE RESUL COMBINE RESUL COMBINE RESULT T T T T WITH ORIGINWITH ORIGINWITH ORIGINWITH ORIGINWITH ORIGINAL INCIDENT SAMPLE TAL INCIDENT SAMPLE TAL INCIDENT SAMPLE TAL INCIDENT SAMPLE TAL INCIDENT SAMPLE TO INCLO INCLO INCLO INCLO INCLUDE PTUDE PTUDE PTUDE PTUDE PTSSSSS* * * * * W/O HOSPW/O HOSPW/O HOSPW/O HOSPW/O HOSPITITITITITALIZALIZALIZALIZALIZAAAAATIONS;TIONS;TIONS;TIONS;TIONS;DDDDDAAAAATTTTTA frA frA frA frA fratatatatatealealealealeall;l;l;l;l;

MERGE driver (IN=x1) frate (IN=x2);MERGE driver (IN=x1) frate (IN=x2);MERGE driver (IN=x1) frate (IN=x2);MERGE driver (IN=x1) frate (IN=x2);MERGE driver (IN=x1) frate (IN=x2);BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;BY usrds_id;

IF x2=0 THENIF x2=0 THENIF x2=0 THENIF x2=0 THENIF x2=0 THENDO;DO;DO;DO;DO;

n_adm=0;n_adm=0;n_adm=0;n_adm=0;n_adm=0;rt_fadm=0;rt_fadm=0;rt_fadm=0;rt_fadm=0;rt_fadm=0;exptime=(efu-sfu+1)/365;exptime=(efu-sfu+1)/365;exptime=(efu-sfu+1)/365;exptime=(efu-sfu+1)/365;exptime=(efu-sfu+1)/365;

END;END;END;END;END;IF x1 THEN OUTPUTIF x1 THEN OUTPUTIF x1 THEN OUTPUTIF x1 THEN OUTPUTIF x1 THEN OUTPUT;;;;;


18 Getting Startedh

*4.*4.*4.*4.*4. CAL CAL CAL CAL CALCULCULCULCULCULAAAAATE MEAN TE MEAN TE MEAN TE MEAN TE MEAN ADMISSIONS PADMISSIONS PADMISSIONS PADMISSIONS PADMISSIONS PER 1000 PT ER 1000 PT ER 1000 PT ER 1000 PT ER 1000 PT YRS BY GENDER;YRS BY GENDER;YRS BY GENDER;YRS BY GENDER;YRS BY GENDER;PRPRPRPRPROOOOOC TC TC TC TC TABABABABABULULULULULAAAAATE DTE DTE DTE DTE DAAAAATTTTTA=frA=frA=frA=frA=fratatatatatealealealealeall;l;l;l;l;VVVVVAR rAR rAR rAR rAR rt_fat_fat_fat_fat_fadm;dm;dm;dm;dm;CLASS sex;CLASS sex;CLASS sex;CLASS sex;CLASS sex;WEIGHT exptime;WEIGHT exptime;WEIGHT exptime;WEIGHT exptime;WEIGHT exptime;TTTTTABLE seABLE seABLE seABLE seABLE sex=''*rx=''*rx=''*rx=''*rx=''*rt_fat_fat_fat_fat_fadm=''*mean*f=8.1;dm=''*mean*f=8.1;dm=''*mean*f=8.1;dm=''*mean*f=8.1;dm=''*mean*f=8.1;KEYLABEL mean='';KEYLABEL mean='';KEYLABEL mean='';KEYLABEL mean='';KEYLABEL mean='';TITLE1 'First Admission rates per 1,000 patient years';TITLE1 'First Admission rates per 1,000 patient years';TITLE1 'First Admission rates per 1,000 patient years';TITLE1 'First Admission rates per 1,000 patient years';TITLE1 'First Admission rates per 1,000 patient years';RRRRRUN;UN;UN;UN;UN;

Sec

tions 1

-8

20 Sections 1-8h


SECTION 1 ·ESRD DATA SOURCESAND THE USRDS DATABASE SYSTEMThe main objective of the USRDS CC is to use all relevantESRD data to create an integrated and consistent databasesystem for outcomes research. The CC database includesESRD patient demographic and diagnosis data, biochemicalvalues, dialysis claims, and information on treatment history,hospitalization events, and physician/supplier services.

DATA SOURCESThe data used by the USRDS CC originates from CMS,UNOS, the CDC, and the ESRD Networks, as well as from theUSRDS special studies.

REBUS/PMMIS DatabaseThe major source of ESRD patient information for the USRDSis the CMS (formerly HCFA).

The Renal Beneficiary and Utilization System (REBUS) wasadopted in 1995 as the On-Line Transaction Processing sys-tem from the previous Program Management and MedicalInformation System (PMMIS) database. The REBUS/PMMISdatabase contains demographic, diagnosis, and treatmenthistory information for all Medicare beneficiaries with ESRD.The database has also been expanded to include non-Medi-care patients, as discussed later in this appendix. Having ad-vanced its database technology, CMS migrated the REBUSdatabase into an Oracle relational database in the fall of 2003,including all patients who were alive and ESRD as of January1, 1995 or incident after this date. This database is known asthe Renal Management Information System (REMIS).

CMS regularly updates the REMIS/REBUS/PMMIS database,using the Medicare Enrollment Database (EDB), Medicareinpatient and outpatient claims, the United Network for Or-gan Sharing (UNOS) transplant database, ESRD MedicalEvidence forms (2728) provided by the ESRD networks, andESRD Death Notification forms (2746) obtained from renalproviders, as well as the SIMS database from the ESRD net-works. CMS has also established a new set of data integrityrules to help ensure accurate identification of ESRD patientsbetween the SIMS and CMS ESRD databases. Each ESRD pa-tient (old and new) will now be identified with a unique pa-tient identification number common to both databases,ensuring that all patients are consistently managed over time.

CMS Medical Evidence form (CMS-2728)The CMS Medical Evidence Form is completed by the renalprovider for each new ESRD patient, and is sent to CMSthrough the ESRD Networks. It serves to establish Medicareeligibility for individuals who previously were not Medicarebeneficiaries, reclassify previously eligible Medicare beneficia-ries as ESRD patients, and provide demographic and diag-nostic information on all new ESRD patients regardless ofMedicare entitlement.

Before 1995, dialysis units and transplant centers were re-

quired to file the Medical Evidence form only for Medicare-eligible patients. With the adoption of the newly revised formin 1995, however, providers are now required to complete theform for all new ESRD patients regardless of Medicare eligi-bility status. The revised form also contains new fields forcomorbid conditions, employment status, race (the catego-ries have been expanded), ethnicity, and biochemical data atthe start of ESRD.

It is expected that each ESRD patient will be required to sub-mit only one 2728 form per entire ESRD treatment period;multiple forms can be filed, however, for patients with mul-tiple insurance eligibility switches caused by therapy changes.For example, Medicare will drop ESRD benefits for a trans-plant patient whose graft is still functioning after three years ifESRD has been the patient’s sole qualification for Medicareeligibility. If this patient has a graft failure and subsequentlyreturns to dialysis, a second Medical Evidence form must befiled to re-establish Medicare eligibility. Another example ofthis is a dialysis patient who stops dialysis for more thantwelve months, resulting in the termination of Medicare ESRDbenefits, and who returns to dialysis or receives a kidney trans-plant; this patient must also submit a second Medical Evi-dence form in order to resume receiving Medicare benefits.

CMS Medicare Enrollment Database (EDB)The CMS Enrollment Database is the designated repositoryof all Medicare beneficiary enrollment and entitlement data,including current and historical information on beneficiaryresidence, Medicare as Secondary Payor (MSP) status, andHealth Insurance Claim/Beneficiary Identification Code (HIC/BIC) cross-referencing.

CMS Paid Claims RecordsInpatient transplant and outpatient dialysis claims recordsare sometimes used to identify new ESRD patients for whomno Medical Evidence form has been filed. These patients, whoare most likely to be non-Medicare patients or beneficiarieswho develop ESRD while already on Medicare because of oldage or disability, will eventually be entered into the PMMIS/REBUS—and hence the USRDS—database through the claimsrecords. For patients without Medical Evidence records theseclaims are the only reliable information from which to deter-mine first service dates for ESRD. These paid claims records,however, are only a supplement to—not a replacement of—other sources of information on incidence and prevalence.

It is important to note that some Medicare eligible patientsmay not have bills submitted to and paid by Medicare, in-cluding MSP patients covered by private insurance, HMOs,Medicaid, or the Department of Veterans Affairs (DVA).

UNOS Transplant DatabaseCMS began collecting data on all Medicare kidney transplantsin the early 1980s. In 1988, UNOS was created to provide anational system for allocating donor organs and to maintaina centralized data depository on organ transplantation. UNOSalso began collecting data on all transplants. Subsequently,these two collection efforts were consolidated in 1994, and

22 Sections 1-8h

UNOS became the sole source on transplant donors and re-cipients.

The CMS and UNOS transplant data files overlap for 1988–1993, and some patients with Medical Evidence forms indi-cating transplant as the initial modality are not included ineither file. To resolve the conflicts among these three sources,the USRDS has adopted the following procedure:

♦ ¨Prior to 1988, all transplant events found in CMSPMMIS/REBUS Transplant files are used.

♦ After 1994, all transplant events found in the UNOSfiles are used.

♦ Between 1988 and 1993, all transplant events found inthe UNOS files are used while additional transplantevents are taken from the CMS PMMIS/REBUS Trans-plant file only if they occur at least 30 days (either side)of a previously accepted transplant event.

♦ Additionally, transplant events associated with the re-ported incident transplant patients in the Medical Evi-dence form (CMS-2728) are taken if they also occur atleast 30 days (either side) of a previously accepted trans-plant event.

♦ The transplant events found in the Transplant file ofthe USRDS SAF Core CD are thus all unique events thatwere derived from the UNOS, CMS PMMIS/REBUSTransplant, and Medical Evidence record files.

CMS Standard Analytical Files (SAFs)The CMS SAFs contain data from final action claims, sub-mitted by Medicare beneficiaries, in which all adjustmentshave been resolved. For Part-A institutional claims, the USRDSuses the following 100% SAF claims:

♦ Inpatient♦ Outpatient♦ Skilled nursing facility (SNF)♦ Home health agency (HHA)♦ Hospice

For Part-B physician/supplier 100% SAF claims:

♦ Physician/supplier♦ Durable medical equipment (DME)

CMS SAFs are updated each quarter through June of the nextyear, when the annual files are finalized. Datasets for the cur-rent year are created six months into the year and updatedquarterly until finalized at 18 months, after which files arefrozen and will not include late arriving claims. Annual filesare thus approximately 98% complete. The USRDS 2004 ADRincludes all claims up to December 31, 2002. Patient-specificdemographic and diagnosis information, however, includesdata as recent as October 2003.

CMS ESRD Clinical Performance Measures ProjectCMS developed its ESRD Clinical Performance MeasuresProject (CPM, formerly the ESRD Core Indicators Project) tocollect information on the quality of care provided to dialysispatients. The data originate from surveys completed by pri-mary care facilities, and focus on dialysis adequacy measures,anemia management, and vascular access. Additional clinicalparameters such as albumin are available as well. These datahave been collected annually since 1994, using a random sampleof adult (age 18 and older) patients alive and on dialysis at theend of each calendar year; to date, more than 67,000 hemodi-alysis and 10,800 peritoneal dialysis surveys have been con-ducted. Data collection for all pediatric patients age 12–17years was begun in 2000, and in 2002 was expanded to all in-center hemodialysis patients younger than 18. The USRDSCoordinating Center, in collaboration with CMS, is nowmaking this CPM data available to the general research com-munity.

CMS Dialysis Facility Compare DataThe USRDS uses the CMS Dialysis Facility Compare data todefine chain and ownership information for each renal facil-ity; prior to the 2003 ADR, similar data were extracted fromthe Independent Renal Facility Cost Report (CMS 265-94).

CMS Annual Facility Survey (AFS)In addition to the CMS ESRD databases, independent ESRDpatient counts are available from the CMS Annual FacilitySurvey, which all Medicare-approved dialysis units and trans-plant centers are required to complete at the end of each cal-endar year. The AFS reports counts of patients being treatedat the end of the year, new ESRD patients starting during theyear, and patients who died during the year. Counts of bothMedicare and non-Medicare end-of-year patients are included.While AFS files do not carry patient-specific demographicand diagnosis information, they do provide independent pa-tient counts used to complement the CMS patient-specificrecords.

CDC Surveillance DataThe Centers for Disease Control and Prevention (CDC) usetheir National Surveillance of Dialysis-Associated Diseases inthe United States to collect information from dialysis facilitieson patient and staff counts, membrane types, reuse practices,water treatment methods, therapy types, vascular access use,antibiotic use, hepatitis vaccination and conversion rates (forboth staff and patients), and the incidence of HIV, AIDS, andtuberculosis. None of the information is patient-specific. TheCDC did not conduct a survey in 1998.

Dialysis Morbidity & Mortality StudyThe DMMS was an observational study in which data ondemographics, comorbidity, laboratory values, treatment,socioeconomic factors, and insurance were collected for a ran-dom sample of U.S. dialysis patients, using dialysis records.Data were collected on 6,000 ESRD patients in each of WavesI, III, & IV, and 4,500 patients in Wave II, a total of 22,500patients over three years. Waves I, III, & IV are each historical


prospective studies in which data were collected for patientsreceiving in-center hemodialysis on December 31, 1993. Datawere abstracted from patient medical records, and each pa-tient was followed from December 31, 1993 through the ear-liest of data abstraction, death, transplant, change in modality,or transfer to another facility. Wave II is a true prospectivestudy of incident hemodialysis and peritoneal dialysis pa-tients for 1996 and some incident patients entering the ESRDprogram in the first part of the 1999 calendar year.

Case Mix Adequacy StudyThe objectives of the USRDS Case Mix Adequacy Study ofDialysis were to:

♦ establish the relationship between the dose of delivereddialysis therapy and mortality.

♦ determine the strength of this relationship when dataare adjusted for comorbidity.

♦ assess how this relationship changes at different dialy-sis doses

♦ assess how this relationship is affected by dialyzer re-use.

♦ assess the impact of different dialysis membranes onpatient morbidity and mortality.

The study consisted of two groups of patients: an incidentsample of ESRD patients who began hemodialysis during1990, and a prevalent sample of hemodialysis patients withonset of ESRD prior to 1990. A total of 7,096 patients from523 dialysis units were included, with approximately 3,300patients having the pre- and post- BUN values needed tocalculate delivered dialysis dose. Ninety-four percent of thesecases were matched to the USRDS database. The ESRD Net-works collected these data in conjunction with their MedicalCase Review data abstraction.

Case Mix Severity StudyThe objectives of this study were to:

♦ estimate the correlation of comorbidity and other fac-tors existing at the onset of ESRD to subsequent mor-tality and hospitalization rates, while adjusting for age,gender, race, and primary diagnosis

♦ evaluate possible associations of these factors with re-ported causes of death.

♦ assess the distribution of comorbidity and other fac-tors among patients using different treatment modali-ties.

♦ compare relative mortality rates by treatment modal-ity, adjusting for selected comorbid conditions and otherfactors.

Data were collected on 5,255 incident patients in 1986–87 at328 dialysis units nationwide.

Pediatric Growth & DevelopmentThe objectives of the USRDS Pediatric ESRD Growth and De-velopment Study were to:

♦ establish a baseline for assessing the relation of pediat-ric ESRD patient growth and sexual maturation tomodality

♦ establish a prototype for the ongoing collection of pe-diatric data.

All patients who were prevalent in 1990 and born after De-cember 31, 1970 were included in the study, a total of 3,067patients at 548 dialysis units.

CAPD & Peritonitis StudyThe USRDS CAPD and Peritonitis Rates Study examined therelation of peritonitis episodes in CAPD patients to connec-tion device technology and other factors. The study popula-tion included all patients newly starting CAPD in the first sixmonths of 1989, up to a maximum of 14 patients per dialysisunit. All units providing CAPD training participated in thestudy. The sample contains 3,385 patients from 706 units.

USRDS DATABASE SYSTEMThe USRDS CC has developed a centralized ESRD patientdatabase by integrating data from the above data sourcesand establishing methods to identify patients with ESRD. Weuse this database to update and maintain data on demo-graphics, clinical measurements, biochemical lab test results,renal replacement therapy, treatment history, and all medicalservice events reported in the Medicare claims database.Through this patient-oriented database we attempt to defineeach individual ESRD patient by going through multiple stagesof data cleaning, conversion, validation, and consolidation. Itis critical that the USRDS establishes a universal patient iden-tification system so that unique patient identification num-bers can be assigned to each ESRD patient at the time of ESRDinitiation, ensuring that counts and rates of incident and preva-lent cohorts can be accurately tracked over time.

In 1994, the USRDS CC introduced the Standard AnalysisFiles (SAFs)—not to be confused with the CMS StandardAnalytical Files for Part A and Part B claims data—to helpmeet the ESRD data needs of a wide variety of research stud-ies. These SAFs have subsequently been enhanced to includenot only ESRD clinical and claims data from CMS, but alsotransplant and wait list data from UNOS. All SAFs are sortedby the unique USRDS-specified patient identification number,and patient identifiers (name, address, SSN, HIC/BIC, etc.)are removed in order to protect patient confidentiality.

The CC also uses the USRDS ESRD database to generate thedata sets for the tables, graphs, and maps in the USRDS ADR.

The USRDS ESRD database is updated regularly with dataobtained from the various data sources. The CC generallyreceives CMS SAF claims data, Facility Survey data, CDC Sur-

24 Sections 1-8h

vey data, and UNOS transplant and wait-list data once a year,while REBUS and EDB data are obtained more frequently.These multiple updates allow the CC to assess growth of theESRD population, the demographic distribution of ESRD pa-tients, and changes in the percent of patients diagnosed withmajor diseases secondary to ESRD.

SECTION 2 ·ESRD PATIENTSResearchers need to understand key concepts about ESRDbefore beginning outcomes research on kidney patients. AnESRD patient is one who has developed chronic renal failureand requires kidney replacement treatment—dialysis or trans-plant—to sustain life. This is not to be confused with acuterenal failure, in which the patient is expected to recover renalfunction after several weeks or months. A Medical Evidenceform must be completed immediately by renal providers forall ESRD patients, not only to register them in the CMS ESRDdatabase, but also to apply for their Medicare eligibility if theyhave not previously been eligible.

DATA SOURCESTo establish the incident and prevalent cohorts by year, mo-dality, primary cause of renal failure, etc., we must use patientdemographic and clinical information as well as treatmenthistory data. This information can be obtained from theUSRDS Core CD with files “PATIENTS,” “MEDEVID,”“RXHIST,” “RXHIST60,” and “PAYHIST.”

FIRST ESRD SERVICE DATEThe first ESRD service date (FSD) is the single most impor-tant data element in the USRDS database, and each patientmust, at a minimum, have a valid FSD. This date is used todetermine the incident year of each new patient and the firstyear in which the patient is counted as prevalent. The date 90days after the FSD is used as the starting point for most pa-tient survival outcomes analyses. This special rule is necessaryfor all ESRD patients, who are covered by Medicare as payor,to be given a fair chance of generating Medical services due topotential delay of the Medicare eligibility application process.Furthermore, it also provides an adequate time window foreach patient to finally settle on a stable and suitable dialytictreatment modality.

The FSD is derived by taking the earliest of:

♦ the date of the start of dialysis for chronic renal failure,as reported on the Medical Evidence form,

♦ the date of a kidney transplant, as reported on a CMSor UNOS transplant form, a Medical Evidence form,or a hospital inpatient claim, or

♦ the date of the first Medicare dialysis claim.

Most FSDs are derived from the Medical Evidence form. Inthe absence of this form, the date of the first Medicare dialysisclaim or transplantation usually supplies the FSD. In the fewcases in which the date of the earliest dialysis claim is earlierthan the first dialysis date reported on the Medical Evidenceform, the earliest claim date is used as the FSD.

WHO IS AN ESRD PATIENT?A person is identified as having ESRD when a physician certi-fies the disease on a Medical Evidence form (CMS 2728), orwhen there is other evidence that the person has received chronicdialysis or a kidney transplant. Patients who experience acuterenal failure and are on dialysis for days or weeks, but whosubsequently recover kidney function, are, as much as pos-sible, excluded from the database. Patients who die soon afterkidney failure without receiving dialysis treatment are occa-sionally missed.

INCIDENCE & PREVALENCEIncidence is defined as the number of people in a populationnewly diagnosed with a disease in a given time period, typi-cally a year, while prevalence is the number of people in apopulation who have the disease at a given point in time (pointprevalence) or during a given time period (period prevalence).The USRDS generally reports point prevalence—the type ofprevalence used primarily throughout the ADR—as of De-cember 31, while period prevalence is reported for a calendaryear. Annual period prevalent data thus consist both of peoplewho have the disease at the end of the year and those who hadthe disease during the year and died before the year’s end.Please refer to the Getting Started section for further detailson defining incident and prevalent patient cohorts using theUSRDS SAFs.

The USRDS treats successful transplantation as a therapyrather than as a “recovery” from ESRD. Patients transplantedat the time of ESRD initiation are counted as incident patients,while those with a functioning transplant are counted as preva-lent.

Because data are available only for patients whose ESRDtherapy is reported to CMS, patients who die of ESRD beforereceiving treatment or whose therapy is not reported to CMSare not included in the database. The terms incidence andprevalence are thus qualified as incidence and prevalence ofreported ESRD. Some ESRD registries, such as the EuropeanDialysis and Transplantation Association, use the term “ac-ceptance into ESRD therapy.” The USRDS, however, believesthat “incidence of reported ESRD therapy” is more precise,because “acceptance” implies that remaining patients are re-jected, when in fact they may simply not be identified as ESRDcases or may not be reported to CMS.

Point prevalence is a useful measure for public health research,since it measures the current burden of the disease on thehealth care delivery system, and period prevalence is appro-priate for cost analysis, since it indicates the total disease bur-den over the course of the year. We have chosen, however, tofocus primarily on the incidence of ESRD, believing that it isthe most useful measure for medical and epidemiological re-search that examines disease causality and its effect on differ-ent sub-populations.

MEDICARE & NON-MEDICARE (‘ZZ’) PATIENTSBeneficiaries are enrolled in Medicare based on criteria de-fined in Title XVIII of the Social Security Act of 1965 and in


subsequent amendments to the Act. A person in one of thesefour categories is eligible to apply for Medicare entitlement:

♦ Aged 65 and over♦ Disabled♦ ESRD program♦ Railroad Retirement Board (RRB)

Most ESRD patients are eligible to apply for Medicare as theirprimary insurance payor. There are, however, some patientswho are not immediately eligible for Medicare coverage asprimary payor because of their employment status and pre-existing primary insurance payors such as Employer GroupHealth Plans (EGHPs), the Department of Veteran Affairs,and private insurers. Typically they must wait 30 to 33 monthsbefore becoming eligible to have Medicare as their primarypayor, and are therefore not in the EDB database during thiswaiting period. Some of these patients, particularly new pa-tients since 1995, have FSDs established by Medical Evidenceforms, but have no dialysis claims or hospitalization events inthe CMS claims database to establish any kind of treatmenthistory events. In the PMMIS/REBUS database these patientsare designated ‘ZZ,’ or non-Medicare (the PMMIS/REBUSgroup assigns ‘ZZ’ in the two-character Beneficiary Identifi-cation Code field to identify all non-Medicare ESRD patients).CMS does not generally include these patients in the datasetsreleased to researchers.

The USRDS recognizes that ‘ZZ’ patients are true ESRD pa-tients, and should therefore be included in patient counts forincidence, prevalence, and treatment modality. Calculationsof Standardized Mortality Ratios (SMRs), Standardized Hos-pitalization Ratios (SHRs), and Standardized Transplanta-tion Ratios (STRs), however, should not include these patientsbecause of the small number of claims available in the first30–33 months after their first ESRD service. Furthermore, itmay or may not be possible to link ‘ZZ’ patients to their ESRDDeath Notification forms (CMS 2746) or to the UNOS trans-plant data, and it may be impossible to determine comorbidconditions or Part A and Part B services. Due to the limitedavailability of event data, event rates that include these pa-tients must be assessed with caution.

In order to duplicate the methods used by the previous USRDScontractor we have elected to include ‘ZZ’ patients in the mor-tality rate calculations for this report. We intend to collabo-rate with CMS and other interested renal researchers toestablish, for future reports, a consistent approach to man-aging the data for these patients.

SECTION 3 ·TREATMENT HISTORYIntegral to any analysis of ESRD data is the individual patient’streatment history. Once a person reaches ESRD, renal replace-ment therapy (dialysis or kidney transplantation) must beprovided indefinitely to sustain life. Since most ESRD patientsbecome eligible for Medicare coverage after 90 days of ESRD,the CMS ESRD database contains billing information for these

patients. This section describes how this information is usedto create a longitudinal history of ESRD treatment for eachpatient in the database. This history is essential in definingincident and prevalent cohorts and determining censoringpoints and outcomes for observational studies.

DATA SOURCESTo establish the date of first ESRD service we evaluate infor-mation in several data sources. REBUS contains the first ESRDservice date in its identification record in the Medical Evidencerecord. The REBUS Quarterly Dialysis record is a summaryof dialysis billing information, and can also be used to estab-lish first ESRD service date in the event of missing data inother files. Finally, information on the first service date forincident transplant patients is obtained from the UNOS trans-plant dataset. Data from these sources is combined to estab-lish the first ESRD service date. Please refer back to Section 2for the decision algorithm used to determine the first servicedate.

TREATMENT MODALITY CATEGORIESTable 3.1 shows the various modality categories used by theUSRDS. Modality categories can be described as detailed orgeneral. For most analyses the general categories, in whichdetailed modality categories are combined, are used to depictthe patients’ treatment modalities in the study cohorts.

Modality Type Detailed Modality General Modality1 Center Hemodialysis Hemodialysis 2 Center Self Hemodialysis Hemodialysis 3 Hemodialysis Training Hemodialysis 4 Home Hemodialysis Hemodialysis 5 CAPD CAPD6 CAPD Training CAPD7 CCPD CCPD8 CCPD Training CCPD9 Other Peritoneal Dialysis Unknown DialysisA Uncertain Dialysis Unknown DialysisT Functioning Transplant Transplant X Lost to followup Lost to followupD Death Death

Table 3.1Treatment Modality Categories

Table 3.2Treatment History SAFsvariables in treatment history SAFs

RXHIST Detailed Treatment HistoryUID USRDS Patient IdentificationBEGDATE Beginning date of a modality periodENDDATE Ending date of a modality periodBEGDAY Start day of modality period (First Service Date=1)ENDDAY End day of modality period (First Service Date=1)RXDETAIL Detailed treatment modality for periodRXGROUP Grouped treatment modality for periodPROVUSRD USRDS assigned facility identificationRXHIST60 Condensed Treatment HistoryUID USRDS Patient IdentificationBEGDATE Beginning date of a modality periodENDDATE Ending date of a modality periodBEGDAY Start day of modality period (First Service Date=1)ENDDAY End day of modality period (First Service Date=1)RXGROUP Grouped treatment modality for period

26 Sections 1-8h

HOW TREATMENT MODALITY IS DETERMINEDThe treatment history files in the USRDS Core CD record thesequence of modalities for each patient. The variables includedin these files are presented in Table 3.2. Each record in the fileindicates a period of therapy of a given modality, and anychange in provider or detailed modality results in a new record.A number of data sources are used to determine the treat-ment history, including the Medical Evidence file, the Quar-terly Dialysis file, the UNOS Transplant events, and Medicareclaims files. In constructing this treatment history file, a num-ber of conventions are followed:

♦ The sequence always begins with the first ESRD servicedate and ends with the death date or the end of theperiod for which the data are complete, whichever isearliest. For some modalities and outcomes—death,loss-to-followup and functioning transplant—the enddate may be missing from a patient’s last record. Dialy-sis categories, in contrast, will always have an end date.

♦ Death is treated as the last event of the day, and is theabsolute end point of the treatment history.

♦ If two dialysis billing periods overlap, the earlier one is

Table 3.3Example of Detailed vs

Condensed Treatment History

RXHISTUSRDS ID BEGDATE ENDDATE RXDETAIL PROVUSRD900000001 1/1/1991 1/31/1991 Center HD 5900000001 2/1/1991 5/31/1991 Center HD 7900000001 6/1/1991 6/31/1991 CAPD training 14900000001 7/1/1991 1/31/1992 CAPD 14900000001 2/1/1992 9/30/1992 Center HD 5900000001 10/1/1992 10/15/1992 CAPD 14900000001 10/17/1992 5/31/1993 Center HD 5900000001 6/1/1993 7/15/1993 Transplant 23900000001 7/16/1993 2/12/1995 Center HD 5900000001 2/13/1995 1/31/1996 Center self HD 5900000001 2/1/1996 2/29/1996 HD training 5900000001 3/1/1996 2/12/1997 Home HD 5900000001 2/13/1997 DeathRXHIST60UID BEGDATE ENDDATE RXGROUP900000001 1/1/1991 5/31/1991 Hemodialysisa

900000001 6/1/1991 1/31/1992 CAPDb

900000001 2/1/1992 5/31/1993 Hemodialysis c

900000001 6/1/1993 7/15/1993 Transplant d

900000001 7/16/1993 2/12/1997 Hemodialysis e

2/13/1997 Death

aThe first two records are combined because the only difference is a provider change.bThe next two records are combined because they are both the same general modality category.cThe combination of three records resulting from the application of the 60-day rule because the middle (CAPD) record is only 15 days. dAlthough this modality lasts only 45 days, the 60-day rule does not apply because the modality is transplant.eThe combination of 4 records is because the detailed modalities are all within the general modality category.

Table 3.4Reasons for Gaps in

Dialysis HistoriesReason DefinitionDelayed eligibility The first service date may be known from the Medical Evidence Form, but many ESRD

patients must wait 90 days to become Medicare eligible. Consequently, billing data for

modality determination will be delayed.

Other Insurance / Medicare as

Secondary Payor

Many patients have some form of medical insurance other than Medicare, in which case

Medicare becomes the secondary payor for up to 33 months starting from the first day of

ESRD. Once again, we may know the first service date from the Medical Evidence form, but

will see no dialysis billing data until Medicare becomes the primary payor.

Recovery of Renal Function Some patients may recover enough renal function that they can discontinue dialysis. The

USRDS database contains no data that can be used to indicate such recovery.

Patient left the country

Patient died, but death data did

not reach the USRDS.

Different billing methods There are two methods for billing for self-dialysis treatments, one of which may not be

captured by the CMS PMMIS/REBUS system. Thus some home dialysis billing may be

missed.

Patients in MCOs In some cases dialysis bills for patients enrolled in Managed Care Organizations (MCOs)

also may not be captured by the CMS billing system.

Errors in First Service Date The person completing the Medical Evidence form may report the first-ever dialysis rather

than the start of maintenance dialysis. In addition, there may be clerical or data entry

errors in the first dialysis date. Acute dialysis may be confused with maintenance dialysis,

and so forth.

Errors in beneficiary ID May cause data for a patient to be split between two unique patients or to be associated

with the wrong patient.


terminated at the start of the later one. If a dialysisbilling period is entirely contained within another bill-ing period, then the contained period is ignored.

♦ A functioning transplant is considered a treatment forrather than recovery from ESRD.

♦ If a dialysis billing period overlaps a transplant date,the dialysis period is closed at the transplant date.

♦ Transplant failure is determined from a variety of data,as described below. If a transplant failure is recorded inthe database, but there are no records of dialysis oranother transplant for a time after the failure, a periodof “unknown dialysis” is inserted to account for thisperiod. If dialysis billing records or another transplan-tation do not appear within one year of a transplantfailure the patient is designated as lost-to-followup atthe end of that year, and this status continues untildialysis records (or records of another transplant) ap-pear.

♦ Once a modality is established, that modality is as-sumed to continue until a change in provider or de-tailed modality occurs. In the case of dialysis patients, ifno new dialysis billing data is found for a period of oneyear, the patient is reclassified as lost-to-followup atthe end of that one-year period.

♦ A functioning transplant is assumed to continue untilthere is an indication of transplant failure or death, orevidence of regular or maintenance dialysis runs.

TRANSPLANT FAILUREWe generally assume that the graft failure date reported in theUNOS transplant followup file or the REBUS Identificationfile is correct unless death or a new transplant occur beforethis date. It is possible, however, for a transplant failure dateto go unrecorded in both files. In the absence of a transplantfailure date, the USRDS derives the transplant failure datefrom the following sources:

♦ Date of death♦ Date of subsequent transplant♦ The date of return to regular dialysis, indicated by a

continuous period of dialysis billing records covering aminimum of 60 days with at least 22 reported dialysistreatments

♦ The date of return to dialysis reported on the MedicalEvidence form, or the date of graft nephrectomy fromeither the UNOS transplant followup record or a Medi-care claim

♦ If no failure date is available, then the earliest of theabove dates is used as the transplant failure date

THE 60-DAY COLLAPSING RULEWe have adopted the convention that a dialysis modality mustcontinue for at least 60 days in order to be considered stable.A transplant is considered a stable modality regardless ofduration.

Because the dialysis treatment history is derived from theMedical Evidence form, UNOS transplant events, and Medi-care billing records, there are a great number of intermixedand overlapping details, many of which are not required in orsuitable for most analyses. A long period of CAPD, for ex-ample, may be interrupted by a short period of inpatienthemodialysis treatment, or a patient may go on vacation andreceive dialysis at a different provider. By applying the 60-dayrule we collapse short (<60 days) modality periods and peri-ods that differ only by provider, providing a less complextreatment history for analyses that do not require the level ofdetail available in the detailed treatment history. In order toprovide maximum flexibility, we provide two treatment his-tory files, one with full detail (RXHIST), and one with the 60-day collapsing rule applied (RXHIST60). An example of thesetwo files and how they differ is provided in Table 3.3. The 60-day file is constructed from the detailed file as follows:

♦ Consecutive records with the same modality group arecollapsed into a single record. This removes changes ofprovider only, as well as changes between detailed mo-dalities within the same general modality group.

♦ Any remaining modality periods (except functioningtransplant) of less than sixty days are recoded as un-certain dialysis, and consecutive dialysis records labeled“uncertain” are combined.

♦ In the case of a modality interrupted by a period with adifferent modality that lasts fewer than 60 days (forexample, a short period of peritoneal dialysis betweentwo longer periods of hemodialysis), the short modal-ity period is ignored while the current modality extendover the entire period.

DETERMINING LOST-TO-FOLLOWUP PERIODSThe dialysis billing data upon which the modality periods arebased frequently contain gaps, as listed in Table 3.4. For apatient with a functioning transplant, the modality is assumedto continue until a graft failure is encountered. A dialysis mo-dality, in contrast, is assumed to continue for a maximum ofone year in the absence of dialysis billing data or other confir-mation that dialysis therapy is being provided. After one yearwith no dialysis billing data, the patient is classified as lost-to-followup until a new modality occurs. Patients cannot, how-ever, be classified as lost-to-followup during the first threeyears of ESRD, because Medicare may be the secondary payorfor up to thirty-three months of ESRD, therefore delaying theappearance of dialysis billing data.

28 Sections 1-8h

SECTION 4·PAYOR HISTORYThe payor history file is similar to the treatment history file.This section describes how CMS payor information is usedto create a continuous sequential history of payors for eachpatient in the ESRD database, beginning with the first servicedate.

DATA SOURCESThe first ESRD service date used for each patient in the payorfile is the same first service date reported in the treatmenthistory file. The payor for any given time period is deter-mined by evaluating several data sources. We use the EDB(Enrollment DataBase) from CMS for Part A, Part B, GroupHealth Organization, MSP Primary Payor, Third Party PartA, and Third Party Part B. In addition, we obtain informa-tion from the CMS claims billing files regarding dates of regularmaintenance dialysis, as an indicator of Medicare as the pri-mary payor. Date of death is obtained from the “patients” filein the Core CD and is used to help establish the end point ofthe sequence of payors.

PAYOR CATEGORIESTable 4.1 shows the various payor categories used by theUSRDS. In addition to the category, we include an indicator asto whether the ESRD patient with the specific payor is consid-ered as a Medicare patient.

HOW THE PAYOR CATEGORY IS DETERMINEDThe payor history SAF in the USRDS Core CD records thesequence of payors for each patient. The variables included inthese files are presented in Table 4.2. Each record in the filerepresents a period covered by a particular payor, and anychange in payor results in a new record.As described earlier, a number of data sources are used todetermine the payor history and there may be more thanone payor reported for any given time period. In construct-ing the history, the following conventions are followed:

♦ The sequence begins with the first ESRD service date. Ifthe patient has died, the end date for the last patientrecord will be the date of death. If the patient has notdied, the end date will be missing from the patient’s lastrecord.

♦ If the payor on the first service date is unknown, andthe unknown time period lasts for up to and including180 days (6 months) prior to the payor for the nextperiod, the initital payor is assumed to be the same asthe payor for the following period.

♦ If the reported end date for a payor is missing in thedata source, it is assumed that the payor continues shar-ing responsibility through the date of death or throughthe period of available payor information, whichevercomes first.

♦ If more than one payor is identified for a time period,and one of them is MSP, the payor for the period isassumed to be MSP.

♦ If more than one payor is identified for a time period,and one of them is HMO, the payor for the period isassumed to be HMO. (If both HMO and MSP are indi-cated, MSP takes precedence.)

♦ If consecutive payor sequences have the same payor,they are collapsed into one period, starting with thebeginning date of the first period and ending with theend date of the last period.

♦ Unlike the treatment history file, there is no require-ment that a payor continues for any specific time pe-riod in order to be considered stable. Therefore allchanges in payor are reported. It is up to user’s owndiscretion to apply additional rules in managing thepayor history sequence.

GAPS IN PAYOR HISTORIESSome patients may have a payor history that includes gapswhere the payor is “Other/Unknown,” between sequenceswith payors identified. There are several reasons this mightoccur, similar to the possible reasons for gaps in the treat-ment history:

♦ Recovery of renal function: Some patients may re-cover enough renal function that they can discon-tinue dialysis. The USRDS database may contain nopayor information (i.e. Other/Unknown payor) onthose instances.

♦ Successful transplant: A transplant patient may nothave payor information reported in the data sourcesdue to the termination of Medicare eligibility afterthree years of a functioning graft.

♦ The patient may have left the country and subse-quently becomes lost-to-followup.

Category Code

Category Description

Medicare Indicator

(Y/N)MED Medicare Y

MM Medicare and

Medicaid

Y

MSP Medicare as

Secondary Payor

Y

HMO Group Health

Organization

Y

OTH Other/Unknown N

Table 4.1Payor Categories

Variable Description

USRDS_ID USRDS Patient Identification

BEGDATE Beginning date of a payor period

ENDDATE Ending date of a payor period

PAYOR Payor for the period

MCARE Indicator as to whether payor

includes Medicare (Y/N)

Table 4.2Payor HistorySAF Variables


♦ The USRDS may not have received data on thepatient’s death.

♦ Payor information was not captured by CMS.♦ Errors in first service date: Errors in reporting, as

well as clerical or data entry errors, may confuse therecord of first service date, and consequently the cor-responding payor.

♦ Errors in patient identification: May cause data for apatient to be split between two unique patients or tobe associated with the wrong patient.

If a patient is alive, but the last reported payor in the datasources terminates at a specific end date before the reporteddata extraction date, we create an additional payor sequencewith “Other/Unknown” payor to extend the patient’s payorhistory. Thus, the only patients with a finite end date in theirlast payor sequence will be those who have died. In this casethe last end date is the date of death.

There are some patients for whom no payors have been iden-tified at all, and the payor history for these patients is repre-sented in the file as a single payor sequence, starting at the firstESRD service date, with a missing end date, and a payor of“Other/Unknown.”

SECTION 5·TRANSPLANT PROCESS & OUTCOMESTransplant patients constitute a unique subset of the ESRDpopulation and are often studied separately from dialysispatients. Researchers may wish to simply count the numberof transplant events that meet certain criteria, or calculatetransplant event rates and survival probabilities. Using theUSRDS transplant data, researchers can obtain informationon both transplant events, such as donor and recipient char-acteristics, and patient- and graft-related outcomes.

DATA SOURCESBasic transplantation variables are contained in the Trans-plant file on the Core CD. Transplant event data are com-bined from various sources including CMS (PMMIS/REBUSfiles) and UNOS. Prior to 1988, CMS was the primary sourcefor all transplant event data. Between 1988 and 1993, bothCMS and UNOS collected information regarding transplantevents. Since 1994, UNOS has been the primary source for alltransplant event data (see figure 5.1).

RECONCILIATION OF CMS & UNOS TRANSPLANTEVENTSThe USRDS has implemented a decision algorithm that rec-onciles identical transplant events when multiple sources con-tain conflicting information.

♦ Prior to 1988, all transplant events found in CMSPMMIS/REBUS Transplant files are used.

♦ After 1994, all transplant events found in the UNOSfiles are used.

♦ Between 1988 and 1993, all transplant events found inthe UNOS files are used while additional transplantevents are taken from the CMS PMMIS/REBUS trans-

plant file only if they occur at least 30 days (either side)of a previously accepted transplant event.

♦ Additionally, transplant events associated with the re-ported incident transplant patients in the Medical Evi-dence form (CMS-2728) are taken if they also occur atleast 30 days (either side) of a previously accepted trans-plant event.

♦ The transplant events found in the Transplant file ofthe Core CD are thus all unique events that the USRDSbelieves occurred after reviewing both UNOS and CMSPMMIS/REBUS Transplant and Medical Evidencerecord files.

Table 5.1 details the various USRDS SAFs related to trans-plantation. The transplant file on the Core CD contains trans-plant dates, basic descriptive data, and causes of graft failure,when known.

KIDNEY & PANCREAS WAIT-LISTThe Core CD also contains four new files with informationon the kidney and simultaneous kidney-pancreas waitinglist files from UNOS.Most investigators are simply interested in the dates of listingat specific transplant centers. The WAITSEQ_KI andWAITSEQ_KP files contain entry and removal date sequencesper patient per transplant center for the kidney alone andsimultaneous kidney-pancreas waiting lists, respectively. Theserecords are collapsed from the raw UNOS waiting list filesWAITLIST_KI and WAITLIST_KP. Both the raw UNOS wait-ing list files and the sequence files contain two patient identi-fiers, PID and USRDS_ID. Patients who are ESRD patientsand are contained in the USRDS patient profile have aUSRDS_ID. PID is the UNOS patient identifier and can beused to link the sequence files to the raw waiting list files. Sincethe sequence files are collapsed versions of the waiting listfiles, investigators should use caution when linking back tothe raw waiting list files to pull information such as PRAvalues. Investigators will need to pull all raw waiting list recordsand then make decisions as to which record contains the in-formation most relevant to their needs. Some specific assump-tions we used to collapse waiting list records are as follows:

♦ Candidates listed in error were removed(REMCODE=10).

♦ Patients with missing listing dates (EDATE=) were re-moved.

♦ Patients with listing and removal dates on the samedate were removed.

♦ Transplant dates were taken from the USRDS Trans-plant file and not from the UNOS waiting list file. Thetransplant dates on the USRDS Transplant file arecleaned and reconciled with other sources of data, sothese dates were used to ensure consistency. In the eventthat a patient not known to the USRDS received a trans-plant, the UNOS transplant date found in the raw wait-ing list file was used.

♦ Known transplant dates were used to truncate waiting

30 Sections 1-8h

periods at all centers for which a patient is currentlylisted. For example, if a patient was transplanted butnot removed from a center's waiting list, a removaldate would be imputed for that patient on the trans-plant date. This is true for all centers at which a patientis listed.

♦ Patients with inactive waiting periods were removed.Therefore the waiting list sequence only lists active wait-ing periods.

♦ Overlapping waiting periods at the same center werecollapsed.

TRANSPLANT CDTo obtain additional data regarding transplant events userswill need the Transplant CD, which contains detailed infor-mation, in separate files, from both CMS and UNOS. (Asstated earlier, in the Transplant file on the Core CD we havereconciled the transplant event data from all available sources;as some researchers may find it beneficial to see the trans-plant data obtained from each source we have included themhere.)

Two additional USRDS transplant files contain data collectedby both CMS and UNOS on transplant followup visits. Thefollowup records in SAF.TXFUHCFA and SAF.TXFUUNOSoverlap in time, especially during 1988–1993, and contain in-formation collected on patients during followup visits typi-cally done at six months, one year, and yearly thereafter.

The TXIRUNOS & TXIFUNOS files contain information onimmunosuppression treatment. Data in these files are fromthe Immunosuppression Treatment (TXIRUNOS) and Im-munosuppression Treatment Followup (TXIFUNOS) forms.TXIRUNOS contains data on treatments at the time of trans-plantation, while TXIFUNOS contains data on treatmentsupdated at each followup visit if available.

Researchers are cautioned that each file on the Transplant CDshould be considered a separate analytical file. Attempting tocombine information from various files involves reconcilinginformation across files.

ESRD Data Forms contains copies of the CMS and UNOSdata collection forms. To provide a cross-reference betweenthe data file and the form, the SAS variable labels (shown inData File Descriptions) indicate, whenever possible, the ques-tion number from the form. A label of PM7694, for example,indicates that the variable can be found on the PMMIS from1976–1994. If the question number on the form did not changeover time, this number is also indicated in the label. PM819421bindicates question 21b on the PMMIS form collected between1981 and 1994. Variables from the UNOS followup forms arelabeled using section A-M, letters assigned by the CC since theform does not contain question numbers (see ESRD DataForm section). Table 5.2 gives details regarding these labels.

Most descriptive data on transplant events can be found in

the Core CD’s Transplant file, which can be used to constructcounts of various transplant-related events. Transplant ratescan be constructed by combining transplant data with a pa-tient treatment history file, either RXHIST or RXHIST60; ratesin the ADR are typically calculated using RXHIST60, the treat-ment history file with the 60-day rule built in. Transplantsurvival, both graft and patient, can be calculated using thetransplant failure date found in the Transplant file and thedate of death found in the PATIENT file.

SECTION 6 ·MORBIDITY & HOSPITALIZATIONMorbidity associated with ESRD can be determined from in-formation on hospitalizations and acute events, both docu-mented in Medicare claims files through ICD-9-CM(International Classification of Diseases, 9th Revision, ClinicalModification) and CPT (Current Procedural Terminology)codes. The USRDS provides data on inpatient admissions,discharges, and diagnosis and procedure codes, which maybe used to produce different types of hospitalization rates,such as first hospitalization, total admission, and hospitalday rates.

DATA SOURCESInpatient hospitalization data, a subset of the data in the In-stitutional Claims file, are included in the HOSP data file.These data originate from the Part A institutional inpatientclaims data and are supplemented by the REBUS inpatientdata, for hospitalizations may appear in both sources or inone but not the other. The patient treatment history file(RXHIST or RXHIST60) provides the patient modality treat-ment history, which may be used to construct hospitalizationrate data, while demographic data is obtained from the PA-TIENTS file.

CONTENTS OF THE HOSP FILEWhile a complete list of variables within the HOSP file can befound in Data File Descriptions, the following list outlinessome of the key variables:

♦ HCFASAF: indicates the data source of the claim.♦ CLM_FROM: provides the from date of service, indi-

cating the admission date.♦ CLM_THRU: provides the through date of service, in-

dicating the date of discharge.♦ HSDIAG1-HSDIAG10: provide up to 10 ICD-9-CM

diagnosis codes.♦ HSSURG1-HSSURG10: provide up to 10 ICD-9-CM

procedure codes.♦ DRG_CD: provides diagnostic-related group (DRG)

codes, which categorize inpatient stays by ICD-9-CMdiagnosis and procedure codes.

♦ PRIMDIAG: equals “YES” when HSDIAG1 provides theprincipal diagnosis code.

PREPARING INPATIENT CLAIMS DATA FOR USEData being prepared for analyses first need to be cleaned, with


overlapping hospitalizations for the same patient combinedinto one. The principal diagnosis and procedure codes fromthe first of the two overlapping hospitalizations should beretained, with the combined hospitalization extending fromthe first admission date to the last discharge date.

To create a dataset to calculate rates for period prevalent pa-tient cohorts, data for hospitalizations occurring during theselected year should be attached by patient UID to a periodprevalent cohort file for the year. In this way, all patients in thefile, including those with multiple hospitalizations and those

Figure 5.1Source of Transplant Events inthe USRDS Database.

1988 19941976

CMS is the primary source of

transplant event data

Both CMS and UNOS

collect transplant event data

UNOS is the primary source of transplant

event data

• All transplants from CMS data are taken

• All transplants from UNOS data are taken

• All UNOS transplants are taken

• Additional transplant events found in CMS data are taken if they occur at least 30 days (either side) of an event found in the UNOS data.

Transplant File Data Source File Contains Years CD

WAITLIST_KI,

WAITSEQ_KI,

WAITLIST_KP, &

WAITSEQ KP.

UNOS Transplant Waiting List Waitlist periods on all patients

from UNOS

≥ 1988 Core

TXHCFA CMS PMMIS/REBUS Transplant file Details from CMS 1976-1993 TxTXUNOS UNOS Transplant file Details from UNOS ≥ 1988 TxTXFUHCFA CMS PMMIS/REBUS Transplant following file Followup details from CMS ◊ν1988 TxTXFUUNOS UNOS Transplant Followup file Followup details from UNOS ≥ 1988 Tx

All years CoreTX Constructed by USRDS Coordinating Center; UNOS and CMS

PMMIS/REBUS Transplant and Medical Evidence files

Identifying data on all

transplants we know about

Table 5.1USRDS Transplant Files

Table 5.2Variable Label Prefixes for Transplant CD SAFs

Transplant File Variable Label Prefix Prefix Definition

TXHCFA TXPM7681 From CMS form used between 1976 and 1981.

TXPM8194 From CMS form used between 1981 and 1994.

TXPM7694 Appears on all CMS forms, 1976-1994.

TXPM819421b CMS form used between 1981 and 1994, question 21b.

TXUNOS TCR Transplant Candidate Registration Form

CDR Cadaveric Donor Registration Form

LDR Living Donor Registration Form

DH Donor Histocompatibility Form

RH Recipient Histocompatibility Form

KIR Kidney Transplant Recipient Registration Form

KIR Kidney Transplant Recipient Registration Form

TCR55 Transplant Candidate Registration Form, question 55

TXFUHCFA TFU From CMS form used prior to 1994

TXFUUNOS UNOS A-M UNOS form; sections A-M indicated by the USRDS CC

32 Sections 1-8h

selected year should be attached by patient UID to a periodprevalent cohort file for the year. In this way, all patients in thefile, including those with multiple hospitalizations and thosewith none, are included in the rate calculation. Data in whichthe 90-day rule has been used to define patient start datesshould be used. The 90-day rule defines each patient’s startdate as day 91 of ESRD, to avoid incomplete hospitalizationdata from center hemodialysis patients younger than 65 andnot disabled, who cannot bill Medicare until 90 days aftertheir first ESRD service date. To calculate rates by patient char-acteristics, demographic data may be attached to the datasetby patient UID from the PATIENTS file.

Because hospitalization data are incomplete for non-Medi-care patients and patients classified as Medicare as secondarypayor (MSP), it is best to exclude these patients and therebylimit their contribution of patient years at risk. One methodof MSP patient exclusion used in the ADR hospitalization ratecalculation involves excluding dialysis patients who fail to reacha certain level of Medicare paid dialysis bills. Dialysis patientstart dates (January 1 of the year for prevalent patients andday 91 of ESRD for incident patients) must fall between startand end dates based on Medicare paid dialysis claims as fol-lows:

♦ Claims start date: the first day of the first month inwhich there is at least $675 of Medicare paid dialysisclaims.

♦ Claims end date: the end of a three-month period inwhich there is less than $675 of paid claims in eachmonth.

If a patient’s start date does not fall between the claims startand end dates, he or she is excluded from the analysis for thatyear.

UNADJUSTED VS. STABILIZED HOSPITALIZATIONRATESHospitalization rates may be computed as raw, unadjustedrates, or as model-based rates. While the calculation of rawrates is fairly straightforward, caution is needed when inter-preting raw rates because they may be unstable for smallpatient groups. In the case of unstable raw rates, a pooled rate(comprised of data from several combined years) or a model-based rate may be more appropriate.

Statistical modeling is used to produce stabilized rates, pre-venting instability of raw rates in groups with small samplesizes and few patient years at risk. Current USRDS methodol-ogy for computing total admission and hospital day ratesuses a generalized linear model with log link and Poisson dis-tribution. Calculation of raw rates is described below, andmethods of calculating raw and model-based rates are de-scribed in further detail in the Statistical Methods section.

COMPUTATION OF UNADJUSTED RATESPER PATIENT YEARUnadjusted first admission, total admission, and hospital day

rates can be computed for period prevalent patients for se-lected years. For each year the unadjusted rates can be calcu-lated as the total events divided by the total time at risk. Theserates can also be pooled to increase stability, but followup isfor single calendar year periods using cohorts of patients aliveat the beginning of each year. The number of events and thenumber of years at risk for each event are computed sepa-rately for each year and summed over the pooled years; ratesare then computed by dividing the total admissions or daysby the total time at risk. Rates may be expressed per patientyear or per 1,000 patient years at risk.

For patients in the all-dialysis, hemodialysis, and peritonealdialysis categories, the period at risk for all hospitalizationanalyses is from January 1 or day 91 of ESRD until the earliestof death, three days prior to transplant, or December 31st.Modality change is considered a censoring event only in thecase of a change from dialysis to transplant. For dialysis pa-tients in the all-ESRD category, in contrast, the analysis pe-riod for hospitalization is censored only at death or December31st of the year; modality change is not used as a censoringevent. For transplant patients in the all-ESRD and transplantcategories, the analysis period is censored at the earliest ofdeath, three years following the transplant date, or December31st of the year. The censoring of transplant patients at threeyears following the date of transplant is necessary becauseMedicare eligibility may be lost and hospitalization data maybe incomplete for these patients.

In the case of a hospitalization that begins prior to January1st or day 91 of ESRD and continues into the analysis year, thetime at risk for first admission begins the day of dischargefrom this bridge hospitalization. Patients with bridge hospi-talizations that span the entire analysis period are excludedfrom the first admission rates.

Time at risk is calculated differently for length of stay and fortotal admissions. Since a hospitalized patient remains at riskfor additional days in the hospital, rates for hospital daysinclude hospital days in the time at risk. But because thiscurrently hospitalized patient is not, however, at risk for addi-tional admissions, hospital days for each year are subtractedfrom the time at risk for total admissions. In the case of hos-pitalizations in which admission occurs the same day as dis-charge, zero days are subtracted from the time at risk for totaladmissions. When bridge hospitalizations span the start ofthe analysis period, only the days within the period are sub-tracted from the time at risk for total admissions.

All admissions and hospital stay days that occur during theanalysis period are included, respectively, in the total admis-sions and length of stay for each year. Admission for a hospi-talization that occurs before and spans the start of the analysisperiod is excluded from the total admissions for that analysisperiod, and only the hospitalization days within the periodare counted in the total days for length of stay rates. Theminimum length of stay is one day, and hospitalizations withadmission and discharge on the same day, as well as hospital-


izations with discharge the day after admission, are bothcounted as one day.

CAUSE-SPECIFIC UNADJUSTED RATESPER PATIENT YEARCause-specific hospitalization rates may be computed bycounting only hospitalizations with selected principal ICD-9-CM diagnoses or procedure codes. In the denominator of therate, the time at risk is computed similarly as described abovefor total admission rates. However, in the numerator, onlyhospitalizations with specified principal diagnosis or proce-dure codes are counted in the total cause-specific admissions.For example, principal procedure ICD-9-CM codes of 37.21,37.22, and 37.23 can be used for heart catheterization.

UNADJUSTED RATES PER PATIENTInstead of calculating rates per patient year at risk, rates ofhospital days and total admissions may also be calculated perpatient. For a selected year, the numerator remains the totalnumber of events, while the denominator is the total numberof period prevalent patients for the year. These rates per pa-tient are, however, susceptible to bias because they do notconsider the actual length of time that a patient is at riskduring the year. For example, a greater number of patientswho are at risk for only a fraction of the year may producesmaller rates.

SECTION 7 ·SURVIVAL & MORTALITYSurvival and mortality analyses are often used to compareoutcomes among treatment modalities, age groups, or races,or to evaluate outcome trends over time. Results can be re-ported for both incident and prevalent cohorts for the fol-lowing groups: all-ESRD patients, all dialysis patients, allhemodialysis patients, all peritoneal dialysis patients, all trans-plant patients, or all ESRD patients aged 65 and over. Primaryanalyses include unadjusted survival probabilities using theKaplan-Meier method, adjusted survival probabilities usingthe Cox regression model, unadjusted death rates by cause ofdeath, adjusted death rates, and adjusted interval death rates.

DATA SOURCESThese survival and mortality analyses require patient demo-graphic information (such as age, gender, race, primary causeof ESRD, death date, and cause of death) and treatment mo-dality history data, which can be obtained from the USRDSCore CD files PATIENTS and RXHIST or RXHIST60.

UNADJUSTED FIRST-YEAR SURVIVAL PROBABILITIES:INCIDENT PATIENTSFirst-year survival probability is the probability of survivingfrom day 91 after onset of ESRD to one year plus 90 days(days 91-455). This 90-day delay is necessary because manypatients younger than 65 years old do not become eligible forMedicare for up to 90 days, and their data may not be com-plete for this period. The survival probability can be esti-mated for patient characteristics including age on the firstESRD service date, race, gender, and primary cause of ESRD.Age, race, and primary cause of ESRD can be broken down

into groups as needed. The Kaplan-Meier method for calcu-lating the unadjusted first-year survival probability is de-scribed later in Statistical Methods.

ADJUSTED FIRST-YEAR SURVIVAL PROBABILITIES: IN-CIDENT PATIENTSThe adjusted first-year survival probability from day 91 canbe estimated using the Cox regression model, and can becalculated for patient characteristics including age on the firstESRD service date, race, gender, and primary cause of ESRD.Age, race, and primary cause of ESRD can be broken downinto groups as needed. To avoid excessive imprecision of theestimated survival probabilities due to small cell sizes, theseprobabilities can be calculated using aggregate categories forage, gender, race, and primary cause of ESRD, with a prob-ability calculated for groups defined by one of these variablesadjusted for the remaining three. Overall probabilities for allpatients can be adjusted for each of the four variables. TheCox regression model for calculating adjusted first-year sur-vival probability is described later in the Statistical Methods.

ADJUSTED FIRST-YEAR DEATH RATES: INCIDENT HE-MODIALYSIS COHORTSAdjusted first-year death rates for incident cohorts can beestimated using a Cox model. These death rates are presentedusing aggregate categories for age, gender, race, and primarycause of ESRD (e.g. diabetes, hypertension, glomerulonephri-tis, and other). A death rate estimated for one of these vari-ables is adjusted for the remaining three; overall death ratesfor all patients are adjusted for each of the four variables. Themethod for calculating these death rates is also described inStatistical Methods.

UNADJUSTED DEATH RATES: PERIOD PREVALENTCOHORTSPeriod prevalent cohorts include patients who are prevalentat a point in time (e.g. January 1, 2001) and those who be-come incident during a time period (e.g. 2010). The cohortthus includes patients alive on renal replacement therapy atthe beginning of the year and whose first service date is at least90 days before the beginning of the year. Incident cohorts arelimited to patients who reach day 91 of ESRD treatment dur-ing the year. The follow-up time is begun on January 1, 2001for prevalent patients and day 91 after the first ESRD servicedate for incident patients, and it is censored at transplant,death, or December 31 of the year. Because these calculationsinclude only one year of followup, a prevalent patient surviv-ing until the end of the year contributes one year at risk. Sincethe calculation for incident patients begins on day 91 of ESRD,most of these patients contribute less than one year; a fullyear is contributed only if day 91 of ESRD is January 1st andthe patient survives until the end of the year.For this cohort, deaths per 1,000 patient years at risk can becalculated using aggregate categories for age, gender, race, andprimary cause of ESRD. The death rate for a specific primarycause of death is obtained by dividing the total deaths fromthe primary cause by total follow-up time. The sum of deathrates for each specific cause is equal to the overall death rate ofthe cohort.

34 Sections 1-8h

STABILIZED ANNUAL DEATH RATES FOR PREVALENTHEMODIALYSIS COHORTSA statistical model is needed to obtain stable annual deathrates for prevalent patients in each aggregate category of age,gender, and primary cause of ESRD. The USRDS currentlyuses a generalized mixed model with log link and Poissondistribution, as described in the Statistical Methods section.When calculating death rates for the 2010 cohort, for example,we used 1998–2010 period prevalent patients— both preva-lent and incident—to improve the stability of rates. The fol-low-up time started on January 1 for prevalent patients andon day 91 after the first ESRD service date for incident pa-tients, and was censored at transplant, death, or December 31of the year.

SECTION 8 ·PROVIDERSThe Facility SAF file is constructed from data supplied by theCMS Annual Facility Survey, the CDC National Surveillanceof Dialysis-Associated Diseases, and the CMS Dialysis FacilityCompare database. Information is for dialysis facilities onlyand the data is at the facility level, i.e., there is no individualpatient level data.

Construction of the Facility SAF file is accomplished by merg-ing the CMS Annual Survey data with the CDC National Sur-veillance of Dialysis-Associated Diseases survey data byprovider number and year. All provider numbers in the Facil-ity SAF file are assigned by the USRDS in an effort to ensuredialysis facility confidentiality and are not the original pro-vider numbers assigned by CMS.

The researcher should be aware that dialysis facilities, overthe course of time, are purchased and sold. In other words, afacility may have the same provider number for a number ofyears, may be purchased by another owner, and may receivea new provider number. The physical facilities may be thesame and staff may stay relativity intact but the providernumber has changed. Thus, a dialysis facility may have thesame USRDS provider number for 5 years, be purchased, andthen receive a new USRDS number when the change is made.The facility can be at the same location and consist of thesame staff but it is not possible to link the two different num-bers.

The researcher should also be aware there are Veteran Ad-ministration providers in the Facility SAF file. BECAUSE THEUSRDS REPLACED THE CMS PROVIDER NUMBER WITHA NEW PROVIDER NUMBER, THEY CANNOT BE SEPA-RATED FROM THE PROVIDER LIST.

If researchers wish to do patient-level studies incorporatingthe Facility SAF file they can link patient information from theDetailed Treatment History SAF file (RXHIST), the CondensedTreatment History SAF file (RXHIST60), or other SAF filesthat have an associated dialysis provider to the Facility SAFfile via the USRDS provider number and year.

The Facility SAF file contains over 100 provider characteris-

tics, including:

♦ Transplants counts♦ Self-dialysis information♦ HD, IPD, CAPD, and CCPD patients♦ Number of in-center new dialysis patients at a facility♦ Kidney sources♦ Profit status, and hospital-based or freestanding sta-

tus♦ Chain affiliation♦ Reuse practices

DATA SOURCESThe CMS Annual Facility Survey is obtained from the CMSEnd-Stage Renal Disease Public Use Files website. The CMSDialysis Facility Compare data is received monthly from CMS.The CDC National Surveillance of Dialysis-Associated Dis-eases survey is requested from the CDC annually. A copy ofthe CMS and CDC Surveys can be found in the Appendixunder Special Study Data Forms.

Provider Numbers Assigned by the USRDSEach provider has been assigned an identification number byCMS. To conceal provider identity, the USRDS converts thisnumber to an anonymous number

Profit StatusThe profit variable, NU_P_NP, has the values ‘For-profit’,‘Non-profit’, and ‘Unknown’ (case sensitive).

The for-profit group of facilities consists of the facilities cat-egorized on the CMS survey. They include individual-profit,partnership-profit, corporation-profit, or other-profit, whilethe non-profit group of facilities consists of the facilities listedas individual-nonprofit, partnership-nonprofit, corporate-nonprofit, other-nonprofit, state-government non-federal,county-government non-federal, city government non-fed-eral, city/county-government non-federal, hospital district/authority government non-federal, other-government non-federal, Veterans Administration Government Federal, PublicHealth Service Government Federal, military-government fed-eral, or other-government federal.

The above 18 categories are designated by the variableTYPOWNER. The 2002 CMS Survey dropped this variable.Starting with the 2002 survey period, (2004 SAF CD’s),TYPOWNER is now missing. The profit status is now deter-mined from CMS Dialysis Facility Compare data.

Chain AffiliationThe USRDS definition of a chain is twenty or more facilities intwo or more states owned by the same corporation. The 2004provider data consists of six chains based on the USRDS chaindefinition. The number of chains can vary from year to yeardepending on the change of facility ownership and new facili-ties. The chain variable, CHAIN_ID, contains a value identi-fying the chain ownership of the facility. A blank value forCHAIN_ID indicates the facility has no chain affiliation.


Chain AffiliationFresenius Medical CareGambro Health CareDaVitaRenal Care Group Inc.Dialysis Clinic, Inc.National Nephrology Associates

FRESENIUSGambroDAVITARCGDCINATIONAL

Value of CHAIN_ID (case sensitive)

Freestanding vs. Hospital-based FacilityA hospital-based dialysis facility is one associated with a hos-pital; it can be located in the hospital or at a remote location.Freestanding dialysis facilities operate independently of a hos-pital.If a study is done analyzing freestanding versus hospital-basedunits, there will actually be three groups in the analysis: free-standing, hospital-based, and unknown. The variableNU_HBFS will designate this status. The number 1 repre-sents hospital-based and 2 represents freestanding. The un-known category will consist of any provider in the researcher’sstudy not found in the Facility database and must be assignedby the researcher, for example, mat set NU_HBFS=3 Un-known.

36 Sections 1-8h

USRDS Products

& S

ervi

ces

38 USRDS Products & Servicesh


INTRODUCTIONTable A.1 describes the products and services provided by theUSRDS to support ESRD research and the work of the renalcommunity.

The entire ADR is available on the Internet at www.usrds.org;included on the site as well are color slides of figures, a PDFfile of the Researcher’s Guide, and USRDS contact informa-tion. This site allows users to create customized data sets andregional maps. Data regarding site use are presented in FigureA.1.

DIALYSIS UNIT-SPECIFIC SMR/SHR REPORTSFrom 1996 through 1999 the USRDS produced more than2,300 unit-specific reports each year, compiling informationabout the patients treated in each dialysis facility, and includ-ing Standardized Mortality Ratios (SMRs) and StandardizedHospitalization Ratios (SHRs). These reports are now beingproduced by the Kidney Epidemiology and Cost Center atthe University of Michigan (www.med.umich.edu/kidney).

DATA REQUESTSMaking information on ESRD available to the renal commu-nity is a primary objective of the USRDS, and we are commit-ted to the timely fulfillment of data requests. In many casesthese requests can be answered by providing data publishedin the ADR or elsewhere. Requests for data not available inmaterial published by the USRDS, but that require two hoursor less of staff time, are fulfilled by the Coordinating Centerwithout charge, usually within one week. More complex re-quests—those requiring more than two hours of staff time—as well as requests for Standard Analysis Files and customfiles, must be accompanied by a written proposal (see TableA.1), and will be completed only upon written approval bythe NIDDK Project Officer.

DATA FILES AVAILABLE TO RESEARCHERSThe Coordinating Center maintains a set of Standard Analy-sis Files (SAFs) to meet diverse research needs and to provideeasy access to the data used in the ADR. The SAFs were intro-duced in 1994, and at the same time NIDDK began awardinga new group of grants focusing on research using the USRDSdata. The result has been an annual increase in the number offiles provided by the USRDS.

Prior to 1994 all files provided to researchers were customfiles created for a specific research project. Since the introduc-tion of the SAFs, however, custom files are generally limited tocases in which a researcher provides a patient finder file to bematched with the USRDS database.

The Core SAF CD-ROM contains basic patient data and isneeded in order to use any of the other SAFs. Included on thisCD are each patient’s demographic information, treatmenthistory, limited transplant data, and all data from the USRDSSpecial Studies. Approximately half of the researchers usingthe USRDS SAFs need only this CD. Full transplant informa-tion is provided on a separate CD that contains detailed trans-plant and transplant followup data collected by CMS and

UNOS. Data on hospital inpatient stays are found on thehospitalization CD, and Medicare payment data are availableeither in a full set or by individual year (Table A.2).

STANDARD ANALYSIS FILES (SAFS)The use of the SAFs is governed by the USRDS “Policy onData Release for Investigator-Initiated Research,” which ap-pears later in this section. A researcher’s proposal must beapproved by the USRDS Project Officer, and the researchermust sign the USRDS “Agreement for Release of Data” (seepage 46 & 47). Prices for these files are listed in Table A.3.

Most SAFs provide patient-specific data. All patient identifi-ers (name, address, Social Security number, etc.) are removedfrom the files or encrypted, but confidentiality of the data isstill a serious concern. The “Agreement for Release of Data”therefore includes restrictions on the use and disposition ofthe SAFs. The SAFs do include an encrypted ID number toallow patient data from multiple SAFs to be merged whenneeded.

CORE CDThe USRDS has carried out a number of Special Studies. Top-ics are approved by the NIDDK, with recommendations fromCMS, the USRDS Scientific Advisory Committee, the ESRDnetworks, and the Renal Community Council. For each study,design and sampling plans were developed, samples were se-lected, and data collection forms and instructions were drafted,tested, and finalized. The main studies are summarized be-low and contained in a separate volume by the CC as men-tioned previously.

The Core CD contains the most frequently used SAFs, in-cluding those from the USRDS Special Studies, and is neededfor use of the Transplant CD, the Hospital CD, or any CDbased on Medicare claims data. The files included on thisCore CD are as follows (and are also listed in Table A.3):

Patient (file name: PATIENTS)Contains one record per patient in the USRDS database, andgives basic demographic and ESRD-related data.

Residence (file name: RESIDENC)Provides a longitudinal record, to ZIP code level, of eachpatient’s place of residence.

Treatment history (file name: RXHIST & RXHIST60)Also referred to as the Modality Sequence file; contains a newrecord for each patient at each change in treatment modalityor dialysis provider.

Payor History (file name: PAYHIST)Contains detailed longitudinal insurance payor informationfor each unique patient from the time of the ESRD initiation.

Medical evidence (file name: MEDEVID)Contains full data from the 1995 version of the CMS ChronicRenal Disease Medical Evidence Form (CMS-2728), the sourceof data about the primary disease causing renal failure and

40

Table A.1USRDS Products and Servicesfor ESRD researchers & thegeneral renal community

Products are provided withoutcharge except as noted

Figure A.1Data requests & visits to theUSRDS web site

Reports & guidesAnnual Data Reports Available from the National Kidney and Urologic Disease Information Clearinghouse, 3 InformationWay,

Bethesda, MD 20892-3560, 301.654.4415, [email protected] from the ADR is also published in the American Journal of Kidney Disease.

ADR CD-ROM Contains the text and graphics of the ADR, data tables, color Powerpoint® slides, and theResearcher’s Guide.

Researcher’s Guide to the Provides a detailed description of the USRDSUSRDS Database database and of the USRDS Standard Analysis Files, and is the basic reference for

researchers who use USRDS data files.

www.usrds.org Contains PDF files of the chapters, reference tables, and the Researcher’s Guide; Powerpoint® slides ofatlas figures and USRDS conference presentations; Excel files of the data tables; notices regardingcurrent news and analyses; links to related Internet sites; and email addresses for contacting theUSRDS.

RenDER The USRDS Renal Data Extraction and Referencing (RenDER) System is a querying application that allowsusers to create data tables and interactive maps. It can be accessed at www. usrds.org/odr/xrender_home.asp following a short registration; a tutorial is also available on this site to helpnew users.

Requests for dataData requests: two-hour Questions and data requests that are not answered directly by the ADR can be addressed to the

Coordinating Center; those that require less than two hours of staff time to fulfill will be processedwithout charge.

Data Requests: more Questions and data requests that require over two hours of staff time must be submitted in writingthan two hours and approved by the NIDDK Project Officer. Fulfillment of these requests is subject to staff availability,

and costs are assessed on a case-by-case basis.

Standard Analysis Files (SAFs) SAFs provide patient-specific data from the USRDS database to support ESRD research. A standard pricelist has been established for the files (Table b.c) and users must sign a Data Release Agreement withthe NIDDK.

Custom data files Custom files can be created by the Coordinating Center for projects requiring data other than thoseprovided in the Standard Analysis Files. An hourly rate of $72.70 will be assessed for time spent on therequest, and users must sign a data release agreement withthe NIDDK.

Publications & presentations Most USRDS research studies result in published papers or presentations at national meetings. Figuresfrom abstracts & presentations can be found on the website, while published abstracts and papers canbe found in the relevant journals.

Contact informationData requests & publication USRDS Coordinating Centerorders 914 South 8th Street, Suite D-206

Minneapolis, MN 55404612.347.7776 or 1.888.99USRDSFax 612.347.5878 www.usrds.org

Data file contact Shu Chen, MS, [email protected]

1/00 1/01 1/02 1/03 1/04 0

20

40

60

80

100

1/00 1/01 1/02 1/03 1/04 0

500

1,000

1,500

2,000

2,500Data requests, by month Website visits, by week

USRDS Products & Servicesh


of data about the primary disease causing renal failure andthe start date of chronic renal dialysis. In April 1995 a newversion of the form went into use that included data oncomorbidity, employment status, lab values at start of dialy-sis, and Hispanic ethnicity.

Transplant (file name: TX)Contains basic data for all transplants, including graft failuredate (detailed transplant data are contained on a separatetransplant CD).

Transplant waiting list (file names: WAITLIST_KI &WAITLIST_KP)Since the creation of the 2001 Core CD, basic patient demo-graphic data and data on all unique wait-list periods for eachpatient have been added to the transplant wait-list file. Thisfile includes one or more records for each wait-list patient

from the UNOS transplant wait-list, with each record repre-senting a unique wait-list period.

Dialysis Mortality and Morbidity Special Study Waves 1-4(File Name: DMMS)Each “wave” includes a data collection instrument for collect-ing “core” data, allowing collection of a consistent set of fun-damental data for research questions that require a largesample size.

Facility (file name: FACILITY)The CMS ESRD Annual Facility Survey is the source of datafor the Facility SAF, which can be linked to the Facility CostReport files using the USRDS provider ID. Because of this link,geographic variables that could be used to identify facilitieshave been deleted. The survey period is January 1 throughDecember 31.

Table A.2Contents of the USRDS CoreStandard Analysis File CD-ROM

This file is needed in order touse any of the other StandardAnalysis Files. The data areprovided on two CDs.

File Name Unit of observation UsesPatient (PATIENTS) One record for each ESRD patient. Incidence, prevalence, patient survival.

Most other files will need to be linked to this file using the encrypted patient ID.

Residence (RESIDENC) For each patient, one record for each period Regional analyses.in a different residence.

Treatment History (TXHIST) One record for each period a patient is on one Modality distribution and treatment patterns. modality. Each patient can have many records.

Pay History (PAYHIST) One record for each period a patient is on one The impacts of various insurance payors on patientpayor. Each patient can have many records. clinical oucomes.

Medical Evidence (MEDEVID) One record for each 2728 form ESRD first service date, initial treatment modality,filed (1995 version). comorbid conditions, patient status at start of ESRD.

Transplant (TX) One record for each transplant event. Can Transplant and transplant outcome analyses.have multiple transplants for one patient.

Transplant Waiting List (TXWAIT) One or more records for each patient ever Comparison of transplanted patients to dialysis on waiting list. patients who are transplant candidates. Patient

selection to waiting list.

Dialysis Mortality and Morbidity Wave 1: 5,670 patients; Comorbid conditions, adequacy of dialysis, dialysis Special Study (DMMS) Wave 2: 4,024 patients; prescription and other treatment parameters,

Wave 3: 11,142 patients. laboratory test values, nutrition, vascular access.

Case Mix Adequacy Special Study 7,096 patients. Comorbid conditions, adequacy of dialysis, dialysis (ADEQUACY) prescription and other treatment parameters,

laboratory values.

Case Mix Severity Special Study 5,255 patients. Comorbid conditions, adequacy of dialysis, (CASEMIXS) dialysis prescription andother treatment parameters,

laboratory values.

Pediatric Growth and Development 3,067 patients. Growth, development, and other issues relating Special Study (PEDGROW) to pediatric ESRD patients.

CAPD Peritonitis Special Study (CAPD) 3,385 patients. CAPD and peritonitis.

Facility One record for each year facility has operated. Merge with the treatment history, transplant, or annual summary SAFs for analyses involving provider characteristics by encrypted facility ID.

Facility Cost Reports (FCOSHOS) One record per facility per year Costs and staffing of dialysis facilities.(1989–1995 only).

Dialyzers (DIALYZER) Information on dialyzer characteristics; to be Relation of dialyzer characteristics to matched to patient dialyzer information in patient outcomes.other files on CD.

Claim Codes (CLMCODES) One record for each diagnosis, procedure, Frequency of occurrence of each code. or HCPCS code appearing in claims files. A starting point for analyses that will use

diagnosis and procedure codes.

FORMATS.SC2 All USRDS-defined SAS formats Format library used to format values of used by the SAFs. categorical variables.

42

Facility Cost Reports (file name: FCOSIND)The CMS hospital and independent facility cost reports forthe years 1989–1995 and 1989–1993 are available as StandardAnalysis Files. All geographic variables have been deleted inorder to ensure confidentiality. The file may be linked withthe Facility SAF by using the USRDS provider ID; geographicanalyses at less than a regional or ESRD network level, how-ever, are not possible. Because there has been minimal use ofthese files, data for additional years will be added only if thereis sufficient demand.

Dialyzers (file name: DIALYZER)The Case Mix Severity, Case Mix Adequacy, and DMMS Spe-cial Studies all collected information on the manufacturerand model of the dialyzer used for a patient at a specific time.The SAFs for these studies describe the dialyzer only througha code, which must be matched to information in the Dia-lyzer file to find the manufacturer and model of the dialyzeralong with characteristics such as membrane type and clear-

ance. The data in this file come from published sources avail-able at the time of the study. We believe these data accuratelyrepresent the dialyzer characteristics, but they should be usedwith caution.

TRANSPLANT CDDue to changes in data collection sources over the years, datarelated to transplants are now presented in eight separateSAFs. The first two are included on the Core CD, and theremaining six are included on two separate Transplant CDs.

Tranplant (File Name: TX)Includes minimum details about all transplants from allsources.

Transplant Wait List Kidney & Kidney Pancreas (FileNames: TX-KI & TX-KP)Each file contains one record for each patient in the USRDSdatabase per wait list event.

Table A.3Prices for USRDS StandardAnalysis Fileson CD-ROM; checks must bemade out to the MinneapolisMedical Research Foundation

Standard Analysis File CD-ROMsCD Description CDs PriceCore CD 2 $600 The Core CD is needed in order to use any of the other

CDs.

Transplant CD 2 $200 Detailed transplant data from CMS and UNOS.

Hospital CD 2 $200 The Hospital CD is derived from the Institutional Claimsand Institutional Claims Details CDs. It contains diagnosisand surgical procedure codes for each stay but does notinclude the cost data from the Institutional Claimsrecords.

DMMS claims CD set 4 $400 The DMMS claims CD set contains all of the Institutionaland Physician/Supplier claims data for the patients in theUSRDS Dialysis Morbidity and Mortality (DMMS) SpecialStudy. The data from the Special Study data collectionforms are included on the Core CD.

Case Mix Adequacy CD 1 $100 The Case Mix Adequacy Claims claims CD contains allinstitutional and physician/supplier claims data forpatients in the USRDS Case Mix Adequacy Special Study.Data from the Special Study data collection forms areincluded.

CPM/USRDS mergeddataset variable The CPM 2001 SAF CD set includes CPM data collections

from the 1994 through 2000 surveys, with a claimshistory from the USRDS 2001 SAF CD. For moreinformation, please see www.usrds.org/cpm.htm, or call1.888.99USRDS.


Medicare payment data

Years Claims CDs Details CDs Price CDs PriceBefore 1989* 1 1 $200

1989 1 1 $200

1990 1 1 $200

1991 1 2 $300 4 $400

1992 1 2 $300 4 $400

1993 1 2 $300 4 $400

1994 1 2 $300 5 $500

1995 1 3 $400 5 $500

1996 1 3 $400 6 $600

1997 1 3 $400 7 $700

1998 1 3 $400 7 $700

1999 1 3 $400 7 $700

2000 1 5 $600 7 $700

2001 1 5 $600 7 $700

2002 1 6 $700 8 $800*CDs for years before 1989 included only hospital inpatient stays & quarterly summaries of outpatient dialysis; no cost data is included.

Institutional Claims Physician/Supplier Claims


Kidney Transplant-CMS (File Name: TXHCFA)Includes transplant information collected by CMS’s PMMISsystem prior to 1994.

Kidney Transplant-UNOS (File Name: TXUNOS)Includes transplant information collected since 1987 by UNOS,currently the main source of transplant data for the USRDS.

Immunosuppression at Registration-UNOS (File Name:TXIRUNOS)Includes information on immunosuppressive drugs; collectedby UNOS at the time of transplantation events.

Kidney Transplant Followups-CMS (File Name:TXFUHCFA)Includes transplant followup reports collected by CMS priorto 1994; reports are completed at discharge, six months, eachyear post-transplant, and graft failure.

Kidney Transplant Followups-UNOS (File Name:TXFUUNOS)Includes transplant followup reports collected by UNOS since1988.

Immunosuppression at Followup-UNOS (File Name:TXIFUNOS)Includes information on immunosuppressive drugs; collectedby UNOS at followup visits.

HOSPITAL CDHospitalization inpatient data from the USRDS database area subset of the data in the Institutional Claims file. No pay-ment or cost variables are included on this CD. This CD is forresearchers who need data on hospital inpatient stays and ondiagnoses and procedures for those stays but who do notneed payment data.

DIALYSIS MORBIDITY & MORTALITY CDThis CD contains files from the Dialysis Morbidity and Mor-tality Study and extracts data from all other SAFs for thepatients in this study. All data on Medicare payments forthese patients are followed to the currently reported claimsyear.

CASE MIX ADEQUACY CDThis CD contains the Case Mix Adequacy Special Study fileand extracts data from all other SAFs for the patients in thisstudy. All data on Medicare payments for these patients arefollowed to the currently reported claims year. Along withanalyses related to the study itself, this file is useful for devel-oping analyses that will later be run on the full Medicarepayments files.

CDS OF MEDICARE PAYMENT DATAMedicare payment data on institutional claims are availablefor pre-1989 through 2000, while data on physician/supplierclaims are available for 1991–2000. These data sets can bepurchased by individual year.

Institutional claims consist of all Part A claims (inpatient,outpatient, skilled nursing facility, home health agency, andhospice) and some Part B claims, notably outpatient dialy-sis. All physician/supplier claims are Medicare Part B; theseclaims account for about 80 percent of the claims but only 20percent of the dollars.

The structure and content of the two types of claims aredifferent, as are the files derived from them. Institutionalclaims are provided in two file types: the Institutional Claimsfile, which indicates the type of claim, the dollar amounts, theDRG code, the type of dialysis involved (if any), and the datesof service; and the Institutional Claims Detail file, which con-tains details such as diagnosis and procedure codes. Manyanalyses will require only the Institutional Claims files.Physician/supplier claims are contained in one type of filewith one record for each claim line-item. The file includesdollar amounts, dates of service, diagnosis and procedurecodes, and type and place of service.

WHAT IS NEEDED TO USE THE SAFS

♦ Computer: at a minimum, a 486 or Pentium PC.Smaller runs have been done on 486/100 PCs. The filescan be converted to SAS transport format for use onany computer with access to SAS.

♦ CD-ROM drive: Any PC with a CD-ROM drive shouldbe able to read the SAF CDs.

♦ Disk storage: Between 10 and 600 megabytes are neededfor use of the Core CD, depending on the files beingused. The data on each CD require from 550 to 650megabytes of disk storage. Keep in mind that you willneed space for temporary work files and for the filesyou create.

♦ Software: SAS. Files converted to SAS transport for-mat can be used by SPSS.

♦ People with software experience: The SAF documenta-tion provides some of the basics of loading the filesinto SAS and using them, but further work with thefiles requires SAS experience.

File media & formatsThe SAFs are provided on CD-ROM disks as SAS (StatisticalAnalysis System) files, and can be used directly by SAS on any486 or Pentium PC with a CD-ROM reader.

The SAS format was chosen for the USRDS SAFs because it iswidely used, easily transported, and largely self-document-ing. SAS is a commercially available data management andstatistical analysis software system that runs on most com-puters, from mainframes to PCs, and it is almost universallyavailable on university computer systems. The USRDS SAFstake full advantage of the program’s ability to incorporate alarge amount of documentation into the file.

Researchers who require a different program format or a

44

medium other than CD-ROM will need to arrange for theconversion themselves. The USRDS may be able to convertfiles to alternative formats or media, but the cost will be sub-stantially greater.

COSTThe price of the files covers the cost of reproducing and ship-ping the file and its documentation, the administrative costof handling the sales, and the cost of technical support toresearchers. Checks must be made payable to the Minneapo-lis Medical Research Foundation. Prices are subject to change.

DOCUMENTATIONThis Researcher’s Guide provides most of the documentationof the SAFs by including a codebook of variables on the files,copies of the data collection forms, and a chapter on tech-niques for using the SAFs in SAS. Copies of the Researcher’sGuide may be downloaded from the USRDS website or re-quested by phone by e-mail.

ACKNOWLEDGEMENT FOR USE OF USRDS DATAPublications that use USRDS data should include an acknowl-edgment and the following notice:The data reported here have been supplied by the UnitedStates Renal Data System (USRDS). The interpretation andreporting of these data are the responsibility of the author(s)and in no way should be seen as an official policy or interpre-tation of the U.S. government.

DATA RELEASE POLICIES & PROCEDURESSince the Standard Analysis Files and custom data files con-tain confidential, patient-specific data, release of these filesrequires the approval process described here. Investigatorsmay contact the USRDS Project Officer at the National Insti-tute of Diabetes and Digestive and Kidney Diseases (NIDDK)to discuss their requests before preparing a written proposal.To request and use USRDS data files, investigators should dothe following:

♦ Provide the USRDS Project Officer (PO) with a de-tailed description of the proposed investigation (TableA.4). The project summary must include goals, back-ground data, an in-depth description of the study de-sign and analytic methodology, and resources availablefor completing the project, and may be the project de-scription from a grant or other funding application.The proposed project must comply with the PrivacyAct of 1974, and the project summary should provideenough information to enable assessment of compli-ance. Guidelines for adherence to the Privacy Act arecontained in the USRDS “Agreement for Release ofData.”

♦ Indicate which USRDS Standard Analysis Files will beneeded. If the USRDS Standard Analysis Files cannotmeet the requirements of the proposed research, theproposal must specify precisely which data elementsare needed, and investigators must budget for a sub-stantially higher cost.

♦ If the project is approved, return a signed copy of the

USRDS “Agreement for Release of Data” to the PO. Theinvestigator and the CC will resolve any technical ques-tions. The investigator will arrange payment with theCC, and payment must be received before the files willbe released. Checks must be made payable to the Min-neapolis Medical Research Foundation.

The NIH will review the project for technical merit and con-formity with the Privacy Act. The PO will notify theinvestigator(s) in writing of the outcome, and if the project isnot approved will discuss reasons for the decision. The POwill send a copy of the approval letters to the USRDS CC. Theprocess of reviewing the data request, generating the data file,and releasing the data will take the CC approximately threemonths.

When both a copy of the signed “Agreement for Release ofData” and payment for the files have been received by theUSRDS CC, the CC will prepare the files and documentationand will send them to the investigator.

Any reports or articles resulting from use of the USRDS datamust be submitted to the PO prior to submission for publica-tion for review to assure adherence to the Privacy Act. The POmust respond within 30 days. If a report or article is deter-mined not to adhere to the Privacy Act, it shall not be pub-lished until compliance with the Act is achieved. Assessmentof compliance will not depend on the opinions and conclu-sions expressed by the investigators, nor will the PO’s ap-proval indicate government endorsement of the investigator’sopinions and conclusions.

All publications using the released data must contain the stan-dard acknowledgement and disclaimer presented above. Theinvestigator is requested to send copies of all final publica-tions resulting from this research to both the PO and theUSRDS CC.

CAVEATSThis policy establishes conditions and proce-dures for therelease of data from the USRDS and is intended to ensure thatdata are made available to investigators in the pursuit of le-gitimate biomedical, cost-effectiveness, or other economic re-search.

The USRDS will not release data that identify individual pa-tients, providers, or facilities. Since it might be possible, how-ever, to infer the identity of individual patients, providers, orfacilities from the data in the Standard Analysis Files, the datain these files are considered confidential. The USRDS “Agree-ment for Release of Data” contains a number of both generaland specific restrictions on the use of USRDS data, and inves-tigators are expected to abide by these restrictions. If indi-vidually identifiable data are needed, the request should besubmitted directly to the Centers for Medicare and MedicaidServices.

Use of these data to identify and/or contact patients, facilities,



or providers on the files is prohibited both by USRDS policyand by the Privacy Act of 1974.

The USRDS CC will provide data in any of the usual media(tape, disk, or hard copy). Analytical services, other than re-view of the proposal and preparation of the data file, will not,however, be provided under the USRDS contract, althoughUSRDS CC personnel may participate in analyses funded byother sources.

Standard Analysis Files or other data files from USRDS Spe-cial Studies will become available one year after the data havebeen collected, edited, and entered into the database.

Table A.4Outline for Research ProposalsUsing USRDS DataA data request applies only to theproject stated in the proposal; anew request must be submitted foreach additional use of the data.

I Research topic title and submission date

II Background information

III Study design: objectives, hypothesis(es), analytical methods

IV Data being requested: 1) List of Standard Analytical Files needed (if multipleyears, please specify), or fields needed in custom data file. 2) Description ofdata security: responsible party, computer access, etc. 3) Timeframe for theproject. 4) Statement that data will be returned to the USRDS or destroyed atthe end of the project.

V To address patient privacy issues, to be consistent with HIPAA policies, and toinsure that researchers are adhering to local privacy standards as well as toUSRDS and CMS privacy policies, the USRDS now requires IRB approval for allresearch proposals. IRB approval is not required from those requestingaggregate data.

VI Outline of estimated costs of requested data; source of funding

VII Agreement for Release of Data, signed by all researchers

VIII Investigator informationFor Principal Investigator andco-authors, supply:

NameAffiliationBusiness addressBusiness phone & faxEmail address

Submit to:Paul Eggers, PhDNIDDK6707 Democracy Blvd, Room 615Bethesda, MD 20892-5458Phone 301.594.8305Fax [email protected]

46

United States Renal Data System (USRDS)Agreement for Release of Data

Project title _______________________________________________________________________________________

In this agreement, “Recipient” means ______________________________________________________________

A. The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), through the United States Renal Data System(USRDS) Coordinating Center (CC), will provide the Recipient with tapes, disks, and/or hard copies containing data extractedfrom the USRDS research database.

B. The sole purpose of providing the data is the conduct of legitimate and approved biomedical, cost-effectiveness, and/or othereconomic research by the Recipient.

C. The Recipient shall not use the data to identify individuals on the file.

D. The Recipient shall not combine or link the data provided with any other collection or source of information that may containinformation specific to individuals on the file, except where written authorization has been obtained through the approvalprocess.

E. The Recipient shall not use the data for purposes that are not related to biomedical research, cost-effectiveness, or othereconomic research. Purposes for which the data may not be used include, but are not limited to,• the identification and targeting of under- or over-served health service markets primarily for commercial benefit• the obtaining of information about providers or facilities for commercial benefit• insurance purposes such as redlining areas deemed to offer bad health insurance risks• adverse selection (e.g., identifying patients with high risk diagnoses)

Any use of the data for research not in the original proposal must be approved by the USRDS Project Officer (PO).

F. The Recipient shall not publish or otherwise disclose the data in the file to any person or organization unless the data have beenaggregated (that is, combined into groupings of data such that the data are no longer specific to any individuals within eachgrouping), and no cells (aggregates of data) contain information on fewer than ten individuals or fewer than five providers orfacilities. The Recipient shall not publish or otherwise disclose data that identify individual providers or facilities, or from whichsuch identities could be inferred. However, the Recipient may release data to a contractor for purposes of data processing orstorage if (1) the Recipient specified in the research plan submitted to the USRDS Project Officer that data would be released tothe particular contractor, or the Recipient has obtained written authorization from the PO to release the data to such contractor,and (2) the contractor has signed a data release agreement with the PO.

G. A copy of any aggregation of data intended for publication shall be submitted to the PO for review for compliance with theconfidentiality provisions of this agreement prior to submission for publication and, if not approved, shall not be publisheduntil compliance is achieved. The PO must respond within 30 days.

H. Appropriate administrative, technical, procedural, and physical safeguards shall be established by the Recipient to protect theconfidentiality of the data and to prevent unauthorized access to it. The safeguards shall provide a level of security outlined inOMB Circular No. A-130, Appendix III—Security of Federal Automated Information System, which sets forth guidelines forsecurity plans for automated information systems in Federal agencies.

I. No copies or derivatives shall be made of the data in this file except as necessary for the purpose authorized in this agreement.The Recipient shall keep an accurate written account of all such copies and derivative files, which will be furnished upon requestto the PO. The USRDS data files covered in this data use agreement may be retained by the Recipient until __________________.At the completion of the activities in the research plan, the file shall be returned to the USRDS CC at the Recipient’s expense, andany derivative files and copies shall be destroyed.

J. For the purpose of inspecting security procedures and arrangements, authorized representatives of the PO and/or of CMS will,upon request, be granted access to premises where data in this file are kept.



___________________________________________________________________________Recipient typed name, title, & organization

___________________________________________________________________________Recipient telephone number

___________________________________________________________________________Recipient signature & date

___________________________________________________________________________Contractor typed name, title, & organization, as appropriate

___________________________________________________________________________Contractor telephone number

___________________________________________________________________________Contractor signature & date

Lawrence Y. C. Agodoa, MD, NIDDK, NIH or

Paul W. Eggers, PhD, NIDDK, NIH

USRDS Project Officer name & organization

___________________________________________________________________________USRDS Project Officer signature & date

May 2004

48 USRDS Products & Servicesh

Medicare

Claim

s

50 Medicare Claimsh


INTRODUCTIONThis document describes the files that the USRDS CC hascreated from CMS billing data to incorporate into the USRDSdatabase. Please note that these files include claims for somepatients who are not included in the SAF.PATIENTS file. Also,for some patients, the file includes claims from before thestart of ESRD. Both of these cases can be identified and handledby merging the claims files with SAF.PATIENTS, as discussedunder the headings “Patients Included” and “Pre-ESRD Data.”

CMS DATA SOURCESThere are two types of Medicare claims: physician/supplier,which are all Medicare Part B, and institutional, which areprimarily Part A. Some Part B claims, however, are institu-tional claims, notably those for outpatient dialysis. The struc-ture and content of the two types of claims are different, andso are the files derived from them.

The institutional claims files are obtained from the CMS SAFs,and the Physician/Supplier data from the 100% NationalClaims History nearline file. Information on outpatient di-alysis and hospital inpatient stays not included in the CMSSAFs is obtained from PMMIS/REBUS. Together, these sourcesprovide data on all types of Medicare bills.

The following CMS SAFs are used:♦ Inpatient♦ Outpatient♦ Skilled Nursing Facility♦ Home Health Agency♦ Hospice

For institutional and physician/supplier claims files, data fora year is frozen at the end of the following June, so that claimssubmitted after June of the year following the year of servicewill not be included. All data are resolved to final bills, withduplicates and correction transactions resolved into a singlefinal bill for the service in question.

For 1977–1990 the PMMIS/REBUS system provides an alter-nate source of data on hospital inpatient stays and outpatientdialysis, though it includes no charge or payment data. Theinpatient data include diagnosis and procedure codes, whilethe outpatient information includes summaries of dialysisclaims by calendar quarter and provider. This is the only sourcefor data prior to 1989, the year in which the CMS SAFs start.Starting with 1991, data from PMMIS/REBUS is used onlywhen there is not a matching hospital stay or dialysis recordin the CMS SAFs. SAF data are given preference because oftheir greater detail, but because these files contain no data forclaims processed by CMS after the June following the year ofservice, some claims are missed. PMMIS/REBUS data are in-cluded in the Institutional Claims and Institutional ClaimDetails Files and can be distinguished by the value of theHCFASAF variable (M or Q).

CMS SAFs and Part B Physician/Supplier data both begin in1991, and currently extend through 2002. Data for a givenyear usually become available in August or September of the

following year, and are based on claims processed throughJune.

SAFs are created in July for the previous calendar year. CMSdocumentation indicates that the files are 97–98% complete;our analysis of the ESRD bill files, however, indicates thatwhile the SAF contains 97% of all bills, it contains only 95% ofall transactions. Some bills in the SAF would therefore bemodified after the SAF cutoff date if the transactions receivedlater were available.

Bills submitted or finalized after the cutoff date are includedin the SAF for the following year. When analyzing claims, it isimportant to realize that all claims contained in the SAFs fora given year may not have been incurred in that year, whilesome claims incurred in a given year may appear in the SAFsfor the following year. Since the service dates of the claimcorrespond to the actual dates of service, they should be usedto determine inclusion in analyses, rather than relying on thecalendar year of the SAFs.

Since the reporting window is 18 months for January claimsand only six months for December claims, we expect thatdata are less complete as a year progresses.

PATIENTS & TIME PERIODS INCLUDEDThe Medicare claims files (SAF.INCLAIM, SAF.INDETAIL,and SAF.PSCLAIM) contain data for some patients not in-cluded in the SAF.PATIENTS file. When we update the USRDSdatabase we retrieve from the CMS database all claims for allpatients who show an indication of having ESRD. Some pa-tients are then “filtered out,” and not included in SAF.PATIENTSor the USRDS analyses. We use this procedure because it iseasiest to exclude data ourselves rather than requesting it anewfrom CMS should we need it later. Patients may be filteredout because of various problems with the data, as when twopatients have the same Medicare ID or Social Security num-ber or a patient’s listed birth date comes after the death date.In other cases there is too little information available to estab-lish the presence of ESRD or a date of first ESRD service. Insome cases a person who is filtered out one year may pass thefilters the next year because data problems are resolved orbecause new data confirms that the patient has ESRD.

The researcher needs to decide whether to include the claimsfor these patients in the analysis. The claims can be excludedby merging the claims file with SAF.PATIENTS by USRDS_IDand selecting only patients who appear in SAF.PATIENTS.

The USRDS database also includes pre-ESRD claims for pa-tients who were entitled to Medicare, due to age or disability,before they developed ESRD. Because these data are not avail-able for all patients, and because it is likely that patients en-titled to Medicare prior to ESRD are systematically differentfrom those not entitled, analyses of these data must be de-signed with care.

To obtain claims from the ESRD period only, merge the claimsfile with PATIENTS to identify the first service date, and select

52

researcher to determine how or whether to include claimsthat straddle the first service date.

BASIC FILE STRUCTUREInstitutional claims include claims for hospital inpatient stays,hospital outpatient services, most dialysis, skilled nursingfacilities, home health agencies, and hospices. Dollar amountsare available on the Institutional Claims file, while the Insti-tutional Details file contains details such as diagnostic andprocedural codes that can occur a variable number of timesfor each claim. For many analyses this file is not needed.

Physician/supplier claims are bills covering physician servicesand medical supplies, and account for approximately 80% ofthe claims but only 20% of the dollars. One diagnostic andone procedural code can occur on each physician/supplierclaim, which is essentially a line-item record. One visit to aphysician can generate multiple claims records.

While there are only minor differences in the structure of thedata included in the five institutional claim types (hospitalinpatient, outpatient (both hospital and freestanding), hos-pice, home health agency, skilled nursing facility), the struc-ture of the physician/supplier claims is substantially differentfrom that of the institutional claims.

Institutional claims are submitted on Part A claim forms,which have a substantial header portion followed by variablelength trailers. There are a number of possible trailer fields,including diagnoses and procedures as well as revenue cen-ters. Physician/supplier claims, in contrast, have a simplerheader portion and fewer trailer fields, which include the rev-enue center together with a CMS Common Procedure CodeStandard (HCPCS) procedural code. Unlike the InternationalClassification of Disease, version 9, Clinical Modification(ICD-9-CM) procedural codes on the institutional claims,which primarily record invasive surgical procedures, HCPCSscodes record all procedures performed by physicians (e.g.patient histories) and all supplies, ranging from Band-Aidsto dialysis machines.

INSTITUTIONAL CLAIMSFor the institutional claims we create a “claim” file and a “claimdetail” file. The details can be linked back to the claims. TheInstitutional Claims File has one record per claim, with aclaim generally representing a single spell of service such as ahospital inpatient stay, an outpatient surgery, or a month ofdialysis. Dollar values for total and allowed charges are storedin the claim file, which also shows the type and number ofdialysis sessions included in the claim.

Data on the Institutional Claims File will allow researchers todetermine dialysis treatment modality over time, computehospitalization rates, and aggregate costs by time period andtype of cost, and is sufficient for many research studies andmost USRDS products. Analyses of particular diagnoses,procedures, or revenue centers, however, will require the claimdetail file.

Table B.1 shows the variables which appear on the Institu-tional Claims File. The claims are uniquely identified by acompound key consisting of the first four variables listed inTable B.1. The records in the institutional claims files aresorted by this compound key.

The derivation of the dialysis and EPO variables on the Insti-tutional Claims record is described below under RevenueCenter Details.

MEDICARE PAYMENT VARIABLESCLM_TOT is the total amount billed for the claim, whileCLM_AMT is the amount actually paid by Medicare. ForInpatient and SNF claims, the cost also includes an amountfor the CMS pass-through payments for items such as indi-rect medical education, capital, and kidney acquisition fortransplants. To obtain this pass-through payment amount,multiply the per diem amount (PER_DIEM) by the count ofcovered days (CVR_DCNT). In addition to these overallamounts, the billed amount for dialysis and for EPO also areprovided by the variables DIALCASH and EPOCASH.

DIALYSIS VARIABLESThe variable RXCAT indicates the type of dialysis, if any, in-cluded in a claim. RXCAT is derived from DIALREVC andDIALCRC, which come from the Revenue Center and ClaimRelated Condition details, as described below. DIALSESS isthe UNITS value from the Revenue Center detail which indi-cates dialysis. For in-center hemodialysis, this generally indi-cates a plausible value for the number of dialysis sessions. Forother types of dialysis, particularly CAPD and CCPD, thismay indicate the number of days. DIALCASH is REV_CHfrom the Revenue Center detail and is the provider’s billedcharge rather than the Medicare payment. The Revenue Cen-ter and Claim Related Condition details which indicate dialy-sis are not included in the Institutional Claim Details file unlessthe claim has multiple details which indicate dialysis.

EPO VARIABLESSummary variables are provided for EPO treatments coveredby a claim. EPO treatments are identified by Revenue Centercodes 0634 and 0635 and by HCPCS codes from Q9920through Q9940 on a Revenue Center detail. The variable fornumber of EPO administrations (EPOADMIN) is the UNITSvariable from the Revenue Center detail, while the variable forEPO payments (EPOCASH) is the REV_CH variable. If theclaim has multiple Revenue Center details indicating EPO, theEPOADMIN and EPOCASH are summed over these details.The Revenue Center details from which these variables comeare not retained in the Institutional Claim Details SAF.

The variables for the dose of EPO (EPODOSE) come from aClaim Related Value detail with code ‘68’, and the variable forhematocrit (HCRIT) comes from a Claim Related Value de-tail with code ‘48’. The Claim Related Value details from whichthese variables come are not retained in the Institutional ClaimDetails SAF.

52 Medicare Claimsh


the amount charged (REV_CH in the Institutional ClaimsDetail file), and one detail, with Revenue Center code ‘0001,’ isthe sum of all of the REV_CH for all other Revenue Centerdetails for that claim.

To test the consistency of the Revenue Center Details and theCLM_TOT variable, we examined the original CMS SAFrecords for 10,000 inpatient and 10,000 outpatient claims. Inall cases the ‘0001’ Revenue Center amount was the sum of theother Revenue Center amounts. In about 3% of the inpatientrecords, however, CLM_TOT was greater than this sum. Be-ginning in late 2000, CMS began providing a field in the rev-enue trailers called revenue center payment amount, whichcorresponds to the payment amount for each revenue centertrailer for all Outpatient claims. We have included this field asan additional variable (REVPMT) in the 2001 InstitutionalDetail SAF, starting with calendar year 2001. This value allowsthe researcher to more accurately determine the paymentamount for individual types of Revenue Center services (suchas Laboratory service, EPO, and dialysis) billed on Outpa-tient claims. One caveat for using this variable is that theREVPMT summed over all Revenue Center Details for a givenclaim will not always agree with the CLM_AMT variable con-tained in the Institutional Claim SAF for that claim. Our analy-sis showed that the sum of REVPMT over all Outpatientclaims exceeded the CLM_AMT for all Outpatient claims byapproximately 3%.

The SAS format $REVCEN gives labels for the Revenue Cen-ter codes (the CODE variable on records with CDTYPE =‘R’). The Revenue Center details (or trailers) are the sourcefor the dialysis and EPO variables on the Institutional Claimsfile. Codes 0800–0809 and 0820–0889 indicate the type of di-alysis (DIALREVC). UNITS provides the number of dialysissessions (DIALSESS), and REV_CH provides the dialysischarges (DIALCASH). DIALCASH should be treated with cau-tion since its use may not be consistently defined; it is notclear if the value is the charged amount or the CMS allowedcharge, and definition of the value may vary from institutionto institution.

When a claim has only one dialysis Revenue Center code, as isusually the case, we do not produce a Revenue Center detailrecord, since the relevant data items are recorded on the Insti-tutional Claim record. If a claim has multiple Revenue Centerdetails indicating dialysis, we derive the dialysis variables fromthe first Revenue Center code encountered, giving precedenceto the more specific codes. In this case, a detail record is cre-ated for each Revenue Center detail on the claim so that usershave the opportunity to interpret the multiple details.

Other Institutional Revenue Center details are generally oflesser interest unless a HCPCS code is included indicating amore specific service. A code showing that a claim is for labo-ratory services, for example, will frequently include a HCPCScode indicating the specific test performed. In the past, onlyRevenue Center claims with a HCPCS code were retained asRevenue Center detail records. Currently, Revenue Center De-tail records are included regardless of the presence (or ab-

INSTITUTIONAL CLAIM DETAILSThe Institutional Claim Details file includes a variety of detailsabout each claim. The records in this file can be linked back tothe corresponding claim in the claims file. There may be none,one, or many records for each type of detail for a particularclaim.

♦ ICD-9-CM diagnosis codes♦ ICD-9-CM procedure codes♦ CMS revenue center codes (line item)♦ HCPCS procedure codes (with line item)♦ CMS claim related condition codes♦ CMS claim related value codes

Table B.2 shows the variables which appear on the Institu-tional Claim Details file. There can be any number of Institu-tional Claim Details records for each Institutional Claimsrecord. The claim detail file is sorted by the same four-partcompound key as the Claims file, so that this key can be usedto link the two files.

The two-file structure is a response to the fact that there are anumber of important data items which can appear zero, one,or many times in a given claim. A hospital inpatient stay claim,for example, will always have a DRG code, but other types ofinstitutional claims will never have this code. All claims shouldhave at least one ICD-9-CM diagnosis code, but they mayhave up to ten. A hospital inpatient claim probably uses oneor more ICD-9-CM surgical procedure codes if the stay in-volved surgery, but may also have revenue center details whichspecify procedures using HCPCS codes, and an outpatientclaim is more likely to specify procedures using revenue centerdetails with HCPCS codes. While we could have handled thisproblem by creating space on the Claims record file for themaximum possible number of occurrences of each type ofdata, we chose instead to create both a master and detail file,a simple structure which can be easily manipulated in SAS.

REVENUE CENTER DETAILSThe Revenue Center details are the source of a number ofimportant variables and are discussed in some detail here.

The Revenue Center details correspond to the Revenue Center“trailers” on the CMS SAF records. A record “trailer” is asection of the file record that can appear a variable number oftimes; the number of occurrences is indicated by an addi-tional variable resulting in records that vary in length de-pending upon the amount of data present. This is aspace-efficient structure handled well by COBOL (CommonBusiness Oriented Language), the programming language usedby CMS. The CMS SAF records have nine types of trailers,making the record structure quite complex.

The Revenue Center details (or record trailers) provide dataabout the breakdown of the total charges into charges from“each cost center for which a separate charge is billed (type ofaccommodation or ancillary).” A cost center is a division orunit within a hospital (e.g., radiology, emergency room, pa-thology). Each Revenue Center detail contains a variable for

54

Table B.1 Variables in the Institutional Claims SAF File Variable Name Type Length Format CommentUSRDS_ID Num 8 USRDS patient ID number

CLM_FROM Num 4 Date7. From date of service

The length of this variable is set to 4 in order to save file

space. The precision of this 4-byte format is sufficient to store

the data in SAS data format, but not in SAS date-time format.

HCFASAF Char 1 $HCFASAF. CMS SAF source of this bill

Format

D Dialysis

H HH

I Inpatient

N SNF

O Outpatient

P Phys/supplier

S Hospice

SEQ_KEYC Char 2 Sequence # to ensure unique key-SEQ_KEY is a sequence number of two

digits in a number system in base 94 in which the digits are the ASCII

characters 33-126. It is intended to make sure that each key is unique,

although it does not guarantee uniqueness.

CLM_THRU Num 4 Date7. Service through date. The length of this variable is set to 4 in order to save

file space. The precision of the 4 byte format- but not in SAS date-time format

PROVUSRD Char 4 USRDS provider ID number for dialysis providers (HCFA SAF= 'D')

Blank for others

PRM_PYR Char 1 $PRPAYR. Primary payer for this bill

CLM_TOT Num 8 Total charges

CLM_AMT Num 8 Medicare payments

DIALYSESS Num 4 Dialysis treatments based on the UNITS variable for the

Revenue Center code indicated by DIALREVC. If there are

multiiple occurrences of this Revenue Center code in this

claim, then the UNITS are summed across these occurrences.

The length of this variable is set to 4 to save file space. Values are almost always in the range 0-13.

DIALREVC Char 2 Revenue center code for dialysis right two characters of

the primary Revenue Center code indicating dialysis. See

Discussion for determining dialysis modality.

DIALCRC Char Claim related condition for dialysis. Right digit of the primary claim related

condition code indicating dialysis. See discussion for determining dialysis modality.

EPODOSE Num 4 Dose of EPO from claim related value code 68

EPOADMIN Num 4 Number of EPO administrations

EPOCASH Num 4 Charges for EPO

HCRIT Num 4 Hematocrit from claim related value code 48

DRG_CD Char 3 $DRGLAB. Diagnosis Related Group Code. Inpatient and SNF claims only

SAS format $DRG DRG 302 indicates a kidney transplant

DRGDEST Char 2 Destination on discharge from an inpatient or SNF stay. Note: this variable will

be added to files produced at the end of 1998. Earlier files provide this variable

as an institutional. Claims Detail record with CDTYPE='S'

PER_DIEM Num 8 For inpatient and SNF claims, the HCFA pass through payments. Hospital is

reimbursed separately for PER_DIEM times CVR_DCNT.

CVR_DCNT Num 8 For Inpatient and SNF claims, the Medicare covered day count. See PER_DIEM.

RXCAT Char 1 $RXCATIC. Dialysis treament modality

Medicare Claimsh


sence) of a HCPCS code.

CDTYPE, CODECDTYPE indicates the type of code contained in the CODEvariable. Both variables are present on every record, while theremaining variables are not present for some CDTYPEs. TableB.2 indicates the meaning of each CDTYPE and the SAS for-mat that provides labels for the values of CODE for eachCDTYPE.

UNITSUse of the UNITS variable varies with CDTYPE. WhenCDTYPE=“P” (ICD-9-CM Surgical Procedures), UNITS is avalue created by the USRDS to indicate when the surgicalprocedure was performed, and time is expressed as the num-ber of days from the date given by CLM_FROM, withCLM_FROM counted as 1. A value of 1 for UNITS indicatesthat the procedure was performed on the date given byCLM_FROM, and 2 indicates the day after CLM_FROM.

When CDTYPE=“R,” UNITS is described in the CMS file docu-mentation as “a quantitative measure (unit) of services pro-vided to a beneficiary associated with accommodation andancillary revenue centers described on an institutional claim.Depending on the type of service, units are measured by num-ber of covered days in a particular accommodation, pints ofblood, emergency room visits, clinic visits, dialysis treatments(sessions or days), outpatient therapy visits, and outpatientclinical diagnostic laboratory tests.” The revenue center codeor the HCPCS code indicates the type of service.

Because the meaning of UNITS varies greatly, the variablemust be used with caution. When using this variable, tabulatethe distribution of values over the records you are analyzingto ensure that the values look correct.

When CDTYPE=“I,” UNITS has a value of 1 or 0, where 1indicates that this was the primary diagnosis for this claimand 0 indicates that it was a secondary diagnosis. The claimdetails are not necessarily sorted with the primary diagnosiscoming first.

REV_CHREV_CH occurs only on Revenue Center details(CDTYPE=’R’) and indicates “the total charges (covered andnon-covered) for all accommodations and services (relatedto the revenue code) for a billing period before reduction forthe deductible and coinsurance amounts and before an ad-justment for the cost of services provided.” REV_CH corre-sponds in concept to the CLM_TOT variable on theInstitutional Claims file, as discussed above under RevenueCenter Details.

HCPCSThe CMS Common Procedure Coding Standard (HCPCS)“is a collection of codes that represent procedures, supplies,products, and services which may be provided to Medicarebeneficiaries and to individuals enrolled in private health in-surance programs.” The HCPCS code occurs only on Rev-enue Center (CDTYPE=’R’) details but may not be presenton all such records. HCPCS are an extension of the AmericanMedical Association CPT-4 codes. Codes for certain phar-maceuticals, laboratory procedures, durable medical equip-ment, and radiology procedures are added to the CPT-4 codesto form HCPCS.

URR_CDStarting in 1998, CMS began requiring the reporting of UreaReduction Ratios (URRs) on outpatient hemodialysis claims.The URR is reported as a range that reflects the results for themonth being billed. This information appears as a formattedvalue in the Revenue Center Details for hemodialysis claims.

PHYSICIAN/SUPPLIER FILEIn the physician/supplier file a claim does not necessarily cor-respond to a logical spell of service, but is instead more likelyto represent all services provided to a patient during theprovider’s billing period. In addition, the claim line item is thelevel at which procedures and costs are specified. The physi-cian/supplier file is therefore constructed as a line item file,with one record per claim line item. For physician claims theclaim from and through dates can be used to at least identifya series of line items associated with a single visit. For supplier

Variable Name Type Length Format CommentUSRDS_ID Num 8 USRDS_ID

CDTYPE Char 1 $CDTYPEI. Defines type for CODE

CLM_FROM Num 8 MMDDYY10. Claim from date

CODE Char 5 See documentation for specific details

HCFASAF Char 1 $HCFASAF. SAF source of bill

HCPCS Char 5 HCPCs code

REV_CH Num 8 Revenue center total charge

SEQ_KEYC Char 2

UNITS Num 8

URR_CD Char 8 $URRFMT. Urea reduction ratio for reported hemo bills

REVPMT Num 8 Line item payment amount

Variables in the Institutional Claims Detail SAF FileTable B.2

56

and delivery date of the dialysate but not the time period overwhich that dialysate is to be dispensed.

Table B.3 shows the variables in the Physician/Supplier Claimsfiles. There are two types of records in this file, identified bythe value of the CDTYPE variables. CDTYPE =‘B’ indicates aphysician/supplier line item, which will have data in all of theother variables. The DIAG variable indicates the diagnosiscode associated with this line item. CDTYPE=‘I’ indicates thatthis record contains only a diagnosis code (DIAG); in thiscase the diagnosis code is associated with all line items on theclaim. Payment variables for these records should be miss-ing.

The physician/supplier specialty code (SPCLTY) can be ofparticular use in untangling the bills for a specific surgicalprocedure. The principal surgeon, physician surgical assis-tants, and even the anesthesiologist use the HCPCS referringto the major invasive surgery to bill for that surgery. Thecode for nephrologists is “39.”

The place of service variable (PLCSRV) indicates where theservice was rendered. It can be used to distinguish not onlybetween inpatient and outpatient services, but also betweenhome dialysis and in-unit dialysis supplies. The value “65”refers to an end-stage renal disease treatment center.

The CMS service code variable (HCSRVC) can be used todistinguish between the principal surgeon and assistants.Values of particular relevance to the renal community areimmunosuppressive drugs (“G”), renal supplier in the home(“L”), monthly capitation payment (dialysis) (“M”), and kid-ney donor (“N”).

There are three cost fields on each physician/supplier lineitem: submitted charges (SBMTCH), allowed charges(ALOWCH), which are the lower of three charges (prevail-ing, customary, or actual as determined by CMS), and thepayment amount (PMTAMT), the amount of payment tothe provider and/or beneficiary after deductible and co-in-surance amounts have been paid for the services included asa line item on a physician/supplier claim.

Medicare Claimsh


Variable Name Type Length Format CommentUSRDS_ID Num 8 USRDS patient ID number

CLM_FROM Date 8 Date7. From date of service

HCFASAF Char 1 $HCFASAF. CMS SAF source of this bill

Date7. always= 'P'

CLM_THRU Date 8 Thru date of service

CDTYPE Char 1 $HCCDTYP. Line item type

B'= 'Phy/supp line item'

I' = ICD-9-CM diagnosis'

DIAG Char 5 ICD-9-CM Diagnostic code

SAS format $ICD9D

SBMTCH Num 8 Submitted charges

ALOWCH Num 8 Allowed charges

PMTAMT Num 8 Claim payment amount

HCPCS Char 5 HCPCS Procedure Code

SAS format $HCPCS

SPCLTY Char 2 $PROVSP. Provider Specialty Code

SAS format $PROVSP.

PLCSRV Char 2 $PLACESV. Place of Service

SAS Format $PLACESV

HCSRVC Char 1 $HCFSVC. HCFA Service Code

CMS format $HCFASVC.

SRVCCT Num 8 Number of services

PYRCOD Char 1 $PRPAYR. Primary Payer Code

Variables in the Physician/Supplier FileTable B.3

Medicare Claimsh58

Statistic

al M

ethods

60 Statistical Methodsh


INTRODUCTIONIn order to obtain meaningful results in ESRD research, sta-tistical tools are needed. In this section we introduce somestatistical methods that are often used in ESRD research.

METHODS FOR CALCULATING RATESESRD incident rates, ESRD prevalent rates, death rates, andtransplant rates are often calculated for the total populationor by groups, such as year, network, state, Health ServiceArea (HSA), age, gender, and primary cause of ESRD. We cancalculate raw rates, model-based rates, or adjusted rates us-ing some statistical methods.

Raw ratesThe calculation of raw rates is quite straightforward. Somerates are based on counts while others are based on totalfollowup time. For example, incident rates and prevalent ratesare based on counts, but death rates are usually based onfollowup time. Suppose, for example, that state A had 1,600ESRD incident patients in 1999 and the state population sizewas 6,400,000.

The incident rate of state A in 1999 is: r= x 1,000,000 = 250 per million people.1,600

6,400,000

Suppose the total followup time of these patients in 1999 is1,100 patient years and 150 of them died in the incident year.The incident year death rate of state A is:

rd= x 1,000 = 136.4 per thousand pa tient years.1501,100

Calculating the standard errors for the estimated rates de-pends on the calculation of rates. If rate r depends on counts,

its standard deviation is r (r-1)n ,where n is the denominator of

r. When n is large and r is very small, we can estimate the

standard deviation by rn . If rate r depends on another fac-

tor only, the second method can be used to calculate the stan-dard deviations. If the units of the rates are changed (weassume 0 = r = 1 in the first method above), the standarddeviations will change accordingly.

Model-based ratesIf the sizes or total followup times are very small for somegroups the raw rates may not be stable, and some statisticalmodels will be needed. The most often used statistical modelsfor calculating rates are the Poisson Model and the Cox pro-portional regression model. Some software packages can givethe corresponding standard deviations, or you could simplyapply the Delta method based on some output. The general-ized mixed model used in the USRDS Annual Data Report isan example for calculating death rates, first hospitalizationrates, and first transplant rates. The Poisson model can beused without random effects according to the data.

The model used in the ADR is a generalized mixed linearmodel with log links, Poisson distribution, age, gender, race,primary diagnosis, their two-way interactions as fixed ef-fects, and their four-way interactions as random effects. Theresponse variable is death count and the offset is the log oftotal followup time. This model can produce the predicted

death counts. The predicted death rates are the predicteddeath counts divided by the total followup times. Most soft-ware packages can give the standard deviations for the pre-dicted counts, but not for predicted rates. The Delta methodor some other technique is needed to obtain the standarddeviations for the predicted death rates.

For the Cox regression model (if no covariate, it will reduceto the Kaplan-Meier method), the predicted cumulative haz-ard at time t is the death rate in time period (0,t], but specialattention must be paid to the unit of the death rate.

Adjusted ratesBecause of the make-up of patients, the raw rates might notbe able to reflect the difference between groups that might beconfounded by the differences between underlying popula-tion distributions. Therefore, adjusted rates, or standardizedrates, are needed in order to be comparable. When compar-ing rates adjusted for a particular factor, any remaining ob-served differences between groups cannot be attributed tobeing confounded by that factor. There are two main tech-niques for adjustment, which are referred to as direct andindirect methods, but only the direct method allows the ratesto be compared (Fleiss 1981). The indirect adjusted rates areusually used as a standard to compare with observed rates,such as in the Standard Mortality Ratio (SMR).

Direct adjustmentSupposing each group has many categories of interest, thedirect adjusted rate of each group is derived by applying theobserved category-specific rates in the group to a single stan-dard (or reference) population. This weighted average of theobserved category-specific rates, with the weights taken froma standard population, provides for each group a single sum-mary rate that reflects the numbers of events that wouldhave been expected if the group had had identical distribu-tion of the characteristic of interest as the reference. Thismakes the comparison valid, but the values of the adjustedrates are meaningless. Adjusted rates and their explanationare reference dependent. The reference population must havethe same categories as all of the groups. Caution is needed inchoosing reference populations.

The following is an example of how to calculate adjustedrates using the direct method (none of the values are real).Suppose we try to compare the state-level incidence rates in2000 under the assumption that the race distributions of allstates are the same. To do this, we need to calculate the stan-dardized incidence rates adjusted for race for each state. Be-cause the race distributions are quite different over states, thenational population is a good choice for the reference. Wechose the national population at the end of 2000 as the stan-dard population. Assuming the incidence rate of state A in2000 is 173 per million people, the race-specific rates of stateA and the national population distribution with respect torace are as shown in the table on the following page.

The adjusted incidence rate of state A with the national popu-

62

lation as the reference is (153 x 75.1%) + (250 x 12.3%) + (303x 0.9%) + (174 x 3.6%) + (220 x 8%) = 158.73 per millionpeople. That means if state A had had the same population(same race proportions) as the whole country, the incidentrate would have been 158.73 instead of 173.

The standard deviations for the adjusted rates can be calcu-lated in the following way. Calculate the standard deviationsfor each category-specific rate in each group as described forraw rate, convert them to variances (the square of the stan-dard deviation), and then calculate the weighted sums of thevariances as the variance of adjusted rates, where the weightsare the square of the weights in the calculation of adjustedrates. The square roots of the variances are the standard de-viations of the adjusted rates.

The disadvantages of this method are:♦ If one category in a group has a smaller population

(the denominator of the rate) the corresponding cat-egory-specific rate will be unstable, making the adjustedrate for this group unstable as well.

♦ If one category has no population in a group we cannotcalculate an adjusted rate for this group.

♦ There is no naïve method for calculating robust stan-dard errors for adjusted rates.

Indirect adjustmentThe indirect adjustment method is very similar to the directadjustment method. The indirect adjusted (standardized) ratefor a group is derived by applying the category-specific eventrates of the standard (reference) population to the group, i.e.it is the weighted average of the category-specific rates in thereference population with weights taken from the group. Theindirect adjusted rates can be interpreted as the rate of thegroup if it had had the same category-specific rates as thereference population.

For example, assume the population distribution with re-spect to race in state A and the national race-specific incidencerates (per million population) are as following (the values arenot true values):

The indirect adjusted rates of state A with national rates as thereference is (229 x 89.4%) +(970 x 3.5%) + (862 x 1.1%) +(396 x 2.9%) + (358 x 3%) = 270.38 per million people. Aslong as you choose a good reference, you can always calculatethe indirect adjusted rates. But the indirect adjusted rates arenot comparable. For example, if Minnesota and Illinois hadthe same population distribution with respect to race, theindirect standardized rates, adjusted for race with the na-tional population as the reference it will be the same no mat-ter how different the real incidence rates are between thesetwo states.

Model-based adjustmentBecause of the disadvantages of the direct adjustment method,a model-based adjustment method is needed. Sometimes wesimply run some models and substitute the average values ofthe covariates from the reference. Unless the model is linear,however, averaging on the covariates is not the same as aver-aging on the model, and the simple average might not be ableto provide appropriate results. An appropriate method is toobtain the predicted death rates for each category in eachgroup using a statistical model (described above), and thenuse the direct adjustment method (also described above) tocalculate adjusted rates based on predicted rates with the givenreference population. If there are continuous covariates in themodel, individual predicted rates are needed. In the followingexample, we use the state-level adjusted one-year death ratesof 1998 incidence patients to show implementation.

To calculate adjusted state-level one-year death rates for 1998incident patients, adjusted for age, gender, race, and primarydiagnosis, we need to calculate the predicted death rates for allintersection subgroups (categories) of age, gender, race, andprimary diagnosis in each state (group) using a model. TheCox regression model was used with state as a stratum vari-able because we needed to consider the survival time, and theproportionality of the baseline hazard functions over states isquestionable. The national 1998 ESRD incident patients werechosen as reference. The following are the procedures for cal-culating the adjusted death rates.

♦ Fit the Cox regression model with survival time as re-sponse variable, age, gender, race, and primary diagno-sis as explanatory variables, and state as the stratum

Incident Rate of State A

National Population

(%)

White 153 75.1Black 250 12.3Native Am. 303 0.9Asian/Pacific 174 3.6Other 220 8.0

National Incidence

Rate

Population in State A

(%)White 229 89.4Black 970 3.5Native Am. 862 1.1Asian/Pacific 396 2.9Other 358 3.0

Statistical Methodsh


variable.♦ Use the BASELINE statement in SAS Proc PHREG to

calculate the baseline survival at day 365 for all states.♦ Calculate one death rate for each subgroup in each state

at day 365 (one year) r=exp(xß)log (So), using the esti-mated effect coefficient ß and estimated survival of thestate at day 365 So, where X is the correspondingcovariate value of the subgroup.

♦ Calculate the weight for each subgroup based on thesurvival time in the first year of all 1998 incident pa-tients in the whole country.

♦ Calculate the adjusted death rate for each state basedon the predicted rates from step 3, the weights fromstep 4, and the direct adjustment method.

You can also calculate subgroup-specific death rates in steps 2and 3 based on individual predicted deaths. The method forcalculating adjusted survival is similar.One disadvantage for this method is that there is no closeform for calculating standard errors of the adjusted rates.The non-parametric Bootstrap method can be used. Thismethod works well, but the computation is time consuming.

SURVIVAL ANALYSISThe most commonly used methods in survival analyses arethe Kaplan-Meier method, the Log Rank method, and theCox proportional regression model. The Kaplan-Meiermethod is used to calculate survival probabilities; the LogRank method is used to compare the survival between two ormore groups; and the Cox proportional regression model isused to compare among groups and to make inferences. Thedifficulty with survival analysis is defining the starting point(time zero) for survival time, especially for observed study.The selection should be meaningful and should not causeselection bias. (Later or earlier starting points may excludesome patients.)

Kaplan-meierThe Kaplan Meier method (Kalbfleisch JD, Prentice RL) is themost widely used non-parametric method for survival analy-sis. It is used for calculating survival functions and death rates.The plot of the Kaplan-Meier estimate of the survival func-tion is a step-function, in which the estimated survival prob-abilities are constant between two successive death times whichdecrease at each death time. To find the survival probability attime t, you only need to find the closest death time t

i = t; the

survival probability at time ti is the estimate of survival prob-

ability at time t.

The standard error of the estimated survival probability attime t is given by the Greenwood formula. The confidenceinterval of the estimated survival probability at time t can begiven by assuming that the estimated survival is normallydistributed based on the standard error from the Greenwoodformula.

Log-rank testThe log-rank test (Kalbfleisch JD, Prentice RL, 1981) is amethod used to test the hypothesis that there is no differencein survival probabilities (over the time period) among groups.The general log-rank test does not take into account the effectof other factors, such as different age groups, multiple clinicalcenters, etc. If needed we can use the stratified log-rank test(stratified by the factors of interest), which will do the log-rank test for each stratum and give the testing result by com-bining the information from all strata. This method can onlytake account of factors that can be classified. It cannot takeaccount of continuous factors. If some strata have few pa-tients, the result might not be stable. The modeling approachis more flexible.

Cox regression modelThe Cox regression model (Kalbfleisch JD, Prentice RL, 1981)is the most widely used semi-parametric method in survivalanalysis. This method can be used to compare the survivalbetween (among) groups and to find risk factors.

The Cox model assumesh(t | X=x)=h

o(t)exp1(x

1ß+x

2ß

2+...+x

pß

p) where h(t | X=x)is

the hazard function and X=x=(X1,X

2,...,X

p),h

o(t) is the baseline

hazard, i.e. ho (t)=h(t|X=0), x = (x

1, x

2, …, x

p) are the potential

risk factors, and ß1, ß

2,…, ß

p are the corresponding effects. If ß

i

is significantly different from zero we consider Xi as a risk

factor.

This model is also called the Cox proportional regression modelbecause if two individuals have characteristic x1=(x

11, x1

2,…,

x1p) and x2=(x

12, x2

2,…, x2

p), respectively, then the ratio of their

hazard (relative risk) is:

])()()exp[()|(

)|( 211

22

121

21

112

1

ppp xxxxxxxXth

xXth βββ −+−+−===

L

which does not depend on time.

The basic assumption of the Cox regression model is the pro-portionality. There are some methods to test this assumption(Therneau and Grambsch, 2000). If the hazards are not pro-portional for a variable we can do the analysis stratified bythis variable. The stratified Cox model assumes the other fac-tors have the same effects in all strata, but different strata mayhave different (non-proportional) baseline hazards (usuallythey are not proportional). In the survival analysis of ESRDpatients, usually the hazards for diabetic patients and non-diabetic patients are not proportional.

BIBLIOGRAPHYFleiss, J.L. Statistics Methods for Rates and Proportions, NewYork: John Wiley and Sons, 1981.

Kalbfleisch, J.D. and Prentice, R.L., The Statistical Analysis ofFailure Time Data. New York: John Wiley and Sons, 1980.

Therneau, T.M., and Grambsch, P.M., Modeling Survival Data:Extending the Cox Model. New York: Springer, 2000.

64 Statistical Methodsh

Data File D

escr

iptio

ns

66 Data File Descriptionsh


♦ Core CD -1 Core CD -1 Core CD -1 Core CD -1 Core CD -1

71 Patient Profile .................................................. PATIENTS

72 Detailed Treatment History .............................. RXHIST

73 Transplant ....................................................... TX74 Census Population (1) ...................................... CPST3R

75 Census Population (2) ...................................... CPST4R

76 Census Population (3) ...................................... CPUS3R

77 Census Population (4) ...................................... CPUS4R

♦ Core CD-2 Core CD-2 Core CD-2 Core CD-2 Core CD-2

81 Medical Evidence Form ................................... MEDEVID

83 Residence ....................................................... RESIDENC

84 CMS/CDC ESRD Annual Facility .................... FACILITY

87 Payor History ................................................... PAYHIST

88 Condensed Treatment History .......................... RXHIST60

89 Transplant Wait List (Kidney) ........................... WAITLIST_KI

90 Transplant Wait List (Kidney Pancreas) ............ WAITLIST_KP

91 Transplant Wait List Sequence (Kidney) ........... WAITSEQ_KI

92 Transplant Wait List Sequence (Kidney Pan.) ... WAITSEQ_KP

93 Case Mix Adequacy Special Study...................... .. ADEQUACY

96 Case Mix Adquacy Spec. Study Facility...............ADQFACS

97 CAPD Peritonitis Special Study ....................... CAPD

99 Case Mix Severity Special Study ....................... CASEMIXS

101 Claim Codes ..................................................... CLMCODES

102 Case Mix Severity Special Study Facility ........... CMSFACS

103 Dialyzer ....................................................... DIALYZER

104 DMMS Wave 1 Special Study ........................... DMMSWAV1

109 DMMS Wave 2 Special Study ........................... DMMSWAV2

119 DMMS Wave 3 & 4 Special Study .................... DMMSWV34

124 Dialysis Facility ................................................. DMMSFACS1



127 Facility Cost Reports for Hospital Facility ........ FCOSHOS

133 Facility Cost Reports for Independ. Facility ...... FCOSIND

135 Pediatric Growth .............................................. PEDGROW

138 *Updated DMMS Wave 2 Data ........................ WAV2UPDT

* Additional dates from the USRDS database.


♦ T T T T Trrrrransplant CD-1ansplant CD-1ansplant CD-1ansplant CD-1ansplant CD-1

151 Kidney Transplant-UNOS ................................ TXUNOS

160 Kidney Transplant Followups-UNOS ................ TXFUUNOS

162 Immunosuppression at Followup-UNOS .......... TXIFUNOS

163 Immunosuppression at Registration-UNOS ....... TXIRUNOS

♦ T T T T Trrrrransplant CD-2ansplant CD-2ansplant CD-2ansplant CD-2ansplant CD-2

167 Kidney Transplant Followups-CMS ................. TXFUHCFA

168 Kidney Transplant-CMS .................................. TXHCFA

♦ H H H H Hospital CD-1ospital CD-1ospital CD-1ospital CD-1ospital CD-1

173 Hospitalization 1 .............................................. HOSP1

♦ H H H H Hospital CD-2ospital CD-2ospital CD-2ospital CD-2ospital CD-2

177 Hospitalization 2 .............................................. HOSP2

♦ DMMS C DMMS C DMMS C DMMS C DMMS Claims CD-1laims CD-1laims CD-1laims CD-1laims CD-1

181 Hospitalization ................................................. HOSP

182 Institututional Claims ...................................... INCLAIM


185 Institututional Claims Details .......................... INDETAIL


189 Physician/Supplier Claims ................................ PSCLAIM1


193 Physician/Supplier Claims ................................ PSCLAIM2

♦ C C C C Case Mase Mase Mase Mase Mix ix ix ix ix AAAAAdddddeeeeeqqqqquauauauauacy CDcy CDcy CDcy CDcy CD

197 Hospitalization................. ................................. HOSP

198 Institutional Claims .......................................... INCLAIM

199 Institutional Detail ........................................... INDETAIL

200 Physician/Supplier Claims ................................ PSCLAIM

♦ *I *I *I *I *Instnstnstnstnstituituituituitutttttioioioioional Denal Denal Denal Denal Detail Ctail Ctail Ctail Ctail Claims CDlaims CDlaims CDlaims CDlaims CD

203 Institutional Claims .......................................... INC2002

204 Institutional Claims Details .............................. DET2002

♦ *Ph *Ph *Ph *Ph *Phyyyyysician/Ssician/Ssician/Ssician/Ssician/Supupupupupplieplieplieplieplier Cr Cr Cr Cr Claims CDlaims CDlaims CDlaims CDlaims CD

207 Physician/Supplier ............................................ PS2002

* Claims files for both Institutional & Physician/Supplier CDs are based on the same file structures throughout each set of years.

Therefore, we only show the file descriptions for the most recent years.

CORE CD-1


PATIENTContains one record per patient in the USRDS database, and gives basic demographic and ESRD-related data.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentUSRDS_ID Num 8 BEST22. USRDS patient IDADRIND Num 8 This patient is included in the ADR cohortADRINDTXT Char 1 $ADRINDT Reason this patient was not included in the ADR cohortBORN Num 8 MMDDYY10. Date of BirthCDEATH Char 2 $DEATHFM. Primary cause of deathCDEATH2 Char 2 $DEATHFM. Secondary cause of death1CDEATH3 Char 2 $DEATHFM. Secondary cause of death2CDEATH4 Char 2 $DEATHFM. Secondary cause of death3CDEATH5 Char 2 $DEATHFM. Secondary cause of death4COUNTY Char 5 County (FIPS code)DIED Num 8 MMDDYY10. Date of DeathDISGRPC Char 1 $DISGRPC. Primary disease > ESRD: detailed groupFIRST_SE Num 8 MMDDYY10. Date of First ESRD ServiceINCAGEC Char 2 $AGE5YRC. Age at first ESRD service (5-yr groups)INCYEAR Num 4 Year of first esrd serviceNETWORK Char 2 $NETFMT. ESRD NetworkPDIS Char 6 $PD96DET. Primary disease causing ESRDRACE Char 1 $RACEFMT. Race of patientRXSTOP Char 1 $RXSTOP. Rx stopped prior to death (1990 on)SEX Char 1 $SEXFMT. Sex of patientSTATE Char 2 $STATFIP. StateTOTTX Num 4 Total transplants for this patientTX1DATE Num 8 MMDDYY10. Date of first transplantTX1DONOR Char 3 $DONOR. First transplant donor typeTX1FAIL Num 8 MMDDYY10. First transplant failure dateUSA Char 1 In USA? (Y/N)ZIPCODE Char 5 ZIP_ZIPCODE


RXHIST: Detailed Treatment HistoryAlso referred to as the Modality Sequence file; contains a new record for each patient at each change in treatment modality or dialysis provider.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS_IDBEGDATE Num 8 MMDDYY10. Start date of this periodBEGDAY Num 5 Start day of this period (start ESRD=1)ENDDATE Num 8 MMDDYY10. End date of this periodENDDAY Num 5 End day of this period (start ESRD=1)PROVUSRD Num 8 BEST. USRDS Assigned Facility IDRXDETAIL Char 2 $RXCATDT. Treatment modality this period (detail)RXGROUP Char 1 $RXCATGP. Treatment modality (training recoded)


TX: TransplantIncludes minimum details about all transplants from all sources.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS_IDDABO Char 3 $BLOOD. Donor Blood TypeDAGE Num 8 Donor AgeDONREL_O Char 1 $DTYPEDT. Contains the 1999 DONREL_P valuesDONREL_P Char 1 $DTYPEDT. Donor Type Detail-PMMISDONREL_U Char 1 $LREL. Donor Type Detail-UNOSDRACE Char 1 $RACEFMT. Donor RaceDSEX Char 1 $SEXFMT. Donor SexDTYPE Char 3 $DONOR. Donor TypeFAILDATE Num 8 MMDDYY10. Transplant Failure DateINCCOUNT Num 8 Sequence number of this transplantPROVUSRD Num 8 BEST. USRDS Assigned Facility IDRABO Char 3 $BLOOD. Recipient Blood TypeRACE Char 1 $RACEFMT. Recipient RaceRAGE Num 8 REcipient AgeRSEX Char 1 $SEXFMT. Recipient SexTDATE Num 8 MMDDYY10. Tranplant DateTOTTX Num 8 Total number of TXs/patientTX_SRCE Char 1 $TXSRC. Source of transplant recordYEAR Num 8 Year of transplant


CPST3R: Census PopulationCensus data, by state, and three races (White, Black, Other)

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntAGE Char 2 $AGE5YRC. Age in 5-year incrementsDEC31 Num 8 December 31 U.S. resident populationJUL1 Num 8 July 1 U.S. resident populationRACE Char 1 $RACEFMT. Race (white,black,other)SEX Char 1 $SEXFMT. SEXSTATE Char 2 $STATFIP. StateYEAR Num 8 YEAR


CPST4R: Census PopulationCensus data, by state, and four races (White, Black, Asian, Native American)

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntAGE Char 2 $AGE5YRC. Age in 5-year incrementsDEC31 Num 8 December 31 U.S. resident populationJUL1 Num 8 July 1 U.S. resident populationRACE Char 1 $RACEFMT. RaceSEX Char 1 $SEXFMT. SEXSTATE Char 2 $STATFIP. StateYEAR Num 8 YEAR


CPUS3R: Census PopulationCensus data for the US, by three races (White, Black, Other)

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntAGE Char 2 $AGE5YRC. Age in 5-year incrementsDEC31 Num 8 December 31 U.S. resident populationJUL1 Num 8 July 1 U.S. resident populationRACE Char 1 $RACEFMT. Race (white,black,other)SEX Char 1 $SEXFMT. SEXYEAR Num 8 YEAR


CPUS4R: Census PopulationCensus data for the US, by four races (White, Black, Asian, Native American)

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntAGE Char 2 $AGE5YRC. Age in 5-year incrementsDEC31 Num 8 December 31 U.S. resident populationJUL1 Num 8 July 1 U.S. resident populationRACE Char 1 $RACEFMT. RACESEX Char 1 $SEXFMT. SEXYEAR Num 8 YEAR

CORE CD-2


MEDEVID: Medical Evidence formContains full data from the 1995 version of the CMS Chronic Renal Disease Medical Evidence Form (CMS-2728), the source of data regardingthe primary disease causing renal failure and the start date of chronic renal dialysis. In April 1995, a new version of the form went into use thatincluded data on comorbidity, employment status, lab values at start of ESRD and Hispanic ethnicity.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentUSRDS_ID Num 8 BEST8. USRDS assigned patient IDAIDS Char 1 $YNCFMT. AIDS (Q16r)ALBUM Num 8 5.1 Serum Albumin (Q18c)ALBUMDT Num 8 MMDDYY10. Serum Albumin date (Q18c)ALBUMLM Num 8 5.1 Serum albumin lower limit (Q18d)ALCOH Char 1 $YNUFMT. Alcohol dependence (Q16o)ALGCON Char 1 Medical Evidence Algorithm ConflictAPDXTR Char 1 $YNUFMT. Bene appr for dial trainAPTXPR Char 1 $YNUFMT. Bene appr for pre-tx svcsBMI Num 8 Body Mass Index - CalculatedBORN Num 8 MMDDYY10. Birth DateBUN Num 8 4 BUN (Q18g)BUNDAT Num 8 MMDDYY10. BUN date (Q18g)CANCER Char 1 $YNUFMT. Cancer (Q16n)CARARR Char 1 $YNUFMT. Cardiac arrest (Q16d)CARFAIL Char 1 $YNUFMT. Congestive heart failure (16a)CRDATE Num 8 MMDDYY10. Date med ev record was posted to rebusCREA Num 8 5.1 Creatinine clearance (Q18f )CREADAT Num 8 MMDDYY10. Creatinine clearance date (Q18f )CTDATE Num 8 MMDDYY10. Date Atten Physician Signed Form (Q48)CURTSIT Char 1 $MESET. Curr Dial Treat Setting (Q35)CURTXS Char 1 $METXST. Current Status of Transplant (Q33)CVA Char 1 $YNUFMT. Cerebrovascular disease, CVA TIA (Q16g)DECBAS Char 1 Decision basisDIABINS Char 1 $YNUFMT. Diabetes, currently on insulin (Q16k)DIABPRIM Char 1 $YNUFMT. Diabetes, (primary or contrib.) (Q16j)DIALDAT Num 8 MMDDYY10. Date Regular Dialysis Began (Q23)DIALEDT Num 8 MMDDYY10. Date Dialysis Stopped (Q25)DIALRDAT Num 8 MMDDYY10. Return dialysis, tx nonfunction (Q34)DIALSET Char 1 $MESET. Primary Dialysis Setting (Q21)DIALTYP Char 1 $MEDIATP. Primary Type of Dialysis (Q22)DIED Num 8 MMDDYY10. Date of DeathDRUG Char 1 $YNUFMT. Drug dependence (Q16p)DVA Char 1 $YNUFMT. DVA coverage (Q10b)DYSRHYT Char 1 $YNUFMT. Cardiac dysrhythmia (Q16e)EDITIND Char 1 Data Edit ErrorsEMPCUR Char 1 $EMPSTAT. Current employment status (Q15)EMPGRP Char 1 $YNUFMT. Employer group health insurance (Q10d)EMPPREV Char 1 $EMPSTAT. Previous employment status (Q15)EPO Char 1 $YNUFMT. Pre-Dialysis/Tx EPO Administered (Q17)ESRDCER Char 1 $YNUFMT. 52 Network confirmed as ESRDETHN Char 1 $MEETH. Hispanic Ethnicity (Q8)FACSTD Num 8 MMDDYY10. Patient Started Current Facility (Q24)G F R Num 8 GFR Calculated (Ab. Levey or Schwartz)HECRDT Num 8 MMDDYY10. Hematocrit date (Q18a)HECRIT Num 8 5.1 Hematocrit (Q18a)HEGLB Num 8 5.1 Hemoglobin (Q18b)HEGLBDT Num 8 MMDDYY10. Hemoglobin date (Q18b)HEIGHT Num 8 11 Patient Height (Q13)HIV Char 1 $YNCFMT. HIV positive status (Q16q)HYPER Char 1 $YNUFMT. Hypertension (Q16i)IHD Char 1 $YNUFMT. Ischemic heart disease (Q16b)INC_AGE Num 8 Age at incidence (ESRD date from profile)MDCD Char 1 $YNUFMT. Medicaid coverage (Q10a)MDCR Char 1 $YNUFMT. Medicare coverage (Q10c)MDCRCOD Char 1 $YNUFMT. Patient applying for medicare (Q11)M I Char 1 $YNUFMT. Mycardial infarction (Q16c)NETADT Num 8 MMDDYY10. Network Action DateNETWORK Char 2 $NETFMTN. Network number (Q55)NOAMBUL Char 1 $YNUFMT. Inability to ambulate (Q16s)NOCOV Char 1 $YNUFMT. No medical insurance (Q10f )


MEDEVID: Medical Evidence form (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentNOTRANS Char 1 $YNUFMT. Inabliity to transfer (Q16t)OTHCOV Char 1 $YNUFMT. Other medical insurance (Q10e)PATSIGN Num 8 MMDDYY10. Date Pt. signed form (Q51)PDIS Char 6 $PD96DET. 12 Prim cause renal failure trailerPERICAR Char 1 $YNUFMT. Pericarditis (Q16f )PULMON Char 1 $YNUFMT. Chronic obstruc pulmon disease (Q16l)PVASC Char 1 $YNUFMT. Periperal vascular disease (Q16h)RACE Char 1 $MERACE. Race (Q9)SERCR Num 8 5.1 Serum creatinine (Q18e)SERCRDT Num 8 MMDDYY10. Serum creatinine date (Q18e)SEX Char 1 $MESEX. Sex (Q07)SMOKE Char 1 $YNUFMT. Tobacco use (Q16m)TDATE Num 8 MMDDYY10. Date of transplant (Q27)TRCERT Char 1 Patient has/will complete training (Q40)TRNEND Num 8 MMDDYY10. Date patient expect complete train (Q41)TRSTDAT Num 8 MMDDYY10. Date training began (Q38)TXADMDT Num 8 MMDDYY10. Date pt admitted in prep for tx (Q30)TYPTRN Char 1 $MEDIATP. Type of dialysis training (Q39)UREA Num 8 5.1 Urea (Q18h)UREADT Num 8 MMDDYY10. Urea date (Q18h)WEIGHT Num 8 11 Patient weight (Q14)


RESIDENC: ResidenceProvides a longitudinal record to ZIP code level of each patient's place of residence.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS patient IDBEGRES Num 8 MMDDYY10. Starting date for this periodCOUNTY Char 5 County (FIPS code)ENDRES Num 8 MMDDYY10. Ending date for this periodFSD Num 8 MMDDYY10. First ESRD service during this periodNETWORK Char 2 $NETFMT. ESRD NetworkSTATE Char 2 $STATFIP. State (FIPS code)USA Char 1 In USA? (Y/N)ZIPCODE Char 5


FACILITY: CMS/CDC ESRD Annual FacilityThe CMS ESRD Annual Facility Survey and the CDC Dialysis Surveillance Survey are the sources of survey data for the Facility SAF, which can belinked to the Facility Cost Report files using the USRDS provider ID. Because of this link, geographic variables that could be used to identify facilitieshave been deleted. The survey period is January 1 through December 31.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentBEG_TOT Num 8 BEST. 03 TotalCADDONOR Num 8 BEST. 49 Cadaveric DonorCAPD Char 1 $YNYNFMT. CAPD IndicatorCAPHOME Num 8 BEST. 23 Home Dialysis - CAPDCAPINTRG Num 8 BEST. 18 Self Dialysis Training - CAPDCATRAIND Num 8 BEST. 32 CAPDCATRGTRT Num 8 BEST. 40 CAPDCCPD Char 1 $YNYNFMT. CCPD IndicatorCCPHOME Num 8 BEST. 24 Home Dialysis - CCPDCCPINTRG Num 8 BEST. 19 Self Dialysis Training - CCPDCCTRAIND Num 8 BEST. 33 CCPDCCTRGTRT Num 8 BEST. 41 CCPDCERTCODE Char 1 $FSCERT. Certification TypeCERTDATE Num 8 DATE9. Date of Cert. to provide renal serv.CHAIN_ID Char 10 Chain IDCTRTXPLT Num 8 BEST. 53 Transplanted at this facilityCTR_LOSS Num 8 BEST. 56 Non-Viable KidneysCTR_OUT Num 8 BEST. 55 Sent Outside the U.S.CTR_SENT Num 8 BEST. * Total Sent (54+55)CTR_TOT Num 8 BEST. 57 TotalCTR_US Num 8 BEST. 54 Sent to Another U.S. facilityDMEDAPPR Num 8 BEST. 27 Currently enrolled in MedicareDMEDPEND Num 8 BEST. 28 Medicare Application PendingDNONMED Num 8 BEST. 29 Non-MedicareDREUSE Num 8 Does facility reuse dialyzers for some or all patients? 1=yes 0=noDSTCNTCT Num 8 # of full/part-time staff with direct contactDSTVAC Num 8 How many staff had at least 3 doses of Hep-B?DXGERMA Num 8 1=yes 0=no Indicator var AmuchinaDXGERMF Num 8 1=yes 0=no Indicator var FormaldehydeDXGERMG Num 8 1=yes 0=no Indicator var Glutraraldehyde (Diacide)DXGERMH Num 8 1=yes 0=no Indicator var HeatDXGERMO Num 8 1=yes 0=no Indicator var OtherDXGERMR Num 8 Peracetic acid 1=yes 0=noDX_WAIT Num 8 BEST. 51 DialysisEND_TOT Num 8 BEST. 26 Total PatientsFS_YEAR Char 4 $4 Facility Survey Survey YearFYEND Char 4 $4 MMDD of Fiscal Year EndHEMHOME Num 8 BEST. 21 Home Dialysis - HemoHEMINTRG Num 8 BEST. 16 Self Dialysis Training - HemoHEMO Char 1 $YNYNFMT. Staff Assisted Hemo. IndicatorHEMOSC Char 1 $YNYNFMT. In-Unit Self-Care Hemo. IndicatorHEMOTRNG Char 1 $YNYNFMT. Hemo. Training IndicatorHEMSLSTF Num 8 BEST. 14 Outpatient Dialysis - HemoHTRGTRT Num 8 BEST. 38 HemodialysisIHRESTRT Num 8 BEST. 05B Home - RestartedIHTRFOUT Num 8 BEST. 11B Home - Transfered to Another UnitIH_BEG Num 8 BEST. 02 HomeIH_DEATH Num 8 BEST. 08B Home - DeathsIH_DISCO Num 8 BEST. 12B Home - Discontinued DialysisIH_END Num 8 BEST. 25 Total Home DialysisIH_LTFU Num 8 BEST. 13B Home - Other (LTFU)IH_RECOV Num 8 BEST. 09B Home - Recovered Kidney FunctionIH_RETTX Num 8 BEST. 07B Home - Returned after TXIH_START Num 8 BEST. 04B Home-Started for first time everIH_TRFIN Num 8 BEST. 06B Home - Transfered InIH_TXPLT Num 8 BEST. 10B Home - Received TransplantINCDC Num 8 Data present in CDC survey 1=yes 0=noINDTXPLT Num 8 BEST. 63 Transplanted at this facilityIND_LOSS Num 8 BEST. 66 Non-Viable KidneysIND_OUT Num 8 BEST. 65 Sent Outside the U.S.IND_SENT Num 8 BEST. * Total Sent (64+65)


FACILITY: CMS/CDC ESRD Annual Facility (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentIND_TOT Num 8 BEST. 67 TotalIND_US Num 8 BEST. 64 Sent to Another U.S. facilityINHCFA Num 8 Data present in HCFA survey 1=yes 0=noIURESTRT Num 8 BEST. 05A In-Unit - RestartedIUTRFOUT Num 8 BEST. 11A In-Unit - Transfered to Another UnitIU_BEG Num 8 BEST. 01 In-UnitIU_DEATH Num 8 BEST. 08A In-Unit - DeathsIU_DISCO Num 8 BEST. 12A In-Unit - Discontinued DialysisIU_END Num 8 BEST. 20 Total Outpatient DialysisI U _ LT F U Num 8 BEST. 13A In-Unit - Other (LTFU)IU_RECOV Num 8 BEST. 09A In-Unit - Recovered Kidney FunctionIU_RETTX Num 8 BEST. 07A In-Unit - Returned after TXIU_START Num 8 BEST. 04A In-Unit -Started for first time EverIU_TRFIN Num 8 BEST. 06A In-Unit - Transfered InIU_TXPLT Num 8 BEST. 10A In-Unit - Received TransplantLIVDONOR Num 8 BEST. * Total Living Donor (47+48)MED_VA Char 1 $MEDVA. Non-MC Renal Facility for which HCFA recNETWORK Char 2 2 ESRD Network NumberNTHTXPLT Num 8 BEST. 68 Transplanted at this facilityNTH_LOSS Num 8 BEST. 71 Non-Viable KidneysNTH_OUT Num 8 BEST. 70 Sent Outside the U.S.NTH_SENT Num 8 BEST. * Total Sent (69+70)NTH_TOT Num 8 BEST. 72 TotalNTH_US Num 8 BEST. 69 Sent to Another U.S. facilityNU_HBFS Num 8 1=Hopsital-based, 2=FreestandingNU_P_NP Char 10 FOR-PROFIT / NON-PROFIT indicatorOPATXPLT Num 8 BEST. 58 Transplanted at this facilityOPA_LOSS Num 8 BEST. 61 Non-Viable KidneysOPA_OUT Num 8 BEST. 60 Sent Outside the U.S.OPA_SENT Num 8 BEST. * Total Sent (59+60)OPA_TOT Num 8 BEST. 62 TotalOPA_US Num 8 BEST. 59 Sent to Another U.S. facilityOP_HTRT Num 8 BEST. 36 HemodialysisOP_PTRT Num 8 BEST. 37 IPDOTH_WAIT Num 8 BEST. 52 Non-DialysisPCRTCODE Char 1 $FSCERT. Prior certification typePCRTDATE Num 8 BEST22. Prior certification datePERHOME Num 8 BEST. 22 Home Dialysis - IPDPERI Char 1 $YNYNFMT. Staff Assisted Peri. IndicatorPERINTRG Num 8 BEST. 17 Self Dialysis Training - IPDPERISC Char 1 $YNYNFMT. In-Unit Self-Care Peri. IndicatorPERITRNG Char 1 $YNYNFMT. Peri. Training IndicatorPERSLSTF Num 8 BEST. 15 Outpatient Dialysis - IPDPROVST Char 2 2 State AbbreviationPROVUSRD Num 8 BEST. USRDS Assigned Facility IDP T R G T R T Num 8 BEST. 39 IPDPTRMCODE Char 1 $TERMCOD. Prior Termination reasonPTRMDATE Num 8 BEST22. Prior Termination DateRLIVDONR Num 8 BEST. 47 Living RelatedSHTRAIND Num 8 BEST. 30 HemodialysisSPTRAIND Num 8 BEST. 31 IPDSURVCERT Char 1 $FSCERT. Cert. Type for Fac. Survey PurposesTDSCRD Num 8 BEST. 78 Discarded KidneysTERMCODE Char 1 $TERMCOD. Reason facility terminatedTERMDATE Num 8 DATE9. Termination DateTMEDAPPR Num 8 BEST. 43 Currently Enrolled in MedicareTMEDPEND Num 8 BEST. 44 Medicare Application PendingTNONMED Num 8 BEST. * Total Non-Medicare (45+46)TONONMED Num 8 BEST. 46 Non-Medicare - OtherTOTSTAS Num 8 BEST. Total Number of Dialysis StationsTOT TXPLT Num 8 BEST. 73 Transplanted at this facilityTOT_LOSS Num 8 BEST. 76 Non-Viable KidneysTOT_OUT Num 8 BEST. 75 Sent Outside the U.S.TOT_SENT Num 8 BEST. * Total Sent (74+75)TOT_TXPL Num 8 BEST. 50 Total (sum of 47 thru 49)


FACILITY: CMS/CDC ESRD Annual Facility (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentTOT_US Num 8 BEST. 74 Sent to Another U.S. facilityTRSCRCH Num 8 BEST. 77 Used for researchTRSI_PAT Num 8 BEST. 34 Treated during Survey PeriodTRSI_TRT Num 8 BEST. 35 Number of outpatient treatmentsTUNONMED Num 8 BEST. 45 Non-Medicare - U.S. ResidentTXPL_PAT Num 8 BEST. 42 Patients transplanted at this facil.TYPOWNER Char 2 $FSOWN. Type of OwnershipULIVDONR Num 8 BEST. 48 Living Unrelated


PAYHIST: Detailed Treatment HistoryContains a new record for each patient at each change in payor.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 USRDS assigned unique identifierBEGDATE Num 8 MMDDYY10 Payor begin dateENDDATE Num 8 MMDDYY10 Payor end dateMCARE Char 7 $YNYNFMT. Medicare (Y/N)PAYER Char 27 $PAYCAT. Payer for this sequence:


RXHIST60: Condensed Treatment HistoryA condensed version of the RXHIST file. All modality periods that were less than 60 days are subjected to a collapse with adjacent cells of longerdurations.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS_IDBEGDATE Num 8 MMDDYY10. Start date of this periodBEGDAY Num 5 Start day of this period (start ESRD=1)ENDDATE Num 8 MMDDYY10. End date of this periodENDDAY Num 5 End day of this period (start ESRD=1)PROVUSRD Num 8 BEST. USRDS Assigned Facility IDRXGROUP Char 1 $RXCATGP. Treatment modality (training recoded)


WAITLIST_KI: Transplant Waiting List (Kidney)Contains one record for each patient per waiting list event in the USRDS database who can also be identified on the kidney transplant waitinglist maintained by UNOS.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS_IDABO Char 3 $BLOOD. Patient Blood TypeADATE Num 8 MMDDYY10. WL:Activation DateCPRA Num 8 Current PRADOB Num 8 MMDDYY10. Patient Date of BirthEDATE Num 8 MMDDYY10. WL:Listion DateHISP Char 1 $PMETHN. Hispanic/Non-HispanicORG_TYP Char 4 $ORGTP. Waitlist OrganPID Num 8 UNOS IDPPRA Num 8 Peak PRAPROVUSRD Num 8 BEST. USRDS Assigned Facility IDRA1 Num 8 A AntigenRA2 Num 8 A AntigenRACE Char 1 $RACEFMT. Patient RaceRB1 Num 8 B AntigenRB2 Num 8 B AntigenRDR1 Num 8 DR AntigenRDR2 Num 8 DR AntigenREMCODE Num 8 REMCD. Removal CodeREMDATE Num 8 MMDDYY10. Removal DateSEX Char 1 $SEXFMT. Patient GenderTDATE Num 8 MMDDYY10. Transplant Date


WAITLIST_KP: Transplant Waiting List (Kidney Pancreas)Contains one record for each patient per waiting list event in the USRDS database who can also be identified on the kidney transplant waitinglist maintained by UNOS.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS_IDABO Char 3 $BLOOD. Patient Blood TypeADATE Num 8 MMDDYY10. WL: Activation DateCPRA Num 8 Current PRADOB Num 8 MMDDYY10. Patient Date of BirthEDATE Num 8 MMDDYY10. WL: Listion DateHISP Char 1 $PMETHN. Hispanic/Non-HispanicORG_TYP Char 4 $ORGTP. Waitlist OrganPID Num 8 UNOS IDPPRA Num 8 Peak PRAPROVUSRD Num 8 BEST22. USRDS Assigned Facility IDRA1 Num 8 A AntigenRA2 Num 8 A AntigenRACE Char 1 $RACEFMT. Patient RaceRB1 Num 8 B AntigenRB2 Num 8 B AntigenRDR1 Num 8 DR AntigenRDR2 Num 8 DR AntigenREMCODE Num 8 REMCD. Removal CodeREMDATE Num 8 MMDDYY10. Removal DateSEX Char 1 $SEXFMT. Patient GenderTDATE Num 8 MMDDYY10. Transplant Date


WAITSEQ_KI: Transplant Waiting List Sequence (Kidney)A condensed waiting list date sequence file for kidney which is center-specific and therefore contains beginning and ending dates for each patientat each transplant center where patients are registered on the waiting list. Investigators who wish to investigate the raw UNOS kidney waitinglist file should refer to WAITLIST_KI. Also refer to Transplant Process & Outcomes, for a more detailed description of these files.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS_IDBEGIN Num 8 MMDDYY10. A New Waiting Period Starting DateENDING Num 8 MMDDYY10. A New Waiting Period Starting DatePID Num 8 UNOS IDPROVUSRD Num 8 BEST22. USRDS Assigned Facility ID


WAITSEQ_KP: Transplant Waiting List Sequence (Kidney Pancreas)A condensed waiting list date sequence file for kidney-pancreas which is center-specific and therefore contains beginning and ending dates foreach patient at each transplant center where patients are registered on the waiting list. Investigators who wish to investigate the raw UNOSkidney-pancreas waiting list file should refer to WAITLIST_KP. Also refer to Transplant Process & Outcomes, for a more detailed description ofthese files.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS_IDBEGIN Num 8 MMDDYY10. A New Waiting Period Starting DateENDING Num 8 MMDDYY10. A New Waiting Period Starting DatePID Num 8 UNOS IDPROVUSRD Num 8 BEST22. USRDS Assigned Facility ID


ADEQUACY: Case Mix Adequacy Special StudyContains the Case Mix Adequacy Special Study file and extracts data from all other SAFs for the patients in this study. All data on Medicareand payments for these patients are followed to the currently reported claims year. Along with analyses related to the study itself, this file isuseful for developing analyses that will alter and be run on the full Medicare payment files.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST32. USRDS patient ID numberABS_PULS Char 1 $YESNO. AQP B 4c: Absent foot pulsesACCESS1 Char 1 $VASCFMT. AQP C 5h: Vascular access (1)ACCESS2 Char 1 $VASCFMT. AQP C 5h: Vascular access (2)AFT_WTKG Num 8 BEST32. AQP C 2: Dry weight - kilogramsAFT_WTLB Num 8 BEST32. AQP C 2: Dry weight - poundsAIDS Char 1 $AIDSFMT. AQP B12: Diagnosed with AIDS?ALONE Char 1 $LIVFMT. AQP C 9: Living aloneAMPUTATA Char 1 $SUSPCT. AQP B 4b: Amputation due to PVDANGINA Char 1 $SUSPCT. AQP B 2b: AnginaANGIOGRA Char 1 $YESNO. AQP B 2e: Coronary angiographyANGIOPLA Char 1 $YESNO. AQP B 2d: Coronary angioplastyAN_GRABN Char 1 $YESNO. AQP B 2e: Angiography abnormal?ARRHYTHM Char 1 $SUSPCT. AQP B 5e: ArrhythmiaARTERLO Char 1 $YESNO. AQP B 4e: ArteriographyASTHMA Char 1 $SUSPCT. AQP B 8b: AsthmaATR_FIBR Char 1 $SUSPCT. AQP B 5d: Atrial fibrillationBFR Num 8 BEST32. AQP C 5f: Blood flow rateBILIRUB Num 8 BEST32. AQP D 3: Bilirubin totalBLUECROS Char 1 $1.00 AQP A12a: Blue CrossBUN1 Num 8 DATE7. AQP D12: Date of BUN 1BUN2 Num 8 DATE7. AQP D12: Date of BUN 2BUN3 Num 8 DATE7. AQP D12: Date of BUN 3BUN4 Num 8 DATE7. AQP D12: Date of BUN 4BUN5 Num 8 DATE7. AQP D12: Date of BUN 5BUN6 Num 8 DATE7. AQP D12: Date of BUN 6BUN_O1 Num 8 BEST32. AQP D15: PRE BUN one month after onsetBUN_O2 Num 8 BEST32. AQP D15: POST BUN one month after onsetBUN_O3 Num 8 BEST32. AQP D15: PRE* BUN one month after onsetCABG Char 1 $YESNO. AQP B 2c: Bypass SurgeryCARDARR Char 1 $YESNO. AQP B 2f: Cardiac arrestCEREBROV Char 1 $SUSPCT. AQP B 3a: Cerebrovascular AccidentCHD_CAD Char 1 $SUSPCT. AQP B 2a: Prior Dx of CHD/CADCHOLEST Num 8 BEST32. AQP D 5a: CholesterolCIRRHOS Char 1 $SUSPCT. AQP B10b: CirrhosisCLAUDIC Char 1 $YESNO. AQP B 4d: ClaudicationCOMPDATE Num 8 DATE7. AQP A 3: Date of CompletionCONG_HRT Char 1 $SUSPCT. AQP B 5a: Congestive heart failureCOPD Char 1 $SUSPCT. AQP B 8a: Chronic obst pulm diseaseCREAT1 Num 8 BEST32. AQP D10: Serum Creatinine, predialysisDIAB_RET Char 1 $SUSPCT. AQP B 7d: Diabetic retinopathyDIALYSAT Char 1 $DISATE. AQP C 5a: DialysateDIALYZER Char 3 $3.00 AQP C 5g: Dialyzer typeDUR_DIAB Char 2 $2.00 AQP B 7b: Duration of Diabetes (years)DUR_HYPR Char 2 $2.00 AQP B 6b: Duration hypertension (years)DX_DIAB Char 1 $SUSPCT. AQP B 7: Prior Dx of DiabetesEARLDIAL Num 8 DATE7. AQP A10b: Date earliest DialysisECHOCARD Char 1 $YESNO. AQP D2b: LVH by echocardiographyEDUCAT Char 1 $EDUC. AQP C12: EducationEKG Char 1 $YESNO. AQP D2a: LVH by EKGEPO Char 1 $YESNO. AQP D 9: Taking EPO at SSDETHNIC Char 1 $ETHFMT. AQP A13: Ethnicity (Hispanic or not)EVREMPLV Char 1 $EMPLOY. AQP C11a: Highest emp level EVERFID Char 6 $6.00 AQP Pg1: Unique Form IDFIRSDIAL Num 8 DATE7. AQP A10a: Date First DialysisHBSAG Char 1 $HBSAG. AQP D 4: HBsAGHEMATO Num 8 BEST32. AQP D 8: HematocritHEMO_HRS Num 8 BEST32. HEMO_HRSHEMO_MIN Num 8 BEST32. AQP C 5b: Prescribed mins. per treatmenHEPATIT Char 1 $SUSPCT. AQP B10a: HepatitisHHEMO Num 8 DATE7. AQP E3: Date of switch to home hemo


ADEQUACY: Case Mix Adequacy Special Study (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntHIV Char 1 $HIVFMT. AQP B11: HIV StatusHOUSMEMB Num 8 BEST32. AQP C10: Household membersHT_CM Num 8 BEST32. AQP C 1: Height - cm.HT_FT Num 8 BEST32. HT_FTHT_IN Num 8 BEST32. HT_INHX_HYPER Char 1 $SUSPCT. AQP B 6: History of hypertensionIND_AMBU Char 1 $YESNO. AQP C 7c: Independent AmbulatingIND_EAT Char 1 $YESNO. AQP C 7a: Independent eatingIND_XFER Char 1 $YESNO. AQP C 7b: Independent transferringINSSD Num 8 DATE7. AQP A11: SSD per instructionsINSULIN Char 1 $INSLFMT. AQP B 7e: Insulin therapy everLASTDI Num 8 DATE7. AQP E7: Date of last known dialysisLSTFU Num 8 DATE7. AQP E6: Date lost to Follow-upMAR_STAT Char 1 $MARSTAT. AQP C 8: Marital statusMEDICAID Char 1 $1.00 AQP A12c: MedicaidMEDICARE Char 1 $1.00 AQP A12b: MedicareMETASTAS Char 1 $YESNO. AQP B 9c: Known metastasesMI Char 1 $YESNO. AQP B 2g: Myocardial infarctionMIDATE Char 4 $4.00 AQP B 2g: Date of last MINEOPLASM Char 1 $SUSPCT. AQP B 9: NeoplasmsNEO_DATE Char 4 $4.00 AQP B 9b: Date of first neoplasm DxNEO_TYPE Char 20 $20.00 AQP B 9a: Neoplasm primary site/typeNEWID Char 6 $6.00 AQP Pg1: Numeric portion of FIDNO_INS Char 1 $1.00 AQP A12g: No insuranceNUMTRANS Num 8 BEST32. AQP D 8b: Number of Trans receivedNUT_STAT Char 1 $NUTFMT. AQP C 3: Nutritional StatusOCCUPAT Char 1 $OCCUP. AQP C13: Occupation level before ESRDOTH_INS Char 1 $1.00 AQP A12f: Other insuranceOXYGEN Char 1 $SUSPCT. AQP B 8c: Home oxygen prescribedPERICARD Char 1 $SUSPCT. AQP B 5c: PericarditisPERIDATE Char 4 $SUSPCT. AQP B 5c: date Periarditis diagnosisPERIDIA Num 8 DATE7. AQP E2: Date of switch to PDPHOSPH Num 8 BEST32. AQP D 7: Serum phosphorousPOSTBUN1 Num 8 BEST32. AQP D12: BUN postdialysis (1)POSTBUN2 Num 8 BEST32. AQP D12: BUN postdialysis (2)POSTBUN3 Num 8 BEST32. AQP D12: BUN postdialysis (3)POSTBUN4 Num 8 BEST32. AQP D12: BUN postdialysis (4)POSTBUN5 Num 8 BEST32. AQP D12: BUN postdialysis (5)POSTBUN6 Num 8 BEST32. AQP D12: BUN postdialysis (6)POSTWT_1 Num 8 BEST32. AQP D12: Weight postdialysis (1)POSTWT_2 Num 8 BEST32. AQP D12: Weight postdialysis (2)POSTWT_3 Num 8 BEST32. AQP D12: Weight postdialysis (3)POSTWT_4 Num 8 BEST32. AQP D12: Weight postdialysis (4)POSTWT_5 Num 8 BEST32. AQP D12: Weight postdialysis (5)POSTWT_6 Num 8 BEST32. AQP D12: Weight postdialysis (6)PREBUN1A Num 8 BEST32. AQP D12: Second BUN predialysis (1)PREBUN2A Num 8 BEST32. AQP D12: Second BUN predialysis (2)PREBUN3A Num 8 BEST32. AQP D12: Second BUN predialysis (3)PREBUN4A Num 8 BEST32. AQP D12: Second BUN predialysis (4)PREBUN5A Num 8 BEST32. AQP D12: Second BUN predialysis (5)PREBUN6A Num 8 BEST32. AQP D12: Second BUN predialysis (6)PREBUN_1 Num 8 BEST32. AQP D12: First BUN predialysis (1)PREBUN_2 Num 8 BEST32. AQP D12: First BUN predialysis (2)PREBUN_3 Num 8 BEST32. AQP D12: First BUN predialysis (3)PREBUN_4 Num 8 BEST32. AQP D12: First BUN predialysis (4)PREBUN_5 Num 8 BEST32. AQP D12: First BUN predialysis (5)PREBUN_6 Num 8 BEST32. AQP D12: First BUN predialysis (6)PREWT_1 Num 8 BEST32. AQP D12: First Weight predialysis (1)PREWT_2 Num 8 BEST32. AQP D12: First Weight predialysis (2)PREWT_3 Num 8 BEST32. AQP D12: First Weight predialysis (3)PREWT_4 Num 8 BEST32. AQP D12: First Weight predialysis (4)PREWT_5 Num 8 BEST32. AQP D12: First Weight predialysis (5)PREWT_6 Num 8 BEST32. AQP D12: First Weight predialysis (6)PREWT_1A Num 8 BEST32. AQP D12: Second Weight predialysis (1)PREWT_2A Num 8 BEST32. AQP D12: Second Weight predialysis (2)


ADEQUACY: Case Mix Adequacy Special Study (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentPREWT_3A Num 8 BEST32. AQP D12: Second Weight predialysis (3)PREWT_4A Num 8 BEST32. AQP D12: Second Weight predialysis (4)PREWT_5A Num 8 BEST32. AQP D12: Second Weight predialysis (5)PREWT_6A Num 8 BEST32. AQP D12: Second Weight predialysis (6)PRE_DBP Num 8 BEST32. AQP C 4a: DBP at SSD / predialysisPRE_SBP Num 8 BEST32. AQP C 4a: SBP at SSD / predialysisPRIVATE Char 1 $1.00 AQP A12d: PrivatePST_DBP Num 8 BEST32. AQP C 4b: DBP at SSD / postdialysisPST_SBP Num 8 BEST32. AQP C 4b: SBP at SSD / postdialysisPSYCH_EV Num 8 DATE7. AQP C 6: Date Pyscho-social evaluationPULM_EDE Char 1 $SUSPCT. AQP B 5b: Pulmonary edemaPVD Char 1 $SUSPCT. AQP B 4a: Peripheral Vascular DiseaseRECOVER Num 8 DATE7. AQP E5: Date of Recov Renal FunctionREUSE Char 1 $YESNO. AQP C 5d: Reuse of dialyzerSER_ALBU Num 8 BEST32. AQP D11: Serum AlbuminSESSIONS Num 8 BEST32. AQP C 5c: No. sessions per weekSHRTDIAL Char 2 $2.00 AQP D13: No. of treat short by 10minSKIPDIAL Char 2 $2.00 AQP D14: No. of treat skippedSMOKING Char 1 $SMOKFMT. AQP B 1: Smoking statusSSD Num 8 DATE7. AQP Pg1: Study Start DateSSD2 Num 8 DATE7. AQP Pg2: SSD page 2SSD3 Num 8 DATE7. AQP Pg3: SSD page 3SSDEMPLV Char 1 $EMPLOY. AQP C11b: Emp level at SSDSUGAR Num 8 BEST32. AQP D 6: Highest blood sugarS_BIRTH Num 8 DATE7. AQP A 9: Date of BirthS_DIED Num 8 DATE7. AQP E4: Date of DeathS_NETWK Char 2 $NETFMT. AQP A 1: NetworkS_SEX Char 1 $GENDFMT. AQP A 4: Patients sexS_TDATE Num 8 DATE7. AQP E1: Transplant DateTIA Char 1 $SUSPCT. AQP B 3b: Transient ischeimc attacksTRANS Char 1 $YESNO. AQP D 8a: Transfusion / 30 days of SSDTRIGLY Num 8 BEST32. AQP D 5b: TriglyceridesTRT_HYP Char 1 $YESNO. AQP B 6c: Hypertension at time of SSDTYPE700 Char 10 $10.00 AQP C 5g: Specfic Code 700 dialyzerTYP_DIAB Char 1 $TYPDIAB. AQP B 7c: Type of diabeticUNITSKGS Char 1 $1.00 AQP D12: Units of measurement-kilogramsUNITSLBS Char 1 $1.00 AQP D12: Units of measurement-poundsUSRDSPRO Num 8 BEST32. USRDS provider ID numberVA Char 1 $1.00 AQP A12e: VAWTLOSSKG Num 8 BEST32. AQP C 5e: Highest wt loss - kgs.WTLOSSLB Num 8 BEST32. HIGHEST_WT_LOSS_IN_LBXRAY Char 1 $YESNO. AQP D 1: Cardiomegaly by X-rayYR_DIAB Char 2 $2.00 AQP B 7a: Year of Dx of DiabetesYR_HYPER Char 2 $2.00 AQP B 6a: Year hypertension diagnosis


ADQFACS: Case Mix Adequacy Special Study FacilityContains the Case Mix Adequacy Special Study file and extracts data from all other SAFs for the patients in this study. All data on Medicareand payments for these patients are followed to the currently reported claims year. Along with analyses related to the study itself, this file isuseful for developing analyses that will alter and be run on the full Medicare payment files.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntABSTINIT Char 2 2 AQF 2: AbstractorBLEACH Char 1 $YN12FMT. AQF 7c1: Bleach UsedCHARCOAL Char 1 $YN12FMT. AQF 9b: Activated Charcoal UsedCOMPDATE Num 8 DATE7. AQF 3: Date fac form complDEIONIZE Char 1 $YN12FMT. AQF 9d: Dionization UsedFORMALIN Char 1 $YN12FMT. AQF 7c2: Formalin UsedGLUTARAL Char 1 $YN12FMT. AQF 7c4: Glutaraldehyde UsedPROVUSRD Num 8 BEST32. USRDS provider ID numberRENALIN Char 1 $YN12FMT. AQF 7c3: Renalin UsedREUSETEC Char 1 $REU_TEC. AQF 7b: Reuse TechniqueREVOSMOS Char 1 $YN12FMT. AQF 9c: Reverse Osmosis UsedSOFTENER Char 1 $YN12FMT. AQF 9a: Water Softener UsedSTOPREUS Num 8 DATE7. AQF 7a: Date Reuse StoppedSTRTREUS Num 8 DATE7. AQF 7a: Date Reuse StartedS_NETWK Char 2 $NETFMT. AQF 1: NetworkTOPRESNT Char 1 1 AQF 7a: Reuse through to presentUKMODEL Char 1 1 AQF 6: Urea Kinetic ModelingULTRFILT Char 1 $YN12FMT. AQF 9e: Ultrafilter UsedUNITREUS Char 1 1 AQF 7: Reuse at UnitWATERSRC Char 1 $WAT_SRC. AQF 8: Water Source 1:public 2:wel


CAPD: CAPD Peritonitis Special StudyThe USRDS CAPD and Peritonitis Rates Study examined the relationship of peritonitis episodes in CAPD patients to the connection devicetechnology and other factors.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST9. USRDS patient IDANT_TUB Char 1 $YNUFMT. CAP 20c: TUBING ANTISEPTIC USEDANT_TYP Char 1 $ANTISEP. CAP 20d: TYPE OF TUBING ANTISEPTIC USEDBORN Num 8 MMDDYY8. Birth DateBRAND Char 25 25 CAP 20b: BRAND NAME OF FIRST TECHNIQUECAPHOME Num 8 4 CAP 19: CAPD HOME METHODCATH_BY Char 1 $CATHBY. CAP 16: CATHETER PLACED BYCATH_DAT Num 8 MMDDYY. CAP 17b: CATHETER REMOVAL DATECATH_INS Num 8 MMDDYY. CAP 13: CATHETER INSERTION DATECATH_PA Char 1 $YNUFMT. CAP 15b: PROPHYLACTIC ANTIBIOTICS USEDCATH_REM Char 1 $YNUFMT. CAP 17a: CATHETER REMOVEDCATH_TEC Char 1 $CATHTEC. CAP 15a: CATHETER INSERTION TECHNIQUECATH_TYP Char 2 $CATHFMT. CAP 14a: CATHETER TYPE USEDCCPHOME Num 8 4 CCPD HOME METHODCOMBINED Num 8 BEST32. NUMBER OF CAPD+CCPD PATIENTS AT UNITCOMPDATE Num 8 MMDDYY8. CAP 4: Date completedCPDISGRP Num 8 3 CPDISGRPCUFF Char 1 $CUFFFMT. CAP 14b: NUMBER AND FORM OF CUFFSCUFF_PLC Char 1 $CUFFPLC. CAP 14c: DEEP CUFF PLACEMENTENDOBS Char 1 $CATHREM. CAP 21: CURRENT DATE IS END OF OBS. PERIEPI1 Num 8 MMDDYY. CAP 24a1: 1ST EPISODE START DATEEPI2 Num 8 MMDDYY. CAP 24a2: 2ND EPISODE START DATEEPI3 Num 8 MMDDYY. CAP 24a3: 3RD EPISODE START DATEEPI4 Num 8 MMDDYY. CAP 24a4: 4TH EPISODE START DATEEPI5 Num 8 MMDDYY. CAP 24a5: 5TH EPISODE START DATEEPI6 Num 8 MMDDYY. CAP 24a6: 6TH EPISODE START DATEEPI1_DCR Char 1 $DCRFMT. CAP 24e1: 1ST EPISODE, DIALYSATE CULT REEPI1_EXT Char 1 $YNUFMT. CAP 24b1: 1ST EPISODE, EXIT/TUNNEL INFECEPI1_HSP Char 1 $HOSPFMT. CAP 24d1: 1ST EPISODE, HOSPITALIZATIONEPI1_LK Char 1 $YNUFMT. CAP 24c1: 1ST EPISODE, CATHETER LEAKAGEEPI2_DCR Char 1 $DCRFMT. CAP 24e2: 2ND EPISODE, DIALYSATE CULT REEPI2_EXT Char 1 $YNUFMT. CAP 24b2: 2ND EPISODE, EXIT/TUNNEL INFECEPI2_HSP Char 1 $HOSPFMT. CAP 24d2: 2ND EPISODE, HOSPITALIZATIONEPI2_ID Char 1 $YNUFMT. CAP 24f2: 2ND EPISODE, CULT ORGANISM=LASEPI2_LK Char 1 1 CAP 24c2: 2ND EPISODE, CATHETER LEAKAGEEPI3_DCR Char 1 $DCRFMT. CAP 24e3: 3RD EPISODE, DIALYSATE CULT REEPI3_EXT Char 1 $YNUFMT. CAP 24b3: 3RD EPISODE, EXIT/TUNNEL INFECEPI3_HSP Char 1 $HOSPFMT. CAP 24d3: 3RD EPISODE, HOSPITALIZATIONEPI3_ID Char 1 $YNUFMT. CAP 24f3: 3RD EPISODE, CULT ORGANISM=LASEPI3_LK Char 1 $YNUFMT. CAP 24c3: 3RD EPISODE, CATHETER LEAKAGEEPI4_DCR Char 1 $DCRFMT. CAP 24e4: 4TH EPISODE, DIALYSATE CULT REEPI4_EXT Char 1 $YNUFMT. CAP 24b4: 4TH EPISODE, EXIT/TUNNEL INFECEPI4_HSP Char 1 $HOSPFMT. CAP 24d4: 4TH EPISODE, HOSPITALIZATIONEPI4_ID Char 1 $YNUFMT. CAP 24f4: 4TH EPISODE, CULT ORGANISM=LASEPI4_LK Char 1 $YNUFMT. CAP 24c4: 4TH EPISODE, CATHETER LEAKAGEEPI5_DCR Char 1 $DCRFMT. CAP 24e5: 5TH EPISODE, DIALYSATE CULT REEPI5_EXT Char 1 $YNUFMT. CAP 24b5: 5TH EPISODE, EXIT/TUNNEL INFECEPI5_HSP Char 1 $HOSPFMT. CAP 24d5: 5TH EPISODE, HOSPITALIZATIONEPI5_ID Char 1 $YNUFMT. CAP 24f5: 5TH EPISODE, CULT ORGANISM=LASEPI5_LK Char 1 $YNUFMT. CAP 24c5: 5TH EPISODE, CATHETER LEAKAGEEPI6_DCR Char 1 $DCRFMT. CAP 24e6: 6TH EPISODE, DIALYSATE CULT REEPI6_EXT Char 1 $YNUFMT. CAP 24b6: 6TH EPISODE, EXIT/TUNNEL INFECEPI6_HSP Char 1 $HOSPFMT. CAP 24d6: 6TH EPISODE, HOSPITALIZATIONEPI6_ID Char 1 $YNUFMT. CAP 24f6: 6TH EPISODE, CULT ORGANISM=LASEPI6_LK Char 1 $YNUFMT. CAP 24c6: 6TH EPISODE, CATHETER LEAKAGEETHNIC Char 1 $ETHFMT. CAP 10: Ethnicity (Hispanic or not)FRST_MOD Char 1 $YNUFMT. CAP 11a: CAPD - FIRST CHOICE MODALITYFRST_TEC Char 2 $TECFMT. CAP 19: FIRST TECHNIQUE USED AT HOMEIP Char 1 $YNUFMT. CAP 22: INTRAPERITONEAL DRUGS USEDMANU Char 1 $MANUFMT. CAP 20a: MANUFACTURER FOR FIRST TECHNIQUNETWORK Char 2 $NETFMT. CAP 1: ESRD NetworkNUM_EPI Num 8 BEST9. CAP 25: NUMBER OF PERITONITIS EPISODES


CAPD: CAPD Peritonitis Special Study (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntOTH_ANT Char 25 25 CAP 20d8: OTHER TUBING ANTISEPTIC USEDOTH_CATH Char 25 25 CAP 14a88: OTHER CATHETER TYPE USEDOTH_DCR1 Char 25 25 CAP 24e8a: OTHER DIALYSATE CULTURE RESULOTH_DCR2 Char 25 25 CAP 24e8b: OTHER DIALYSATE CULTURE RESULOTH_DCR3 Char 25 25 CAP 24e8c: OTHER DIALYSATE CULTURE RESULOTH_FRST Char 25 25 CAP 19 88: OTHER FIRST TECHNIQUE USED ATOTH_MANU Char 25 25 CAP 20a8: OTHER MANUFACTURER FOR FIRST TOTH_REM Char 25 25 CAP 17c8: OTHER REASON FOR CATHETER REMOOTH_TEC Char 25 25 CAP 15a8: OTHER INSERTION TECHNIQUEPREV_HEM Char 1 $HEMOFMT. CAP 11b: PREVIOUS CHRONIC HEMODIALYSISP_STAT Char 2 $PATSTAT. CAP 23: PATIENT STATUS FOLLOWING TECHNIQREM_EXT Char 1 $CATHREM. CAP 17c2: CATH REMVD DUE TO TUNNEL/EXITREM_LK Char 1 $CATHREM. CAP 17c3: CATHETER REMOVED DUE TO LEAKAGREM_MM Char 1 $CATHREM. CAP 17c4: CATH REMVD DUE TO MECHANICAL MREM_OTHR Char 1 $CATHREM. CAP 17c8: CATHETER REMOVED DUE TO OTHERREM_PER Char 1 $CATHREM. CAP 17c1: CATHETER REMOVED DUE TO PERITOREM_TR Char 1 $CATHREM. CAP 17c5: CATH REMOVED, TRANSFER TO OTHETOT_EPI Num 8 BEST9. CAP 25: TOTAL # OF EPISODE IF > 6TRAN Char 1 $YNUFMT. CAP 12a: PRIOR RENAL TRANSPLANTATION


CASEMIXS: Case Mix Serverity Special StudyThe study consists of two groups of patients: an incident sample of ESRD patients who began hemodialysis during1990, and a prevalent sampleof hemodialysis patients with onset of ESRD prior to 1990.

VVVVVararararariabiabiabiabiable Nle Nle Nle Nle Nameameameameame TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST9. USRDS assigned patient IDABS_PULS Char 1 $YNFMT. CMP B 4c: Absent foot pulsesACCESS1 Char 1 $ACCFMT. CMP C 8h1: Hemo - Vascular access (1)ACCESS2 Char 1 $ACCFMT. CMP C 8h2: Hemo - Vascular access (2)AFT_DBP Num 8 BEST9. CMP C 5b: DBP after first dialysisAFT_SBP Num 8 BEST9. CMP C 5b: SBP after first dialysisAFT_WTKG Num 8 BEST9. CMP C 3b: Weight - kg. after first dialyALONE Char 1 $ALONE. CMP C14: Living aloneAMPUTATA Char 1 $YNSFMT. CMP B 4b: Amputation due to PVDANGINA Char 1 $YNSFMT. CMP B 2b: AnginaANGIOGRA Char 1 $YNFMT. CMP B 2e: Coronary angiographyANGIOPLA Char 1 $YNFMT. CMP B 2d: Coronary angioplastyAN_GRABN Char 1 $YNFMT. CMP B 2e: Coronary angiography abnormal?AN_GRDAT Char 4 4 CMP B 2e: Coronary angiography date(mmyyAN_PLDAT Char 4 4 CMP B 2d: Coronary angioplasty date(mmyyARRHYTHM Char 1 $YNFMT. CMP B 5d: ArrhythmiaARTERLO Char 1 $YNFMT. CMP B 4e: ArteriographyASTHMA Char 1 $YNFMT. CMP B 8b: AsthmaATR_FIBR Char 1 $YNFMT. CMP B 5e: Atrial fibrillationBFR Num 8 BEST9. CMP C 8f: Hemo - blood flow rateBILIRUB Num 8 BEST9. CMP D3 1: Bilirubin totalBLUECROS Char 1 $YNFMT. CMP A11a: Blue CrossBUN_AFT Num 8 BEST9. CMP D3 7b: BUN - post dialysis treatmenBUN_PRE Num 8 BEST9. CMP D3 7a: BUN - predialysis treatmentCABG Char 1 $YNFMT. CMP B 2c: Bypass surgeryCABGDATE Char 4 4 CMP B 2c: Bypass surgery date(mmyy)CARDARR Char 1 $YNFMT. CMP B 2f: Cardiac arrestCEREBROV Char 1 $YNSFMT. CMP B 3a: Cerebrovascular AccidentCHD_CAD Char 1 $YNSFMT. CMP B 2a: Prior Dx of CHD/CADCHOLEST Num 8 BEST9. CMP D3 3a: CholesterolCIRRHOS Char 1 $YNFMT. CMP B10b: CirrhosisCLAUDIC Char 1 $YNFMT. CMP B 4d: ClaudicationCOMPDATE Num 8 DATE7. CMP A 3: Date completedCONG_HRT Char 1 $YNFMT. CMP B 5a: Congestive heart failureCOPD Char 1 $YNFMT. CMP B 8a: Chronic obstructive pulm. dis.CREAT1 Num 8 BEST9. CMP D1 1: Serum Creat 1-12mo pre CMDCREAT2 Num 8 BEST9. CMP D1 2a: Serum Creat first CMDCREAT3 Num 8 BEST9. CMP D1 2b: Serum Creat after first CMDCREAT4 Num 8 BEST9. CMP D1 3: High Serum Creat before onsetCREAT5 Num 8 BEST9. CMP D1 4: High Serum Creat 1st monthCREAT6 Num 8 BEST9. CMP D1 5: Serum Creat 2-6 weeksCRE_DATE Char 4 4 CMP D1 1: Serum Creatinine dateDIAB_RET Char 1 $YNFMT. CMP B 7d: Diabetic retinopathyDIALYZER Char 3 3 CMP C 8g: Hemo - Dialyzer typeDIS_1 Char 30 30 CMP B11 1: Major diagnosis - DescriptionDIS_2 Char 30 30 CMP B11 2: Major diagnosis - DescriptionDIS_3 Char 30 30 CMP B11 3: Major diagnosis - DescriptionDIS_4 Char 30 30 CMP B11 4: Major diagnosis - DescriptionDIS_5 Char 30 30 CMP B11 5: Major diagnosis - DescriptionDIS_6 Char 30 30 CMP B11 6: Major diagnosis - DescriptionDONORSRC Char 1 $DNRTYP. CMP C10b: Donor sourceDUR_DIAB Num 8 BEST9. CMP B 7b: Duration of Diabetes (years)DX_DIAB Char 1 $YNFMT. CMP B 7: Prior Dx of DiabetesEARLDIAL Num 8 DATE7. CMP A10b: Date Earliest Chronic DialysisECHOCARD Char 1 $YNFMT. CMP D2 2b: Left vent hypertrophy echocaEDUCAT Char 1 $EDLEV. CMP C17: EducationEKG Char 1 $YNFMT. CMP D2 2a: Left vent hypertrophy by EKGEXCH_DAY Num 8 BEST9. CMP C 9c: Peri - exchanges per treatmentEXCH_LIT Num 8 BEST9. CMP C 9d: Peri - liters per exchangeFIRSDIAL Num 8 DATE7. CMP A10a: Date First Chronic DialysisHBSAG Char 1 $POSFMT. CMP D3 2: HBsAGHEMATO Num 8 BEST9. CMP D3 6: Hematocrit


CASEMIXS: Case Mix Serverity Special Study (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentHEMO_LOC Char 1 $HEMOFMT. CMP C 8a: Hemo - dialysis locationHEMO_MIN Num 8 BEST9. CMP C 8b: Hemo - Usual min. per treatmenHEPATIT Char 1 $YNFMT. CMP B10a: HepatitisHOUSMEMB Num 8 BEST9. CMP C15: Household membersHT_CM Num 8 BEST9. CMP C 1: Height - cm.HX_HYPER Char 1 $YNFMT. CMP B 6: History of hypertensionICD9_1 Char 5 5 CMP B11 1: Major diagnosis - ICD9 codeICD9_2 Char 5 5 CMP B11 2: Major diagnosis - ICD9 codeICD9_3 Char 5 5 CMP B11 3: Major diagnosis - ICD9 codeICD9_4 Char 5 5 CMP B11 4: Major diagnosis - ICD9 codeICD9_5 Char 5 5 CMP B11 5: Major diagnosis - ICD9 codeICD9_6 Char 5 5 CMP B11 6: Major diagnosis - ICD9 codeIND_AMBU Char 1 $YNFMT. CMP C12c: Independent AmbulatingIND_EAT Char 1 $YNFMT. CMP C12a: Independent eatingIND_XFER Char 1 $YNFMT. CMP C12b: Independent transferringINSULIN Char 1 $INSUFMT. CMP B 7e: Insulin therapy everMAR_STAT Char 1 $MARST. CMP C13: Marital statusMEDICAID Char 1 $YNFMT. CMP A11c: MedicaidMEDICARE Char 1 $YNFMT. CMP A11b: MedicareMETASTAS Char 1 $YNFMT. CMP B 9c: Known metastasesMI Char 1 $YNFMT. CMP B 2g: Myocardial infarctionMIDATE Char 4 4 CMP B 2g: Myocardial infarction last datNEOPLASM Char 1 $YNFMT. CMP B 9: NeoplasmsNEO_DATE Char 4 4 CMP B 9b: Date(mmyy) of first neoplasm DNEO_TYPE Char 20 20 CMP B 9a: Neoplasm primary site/typeNO_INS Char 1 $YNFMT. CMP A11g: No insuranceNUT_STAT Char 1 $NUTFMT. CMP C 4: Nutritional StatusOCCUPAT Char 1 $OCCLEV. CMP C18: Occupation level before ESRDONSEMPLV Char 1 $EMPLEV. CMP C16b: Employment level at onset of EOTH_INS Char 1 $YNFMT. CMP A11f: Other insuranceOXYGEN Char 1 $YNFMT. CMP B 8c: Home oxygen prescribedPAT_STAT Char 1 $PATSTAT. CMP C 6: Patient status at one monthPERICARD Char 1 $YNFMT. CMP B 5c: PericarditisPERI_LOC Char 1 $PERILOC. CMP C 9a: Peri - dialysis locationPERI_TYP Char 1 $PERITYP. CMP C 9b: Peri - dialysis typePHOSPH Num 8 BEST9. CMP D3 5: Serum phosphorousPRIEMPLV Char 1 $EMPLEV. CMP C16a: Highest emp level one yr priorPRIVATE Char 1 $YNFMT. CMP A11d: PrivatePRI_DBP Num 8 BEST9. CMP C 5a: DBP at first dialysis/predialyPRI_SBP Num 8 BEST9. CMP C 5a: SBP at first dialysis/predialyPRI_WTKG Num 8 BEST9. CMP C 2: Weight - kg. before first dialyPROVUSRD Num 8 BEST6. USRDS assigned facility IDPR_HYPER Char 1 $YNFMT. CMP B 6a: Hypertension treated pre ESRDPSYCH_EV Num 8 DATE7. CMP C11: Date of psychosocial evaluationPULM_EDE Char 1 $YNFMT. CMP B 5b: Pulmonary edemaPVD Char 1 $YNSFMT. CMP B 4a: Peripheral Vascular DiseaseREUSE Char 1 $YNFMT. CMP C 8d: Hemo - reuse of dialyzerSER_ALBU Num 8 BEST9. CMP D3 8: Serum albuminSESSIONS Num 8 BEST9. CMP C 8c: Hemo - No. sessions per weekSI_HYPER Char 1 $YNFMT. CMP B 6b: Hypertension treated since ESRSMOKING Char 1 $SMOKFMT. CMP B 1: Smoking StatusSUGAR Num 8 BEST9. CMP D3 4: Highest blood sugarS_BORN Num 8 DATE7. CMP A 9: Birth DateS_DIED Num 8 DATE7. CMP C 7: Date of deathS_NETWK Char 2 $NETFMT. CMP A 1: ESRD NetworkS_TDATE Num 8 DATE7. CMP C10a: Date of transplantTIA Char 1 $YNSFMT. CMP B 3b: Transient ischemic attacksTRIGLY Num 8 BEST9. CMP D3 3b: TriglyceridesTRMT_DAY Num 8 BEST9. CMP C 9e: Peri - treatment days per weekTYPE300 Char 10 10 CMP C 8g: Hemo - Specfic Code 300 dialyzTYP_DIAB Char 1 $DIABFMT. CMP B 7c: Type of diabeticVA Char 1 $YNFMT. CMP A11e: VAWTLOSSKG Num 8 BEST9. CMP C 8e: Hemo - highest wt loss - kgs.XRAY Char 1 $YNFMT. CMP D2 1: Cardiomegaly by X-rayYR_DIAB Char 2 2 CMP B 7a: Year of Dx of Diabetes


CLMCODES: Claim CodesFrequency of occurrence of each code. A starting point for analyses that will use diagnosis and procedure codes.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntCDTYPE Char 1 $CDTYPE. Code typeCODE Char 5 Code valueCODELAB Char 100 Label for code_FREQ_ Num 8 Number of occurrencesINTEREST Char 1PART_AB Char 2 $PARTAB. _Claim typeSPCD Char 6 Code type + value


CMSFACS: Case Mix Severity Special Study Patient FormFacility Questionnaire for Case Mix Severity Special Study

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentABSTINIT Char 2 2 CMF 2: AbstractorBLEACH Char 1 $YNFMT. CMF 7C1: Bleach UsedCHARCOAL Char 1 $YNFMT. CMF 9B: Activated Charcoal UsedCOMPDATE Num 8 MMDDYY8. CMF 3: Date completedDEIONIZE Char 1 $YNFMT. CMF 9D: Dionization UsedFORMALIN Char 1 $YNFMT. CMF 7C2: Formalin UsedGLUTARAL Char 1 $YNFMT. CMF 7C4: Glutaraldehyde UsedPROVUSRD Num 8 BEST32. KECC Assigned Facility IDRENALIN Char 1 $YNFMT. CMF 7C3: Renalin UsedREUSETEC Char 1 $TYPREUS. CMF 7B: Reuse TechniqueREVOSMOS Char 1 $YNFMT. CMF 9C: Reverse Osmosis UsedSOFTENER Char 1 $YNFMT. CMF 9A: Water Softener UsedSPECIAL_ Char 1 1 SPECIAL_STUDY_FORMSTOPREUS Num 8 MMDDYY8. CMF 7A: Date Reuse StoppedSTRTREUS Num 8 MMDDYY8. CMF 7A: Date Reuse StartedS_NETWK Char 2 2 CMF 1: ESRD NetworkTOPRESNT Char 1 1 CMF 7A: Reuse through to presentUKMODEL Char 1 $YNFMT. CMF 6: Urea Kinetic ModelingULTRFILT Char 1 $YNFMT. CMF 9E: Ultrafilter UsedUNITREUS Char 1 $YNFMT. CMF 7: Reuse at UnitWATERSRC Char 1 $WATRSRC. CMF 8: Water Source


DIALYZER: DialyzersThe Case Mix Serverity, Case Mix Adequacy, and DMMS Special Studies all collected information on the manufacturer and model of thedialyzer used for a patient at a specific time.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth CCCCCooooommemmemmemmemmentntntntntADQ_CD Char 3 Dialyzer Code-AdequacyB12 Num 8 Dialyzer B12 clearanceCOMPANY Char 10 Dialyzer ManufacturerKOA Num 8 Dialyzer Koa areaKUF Num 8 Dialyzer Uf coefficientMEMBRANE Char 20 Dialyzer Membrane typeMODEL Char 20 Dialyzer Model numberPRIMVOL Char 7 Dialyzer Priming volumeQB Char 3 Dialyzer Blood Flow rate Readings atSTERIL Char 7 Dialyzer Sterilization typeSUR_AREA Num 8 Dialyzer Surface areaTYPE Char 2 Dialyzer Type spec.UREA Num 8 Dialyzer Urea clearanceWAVE1_CD Char 4 Dialyzer Code-DMMS Wave 1WAVE2_CD Char 4 Code-DMMSWaves 2-4


DMMSWAV1:DMMS Wave 1 PatientsEach "wave" includes a data collection instrument for collecting "core" data, that will allow collection of a consistent set of fundamental data forresearch questions that requre a large sample size. Wave 1 includes a "non-core" component designed to address additional research questionsthat require smaller sample sizes.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentForm: Anemia QuestionnaireUSRDS_ID Num 8 BEST22. USRDS Assigned Patient IDSER_IRON Num 8 D1A 1 : Serum IronIRONBIND Num 8 D1A 2 : Tot iron binding cap (TIBC)FERRITIN Num 8 D1A 3 : Ferritin AnemiaTRANSAT Num 8 D1A 4 : Transferrin saturationHEMAT Num 8 D1A 5 : Hematocrit AnemiaIRONPAR Char 1 $YESNO. D1A 6a: Parenteral iron used AnemiaIRONPARR Char 1 $IRONADM. D1A 6b: Route pareneral iron administ AnemiaIRONDATE Num 8 DATE9. D1A 6c: Date of 1st iron iv/im/pi admi AnemiaIRONDOSE Num 8 D1A 6d: Dose of iron in mg AnemiaIRONWEEK Num 8 D1A 6e: # Administ. of iron per weekIRONORAL Char 1 $YESNO. D1A 7 : Taking oral iron in 12/93EPO_ADM Char 1 $YESNO. D1A 8 : EPO administered, anemiaEPOUNITA Num 8 D1A 8a: Units of EPO per adminEPOUNITW Num 8 D1A 8b: Units of EPO per weekEPOADWK Num 8 D1A 8c: # Administ EPO per weekEPOROUTE Char 1 $EPOADM. D1A 8d: Route of EPO administrationEPODATE Num 8 DATE9. D1A 8e: EPO start date AnemiaEPOBESRD Char 1 D1A 8e: EPO started before ESRDHEMABEPO Num 8 D1A 8f: Most rec hemat before EPONutrition QuestionnaireUNITNKGS Char 1 D1N 1 : Units - kilos, nutr (94)UNITNLBS Char 1 D1N 1 : Units - pounds, nutr (94)POSBUNN1 Num 8 D1N 1b: 1# BUN postdial, nutrit (94)PREBUNN1 Num 8 D1N 1b: 1# BUN predial, nutrit (94)PR2BUNN1 Num 8 D1N 1b: 1# BUN sec predial, nutr (94)POSBUNN2 Num 8 D1N 1b: 2# BUN postdial, nutrit (94)PREBUNN2 Num 8 D1N 1b: 2# BUN predial, nutrit (94)PR2BUNN2 Num 8 D1N 1b: 2# BUN sec predial, nutr (94)POSBUNN3 Num 8 D1N 1b: 3# BUN postdial, nutrit (94)PREBUNN3 Num 8 D1N 1b: 3# BUN predial, nutrit (94)PR2BUNN3 Num 8 D1N 1b: 3# BUN sec predial, nutr (94)POSBUNN4 Num 8 D1N 1b: 4# BUN postdial, nutrit (94)PREBUNN4 Num 8 D1N 1b: 4# BUN predial, nutrit (94)PR2BUNN4 Num 8 D1N 1b: 4# BUN sec predial, nutr (94)POSBUNN5 Num 8 D1N 1b: 5# BUN postdial, nutrit (94)PREBUNN5 Num 8 D1N 1b: 5# BUN predial, nutrit (94)PR2BUNN5 Num 8 D1N 1b: 5# BUN sec predial, nutr (94)POSBUNN6 Num 8 D1N 1b: 6# BUN postdial, nutrit (94)PREBUNN6 Num 8 D1N 1b: 6# BUN predial, nutrit (94)PR2BUNN6 Num 8 D1N 1b: 6# BUN sec predial, nutr (94)BUNDAYN1 Char 2 D1N 1d: Day of BUN 1, nutrit (94)BUNDAYN2 Char 2 D1N 1d: Day of BUN 2, nutrit (94)BUNDAYN3 Char 2 D1N 1d: Day of BUN 3, nutrit (94)BUNDAYN4 Char 2 D1N 1d: Day of BUN 4, nutrit (94)BUNDAYN5 Char 2 D1N 1d: Day of BUN 5, nutrit (94)BUNDAYN6 Char 2 D1N 1d: Day of BUN 6, nutrit (94)POSWGTN1 Num 8 D1N 1w: 1# WGT postdial, nutr (94)PREWGTN1 Num 8 D1N 1w: 1# WGT predial, nutr (94)PR2WGTN1 Num 8 D1N 1w: 1# WGT sec predial, nutr (94)POSWGTN2 Num 8 D1N 1w: 2# WGT postdial, nutr (94)PREWGTN2 Num 8 D1N 1w: 2# WGT predial, nutr (94)PR2WGTN2 Num 8 D1N 1w: 2# WGT sec predial, nutr (94)POSWGTN3 Num 8 D1N 1w: 3# WGT postdial, nutr (94)PREWGTN3 Num 8 D1N 1w: 3# WGT predial, nutr (94)PR2WGTN3 Num 8 D1N 1w: 3# WGT sec predial, nutr (94)POSWGTN4 Num 8 D1N 1w: 4# WGT postdial, nutr (94)PREWGTN4 Num 8 D1N 1w: 4# WGT predial, nutr (94)PR2WGTN4 Num 8 D1N 1w: 4# WGT sec predial, nutr (94)POSWGTN5 Num 8 D1N 1w: 5# WGT postdial, nutr (94)


DMMSWDMMSWDMMSWDMMSWDMMSWAAAAAV1:DMMS V1:DMMS V1:DMMS V1:DMMS V1:DMMS WWWWWaaaaavvvvve 1 Pe 1 Pe 1 Pe 1 Pe 1 Patatatatatieieieieients (cnts (cnts (cnts (cnts (cooooontntntntntinininininueueueueued)d)d)d)d)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentPREWGTN5 Num 8 D1N 1w: 5# WGT predial, nutr (94)PR2WGTN5 Num 8 D1N 1w: 5# WGT sec predial, nutr (94)POSWGTN6 Num 8 D1N 1w: 6# WGT postdial, nutr (94)PREWGTN6 Num 8 D1N 1w: 6# WGT predial, nutr (94)PR2WGTN6 Num 8 D1N 1w: 6# WGT sec predial, nutr (94)SERALBN1 Num 8 D1N 2 : 1# ser alb predial, nutr (94)SERALBN2 Num 8 D1N 2 : 2# ser alb predial, nutr (94)SERALBN3 Num 8 D1N 2 : 3# ser alb predial, nutr (94)SERALBN4 Num 8 D1N 2 : 4# ser alb predial, nutr (94)SERALBN5 Num 8 D1N 2 : 5# ser alb predial, nutr (94)SERALBN6 Num 8 D1N 2 : 6# ser alb predial, nutr (94)TOTMINN1 Num 8 D1N 3 : 1# Duration of dial(min), nutrTOTMINN2 Num 8 D1N 3 : 2# Duration of dial(min), nutrTOTMINN3 Num 8 D1N 3 : 3# Duration of dial(min), nutrTOTMINN4 Num 8 D1N 3 : 4# Duration of dial(min), nutrTOTMINN5 Num 8 D1N 3 : 5# Duration of dial(min), nutrTOTMINN6 Num 8 D1N 3 : 6# Duration of dial(min), nutrCore QuestionnaireCOMPDATE Num 8 DATE9. D1P A 1: Date Abstract completedS_RACE Char 1 $RACEDMS. D1P A 3 : RaceETHNIC Char 1 $ETHFMT. D1P A 4 : Ethnicity (Hispanic or not)S_ZIP Char 5 D1P A 5 : patients zipcodeYRFDIAL Char 2 D1P A 6a: yr of first chron maint dialYRERDIAL Char 2 D1P A 6b: earliest known year of dialBLUECROS Char 1 $YESNO. D1P A 7a: Blue CrossS_MDCARE Char 1 $YESNO. D1P A 7b: MedicareMEDICAID Char 1 $YESNO. D1P A 7c: MedicaidPRIVATE Char 1 $YESNO. D1P A 7d: PrivateVA Char 1 $YESNO. D1P A 7e: VAOTH_INS Char 1 $YESNO. D1P A 7f: Other insuranceNO_INS Char 1 $YESNO. D1P A 7g: No insuranceHMO Char 1 $YESNO. D1P A 8 : Enroll in HMOSMOKING Char 1 $SMOKFMT. D1P B 1 : Smoking statusCHD_CAD Char 1 $SUSPCT. D1P B 2a: Prior Dx of CHD/CADANGINA Char 1 $SUSPCT. D1P B 2b: Angina CoreM I Char 1 $SUSPCT. D1P B 2c: Myocardial infarctionCABG Char 1 $SUSPCT. D1P B 2d: Bypass SurgeryANGIOPLA Char 1 $SUSPCT. D1P B 2e: Coronary angioplastyANGIOGRA Char 1 $SUSPCT. D1P B 2f: Coronary angiographyAN_GRABN Char 1 $SUSPCT. D1P B 2f: Coronary angiography abnormalCARDARR Char 1 $SUSPCT. D1P B 2g: Cardiac arrestCEREBROV Char 1 $SUSPCT. D1P B 3a: Cerebrovascular AccidentTIA Char 1 $SUSPCT. D1P B 3b: Transient ischeimc attacksPVD Char 1 $SUSPCT. D1P B 4a: Peripheral Vascular DiseaseAMPUTATA Char 1 $SUSPCT. D1P B 4b: Amputation due to PVDLIMBAMP Char 1 $SUSPCT. D1P B 4c: Limb amputation (other)ABS_PULS Char 1 $SUSPCT. D1P B 4d: Absent foot pulsesCLAUDIC Char 1 $SUSPCT. D1P B 4e: ClaudicationCONG_H Char 1 $SUSPCT. D1P B 5a: Congestive heart failurePERICARD Char 1 $SUSPCT. D1P B 5b: PericarditisDX_DIAB Char 1 $SUSPCT. D1P B 6 : Prior Dx of DiabetesDIABESRD Char 1 $YESNO. D1P B 6a: Diabetes was cause of ESRDINSULIN Char 1 $NEVRFMT. D1P B 6b: Insulin therapyLUNGDIS Char 1 $SUSPCT. D1P B 7 : History of lung diseaseNEOPLASM Char 1 $SUSPCT. D1P B 8 : Neoplasms (other than skin)NEO_TYPE Char 2 $NEOFMT. D1P B 8a: Neoplasm primary site/typeNEO_TYP2 Char 2 $NEOFMT. D1P B 8a: Neoplasm second site/typeNEO_YEAR Char 2 D1P B 8b: Year of first neoplasm DxHIV Char 1 $HIVFMT. D1P B 9 : HIV StatusAIDS Char 1 $HIVFMT. D1P B10 : Diagnosed with AIDSBILAMP Char 1 D1P C 1b: Bilateral amputeeHT_CM Char 3 D1P C 1c: Height - cm.HT_FT Char 1 D1P C 1f: Height - ft.HT_IN Char 2 D1P C 1i: Height - in.AFT_WTKG Num 8 D1P C 2k: Dry weight - kilograms


DMMSWDMMSWDMMSWDMMSWDMMSWAAAAAV1:DMMS WV1:DMMS WV1:DMMS WV1:DMMS WV1:DMMS Waaaaavvvvve 1 Pe 1 Pe 1 Pe 1 Pe 1 Patatatatatieieieieients (cnts (cnts (cnts (cnts (contontontontontinininininueueueueued)d)d)d)d)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentAFT_WTLB Num 8 D1P C 2l: Dry weight - poundsUNDNOUR Char 1 $SUSPCT. D1P C 3 : Undernourished 12/93PRE_SIT Char 1 $YESNO. D1P C 4 : BP taken sittingPST_SIT Char 1 $YESNO. D1P C 4 : BP taken sittingPRE_DBP Num 8 D1P C 4a: DBP at SSD / predialysisPRE_SBP Num 8 D1P C 4a: SBP at SSD / predialysisPST_DBP Num 8 D1P C 4b: DBP at SSD / postdialysisPST_SBP Num 8 D1P C 4b: SBP at SSD / postdialysisDIALYSAT Char 1 $DISATE. D1P C 5a: DialysateHEMO_TIM Char 3 D1P C 5b: Hemo - Presc hours:min/treatSESSIONS Num 8 D1P C 5c: Hemo - No. sessions per weekBFR Num 8 D1P C 5d: Hemo - blood flow rateWTLOSSKG Num 8 D1P C 5g: Hemo - highest wt loss - kgs.WTLOSSLB Num 8 D1P C 5g: Hemo - highest wt loss - lbs.WAVE1_CD Char 4 D1P C 5h Hemo - Dialyzer typeDIALMAKE Char 15 D1P C 5h: Hemo - Dialyzer makeDIALMODL Char 19 D1P C 5h: Hemo - Dialyzer modelDIALYZER Char 5 D1P C 5h: Hemo - Dialyzer typeACCESS1 Char 1 $VASTYPE. D1P C 5i: Hemo - Vascular access (1)PSYDATE Num 8 DATE9. D1P C 6: Psychological evaluation dateIND_EAT Char 1 $YESNO. D1P C 7a: Independent eatingIND_XFER Char 1 $YESNO. D1P C 7b: Independent transferringIND_AMBU Char 1 $YESNO. D1P C 7c: Independent AmbulatingMAR_STAT Char 1 $MARSTAT. D1P C 8 : Marital statusALONE Char 1 $ALONE. D1P C 9 : Living aloneEDUCAT Char 1 $EDLEV. D1P C10 : EducationOCCUPAT Char 2 $OCCUP. D1P C11 : Occupation level before ESRDEMPFT_C Char 1 $YESNO. D1P C12a: On 12/31/93 emp/student ftiEMPFT_B Char 1 $YESNO. D1P C12a: Pre-ESRD emp/student full tiEMPPT_C Char 1 $YESNO. D1P C12b: On 12/31/93 emp/student ptiEMPPT_B Char 1 $YESNO. D1P C12b: Pre-ESRD emp/student part tiHOMEMK_C Char 1 $YESNO. D1P C12c: On 12/31/93 homemakerHOMEMK_B Char 1 $YESNO. D1P C12c: Pre-ESRD homemakerRETIRE_C Char 1 $YESNO. D1P C12d: On 12/31/93 retiredRETIRE_B Char 1 $YESNO. D1P C12d: Pre-ESRD retiredNEVEMP_C Char 1 $YESNO. D1P C12e: On 12/31/93 never employedNEVEMP_B Char 1 $YESNO. D1P C12e: Pre-ESRD never employedUNEMP_C Char 1 $YESNO. D1P C12f: On 12/31/93 unemployedUNEMP_B Char 1 $YESNO. D1P C12f: Pre-ESRD unemployedDISAB_C Char 1 $YESNO. D1P C12g: On 12/31/93 disabledDISAB_B Char 1 $YESNO. D1P C12g: Pre-ESRD disabledOTHER_C Char 1 $YESNO. D1P C12h: On 12/31/93 otherOTHER_B Char 1 $YESNO. D1P C12h: Pre-ESRD otherXRAY Char 1 $YESNO. D1P D 1 : Cardiomegaly by X-rayEKG Char 1 $YESNO. D1P D 2a: Left ventr. hyper. by EKGECHOCARD Char 1 $YESNO. D1P D 2b: Left ventr. hyper. by echogrSER_CAL Num 8 D1P D 3 : Serum calcium, predialysisPHOSPH Num 8 D1P D 4 : Serum phosphorousSER_BIC Num 8 D1P D 5 : Serum bicarbonateHEMATO Num 8 D1P D 6a: HematocritHEMOGLOB Num 8 D1P D 6b: HemoglobinTRANS Char 1 $YESNO. D1P D 6c: Receive transfusion / 1 moNUMTRANS Char 2 D1P D 6d: Number of Transfusions recdEPO Char 1 $YESNO. D1P D 7 : Taking EPO at SSDCREAT1 Num 8 D1P D 8 : Serum Creatinine, predialysisSKIPDIAL Char 2 D1P D 9 : Number of treatments skippedSHRTDIAL Char 2 D1P D10 : Num treatmnts shortnd by 10mCHOLEST Num 8 D1P D11a: CholesterolTRIGLY Num 8 D1P D11b: TriglyceridesSER_PTH Num 8 D1P D12 : Serum intact PTHSER_ALUM Num 8 D1P D13 : Serum aluminum (random)CHRDATE Num 8 DATE9. D1P D14: Date first chronic maint treatCREAT2 Num 8 D1P D15 : Serum Creatinine, first everPOSTBUN1 Num 8 D1P D16b: 1# BUN postdialysisPREBUN_1 Num 8 D1P D16b: 1# BUN predialysis


DMMSWDMMSWDMMSWDMMSWDMMSWAAAAAV1:DMMS WV1:DMMS WV1:DMMS WV1:DMMS WV1:DMMS Waaaaavvvvve 1 Pe 1 Pe 1 Pe 1 Pe 1 Patatatatatieieieieients (cnts (cnts (cnts (cnts (contontontontontinininininueueueueued)d)d)d)d)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentPREBUN1A Num 8 D1P D16b: 1# BUN second predialysisPOSTBUN2 Num 8 D1P D16b: 2# BUN postdialysisPREBUN_2 Num 8 D1P D16b: 2# BUN predialysisPREBUN2A Num 8 D1P D16b: 2# BUN second predialysisPOSTBUN3 Num 8 D1P D16b: 3# BUN postdialysisPREBUN_3 Num 8 D1P D16b: 3# BUN predialysisPREBUN3A Num 8 D1P D16b: 3# BUN second predialysisPOSTBUN4 Num 8 D1P D16b: 4# BUN postdialysisPREBUN_4 Num 8 D1P D16b: 4# BUN predialysisPREBUN4A Num 8 D1P D16b: 4# BUN second predialysisPOSTBUN5 Num 8 D1P D16b: 5# BUN postdialysisPREBUN_5 Num 8 D1P D16b: 5# BUN predialysisPREBUN5A Num 8 D1P D16b: 5# BUN second predialysisPOSTBUN6 Num 8 D1P D16b: 6# BUN postdialysisPREBUN_6 Num 8 D1P D16b: 6# BUN predialysisPREBUN6A Num 8 D1P D16b: 6# BUN second predialysisBUNDAY_1 Char 2 D1P D16d: Day of BUN 1BUNDAY_2 Char 2 D1P D16d: Day of BUN 2BUNDAY_3 Char 2 D1P D16d: Day of BUN 3BUNDAY_4 Char 2 D1P D16d: Day of BUN 4BUNDAY_5 Char 2 D1P D16d: Day of BUN 5BUNDAY_6 Char 2 D1P D16d: Day of BUN 6POSTWT_1 Num 8 D1P D16w: 1# WGT postdialysisPREWT_1 Num 8 D1P D16w: 1# WGT predialysisPREWT_1A Num 8 D1P D16w: 1# WGT second predialysisPOSTWT_2 Num 8 D1P D16w: 2# WGT postdialysisPREWT_2 Num 8 D1P D16w: 2# WGT predialysisPREWT_2A Num 8 D1P D16w: 2# WGT second predialysisPOSTWT_3 Num 8 D1P D16w: 3# WGT postdialysisPREWT_3 Num 8 D1P D16w: 3# WGT predialysisPREWT_3A Num 8 D1P D16w: 3# WGT second predialysisPOSTWT_4 Num 8 D1P D16w: 4# WGT postdialysisPREWT_4 Num 8 D1P D16w: 4# WGT predialysisPREWT_4A Num 8 D1P D16w: 4# WGT second predialysisPOSTWT_5 Num 8 D1P D16w: 5# WGT postdialysisPREWT_5 Num 8 D1P D16w: 5# WGT predialysisPREWT_5A Num 8 D1P D16w: 5# WGT second predialysisPOSTWT_6 Num 8 D1P D16w: 6# WGT postdialysisPREWT_6 Num 8 D1P D16w: 6# WGT predialysisPREWT_6A Num 8 D1P D16w: 6# WGT second predialysisUNITSLBS Char 1 D1P D16w: Units of Weight meas - poundsUNITSKGS Char 1 D1P D16w: Units of Weight meas- kilosSERALB_1 Num 8 D1P D17 : 1# Serum Albumin predialysisSERALB_2 Num 8 D1P D17 : 2# Serum Albumin predialysisSERALB_3 Num 8 D1P D17 : 3# Serum Albumin predialysisSERALB_4 Num 8 D1P D17 : 4# Serum Albumin predialysisSERALB_5 Num 8 D1P D17 : 5# Serum Albumin predialysisSERALB_6 Num 8 D1P D17 : 6# Serum Albumin predialysisMINDIA1 Num 8 D1P D18: 1# Duration of dial (min)MINDIA2 Num 8 D1P D18: 2# Duration of dial (min)MINDIA3 Num 8 D1P D18: 3# Duration of dial (min)MINDIA4 Num 8 D1P D18: 4# Duration of dial (min)MINDIA5 Num 8 D1P D18: 5# Duration of dial (min)MINDIA6 Num 8 D1P D18: 6# Duration of dial (min)OFFCEN_R Char 1 D1P E 1 : Reas switched off center hemoOCH_DATE Num 8 DATE9. D1P E 1: Date switched off center hemoMOVEDATE Num 8 DATE9. D1P E 3: Date moved out of regionTRANDATE Num 8 DATE9. D1P E 4: Date transferred w/in networkLOSTDATE Num 8 DATE9. D1P E 5: Date 1st kwn hemo;lost fol-upVascular Access QuestionnaireVAS1CMT Num 8 DATE9. D1V : Date of 1st chronic maint dialPERMACC Char 1 $YNUDET. D1V 1 : Permanent access bef ESRDACCTYPE0 Char 1 $VASTYPE. D1V 2 : Type of acc at init of hemACCTYPE1 Char 1 $VASTYPE. D1V 3 : Type of acc 1 mo aft beg hemACCDATE Num 8 DATE9. D1V 4: Date access placedHIFLOW4 Num 8 D1V 5 : Highest blood flow 4th week


DMMSWDMMSWDMMSWDMMSWDMMSWAAAAAV1:DMMS WV1:DMMS WV1:DMMS WV1:DMMS WV1:DMMS Waaaaavvvvve 1 Pe 1 Pe 1 Pe 1 Pe 1 Patatatatatieieieieients (cnts (cnts (cnts (cnts (contontontontontinininininueueueueued)d)d)d)d)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentHIPRES Num 8 D1V 6 : Highest ven pressure at hifloBFL200DT Num 8 DATE9. D1V 7: Date 1st all bl flow lt 200BFRECIRC Char 3 D1V 8 : Blood flow at recirc testRECIRCTR Num 8 D1V 8 : Recirculation test resultRECIRCT Char 1 $YESNO. D1V 8 : Recirculation tested aft M1RECDATE Num 8 DATE9. D1V 8: Date recirculation testedSWPERIT Char 1 $YESNO. D1V 9 : Switch to perito sin 1st dialPERSTHDT Num 8 DATE9. D1V 9: Date switch to peritonealACCREV Char 1 $YESNO. D1V 10 : Any proced/revisions to accACCREV1C Char 1 $CLOT. D1V 10 : Clotted at 1st access revisACCREV2C Char 1 $CLOT. D1V 10 : Clotted at sec access revisACCREV1T Char 2 $REVTYPE. D1V 10 : Type of first access revisionACCREV2T Char 2 $REVTYPE. D1V 10 : Type of sec access revisionAREV2DT Num 8 DATE9. D1V 10: Date 2nd access revisionAREV1DT Num 8 DATE9. D1V 10: Date first access revisionACCINF1C Char 1 D1V 11 : Pos blood cult/first acc infACCINF2C Char 1 D1V 11 : Pos blood cult/second acc infACCINF Char 1 $YESNO. D1V 11 : Vascular access infectionAINF1DT Num 8 DATE9. D1V 11: Date 1st access infectionAINF2DT Num 8 DATE9. D1V 11: Date 2nd access infectionNot on FormDMMS_ID Num 8 9 DMMS Patient IDHDKTV1 Num 8 8.2 Kt/V month 1 - Daugirdas 2 formulaHDKTV2 Num 8 8.2 Kt/V month 2 - Daugirdas 2 formulaHDKTV3 Num 8 8.2 Kt/V month 3 - Daugirdas 2 formulaHDKTV4 Num 8 8.2 Kt/V month 4 - Daugirdas 2 formulaHDKTV5 Num 8 8.2 Kt/V month 5 - Daugirdas 2 formulaHDKTV6 Num 8 8.2 Kt/V month 6 - Daugirdas 2 formulaNC_BORN Num 8 NC Birthdate - from Network CensusNCMOD Char 2 NC End of Yr Modality - Network CensusNC_FSER Num 8 NC First Service Date - Network CensusNC_MED Char 1 NC Medicare Eligibility - Network CensusNC_MOD Char 1 NC Modality - from Network CensusNC_PDIS Char 5 NC Primary Disease - Network CensusNC_RACE Char 1 $RACEFMT. NC Race - from Network CensusNC_SEX Char 1 $SEXFMT. NC Sex - from Network CensusPROVUSRD Num 8 BEST22. USRDS Assigned Facility ID


DMMSWAV2: DMMS Wave 2 PatientsEach "wave" includes a data collection instrument for collecting "core" data, that will allow collection of a consistent set of fundamental datafor research questions that requre a large sample size. Wave 2 includes a "non-core" component designed to address additional researchquestions that require smaller sample sizes.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentDialysis Patient Questionnaire (part 1)USRDS_ID Num 8 23. USRDS assigned patient IDHELGEN Char 1 $GOOD5A. D2Q A 1 General HealthHELPRE Char 1 $COMPFMT. D2Q A 2 Health compared to prev yearVIGACT Char 1 $LIMIT3A. D2Q A 3 Vigorous acts: running, heavyMODACT Char 1 $LIMIT3A. D2Q A 4 Moderate acts: vacuuming, bowlLIFT Char 1 $LIMIT3A. D2Q A 5 Lift/carry groceriesCLIMBMLT Char 1 $LIMIT3A. D2Q A 6 Climbing sever flts of stairsCLIMBONE Char 1 $LIMIT3A. D2Q A 7 Climbing 1 flt of stairsBEND Char 1 $LIMIT3A. D2Q A 8 Bending, kneeling, stoopingWALKMLT Char 1 $LIMIT3A. D2Q A 9 Walking, > 1 mileWALKSEV Char 1 $LIMIT3A. D2Q A10: Walking, several blocksWALKBLK Char 1 $LIMIT3A. D2Q A11: Walking, 1 blockBATHING Char 1 $LIMIT3A. D2Q A12: Bathing/dressing selfREDTIM Char 1 $YESNO. D2Q A13: Phys Hlth: Reduced time on woACCLESS Char 1 $YESNO. D2Q A14: Phys Hlth: Accomplished lessLIMWRK Char 1 $YESNO. D2Q A15: PH: Limited in kind of workDIFFPER Char 1 $YESNO. D2Q A16: PH: Difficulty performing worREDWRK Char 1 $YESNO. D2Q A17: EP: Reduced time on work/actiACMPLS Char 1 $YESNO. D2Q A18: EP: Accomplished less than liWRKCAR Char 1 $YESNO. D2Q A19: EP: Did not work as carefullySOCINT Char 1 $EXTEN5A. D2Q A20: Amt of interference w/ socialBODPAIN Char 1 $PAIN6A. D2Q A21: Amount of bodily painPAININT Char 1 $EXTEN5A. D2Q A22: Amt of pain interference w/ woPEP Char 1 $TIME6A. D2Q A23: Full of pepNERVPER Char 1 $TIME6A. D2Q A24: Nervous personDOWNDUMP Char 1 $TIME6A. D2Q A25: Down in dumpsCALM Char 1 $TIME6A. D2Q A26: Calm & peacefulENERGY Char 1 $TIME6A. D2Q A27: Lots of energyDOWNBLU Char 1 $TIME6A. D2Q A28: Downhearted & blueWORNOUT Char 1 $TIME6A. D2Q A29: Worn outHAPPYPER Char 1 $TIME6A. D2Q A30: Happy personTIRED Char 1 $TIME6A. D2Q A31: Feel tiredINTSOC Char 1 $TIME5A. D2Q A32: PH/EP interference w/social acSICK Char 1 $TRUE5A. D2Q A33: Get sick easier than othersHLTHEXP Char 1 $TRUE5A. D2Q A34: Healthy as anybodyHLTWRS Char 1 $TRUE5A. D2Q A35: Expect health to worsenEXLHLTH Char 1 $TRUE5A. D2Q A36: Health is excellentINTLIFE Char 1 $TRUE5A. D2Q A37: Kidney disease interferes w/liTIME Char 1 $TRUE5A. D2Q A38: Too much time spent on kidneyFRUST Char 1 $TRUE5A. D2Q A39: Frustrated w/Kidney DiseaseBURDEN Char 1 $TRUE5A. D2Q A40: Burden on familyISOLATE Char 1 $TIME6A. D2Q A41: Isolate self from othersRCTSLOW Char 1 $TIME6A. D2Q A42: React slowly to thingsIRRIT Char 1 $TIME6A. D2Q A43: Act irritableDIFFCON Char 1 $TIME6A. D2Q A44: Difficult to concentrate/thinkGETALNG Char 1 $TIME6A. D2Q A45: Get along well with othersCONFUSE Char 1 $TIME6A. D2Q A46: Become confusedMUSSOR Char 1 $EXTEN5B. D2Q A47: Muscle sorenessCHESTPN Char 1 $EXTEN5B. D2Q A48: Chest painCRAMPS Char 1 $EXTEN5B. D2Q A49: CrampsITCHSKN Char 1 $EXTEN5B. D2Q A50: Itchy skinDRYSKN Char 1 $EXTEN5B. D2Q A51: Dry skinBREATH Char 1 $EXTEN5B. D2Q A52: Shortness of breathFAINT Char 1 $EXTEN5B. D2Q A53: Faintness/dizzinessAPPET Char 1 $EXTEN5B. D2Q A54: Lack of appetiteDRAIN Char 1 $EXTEN5B. D2Q A55: Washed out/drainedNUMB Char 1 $EXTEN5B. D2Q A56: Numbness in hands/feetNAUSEA Char 1 $EXTEN5B. D2Q A57: Nausea/upset stomachACSPROB Char 1 $EXTEN5B. D2Q A58: Problems with access/catheterFLDRST Char 1 $EXTEN5B. D2Q A59: Fluid restrictionsDITRST Char 1 $EXTEN5B. D2Q A60: Dietary restrictions


DMMSWAV2: DMMS Wave 2 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentWRKABL Char 1 $EXTEN5B. D2Q A61: Ability to work around houseTRVABL Char 1 $EXTEN5B. D2Q A62: Abiity to travelDEPEND Char 1 $EXTEN5B. D2Q A63: Dependent on doctors/staffSTRESS Char 1 $EXTEN5B. D2Q A64: Stress/worried by kidney diseaSEXLF Char 1 $EXTEN5B. D2Q A65: Sex lifeENJSEX Char 1 $PROBLEM. D2Q A66: Ability to relax/enjoy sexAROUSABL Char 1 $PROBLEM. D2Q A67: Difficulty becoming sexually aREST Char 1 $YESNO. D2Q A68: Lie down more often to restNAP Char 1 $YESNO. D2Q A69: Sleep/nap during daySLEEPLS Char 1 $YESNO. D2Q A70: Sleep less at nightSLEEPQLT Char 2 $QUAL10A. D2Q A71: Quality of sleep-30 daysTOGETH Char 1 $GOOD5B. D2Q A72: Together w/ family & friendsSUPPORT Char 1 $GOOD5B. D2Q A73: Support from family/friendsWRKPT Char 1 $YESNO. D2Q A74a: Able to work part-timeWRKFT Char 1 $YESNO. D2Q A74b: Able to work full-timeEMPLST Char 1 $WORK8A. D2Q A75: Employment statusFRIENDLY Char 1 $GOOD7A. D2Q A76: Friendliness/interest of staffENCOURGD Char 1 $TRUE5B. D2Q A77: Encouraged to lead normal lifeCOUNSLD Char 1 $TRUE5B. D2Q A78: Counseled to achieve full rehaDialysis Patient Questionnaire (part 2)WHNTLD Char 1 $TIMBF1A. D2Q B1: When told of abnormal kidney fuBLDTST Char 1 $TIMBF2A. D2Q B2: Blood test from physicianWHNSAW Char 1 $TIMBF3A. D2Q B3: When patient first saw nephroloNEPHVST Char 1 $VISITS. D2Q B4: Visits to nephrologist prior toDIETVST Char 1 $ONCE3A. D2Q B5: Visits with dietitianAPPLOSS Char 1 $TIMBF4A. D2Q B6: Onset of appetite lossVOMIT Char 1 $TIMBF4A. D2Q B7: Onset of nausea/vomitingBICARB Char 1 $YESNON. D2Q B8a: Treatment w/bicarbonateEPO Char 1 $YESNON. D2Q B8b: Treatment w/erythropoietinAVOIDBLD Char 1 $YESNON. D2Q B9: Told to avoid blood draws/intraNUMMONTH Char 2 D2Q B9a: # months prior to start of HDDialysis Patient Questionnaire (part 3)ODCAPDHM Char 1 $NOYES. D2Q C 1: Treat opt disc: CAPD at homeODDIALHM Char 1 $NOYES. D2Q C 1: Treat opt disc: HD at homeODDIALUN Char 1 $NOYES. D2Q C 1: Treat opt disc: HD in dial unitODOTHER Char 1 $NOYES. D2Q C 1: Treat opt disc: otherODPERCEN Char 1 $NOYES. D2Q C 1: Treat opt disc: PD at centerODPERCYC Char 1 $NOYES. D2Q C 1: Treat opt disc: PD with cycl maODTRANS Char 1 $NOYES. D2Q C 1: Treat opt disc: TransplantOTHTRMT Char 40 D2Q C 1a Other treat disc, textCHOSMTD Char 1 $SELECT. D2Q C 2: Method of choosing treatmentHLGRPDIS Char 1 $NOYES. D2Q C 3: Grp. disc/class expl. tx optionHLFAMDIS Char 1 $NOYES. D2Q C 3: Ind. disc w/fam,friends,oth ptsHLDISCPH Char 1 $NOYES. D2Q C 3: Ind. discussion with physicianHLDISCSW Char 1 $NOYES. D2Q C 3: Ind. discussion with social worHLOTHER Char 1 $NOYES. D2Q C 3: None of the aboveHLVIDEO Char 1 $NOYES. D2Q C 3: Videotape materialsHLWRITEN Char 1 $NOYES. D2Q C 3: Written materialsHOWLRN2 Char 40 D2Q C 3a: Oth way inform of tx options,tTRANSDIS Char 1 $YESNON. D2Q C 4: Transplant option discussedTRANSEVL Char 1 $YESNON. D2Q C 5: Evaluated for TransplantWAITLIST Char 1 $YESNON. D2Q C 6: On a Transplant waitlistCLOSENS Char 1 $IMPORT. D2Q C 7a: Impor of close facilityTRTSCHED Char 1 $IMPORT. D2Q C 7b: Conven. of treat sched.DIALTYP Char 1 $IMPORT. D2Q C 7c: Type of dialysis offeredDIALREUS Char 1 $IMPORT. D2Q C 7d: Dialyzer reuse policyPHYSREC Char 1 $IMPORT. D2Q C 7e: Physician recommendationFACCOM Char 1 $IMPORT. D2Q C 7f: Comfort of facilityPERITCOM Char 1 $AGREE6A. D2Q C 8a: Peritonitis common compLONGER Char 1 $AGREE6A. D2Q C 8b: HD trtmnt more lengthy than PDFLEXIBLE Char 1 $AGREE6A. D2Q C 8c: PD allows more flexibilityNOTSTRCT Char 1 $AGREE6A. D2Q C 8d: Diet less strict with HDFLDSTRCT Char 1 $AGREE6A. D2Q C 8e: Fluid restrict less on PDNEEDLES Char 1 $AGREE6A. D2Q C 8f: Patient aversion to needlesMORESTRS Char 1 $AGREE6A. D2Q C 8g: PD more stressful than HD


DMMSWAV2: DMMS Wave 2 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentDIFWRK Char 1 $AGREE6A. D2Q C 8h: HD more difficult to work/schBURDFAM Char 1 $AGREE6A. D2Q C 8i: HD is burden on familySOCIALZE Char 1 $AGREE6A. D2Q C 8j: Like to socialize w/oth pts/stLIVEFAR Char 1 $AGREE6A. D2Q C 8k: Live far from HD facilityMEDPROB Char 1 $AGREE6A. D2Q C 8l: Med probs precluded txt choiceMOSTIMP Char 1 ` D2Q C 9: Most imp reason for txt choiceBESTQLTY Char 1 $QOLHDPD. D2Q C10: Which treatment provides bestLONGLIFE Char 1 $QOLHDPD. D2Q C11: Which treatment provides longeMISSXCHG Char 1 $MISSEDX. D2Q C12: # times CAPD patient missed exMISSTRMT Char 1 $CYCLER. D2Q C13: # times cycler missed a treatmSHRTRMT Char 1 $CYCLER. D2Q C14: # times cycler shortened treatSIGDAY Char 2 D2Q CV: Day of signatureSIGMONTH Char 2 D2Q CV: Month of signatureSIGNAT Char 1 D2Q CV: Presence of signatureSIGYR Char 2 D2Q CV: Year of signatureDialysis Patient Questionnaire (part 4)MINFAC Char 1 $DIST. D2Q D1: # of minutes to dialysis faciliMETRANS Char 1 $TRANS. D2Q D2: Method of transportation to facNODRIVE Char 1 $NOYES. D2Q D3: Does not know how to driveGURNEY Char 1 $NOYES. D2Q D3: Must be transported on stretcheNOCAR Char 1 $NOYES. D2Q D3: No access to a carNOTABLE Char 1 $NOYES. D2Q D3: No longer able to drive a carDRVOTHER Char 1 $NOYES. D2Q D3: Other reason pt. cannot driveNEEDHELP Char 1 $NOYES. D2Q D3: Requires help walking/climbingTOOWEAK Char 1 $NOYES. D2Q D3: Too weak/sick after dialysisNOTDRIV2 Char 40 D2Q D3a: Other reason for not drivingPERHLP Char 1 $WHHLP2A. D2Q D4: Person who helps w/ transportDIALUNIT Char 1 $NOYES. D2Q D5: Who pays: Dialysis UnitMYSELF Char 1 $NOYES. D2Q D5: Who pays: Myself/familyWPOTHER Char 1 $NOYES. D2Q D5: Who pays: OtherPUBAGEN Char 1 $NOYES. D2Q D5: Who pays: Public agency/charitTRANPRB1 Char 1 $YESNO. D2Q D6a: Short treatment due to transpoTRANPRB2 Char 1 $YESNO. D2Q D6b: Skip treatment due to transporDialysis Patient Questionnaire (part 5)WAGERATE Num 8 D2Q E1: Wage rateNOTEMP Char 1 $NOYES. D2Q E1a: Not currently employedWAGEST Num 8 D2Q E2: Estimated wage rate if not emplWRKLMT1 Char 1 $YESNO. D2Q E3: Work type limited due to healthWRKLMT2 Char 1 $YESNO. D2Q E4: Work amt limited due to healthDialysis Patient Questionnaire (part 6)EXFREQ Char 1 $EXER. D2Q F1: Frequency of exerciseQUALCAR Char 1 $GOOD5A. D2Q F2: Feelings about quality of self-NWTRTDM Char 1 $NOYES. D2Q F3: Not working: Dial trt is too dNWNOND Char 1 $NOYES. D2Q F3: Not working: Did not want/needNWNOFLX Char 1 $NOYES. D2Q F3: Not working: Facility sched. iNWRTRD Char 1 $NOYES. D2Q F3: Not working: I am retiredNWTRD Char 1 $NOYES. D2Q F3: Not working: Job is too tiringNWLSBNFT Char 1 $NOYES. D2Q F3: Not working: Lose benefits, clNWOTHDT Char 1 $NOYES. D2Q F3: Not working: Needed for otherNWNOJB Char 1 $NOYES. D2Q F3: Not working: No other job avaiNWTOOSK Char 1 $NOYES. D2Q F3: Not working: Too sick, too mucDESWRK Char 1 $WANTWRK. D2Q F4: Desire to return to workSCHEDINT Char 1 $EXTEN5C. D2Q F5a: Treatment interfere w/ work scSCHEDCHG Char 1 $EXTEN5C. D2Q F5b: Treatment schedule could changSCHEDNOT Char 1 $EXTEN5C. D2Q F5c: No treatment schedule avail toASSTGVN Char 1 $YESNO. D2Q F6: Assistance given to complete foWHOGAVE Char 1 $WHOHELP. D2Q F7: Who helped complete formMedical Questionnaire (DMMS-Prospective)DMMS_ID Num 8 23. DMMS Patient IDS_BORN Num 8 DATE9. DW2.M Date of birth calculatedDIALDAY Char 2 DW2.M : First Dialysis dayDIALMTH Char 2 DW2.M : First Dialysis MonthDIALYR Char 2 DW2.M : First Dialysis yearTREATMO Char 1 $HDPD. DW2.M : Modality of Treatment H/PDCOMPDPT Char 1 $YESNO. DW2.M : Patient complete Dialysis PtQ\


DMMSWAV2: DMMS Wave 2 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentBIRTHDAY Char 2 DW2.M : Patients Birth dayBIRTHMTH Char 2 DW2.M : Patients Birth MthBIRTHYR Char 2 DW2.M : Patients Birth yrSSDAY Char 2 DW2.M : Study Start daySSMTH Char 2 DW2.M : Study Start monthSSYR Char 2 DW2.M : Study Start yearCOMPDAY Char 2 DW2.M A 2: day CompletedCOMPMTH Char 2 DW2.M A 2: mth CompletedCOMPYR Char 2 DW2.M A 2: yr CompletedETHNIC Char 1 $YNFMT. DW2.M A 3: Ethnicity (Hispanic or Not)S_RACE Char 1 $RACEDMS. DW2.M A 4: RaceS_ZIP Char 5 DW2.M A 5: Patients ZipcodeFDIALDAY Char 2 DW2.M A 6: day of fst chron maint dialFDIALMTH Char 2 DW2.M A 6: mth of fst chron maint dialFDIALYR Char 2 DW2.M A 6: year of fst chron maint dialSSD_W2 Num 8 DATE9. DW2.M A 7 Study start dateSSDAY1 Char 2 DW2.M A 7: Study Start day A6+60daysSSMTH1 Char 2 DW2.M A 7: Study Start mth A6+60daysSSYR1 Char 2 DW2.M A 7: Study Start yr A6+60daysYEAR Num 8 DW2.M A 7c year of study start dateDATESAME Char 1 $YESNO. DW2.M A 8: was A6=earliest dialEDIALDAY Char 2 DW2.M A 8a: Earliest dayEDIALMTH Char 2 DW2.M A 8a: Earliest mthEDIALYR Char 2 DW2.M A 8a: Earliest yrBCROSS2 Char 1 $YESNO. DW2.M A 9a: Blue Cross at/near A7BCROSS1 Char 1 $YESNO. DW2.M A 9a: Blue Cross month bfore A6PRIVATE1 Char 1 $YESNO. DW2.M A 9b: Private month bfore A6PRIVATE2 Char 1 $YESNO. DW2.M A 9b: Private at/near A7MEDICAR2 Char 1 $YESNO. DW2.M A 9c: Medicare at/near A7MEDICAR1 Char 1 $YESNO. DW2.M A 9c: Medicare month bfore A6MEDPEND Char 1 $YESNO. DW2.M A 9c: Medicare Pending at/n A7MED2_2 Char 1 $YESNO. DW2.M A 9c: Medicare secondary at/n A7MED2_1 Char 1 $YESNO. DW2.M A 9c: Medicare secondary mth bf A6MCAID2 Char 1 $YESNO. DW2.M A 9d: Medicaid at/near A7MCAID1 Char 1 $YESNO. DW2.M A 9d: Medicaid month bfore A6VA_2 Char 1 $YESNO. DW2.M A 9e: VA at/near date A7VA_1 Char 1 $YESNO. DW2.M A 9e: VA mon before date A6OTHINS2 Char 1 $YESNO. DW2.M A 9f: Other Insurance at/near A7OTHINS1 Char 1 $YESNO. DW2.M A 9f: Other Insurance Mth bfore A6NOINS2 Char 1 $YESNO. DW2.M A 9g: No Insurance at/near A7NOINS1 Char 1 $YESNO. DW2.M A 9g: No Insurance Mth bfore A6HMO2 Char 1 $YESNO. DW2.M A 9h: HMO at/near A7HMO1 Char 1 $YESNO. DW2.M A 9h: HMO mth bfore A6PC_DIS Char 1 $PDISD2W. DW2.M B 1: Primary Cause of ESRDHIV Char 1 $HIVFMT. DW2.M B 10: HIV StatusAIDS Char 1 $HIVFMT. DW2.M B 11: Diagnosed w/ AIDSSMOKING Char 1 DW2.M B 2: Smoking statusCHD_CAD Char 1 $SUSPCT. DW2.M B 3a: Prior Dx of CHD/CADANGINA Char 1 $SUSPCT. DW2.M B 3b: AnginaMI Char 1 $SUSPCT. DW2.M B 3c: MICABG Char 1 $SUSPCT. DW2.M B 3d: Bypass SurgeryANGIOPLA Char 1 $SUSPCT. DW2.M B 3e: Coronary AngioplastyAN_GRABN Char 1 $SUSPCT. DW2.M B 3f: Coronary Angio. abnormalANGIOGRA Char 1 $SUSPCT. DW2.M B 3f: Coronary AngiographyCARDARR Char 1 $SUSPCT. DW2.M B 3g: Cardiac arrestCEREBROV Char 1 $SUSPCT. DW2.M B 4a: Cerebrovascular AccidentTIA Char 1 $SUSPCT. DW2.M B 4b: Transient Ischemic atacksPVD Char 1 $SUSPCT. DW2.M B 5a: Peripheral Vascular DiseaseAMPUTATA Char 1 $SUSPCT. DW2.M B 5b: Amputation due to PVDLIMBAMP Char 1 $SUSPCT. DW2.M B 5c: Limb amputation (other)ABS_PULS Char 1 $SUSPCT. DW2.M B 5d: Absent foot pulsesCLAUDIC Char 1 $SUSPCT. DW2.M B 5e: ClaudicationCONG_H Char 1 $SUSPCT. DW2.M B 6a: Congestive Heart failurePERICARD Char 1 $SUSPCT. DW2.M B 6b: PericarditisPULMED Char 1 $SUSPCT. DW2.M B 6c: Pulmonary edema


DMMSWAV2: DMMS Wave 2 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentDX_DIAB Char 1 $SUSPCT. DW2.M B 7: Prior Dx of DiabetesINSULIN Char 1 $NEVRFMT. DW2.M B 7a: Insulin therapyDPILLS Char 1 $NEVRFMT. DW2.M B 7b: Diabetes PillsLUNGDIS Char 1 $SUSPCT. DW2.M B 8: History of Lung DiseaseNEOPLASM Char 1 $SUSPCT. DW2.M B 9: Neoplasms (other than skin)NEO_TYPE Char 2 $NEOSITE. DW2.M B 9a: Neoplasm primary site/typeNEO_TYP2 Char 2 $NEOSITE. DW2.M B 9a: Neoplasm second site/typeNEO_YEAR Char 2 DW2.M B 9b: Year of first neoplasm DxBILAMP Char 1 DW2.M C 1: Bilateral amputeeHT_CM Num 8 DW2.M C 1: Height - Cm.HT_FT Num 8 DW2.M C 1: Height - ft.HT_IN Num 8 DW2.M C 1: Height - In.ALONE Char 1 $ALONE. DW2.M C 10: Living AloneEDUCAT Char 1 $EDLEV. DW2.M C 11: EducationOCCUPAT Char 2 $OCCUP. DW2.M C 12: Occupation level before ESRDEMP_2YR Char 2 $EMPDMMS. DW2.M C 13a: Emp. 24-6mths before ESRDEMP_NDT Char 2 $EMPDMMS. DW2.M C 13a: Employment at SSDateLOOKEMP Char 1 $YESNO. DW2.M C 14: Looking for EmploymentAFT_WTKG Num 8 DW2.M C 2: Dry weight - KilogramsAFT_WTLB Num 8 DW2.M C 2: Dry weight - poundsUNDNOUR Char 1 $SUSPCT. DW2.M C 3: UndernourishedPRE_DBP2 Num 8 DW2.M C 4a: DBP at SSD / predial 2ndPRE_DBP3 Num 8 DW2.M C 4a: DBP at SSD / predial 3rdPRE_DBP Num 8 DW2.M C 4a: DBP at SSD / predialysisPRE_SBP2 Num 8 DW2.M C 4a: SBP at SSD / predial 2ndPRE_SBP3 Num 8 DW2.M C 4a: SBP at SSD / predial 3rdPRE_SBP Num 8 DW2.M C 4a: SBP at SSD / predialysisPREWT_1 Num 8 DW2.M C 4a: Weight at SSD / predialPREWT_2 Num 8 DW2.M C 4a: Weight at SSD / predial 2ndPREWT_3 Num 8 DW2.M C 4a: Weight at SSD/ predial 3rdPRW_KGLB Num 8 DW2.M C 4a: Weight predial Kg or LbPST_DBP Num 8 DW2.M C 4b: DBP at SSD / pstdialPST_DBP2 Num 8 DW2.M C 4b: DBP at SSD / pstdial 2ndPST_DBP3 Num 8 DW2.M C 4b: DBP at SSD /pstdial 3rdPST_SBP Num 8 DW2.M C 4b: SBP at SSD / pstdialPST_SBP2 Num 8 DW2.M C 4b: SBP at SSD / pstdial 2ndPST_SBP3 Num 8 DW2.M C 4b: SBP at SSD /pstdial 3rdPSTWT_1 Num 8 DW2.M C 4b: Weight at SSD / postdialPSTWT_2 Num 8 DW2.M C 4b: Weight at SSD / pstdial 2ndPSTWT_3 Num 8 DW2.M C 4b: Weight at SSD/pstdial 3rdDIALYSAT Char 1 $DISATE. DW2.M C 5a: DialysateHEMO_HRS Num 8 DW2.M C 5b: Hemo - Presc hours/ treatHEMO_MIN Num 8 DW2.M C 5b: Hemo - Presc Minutes/ treatSESSIONS Num 8 DW2.M C 5c: Hemo - No. Sessions / weekBFR Num 8 DW2.M C 5d: Hemo - Blood flow rateDIALMAKE Char 15 DW2.M C 5g: Hemo - Dialyzer makeDIALMODL Char 19 DW2.M C 5g: Hemo - Dialyzer modelDIALYZER Char 4 DW2.M C 5g: Hemo - Dialyzer typeACCESS1 Char 1 $VASTYPE. DW2.M C 5h: Hemo - Vascular access FD dtACCESS2 Char 1 $VASTYPE. DW2.M C 5h: Hemo - Vascular access SS dtAC1_SIDE Char 1 $SIDE. DW2.M C 5i: Hemo - Side of access FD dtAC2_SIDE Char 1 $SIDE. DW2.M C 5i: Hemo - Side of access SS dtSURGDAY Char 2 DW2.M C 5j: day of Surgery for VAACCFAIL Char 1 $YESNO. DW2.M C 5j: Hemo - Access FailACCMATUR Char 1 $YESNO. DW2.M C 5j: Hemo - Access matureACCREVIS Char 1 DW2.M C 5j: Hemo - Access RevisionFACCDAY Char 2 DW2.M C 5j: Hemo - day of 1st use of VAFACCMTH Char 2 DW2.M C 5j: Hemo - mth of 1st use of VAACCTYPE Char 1 $VASTYPE. DW2.M C 5j: Hemo - Type of accessFACCYR Char 2 DW2.M C 5j: Hemo - yr of 1st use of VASURGMTH Char 2 DW2.M C 5j: mth of Surgery for VASURGYR Char 2 DW2.M C 5j: yr of Surgery for VASUBCLAV Char 1 $ACCTYPE. DW2.M C 5k: Hemo - Any SubclavianINTJUG Char 1 $ACCTYPE. DW2.M C 5k: Hemo - Internal JugularACCTEMP Char 1 $YESNO. DW2.M C 5k: Hemo - Temp. Access


DMMSWAV2: DMMS Wave 2 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentSKIPDIAL Num 8 DW2.M C 5l: Number of treats skippedSHRTDIAL Num 8 DW2.M C 5m: Treats shortnd by gt 10 minPD_BSSD Char 1 $YESNO. DW2.M C 5n: PD before SSDPCATHDAY Char 2 DW2.M C 5o: day PD catheterPCATHMTH Char 2 DW2.M C 5o: mth PD catheterPCATHYR Char 2 DW2.M C 5o: yr PD catheterPDLOCAT Char 1 $PERILOC. DW2.M C 6a: PD - Dialysis LocationPDIALTYP Char 1 $PDTYPE. DW2.M C 6b: PD - Dialysis TypeEXCYDAY Num 8 DW2.M C 6c: # exchanges/day - cyclerEXMNDAY Num 8 DW2.M C 6c: # exchanges/day - manualDAYS_CYC Num 8 DW2.M C 6c: days/week - cyclerDAYS_MAN Num 8 DW2.M C 6c: days/Week - manualLT_EXCY Num 8 DW2.M C 6c: liters/exchange - CyclerLT_EXMN Num 8 DW2.M C 6c: liters/exchange - manualDIALY_VM Num 8 DW2.M C 6c: Total Dialysate volume/24hrsHRS_CYC Num 8 DW2.M C 6c: total hrs/day on cyclerPDCATH Char 1 DW2.M C 6d: Type of PD cath on SSDCATHDAY Char 2 DW2.M C 6e: day of Catheter on SSDCATHMTH Char 2 DW2.M C 6e: mth of Catheter on SSDCATHYR Char 2 DW2.M C 6e: yr of Catheter on SSDFSTPDC Char 1 $YESNO. DW2.M C 6f: 1st PD cathHEMO_BPD Char 1 $YESNO. DW2.M C 6g: Hemo before SSDPERMVA_B Char 1 $YESNO. DW2.M C 6h: Permanent VA before SSDBUN_SD Num 8 DW2.M C 7: BUN (same day)DIALCRET Num 8 DW2.M C 7: Dialysate CreatinineDIALUREA Num 8 DW2.M C 7: Dialysate Urea NSERCRET Num 8 DW2.M C 7: Serum CreatinineVOLDRAIN Num 8 DW2.M C 7: Total Volume drainedIND_EAT Char 1 $YESNO. DW2.M C 8a: Independent eatingIND_XFER Char 1 $YESNO. DW2.M C 8b: Independent transferringIND_AMBU Char 1 $YESNO. DW2.M C 8c: Independent AmbulatingMAR_STAT Char 1 $MARSTAT. DW2.M C 9: Marital StatusXRAY Char 1 $YESNO. DW2.M D 1: Cardiomegaly by X-raySER_ALB Num 8 DW2.M D 10: Serum Albumin PredialysisCHOLEST Num 8 DW2.M D 11a: CholesterolCHOL_HDL Num 8 DW2.M D 11b: HDL CholesterolCHOL_LDL Num 8 DW2.M D 11c: LDL CholesterolTRIGLY Num 8 DW2.M D 11d: TriglyceridesSER_PTH Num 8 DW2.M D 12: Serum intact PTHSER_ALUM Num 8 DW2.M D 13: Serum Aluminum (random)THRS_UC Num 8 DW2.M D 14a: Total Hrs of Urine Collct.UCEDTMDY Char 1 DW2.M D 14a: Urine Collct. end AM/PMUCEDDT_D Char 2 DW2.M D 14a: Urine Collct. end dt dayUCEDDT_M Char 2 DW2.M D 14a: Urine Collct. end dt mthUCEDTM_H Char 2 DW2.M D 14a: Urine Collct. end tm. HrUCEDTM_M Char 2 DW2.M D 14a: Urine Collct. end tm. minUCSTTMDY Char 1 DW2.M D 14a: Urine Collct. st. AM/PMUCSTDT_M Char 2 DW2.M D 14a: Urine Collct. st. Dt MonthUCSTDT_D Char 2 DW2.M D 14a: Urine Collct. st. dt. DayUCSTTM_H Char 2 DW2.M D 14a: Urine Collct. st. tm. HrUCSTTM_M Char 2 DW2.M D 14a: Urine Collct. st. tm. MinPREBUN_2 Num 8 DW2.M D 14b: BUN Predial of U.Collct.PSTBUN_2 Num 8 DW2.M D 14b: BUN pstdial of U. Collct.PSTCREAT Num 8 DW2.M D 14b: Post CreatininePRECREAT Num 8 DW2.M D 14b: Pre CreatinineURINE_CR Num 8 DW2.M D 14b: Urine CreatinineU_UNITS Num 8 DW2.M D 14b: Urine UnitsUUNITROG Num 8 DW2.M D 14b: Urine Urea NitrogenURINE_VM Num 8 DW2.M D 14b: Urine VolumeMED1 Char 12 DW2.M D 15: Medications at SSDMED2 Char 12 DW2.M D 15: Medications at SSDMED3 Char 12 DW2.M D 15: Medications at SSDMED4 Char 12 DW2.M D 15: Medications at SSDMED5 Char 12 DW2.M D 15: Medications at SSDMED6 Char 12 DW2.M D 15: Medications at SSD


DMMSWAV2: DMMS Wave 2 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentMED7 Char 12 DW2.M D 15: Medications at SSDMED8 Char 12 DW2.M D 15: Medications at SSDMED9 Char 12 DW2.M D 15: Medications at SSDMED10 Char 12 DW2.M D 15: Medications at SSDMED11 Char 12 DW2.M D 15: Medications at SSDMED12 Char 12 DW2.M D 15: Medications at SSDMED13 Char 12 DW2.M D 15: Medications at SSDMED14 Char 12 DW2.M D 15: Medications at SSDMED15 Char 12 DW2.M D 15: Medications at SSDVITAMN_D Char 1 $YESNO. DW2.M D 16: Injectable Vit.D at SSDEKG Char 1 $YESNO. DW2.M D 2a: Left Ventr. Hyper. by EKGECHOCARD Char 1 $YESNO. DW2.M D 2b: Left Ventr. hyper. by echogrSER_CAL Num 8 DW2.M D 3: Serum calcium, predialysisPHOSPH Num 8 DW2.M D 4: Serum PhosphorousSER_BIC Num 8 DW2.M D 5: Serum BicarbonateHEMATO Num 8 DW2.M D 6a: HematocritHEMOGLOB Num 8 DW2.M D 6b: HemoglobinTRANS Char 1 $YESNO. DW2.M D 6c: Receive Transfusion / 2moNUMTRANS Num 8 DW2.M D 6d: Number of Transfusions recdEPO1 Char 1 $YESNO. DW2.M D 7a: Taking EPOEPO_FS Char 1 $YESNO. DW2.M D 7a: Taking EPO During fst 60daysEPOTYPE Char 1 $EPOADM. DW2.M D 7a: Type of EPOEPO_LAST Char 1 $YESNO. DW2.M D 7b: Taking EPO During 30days bfCREAT2 Num 8 DW2.M D 8a: Serum Creatinine Bf fst dialCREAT1 Num 8 DW2.M D 8b: Serum Creatinine at SSDateUREAVAL Num 8 DW2.M D 9: Urea or BUNBUN_BFST Num 8 DW2.M D 9a: BUN of Urea value FSTdialPSTBUN_1 Num 8 DW2.M D 9b: BUN Postdialysis SSDatePREBUN_1 Num 8 DW2.M D 9b: BUN Predialysis SSDateBUNWT_LK Num 8 DW2.M D 9c: Pre/Pst Weight in Lb/KGPSTWT Num 8 DW2.M D 9c: WGT postdialysisPREWT Num 8 DW2.M D 9c: WGT predialysisMedical Update QuestionnaireCORRDOB Char 2 DW2.MFUP : Correct Day of BirthCORRDY60 Char 2 DW2.MFUP : Correct Day of Day 60CORRMOD Char 30 DW2.MFUP : Correct Modality at Day60CORRMOB Char 2 DW2.MFUP : Correct Month of BirthCORRMT60 Char 2 DW2.MFUP : Correct Month of Day 60CORRYOB Char 2 DW2.MFUP : Correct year of BirthCORRYR60 Char 2 DW2.MFUP : Correct Year of Day 60SSTMOD Char 1 DW2.MFUP : Modality at Study StartNET_FU Char 3 $NETFMT. DW2.MFUP : NetworkEXPIRED Char 1 DW2.MFUP : Patient ExpiredSSDAY_FU Char 2 DW2.MFUP : Study Start DaySSMTH_FU Char 2 DW2.MFUP : Study Start MonthSSYR_FU Char 2 DW2.MFUP : Study Start YearDATE_DAY Char 2 DW2.MFUP : Todays DayDATE_MTH Char 2 DW2.MFUP : Todays MonthDATE_YR Char 2 DW2.MFUP : Todays YearCHNG_FDT Num 8 DATE9. DW2.MFUP A1: Date of 1st Change In StatuCHNG_DAY Char 2 DW2.MFUP A1: Day of 1st change statusCHNG_MTH Char 2 DW2.MFUP A1: Month of 1st change statusCHNG_TYP Char 2 $FUCHGTY. DW2.MFUP A1: Type of Change in StatusCHNG_YR Char 2 DW2.MFUP A1: Year of 1st change statusCURRFDT Num 8 DATE9. DW2.MFUP A2: Date of Current StatusCURR_DAY Char 2 DW2.MFUP A2: Day of Current StatusCURR_MTH Char 2 DW2.MFUP A2: Month of Current StatusCURRSTAT Char 1 $FUPSTAT. DW2.MFUP A2: Pts Current StatusCURR_YR Char 2 DW2.MFUP A2: Year of Current StatusMOD_NOW Char 1 $FUMODAL. DW2.MFUP B1: Patients current ModalityURINE Char 1 $FUURINE. DW2.MFUP B2: Approx. urine outputPREBN_FU Num 8 DW2.MFUP B3a: Pre Dialysis BUNPREWT_FU Num 8 DW2.MFUP B3a: Pre Dialysis WeightPRE_KGLB Char 1 $LBKG. DW2.MFUP B3a: Pre Weight in KG or LBPSTBN_FU Num 8 DW2.MFUP B3b: Post Dialysis BUN


DMMSWAV2: DMMS Wave 2 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentPSTWT_FU Num 8 DW2.MFUP B3b: Post Dialysis WeightPST_KGLB Char 1 $LBKG. DW2.MFUP B3b: Post Weight in KG or LBURNE_FDT Num 8 DATE9. DW2.MFUP B4: Urine Collection End DtURNS_FDT Num 8 DATE9. DW2.MFUP B4: Urine Collection St DTTHRSU_FU Num 8 DW2.MFUP B4a: Total hours of urine Coll.URNEDTHR Num 8 DW2.MFUP B4a: Urine Coll. End Time (hr)URNEDTMN Num 8 DW2.MFUP B4a: Urine Coll. End Time (min)URNEDTDY Char 1 DW2.MFUP B4a: Urine Coll. End time dayURNSTTHR Num 8 DW2.MFUP B4a: Urine Coll. Start time (hrURNSTTDY Char 1 DW2.MFUP B4a: Urine Coll. Start time dayURNSTTMN Num 8 DW2.MFUP B4a: Urine Coll. Start time(minURNEDDAY Char 2 DW2.MFUP B4a: Urine Collection End DayURNEDMTH Char 2 DW2.MFUP B4a: Urine Collection End MthURNEDYR Char 2 DW2.MFUP B4a: Urine Collection End YrURNSTDAY Char 2 DW2.MFUP B4a: Urine Collection St. DayURNSTMTH Char 2 DW2.MFUP B4a: Urine Collection St. MthURNSTYR Char 2 DW2.MFUP B4a: Urine Collection St. YearBUNED_FU Num 8 DW2.MFUP B4b: End BUNSCRED_FU Num 8 DW2.MFUP B4b: End Serum CreatinineUNIT_TYP Char 1 $FUNITYP. DW2.MFUP B4b: Lab Values unit typeBUNST_FU Num 8 DW2.MFUP B4b: Start BUNSCRST_FU Num 8 DW2.MFUP B4b: Start Serum CreatinineURNCR_FU Num 8 DW2.MFUP B4b: Urine CreatinineURNNT_FU Num 8 DW2.MFUP B4b: Urine Urea NitrogenURNVM_FU Num 8 DW2.MFUP B4b: Urine VolumeVAPRM_FU Char 1 $YESNO. DW2.MFUP C1: VA Perm ever attemptedVA1PM_FU Char 1 $FUVATYP. DW2.MFUP C2: 1st perm. VA type attemptedCORR_PVA Char 1 $FUVATYP. DW2.MFUP C2: Corrected VAPerm typeASIDE_FU Char 1 $SIDE. DW2.MFUP C2: What Side was this 1stPVASGDAY_FU Char 2 DW2.MFUP C3: Day of Surgery 1st VAPermSURG_FDT Num 8 DATE9. DW2.MFUP C3: Dt of Surgery 1st permVASGMTH_FU Char 2 DW2.MFUP C3: Mth of Surgery 1st VAPermSGYR_FU Char 2 DW2.MFUP C3: Year of Surgery 1st VAPermAFAIL_F1 Char 1 $YESNO. DW2.MFUP C4: 1PVA fail predial, notusedVADAY_FU Char 2 DW2.MFUP C4: Day this 1st PVA was usedVAST_FDT Num 8 DATE9. DW2.MFUP C4: Dt 1st Perm VA was usedVAMTH_FU Char 2 DW2.MFUP C4: Month this 1st PVA was usedWAS1VAP Char 1 $YESNO. DW2.MFUP C4: Was this 1st PVA ever usedVAYR_FU Char 2 DW2.MFUP C4: Year this 1st PVA was usedAFAIL_F2 Char 1 $YNUFMT. DW2.MFUP C5: 1PVA fail pstdial, afteruseFAILDAY Char 2 DW2.MFUP C5: 1PVA Failed after use, DayFAILMTH Char 2 DW2.MFUP C5: 1PVA Failed after use, MthFAILYR Char 2 DW2.MFUP C5: 1PVA Failed after use, YrLAST_DAY Char 2 DW2.MFUP C5: 1PVA Last known Day of UseLAST_MTH Char 2 DW2.MFUP C5: 1PVA Last known Month UseLAST_YR Char 2 DW2.MFUP C5: 1PVA Last known Year of UseFAIL_FDT Num 8 DATE9. DW2.MFUP C5: Date 1st Perm VA FailedLAST_FDT Num 8 DATE9. DW2.MFUP C5: Last Dt 1st PermVa usedREV1_DAY Char 2 DW2.MFUP C6: 1st revision to 1PVA, DayREV1_MTH Char 2 DW2.MFUP C6: 1st revision to 1PVA, MonthREV1_TYP Char 1 $FUREVTY. DW2.MFUP C6: 1st revision to 1PVA, TypeREV1_YR Char 2 DW2.MFUP C6: 1st revision to 1PVA, YearREV2_DAY Char 2 DW2.MFUP C6: 2nd revision to 1PVA, DayREV2_MTH Char 2 DW2.MFUP C6: 2nd revision to 1PVA, MonthREV2_TYP Char 1 $FUREVTY. DW2.MFUP C6: 2nd revision to 1PVA, TypeREV2_YR Char 2 DW2. MFUP C6: 2nd revision to 1PVA, yearVA_REVIS Char 1 $YNUFMT. DW2.MFUP C6: Any revisions to 1st VAPermREV1_FDT Num 8 DATE9. DW2.MFUP C6: Dt 1st revision to 1PVAREV2_FDT Num 8 DATE9. DW2.MFUP C6: Dt 2nd revision to 2PVASIGN_FDT Num 8 DATE9. DW2.MFUP: Date of SignatureSST_FDT Num 8 DATE9. DW2.MFUP: Study Start DateDATE_FDT Num 8 DATE9. DW2.MFUP: Todays DateDialysis patient Questionnaire (Follow-up)SIGDAY2 Char 2 DW2.PFUP : Day of signatureSIGMTH2 Char 2 DW2.PFUP : Month of signature


DMMSWAV2: DMMS Wave 2 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentEXP_PAT Char 1 $YESNO. DW2.PFUP : Patient ExpiredSPANQ2 Char 1 $YESNO. DW2.PFUP : Questionnaire in SpanishSIGYR2 Char 2 DW2.PFUP : Year of signatureSIGNED Char 1 $YESNO. DW2.PFUP :Is consent form signed?HELGEN2 Char 1 $GOOD5A. DW2.PFUP A1: General HealthWALKSEV2 Char 1 $LIMIT3A. DW2.PFUP A10: Walking several blocksWALKBLK2 Char 1 $LIMIT3A. DW2.PFUP A11: Walking 1 blockBATHING2 Char 1 $LIMIT3A. DW2.PFUP A12: Bathing or dressing selfREDTIM2 Char 1 $YESNO. DW2.PFUP A13: PH: Reduced time on workACCLESS2 Char 1 $YESNO. DW2.PFUP A14: PH: Accomplish less likedLIMWRK2 Char 1 $YESNO. DW2.PFUP A15: PH: Limited in kind of wrkDIFFPER2 Char 1 $YESNO. DW2.PFUP A16: PH: Difficulty perform wrkREDWRK2 Char 1 $YESNO. DW2.PFUP A17: EP: Reduced time on wrkACMPLS2 Char 1 $YESNO. DW2.PFUP A18: EP: Accomplish less likedWRKCAR2 Char 1 $YESNO. DW2.PFUP A19: EP: Didnt work as carefullHELPRE2 Char 1 $COMPFMT. DW2.PFUP A2: Health compared to pre yrSOCINT2 Char 1 $EXTEN5A. DW2.PFUP A20: Amt. of interf. w/ socialBODPAIN2 Char 1 $PAIN6A. DW2.PFUP A21: Amount of Bodily PainPAININT2 Char 1 $EXTEN5A. DW2.PFUP A22: Amt of pain interf. w/workPEP2 Char 1 $TIME6A. DW2.PFUP A23: Full of pepNERVPER2 Char 1 $TIME6A. DW2.PFUP A24: Nervous PersonDOWNDMP2 Char 1 $TIME6A. DW2.PFUP A25: Down in DumpsCALM2 Char 1 $TIME6A. DW2.PFUP A26: Calm & PeacefulENERGY2 Char 1 $TIME6A. DW2.PFUP A27: Lots of EnergyDOWNBLU2 Char 1 $TIME6A. DW2.PFUP A28: Downhearted & BlueWORNOUT2 Char 1 $TIME6A. DW2.PFUP A29: Worn OutVIGACT2 Char 1 $LIMIT3A. DW2.PFUP A3: Vigorous activitiesHAPPYPR2 Char 1 $TIME6A. DW2.PFUP A30: Happy PersonTIRED2 Char 1 $TIME6A. DW2.PFUP A31: Fell TiredINTSOC2 Char 1 $TIME5A. DW2.PFUP A32: PH/EP interf. w/social actSICK2 Char 1 $TRUE5A. DW2.PFUP A33: Get sick easier than otherHLTHEXP2 Char 1 $TRUE5A. DW2.PFUP A34: Heathy as anybodyHLTWRS2 Char 1 $TRUE5A. DW2.PFUP A35: Expect health to worsenEXLHLTH2 Char 1 $TRUE5A. DW2.PFUP A36: Health is excellentINTLIFE2 Char 1 $TRUE5A. DW2.PFUP A37: Kidney Dis interfer w/lifeTIME2 Char 1 $TRUE5A. DW2.PFUP A38: Too much time w/Kidney DisFRUST2 Char 1 $TRUE5A. DW2.PFUP A39: Frustrated w/ Kidney DisMODACT2 Char 1 $LIMIT3A. DW2.PFUP A4: Moderate activitiesBURDEN2 Char 1 $TRUE5A. DW2.PFUP A40: Burden of FamilyISOLATE2 Char 1 $TIME6A. DW2.PFUP A41: Isolate self from othersRCTSLOW2 Char 1 $TIME6A. DW2.PFUP A42: React slowly to thingsIRRIT2 Char 1 $TIME6A. DW2.PFUP A43: Act irritableDIFFCON2 Char 1 $TIME6A. DW2.PFUP A44: Difficult to think/conctrGETALNG2 Char 1 $TIME6A. DW2.PFUP A45: Get along well w/ othersCONFUSE2 Char 1 $TIME6A. DW2.PFUP A46: Become ConfusedMUSSOR2 Char 1 $EXTEN5B. DW2.PFUP A47: Muscle SorenessCHESTPN2 Char 1 $EXTEN5B. DW2.PFUP A48: Chest PainCRAMPS2 Char 1 $EXTEN5B. DW2.PFUP A49: CrampsLIFT2 Char 1 $LIMIT3A. DW2.PFUP A5: Lift or carry groceriesITCHSKN2 Char 1 $EXTEN5B. DW2.PFUP A50: Itchy SkinDRYSKN2 Char 1 $EXTEN5B. DW2.PFUP A51: Dry SkinBREATH2 Char 1 $EXTEN5B. DW2.PFUP A52: Shortness of BreathFAINT2 Char 1 $EXTEN5B. DW2.PFUP A53: Faintness/DizzinessAPPET2 Char 1 $EXTEN5B. DW2.PFUP A54: Lack of appetiteDRAIN2 Char 1 $EXTEN5B. DW2.PFUP A55: Washed out or DrainedNUMB2 Char 1 $EXTEN5B. DW2.PFUP A56: Numbness in hands or feetNAUSEA2 Char 1 $EXTEN5B. DW2.PFUP A57: Nausea or Upset StomacheACSPROB2 Char 1 $EXTEN5B. DW2.PFUP A58: Problems, access or cath.FLDRST2 Char 1 $EXTEN5B. DW2.PFUP A59: Fluid RestrictionsCLIMBMT2 Char 1 $LIMIT3A. DW2.PFUP A6: Climbing Flights of stairsDITRST2 Char 1 $EXTEN5B. DW2.PFUP A60: Dietary RestrictionsWRKABL2 Char 1 $EXTEN5B. DW2.PFUP A61: Ability to work in houseTRVABL2 Char 1 $EXTEN5B. DW2.PFUP A62: Ability to travelDEPEND2 Char 1 $EXTEN5B. DW2.PFUP A63: Dependent on Dr or StaffSTRESS2 Char 1 $EXTEN5B. DW2.PFUP A64: Stress by Kidney Disease


DMMSWAV2: DMMS Wave 2 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentSEXLF2 Char 1 $EXTEN5B. DW2.PFUP A65: Sex LifeENJSEX2 Char 1 $PROBLEM. DW2.PFUP A66: Inability to enjoy SexAROUSAB2 Char 1 $PROBLEM. DW2.PFUP A67: Difficult,sexually arousedREST2 Char 1 $YESNO. DW2.PFUP A68: Lie down more often, restNAP2 Char 1 $YESNO. DW2.PFUP A69: Sleep or Nap more, DayCLIMBON2 Char 1 $LIMIT3A. DW2.PFUP A7: Climbing 1flight of stairsSLEEPLS2 Char 1 $YESNO. DW2.PFUP A70: Sleep less at NightSLEEPQT2 Char 2 $QUAL10A. DW2.PFUP A71: Quality of sleep, last mthTOGETH2 Char 1 $GOOD5B. DW2.PFUP A72: Togetherness, friends&fam.SUPPORT2 Char 1 $GOOD5B. DW2.PFUP A73: Support from friend&fam.WRKPT2 Char 1 $YESNO. DW2.PFUP A74a: Able to work part-timeWRKFT2 Char 1 $YESNO. DW2.PFUP A74b: Able to work full-timeEMPLST2 Char 1 $WORK8A. DW2.PFUP A75: Employment statusFRIENDY2 Char 1 $GOOD7A. DW2.PFUP A76: Friendliness of staffENCOURG2 Char 1 $TRUE5B. DW2.PFUP A77: Staff, encour. normal lifeCOUNSLD2 Char 1 $TRUE5B. DW2.PFUP A78: Staff, counsel full rehabBEND2 Char 1 $LIMIT3A. DW2.PFUP A8: Bending,kneeling,stoopingWALKMLT2 Char 1 $LIMIT3A. DW2.PFUP A9: Walking, >1 MileDIETVST2 Char 1 $ONCE3A. DW2.PFUP B1: Pst ESRD, visit dietitianPHYSVST2 Char 1 DW2.PFUP B2: Visits or talk w/dial. physURINE2 Char 1 DW2.PFUP B3: How much urine in 24 hoursHEMO2 Char 1 DW2.PFUP C: On HemodialysisPDIAL2 Char 1 DW2.PFUP C: On Peritoneal DialysisTRANDIS2 Char 1 $YESNON. DW2.PFUP C1: Transplant option discussedTRANEVL2 Char 1 $YESNON. DW2.PFUP C2: Evaluated for a transplantWAITLST2 Char 1 $YESNON. DW2.PFUP C3: On a transplant waitlistMISSEXG2 Char 1 $MISSEDX. DW2.PFUP C4: # CAPD missed exchangesMISSTRT2 Char 1 $CYCLER. DW2.PFUP C5: # Cycler missed treatmentSHRTRMT2 Char 1 $CYCLER. DW2.PFUP C6: # Cycler shortened trtsAGE_GE60 Char 1 DW2.PFUP D: Age Greater than or =to60AGE_LT60 Char 1 DW2.PFUP D: Age less than 60WORKING2 Char 1 DW2.PFUP D1: Working StatusWAGERT2 Num 8 DW2.PFUP D2: Hourly Wage RateWAGEST2 Num 8 DW2.PFUP D3: Est. Hourly Wage RateEXFREQ2 Char 1 $EXER. DW2.PFUP E1: Frequency of ExerciseQUALCAR2 Char 1 $GOOD5A. DW2.PFUP E2: Taking care of own HealthNWTRTDM2 Char 1 $NOYES. DW2.PFUP E3: S.Work: Dial too demandingNWNOFLX2 Char 1 $NOYES. DW2.PFUP E3: S.Work: Dial. Not FlexibleNWOTHDT2 Char 1 $NOYES. DW2.PFUP E3: S.Work: Needed for otherNWNOJB2 Char 1 $NOYES. DW2.PFUP E3: S.Work: No job availableNWNOND2 Char 1 $NOYES. DW2.PFUP E3: S.Work: No Need/Want to wrkNWLSBNT2 Char 1 $NOYES. DW2.PFUP E3: S.Work: Would lose BenefitsNWRTRD2 Char 1 $NOYES. DW2.PFUP E3: Stopped Work: I am retiredNWTRD2 Char 1 $NOYES. DW2.PFUP E3: Stopped Work: Job too tireNWTOOSK2 Char 1 $NOYES. DW2.PFUP E3: Stopped Work: Too sickDESWRK2 Char 1 $WANTWRK. DW2.PFUP E4: Like to return to workSCHDINT2 Char 1 $EXTEN5C. DW2.PFUP E5a: D.Sched not interfer workSCHDCHG2 Char 1 $EXTEN5C. DW2.PFUP E5b: Dial sched changed, workSCHDNOT2 Char 1 $EXTEN5C. DW2.PFUP E5c: No Dial Shift to allow wrkASSTGVN2 Char 1 $YESNO. DW2.PFUP E6: Assistance given w/ formWHOGAVE2 Char 1 $WHOHELP. DW2.PFUP E7: Who Helped Complete FormHDKTV Num 8 8.2 Kt/V at SSD - Daugirdas 2 FormulaFROMMED Num 8 Medical Questionaire presentFROMPAT Num 8 Patient/QOL Questionaire presentPROVUSRD Num 8 7. USRDS assigned provider IDS_SEX Char 1 $SEXFMT.


DMMSWV34: DMMS Wave 3 and 4 PatientsEach "wave" includes a data collection instrument for collecting "core" data, that will allow collection of a consistent set of fundamental datafor research questions that requre a large sample size. Waves 3 and 4 are historical prospective studies in which data are collected for patientsreceiving in-center hemodialysis on December 31, 1993, and are each planned to include 6,000 patients.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntClinical Questionnaire FormUSRDS_ID Num 8 BEST32. USRDS patient IDDMMS_ID Num 8 DMMS Patient IDDMMSWAVE Num 8 BEST32. DMMS study sampling waveFSTEVET1 Char 1 DW34.M : 1st event in Modality after SSDCORRDOB Char 2 DW34.M : Correct day of birth if necess.COR_MDAY Char 2 DW34.M : Correct Modality Day, if necessCOR_MMTH Char 2 DW34.M : Correct Modality Month, if nec.COR_M_YR Char 2 DW34.M : Correct Modality Yr, If necessCORRMOB Char 2 DW34.M : Correct mth of birth if necess.CORRYOB Char 2 DW34.M : Correct yr of birth if necess.CORRDTOB Num 8 DATE9. DW34.M : Corrected DOB if neccessaryFST_DAY1 Char 2 DW34.M : Day 1st event in Mod. ,pst SSDDTH_DATE Num 8 DATE9. DW34.M : Death date 1 post ssd(12/31/93)DTH_DT2 Num 8 DATE9. DW34.M : Death date 2 post ssd(12/31/93)DTH1_SSD Char 1 $YNUFMT. DW34.M : Die post SSD?DMMS_SSD Num 8 DATE9. DW34.M : DMMS Study start dateFST_DATE Num 8 DW34.M : First event date 1FST_DT2 Num 8 DW34.M : First event date 2DOBCORR Char 1 DW34.M : Is DOBirth correct?SEXCORR Char 1 DW34.M : Is sex correct?SSNCORR Char 1 DW34.M : Is SSN correct?FST_MTH1 Char 2 DW34.M : Mth 1st event in Mod. ,pst SSDNETWORK Char 2 $NETFMTN. DW34.M : NetworkDTH_DAY1 Char 2 DW34.M : Pst SSD death, DayDTH_MTH1 Char 2 DW34.M : Pst SSD death, MonthDTH_YR1 Char 2 DW34.M : Pst SSD death, YearDATE_DAY Char 2 DW34.M : Todays DayDATE_MTH Char 2 DW34.M : Todays MonthDATE_YR Char 2 DW34.M : Todays YearFST_YR1 Char 2 DW34.M : Yr 1st event in Mod. ,pst SSDCOMP_DT Num 8 DATE9. DW34.M.A2 : Date abstract completedCOMPDAY Char 2 DW34.M.A2 : Day abstract completedCOMPMTH Char 2 DW34.M.A2 : Month abstract completedCOMPYR Char 2 DW34.M.A2 : Year abstract completedETHNIC Char 1 $ETHFMT. DW34.M.A3 : Ethnicity (Hispanic or not)RACEOTH Char 15 DW34.M.A4 : Other RaceS_RACE Char 1 $RACEDMS. DW34.M.A4 : RaceS_ZIP Char 5 DW34.M.A5 : ZipcodeFSTD_DT Num 8 DATE9. DW34.M.A6 : Date of 1st chron maint dialFDIALDAY Char 2 DW34.M.A6 : day of fst chron maint dialFDIALMTH Char 2 DW34.M.A6 : mth of fst chron maint dialFDIALYR Char 2 DW34.M.A6 : yr of fst chron maint dialBLUEX Char 1 $INSUR. DW34.M.B 1: Blue Cross Dec93PRIV_INS Char 1 $INSUR. DW34.M.B 2: Private ins. Dec93HMORG Char 1 $INSUR. DW34.M.B 3: HMO Dec93MCAREAB Char 1 $INSUR. DW34.M.B 4: Medicare Pt.AB Dec93MCAREA Char 1 $INSUR. DW34.M.B 5: Medicare Pt.A Dec93MCAREB Char 1 $INSUR. DW34.M.B 6: Medicare Pt.B Dec93CAID Char 1 $INSUR. DW34.M.B 7: Medicaid Dec93VETS_ADM Char 1 $INSUR. DW34.M.B 8: VA coverage Dec93MEDPEND Char 1 $INSUR. DW34.M.B 9: Medicare pending Dec93SELFPAY Char 1 $INSUR. DW34.M.B10 : Self Pay (ins.) Dec93UNINS Char 1 $INSUR. DW34.M.B11 : No Insurance Dec93OTHERINS Char 35 $INSUR. DW34.M.B12 : Other insurance Dec93OTH_PC Char 35 DW34.M.C 1: P. cause ESRD other, txtPC_DIS Char 1 $PDISD3W. DW34.M.C 1: Primary cause ESRDSMOKING Char 1 $SMOKE. DW34.M.C 2: Smoking statusCHD_CAD Char 1 $SUSPCT. DW34.M.C 3: Prior Dx of CHD/CADANGINA Char 1 $SUSPCT. DW34.M.C 4: AnginaMI Char 1 $SUSPCT. DW34.M.C 5: MI


DMMSWAV34: DMMS Wave 3& 4 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentCABG Char 1 $SUSPCT. DW34.M.C 6: Bypass surgeryANGIOPLA Char 1 $SUSPCT. DW34.M.C 7: Coronary angioplastyANGIOGRA Char 1 $SUSPCT. DW34.M.C 8: Coronary angiographyAN_GRABN Char 1 $SUSPCT. DW34.M.C 9: Coronary angio. abnormalCARDARR Char 1 $SUSPCT. DW34.M.C10 : Cardiac arrestCEREBROV Char 1 $SUSPCT. DW34.M.C11: Cerebrovascular AccidentTIA Char 1 $SUSPCT. DW34.M.C12 : Transient Ischemic atacksPVD Char 1 $SUSPCT. DW34.M.C13 : Peripheral Vascular DiseaseAMPUTATA Char 1 $SUSPCT. DW34.M.C14 : Amputation due to PVDLIMBAMP Char 1 $SUSPCT. DW34.M.C15 : Limb amputation (other)ABS_PULS Char 1 $SUSPCT. DW34.M.C16 : Absent foot pulsesCLAUDIC Char 1 $SUSPCT. DW34.M.C17 : ClaudicationCONG_H Char 1 $SUSPCT. DW34.M.C18 : Congestive Heart failurePULMED Char 1 $SUSPCT. DW34.M.C19 : Pulmonary edemaPERICARD Char 1 $SUSPCT. DW34.M.C20 : PericarditisDX_DIAB Char 1 $SUSPCT. DW34.M.C21 : Diabetes at Dec93INSULIN Char 1 $NEVRFMT. DW34.M.C22 : Insulin therapyDPILLS Char 1 $NEVRFMT. DW34.M.C23 : Diabetes PillsLUNGDIS Char 1 $SUSPCT. DW34.M.C24 : History of Lung DiseaseNEOPLASM Char 1 $SUSPCT. DW34.M.C25 : Neoplasms (other than skin)NEO_OTH Char 25 DW34.M.C26 : Neoplasm primary / otherNEO_TYPE Char 2 DW34.M.C26 : Neoplasm primary site/typeNEO_OTH2 Char 25 DW34.M.C26 : Neoplasm second / otherNEO_TYP2 Char 2 DW34.M.C26 : Neoplasm second site/typeNEO_YEAR Char 2 DW34.M.C27 : Year of first neoplasm DxHIV Char 1 $HIVFMT. DW34.M.C28 : HIV StatusAIDS Char 1 DW34.M.C29 : Diagnosed w/ AIDSBILAMP Char 1 DW34.M.D 1: Bilateral amputeeHT_CM Num 8 DW34.M.D 1: Height - cmHT_FT Num 8 DW34.M.D 1: Height - ftHT_IN Num 8 DW34.M.D 1: Height - inHT_RANGE Char 1 DW34.M.D 1: Ht val outside rangeAFT_WTKG Num 8 DW34.M.D 2: Dry weight-kilogramsAFT_WTLB Num 8 DW34.M.D 2: Dry weight-poundsUNDNOUR Char 2 $SUSPCT. DW34.M.D 3: UndernourishedHTIMEDAY Char 1 DW34.M.D 4: Time of day HD trt Dec93PRE_DBP Num 8 DW34.M.D 5: DBP at SSD/predialPRE_DBP2 Num 8 DW34.M.D 5: DBP at SSD/predial 2ndPRE_DBP3 Num 8 DW34.M.D 5: DBP at SSD/predial 3rdPRE_SBP Num 8 DW34.M.D 5: SBP at SSD/predialPRE_SBP2 Num 8 DW34.M.D 5: SBP at SSD/predial 2ndPRE_SBP3 Num 8 DW34.M.D 5: SBP at SSD/predial 3rdPREWT_1 Num 8 DW34.M.D 5: Weight at SSD/predialPREWT_2 Num 8 DW34.M.D 5: Weight at SSD/predial 2ndPREWT_3 Num 8 DW34.M.D 5: Weight at SSD/predial 3rdPRW_KGLB Char 1 DW34.M.D 5: Wgt predial kg or lbPST_DBP Num 8 DW34.M.D 6: DBP at SSD/postdialPST_DBP2 Num 8 DW34.M.D 6: DBP at SSD/postdial 2ndPST_DBP3 Num 8 DW34.M.D 6: DBP at SSD/postdial 3rdPST_SBP Num 8 DW34.M.D 6: SBP at SSD/postdialPST_SBP2 Num 8 DW34.M.D 6: SBP at SSD/postdial 2ndPST_SBP3 Num 8 DW34.M.D 6: SBP at SSD/postdial 3rdPSTWT_1 Num 8 DW34.M.D 6: weight at SSD/postdialPSTWT_2 Num 8 DW34.M.D 6: weight at SSD/postdial 2ndPSTWT_3 Num 8 DW34.M.D 6: weight at SSD/postdial 3rdPST_KGLB Char 1 DW34.M.D 6: Wgt postdial kg or lbDIALYSAT Char 1 $DISATE. DW34.M.D 7: DialysateHEMO_TIM Num 8 DW34.M.D 8: Prescribed trt time MINSESSIONS Num 8 DW34.M.D 9: Hemo no. sessions / weekHTM_RANG Char 1 DW34.M.D 9: Trt time outside range?BFR Num 8 DW34.M.D10 : Blood flow rateDFR Num 8 DW34.M.D11 : Dialysate flow rateDIALMAKE Char 25 DW34.M.D14 : Dialyzer makeDIALMODL Char 25 DW34.M.D14 : Dialyzer modelDIALYZER Num 8 DW34.M.D14 : Dialyzer type


DMMSWAV34: DMMS Wave 3& 4 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentWAVE2_CD Char 4 DW34.M.D14 : Dialyzer typeVA_OTHER Char 35 DW34.M.D15 : Other type of VA Dec93ACCESS Char 1 $VASTYPE. DW34.M.D15 : Vascular access,use Dec93SURGDAY Char 2 DW34.M.D16 : day of Placement for VASURGMTH Char 2 DW34.M.D16 : mth of Placement for VASURGYR Char 2 DW34.M.D16 : yr of Placement for VASKIPDIAL Num 8 DW34.M.D17 : Number of treats skippedSHRTDIAL Num 8 DW34.M.D18 : Treats shortnd by gt 10 minPRIOR_TX Char 1 $YESNO. DW34.M.D19 : Renal Tx before Dec93 ?PRIOR_BN Char 1 $YESNO. DW34.M.D20 : Bilateral neph. pre Dec93 ?IND_EAT Char 1 $YESNO. DW34.M.E 1: Able to eat independently?IND_WALK Char 1 $YESNO. DW34.M.E 2: Able to walk w/o assistance?AST_WALK Char 1 $YESNO. DW34.M.E 3: Walk with assistanceWHEELCHR Char 1 $YESNO. DW34.M.E 4: Requires wheelchairIND_XFER Char 1 $YESNO. DW34.M.E 5: Independent transferringMAR_STAT Char 1 $MARSTAT. DW34.M.E 6: Marital statusALONE Char 1 $ALONE. DW34.M.E 7: Living aloneEDUCAT Char 1 $EDLEV. DW34.M.E 8: EducationOCCUPATN Char 1 $EMPLOY. DW34.M.E 9: Occupation level before ESRDOCC_OTHR Char 25 DW34.M.E 9: Occupation pre ESRD - otherEMP_OTH Char 25 DW34.M.E10 : Employment Dec93, otherEMP_D93 Char 2 $EMPLOY. DW34.M.E10 : Employment level at Dec 93LOOKEMP Char 1 $YESNO. DW34.M.E11 : Looking for EmploymentXRAY Char 1 DW34.M.F 1: Cardiomegaly by x-rayEKGR Char 1 DW34.M.F 2: Left ventr hyper by EKGECHOCRD Char 1 DW34.M.F 3: Left ventr hyper by echo.SER_CAL Num 8 DW34.M.F 4: Serum calcium predialPHOSPH Num 8 DW34.M.F 5: Serum phospherousSER_BIC Num 8 DW34.M.F 6: Serum bicarbonateCREAT1 Num 8 DW34.M.F 7: Serum creatine, predialCREAT2 Num 8 DW34.M.F 8: Incid93, s.creat preFstDialWBC_TOT Num 8 DW34.M.F 9: White blood count Dec93PMN Num 8 DW34.M.F10 : neutrophil or PMN Dec93LYMPHO Num 8 DW34.M.F11 : Lymphocyte Dec93HEMATO Num 8 DW34.M.F12 : HematocritHEMT_RNG Char 1 DW34.M.F12 : Hematocrit out of rangeHEMOGLOB Num 8 DW34.M.F13 : HemoglobinTRANS Char 1 $YESNO. DW34.M.F14 : Receive Transfusion Dec93NUMTRFS Char 1 DW34.M.F15 : # of transfusionsEPODAY Char 2 DW34.M.F16 : Latest Day in Dec93 epo admEPOMTH Char 2 DW34.M.F16 : Latest Mth in Dec93 epo admEPOYR Char 2 DW34.M.F16 : Latest Yr in Dec93 epo admEPO Char 1 $YESNO. DW34.M.F16 : Taking EPO Dec93EPO_DT Num 8 DATE9. DW34.M.F16 Latest date in Dec93 EPO admiEPO_BF60 Char 1 $YESNO. DW34.M.F17 : Taking EPO 60day prior?EPOUPREA Num 8 DW34.M.F18 : Units of EPO / admin prescrEPOUNITA Num 8 DW34.M.F18 : Units of EPO / admin, delEPOUDELW Num 8 DW34.M.F18 : Units of EPO / week, delEPOUPREW Num 8 DW34.M.F18 : Units of EPO / week, prescrEPOADWK Num 8 DW34.M.F19 : # adms EPO / week,del Dec93EPOAPREW Num 8 DW34.M.F19 : # adms EPO /week,pres Dec93EPOROUTE Char 1 DW34.M.F19 : Route of EPO administrationPSTBUN3 Num 8 DW34.M.F20 : 1st BUN postdialysis SeptPREBUN3 Num 8 DW34.M.F20 : 1st BUN predialysis SeptSERALB3 Num 8 DW34.M.F20 : 1st Serum Albumin pred, SepPSTBUN4 Num 8 DW34.M.F20 : 2nd BUN postdialysis OctPREBUN4 Num 8 DW34.M.F20 : 2nd BUN predialysis OctSERALB4 Num 8 DW34.M.F20 : 2nd Serum Albumin pred, OctPSTBUN5 Num 8 DW34.M.F20 : 3rd BUN postdialysis NovPREBUN5 Num 8 DW34.M.F20 : 3rd BUN predialysis NovSERALB5 Num 8 DW34.M.F20 : 3rd Serum Albumin pred, NovPSTBUN6 Num 8 DW34.M.F20 : 4th BUN postdialysis DecPREBUN6 Num 8 DW34.M.F20 : 4th BUN predialysis DecSERALB6 Num 8 DW34.M.F20 : 4th Serum Albumin pred, DecBUNDAY1 Char 2 DW34.M.F20: Day of BUN 1, Sept


DMMSWAV34: DMMS Wave 3 & 4 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentBUNDAY2 Char 2 DW34.M.F20: Day of BUN 2, OctBUNDAY3 Char 2 DW34.M.F20: Day of BUN 3, NovBUNDAY4 Char 2 DW34.M.F20: Day of BUN 4, DecPSBN_RNG Char 1 DW34.M.F20: PostBun out of range?PRBN_RNG Char 1 DW34.M.F20: PreBun out of range?PSTWGT3 Num 8 DW34.M.F21 : 1# WGT postdialysis, SeptPSTWGT4 Num 8 DW34.M.F21 : 2# WGT postdialysis, OctPSTWGT5 Num 8 DW34.M.F21 : 3# WGT postdialysis, NovPSTWGT6 Num 8 DW34.M.F21 : 4# WGT postdialysis, DecWGT_RNG Char 1 DW34.M.F21 : Is Weight out of Range?UNITLBKG Char 1 DW34.M.F21 : Pre/Pst Weight in Lbs/ KgsPREWGT3 Num 8 DW34.M.F21 : 1st WGT predialysis SeptPREWGT4 Num 8 DW34.M.F21 : 2nd WGT predialysis OctPREWGT5 Num 8 DW34.M.F21 : 3rd WGT predialysis NovPREWGT6 Num 8 DW34.M.F21 : 4th WGT predialysis DecDURDIA1 Num 8 DW34.M.F23 : 1# Duration of dial, SeptDURDIA2 Num 8 DW34.M.F23 : 2# Duration of dial, OctDURDIA3 Num 8 DW34.M.F23 : 3# Duration of dial, NovDURDIA4 Num 8 DW34.M.F23 : 4# Duration of dial, DecCHOLEST Num 8 DW34.M.F24 : CholesterolCHOL_HDL Num 8 DW34.M.F25 : HDL CholesterolCHOL_LDL Num 8 DW34.M.F26 : LDL CholesterolTRIGLY Num 8 DW34.M.F27 : TriglyceridesSER_PTH Num 8 DW34.M.F28 : Serum intact PTHSER_ALUM Num 8 DW34.M.F29 : Serum Aluminum (random)MED1 Char 20 DW34.M.G1 : Medication #1MED1DOSE Char 25 DW34.M.G1 : Medication #1 DoseMED1FREQ Char 2 DW34.M.G1 : Medication #1 FrequencyMED10 Char 20 DW34.M.G1 : Medication #10MD10DOSE Char 25 DW34.M.G1 : Medication #10 DoseMD10FREQ Char 2 DW34.M.G1 : Medication #10 FrequencyMED11 Char 20 DW34.M.G1 : Medication #11MD11DOSE Char 25 DW34.M.G1 : Medication #11 DoseMD11FREQ Char 2 DW34.M.G1 : Medication #11 FrequencyMED12 Char 20 DW34.M.G1 : Medication #12MD12DOSE Char 25 DW34.M.G1 : Medication #12 DoseMD12FREQ Char 2 DW34.M.G1 : Medication #12 FrequencyMED13 Char 20 DW34.M.G1 : Medication #13MD13DOSE Char 25 DW34.M.G1 : Medication #13 DoseMD13FREQ Char 2 DW34.M.G1 : Medication #13 FrequencyMED14 Char 20 DW34.M.G1 : Medication #14MD14DOSE Char 25 DW34.M.G1 : Medication #14 DoseMD14FREQ Char 2 DW34.M.G1 : Medication #14 FrequencyMED15 Char 20 DW34.M.G1 : Medication #15MD15DOSE Char 25 DW34.M.G1 : Medication #15 DoseMD15FREQ Char 2 DW34.M.G1 : Medication #15 FrequencyMED16 Char 20 DW34.M.G1 : Medication #16MD16DOSE Char 25 DW34.M.G1 : Medication #16 DoseMD16FREQ Char 2 DW34.M.G1 : Medication #16 FrequencyMED17 Char 20 DW34.M.G1 : Medication #17MD17DOSE Char 25 DW34.M.G1 : Medication #17 DoseMD17FREQ Char 2 DW34.M.G1 : Medication #17 FrequencyMED18 Char 20 DW34.M.G1 : Medication #18MD18DOSE Char 25 DW34.M.G1 : Medication #18 DoseMD18FREQ Char 2 DW34.M.G1 : Medication #18 FrequencyMED19 Char 20 DW34.M.G1 : Medication #19MD19DOSE Char 25 DW34.M.G1 : Medication #19 DoseMD19FREQ Char 2 DW34.M.G1 : Medication #19 FrequencyMED2 Char 20 DW34.M.G1 : Medication #2MED2DOSE Char 25 DW34.M.G1 : Medication #2 DoseMED2FREQ Char 2 DW34.M.G1 : Medication #2 FrequencyMED20 Char 20 DW34.M.G1 : Medication #20MD20DOSE Char 25 DW34.M.G1 : Medication #20 DoseMD20FREQ Char 2 DW34.M.G1 : Medication #20 FrequencyMED3 Char 20 DW34.M.G1 : Medication #3


DMMSWAV34: DMMS Wave 3& 4 Patients (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentMED3DOSE Char 25 DW34.M.G1 : Medication #3 DoseMED3FREQ Char 2 DW34.M.G1 : Medication #3 FrequencyMED4 Char 20 DW34.M.G1 : Medication #4MED4DOSE Char 25 DW34.M.G1 : Medication #4 DoseMED4FREQ Char 2 DW34.M.G1 : Medication #4 FrequencyMED5 Char 20 DW34.M.G1 : Medication #5MED5DOSE Char 25 DW34.M.G1 : Medication #5 DoseMED5FREQ Char 2 DW34.M.G1 : Medication #5 FrequencyMED6 Char 20 DW34.M.G1 : Medication #6MED6DOSE Char 25 DW34.M.G1 : Medication #6 DoseMED6FREQ Char 2 DW34.M.G1 : Medication #6 FrequencyMED7 Char 20 DW34.M.G1 : Medication #7MED7DOSE Char 25 DW34.M.G1 : Medication #7 DoseMED7FREQ Char 2 DW34.M.G1 : Medication #7 FrequencyMED8 Char 20 DW34.M.G1 : Medication #8MED8DOSE Char 25 DW34.M.G1 : Medication #8 DoseMED8FREQ Char 2 DW34.M.G1 : Medication #8 FrequencyMED9 Char 20 DW34.M.G1 : Medication #9MED9DOSE Char 25 DW34.M.G1 : Medication #9 DoseMED9FREQ Char 2 DW34.M.G1 : Medication #9 FrequencyVITAMN_D Char 1 DW34.M.G2 : Injectable Vit.D, Dec93MEDSWHLD Char 1 DW34.M.G3 : BloodPress.meds w/held preD?FSTEVET2 Char 1 DW34.M.H1 : 1st event in Modality pstSSDFST_DAY2 Char 2 DW34.M.H2 : Day 1st event in Mod. pstSSDFST_MTH2 Char 2 DW34.M.H2 : Mth 1st event in Mod. pstSSDFST_YR2 Char 2 DW34.M.H2 : Yr 1st event in Mod. pst SSDDTH2_SSD Char 1 $YNUFMT. DW34.M.H3 : Die post SSD?DTH_DAY2 Char 2 DW34.M.H3 : Pst SSD death, DayDTH_MTH2 Char 2 DW34.M.H3 : Pst SSD death, MonthDTH_YR2 Char 2 DW34.M.H3 : Pst SSD death, YearHDKTV6 Num 8 8.2 Kt/V Dec - Daugirdas 2 formulaHDKTV5 Num 8 8.2 Kt/V Nov - Daugirdas 2 formulaHDKTV4 Num 8 8.2 Kt/V Oct - Daugirdas 2 formulaHDKTV3 Num 8 8.2 Kt/V Sept - Daugirdas 2 formulaNC_BORN Num 8 DATE9. NC Birthdate - from Network CensusNC_RACE Char 1 $RACEFMT. NC Race - from Network CensusNC_SEX Char 1 $SEXFMT. NC Sex - from Network CensusPROVUSRD Num 8 7. USRDS assigned provider ID


DMMSFACS1: DMMS Special Studies FacilityFacility Questionnaire for Wave 1 Special Study

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentBLEACH Char 1 $YESNO. DW1.F 6c: Bleach used at abstractionBLEACH93 Char 1 $YESNO. DW1.F 6c: Bleach used 12/31/93CHARCOAL Char 1 $YESNO. DW1.F 8 : Activ charcoal used for dialCHARREP Char 1 $YESNO. DW1.F 8 : Activ charcoal used for reproDEIONIZE Char 1 $YESNO. DW1.F 8 : Deionization used for dialDEIONREP Char 1 $YESNO. DW1.F 8 : Deionization used for reproFORMAL93 Char 1 $YESNO. DW1.F 6c: Formalin used 12/31/93FORMALIN Char 1 $YESNO. DW1.F 6c: Formalin used at abstractionFORMDATE Num 8 MMDDYY7. DW1.F 3 : Date form completedGLUTAR93 Char 1 $YESNO. DW1.F 6c: Glutaral used 12/31/93GLUTARAL Char 1 $YESNO. DW1.F 6c: Glutaral used at abstractionHDMSHARE Num 8 DW1.F12 : Common mach share/all hd machHEATON Char 1 $YESNO. DW1.F 6c: Heat used at abstractionHEATON93 Char 1 $YESNO. DW1.F 6c: Heat used 12/31/93HMANMD Char 1 $HMANMO. DW1.F11 : Most Common Hemodialysis machiKTVURRTP Char 1 DW1.F 9 : Type of Kt/v or URRLABALB93 Num 8 DW1.F13 : Lab ser alb low lim norm 93LABALBLL Num 8 DW1.F13 : Lab ser alb low lim norm absNETWORK Char 2 DW1.F 1 : NetworkPROVUSRD Num 8 KECC Assigned Facility IDRENAL93 Char 1 $YESNO. DW1.F 6c: Renalin (paracetic) used 1293RENALIN Char 1 $YESNO. DW1.F 6c: Renalin (paracetic) used abstREUSEBLT Char 1 $YESNO. DW1.F 6d: Reuse blood tubing 12/31/93REUSEMAC Char 1 DW1.F 6b: Reuse machineREUSET93 Char 1 $TYPREUS. DW1.F 6b: Reuse technique 12/31/93REUSETEC Char 1 $TYPREUS. DW1.F 6b: Reuse technique at abstractREUSSTOP Num 8 MONYY. DW1.F 6a: Date reuse stoppedREUSSTRT Num 8 MONYY. DW1.F 6a: Date reuse startedREVOSMOS Char 1 $YESNO. DW1.F 8 : Reverse osmosis used for dialREVOSREP Char 1 $YESNO. DW1.F 8 : Reverse osmosis used for reprSOFTENER Char 1 $YESNO. DW1.F 8 : Water softener used for dialSOFTREP Char 1 $YESNO. DW1.F 8 : Water softener used for reproTIMEBUN Char 1 DW1.F10 : Timing of pst dial BUN sampleTOPRESNT Char 1 DW1.F 6a: Reuse through to presentULTRFILT Char 1 $YESNO. DW1.F 8 : Ultrafilter used for dialULTRREP Char 1 $YESNO. DW1.F 8 : Ultrafilter used for reproUNITREUS Char 1 $YESNO. DW1.F 6 : Unit Reuse 12/1993UNIT_ID Char 4 DW1.F : ITS assigned unit qaire#UVLIGHT Char 1 $YESNO. DW1.F 8 : U-V light used for dialysateUVLTREP Char 1 $YESNO. DW1.F 8 : U-V light used for reproVACCSURV Char 1 DW1.F14 : Routine vasc acc surveill 93WATERSRC Char 1 $WATRSRC. DW1.F 7 : Type of water sourceYEAR Num 4


DMMSFACS2: DMMS Special Studies FacilityFacility Questionnaire for Wave 2 Special Study



DMMSFACS34: DMMS Special Studies FacilityFacility Questionnaire for DMMS Waves 3 & 4 Special Studies



FCOSHOS: Facility Cost Reports for Hospital FacilitiesThe CMS hospital and independent facility cost reports for the years 1989-1995 and 1989-1993 are available as Standard Analysis Files.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntPROVUSRD Num 8 BEST22. USRDS assigned facility IDR2 Char 5 Cost Reporting per Beg DateR3 Char 5 Cost Reporting per End DateR4 Char 2 Number of mths in Cost Rept perR5 Char 2 Type of Control (See Table I)R12 Char 1 Cost Report Status (Table IV)R15 Char 5 HCRIS Data File Creation DateR16 Num 8 Physicians for Direct pt CareR17 Num 8 RNs for Direct pt CareR18 Num 8 LPNs for Direct pt CareR19 Num 8 Nurses Aides for Dir pt CareR20 Num 8 Technicians for Direct pt CareR21 Num 8 Social Workers for Dir pt CareR22 Num 8 pts for Direct pt CareR23 Num 8 No of Machines for Reg UseR24 Num 8 Number of Standby MachinesR25 Num 8 Ave Dial Times per pt/WeekR26 Num 8 Days per Week Dalysis is FurnR27 Num 8 Average Time of pt DialysisR28 Num 8 Number of pts in Dialysis PgmR29 Num 8 Number of ShiftsR30 Num 8 Hours per ShiftR31 Num 8 Number of lX/Week TmentsR32 Num 8 Number of 2x/Week TmentsR33 Num 8 Number of 3X/Week TmentsR34 Num 8 Number of >3x/Week TmentsR35 Num 8 Total Number of Tments per WeekR36 Num 8 Times Dialz Reused-hollow fiberR37 Num 8 Times Dialz Reus-parallel PlateR38 Num 8 Times Dialz Reused (coil)R39 Num 8 Number of pts in HPR40 Num 8 Total Physician CostsR41 Num 8 Physician Costs O/P HemoR42 Num 8 Physician Costs O/P PDR43 Num 8 Total RN CostsR44 Num 8 RN Costs O/P HemoR45 Num 8 RN Costs Assign O/P PDR46 Num 8 Total LPN CostsR47 Num 8 LPN Costs for O/P O/P HemoR48 Num 8 LPN Costs O/P PDR49 Num 8 Total Nurses Aide CostsR50 Num 8 N A Costs O/P HemoR51 Num 8 N A Costs O/P PDR52 Num 8 Total Technician CostsR53 Num 8 Tech Costs O/P HemoR54 Num 8 Tech Costs O/P PDR55 Num 8 Total Social Worker CostsR56 Num 8 S W Costs O/P HemoR57 Num 8 S W Costs O/P PDR58 Num 8 Total pt CostsR59 Num 8 pt Costs O/P HemoR60 Num 8 pt Costs O/P PDR61 Num 8 Total Admin CostsR62 Num 8 Admin Costs Outrpt HemoR63 Num 8 Admin Costs O/P PDR64 Num 8 Total Managers CostsR65 Num 8 Managers Costs O/P HemoR66 Num 8 Managers Costs O/P PDR67 Num 8 Total Other empl CostsR68 Num 8 Other empl Costs O/P HemoR69 Num 8 Other empl Costs O/P PDR70 Num 8 Total Dir Cap CostsR71 Num 8 Dir Cap Costs O/P Hemo


FCOSHOS: Facility Cost Reports for Hospital Facilities (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentR72 Num 8 Dir Cap Costs O/P PDR73 Num 8 Total Sup CostsR74 Num 8 Sup Costs O/P HemoR75 Num 8 Sup Costs O/P PDR76 Num 8 Total for Purchased SersR77 Num 8 Purchased Ser Costs O/P HemoR78 Num 8 Purchased Ser Costs O/P PDR79 Num 8 Total for Other CostsR80 Num 8 Other Costs O/P HemoR81 Num 8 Other Costs O/P PDR82 Num 8 Total Cap rel Costs B&FR83 Num 8 Cap rel Costs (B & F) O/P HemoR84 Num 8 Cap rel Costs (B & F) O/P PDR85 Num 8 Total Cap rel Costs Move EqptR86 Num 8 Cap rel Costs (ME) O/P HemoR87 Num 8 Cap rel Costs (ME) O/P PDR88 Num 8 Total for Emp BeneR89 Num 8 Emp Bene O/P HemoR90 Num 8 Emp Bene O/P PDR91 Num 8 Tot Admin & GeneralR92 Num 8 A & G O/P HemoR93 Num 8 A & G O/P PDR94 Num 8 Total Maint & RepairsR95 Num 8 Maint & Repairs O/P HemoR96 Num 8 Maint & Repairs O/P PDR97 Num 8 Total for Nursing AdminR98 Num 8 Nursing Admin. O/P HemoR99 Num 8 Nursing Admin. O/P PDR100 Num 8 Total for Nursing SchoolR101 Num 8 Nursing School O/P HemoR102 Num 8 Nursing School O/P PDR103 Num 8 Tot for I & R Teaching PgmR104 Num 8 I & R Teaching O/P HemoR105 Num 8 I & R Teaching O/P PDR106 Num 8 Total Central Sers & SupR107 Num 8 Ser & Sup O/P HemoR108 Num 8 Ser & Sup O/P PDR109 Num 8 Total PharmacyR110 Num 8 Pharmacy O/P HemoR111 Num 8 Pharmacy O/P PDR112 Num 8 Total Other alloc CostsR113 Num 8 Other alloc Costs O/P HemoR114 Num 8 Other alloc Costs O/P PDR115 Num 8 Total LabR116 Num 8 Lab O/P HemoR117 Num 8 Lab O/P PDR118 Num 8 Total Respiratory TherapyR119 Num 8 Respir Therapy O/P HemoR120 Num 8 Respiratory Therapy O/P PDR121 Num 8 Total malprice 1/89-9/92 ONLYR122 Num 8 malpr O/P Hemo 1/89-9/92 ONLYR123 Num 8 malpr O/P PD 1/89-9/92 ONLYR124 Num 8 Total of all alloc CostsR125 Num 8 Total alloc Costs O/P HemoR126 Num 8 Total alloc Costs O/P PDR127 Num 8 Phys Costs O/P Hemo TrnR128 Num 8 Phys Costs O/P PD TrnR129 Num 8 Phys Costs O/P CAPD TrnR130 Num 8 Phys Costs O/P CCPD TrnR131 Num 8 RN Costs O/P Hemo TrnR132 Num 8 RN Costs O/P PD TrnR133 Num 8 RN Costs O/P CAPD TrnR134 Num 8 RN Costs O/P CCPD TrnR135 Num 8 LPN Costs O/P Hemo TrnR136 Num 8 LPN Costs O/P PD Trn


FCOSHOS: Facility Cost Reports for Hospital Facilities (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentR137 Num 8 LPN Costs O/P CAPD TrnR138 Num 8 LPN Costs O/P CCPD TrnR139 Num 8 N A Costs O/P Hemo TrnR140 Num 8 N A Costs O/P PD TrnR141 Num 8 N A Costs O/P CAPD TrnR142 Num 8 N A Costs O/P CCPD TrnR143 Num 8 Tech Costs O/P Hemo TrnR144 Num 8 Tech Costs O/P PD TrnR145 Num 8 Tech Costs O/P CAPD TrnR146 Num 8 Tech Costs O/P CCPD TrnR147 Num 8 S W Costs O/P Hemo TrnR148 Num 8 S W Costs O/P PD TrnR149 Num 8 S W Costs O/P CAPD TrnR150 Num 8 S W Costs O/P CCPD TrnR151 Num 8 pt Costs O/P Hemo TrnR152 Num 8 pt Costs O/P PD TrnR153 Num 8 pt Costs O/P CAPD TrnR154 Num 8 pt Costs O/P CCPD TrnR155 Num 8 Admin Costs O/P Hemo TrnR156 Num 8 Admin Costs - O/P PD TrnR157 Num 8 Admin Costs - O/P CAPD TrnR158 Num 8 Admin Costs - O/P CCPD TrnR159 Num 8 Managers Costs - O/P H TrnR160 Num 8 Managers Costs - O/P PD TrnR161 Num 8 Managers Costs - O/P CAPD TrnR162 Num 8 Managers Costs - O/P CCPD TrnR163 Num 8 Other Empl costs - O/P H TrnR164 Num 8 Other Empl costs O/P PD TrnR165 Num 8 Other empl Costs O/P CAPD TrnR166 Num 8 Other empl Costs O/P CCPD TrnR167 Num 8 Dir Cap Costs O/P Hemo TrnR168 Num 8 Dir Cap Costs O/P PD TrnR169 Num 8 Dir Cap Costs O/P CAPD TrnR170 Num 8 Dir Cap Costs O/P CCPD TrnR171 Num 8 Sup Costs O/P Hemo TrnR172 Num 8 Sup Costs O/P PD TrnR173 Num 8 Sup Costs O/P CAPD TrnR174 Num 8 Sup Costs O/P CCPD TrnR175 Num 8 Purch Ser Costs O/P H TrnR176 Num 8 Purch Ser Costs O/P PD TrnR177 Num 8 Purch Ser Costs O/P CAPD TrnR178 Num 8 Purch Ser Costs O/P CCPD TrnR179 Num 8 Other Costs O/P Hemo TrnR180 Num 8 Other Costs O/P PD TrnR181 Num 8 Other Costs O/P CAPD TrnR182 Num 8 Other Costs O/P CCPD TrnR183 Num 8 Cap rel Costs (B & F) O/P H TrnR184 Num 8 Cap rel Costs (B & F) O/P PD TrnR185 Num 8 Cap rel Costs (B & F) O/P CAPD TrnR186 Num 8 Cap rel Costs (B & F) O/P CCPD TrnR187 Num 8 Cap rel Costs (ME) O/P Hemo TrnR188 Num 8 Cap rel Costs (ME) O/P PD TrnR189 Num 8 Cap rel Costs (ME) O/P CAPD TrnR190 Num 8 Cap rel Costs (ME)O/P CCPD TrnR191 Num 8 Emp Bene 22 O/P Hemo TrnR192 Num 8 Emp Bene 22 O/P PD TrnR193 Num 8 Emp Bene 22 O/P CAPD TrnR194 Num 8 Emp Bene 22 O/P CCPD TrnR195 Num 8 A & G 24 O/P Hemo TrnR196 Num 8 A & G 24 O/P PD TrnR197 Num 8 A & G 24 O/P CAPD TrnR198 Num 8 A & G 24 O/P CCPD TrnR199 Num 8 Maint. & Repairs O/P Hemo TrnR200 Num 8 Maint. & Repairs O/P PD TrnR201 Num 8 Maint. & Repairs O/P CAPD Trn


FCOSHOS: Facility Cost Reports for Hospital Facilities (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentR202 Num 8 Maint. & Repairs O/P CCPD TrnR203 Num 8 Nursing Admin. O/P Hemo TrnR204 Num 8 Nursing Admin. O/P PD TrnR205 Num 8 Nursing Admin. O/P CAPD TrnR206 Num 8 Nursing Admin. O/P CCPD TrnR207 Num 8 Nursing School O/P Hemo TrnR208 Num 8 Nursing School O/P PD TrnR209 Num 8 Nursing School O/P CAPD TrnR210 Num 8 Nursing School O/P CCPD TrnR211 Num 8 I & R Teaching O/P Hemo TrnR212 Num 8 I & R Teaching O/P PD TrnR213 Num 8 I & R Teaching O/P CAPD TrnR214 Num 8 I & R Teaching O/P CCPD TrnR215 Num 8 Ser & Sup O/P Hemo TrnR216 Num 8 Ser & Sup O/P PD TrnR217 Num 8 Ser & Sup O/P CAPD TrnR218 Num 8 Ser & Sup O/P CCPD TrnR219 Num 8 Pharmacy O/P HemoR220 Num 8 Pharmacy O/P PeritonealR221 Num 8 Pharmacy O/P CAPD TrnR222 Num 8 Pharmacy O/P CCPD TrnR223 Num 8 Other alloc Costs O/P Hemo TrnR224 Num 8 Other alloc Costs O/P PD TrnR225 Num 8 Other alloc Costs O/P CAPD TrnR226 Num 8 Other alloc Costs O/P CCPD TrnR227 Num 8 Lab O/P Hemo TrnR228 Num 8 Lab O/P PD TrnR229 Num 8 Lab O/P CAPD TrnR230 Num 8 Lab O/P CCPD TrnR231 Num 8 Resp Therapy O/P Hemo TrnR232 Num 8 Resp Therapy O/P PD TrnR233 Num 8 Resp Therapy O/P CAPD TrnR234 Num 8 Resp Therapy O/P CCPD TrnR235 Num 8 mal O/P HEMO Trn 1/89-9/92 ONLYR236 Num 8 mal O/P PD Trn 1/89-9/92 ONLYR237 Num 8 mal O/P CAPD Trn 1/89-9/92 ONLYR238 Num 8 mal O/P CCPD Trn 1/89-9/92 ONLYR239 Num 8 Total alloc Costs O/P Hemo TrnR240 Num 8 Total alloc Costs O/P PD TrnR241 Num 8 Total alloc Costs O/P CAPD TrnR242 Num 8 Total alloc Costs O/P CCPD TrnR243 Num 8 Physician Costs HP HemoR244 Num 8 Physician Costs HP PDR245 Num 8 RN Costs HP HemoR246 Num 8 RN Costs HP PDR247 Num 8 LPN Costs HP. HemoR248 Num 8 LPN Costs HP PDR249 Num 8 N A Costs HP HemoR250 Num 8 N A Costs HP PDR251 Num 8 Tech Costs HP HemoR252 Num 8 Tech Costs HP PDR253 Num 8 S W Costs HP HemoR254 Num 8 S W Costs HP PDR255 Num 8 pt Costs HP HemoR256 Num 8 pt Costs HP PDR257 Num 8 Admin Costs HP HemoR258 Num 8 Admin Costs HP PDR259 Num 8 Managers Costs HP HemoR260 Num 8 Managers Costs HP PDR261 Num 8 Other empl Costs HP HemoR262 Num 8 Other empl Costs HP PDR263 Num 8 Dir Cap Costs HP HemoR264 Num 8 Dir Cap Costs HP PDR265 Num 8 Sup Costs HP Hemo .R266 Num 8 Sup Costs HP PD


FCOSHOS: Facility Cost Reports for Hospital Facilities (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentR267 Num 8 Purchased Ser Costs HP HemoR268 Num 8 Purchased Ser Costs HP PDR269 Num 8 Other Costs Assig to HP HemoR270 Num 8 Other Costs HP PDR271 Num 8 Cap rel Costs (B & F) HP HemoR272 Num 8 Cap rel Costs (B & F) HP PDR273 Num 8 Cap rel Costs (ME) HP HemoR274 Num 8 Cap rel Costs (ME) HP PDR275 Num 8 Emp Bene HP HemoR276 Num 8 Emp Bene HP PDR277 Num 8 A & G HP HemoR278 Num 8 A & G HP PDR279 Num 8 Maint. & Repairs HP HemoR280 Num 8 Maint. & Repairs HP PDR281 Num 8 Nursing Admin. HP HemoR282 Num 8 Nursing Admin. HP PDR283 Num 8 Nursing School HP HemoR284 Num 8 Nursing School HP PDR285 Num 8 I & R Teaching HP HemoR286 Num 8 I & R Teaching HP PDR287 Num 8 Ser & Sup HP HemoR288 Num 8 Ser & Sup HP PDR289 Num 8 Pharmacy HP HemoR290 Num 8 Pharmacy HP PDR291 Num 8 Other alloc Costs HP HemoR292 Num 8 Other alloc Costs HP PDR293 Num 8 Lab HP HemoR294 Num 8 Lab HP PDR295 Num 8 Respiratory Therapy HP HemoR296 Num 8 Respiratory Therapy HP PDR297 Num 8 malpr HP HEMO 1/89-9/92 ONLYR298 Num 8 malpr HP PD 1/89-9/92 ONLYR299 Num 8 Total alloc Costs HP HemoR300 Num 8 Total alloc Costs HP PDR301 Num 8 Physician Costs HP CAPDR302 Num 8 Physician Costs HP CCPDR303 Num 8 RN Costs HP CAPDR304 Num 8 RN Costs HP CCPDR305 Num 8 LPN Costs HP CAPDR306 Num 8 LPN Costs HP CCPDR307 Num 8 N A Costs HP CAPDR308 Num 8 N A Costs HP CCPDR309 Num 8 Tech Costs HP CAPDR310 Num 8 Tech Costs HP CCPDR311 Num 8 S W Costs HP CAPDR312 Num 8 S W Costs HP CCPDR313 Num 8 pt Costs HP CAPDR314 Num 8 pt Costs HP CCPDR315 Num 8 Admin Costs HP CAPD .R316 Num 8 Admin Costs HP CCPDR317 Num 8 Managers Costs HP CAPDR318 Num 8 Managers Costs HP CCPDR319 Num 8 Other empl Costs HP CAPDR320 Num 8 Other empl Costs HP CCPDR321 Num 8 Dir Cap Costs HP CAPDR322 Num 8 Dir Cap Costs HP CCPDR323 Num 8 Sup Costs HP CAPDR324 Num 8 Sup Costs HP CCPDR325 Num 8 Purchased Ser Costs HP CAPDR326 Num 8 Purchased Ser Costs HP CCPDR327 Num 8 Other Costs HP CAPDR328 Num 8 Other Costs HP CCPDR329 Num 8 Cap rel Costs (B & F) HP CAPDR330 Num 8 Cap rel Costs (B & F) HP CCPDR331 Num 8 Cap rel Costs (ME) HP CAPD


FCOSHOS: Facility Cost Reports for Hospital Facilities (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentR332 Num 8 Cap rel Costs (ME) HP CCPDR333 Num 8 Emp Bene HP CAPDR334 Num 8 Emp Bene HP CCPDR335 Num 8 A & G HP CAPDR336 Num 8 A & G HP CCPDR337 Num 8 Maint. & Repairs HP CAPDR338 Num 8 Maint. & Repairs HP CCPDR339 Num 8 Nursing Admin. HP CAPDR340 Num 8 Nursing Admin. HP CCPDR341 Num 8 Nursing School HP CAPDR342 Num 8 Nursing School HP CCPDR343 Num 8 I & R Teaching HP CAPDR344 Num 8 I & R Teaching HP CCPDR345 Num 8 Ser & Sup HP CAPDR346 Num 8 Ser & Sup HP CCPDR347 Num 8R348 Num 8 Pharmacy HP CCPDR349 Num 8 Other alloc Costs HP CAPDR350 Num 8 Other alloc Costs HP CCPDR351 Num 8 Lab HP CAPDR352 Num 8 Lab HP CCPDR353 Num 8 Respiratory Therapy HP CAPDR354 Num 8 Respiratory Therapy HP CCPDR355 Num 8 malpr HP CAPD 1/89-9/92 ONLYR356 Num 8 malpr HP CCPD 1/89-9/92 ONLYR357 Num 8 Total alloc Costs HP CAPDR358 Num 8 Total alloc Costs HP CCPDR359 Num 8 Total RN HoursR360 Num 8 RN Hours O/P HemoR361 Num 8 RN Hours O/P PDR362 Num 8 Total LPN HoursR363 Num 8 LPN Hours O/P HemoR364 Num 8 LPN Hours O/P PDR365 Num 8 Total Nurses Aides HoursR366 Num 8 N A Hours O/P HemoR367 Num 8 N A Hours O/P PDR368 Num 8 Total Technician HoursR369 Num 8 Tech Hours O/P HemoR370 Num 8 Tech Hours O/P PDR371 Num 8 Total Social Workers HoursR372 Num 8 S W Hours O/P HemoR373 Num 8 S W Hours O/P PDR374 Num 8 Total pts HoursR375 Num 8 pt Hours O/P HemoR376 Num 8 pt Hours O/P PDR377 Num 8 Total O/P Hemo TmentsR378 Num 8 Pgm O/P Hemo TmentsR379 Num 8 Total O/P PD TmentsR380 Num 8 Pgm O/P PD TmentsR381 Num 8 Total Trn Hemo TmentsR382 Num 8 Pgm Trn Hemo TmentsR383 Num 8 Total Trn PD TmentsR384 Num 8 Pgm Trn PD TmentsR385 Num 8 Total Trn CAPD TmentsR386 Num 8 Pgm Trn CAPD TmentsR387 Num 8 Total Trn CCPD TmentsR388 Num 8 Pgm Trn CCPD TmentsR389 Num 8 Total HP Hemo TmentsR390 Num 8 Pgm HP Hemo TmentsR391 Num 8 Total HP PD TmentsR392 Num 8 Pgm HP PD TmentsR393 Num 8 Total HP CAPD pt WeeksR394 Num 8 Pgm HP CAPD pt WeeksR395 Num 8 Total HP CCPD pt WeeksR396 Num 8 Pgm HP CCPD pt WeeksR397 Num 8 Reimburseable Bad DebtsYEAR Num 4


FCOSIND: Facility Cost Reports for Independent FacilitiesCost and staffing of dialysis facilities

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntPROVUSRD Num 8 BEST22. USRDS assigned facility IDR2 Char 5 Cost Reporting Period Begin DateR3 Char 5 first Reporting Period End DateR4 Char 2 No. of Mths in Cost Report PeriodR5 Char 1 Type of Control (Table I)R12 Char 1 Cost Report Status (Table IV)R15 Char 5 HCRIS Data File Create DateR16 Num 8 Phys for Direct Patient CareR17 Num 8 RNs for Direct Patient CareR18 Num 8 LPNs for Patient CareR19 Num 8 Nurs Aides Direct Patient CareR20 Num 8 Techns for Direct Patient CareR21 Num 8 Soc Work for Dir Patient CareR22 Num 8 Dietic for Direct Patient CareR23 Num 8 No of Machines for Regular UseR24 Num 8 No of Standby MachinesR25 Num 8 Ave Times/Week Pt Receiv DialR26 Num 8 Days/Week Dial is Furn per WkR27 Num 8 Typ Mach time/week(1st shift)R28 Num 8 Typ Machine time/week(2nd shift)R29 Num 8 Typ Machine time/week(3rd shift)R30 Num 8 Ave Time of Pt DialysisR31 Num 8 Times Dialyz Reus-Hollow FiberR32 Num 8 Times Dialyz Reus-Parall PlateR33 Num 8 Dep, Op, Mnt- B&F O/P H MntR34 Num 8 Dep, Rent, Mnt-M&E O/P H MntR35 Num 8 Sal Dir Pt Care O/P H MaintR36 Num 8 Emp Bene for Dir Pt O/P H MntR37 Num 8 Drug Costs Alloc to O/P H MntR38 Num 8 Supp Costs Alloc to O/P H MntR39 Num 8 Lab Costs Alloc to O/P H MaintR40 Num 8 A & G Costs Alloc to O/P H MntR41 Num 8 Tot Costs Alloc to O/P H MntR42 Num 8 Dep, Op, Mnt-B&F O/P PD MntR43 Num 8 Dep, Rent, Mnt-M&E O/P PD MntR44 Num 8 Salfor Dir Pt Care O/P PD MntR45 Num 8 Emp Bene-Dir Pt Care O/P PD MntR46 Num 8 Drug Costs Alloc to O/P PD MntR47 Num 8 Sup Costs Alloc to O/P PD MntR48 Num 8 Lab Costs Alloc to O/P PD MntR49 Num 8 A & G Costs Alloc to O/P PD MntR50 Num 8 Total Costs Alloc to O/P PD MntR51 Num 8 Dep Op Mnt-B&F O/P H TrnR52 Num 8 Dep Rent Mnt-M&E O/P H TrnR53 Num 8 Sal for Dir Pt Care O/P H TrnR54 Num 8 Emp Bene for Dir Pt Care O/P H TrnR55 Num 8 Drug Costs Alloc to O/P H TrnR56 Num 8 Supply Costs Alloc to O/P H TrnR57 Num 8 Lab Costs Alloc to O/P H TrnR58 Num 8 A & G Costs Alloc to O/P H TrnR59 Num 8 Total Costs Alloc to O/P H TrnR60 Num 8 Dep Op, Mnt-B&F O/P PD TrnR61 Num 8 Dep, Rent, Mnt-M&E O/P PD TrnR62 Num 8 Sal for Dir Pt Care O/P PD TrnR63 Num 8 Emp Bene Dir Pt Care O/P PD TrnR64 Num 8 Drug Costs Alloc to O/P PD TrnR65 Num 8 Sup Costs Alloc to O/P PD TrnR66 Num 8 Lab Costs Alloc to O/P PD TrnR67 Num 8 A & G Costs Alloc to O/P PD TrnR68 Num 8 Total Costs Alloc to O/P PD TrnR69 Num 8 Dep, Op, Mnt-B&F O/P CAPD TrnR70 Num 8 Dep, Rent, Mnt-M&E O/P CAPD TrnR71 Num 8 Sal for Dir Pt O/P CAPD Trn


FCOSIND: Facility Cost Reports for Independent Facilities (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntR72 Num 8 Emp Bene Dir Pt O/P CAPD TrnR73 Num 8 Drug Costs O/P CAPD TrnR74 Num 8 Sup Costs O/P CAPD TrnR75 Num 8 Lab Costs O/P CAPD TrnR76 Num 8 A & G Costs O/P CAPD TrnR77 Num 8 Total Costs O/P CAPD TrnR78 Num 8 Dep Op, Mnt -B&F HP HR79 Num 8 Dep, Rent, Mnt -M&E HP HR80 Num 8 Sal for Dir Pt Care HP HR81 Num 8 Emp Bene for Dir Pt Care HP HR82 Num 8 Drug Costs HP HR83 Num 8 Sup Costs HP HR84 Num 8 Lab Costs HP HR85 Num 8 A & G Costs HP HR86 Num 8 Total Costs HP HR87 Num 8 Dep, Op, Mnt -B&F HP PDR88 Num 8 Dep, Rent, Mnt -M&E HP PDR89 Num 8 Sal for Dir Pt Care HP PDR90 Num 8 Emp Bene for Dir Pt HP PDR91 Num 8 Drug Costs HP PDR92 Num 8 Sup Costs HP PDR93 Num 8 Lab Costs HP PDR94 Num 8 A & G Costs HP PDR95 Num 8 Total Costs HP PDR96 Num 8 Dep, Op, Mnt -B&F HP CAPDR97 Num 8 Dep, Rent, Mnt-M&E HP CAPDR98 Num 8 Sal for Dir Pt Care HP CAPDR99 Num 8 Emp Bene for Dir Pt HP CAPDR100 Num 8 Drug Costs HP CAPDR101 Num 8 Sup Costs HP CAPDR102 Num 8 Lab Costs HP CAPDR103 Num 8 A & G Costs HP CAPDR104 Num 8 Tot Costs HP CAPDR105 Num 8 Tot of All Net Exp for AllocR106 Num 8 Dir Pt Care Hrs for H MntR107 Num 8 Dir Pt Care Hrs for O/P PD MntR108 Num 8 Dir Pt Care Hrs for O/P H TrnR109 Num 8 Dir Pt Care Hrs for O/P PD TrnR110 Num 8 Dir Pt Hrs for O/P CAPD TrnR111 Num 8 Dir Pt Care Hrs for HP HR112 Num 8 Dir Pt Care Hrs for HP PDR113 Num 8 Dir Pt Care Hrs for HP CAPDR114 Num 8 Total of Dir Pt Care HrsR115 Num 8 Total O/P H MaintR116 Num 8 Medicare O/P H MaintR117 Num 8 Total O/P PD MaintR118 Num 8 Medicare O/P PD MaintR119 Num 8 Total O/P H TrnR120 Num 8 Medicare O/P H TrnR121 Num 8 Total O/P PD TrnR122 Num 8 Medicare O/P PD TrnR123 Num 8 Total O/P CAPD TrnR124 Num 8 Medicare O/P CAPD TrnR125 Num 8 Total HP HR126 Num 8 Medicare HP HR127 Num 8 Total HP PDR128 Num 8 Medicare HP PDR129 Num 8 Total HP CAPD WeeksR130 Num 8 Medicare HP CAPD WeeksR131 Num 8 Reimb Bad Debt AmountYEAR Num 4


PEDGROW: Pediatric GrowthAll patients prevalent in 1990 who were born after December 31, 1970 are included in the study. The study population includes over 3,000cases. The ESRD Networks began receiving data from units and centers with eligible patients in April, 1991. Data collection was completed bythe Networks in the early fall of 1991; the data have been keyed, and analysis is underway. Extensive preliminary analyses of the data have beenconducted and have been shared with the SAC and the RCC. A paper will be submitted shortly for publication. Discussions are underway withthe Centers for Medicare & Medicaid Services to initiate the collection of data on pediatric patients incident after 1990.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST32. USRDS PATIENT IDBORN Num 8 DATE9. Date of BirthCDEATH Char 2 $DEATHFM. Primary cause of deathCOMPDATE Num 8 MMDDYY8. FORM COMPLETION DATECREAT_A Num 8 BEST32. SERUM CREATININE AS OF JAN90CREAT_B Num 8 BEST32. SERUM CREATININE ON 2ND MODALITYCREAT_C Num 8 BEST32. SERUM CREATININE ON 3RD MODALITYCREAT_D Num 8 BEST32. SERUM CREATININE ON 4TH MODALITYCREAT_E Num 8 BEST32. SERUM CREATININE AS OF DEC90DIAGOTHA Char 5 5 OTHER DIAGNOSIS AS OF JAN90DIAGOTHB Char 5 5 OTHER DIAGNOSIS ON 2ND MODALITYDIAGOTHC Char 5 5 OTHER DIAGNOSIS ON 3RD MODALITYDIAGOTHD Char 5 5 OTHER DIAGNOSIS AS 4TH MODALITYDIAGSUM Char 1 $DIAGFMT. PRIMARY DIAGNOSIS, SUMMARYDIAG_CO Char 5 5 PRIMARY DIAGNOSIS CODE-IDC9CMDIED Num 8 DATE9. Date of DeathDISGRPC Char 1 $DISGRPC. Disease GroupDONOR_TY Char 1 $DTYPFMT. FIRST TRANSPLANT DONOR TYPEEPO_1 Num 8 MMYYS7. EPO START DATEEPO_2 Num 8 MMYYS7. EPO END DATEEPO_91 Char 1 $YESNO. USE OF EPO, PRE_1991ETHNIC Char 1 $ETHFMT. ETHNICITYFIRST_SE Num 8 DATE9. Date of First ESRD ServiceGROWHO_1 Num 8 MMYYS7. GROWTH HORMONE THERAPY START DATEGROWHO_2 Num 8 MMYYS7. GROWTH HORMONE THERAPY END DATEGROW_HOR Char 1 $YESNO. USE OF GROWTH HORMONE THERAPY, PRE-1991HDUNIT_A Char 1 $HOWMEAS. UNITS OF MEASURE, HEAD CIRC AS OF JAN90HDUNIT_B Char 1 $HOWMEAS. UNITS OF MEASURE, HEAD CIRC ON 2ND MODALHDUNIT_C Char 1 $HOWMEAS. UNITS OF MEASURE, HEAD CIRC ON 3RD MODALHDUNIT_D Char 1 $HOWMEAS. UNITS OF MEASURE, HEAD CIRC ON 4TH MODALHDUNIT_E Char 1 $HOWMEAS. UNITS OF MEASURE, HEAD CIRC AS OF DEC90HD_CM_A Num 8 BEST32. HEAD CIRCUMFERENCE, IN CM AS OF JAN90HD_CM_B Num 8 BEST32. HEAD CIRCUMFERENCE, IN CM ON 2ND MODALHD_CM_C Num 8 BEST32. HEAD CIRCUMFERENCE, IN CM ON 3RD MODALHD_CM_D Num 8 BEST32. HEAD CIRCUMFERENCE, IN CM ON 4TH MODALHD_CM_E Num 8 BEST32. HEAD CIRCUMFERENCE, IN CM AS OF DEC90HEDDAT_A Num 8 MMDDYY8. DATE OF HEAD MEASURE. AS OF JAN90HEDDAT_B Num 8 MMDDYY8. DATE OF HEAD MEASURE. ON 2ND MODALHEDDAT_C Num 8 MMDDYY8. DATE OF HEAD MEASURE. ON 3RD MODALHEDDAT_D Num 8 MMDDYY8. DATE OF HEAD MEASURE. ON 4TH MODALHEDDAT_E Num 8 MMDDYY8. DATE OF HEAD MEASURE. AS OF DEC90HEMAT_A Num 8 BEST32. HEMATOCRIT, ROUNDED % AS OF JAN90HEMAT_B Num 8 BEST32. HEMATOCRIT, ROUNDED % ON 2ND MODALHEMAT_C Num 8 BEST32. HEMATOCRIT, ROUNDED % ON 3RD MODALHEMAT_D Num 8 BEST32. HEMATOCRIT, ROUNDED % ON 4TH MODALHEMAT_E Num 8 BEST32. HEMATOCRIT, ROUNDED % AS OF DEC90HEMDAT_A Num 8 MMDDYY8. DATE OF HEMATOCRIT AS OF JAN90 MODHEMDAT_B Num 8 MMDDYY8. DATE OF HEMATOCRIT ON 2ND MODALHEMDAT_C Num 8 MMDDYY8. DATE OF HEMATOCRIT ON 3RD MODALHEMDAT_D Num 8 MMDDYY8. DATE OF HEMATOCRIT ON 4TH MODALHEMDAT_E Num 8 MMDDYY8. DATE OF HEMATOCRIT AS OF DEC90 MODHTDAT_A Num 8 MMDDYY8. DATE OF HEIGHT MEASURE. AS OF JAN90HTDAT_B Num 8 MMDDYY8. DATE OF HEIGHT MEASURE. ON 2ND MODALHTDAT_C Num 8 MMDDYY8. DATE OF HEIGHT MEASURE. ON 3RD MODALHTDAT_D Num 8 MMDDYY8. DATE OF HEIGHT MEASURE. ON 4TH MODALHTDAT_E Num 8 MMDDYY8. DATE OF HEIGHT MEASURE. AS OF DEC90HTPOS_A Char 1 $HPOSFMT. POSITION FOR HT. MEASURE AS OF JAN90HTPOS_B Char 1 $HPOSFMT. POSITION FOR HT. MEASURE ON 2ND MODALHTPOS_C Char 1 $HPOSFMT. POSITION FOR HT. MEASURE ON 3RD MODAL


PEDGROW: Pediatric Growth (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntHTPOS_D Char 1 $HPOSFMT. POSITION FOR HT. MEASURE ON 4TH MODALHTPOS_E Char 1 $HPOSFMT. POSITION FOR HT. MEASURE AS OF DEC90HTUNIT_A Char 1 $HOWMEAS. UNITS OF MEASURE., HEIGHT AS OF JAN90HTUNIT_B Char 1 $HOWMEAS. UNITS OF MEASURE., HEIGHT ON 2ND MODALHTUNIT_C Char 1 $HOWMEAS. UNITS OF MEASURE., HEIGHT ON 3RD MODALHTUNIT_D Char 1 $HOWMEAS. UNITS OF MEASURE., HEIGHT ON 4TH MODALHTUNIT_E Char 1 $HOWMEAS. UNITS OF MEASURE., HEIGHT AS OF DEC90HT_CM_A Num 8 BEST32. HEIGHT, IN CENTIMETERS AS OF JAN90HT_CM_B Num 8 BEST32. HEIGHT, IN CENTIMETERS ON 2ND MODALHT_CM_C Num 8 BEST32. HEIGHT, IN CENTIMETERS ON 3RD MODALHT_CM_D Num 8 BEST32. HEIGHT, IN CENTIMETERS ON 4TH MODALHT_CM_E Num 8 BEST32. HEIGHT, IN CENTIMETERS AS OF DEC90INIT3 Char 3 3 ABSTRACTOR INITIALSMENARCHE Char 1 $YESNO. HAS MENARCHE OCCURRED AS OF 12/31/90MENS_PER Num 8 MMDDYY8. DATE OF FIRST MENSTRUAL PERIODMODDAT_A Num 8 MMDDYY8. MODALITY DATE AS OF OF JAN90MODDAT_B Num 8 MMDDYY8. MODALITY DATE ON 2ND MODALMODDAT_C Num 8 MMDDYY8. MODALITY DATE ON 3RD MODALMODDAT_D Num 8 MMDDYY8. MODALITY DATE ON 4TH MODALMODDAT_E Num 8 MMDDYY8. MODALITY DATE AS OF OF DEC90MOD_A Char 1 $MODFMT. MODALITY CODE AS OF JAN90MOD_B Char 1 $MODFMT. MODALITY CODE ON 2ND MODALMOD_C Char 1 $MODFMT. MODALITY CODE ON 3RD MODALMOD_D Char 1 $MODFMT. MODALITY CODE ON 4TH MODALMOD_E Char 1 $MODFMT. MODALITY CODE AS OF DEC90NETWORK Char 2 $NETFMT. ESRD NetworkNOLABEL Char 1 $REASFMT. REASON PRE_LABELED FORM NOT COMPLETEDNOTES Char 100 100 NOTES WRITTEN ON DATA COLLECTION FORMPDIS Char 5 5 PRIMARY DISEASE CAUSING ESRDPROVUSRD Num 8 BEST22. KECC Assigned Facility IDRACE Char 1 $RACEFMT. RACERECOVERY Num 8 MMDDYY8. RENAL RECOVERY, DATE OF LAST TREATMENTRXDAY90 Char 1 $RXGROUP. MODALITY AT DAY 90RXSTOP Char 1 $RXSTOP. RX STOPPED PRIOR TO DEATH (1990 ON)SCHOOL Char 1 $SCHOFMT. SCHOOL ATTENDANCE WHILE AT FAC., 1990SERDAT_A Num 8 MMDDYY8. SERUM CREATININE DATE AS OF JAN90SERDAT_B Num 8 MMDDYY8. SERUM CREATININE DATE ON 2ND MODALSERDAT_C Num 8 MMDDYY8. SERUM CREATININE DATE ON 3RD MODALSERDAT_D Num 8 MMDDYY8. SERUM CREATININE DATE ON 4TH MODALSERDAT_E Num 8 MMDDYY8. SERUM CREATININE DATE AS OF DEC90SEX Char 1 $SEXFMT. GENDERSTATUS Char 1 $DESCFMT. STATUS CODE ON 12/31/90STERDOSE Num 8 BEST32. DOSE (MG.), LAST DATE ON STEROIDS 1990STERDUR Num 8 BEST32. DURATION OF STEROID USE (MONTHS), 1990STEROID Char 1 $STERFMT. USE OF STEROIDS AT FACILITY DURING 1990TANDAT_A Num 8 MMDDYY8. DATE OF TANNER STAGE CODING AS OF JAN90TANDAT_E Num 8 MMDDYY8. DATE OF TANNER STAGE CODING AS OF DEC90TANNER_A Char 1 $TANFMT. TANNER STAGE AS OF JAN90TANNER_E Char 1 $TANFMT. TANNER STAGE AS OF DEC90TOT_TX Num 8 4 TOTAL TRANSPLANTS FOR THIS PATIENTTREAT_1 Num 8 MMDDYY8. TREATMENT PERIOD START DATETREAT_2 Num 8 MMDDYY8. TREATMENT PERIOD END DATETXDATE Num 8 MMDDYY8. DATE OF FIRST TRANSPLANTTXFAILED Num 8 MMDDYY8. FIRST TRANSPLANT FAILURE DATEWTADJ_A Char 1 $WADJFMT. WEIGHT ADJ AS OF JAN90 - PD ONLYWTADJ_B Char 1 $WADJFMT. WEIGHT ADJ ON 2ND MODAL - PD ONLYWTADJ_C Char 1 $WADJFMT. WEIGHT ADJ ON 3RD MODAL - PD ONLYWTADJ_D Char 1 $WADJFMT. WEIGHT ADJ ON 4TH MODAL - PD ONLYWTADJ_E Char 1 $WADJFMT. WEIGHT ADJ AS OF DEC90 - PD ONLYWTDAT_A Num 8 MMDDYY8. DATE OF WEIGHT MEASUREMENT AS OF JAN90WTDAT_B Num 8 MMDDYY8. DATE OF WEIGHT MEASUREMENT ON 2ND MODALWTDAT_C Num 8 MMDDYY8. DATE OF WEIGHT MEASUREMENT ON 3RD MODALWTDAT_D Num 8 MMDDYY8. DATE OF WEIGHT MEASUREMENT ON 4TH MODALWTDAT_E Num 8 MMDDYY8. DATE OF WEIGHT MEASUREMENT AS OF DEC90WTUNIT_A Char 1 $HOWMEAS. UNITS OF MEASURE. WEIGHT AS OF JAN90


PEDGROW: Pediatric Growth (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntWTUNIT_B Char 1 $HOWMEAS. UNITS OF MEASURE. WEIGHT ON 2ND MODALWTUNIT_C Char 1 $HOWMEAS. UNITS OF MEASURE. WEIGHT ON 3RD MODALWTUNIT_D Char 1 $HOWMEAS. UNITS OF MEASURE. WEIGHT ON 4TH MODALWTUNIT_E Char 1 $HOWMEAS. UNITS OF MEASURE. WEIGHT AS OF DEC90WT_KG_A Num 8 BEST32. WEIGHT, IN KG AS OF JAN90WT_KG_B Num 8 BEST32. WEIGHT, IN KG ON 2ND MODALWT_KG_C Num 8 BEST32. WEIGHT, IN KG ON 3RD MODALWT_KG_D Num 8 BEST32. WEIGHT, IN KG ON 4TH MODALWT_KG_E Num 8 BEST32. WEIGHT, IN KG AS OF DEC90XFER_ID Char 6 FACIL. TRANSFERED FROM : PROVIDXFR2_ID Char 6 FACIL. TRANSFERED TO : PROVID


WAV2UPDT: Wave 2 Special Study Updated with USRDS Established ESRD DatesSame as the Wave 2 Study with updated variables.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentUSRDS_ID Num 8 23 USRDS assigned patient IDABS_PULS Char 1 $SUSPCT. DW2.M B 5d: Absent foot pulsesAC1_SIDE Char 1 $SIDE. DW2.M C 5i: Hemo - Side of access FD dtAC2_SIDE Char 1 $SIDE. DW2.M C 5i: Hemo - Side of access SS dtACCESS1 Char 1 $VASTYPE. DW2.M C 5h: Hemo - Vascular access FD dtACCESS2 Char 1 $VASTYPE. DW2.M C 5h: Hemo - Vascular access SS dtACCFAIL Char 1 $YESNO. DW2.M C 5j: Hemo - Access FailACCLESS Char 1 $YESNO. D2Q A14: Phys Hlth: Accomplished lessACCLESS2 Char 1 $YESNO. DW2.PFUP A14: PH: Accomplish less likedACCMATUR Char 1 $YESNO. DW2.M C 5j: Hemo - Access matureACCREVIS Char 1 DW2.M C 5j: Hemo - Access RevisionACCTEMP Char 1 $YESNO. DW2.M C 5k: Hemo - Temp. AccessACCTYPE Char 1 $VASTYPE. DW2.M C 5j: Hemo - Type of accessACMPLS Char 1 $YESNO. D2Q A18: EP: Accomplished less than liACMPLS2 Char 1 $YESNO. DW2.PFUP A18: EP: Accomplish less likedACSPROB Char 1 $EXTEN5B. D2Q A58: Problems with access/catheterACSPROB2 Char 1 $EXTEN5B. DW2.PFUP A58: Problems, access or cath.AFAIL_F1 Char 1 $YESNO. DW2.MFUP C4: 1PVA fail predial, notusedAFAIL_F2 Char 1 $YNUFMT. DW2.MFUP C5: 1PVA fail pstdial, afteruseAFT_WTKG Num 8 DW2.M C 2: Dry weight - KilogramsAFT_WTLB Num 8 DW2.M C 2: Dry weight - poundsAGE_GE60 Char 1 DW2.PFUP D: Age Greater than or =to60AGE_LT60 Char 1 DW2.PFUP D: Age less than 60AIDS Char 1 $HIVFMT. DW2.M B 11: Diagnosed w/ AIDSALONE Char 1 $ALONE. DW2.M C 10: Living AloneAMPUTATA Char 1 $SUSPCT. DW2.M B 5b: Amputation due to PVDANGINA Char 1 $SUSPCT. DW2.M B 3b: AnginaANGIOGRA Char 1 $SUSPCT. DW2.M B 3f: Coronary AngiographyANGIOPLA Char 1 $SUSPCT. DW2.M B 3e: Coronary AngioplastyAN_GRABN Char 1 $SUSPCT. DW2.M B 3f: Coronary Angio. abnormalAPPET Char 1 $EXTEN5B. D2Q A54: Lack of appetiteAPPET2 Char 1 $EXTEN5B. DW2.PFUP A54: Lack of appetiteAPPLOSS Char 1 $TIMBF4A. D2Q B6: Onset of appetite lossAROUSAB2 Char 1 $PROBLEM. DW2.PFUP A67: Difficult,sexually arousedAROUSABL Char 1 $PROBLEM. D2Q A67: Difficulty becoming sexually aASIDE_FU Char 1 $SIDE. DW2.MFUP C2: What Side was this 1stPVAASSTGVN Char 1 $YESNO. D2Q F6: Assistance given to complete foASSTGVN2 Char 1 $YESNO. DW2.PFUP E6: Assistance given w/ formAVOIDBLD Char 1 $YESNON. D2Q B9: Told to avoid blood draws/intraBATHING Char 1 $LIMIT3A. D2Q A12: Bathing/dressing selfBATHING2 Char 1 $LIMIT3A. DW2.PFUP A12: Bathing or dressing selfBCROSS1 Char 1 $YESNO. DW2.M A 9a: Blue Cross month bfore A6BCROSS2 Char 1 $YESNO. DW2.M A 9a: Blue Cross at/near A7BEND Char 1 $LIMIT3A. D2Q A 8 Bending, kneeling, stoopingBEND2 Char 1 $LIMIT3A. DW2.PFUP A8: Bending,kneeling,stoopingBESTQLTY Char 1 $QOLHDPD. D2Q C10: Which treatment provides bestBFR Num 8 DW2.M C 5d: Hemo - Blood flow rateBICARB Char 1 $YESNON. D2Q B8a: Treatment w/bicarbonateBILAMP Char 1 DW2.M C 1: Bilateral amputeeBIRTHDAY Char 2 DW2.M : Patients Birth dayBIRTHMTH Char 2 DW2.M : Patients Birth MthBIRTHYR Char 2 DW2.M : Patients Birth yrBLDTST Char 1 $TIMBF2A. D2Q B2: Blood test from physicianBODPAIN Char 1 $PAIN6A. D2Q A21: Amount of bodily painBODPAIN2 Char 1 $PAIN6A. DW2.PFUP A21: Amount of Bodily PainBREATH Char 1 $EXTEN5B. D2Q A52: Shortness of breathBREATH2 Char 1 $EXTEN5B. DW2.PFUP A52: Shortness of BreathBUNED_FU Num 8 DW2.MFUP B4b: End BUNBUNST_FU Num 8 DW2.MFUP B4b: Start BUNBUNWT_LK Num 8 DW2.M D 9c: Pre/Pst Weight in Lb/KGBUN_BFST Num 8 DW2.M D 9a: BUN of Urea value FSTdial


WAV2UPDT: Wave 2 Special Study Updated with USRDS Established ESRD Dates (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentBUN_SD Num 8 DW2.M C 7: BUN (same day)BURDEN Char 1 $TRUE5A. D2Q A40: Burden on familyBURDEN2 Char 1 $TRUE5A. DW2.PFUP A40: Burden of FamilyBURDFAM Char 1 $AGREE6A. D2Q C 8i: HD is burden on familyCABG Char 1 $SUSPCT. DW2.M B 3d: Bypass SurgeryCALM Char 1 $TIME6A. D2Q A26: Calm & peacefulCALM2 Char 1 $TIME6A. DW2.PFUP A26: Calm & PeacefulCARDARR Char 1 $SUSPCT. DW2.M B 3g: Cardiac arrestCATHDAY Char 2 DW2.M C 6e: day of Catheter on SSDCATHMTH Char 2 DW2.M C 6e: mth of Catheter on SSDCATHYR Char 2 DW2.M C 6e: yr of Catheter on SSDCEREBROV Char 1 $SUSPCT. DW2.M B 4a: Cerebrovascular AccidentCHD_CAD Char 1 $SUSPCT. DW2.M B 3a: Prior Dx of CHD/CADCHESTPN Char 1 $EXTEN5B. D2Q A48: Chest painCHESTPN2 Char 1 $EXTEN5B. DW2.PFUP A48: Chest PainCHNG_DAY Char 2 DW2.MFUP A1: Day of 1st change statusCHNG_FDT Num 8 DATE9. DW2.MFUP A1: Date of 1st Change In StatuCHNG_MTH Char 2 DW2.MFUP A1: Month of 1st change statusCHNG_TYP Char 2 $FUCHGTY. DW2.MFUP A1: Type of Change in StatusCHNG_YR Char 2 DW2.MFUP A1: Year of 1st change statusCHOLEST Num 8 DW2.M D 11a: CholesterolCHOL_HDL Num 8 DW2.M D 11b: HDL CholesterolCHOL_LDL Num 8 DW2.M D 11c: LDL CholesterolCHOSMTD Char 1 $SELECT. D2Q C 2: Method of choosing treatmentCLAUDIC Char 1 $SUSPCT. DW2.M B 5e: ClaudicationCLIMBMLT Char 1 $LIMIT3A. D2Q A 6 Climbing sever flts of stairsCLIMBMT2 Char 1 $LIMIT3A. DW2.PFUP A6: Climbing Flights of stairsCLIMBON2 Char 1 $LIMIT3A. DW2.PFUP A7: Climbing 1flight of stairsCLIMBONE Char 1 $LIMIT3A. D2Q A 7 Climbing 1 flt of stairsCLOSENS Char 1 $IMPORT. D2Q C 7a: Impor of close facilityCOMPDAY Char 2 DW2.M A 2: day CompletedCOMPDPT Char 1 $YESNO. DW2.M : Patient complete Dialysis PtQ\COMPMTH Char 2 DW2.M A 2: mth CompletedCOMPYR Char 2 DW2.M A 2: yr CompletedCONFUSE Char 1 $TIME6A. D2Q A46: Become confusedCONFUSE2 Char 1 $TIME6A. DW2.PFUP A46: Become ConfusedCONG_H Char 1 $SUSPCT. DW2.M B 6a: Congestive Heart failureCORRDOB Char 2 DW2.MFUP : Correct Day of BirthCORRDY60 Char 2 DW2.MFUP : Correct Day of Day 60CORRMOB Char 2 DW2.MFUP : Correct Month of BirthCORRMOD Char 30 DW2.MFUP : Correct Modality at Day60CORRMT60 Char 2 DW2.MFUP : Correct Month of Day 60CORRYOB Char 2 DW2.MFUP : Correct year of BirthCORRYR60 Char 2 DW2.MFUP : Correct Year of Day 60CORR_PVA Char 1 $FUVATYP. DW2.MFUP C2: Corrected VAPerm typeCOUNSLD Char 1 $TRUE5B. D2Q A78: Counseled to achieve full rehaCOUNSLD2 Char 1 $TRUE5B. DW2.PFUP A78: Staff, counsel full rehabCRAMPS Char 1 $EXTEN5B. D2Q A49: CrampsCRAMPS2 Char 1 $EXTEN5B. DW2.PFUP A49: CrampsCREAT1 Num 8 DW2.M D 8b: Serum Creatinine at SSDateCREAT2 Num 8 DW2.M D 8a: Serum Creatinine Bf fst dialCURRFDT Num 8 DATE9. DW2.MFUP A2: Date of Current StatusCURRSTAT Char 1 $FUPSTAT. DW2.MFUP A2: Pts Current StatusCURR_DAY Char 2 DW2.MFUP A2: Day of Current StatusCURR_MTH Char 2 DW2.MFUP A2: Month of Current StatusCURR_YR Char 2 DW2.MFUP A2: Year of Current StatusDATESAME Char 1 $YESNO. DW2.M A 8: was A6=earliest dialDATE_DAY Char 2 DW2.MFUP : Todays DayDATE_FDT Num 8 DATE9. DW2.MFUP: Todays DateDATE_MTH Char 2 DW2.MFUP : Todays MonthDATE_YR Char 2 DW2.MFUP : Todays YearDAYS_CYC Num 8 DW2.M C 6c: days/week - cyclerDAYS_MAN Num 8 DW2.M C 6c: days/Week - manualDEPEND Char 1 $EXTEN5B. D2Q A63: Dependent on doctors/staffDEPEND2 Char 1 $EXTEN5B. DW2.PFUP A63: Dependent on Dr or Staff


WAV2UPDT: Wave 2 Special Study Updated with USRDS Established ESRD Dates (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentDESWRK Char 1 $WANTWRK. D2Q F4: Desire to return to workDESWRK2 Char 1 $WANTWRK. DW2.PFUP E4: Like to return to workDIALCRET Num 8 DW2.M C 7: Dialysate CreatinineDIALDAY Char 2 DW2.M : First Dialysis dayDIALMAKE Char 15 DW2.M C 5g: Hemo - Dialyzer makeDIALMODL Char 19 DW2.M C 5g: Hemo - Dialyzer modelDIALMTH Char 2 DW2.M : First Dialysis MonthDIALREUS Char 1 $IMPORT. D2Q C 7d: Dialyzer reuse policyDIALTYP Char 1 $IMPORT. D2Q C 7c: Type of dialysis offeredDIALUNIT Char 1 $NOYES. D2Q D5: Who pays: Dialysis UnitDIALUREA Num 8 DW2.M C 7: Dialysate Urea NDIALYR Char 2 DW2.M : First Dialysis yearDIALYSAT Char 1 $DISATE. DW2.M C 5a: DialysateDIALYZER Char 4 DW2.M C 5g: Hemo - Dialyzer typeDIALY_VM Num 8 DW2.M C 6c: Total Dialysate volume/24hrsDIETVST Char 1 $ONCE3A. D2Q B5: Visits with dietitianDIETVST2 Char 1 $ONCE3A. DW2.PFUP B1: Pst ESRD, visit dietitianDIFFCON Char 1 $TIME6A. D2Q A44: Difficult to concentrate/thinkDIFFCON2 Char 1 $TIME6A. DW2.PFUP A44: Difficult to think/conctrDIFFPER Char 1 $YESNO. D2Q A16: PH: Difficulty performing worDIFFPER2 Char 1 $YESNO. DW2.PFUP A16: PH: Difficulty perform wrkDIFWRK Char 1 $AGREE6A. D2Q C 8h: HD more difficult to work/schDITRST Char 1 $EXTEN5B. D2Q A60: Dietary restrictionsDITRST2 Char 1 $EXTEN5B. DW2.PFUP A60: Dietary RestrictionsDMMS_ID Num 8 23. DMMS Patient IDDOWNBLU Char 1 $TIME6A. D2Q A28: Downhearted & blueDOWNBLU2 Char 1 $TIME6A. DW2.PFUP A28: Downhearted & BlueDOWNDMP2 Char 1 $TIME6A. DW2.PFUP A25: Down in DumpsDOWNDUMP Char 1 $TIME6A. D2Q A25: Down in dumpsDPILLS Char 1 $NEVRFMT. DW2.M B 7b: Diabetes PillsDRAIN Char 1 $EXTEN5B. D2Q A55: Washed out/drainedDRAIN2 Char 1 $EXTEN5B. DW2.PFUP A55: Washed out or DrainedDRVOTHER Char 1 $NOYES. D2Q D3: Other reason pt. cannot driveDRYSKN Char 1 $EXTEN5B. D2Q A51: Dry skinDRYSKN2 Char 1 $EXTEN5B. DW2.PFUP A51: Dry SkinDX_DIAB Char 1 $SUSPCT. DW2.M B 7: Prior Dx of DiabetesECHOCARD Char 1 $YESNO. DW2.M D 2b: Left Ventr. hyper. by echogrEDIALDAY Char 2 DW2.M A 8a: Earliest dayEDIALMTH Char 2 DW2.M A 8a: Earliest mthEDIALYR Char 2 DW2.M A 8a: Earliest yrEDUCAT Char 1 $EDLEV. DW2.M C 11: EducationEKG Char 1 $YESNO. DW2.M D 2a: Left Ventr. Hyper. by EKGEMPLST Char 1 $WORK8A. D2Q A75: Employment statusEMPLST2 Char 1 $WORK8A. DW2.PFUP A75: Employment statusEMP_2YR Char 2 $EMPDMMS. DW2.M C 13a: Emp. 24-6mths before ESRDEMP_NDT Char 2 $EMPDMMS. DW2.M C 13a: Employment at SSDateENCOURG2 Char 1 $TRUE5B. DW2.PFUP A77: Staff, encour. normal lifeENCOURGD Char 1 $TRUE5B. D2Q A77: Encouraged to lead normal lifeENERGY Char 1 $TIME6A. D2Q A27: Lots of energyENERGY2 Char 1 $TIME6A. DW2.PFUP A27: Lots of EnergyENJSEX Char 1 $PROBLEM. D2Q A66: Ability to relax/enjoy sexENJSEX2 Char 1 $PROBLEM. DW2.PFUP A66: Inability to enjoy SexEPO Char 1 $YESNON. D2Q B8b: Treatment w/erythropoietinEPO1 Char 1 $YESNO. DW2.M D 7a: Taking EPOEPOTYPE Char 1 $EPOADM. DW2.M D 7a: Type of EPOEPO_FS Char 1 $YESNO. DW2.M D 7a: Taking EPO During fst 60daysEPO_LAST Char 1 $YESNO. DW2.M D 7b: Taking EPO During 30days bfETHNIC Char 1 $YNFMT. DW2.M A 3: Ethnicity (Hispanic or Not)EXCYDAY Num 8 DW2.M C 6c: # exchanges/day - cyclerEXFREQ Char 1 $EXER. D2Q F1: Frequency of exerciseEXFREQ2 Char 1 $EXER. DW2.PFUP E1: Frequency of ExerciseEXLHLTH Char 1 $TRUE5A. D2Q A36: Health is excellentEXLHLTH2 Char 1 $TRUE5A. DW2.PFUP A36: Health is excellentEXMNDAY Num 8 DW2.M C 6c: # exchanges/day - manualEXPIRED Char 1 DW2.MFUP : Patient Expired


WAV2UPDT: Wave 2 Special Study Updated with USRDS Established ESRD Dates (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntEXP_PAT Char 1 $YESNO. DW2.PFUP : Patient ExpiredFACCDAY Char 2 DW2.M C 5j: Hemo - day of 1st use of VAFACCMTH Char 2 DW2.M C 5j: Hemo - mth of 1st use of VAFACCOM Char 1 $IMPORT. D2Q C 7f: Comfort of facilityFACCYR Char 2 DW2.M C 5j: Hemo - yr of 1st use of VAFAILDAY Char 2 DW2.MFUP C5: 1PVA Failed after use, DayFAILMTH Char 2 DW2.MFUP C5: 1PVA Failed after use, MthFAILYR Char 2 DW2.MFUP C5: 1PVA Failed after use, YrFAIL_FDT Num 8 DATE9. DW2.MFUP C5: Date 1st Perm VA FailedFAINT Char 1 $EXTEN5B. D2Q A53: Faintness/dizzinessFAINT2 Char 1 $EXTEN5B. DW2.PFUP A53: Faintness/DizzinessFDIALDAY Char 2 DW2.M A 6: day of fst chron maint dialFDIALMTH Char 2 DW2.M A 6: mth of fst chron maint dialFDIALYR Char 2 DW2.M A 6: year of fst chron maint dialFIRST_SE Num 8 DATE9. Date of First ESRD ServiceFLDRST Char 1 $EXTEN5B. D2Q A59: Fluid restrictionsFLDRST2 Char 1 $EXTEN5B. DW2.PFUP A59: Fluid RestrictionsFLDSTRCT Char 1 $AGREE6A. D2Q C 8e: Fluid restrict less on PDFLEXIBLE Char 1 $AGREE6A. D2Q C 8c: PD allows more flexibilityFRIENDLY Char 1 $GOOD7A. D2Q A76: Friendliness/interest of staffFRIENDY2 Char 1 $GOOD7A. DW2.PFUP A76: Friendliness of staffFROMMED Num 8 Medical Questionaire presentFROMPAT Num 8 Patient/QOL Questionaire presentFRUST Char 1 $TRUE5A. D2Q A39: Frustrated w/Kidney DiseaseFRUST2 Char 1 $TRUE5A. DW2.PFUP A39: Frustrated w/ Kidney DisFSTPDC Char 1 $YESNO. DW2.M C 6f: 1st PD cathGETALNG Char 1 $TIME6A. D2Q A45: Get along well with othersGETALNG2 Char 1 $TIME6A. DW2.PFUP A45: Get along well w/ othersGURNEY Char 1 $NOYES. D2Q D3: Must be transported on stretcheHAPPYPER Char 1 $TIME6A. D2Q A30: Happy personHAPPYPR2 Char 1 $TIME6A. DW2.PFUP A30: Happy PersonHELGEN Char 1 $GOOD5A. D2Q A 1 General HealthHELGEN2 Char 1 $GOOD5A. DW2.PFUP A1: General HealthHELPRE Char 1 $COMPFMT. D2Q A 2 Health compared to prev yearHELPRE2 Char 1 $COMPFMT. DW2.PFUP A2: Health compared to pre yrHEMATO Num 8 DW2.M D 6a: HematocritHEMO2 Char 1 DW2.PFUP C: On HemodialysisHEMOGLOB Num 8 DW2.M D 6b: HemoglobinHEMO_BPD Char 1 $YESNO. DW2.M C 6g: Hemo before SSDHEMO_HRS Num 8 DW2.M C 5b: Hemo - Presc hours/ treatHEMO_MIN Num 8 DW2.M C 5b: Hemo - Presc Minutes/ treatHIV Char 1 $HIVFMT. DW2.M B 10: HIV StatusHLDISCPH Char 1 $NOYES. D2Q C 3: Ind. discussion with physicianHLDISCSW Char 1 $NOYES. D2Q C 3: Ind. discussion with social worHLFAMDIS Char 1 $NOYES. D2Q C 3: Ind. disc w/fam,friends,oth ptsHLGRPDIS Char 1 $NOYES. D2Q C 3: Grp. disc/class expl. tx optionHLOTHER Char 1 $NOYES. D2Q C 3: None of the aboveHLTHEXP Char 1 $TRUE5A. D2Q A34: Healthy as anybodyHLTHEXP2 Char 1 $TRUE5A. DW2.PFUP A34: Heathy as anybodyHLTWRS Char 1 $TRUE5A. D2Q A35: Expect health to worsenHLTWRS2 Char 1 $TRUE5A. DW2.PFUP A35: Expect health to worsenHLVIDEO Char 1 $NOYES. D2Q C 3: Videotape materialsHLWRITEN Char 1 $NOYES. D2Q C 3: Written materialsHMO1 Char 1 $YESNO. DW2.M A 9h: HMO mth bfore A6HMO2 Char 1 $YESNO. DW2.M A 9h: HMO at/near A7HOWLRN2 Char 40 D2Q C 3a: Oth way inform of tx options,tHRS_CYC Num 8 DW2.M C 6c: total hrs/day on cyclerHT_CM Num 8 DW2.M C 1: Height - Cm.HT_FT Num 8 DW2.M C 1: Height - ft.HT_IN Num 8 DW2.M C 1: Height - In.IND_AMBU Char 1 $YESNO. DW2.M C 8c: Independent AmbulatingIND_EAT Char 1 $YESNO. DW2.M C 8a: Independent eatingIND_XFER Char 1 $YESNO. DW2.M C 8b: Independent transferringINSULIN Char 1 $NEVRFMT. DW2.M B 7a: Insulin therapyINTJUG Char 1 $ACCTYPE. DW2.M C 5k: Hemo - Internal Jugular


WAV2UPDT: Wave 2 Special Study Updated with USRDS Established ESRD Dates (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntINTLIFE Char 1 $TRUE5A. D2Q A37: Kidney disease interferes w/liINTLIFE2 Char 1 $TRUE5A. DW2.PFUP A37: Kidney Dis interfer w/lifeINTSOC Char 1 $TIME5A. D2Q A32: PH/EP interference w/social acINTSOC2 Char 1 $TIME5A. DW2.PFUP A32: PH/EP interf. w/social actIRRIT Char 1 $TIME6A. D2Q A43: Act irritableIRRIT2 Char 1 $TIME6A. DW2.PFUP A43: Act irritableISOLATE Char 1 $TIME6A. D2Q A41: Isolate self from othersISOLATE2 Char 1 $TIME6A. DW2.PFUP A41: Isolate self from othersITCHSKN Char 1 $EXTEN5B. D2Q A50: Itchy skinITCHSKN2 Char 1 $EXTEN5B. DW2.PFUP A50: Itchy SkinLAST_DAY Char 2 DW2.MFUP C5: 1PVA Last known Day of UseLAST_FDT Num 8 DATE9. DW2.MFUP C5: Last Dt 1st PermVa usedLAST_MTH Char 2 DW2.MFUP C5: 1PVA Last known Month UseLAST_YR Char 2 DW2.MFUP C5: 1PVA Last known Year of UseLIFT Char 1 $LIMIT3A. D2Q A 5 Lift/carry groceriesLIFT2 Char 1 $LIMIT3A. DW2.PFUP A5: Lift or carry groceriesLIMBAMP Char 1 $SUSPCT. DW2.M B 5c: Limb amputation (other)LIMWRK Char 1 $YESNO. D2Q A15: PH: Limited in kind of workLIMWRK2 Char 1 $YESNO. DW2.PFUP A15: PH: Limited in kind of wrkLIVEFAR Char 1 $AGREE6A. D2Q C 8k: Live far from HD facilityLONGER Char 1 $AGREE6A. D2Q C 8b: HD trtmnt more lengthy than PDLONGLIFE Char 1 $QOLHDPD. D2Q C11: Which treatment provides longeLOOKEMP Char 1 $YESNO. DW2.M C 14: Looking for EmploymentLT_EXCY Num 8 DW2.M C 6c: liters/exchange - CyclerLT_EXMN Num 8 DW2.M C 6c: liters/exchange - manualLUNGDIS Char 1 $SUSPCT. DW2.M B 8: History of Lung DiseaseMAR_STAT Char 1 $MARSTAT. DW2.M C 9: Marital StatusMCAID1 Char 1 $YESNO. DW2.M A 9d: Medicaid month bfore A6MCAID2 Char 1 $YESNO. DW2.M A 9d: Medicaid at/near A7MED1 Char 12 DW2.M D 15: Medications at SSDMED2 Char 12 DW2.M D 15: Medications at SSDMED3 Char 12 DW2.M D 15: Medications at SSDMED4 Char 12 DW2.M D 15: Medications at SSDMED5 Char 12 DW2.M D 15: Medications at SSDMED6 Char 12 DW2.M D 15: Medications at SSDMED7 Char 12 DW2.M D 15: Medications at SSDMED8 Char 12 DW2.M D 15: Medications at SSDMED9 Char 12 DW2.M D 15: Medications at SSDMED10 Char 12 DW2.M D 15: Medications at SSDMED11 Char 12 DW2.M D 15: Medications at SSDMED12 Char 12 DW2.M D 15: Medications at SSDMED13 Char 12 DW2.M D 15: Medications at SSDMED14 Char 12 DW2.M D 15: Medications at SSDMED15 Char 12 DW2.M D 15: Medications at SSDMED2_1 Char 1 $YESNO. DW2.M A 9c: Medicare secondary mth bf A6MED2_2 Char 1 $YESNO. DW2.M A 9c: Medicare secondary at/n A7MEDICAR1 Char 1 $YESNO. DW2.M A 9c: Medicare month bfore A6MEDICAR2 Char 1 $YESNO. DW2.M A 9c: Medicare at/near A7MEDPEND Char 1 $YESNO. DW2.M A 9c: Medicare Pending at/n A7MEDPROB Char 1 $AGREE6A. D2Q C 8l: Med probs precluded txt choiceMETRANS Char 1 $TRANS. D2Q D2: Method of transportation to facMI Char 1 $SUSPCT. DW2.M B 3c: MIMINFAC Char 1 $DIST. D2Q D1: # of minutes to dialysis faciliMISSEXG2 Char 1 $MISSEDX. DW2.PFUP C4: # CAPD missed exchangesMISSTRMT Char 1 $CYCLER. D2Q C13: # times cycler missed a treatmMISSTRT2 Char 1 $CYCLER. DW2.PFUP C5: # Cycler missed treatmentMISSXCHG Char 1 $MISSEDX. D2Q C12: # times CAPD patient missed exMODACT Char 1 $LIMIT3A. D2Q A 4 Moderate acts: vacuuming, bowlMODACT2 Char 1 $LIMIT3A. DW2.PFUP A4: Moderate activitiesMOD_NOW Char 1 $FUMODAL. DW2.MFUP B1: Patients current ModalityMORESTRS Char 1 $AGREE6A. D2Q C 8g: PD more stressful than HDMOSTIMP Char 1 D2Q C 9: Most imp reason for txt choiceMUSSOR Char 1 $EXTEN5B. D2Q A47: Muscle sorenessMUSSOR2 Char 1 $EXTEN5B. DW2.PFUP A47: Muscle SorenessMYSELF Char 1 $NOYES. D2Q D5: Who pays: Myself/family


WAV2UPDT: Wave 2 Special Study Updated with USRDS Established ESRD Dates (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntNAP Char 1 $YESNO. D2Q A69: Sleep/nap during dayNAP2 Char 1 $YESNO. DW2.PFUP A69: Sleep or Nap more, DayNAUSEA Char 1 $EXTEN5B. D2Q A57: Nausea/upset stomachNAUSEA2 Char 1 $EXTEN5B. DW2.PFUP A57: Nausea or Upset StomacheNEEDHELP Char 1 $NOYES. D2Q D3: Requires help walking/climbingNEEDLES Char 1 $AGREE6A. D2Q C 8f: Patient aversion to needlesNEOPLASM Char 1 $SUSPCT. DW2.M B 9: Neoplasms (other than skin)NEO_TYP2 Char 2 $NEOSITE. DW2.M B 9a: Neoplasm second site/typeNEO_TYPE Char 2 $NEOSITE. DW2.M B 9a: Neoplasm primary site/typeNEO_YEAR Char 2 DW2.M B 9b: Year of first neoplasm DxNEPHVST Char 1 $VISITS. D2Q B4: Visits to nephrologist prior toNERVPER Char 1 $TIME6A. D2Q A24: Nervous personNERVPER2 Char 1 $TIME6A. DW2.PFUP A24: Nervous PersonNET_FU Char 3 $NETFMT. DW2.MFUP : NetworkNOCAR Char 1 $NOYES. D2Q D3: No access to a carNODRIVE Char 1 $NOYES. D2Q D3: Does not know how to driveNOINS1 Char 1 $YESNO. DW2.M A 9g: No Insurance Mth bfore A6NOINS2 Char 1 $YESNO. DW2.M A 9g: No Insurance at/near A7NOTABLE Char 1 $NOYES. D2Q D3: No longer able to drive a carNOTDRIV2 Char 40 D2Q D3a: Other reason for not drivingNOTEMP Char 1 $NOYES. D2Q E1a: Not currently employedNOTSTRCT Char 1 $AGREE6A. D2Q C 8d: Diet less strict with HDNUMB Char 1 $EXTEN5B. D2Q A56: Numbness in hands/feetNUMB2 Char 1 $EXTEN5B. DW2.PFUP A56: Numbness in hands or feetNUMMONTH Char 2 D2Q B9a: # months prior to start of HDNUMTRANS Num 8 DW2.M D 6d: Number of Transfusions recdNWLSBNFT Char 1 $NOYES. D2Q F3: Not working: Lose benefits, clNWLSBNT2 Char 1 $NOYES. DW2.PFUP E3: S.Work: Would lose BenefitsNWNOFLX Char 1 $NOYES. D2Q F3: Not working: Facility sched. iNWNOFLX2 Char 1 $NOYES. DW2.PFUP E3: S.Work: Dial. Not FlexibleNWNOJB Char 1 $NOYES. D2Q F3: Not working: No other job avaiNWNOJB2 Char 1 $NOYES. DW2.PFUP E3: S.Work: No job availableNWNOND Char 1 $NOYES. D2Q F3: Not working: Did not want/needNWNOND2 Char 1 $NOYES. DW2.PFUP E3: S.Work: No Need/Want to wrkNWOTHDT Char 1 $NOYES. D2Q F3: Not working: Needed for otherNWOTHDT2 Char 1 $NOYES. DW2.PFUP E3: S.Work: Needed for otherNWRTRD Char 1 $NOYES. D2Q F3: Not working: I am retiredNWRTRD2 Char 1 $NOYES. DW2.PFUP E3: Stopped Work: I am retiredNWTOOSK Char 1 $NOYES. D2Q F3: Not working: Too sick, too mucNWTOOSK2 Char 1 $NOYES. DW2.PFUP E3: Stopped Work: Too sickNWTRD Char 1 $NOYES. D2Q F3: Not working: Job is too tiringNWTRD2 Char 1 $NOYES. DW2.PFUP E3: Stopped Work: Job too tireNWTRTDM Char 1 $NOYES. D2Q F3: Not working: Dial trt is too dNWTRTDM2 Char 1 $NOYES. DW2.PFUP E3: S.Work: Dial too demandingOCCUPAT Char 2 $OCCUP. DW2.M C 12: Occupation level before ESRDODCAPDHM Char 1 $NOYES. D2Q C 1: Treat opt disc: CAPD at homeODDIALHM Char 1 $NOYES. D2Q C 1: Treat opt disc: HD at homeODDIALUN Char 1 $NOYES. D2Q C 1: Treat opt disc: HD in dial unitODOTHER Char 1 $NOYES. D2Q C 1: Treat opt disc: otherODPERCEN Char 1 $NOYES. D2Q C 1: Treat opt disc: PD at centerODPERCYC Char 1 $NOYES. D2Q C 1: Treat opt disc: PD with cycl maODTRANS Char 1 $NOYES. D2Q C 1: Treat opt disc: TransplantOTHINS1 Char 1 $YESNO. DW2.M A 9f: Other Insurance Mth bfore A6OTHINS2 Char 1 $YESNO. DW2.M A 9f: Other Insurance at/near A7OTHTRMT Char 40 D2Q C 1a Other treat disc, textPAININT Char 1 $EXTEN5A. D2Q A22: Amt of pain interference w/ woPAININT2 Char 1 $EXTEN5A. DW2.PFUP A22: Amt of pain interf. w/workPCATHDAY Char 2 DW2.M C 5o: day PD catheterPCATHMTH Char 2 DW2.M C 5o: mth PD catheterPCATHYR Char 2 DW2.M C 5o: yr PD catheterPC_DIS Char 1 $PDISD2W. DW2.M B 1: Primary Cause of ESRDPDCATH Char 1 DW2.M C 6d: Type of PD cath on SSDPDIAL2 Char 1 DW2.PFUP C: On Peritoneal DialysisPDIALTYP Char 1 $PDTYPE. DW2.M C 6b: PD - Dialysis TypePDLOCAT Char 1 $PERILOC. DW2.M C 6a: PD - Dialysis Location


WAV2UPDT: Wave 2 Special Study Updated with USRDS Established ESRD Dates (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntPD_BSSD Char 1 $YESNO. DW2.M C 5n: PD before SSDPEP Char 1 $TIME6A. D2Q A23: Full of pepPEP2 Char 1 $TIME6A. DW2.PFUP A23: Full of pepPERHLP Char 1 $WHHLP2A. D2Q D4: Person who helps w/ transportPERICARD Char 1 $SUSPCT. DW2.M B 6b: PericarditisPERITCOM Char 1 $AGREE6A. D2Q C 8a: Peritonitis common compPERMVA_B Char 1 $YESNO. DW2.M C 6h: Permanent VA before SSDPHOSPH Num 8 DW2.M D 4: Serum PhosphorousPHYSREC Char 1 $IMPORT. D2Q C 7e: Physician recommendationPHYSVST2 Char 1 DW2.PFUP B2: Visits or talk w/dial. physPREBN_FU Num 8 DW2.MFUP B3a: Pre Dialysis BUNPREBUN_1 Num 8 DW2.M D 9b: BUN Predialysis SSDatePREBUN_2 Num 8 DW2.M D 14b: BUN Predial of U.Collct.PRECREAT Num 8 DW2.M D 14b: Pre CreatininePREWT Num 8 DW2.M D 9c: WGT predialysisPREWT_1 Num 8 DW2.M C 4a: Weight at SSD / predialPREWT_2 Num 8 DW2.M C 4a: Weight at SSD / predial 2ndPREWT_3 Num 8 DW2.M C 4a: Weight at SSD/ predial 3rdPREWT_FU Num 8 DW2.MFUP B3a: Pre Dialysis WeightPRE_DBP Num 8 DW2.M C 4a: DBP at SSD / predialysisPRE_DBP2 Num 8 DW2.M C 4a: DBP at SSD / predial 2ndPRE_DBP3 Num 8 DW2.M C 4a: DBP at SSD / predial 3rdPRE_KGLB Char 1 $LBKG. DW2.MFUP B3a: Pre Weight in KG or LBPRE_SBP Num 8 DW2.M C4a: SBP at SSD / predialysisPRE_SBP2 Num 8 DW2.M C 4a: SBP at SSD / predial 2ndPRE_SBP3 Num 8 DW2.M C 4a: SBP at SSD / predial 3rdPRIVATE1 Char 1 $YESNO. DW2.M A 9b: Private month bfore A6PRIVATE2 Char 1 $YESNO. DW2.M A 9b: Private at/near A7PROVUSRD Num 8 BEST22. USRDS assigned provider IDPRW_KGLB Num 8 DW2.M C 4a: Weight predial Kg or LbPSTBN_FU Num 8 DW2.MFUP B3b: Post Dialysis BUNPSTBUN_1 Num 8 DW2.M D 9b: BUN Postdialysis SSDatePSTBUN_2 Num 8 DW2.M D 14b: BUN pstdial of U. Collct.PSTCREAT Num 8 DW2.M D 14b: Post CreatininePSTWT Num 8 DW2.M D 9c: WGT postdialysisPSTWT_1 Num 8 DW2.M C 4b: Weight at SSD / postdialPSTWT_2 Num 8 DW2.M C 4b: Weight at SSD / pstdial 2ndPSTWT_3 Num 8 DW2.M C 4b: Weight at SSD/pstdial 3rdPSTWT_FU Num 8 DW2.MFUP B3b: Post Dialysis WeightPST_DBP Num 8 DW2.M C 4b: DBP at SSD / pstdialPST_DBP2 Num 8 DW2.M C 4b: DBP at SSD / pstdial 2ndPST_DBP3 Num 8 DW2.M C 4b: DBP at SSD /pstdial 3rdPST_KGLB Char 1 $LBKG. DW2.MFUP B3b: Post Weight in KG or LBPST_SBP Num 8 DW2.M C 4b: SBP at SSD / pstdialPST_SBP2 Num 8 DW2.M C 4b: SBP at SSD / pstdial 2ndPST_SBP3 Num 8 DW2.M C 4b: SBP at SSD /pstdial 3rdPUBAGEN Char 1 $NOYES. D2Q D5: Who pays: Public agency/charitPULMED Char 1 $SUSPCT. DW2.M B 6c: Pulmonary edemaPVD Char 1 $SUSPCT. DW2.M B 5a: Peripheral Vascular DiseaseQUALCAR Char 1 $GOOD5A. D2Q F2: Feelings about quality of self-QUALCAR2 Char 1 $GOOD5A. DW2.PFUP E2: Taking care of own HealthRCTSLOW Char 1 $TIME6A. D2Q A42: React slowly to thingsRCTSLOW2 Char 1 $TIME6A. DW2.PFUP A42: React slowly to thingsREDTIM Char 1 $YESNO. D2Q A13: Phys Hlth: Reduced time on woREDTIM2 Char 1 $YESNO. DW2.PFUP A13: PH: Reduced time on workREDWRK Char 1 $YESNO. D2Q A17: EP: Reduced time on work/actiREDWRK2 Char 1 $YESNO. DW2.PFUP A17: EP: Reduced time on wrkREST Char 1 $YESNO. D2Q A68: Lie down more often to restREST2 Char 1 $YESNO. DW2.PFUP A68: Lie down more often, restREV1_DAY Char 2 DW2.MFUP C6: 1st revision to 1PVA, DayREV1_FDT Num 8 DATE9. DW2.MFUP C6: Dt 1st revision to 1PVAREV1_MTH Char 2 DW2.MFUP C6: 1st revision to 1PVA, MonthREV1_TYP Char 1 $FUREVTY. DW2.MFUP C6: 1st revision to 1PVA, TypeREV1_YR Char 2 DW2.MFUP C6: 1st revision to 1PVA, YearREV2_DAY Char 2 DW2.MFUP C6: 2nd revision to 1PVA, Day


WAV2UPDT: Wave 2 Special Study Updated with USRDS Established ESRD Dates (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntREV2_FDT Num 8 DATE9. DW2.MFUP C6: Dt 2nd revision to 2PVAREV2_MTH Char 2 DW2.MFUP C6: 2nd revision to 1PVA, MonthREV2_TYP Char 1 $FUREVTY. DW2.MFUP C6: 2nd revision to 1PVA, TypeREV2_YR Char 2 DW2.MFUP C6: 2nd revision to 1PVA, yearSCHDCHG2 Char 1 $EXTEN5C. DW2.PFUP E5b: Dial sched changed, workSCHDINT2 Char 1 $EXTEN5C. DW2.PFUP E5a: D.Sched not interfer workSCHDNOT2 Char 1 $EXTEN5C. DW2.PFUP E5c: No Dial Shift to allow wrkSCHEDCHG Char 1 $EXTEN5C. D2Q F5b: Treatment schedule could changSCHEDINT Char 1 $EXTEN5C. D2Q F5a: Treatment interfere w/ work scSCHEDNOT Char 1 $EXTEN5C. D2Q F5c: No treatment schedule avail toSCRED_FU Num 8 DW2.MFUP B4b: End Serum CreatinineSCRST_FU Num 8 DW2.MFUP B4b: Start Serum CreatinineSERCRET Num 8 DW2.M C 7: Serum CreatinineSER_ALB Num 8 DW2.M D 10: Serum Albumin PredialysisSER_ALUM Num 8 DW2.M D 13: Serum Aluminum (random)SER_BIC Num 8 DW2.M D 5: Serum BicarbonateSER_CAL Num 8 DW2.M D 3: Serum calcium, predialysisSER_PTH Num 8 DW2.M D 12: Serum intact PTHSESSIONS Num 8 DW2.M C 5c: Hemo - No. Sessions / weekSEXLF Char 1 $EXTEN5B. D2Q A65: Sex lifeSEXLF2 Char 1 $EXTEN5B. DW2.PFUP A65: Sex LifeSGDAY_FU Char 2 DW2.MFUP C3: Day of Surgery 1st VAPermSGMTH_FU Char 2 DW2.MFUP C3: Mth of Surgery 1st VAPermSGYR_FU Char 2 DW2.MFUP C3: Year of Surgery 1st VAPermSHRTDIAL Num 8 DW2.M C 5m: Treats shortnd by gt 10 minSHRTRMT Char 1 $CYCLER. D2Q C14: # times cycler shortened treatSHRTRMT2 Char 1 $CYCLER. DW2.PFUP C6: # Cycler shortened trtsSICK Char 1 $TRUE5A. D2Q A33: Get sick easier than othersSICK2 Char 1 $TRUE5A. DW2.PFUP A33: Get sick easier than otherSIGDAY Char 2 D2Q CV: Day of signatureSIGDAY2 Char 2 DW2.PFUP : Day of signatureSIGMONTH Char 2 D2Q CV: Month of signatureSIGMTH2 Char 2 DW2.PFUP : Month of signatureSIGNAT Char 1 D2Q CV: Presence of signatureSIGNED Char 1 $YESNO. DW2.PFUP :Is consent form signed?SIGN_FDT Num 8 DATE9. DW2.MFUP: Date of SignatureSIGYR Char 2 D2Q CV: Year of signatureSIGYR2 Char 2 DW2.PFUP : Year of signatureSKIPDIAL Num 8 DW2.M C 5l: Number of treats skippedSLEEPLS Char 1 $YESNO. D2Q A70: Sleep less at nightSLEEPLS2 Char 1 $YESNO. DW2.PFUP A70: Sleep less at NightSLEEPQLT Char 2 $QUAL10A. D2Q A71: Quality of sleep-30 daysSLEEPQT2 Char 2 $QUAL10A. DW2.PFUP A71: Quality of sleep, last mthSMOKING Char 1 DW2.M B 2: Smoking statusSOCIALZE Char 1 $AGREE6A. D2Q C 8j: Like to socialize w/oth pts/stSOCINT Char 1 $EXTEN5A. D2Q A20: Amt of interference w/ socialSOCINT2 Char 1 $EXTEN5A. DW2.PFUP A20: Amt. of interf. w/ socialSPANQ2 Char 1 $YESNO. DW2.PFUP : Questionnaire in SpanishSSDAY Char 2 DW2.M : Study Start daySSDAY1 Char 2 DW2.M A 7: Study Start day A6+60daysSSDAY_FU Char 2 DW2.MFUP : Study Start DaySSD_W2 Num 8 DATE9. DW2.M A 7 Study start dateSSMTH Char 2 DW2.M : Study Start monthSSMTH1 Char 2 DW2.M A 7: Study Start mth A6+60daysSSMTH_FU Char 2 DW2.MFUP : Study Start MonthSSTMOD Char 1 DW2.MFUP : Modality at Study StartSST_FDT Num 8 DATE9. DW2.MFUP: Study Start DateSSYR Char 2 DW2.M : Study Start yearSSYR1 Char 2 DW2.M A 7: Study Start yr A6+60daysSSYR_FU Char 2 DW2.MFUP : Study Start YearSTRESS Char 1 $EXTEN5B. D2Q A64: Stress/worried by kidney diseaSTRESS2 Char 1 $EXTEN5B. DW2.PFUP A64: Stress by Kidney DiseaseSUBCLAV Char 1 $ACCTYPE. DW2.M C 5k: Hemo - Any SubclavianSUPPORT Char 1 $GOOD5B. D2Q A73: Support from family/friendsSUPPORT2 Char 1 $GOOD5B. DW2.PFUP A73: Support from friend&fam.


WAV2UPDT: Wave 2 Special Study Updated with USRDS Established ESRD Dates (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntSURGDAY Char 2 DW2.M C 5j: day of Surgery for VASURGMTH Char 2 DW2.M C 5j: mth of Surgery for VASURGYR Char 2 DW2.M C 5j: yr of Surgery for VASURG_FDT Num 8 DATE9. DW2.MFUP C3: Dt of Surgery 1st permVAS_BORN Num 8 DATE9. DW2.M Date of birth calculatedS_RACE Char 1 $RACEDMS. DW2.M A 4: RaceS_SEX Char 1 $SEXFMT.S_ZIP Char 5 DW2.M A 5: Patients ZipcodeTHRSU_FU Num 8 DW2.MFUP B4a: Total hours of urine Coll.THRS_UC Num 8 DW2.M D 14a: Total Hrs of Urine Collct.TIA Char 1 $SUSPCT. DW2.M B 4b: Transient Ischemic atacksTIME Char 1 $TRUE5A. D2Q A38: Too much time spent on kidneyTIME2 Char 1 $TRUE5A. DW2.PFUP A38: Too much time w/Kidney DisTIRED Char 1 $TIME6A. D2Q A31: Feel tiredTIRED2 Char 1 $TIME6A. DW2.PFUP A31: Fell TiredTOGETH Char 1 $GOOD5B. D2Q A72: Together w/ family & friendsTOGETH2 Char 1 $GOOD5B. DW2.PFUP A72: Togetherness, friends&fam.TOOWEAK Char 1 $NOYES. D2Q D3: Too weak/sick after dialysisTRANDIS2 Char 1 $YESNON. DW2.PFUP C1: Transplant option discussedTRANEVL2 Char 1 $YESNON. DW2.PFUP C2: Evaluated for a transplantTRANPRB1 Char 1 $YESNO. D2Q D6a: Short treatment due to transpoTRANPRB2 Char 1 $YESNO. D2Q D6b: Skip treatment due to transporTRANS Char 1 $YESNO. DW2.M D 6c: Receive Transfusion / 2moTRANSDIS Char 1 $YESNON. D2Q C 4: Transplant option discussedTRANSEVL Char 1 $YESNON. D2Q C 5: Evaluated for TransplantTREATMO Char 1 $HDPD. DW2.M : Modality of Treatment H/PDTRIGLY Num 8 DW2.M D 11d: TriglyceridesTRTSCHED Char 1 $IMPORT. D2Q C 7b: Conven. of treat sched.TRVABL Char 1 $EXTEN5B. D2Q A62: Abiity to travelTRVABL2 Char 1 $EXTEN5B. DW2.PFUP A62: Ability to travelUCEDDT_D Char 2 DW2.M D 14a: Urine Collct. end dt dayUCEDDT_M Char 2 DW2.M D 14a: Urine Collct. end dt mthUCEDTMDY Char 1 DW2.M D 14a: Urine Collct. end AM/PMUCEDTM_H Char 2 DW2.M D 14a: Urine Collct. end tm. HrUCEDTM_M Char 2 DW2.M D 14a: Urine Collct. end tm. minUCSTDT_D Char 2 DW2.M D 14a: Urine Collct. st. dt. DayUCSTDT_M Char 2 DW2.M D 14a: Urine Collct. st. Dt MonthUCSTTMDY Char 1 DW2.M D 14a: Urine Collct. st. AM/PMUCSTTM_H Char 2 DW2.M D 14a: Urine Collct. st. tm. HrUCSTTM_M Char 2 DW2.M D 14a: Urine Collct. st. tm. MinUNDNOUR Char 1 $SUSPCT. DW2.M C 3: UndernourishedUNIT_TYP Char 1 $FUNITYP. DW2.MFUP B4b: Lab Values unit typeUREAVAL Num 8 DW2.M D 9: Urea or BUNURINE Char 1 $FUURINE. DW2.MFUP B2: Approx. urine outputURINE2 Char 1 DW2.PFUP B3: How much urine in 24 hoursURINE_CR Num 8 DW2.M D 14b: Urine CreatinineURINE_VM Num 8 DW2.M D 14b: Urine VolumeURNCR_FU Num 8 DW2.MFUP B4b: Urine CreatinineURNEDDAY Char 2 DW2.MFUP B4a: Urine Collection End DayURNEDMTH Char 2 DW2.MFUP B4a: Urine Collection End MthURNEDTDY Char 1 DW2.MFUP B4a: Urine Coll. End time dayURNEDTHR Num 8 DW2.MFUP B4a: Urine Coll. End Time (hr)URNEDTMN Num 8 DW2.MFUP B4a: Urine Coll. End Time (min)URNEDYR Char 2 DW2.MFUP B4a: Urine Collection End YrURNE_FDT Num 8 DATE9. DW2.MFUP B4: Urine Collection End DtURNNT_FU Num 8 DW2.MFUP B4b: Urine Urea NitrogenURNSTDAY Char 2 DW2.MFUP B4a: Urine Collection St. DayURNSTMTH Char 2 DW2.MFUP B4a: Urine Collection St. MthURNSTTDY Char 1 DW2.MFUP B4a: Urine Coll. Start time dayURNSTTHR Num 8 DW2.MFUP B4a: Urine Coll. Start time (hrURNSTTMN Num 8 DW2.MFUP B4a: Urine Coll. Start time(minURNSTYR Char 2 DW2.MFUP B4a: Urine Collection St. YearURNS_FDT Num 8 DATE9. DW2.MFUP B4: Urine Collection St DTURNVM_FU Num 8 DW2.MFUP B4b: Urine VolumeUUNITROG Num 8 DW2.M D 14b: Urine Urea Nitrogen


WAV2UPDT: Wave 2 Special Study Updated with USRDS Established ESRD Dates (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntU_UNITS Num 8 DW2.M D 14b: Urine UnitsVA1PM_FU Char 1 $FUVATYP. DW2.MFUP C2: 1st perm. VA type attemptedVADAY_FU Char 2 DW2.MFUP C4: Day this 1st PVA was usedVAL_STAT Num 8 Data validation statusVAMTH_FU Char 2 DW2.MFUP C4: Month this 1st PVA was usedVAPRM_FU Char 1 $YESNO. DW2.MFUP C1: VA Perm ever attemptedVAST_FDT Num 8 DATE9. DW2.MFUP C4: Dt 1st Perm VA was usedVAYR_FU Char 2 DW2.MFUP C4: Year this 1st PVA was usedVA_1 Char 1 $YESNO. DW2.M A 9e: VA mon before date A6VA_2 Char 1 $YESNO. DW2.M A 9e: VA at/near date A7VA_REVIS Char 1 $YNUFMT. DW2.MFUP C6: Any revisions to 1st VAPermVIGACT Char 1 $LIMIT3A. D2Q A 3 Vigorous acts: running, heavyVIGACT2 Char 1 $LIMIT3A. DW2.PFUP A3: Vigorous activitiesVITAMN_D Char 1 $YESNO. DW2.M D 16: Injectable Vit.D at SSDVOLDRAIN Num 8 DW2.M C 7: Total Volume drainedVOMIT Char 1 $TIMBF4A. D2Q B7: Onset of nausea/vomitingWAGERATE Num 8 D2Q E1: Wage rateWAGERT2 Num 8 DW2.PFUP D2: Hourly Wage RateWAGEST Num 8 D2Q E2: Estimated wage rate if not emplWAGEST2 Num 8 DW2.PFUP D3: Est. Hourly Wage RateWAITLIST Char 1 $YESNON. D2Q C 6: On a Transplant waitlistWAITLST2 Char 1 $YESNON. DW2.PFUP C3: On a transplant waitlistWALKBLK Char 1 $LIMIT3A. D2Q A11: Walking, 1 blockWALKBLK2 Char 1 $LIMIT3A. DW2.PFUP A11: Walking 1 blockWALKMLT Char 1 $LIMIT3A. D2Q A 9 Walking, > 1 mileWALKMLT2 Char 1 $LIMIT3A. DW2.PFUP A9: Walking, >1 MileWALKSEV Char 1 $LIMIT3A. D2Q A10: Walking, several blocksWALKSEV2 Char 1 $LIMIT3A. DW2.PFUP A10: Walking several blocksWAS1VAP Char 1 $YESNO. DW2.MFUP C4: Was this 1st PVA ever usedWHNSAW Char 1 $TIMBF3A. D2Q B3: When patient first saw nephroloWHNTLD Char 1 $TIMBF1A. D2Q B1: When told of abnormal kidney fuWHOGAVE Char 1 $WHOHELP. D2Q F7: Who helped complete formWHOGAVE2 Char 1 $WHOHELP. DW2.PFUP E7: Who Helped Complete FormWORKING2 Char 1 DW2.PFUP D1: Working StatusWORNOUT Char 1 $TIME6A. D2Q A29: Worn outWORNOUT2 Char 1 $TIME6A. DW2.PFUP A29: Worn OutWPOTHER Char 1 $NOYES. D2Q D5: Who pays: OtherWRKABL Char 1 $EXTEN5B. D2Q A61: Ability to work around houseWRKABL2 Char 1 $EXTEN5B. DW2.PFUP A61: Ability to work in houseWRKCAR Char 1 $YESNO. D2Q A19: EP: Did not work as carefullyWRKCAR2 Char 1 $YESNO. DW2.PFUP A19: EP: Didnt work as carefullWRKFT Char 1 $YESNO. D2Q A74b: Able to work full-timeWRKFT2 Char 1 $YESNO. DW2.PFUP A74b: Able to work full-timeWRKLMT1 Char 1 $YESNO. D2Q E3: Work type limited due to healthWRKLMT2 Char 1 $YESNO. D2Q E4: Work amt limited due to healthWRKPT Char 1 $YESNO. D2Q A74a: Able to work part-timeWRKPT2 Char 1 $YESNO. DW2.PFUP A74a: Able to work part-timeXRAY Char 1 $YESNO. DW2.M D 1: Cardiomegaly by X-rayYEAR Num 8 DW2.M A 7c year of study start date

TRANSPLANT CD-1


TXUNOS: Kidney Transplants UNOSIncludes transplant details collected by UNOS, currently the main source of transplant data for the USRDS, for the years since 1988.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentUSRDS_ID Num 8 BEST22. USRDS assigned unique identifierACTREJT Char 1 $YNUNK. KIR: Acute RejectionACYCLO Char 1 $YNUNK. KIR: Acyclovir (Zovirax)ADMDATE Num 8 MMDDYY10. KIR: Date of Admission to Tx CenterAGEDIAB Num 8 TCR_KI: Age at Diabetes OnsetAGEDIABI Char 1 $TRIND. TCR_KI: Age of Diabetes Onset/StatusAGE_UNIT Char 1 $AGEUNIT. CDR: Age UnitANSTIME Num 8 KIR: Anastomotic Time KI RightANSTIMEI Char 1 KIR: Anastomotic Time/Status KI RightANSTIMEL Num 8 KIR: Anastomotic Time KI LeftANSTIMELI Char 1 KIR: Anastomotic Time/Status KI LeftAUTOXM Char 1 $YNUNK. RHS: Auto Crossmatch Positive - RecentAUXMP Char 1 RHS: Auto Crossmatch Positive - Pos XmatchAVGINSLI Char 1 KIR: Average Daily Insulin Units/StatusAVGINSUL Num 8 KIR: Average Daily Insulin UnitsBANFF Num 8 BANFF. KIR: BANFF Level (Stages)BIOPART Num 8 KIR: Biopsy Results Arteriolosclerosis KI RightBIOPARTL Num 8 KIR: Biopsy Results Arteriolosclerosis KI LeftBIOPFIB Num 8 KIR: Biopsy Results Fibrosis KI RightBIOPFIBL Num 8 KIR: Biopsy Results Fibrosis KI LeftBIOPGLU Num 8 KIR: Biopsy Results Glomerulosclerosis % KI RightBIOPGLUL Num 8 KIR: Biopsy Results Glomerulosclerosis % KI LeftBIOPSEC Num 8 BIOP_SEC. KIR: Biopsy of Donor Kidney Performed at Tx CenterBLDTRANS Num 8 TRANSFUS. LDR: Bleeding Requiring TransfusionBMTX Char 5 $T_F. KIR: Multiple Organ RecipientBOTH1TXT Char 50 KIR: Other1BOTH2TXT Char 50 KIR: Other2BPDDIAI Char 1 $TRIND. LDR: At Discharge Diastolic/StatusBPDDIAS Num 8 LDR: At Discharge DiastolicBP_DIAS Num 8 LDR: Preoperative DiastolicBP_DIASI Char 1 $TRIND. LDR: Preoperative Diastolic/StatusBP_DISC Num 8 LDR: At Discharge SystolicBP_DISCI Char 1 $TRIND. LDR: At Discharge Systolic/StatusBP_PRE Num 8 LDR: Preoperative SystolicBP_PREI Char 1 $TRIND. LDR: Preoperative Systolic/StatusCMV Char 2 $SCREEN. KIR: {CMV pre-UNet data}CMVDNA Char 2 $SCREEN. KIR: CMV DNACMVIGG Char 2 $SCREEN. KIR: CMV IgGCMVIGM Char 2 $SCREEN. KIR: CMV IgMCODOTH Char 50 CDR: Cause of Death/SpecifyCOLDTIME Num 8 KIR: Total Cold Ischemic Time KI RightCOLDTIMEI Char 1 KIR: Total Cold Ischemic Time/Status KI RightCOLDTIMEL Num 8 KIR: Total Cold Ischemic Time KI LeftCOLDTIMELI Char 1 KIR: Total Cold Ischemic Time/Status KI LeftCRC Num 8 KIR: Creatinine ClearanceCRCI Char 1 $TRIND. KIR: Creatinine Clearance/StatusCRCIL Char 1 $TRIND. TCR_KI: Creatinine Clearance/Status @ ListimeCRCL Num 8 TCR_KI: Creatinine Clearance @ ListimeCRCMETHD Num 8 CREAT_MT. KIR: Creatinine Clearance MethodCRCMTHDL Num 8 CREAT_MT. TCR_KI: Creatinine Clearance/MethodCREATDEC Char 1 $YNUNK. KIR: Creatinine Decline by 25% or More in First 24 HourCR_DISC Num 8 LDR: Kidney Creatinine At DischargeCR_DISCI Char 1 $TRIND. LDR: Kidney Creatinine At Discharge/StatusCR_PRE Num 8 LDR: Kidney Preoperative CreatinineCR_PREI Char 1 $TRIND. LDR: Kidney Preoperative Creatinine/StatusCTR_TY Char 3 KIR: Transplant Center TypeCVASCR Char 1 $YNUNK. TCR_KI: Symptomatic Cerebrovascular DiseaseCYTOGAM Char 1 $YNUNK. KIR: Cytogam (CMV)DA1 Char 5 USRDS: Donor HLA Typing A(1)DA2 Char 5 USRDS: Donor HLA Typing A(2)DA1D Char 8 DHS: HLA Typing A(1)DA1R Char 8 RHS: Donor HLA Retyping A(1)DA2D Char 8 DHS: HLA Typing A(2)


TXUNOS: Kidney Transplants UNOS (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntnt

DA2R Char 8 RHS: Donor HLA Retyping A(2)DABO Char 3 CDR: ABO Blood GroupDAGE Num 8 CDR: AgeDANCONV Char 1 $YNUNK. CDR: AnticonvulsantsDANHYP Char 1 $YNUNK. CDR: AntihypertensivesDANTIHBC Char 2 $SCREEN. CDR: Anti-HBCDANTIHCV Char 2 $SCREEN. CDR: Anti-HCVDB1 Char 5 USRDS: Donor HLA Typing B(1)DB2 Char 5 USRDS: Donor HLA Typing B(2)DB1D Char 8 DHS: HLA Typing B(1)DB1R Char 8 RHS: Donor HLA Retyping B(1)DB2D Char 8 DHS: HLA Typing B(2)DB2R Char 8 RHS: Donor HLA Retyping B(2)DBLDINF Char 5 $T_F. CDR: BloodDBORN Num 8 MMDDYY10. CDR: DOBDBUN Num 8 CDR: BUNDBUNST Char 1 $TRIND. CDR: BUN/StatusDBW4D Num 8 WKGRPHLA. DHS: Donor HLA Typing Bw4DBW4R Num 8 WKGRPHLA. RHS: Bw4DBW6D Num 8 WKGRPHLA. DHS: Donor HLA Typing Bw6DBW6R Num 8 WKGRPHLA. RHS: Bw6DCANCER Char 50 CDR: History of Cancer/SpecifyDCDATE Num 8 MMDDYY10. KIR: Date of Discharge from Tx CenterDCITY Char 20 CDR: Home CityDCITZ Num 8 CITIZEN. CDR: CitizenshipDCIVDRUG Char 1 $YNUNK. CDR: AND continued in last six monthsDCMV Char 2 $SCREEN. CDR: Anti-CMVDCMV_DNA Char 2 $SCREEN. LDR: CMV DNADCMV_IGG Char 2 $SCREEN. LDR: CMV IgGDCMV_IGM Char 2 $SCREEN. LDR: CMV IgMDCNFREE Num 8 CDR: Cancer Free IntervalDCNTRY Char 3 $CTRY. CDR: Home CountryDCOD Num 8 DON_COD. CDR: Cause of DeathDCONCIG Char 1 $YNUNK. CDR: AND continued in last six monthsDCONTALC Char 1 $YNUNK. CDR: AND continued in last six monthsDCORCOOL Char 1 $YNUNK. CDR: Core Cooling UsedDCOTDRUG Char 1 $YNUNK. CDR: AND continued in last six monthsDCREAT Num 8 CDR: Serum CreatinineDCREST Char 1 $TRIND. CDR: Serum Creatinine/StatusDCW1D Num 8 CWHLA. DHS: Donor HLA Typing Cw(1)DCW1R Num 8 CWHLA. RHS: Cw (1)DCW2D Num 8 CWHLA. DHS: Donor HLA Typing Cw(2)DCW2R Num 8 CWHLA. RHS: Cw (2)DDCLMPDT Num 8 MMDDYY10. CDR: Clamp DateDDCLMPTM Char 8 CDR: Clamp TimeDDIET Char 1 $YNUNK. CDR: DietDDIUR Char 1 $YNUNK. CDR: DiureticsDDOD Num 8 MMDDYY10. LDR: Date of DeathDDP1D Num 8 DPHLA. DHS: Donor HLA Typing DPW(1)DDP2D Num 8 DPHLA. DHS: Donor HLA Typing DPW(2)DDPW1R Num 8 DPHLA. RHS: DPw (1)DDPW2R Num 8 DPHLA. RHS: DPw (2)DDQ1D Num 8 DQHLA. DHS: Donor HLA Typing DQ(1)DDQ2D Num 8 DQHLA. DHS: Donor HLA Typing DQ(2)DDQW1R Num 8 DQHLA. RHS: DQ (1)DDQW2R Num 8 DQHLA. RHS: DQ (2)DDR1 Char 5 USRDS: Donor HLA Typing DR(1)DDR2 Char 5 USRDS: Donor HLA Typing DR(2)DDR1D Char 8 $DRLOCUS. DHS: HLA Typing DR(1)DDR1R Char 8 $DRLOCUS. RHS: Donor HLA Retyping DR(1)DDR2D Char 8 $DRLOCUS. DHS: HLA Typing DR(2)DDR2R Char 8 $DRLOCUS. RHS: Donor HLA Retyping DR(2)DDR51D Num 8 WKGRPHLA. DHS: Donor HLA Typing DR51DDR52D Num 8 WKGRPHLA. DHS: Donor HLA Typing DR52DDR53D Num 8 WKGRPHLA. DHS: Donor HLA Typing DR53


DDRW51R Num 8 WKGRPHLA. RHS: DR51DDRW52R Num 8 WKGRPHLA. RHS: DR52DDRW53R Num 8 WKGRPHLA. RHS: DR53DEPSTDNA Char 2 $SCREEN. LDR: Epstein Barr Virus DNADEPSTIGG Char 2 $SCREEN. LDR: Epstein Barr Virus IgGDEPSTIGM Char 2 $SCREEN. LDR: Epstein Barr Virus IgMDEXCNCR Char 1 $YNUNK. CDR: ExtracranialDGN2L Num 8 TCR_KP: Primary Pancreas DiagnosisDGN2LTXT Char 50 TCR_KP: Primary Pancreas Diagnosis/SpecifyDGNL Num 8 KI_DGN. TCR_KI: Primary DiagnosisD GNLT XT Char 50 TCR_KI: Primary Diagnosis/SpecifyDHBCOR Char 2 $SCREEN. LDR: Hepatitis B Core AntibodyDHBSAG Char 2 $SCREEN. LDR: Hepatitis B Surface AntigenDHBVDNA Char 2 $SCREEN. LDR: Hepatitis B HBV DNADHCRIBA Char 2 $SCREEN. LDR: Hepatitis C RIBA TestDHCSCRN Char 2 $SCREEN. LDR: Hepatitis C Antibody ScreenDHCVRNA Char 2 $SCREEN. LDR: Hepatitis C HCV RNADHDIAB Num 8 HISTDIAB. CDR: History of DiabetesDHGT Num 8 CDR: Height in cmDHGTST Char 1 $TRIND. CDR: Height in cm/StatusDHHYP Num 8 HISTHYPE. CDR: History of HypertensionDHISP Char 1 $ETHFMT. CDR/LDR: Donor Hispanic EthnicityDHISTALC Char 1 $YNUNK. CDR: Alcohol Dependency - EverDHISTCIG Char 1 $YNUNK. CDR: Cigarette Use (> 20 pack years) - EverDHIV1 Char 2 $SCREEN. CDR: Anti-HIV I (one)DHIV2 Char 2 $SCREEN. CDR: Anti-HIV II (two)DHIVCONF Char 2 $SCREEN. LDR: HIV ConfirmationDHIVSCRN Char 2 $SCREEN. LDR: HIV ScreeningDHLATYP Char 1 $YNUNK. DHS: Donor HLA TypedDHOSPROV Char 10 CDR: Donor Hospital Provider NumberDHTLV1 Char 2 $SCREEN. CDR: Anti-HTLV I (one)DHTLV2 Char 2 $SCREEN. CDR: Anti-HTLV II (two)DIABR Num 8 DIAINSDP. TCR_KI: DiabetesDIALDT Num 8 MMDDYY10. KIR: Date first DialyzedDIALDTI Char 1 $TRIND. KIR: Date First Dialyzed/StatusDIALR Num 8 DIAL_TY. TCR_KI: DialysisDICCNCR Char 1 $YNUNK. CDR: IntracranialDINFCT Char 1 $YNUNK. CDR: Clinical InfectionDINSDEP Num 8 INSDEP. CDR: Insulin DependentDISP_LKI Num 8 DISPOS. CDR: Disposition of Organ - Left KidneyDISP_RKI Num 8 DISPOS. CDR: Disposition of Organ - Right KidneyDIVDRUG Char 1 $YNUNK. CDR: IV Drug - EverDNHTBEAT Char 1 $YNUNK. CDR: Non-Heart Beating DonorDONID Char 7 KIR: Donor Information IdDONPROJ Char 1 $YNUNK. TCR_KI: Secondary source of payment: DonationDONSEC Char 1 $YNUNK. KIR: Secondary source of payment: DonationDONTFUS Char 1 $YNUNK. KIR: Any Donor Specific TransfusionsDON_ORG1 Char 4 KIR: Previous Transplant OrganDON_ORG2 Char 4 KIR: Previous Transplant OrganDON_ORG3 Char 4 KIR: Previous Transplant OrganDON_ORG1_L Char 4 TCR_KI: Previous Transplant OrganDON_ORG2_L Char 4 TCR_KI: Previous Transplant OrganDON_ORG3_L Char 4 TCR_KI: Previous Transplant OrganDOTHDRUG Char 1 $YNUNK. CDR: Other Drug Use - EverDOTHINF Char 5 $T_F. CDR: OtherDOTHITXT Char 50 CDR: Other/SpecifyDOTHMED1 Char 50 CDR: Medication, Other specifyDOTHMED2 Char 50 CDR: Medication, Other specifyDOTHMED3 Char 50 CDR: Medication, Other specifyDOTHYMED Char 1 $YNUNK. CDR: Other Hypertensive MedicationDPINF Char 5 $T_F. CDR: LungDPTDIUR Char 1 $YNUNK. CDR: DiureticsDPTHEP Char 1 $YNUNK. CDR: HeparinDPTOTH1 Char 50 CDR: Other/Specify (one)DPTOTH2 Char 50 CDR: Other/Specify (two)

TXUNOS: Kidney Transplants UNOS (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentComment


TXUNOS: Kidney Transplants UNOS (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentDPTOTH3 Char 50 CDR: Other/Specify (three)DPTSTER Char 1 CDR: SteroidsDRACE Char 1 $RACEFMT. CDR/LDR: Donor RaceDRECVDT Num 8 MMDDYY10. CDR: Recovery Date (donor to OR)DRETYMD1 Num 8 HLA_TYMT. RHS: Serology, DNA, OtherDRETYMD2 Num 8 HLA_TYMT. RHS: Serology, DNA, OtherDRETYMD1I Char 50 RHS: Serology, DNA, Other/SpecifyDRETYMD2I Char 50 RHS: Serology, DNA, Other/SpecifyDRETYP Char 1 $YNUNK. RHS: Donor Retyped at Your CenterDRH Char 1 $P_N_U. CDR: RHDSEX Char 1 CDR: GenderDSGOT Num 8 CDR: SGOT/ASTDSGOTST Char 1 $TRIND. CDR: SGOT/AST /StatusDSGPT Num 8 CDR: SGPT/ALTDSGPTST Char 1 $TRIND. CDR: SGPT/ALT /StatusDSKCNCR Char 1 $YNUNK. CDR: SkinDSTATE Char 2 $STATE. CDR: StateDSUIT Num 8 DNRSUITR. CDR: Suitable for Procurement of OrgansDTBILI Num 8 CDR: Total BilirubinDTBILST Char 1 $TRIND. CDR: Total Bilirubin/StatusDTCELL Num 8 DHS: Target SourceDTHCIRC Num 8 D_CIRCUM. CDR: Cirumstances of DeathDTHMECH Num 8 D_MECH. CDR: Mechanism of DeathDTYPDT Num 8 MMDDYY10. DHS: Date TypedDTYPE Char 3 $DONOR. KIR: Donor TypeDURINF Char 5 $T_F. CDR: UrineDUSUITXT Char 50 CDR: Suitable for Procurement of Organs/SpecifyDVASOD Char 1 $YNUNK. CDR: VasodilatorsDVDRL Char 2 $SCREEN. CDR: RPR-VDRLDWGT Num 8 CDR: Weight in kgDWGTST Char 1 $TRIND. CDR: Weight in kg/StatusDWTIME Num 8 CDR: Estimated Warm Ischemic TimeDZIP Char 9 CDR: Zip CodeD_F_CD Char 4 LDR: Donor Workup FacilityD _ F _ T Y Char 3 LDR: Donor Workup FacilityECMO Char 5 $T_F. TCR_KI: ECMOEDUC Num 8 ED_LEVEL. TCR_KI: Highest Education LevelEMPSTAT Char 3 $EMP. KIR: Employment StatusEMPSTATL Char 3 $EMP. TCR_KI: Employment StatusEN_PLCBY Num 8 CDR: Placed By - Double/En-bloc KidneyEPSTDNA Char 2 $SCREEN. KIR: Epstein Barr Virus DNAEPSTIGG Char 2 $SCREEN. KIR: Epstein Barr Virus IgGEPSTIGM Char 2 $SCREEN. KIR: Epstein Barr Virus IgMEXPERACC Char 1 $YNUNK. TCR_KI: Exhausted Peritoneal AccessEXVASACC Char 1 $YNUNK. TCR_KI: Exhausted Vascular AccessFLUVACC Char 1 $YNUNK. KIR: Flu Vaccine (Influenza Virus)FORGOV Char 3 KIR: Specify Foreign GovernmentFORGOV_L Char 3 TCR_KI: Specify Foreign GovernmentFREEPROJ Char 1 $YNUNK. TCR_KI: Secondary source of payment: Free CareFREESEC Char 1 $YNUNK. KIR: Secondary source of payment: Free CareFUNCSTAT Num 8 FUNCSTAT. KIR: Functional StatusFUNCSTL Num 8 FUNCSTAT. TCR_KI: Functional StatusFWDIAL Char 1 $YNUNK. KIR: Patient Need Dialysis within First WeekG A M I M M Char 1 $YNUNK. KIR: Gamimune N 10%GAMMA Char 1 $YNUNK. KIR: Gammagard SDGANCYCLO Char 1 $YNUNK. KIR: Ganciclovir (Cytovene)GFREAS1 Num 8 KIR: Primary Cause of Graft FailureGFRESOTH Char 50 KIR: Primary Cause of Graft Failure/SpecifyGRFAIL Char 1 $YNUNK. KIR: Graft StatusGRFTHRM Char 1 $YNUNK. KIR: Graft ThrombosisHAPLMAT Num 8 HAPLOTY. DHS: Haplotype MatchHBCORE Char 2 $SCREEN. KIR: Hepatitis B Core AntibodyHBIG Char 1 $YNUNK. KIR: HBIG (Hepatitis B Immune Globulin)HBSAG Char 2 $SCREEN. KIR: Hepatitis B Surface AntigenHBSAGC Char 2 CDR: HBsAg


HBVDNA Char 2 $SCREEN. KIR: Hepatitis B HBV DNAHCRIBA Char 2 $SCREEN. KIR: Hepatitis C RIBA TestHCSRN Char 2 $SCREEN. KIR: Hepatitis C Antibody ScreenHCVRNA Char 2 $SCREEN. KIR: Hepatitis C HCV RNAHGT Num 8 KIR: Height in CentimetersHGTST Char 1 $TRIND. KIR: Height in Centimeters/StatusHIVCNF Char 2 $SCREEN. KIR: HIV ConfirmationHIVSCRN Char 2 $SCREEN. KIR: HIV ScreeningHLADONE Char 1 $YNUNK. RHS: HLA typing DoneHLADT Num 8 MMDDYY10. RHS: Date TypedHLATGT Num 8 TGT_CELL. RHS: Cell SourceHMOPPROJ Char 1 $YNUNK. TCR_KI: Secondary source of payment: HMO/PPOHMOPSEC Char 1 $YNUNK. KIR: Secondary source of payment: HMO/PPOHOPSTAY Num 8 LDR: Length of Hospital StayHOPSTAYI Char 1 $TRIND. LDR: Length of Hospital Stay/StatusHRTX Char 5 $T_F. KIR: Multiple Organ RecipientIABP Char 5 $T_F. TCR_KI: IABPIMM_OTH_DRUG_ANTIREJ1 Char 5 KIR: Anti-RejectionIMM_OTH_DRUG_ANTIREJ2 Char 5 KIR: Anti_RejectionIMM_OTH_DRUG_DAYS1 Num 8 KIR: Number of DaysIMM_OTH_DRUG_DAYS2 Num 8 KIR: Number of DaysIMM_OTH_DRUG_DAYS_I1 Char 1 KIR: Number of Days/StatusIMM_OTH_DRUG_DAYS_I2 Char 1 KIR: Number of Days/StatusIMM_OTH_DRUG_IND1 Char 5 KIR: InductionIMM_OTH_DRUG_IND2 Char 5 KIR: InductionIMM_OTH_DRUG_MAINT1 Char 5 KIR: MaintenanceIMM_OTH_DRUG_MAINT2 Char 5 KIR: MaintenanceIMM_OTH_DRUG_OSTXT1 Char 50 KIR: Other Medication 1IMM_OTH_DRUG_OSTXT2 Char 50 KIR: Other Medication 2INFEC Char 1 $YNUNK. KIR: InfectionINFECTHP Char 1 $YNUNK. LDR: Infections During HospitalizationINO Char 5 $T_F. TCR_KI: IV InotropesINTX Char 5 $T_F. KIR: Multiple Organ RecipientKILDISCD Num 8 DISCD_CD. CDR: Discard Code - Left KidneyKILTXT Char 50 CDR: Reason Code/Specify - Left KidneyKIPROC Num 8 KI_PR_TY. LDR: Kidney Procedure TypeKIRDISCD Num 8 DISCD_CD. CDR: Discard Code - Right KidneyKIRTXT Char 50 CDR: Reason Code/Specify - Right KidneyKITX Char 5 $T_F. KIR: Multiple Organ RecipientKPPROC Num 8 KP_PROC. KIR: Procedure TypeLABCTRCD Char 4 DHS: Lab Center CodeLABCTRNO Char 10 DHS: LAB Provider NumberLABCTRTY Char 3 DHS: Lab Center TypeLDCITZ Num 8 LDR: CitizenshipLDCNTRY Char 5 LDR: Home CountryLDISCTXT Char 50 CDR: Discard Code Other Specify - Left KidneyLHGT Num 8 TCR_KI: Height in cmLHGTI Char 1 TCR_KI: Height StatusLIFSUP Char 1 $YNUNK. KIR: Patient on Life SupportLISTDAT Num 8 MMDDYY10. TCR_KI: Date Patient Placed on ListL I T X Char 5 $T_F. KIR: Multiple Organ RecipientLKFLUSH Num 8 FLUSH. CDR: Flush Solution - Left KidneyLKFLUTXT Char 50 CDR: Flush Other Specify - Left KidneyLKPLCBY Num 8 CDR: Placed By - Left KidneyLKPUMP Char 1 $YNUNK. CDR: Pump (Left Kidney)LKSTORE Num 8 STORSOLN. CDR: Storage Solution - Left KidneyLKSTOTXT Char 50 CDR: Storage Solution Specify - Left KidneyLRHR Char 1 $P_N_U. TCR_KI: RHLSUP Char 5 $YNUNK. TCR_KI: Patient on Life SupportLUTX Char 5 $T_F. KIR: Multiple Organ RecipientLWGT Num 8 TCR_KI: Weight in kgLWGTI Char 1 TCR_KI: Weight StatusLYMPHOID Char 1 $YNUNK. KIR: Total Lymphoid Irradiat ion (TLI)MAINTMED Char 1 $YNUNK. KIR: Were Any Meds Given for Maint. Or Anti-Rej?MALIG Char 1 $YNUNK. KIR: Any known malignancies since listing



TXUNOS: Kidney Transplants UNOS (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentM ATC Num 8 USRDS: Cnt HLA A, B, DR match(0 - 6)MCAIDPRJ Char 1 $YNUNK. TCR_KI: Secondary source of payment: MedicaidMCARPROJ Char 1 $YNUNK. TCR_KI: Secondary source of payment: MedicareMCARSEC Char 1 $YNUNK. KIR: Secondary source of payment: MedicareMCDSEC Char 1 $YNUNK. KIR: Secondary source of payment: MedicaidMDCOND Num 8 MED_COND. KIR: Medical ConditionMDCONDL Num 8 MED_COND. TCR_KI: Medical ConditionMIS_MATC Num 8 USRDS: Cnt HLA A, B, DR mis_match(0 - 6)MNTDDT Num 8 MMDDYY10. KIR: Date Maintenance Dialysis ResumedMNTDIAL Char 1 $YNUNK. KIR: Resumed Maintenance DialysisMNTDPROV Char 10 KIR: Dialysis Provider NumberMRCELL1 Num 8 CELL_TY. RHS: Cell Type - Most Recent row 1MRCELL2 Num 8 CELL_TY. RHS: Cell Type - Most Recent row 2MRCELL3 Num 8 CELL_TY. RHS: Cell Type - Most Recent row 3MRCELL4 Num 8 CELL_TY. RHS: Cell Type - Most Recent row 4MRCELL5 Num 8 CELL_TY. RHS: Cell Type - Most Recent row 5MRCELL6 Num 8 RHS: Cell Type - Positive Xmatch row 1MRCELL7 Num 8 RHS: Cell Type - Positive Xmatch row 2MRCELL8 Num 8 RHS: Cell Type - Positive Xmatch row 3MRCELL9 Num 8 RHS: Cell Type - Positive Xmatch row 4MRCELL10 Num 8 RHS: Cell Type - Positive Xmatch row 5MRCREAT Num 8 KIR: Most Recent Serum Creatinine Prior to DischargeMRCREATI Char 1 $TRIND. TCR_KI: Most Recent Absolute Creatine/StatusMRCREATL Num 8 TCR_KI: Most Recent Absolute CreatinineMRCRST Char 1 KIR: Most Recent Serum Creatinine Prior to Disch./StatuMRPRA Num 8 RHS: PRA (%) - Most RecentMRPRACEL Num 8 CELL_TY. RHS: Cell Type - Most RecentMRPRADT Num 8 MMDDYY10. RHS: Most Recent Serum DateMRPRADTI Char 1 $TRIND. RHS: Most Recent Serum Date/StatusMRPRAI Char 1 $TRIND. RHS: PRA (%)/Status - Most RecentMRPRAT Num 8 TGT_CELL. RHS: Cell Source - Most RecentMRPRATCH Num 8 HISTECH. RHS: Technique - Most RecentMRTGT1 Num 8 TGT_CELL. RHS: Target Source - Most Recent row 1MRTGT2 Num 8 TGT_CELL. RHS: Target Source - Most Recent row 2MRTGT3 Num 8 TGT_CELL. RHS: Target Source - Most Recent row 3MRTGT4 Num 8 TGT_CELL. RHS: Target Source - Most Recent row 4MRTGT5 Num 8 TGT_CELL. RHS: Target Source - Most Recent row 5MRTGT6 Num 8 RHS: Target Source - Positive Xmatch row 1MRTGT7 Num 8 RHS: Target Source - Positive Xmatch row 2MRTGT8 Num 8 RHS: Target Source - Positive Xmatch row 3MRTGT9 Num 8 RHS: Target Source - Positive Xmatch row 4MRTGT10 Num 8 RHS: Target Source - Positive Xmatch row 5MRXMDT1 Num 8 MMDDYY10. RHS: Serum Date - Most Recent row 1MRXMDT2 Num 8 MMDDYY10. RHS: Serum Date - Most Recent row 2MRXMDT3 Num 8 MMDDYY10. RHS: Serum Date - Most Recent row 3MRXMDT4 Num 8 MMDDYY10. RHS: Serum Date - Most Recent row 4MRXMDT5 Num 8 MMDDYY10. RHS: Serum Date - Most Recent row 5MRXMDT6 Num 8 MMDDYY10. RHS: Serum Date - Positive Xmatch row 1MRXMDT7 Num 8 MMDDYY10. RHS: Serum Date - Positive Xmatch row 2MRXMDT8 Num 8 MMDDYY10. RHS: Serum Date - Positive Xmatch row 3MRXMDT9 Num 8 MMDDYY10. RHS: Serum Date - Positive Xmatch row 4MRXMDT10 Num 8 MMDDYY10. RHS: Serum Date - Positive Xmatch row 5MRXMRES1 Num 8 X_MATCH. RHS: Result - Most Recent row 1MRXMRES2 Num 8 X_MATCH. RHS: Result - Most Recent row 2MRXMRES3 Num 8 X_MATCH. RHS: Result - Most Recent row 3MRXMRES4 Num 8 X_MATCH. RHS: Result - Most Recent row 4MRXMRES5 Num 8 X_MATCH. RHS: Result - Most Recent row 5MRXMRES6 Num 8 RHS: Result - Positive Xmatch row 1MRXMRES7 Num 8 RHS: Result - Positive Xmatch row 2MRXMRES8 Num 8 RHS: Result - Positive Xmatch row 3MRXMRES9 Num 8 RHS: Result - Positive Xmatch row 4MRXMRES10 Num 8 RHS: Result - Positive Xmatch row 5MRXMT1 Num 8 HISTECH. RHS: Technique - Most Recent row 1MRXMT2 Num 8 HISTECH. RHS: Technique - Most Recent row 2MRXMT3 Num 8 HISTECH. RHS: Technique - Most Recent row 3


MRXMT4 Num 8 HISTECH. RHS: Technique - Most Recent row 4MRXMT5 Num 8 HISTECH. RHS: Technique - Most Recent row 5MRXMT6 Num 8 RHS: Technique - Positive Xmatch row 1MRXMT7 Num 8 RHS: Technique - Positive Xmatch row 2MRXMT8 Num 8 RHS: Technique - Positive Xmatch row 3MRXMT9 Num 8 RHS: Technique - Positive Xmatch row 4MRXMT10 Num 8 RHS: Technique - Positive Xmatch row 5NUMTFUS Num 8 KIR: Number of Blood Transfusions at Time of TxNUMTFUSI Char 1 KIR: Number of Blood Transfusions at Time of Tx/StatusOGVTPROJ Char 1 $YNUNK. TCR_KI: Secondary source of payment: US/State Government AgencyORGTYP Char 4 $ORG_TYP. KIR: OrganOTHGF Char 50 KIR: Contributory Cause of Graft Failure: OtherOTHGSEC Char 1 $YNUNK. KIR: Secondary source of payment: US/State Govt AgencyOTHLSTXT Char 50 TCR_KI: Other Mechanism/SpecifyOTHLSUP Char 5 $T_F. TCR_KI: Other MechanismPATX Char 5 $T_F. KIR: Multiple Organ RecipientPGE Char 5 $T_F. TCR_KI: PGEPHOTO Char 1 $YNUNK. KIR: PhotopheresisPINSPROJ Char 1 $YNUNK. TCR_KI: Secondary source of payment: Private InsurancePITX Char 5 $T_F. KIR: Multiple Organ RecipientPKPRA Num 8 RHS: PRA (%) - PeakPKPRACEL Num 8 CELL_TY. RHS: Cell Type - PeakPKPRAI Char 1 RHS: PRA (%)/Status - PeakPKPRAT Num 8 TGT_CELL. RHS: Cell Source - PeakPKPRATCH Num 8 HISTECH. RHS: Technique - PeakPKPRSDT Num 8 MMDDYY10. RHS: Peak Serum DatePKPRSDTI Char 1 $TRIND. RHS: Peak Serum Date/StatusPLASMA Char 1 $YNUNK. KIR: PlasmapheresisPRADONE Char 1 $YNUNK. RHS: PRA testing DonePRAGT10 Char 1 $YNUNK. TCR_KI: PRA > 10%PREVFD2 Num 8 MMDDYY10. KIR: Previous Transplant Graft Fail DatePREVFD3 Num 8 MMDDYY10. KIR: Previous Transplant Graft Fail DatePREVFDT Num 8 MMDDYY10. KIR: Previous Transplant Graft Fail DatePREVPG Num 8 PRV_PREG. KIR: Previous PregnanciesPRIPAY Num 8 P_S_PAY. KIR: Primary Source of PaymentPRIPAYCN Char 3 LDR: Specify Foreign GovernmentPRIVSEC Char 1 $YNUNK. KIR: Secondary source of payment: Private InsurancePRMALR Char 1 $YNUNK. TCR_KI: Any previous MalignancyPROJPPAY Num 8 P_S_PAY. TCR_KI: Primary Source of PaymentPROVUSRD Num 8 BEST. USRDS Assigned Facility IDPRTRSFR Char 1 $YNUNK. TCR_KI: Any Previous TransfusionsPRTXDIAL Num 8 DIAL_TY. KIR: Pretransplant DialysisPRVTXD2 Num 8 MMDDYY10. KIR: 2nd Mst Recent Kidney Tx DatePRVTXD3 Num 8 MMDDYY10. KIR: 3rd Mst Recent Kidney Tx DatePRVTXDT Num 8 MMDDYY10. KIR: Most Recent Kidney Tx DatePTSTAT Char 1 $PSTAT. KIR: Patient StatusPTSTDT Num 8 MMDDYY10. KIR: Patient Status/DatePTXTFUS Num 8 TRANSFUS. KIR: Number of Pretransplant Blood TransfusionsPULCERR Num 8 TCR_KI: Peptic Ulcer DiseasePULEMBR Char 1 $YNUNK. TCR_KI: Pulmonary EmbolismPULMHP Char 1 $YNUNK. LDR: Pulmonary Embolism During HospitalizationPUMPTIHR Num 8 KIR: Total Pump Time (hours) KI RightPUMPTIHRL Num 8 KIR: Total Pump Time (hours) KI LeftPUMPTIMI Char 1 KIR: Total Pump Time/Status KI RightPUMPTIMIL Char 1 KIR: Total Pump Time/Status KI LeftPUMPTIMN Num 8 KIR: Total Pump Time (minutes) KI RightPUMPTIMNL Num 8 KIR: Total Pump Time (minutes) KI LeftPVASCR Char 1 $YNUNK. TCR_KI: Symptomatic Peripheral Vascular DiseasePXRESRH Char 1 $YNUNK. KIR: Did Px Participate in Research for Immuno MedsPXRESTXT Char 50 KIR: if yes, specify (Research for Immuno Meds)RA1 Char 8 RHS: Recipient HLA Typing A(1)RA2 Char 8 RHS: Recipient HLA Typing A(2)RABO Char 3 TCR_KI: ABO Blood GroupRB1 Char 8 RHS: Recipient HLA Typing B(1)RB2 Char 8 RHS: Recipient HLA Typing B(2)



TXUNOS: Kidney Transplants UNOS (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentRBW4 Num 8 WKGRPHLA. RHS: Bw4RBW6 Num 8 WKGRPHLA. RHS: Bw6RCITZ Num 8 TCR_KI: CitizenshipRCNTRY Char 3 TCR_KI: Home CountryRCOD Num 8 KI_COD. KIR: Cause of DeathRCODTXT Char 50 KIR: Cause of Death/SpecifyRCW1 Num 8 CWHLA. RHS: Cw (1)RCW2 Num 8 CWHLA. RHS: Cw (2)RDISCTXT Char 50 CDR: Discard Code Other Specify - Right KidneyRDOB Num 8 MMDDYY10. KIR: Date of BirthRDPW1 Num 8 DPHLA. RHS: DPw (1)RDPW2 Num 8 DPHLA. RHS: DPw (2)RDQW1 Num 8 DQHLA. RHS: DQ (1)RDQW2 Num 8 DQHLA. RHS: DQ (2)RDR1 Char 8 RHS: Recipient HLA Typing DR(1)RDR2 Char 8 RHS: Recipient HLA Typing DR(2)RDRW51 Num 8 WKGRPHLA. RHS: DR51RDRW52 Num 8 WKGRPHLA. RHS: DR52RDRW53 Num 8 WKGRPHLA. RHS: DR53REA_CD_L Num 8 CDR: Reason Code - Left KidneyREA_CD_R Num 8 CDR: Reason Code - Right KidneyRECDS Char 1 $YNUNK. KIR: Recurrent DiseaseRECOVTML Char 10 CDR: Recovery Team# - Left KidneyRECOVTMR Char 10 CDR: Recovery Team# - Right KidneyRECOV_DT Num 8 MMDDYY10. LDR: Organ Recovery DateREC_F_CD Char 4 LDR: Donor Recovery FacilityREC_F_TY Char 3 LDR: Donor Recovery FacilityREFCLDT Num 8 MMDDYY10. CDR: Referral DateREJTRT Num 8 REJ_TRET. KIR: Patient Treated for RejectionRETYPDT Num 8 MMDDYY10. RHS: Date TypedRETYPTGT Num 8 TGT_CELL. RHS: Target SourceRET_OR Char 1 $YNUNK. LDR: Return to OR After Recorvery of Donor OrganRHISP Char 1 $ETHFMT. TCR_KI: Recipient Hispanic EthnicityRKFLUSH Num 8 FLUSH. CDR: Flush Solution - Right KidneyRKFLUTXT Char 50 CDR: Flush Other Specify - Right KidneyRKPLCBY Num 8 CDR: Placed By - Right KidneyRKPUMP Char 1 $YNUNK. CDR: Pump (Right Kidney)RKSTORE Num 8 STORSOLN. CDR: Storage Solution - Right KidneyRKSTOTXT Char 50 CDR: Storage Solution Specify - Right KidneyRRACE Char 1 $RACEFMT. TCR_KI: Patient raceRSEX Char 1 KIR: GenderRSTATE Char 2 TCR_KI: State of Permanent ResidenceRWT_ZIP Char 10 TCR_KI: Wait ing ZIP CodeR Z I P Char 10 TCR_KI: Permanent ZIP CodeSELFPROJ Char 1 $YNUNK. TCR_KI: Secondary source of payment: SelfSELFSEC Char 1 $YNUNK. KIR: Secondary source of payment: SelfSERCREAT Num 8 KIR: Serum Creatinine at Time of TxSERCREATI Char 1 KIR: Serum Creatinine at Time of Tx/StatusSERMALB Num 8 TCR_KI: Total Serum AlbuminSERMALBI Char 1 $TRIND. TCR_KI: Total Serum Albumin/StatusSGNUPIN Char 12 KIR: UPIN#SRGCMP Char 1 $YNUNK. KIR: Surgical ComplicationsTDATE Num 8 MMDDYY10. KIR: Tx DateTFUSDT Num 8 MMDDYY10. KIR: Date of Last TransfusionTFUSST Char 1 $TRIND. KIR: Transfusion Date/StatusTISS Char 5 CDR: Tissue ConsentedTRCOPDR Char 1 $YNUNK. TCR_KI: Drug Treated COPDTRDGN Num 8 KI_DGN. KIR: Primary DiagnosisTRDGNTX Char 50 KIR: Primary Diagnosis/SpecifyTRHYPR Char 1 $YNUNK. TCR_KI: Drug Treated Systemic HypertensionTRR_ID Num 8 KIR: TRR ID-RECORD KEYTUMOR_TX Char 1 KIR: Incidental Tumor found at time of TransplantTUMOR_TY Num 8 KIR: If yes, specify tumor typeTUMOR_TY_OSTX Char 50 KIR: Tumor type other specifyTXFER_DT Num 8 MMDDYY10. KIR: Transfer Date


TX_DT1_L Num 8 MMDDYY10. TCR_KI: Previous Transplant DateTX_DT2_L Num 8 MMDDYY10. TCR_KI: Previous Transplant DateTX_DT3_L Num 8 MMDDYY10. TCR_KI: Previous Transplant DateTX_FAIL1_L Num 8 MMDDYY10. TCR_KI: Previous Transplant Graft Fail DateTX_FAIL2_L Num 8 MMDDYY10. TCR_KI: Previous Transplant Graft Fail DateTX_FAIL3_L Num 8 MMDDYY10. TCR_KI: Previous Transplant Graft Fail DateTYMETHC1 Num 8 HLA_TYMT. DHS: Typing Method Class ITYMETHC2 Num 8 HLA_TYMT. DHS: Typing Method Class IITYMETHC1I Char 50 RHS: Typing Method Class I Other/SpecifyTYMETHC2I Char 50 RHS: Typing Method Class II Other/SpecifyUNOSGFDT Num 8 MMDDYY10. KIR: Date of Graft FailureUNSANGR Num 8 TCR_KI: Angina/Coronary Artery DiseaseURINE24 Char 1 $YNUNK. KIR: Kidney Produced > 40ml of Urine in First 24 HoursURLCMP Char 1 $YNUNK. KIR: Urological ComplicationsUSRDS_ID Num 8 BEST22. USRDS_IDVAD Num 8 VAD_TAH. TCR_KI: VAD/TAHVAD_OTHR Char 50 TCR_KI: VAD/TAH Other SpecifyVALCYTE Char 1 KIR: Valcyte (valganciclovir)VENT Char 5 $T_F. TCR_KI: VentilatorWARMTIME Num 8 KIR: Warm Ishcemic Time KI RightWARMTIMEI Char 1 KIR: Total Warm Ischemic Time/Status KI RightWARMTIMEL Num 8 KIR: Warm Ishcemic Time KI LeftWARMTIMELI Char 1 KIR: Total Warm Ischemic Time/Status KI LeftWGT Num 8 KIR: Weight in KilogramsWGTST Char 1 $TRIND. KIR: Weight in Kilograms/StatusXFERDAT Num 8 MMDDYY10. KIR: Date of Admission to Transferring HospitalXFERPRIO Char 1 $YNUNK. KIR: Was Patient Transferred from Another Hospital Prior to TransplantXMDONE Char 1 $YNUNK. RHS: Crossmatch Done



TXFUUNOS: Kidney Transplant Followup-UNOSIncludes transplant followup reports collected by UNOS since 1988.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentUSRDS_ID Num 8 BEST22. BEST22. USRDS_IDACTREJ Char 1 $YNUFMT. KIF: Acute RejectionACYCLO Char 1 $YNYNFMT. KIF: Acyclovir (Zovirax)BIO_VAC_DONE Char 1 KIF: Biologicals/VaccinesBOTH1TXT Char 50 KIF: Other1BOTH2TXT Char 50 KIF: Other2CHRNREJ Char 1 $YNUFMT. KIF: Chronic RejectionCMV Char 2 $SCREEN. KIF: {CMV pre-UNet data}CMVDNA Char 2 $SCREEN. KIF: CMV DNACMVIGG Char 2 $SCREEN. KIF: CMV IgGCMVIGM Char 2 $SCREEN. KIF: CMV IgMCOD Char 4 $CODFMT. KIF: Cause of DeathCODTXT Char 50 KIF: Cause of Death/SpecifyCREAT Num 8 KIF: Most Recent Serum CreatinineCREATIND Char 1 $TRIND. KIF: Most Recent Serum Creatinine/StatusCTR_TY Char 3 KIF: Transplant Center TypeCYTOGAM Char 1 $YNYNFMT. KIF: Cytogam (CMV)DCDATE Num 8 MMDDYY10. KIF: Transplant Discharge DateDENOVLYM Char 1 KIF: De Novo LymphoproliferativeDENOVTUM Char 1 $YNUFMT. KIF: De Novo Solid TumorDIALCTR Char 60 KIF: Dialysis ProviderDIALDT Num 8 MMDDYY10. KIF: Date Maintenance Dialysis ResumedDIALYSIS Num 8 DIA_MNT. KIF: Dialysis Since Last Follow-UpDONID Char 7 KIF: UNOS Donor ID #DONREL Char 1 $YNUFMT. KIF: Donor RelatedDTYPE Char 3 KIF: Donor TypeEMPSTAT Char 5 $USTAT. KIF: Employment StatusEPSTDNA Char 2 $SCREEN. KIF: Epstein Barr Virus DNAEPSTIGG Char 2 $SCREEN. KIF: Epstein Barr Virus IgGEPSTIGM Char 2 $SCREEN. KIF: Epstein Barr Virus IgMFLUVACC Char 1 $YNUFMT. KIF: Flu Vaccine (Influenza Virus)FOLCD Char 3 $FOLFMT. KIF: Follow up codeFOLCTRCD Char 4 KIF: Follow-up Center CodeFOLCTRTY Char 3 KIF: Follow-up TypeFUCARCIT Char 20 KIF: Follow-up Care Provided By:CityFUCAREBY Num 8 CAREPROV. KIF: Follow-up Care Provided ByFUCARSTA Char 2 $STATE. KIF: Follow-up Care Provided By:StateFUCARTXT Char 50 KIF: Follow-up Care Provided By/SpecifyFUCARZIP Char 10 KIF: Follow-up Care Provided By:Zip CodeFUDATE Num 8 MMDDYY10. KIF: This Fol-up Date — txFUKIFAIL Num 8 MMDDYY10. KIF: This Fol-up Date — graft failureFUNCSTAT Num 8 FUNCSTAT. KIF: Functional StatusG A M I M M Char 1 $YNYNFMT. KIF: Gamimune N 10%GAMMA Char 1 $YNYNFMT. KIF: Gammagard SDGANCYCLO Char 1 $YNUFMT. KIF: Ganciclovir (Cytovene)GF1 Num 8 C_GRF_FU. KIF: Primary Cause of Graft FailureGFAIL Char 1 $YNYNFMT. KIF: Graft StatusGFAILDAT Num 8 MMDDYY10. KIF: Date of FailureGRFTEXT Char 50 KIF: Cause of Graft Failure/SpecifyGRFTHROM Char 1 $YNUFMT. KIF: Graft ThrombosisHBCORE Char 2 $SCREEN. KIF: Hepatitis B Core AntibodyHBIG Char 1 $YNUFMT. KIF: HBIG (Hepatitis B Immune Globulin)HBSAG Char 2 $SCREEN. KIF: Hepatitis B Surface AntigenHBVDNA Char 2 $SCREEN. KIF: Hepatitis B HBV DNAHCRIBA Char 2 $SCREEN. KIF: Hepatitis C RIBA TestHCSCRN Char 2 $SCREEN. KIF: Hepatitis C Antibody ScreenHCVRNA Char 2 $SCREEN. KIF: Hepatitis C HCV RNAHGT Num 8 KIF: Height in CentimetersHGTIND Char 1 $TRIND. KIF: Height in Centimeters/StatusHIVCNF Char 2 $SCREEN. KIF: HIV ConfirmationHIVSCRN Char 2 $SCREEN. KIF: HIV ScreeningHOSP Char 1 $YNUFMT. KIF: Hospitalizations during Follow-Up PeriodHOSPSTUS Char 1 $TRIND. KIF: Number of Tx Related Hospitalizations/Status


TXFUUNOS: Kidney Transplant Followup-UNOS (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntICU Char 1 $YNUFMT. KIF: Was Patient in ICUIMANTI1 Num 8 T _ F. KIF: Anti-RejectionIMANTI2 Num 8 T _ F. KIF: Anti-RejectionIMNTCUR1 Num 8 T _ F. KIF: CurrentIMNTCUR2 Num 8 T _ F. KIF: CurrentIMNTPRE1 Num 8 T _ F. KIF: PreviousIMNTPRE2 Num 8 T _ F. KIF: PreviousIMOTHTX1 Char 50 KIF: Other Medication 1IMOTHTX2 Char 50 KIF: Other Medication 2IM_DISC Char 1 $YNUFMT. KIF: Did physician discont. all maintenance immunosuppressive medsINFECT Char 1 $YNUFMT. KIF: InfectionLYMPH Char 1 $YNYNFMT. KIF: Total Lymphoid Irradiat ion (TLI)MAINTMED Char 1 $YNUFMT. KIF: Any Meds Given during follow-up for Maintenance or Anti-Rejection?MALIG Char 1 $YNUFMT. KIF: Postransplant MalignancyMNTDPROV Char 10 KIF: Dialysis Provider NumberNOCIM Num 8 T _ F. KIF: Immunosuppression MedicationNOCOTHMD Num 8 T _ F. KIF: Other MedicationNOCPAY Num 8 T _ F. KIF: Patient Unable to Afford Immunosuppressive Meds.NOCTHERA Num 8 T _ F. KIF: Other Therapeutic RegimenNOCTXT1 Char 50 KIF: Other Medication/SpecifyNOCTXT2 Char 50 KIF: Other Therapeutic Regimen/SpecifyNONCMPL Char 1 $YNUFMT. KIF: Patient Noncompliant During this Follow-Up PeriodNUM_HOSP Num 8 KIF: Number of Tx Related HospitalizationsORGTYP Char 4 $ORG_TYP. KIF: Organ TypeOTHGF Char 50 KIF: Other Contributory Cause of Graft FailurePASTAT Char 1 $PXSTII. KIF: Patient StatusPASTATDT Num 8 MMDDYY10. KIF: Patient Status/DatePHOTO Char 1 $YNYNFMT. KIF: PhotopheresisPLASMA Char 1 $YNUFMT. KIF: PlasmapheresisPRETXTUM Char 1 $YNUFMT. KIF: Recurrence of Pre-Tx TumorPROVUSRD Num 8 BEST. USRDS Assigned Facility IDPXRESRH Char 1 $YNYNFMT. KIF: Did Px Participate in Research for Immuno MedsPXRESTXT Char 50 KIF: if yes, specify (Research for Immuno Meds)PX_ID Num 8 KIF: PX ID-RECORD KEYRDOB Num 8 MMDDYY10. KIF: Date of BirthRECDIS Char 1 $YNUFMT. KIF: Recurrent Disease: non-HepatitisREJTRT Char 1 $YNUFMT. KIF: Patient Treated For RejectionREJTRTNM Num 8 KIF: Number of Rejection EventsREJTRTST Char 1 $TRIND. KIF: Number of Rejection Events/StatusRSEX Char 1 KIF: GenderSEROLOGY Char 1 KIF: Serologies During Follow-up PeriodSTAT119 Char 1 KIF: StatusSURGUPIN Char 12 KIF: Physician UPIN#TDATE Num 8 MMDDYY10. KIF: Tx DateTRRFU_ID Num 8 KIF: KIF: RECORD KEYTRR_ID Num 8 KIF: TRR ID-RECORD KEYURLCOMP Char 1 $YNUFMT. KIF: Urological Complicat ionsUSRDS_ID Num 8 BEST22. USRDS_IDVALCYTE Char 1 KIF: Valcyte (valganciclovir)WGT Num 8 KIF: Weight in KilogramsWGTIND Char 1 $TRIND. KIF: Weight in Kilograms/Status


TXIFUNOS: Transplant Followup with Immunosuppression-UNOSIncludes after transplant time (i.e. followup time) and the recipients' immunosuppressin drug using information collected by UNOS. Atransplant followup patient may have multiple records in a followup event. Includes transplant followup reports collected by UNOS.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LengthLengthLengthLengthLength FormatFormatFormatFormatFormat CommentCommentCommentCommentCommentUSRDS_ID Num 8 BEST22. USRDS assigned unique identifierRX_ATREJ Num 8 T _ F. Anti rejection?RX_CD Num 8 DRUG. Drug codeRXMNTPRE Num 8 T _ F. PreviousRXMNTCUR Num 8 T _ F. CurrentTRRFU_ID Num 8 Link key to TXFUUNOSTRRFIMID Num 8 Record key


TXIRUNOS: Transplant with Immunosuppression at Registration-UNOSIncludes transplant recipients and immunosuppression drug(s) using information collected by UNOS. Transplant recipients may have multiplerecords for a transplant event.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS assigned unique identifierRX_ATREJ Num 8 T_F. Anti rejectionRX_MAINT Num 1 T_F. MaintenanceRX_IND Num 1 T_F. InductionRX_CD Num 8 DRUG. Drug codeRX_DAYS Num 8 Number of daysRX_DAYSI Char 1 $TRIND. Number of days indicatorTRR_ID Num 8 Link key with TXUNOS and TXFUUNOSTRRIM_ID Num 8 Record key


TRANSPLANT CD-2


TXFUHCFA: Kidney Transplant Follow-upsIncludes transplant followup reports collected by CMS prior to 1994. Reports are completed at discharge, six months, each year post-transplant,and graft failure.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. DS assigned patient IDALG Char 1 $YNUFMT. 23D Antithymocyte globulin (ALG)ALIVE Char 1 $YNUFMT. 10 Is patient alive?CLINREJ Char 1 $YNUFMT. 24 Episodes of clinical rejectionCURCRETN Num 8 5.1 25B Most recent creat readingCYSPORIN Char 1 $YNUFMT. 23G Cyclosporine usedCYTOXAN Char 1 $YNUFMT. 23B Cytoxan usedDIALYSIS Char 1 $YNUFMT. 16 Dialysis performed?DIED Num 8 DATE9. 11 Death dateFUDATE Num 8 DATE9. /UNOS Follow-up date USRDS computedFUNUM Num 8 FUNUM. 09:Follow-up numberGFAIL Char 1 $YNUFMT. 17 Did graft fail?GFAILDAT Num 8 DATE9. 18 Graft failure dateGFDIAL Char 1 $YNUFMT. 19B Failure: Retnd to dialysisGFRES1 Char 3 $GFAIL. 20A Graft Fail reason, primaryGFRES2 Char 3 $GFAIL. 20B Graft Fail reason, secondaryGFTX Char 1 $YNUFMT. 19A Failure: TransplantGREM Char 1 $YNUFMT. 21 Graft removedGREMDATE Num 8 DATE9. 22 Date graft removedIMURAN Char 1 $YNUFMT. 23A Imuran (azathioprine) usedIRRAD Char 1 $YNUFMT. 23E Irradiation usedLTFU Char 1 $YNUFMT. 12 Lost to follow-upLTFUDATE Num 8 DATE9. 13 Lost to follow-up: date last seenMAXCRETN Num 8 5.1 25A Maximum creat readingNETWORK Char 2 $NETFMT. ESRD Network number (pre 1994 updateNPRVUSRD Num 8 Prov no.if transferred - USRDS assigOTHGRFFL Char 1 $YNUFMT. 19C Failure: OtherOTH_IMMU Char 25 23H Other immunosuppressive therapyPREDNSNE Char 1 $YNUFMT. 23C Prednisone usedREHAB Char 2 $REHAB. 14 Rehabilitation codeREMARKS Char 1 $YNUFMT. 26 Remarks on form?SOLUMED Char 1 $YNUFMT. 23F Solumedrol usedTDATE Num 8 DATE9. 08 Transplant DateTFERDATE Num 8 DATE9. 15C Patient transferred dateTPRVUSRD Num 8 nsplant Provider no. - USRDS assignedTRANSFER Char 1 $YNUFMT. 15 Patient transferred?


TXHCFA: Kidney Transplant-HCFAIncludes transplant followup reports collected by CMS prior to 1994. Reports are completed at discharge, six months, each year post-transplant,and graft failure.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS assigned patient IDBUN Num 8 3 PM819428 Most Rec BUNCOLDTIME Num 8 5 PM819430 Cold TimeCREATDEC Char 1 PM819419 Creat declineCULDATE Num 8 DATE9. PM768016a Culture DateCYCLOPH Char 1 $YNUFMT. PM819432a Donor pretreat CyclophosDA1 Char 4 PM7694 HLA Locus A1 DonorDA2 Char 4 PM7694 HLA Locus A2 DonorDAGE Num 8 BEST22. PM7694 Donor ageDB1 Char 4 PM7694 HLA Locus B1 DonorDB2 Char 4 PM7694 HLA Locus B2 DonorDBLOODTY Char 1 $PMBLD. PM7694 Donor blood typeDC1 Char 4 PM7694 HLA Locus C1 DonorDC2 Char 4 PM7694 HLA Locus C2 DonorDCANCER Char 1 $DCANC. PM819426 Donor cancer at time of harvestDCMV Char 1 $YNUFMT. PM819425 Donor CMV antibodyDDR1 Char 4 PM819427 HLA Locus DR1 DonorDDR2 Char 4 PM819427 HLA Locus DR2 DonorDETHNIC Char 1 $PMETHN. PM819424b Ethnicity DonorDHAPLO Char 1 $YNUFMT. PM819427 HLA Haplotyped DonorDHBS Char 1 $YNUFMT. PM819425 Donor HBsAg positiveDINFECT Char 1 $DINFEC. PM819425 Donor infections at time of harDIURETIC Char 1 $YNUFMT. PM819432a Donor pretreat DiureticsDMB1 Char 4 PM819427 HLA Locus MB1 DonorDMB2 Char 4 PM819427 HLA Locus MB2 DonorDONREL_P Char 1 $DTYPEDT. PM768010 Donor Type DetailDRACE Char 1 $RACEFMT. PM7694 Donor raceDSEX Char 1 $SEXFMT. PM7694 Donor sexDTYPE Char 1 $DON_P. USRDS recoded DTYPEDTYPE_P Char 1 $DON_P. PM819420a Donor TypeFROZBLOD Char 1 PM819417b Frozen blood only usedHEPARIN Char 1 $YNUFMT. PM819432a Donor pretreat HeparinLASIX Char 1 $YNUFMT. PM819432a Donor pretreat LasixLCRESULT Char 1 $LCRES. PM768016 Lymphocyte Culture ResultsLOCAL_P Char 1 PM819420b Local or shared if cadLRHAPLO Char 1 $LHAP. PM819420c Haplo match if liv donMANNITOL Char 1 $YNUFMT. PM819432a Donor pretreat MannitolMET_CYC Char 1 $YNUFMT. PM819432a Donor pretreat Methyl & CyclMLC1WAY Char 1 $MLC. PM819411a MLC one-wayMLC2WAY Char 1 $MLC. PM819411a MLC two-wayNEPDATE Num 8 DATE9. PM819412b Nephrectomy dateNEPHREC Char 1 $NEPH. PM819412a NephrectomyNEPHRREA Char 5 $NEPHREA. PM819413 Nephrectomy reasonNO_MLC Char 1 PM819411a MLC not doneOTHERPRE Char 1 $YNUFMT. PM819432a Other donor pretreatmentPOSEVER Char 1 $YNUFMT. PM819415 HBsAg positive everPOSNOW Char 1 $YNUFMT. PM819415 HBsAg positive nowPRA Num 8 4 PM819410 PRA at transplantPRAHIGH Num 8 4 PM819410 PRA highPREG Num 8 3 PM8194 4b Pregnancy NumberPREVTX Num 8 BEST22. PM7681 Number of previous txPREXFUS Char 1 PM819417a Pre-tx blood transfusionsPRIOHARV Char 1 $PRIOR. PM819432b Time prior to harvestPROVUSRD Num 8 7 USRDS assigned Facility IDPULSTIME Num 8 5 PM819431 Pulsatile Perf TimeRA1 Char 4 PM7694 HLA Locus A1 RecipRA2 Char 4 PM7694 HLA Locus A2 RecipRACE Char 1 $RACEFMT. PM7694 Recip raceRB1 Char 4 PM7694 HLA Locus B1 RecipRB2 Char 4 PM7694 HLA Locus B2 RecipRBLOODTY Char 1 $PMBLD. PM7694 Recip. blood typeRC1 Char 4 PM7694 HLA Locus C1 Recip


TXHCFA: Kidney Transplant-HCFA (continued)VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntRC2 Char 4 PM7694 HLA Locus C2 RecipRCMV Char 1 $YNUFMT. PM819416 Recip. CMV antibody presentRDR1 Char 4 PM819411b HLA Locus DR1 RecipRDR2 Char 4 PM819411b HLA Locus DR2 RecipRES1WAY Num 8 5 PM819411a Rel. Response one-wayRES2WAY Num 8 5 PM819411a Rel. Response two-wayRETHNIC Char 1 $PMETHN. PM8194 5b Ethnicity RecipRFI Char 1 $RFIFMT. Record Format, Pre or Post 1981RHAPLO Char 1 $YNUFMT. PM819411b HLA Haplotyped RecipRHBSAG Char 1 $YNUFMT. PM819415 Antibody to HBsAgRMB1 Char 4 PM819411b HLA Locus MB1 RecipRMB2 Char 4 PM819411b HLA Locus MB2 RecipSERCREAT Num 8 5 PM819428 Most Rec Ser CreatSPLDATE Num 8 DATE9. PM819414b Spenectomy dateSPLENECT Char 1 $YNUFMT. PM819414a SplenectomySTEROIDS Char 1 $YNUFMT. PM819432a Donor pretreat SteroidsSTIMIND1 Num 8 5 PM819411a Stim. Index one-waySTIMIND2 Num 8 5 PM819411a Stim. Index two-wayTDATE Num 8 DATE9. PM7694 Transplant DateTSTATUS Char 1 $TSTAT. PM8194 6b Transplant StatusWARMTIME Num 8 5 PM819429 Warm Ischemia TimeXFUDATE Num 8 DATE9. PM819417c Last transfusion dateXFUSNUMB Num 8 4 PM819417a Number of pre-tx blood transXFUSXPLT Char 1 PM819418 Transfusion at TxXMATCH Char 1 PM768015 Cross Match ResultsYEAR Num 8

HOSPITAL CD-1



HOSP1: Hospitalization 1Hospitalization inpatient data from the USRDS database are a subset of the data in the Institutional Claims file. No payment or cost variablesare included on this CD. This CD is for researchers who need data on hospital inpatient stays and on diagnoses and procedures for those staysbut who do not need payment data.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST8. USRDS patient ID numberCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Service through dateDIALSESS Num 8 3 Dialysis sessionsDISCSTAT Char 2 $DRG_DES. Status and destination at DischargeDRG_CD Char 3 $DRGLAB. DRG CodeHCFASAF Char 1 $HCFASFI. HCFA SAF source of this billHSDIAG1 Char 5 $ICD9D. Diagnosis code 1HSDIAG2 Char 5 $ICD9D. Diagnosis code 2HSDIAG3 Char 5 $ICD9D. Diagnosis code 3HSDIAG4 Char 5 $ICD9D. Diagnosis code 4HSDIAG5 Char 5 $ICD9D. Diagnosis code 5HSDIAG6 Char 5 $ICD9D. Diagnosis code 6HSDIAG7 Char 5 $ICD9D. Diagnosis code 7HSDIAG8 Char 5 $ICD9D. Diagnosis code 8HSDIAG9 Char 5 $ICD9D. Diagnosis code 9HSDIAG10 Char 5 $ICD9D. Diagnosis code 10HSSURG1 Char 5 $ICD9P. Surgical procedure code 1HSSURG2 Char 5 $ICD9P. Surgical procedure code 2HSSURG3 Char 5 $ICD9P. Surgical procedure code 3HSSURG4 Char 5 $ICD9P. Surgical procedure code 4HSSURG5 Char 5 $ICD9P. Surgical procedure code 5HSSURG6 Char 5 $ICD9P. Surgical procedure code 6HSSURG7 Char 5 $ICD9P. Surgical procedure code 7HSSURG8 Char 5 $ICD9P. Surgical procedure code 8HSSURG9 Char 5 $ICD9P. Surgical procedure code 9HSSURG10 Char 5 $ICD9P. Surgical procedure code 10MEDCODE Char 1 $MEDCODE. Version of ICD9 codingNUMDIAG Num 8 Number of diagnosis codes recordedNUMSURG Num 8 Number of surgical codes recordedPRIMDIAG Char 1 $YESNO. First diagnosis is primaryRXCAT Char 1 $RXCATIC. Dialysis treatment modality


HOSPITAL CD-2


HOSP2: Hospitalization 2Hospitalization inpatient data from the USRDS database are a subset of the data in the Institutional Claims file. No payment or cost variablesare included on this CD. This CD is for researchers who need data on hospital inpatient stays and on diagnoses and procedures for those staysbut who do not need payment data.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST8. USRDS patient ID numberCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Service through dateDIALSESS Num 8 3 Dialysis sessionsDISCSTAT Char 2 $DRG_DES. Status and destination at DischargeDRG_CD Char 3 $DRGLAB. DRG CodeHCFASAF Char 1 $HCFASFI. HCFA SAF source of this billHSDIAG1 Char 5 $ICD9D. Diagnosis code 1HSDIAG2 Char 5 $ICD9D. Diagnosis code 2HSDIAG3 Char 5 $ICD9D. Diagnosis code 3HSDIAG4 Char 5 $ICD9D. Diagnosis code 4HSDIAG5 Char 5 $ICD9D. Diagnosis code 5HSDIAG6 Char 5 $ICD9D. Diagnosis code 6HSDIAG7 Char 5 $ICD9D. Diagnosis code 7HSDIAG8 Char 5 $ICD9D. Diagnosis code 8HSDIAG9 Char 5 $ICD9D. Diagnosis code 9HSDIAG10 Char 5 $ICD9D. Diagnosis code 10HSSURG1 Char 5 $ICD9P. Surgical procedure code 1HSSURG2 Char 5 $ICD9P. Surgical procedure code 2HSSURG3 Char 5 $ICD9P. Surgical procedure code 3HSSURG4 Char 5 $ICD9P. Surgical procedure code 4HSSURG5 Char 5 $ICD9P. Surgical procedure code 5HSSURG6 Char 5 $ICD9P. Surgical procedure code 6HSSURG7 Char 5 $ICD9P. Surgical procedure code 7HSSURG8 Char 5 $ICD9P. Surgical procedure code 8HSSURG9 Char 5 $ICD9P. Surgical procedure code 9HSSURG10 Char 5 $ICD9P. Surgical procedure code 10MEDCODE Char 1 $MEDCODE. Version of ICD9 codingNUMDIAG Num 8 Number of diagnosis codes recordedNUMSURG Num 8 Number of surgical codes recordedPRIMDIAG Char 1 $YESNO. First diagnosis is primaryRXCAT Char 1 $RXCATIC. Dialysis treatment modality

DMMS CLAIMS CD-1


HOSP: HospitalizationHospitalization inpatient data from the USRDS database are a subset of the data in the Institutional Claims file. No payment or cost variablesare included on this CD. This CD is for researchers who need data on hospital inpatient stays and on diagnoses and procedures for those staysbut who do not need payment data.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST8. USRDS patient ID numberCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Service through dateDIALSESS Num 8 3 Dialysis sessionsDISCSTAT Char 2 $DRG_DES. Status and destination at DischargeDRG_CD Char 3 $DRGLAB. DRG CodeHCFASAF Char 1 $HCFASFI. HCFA SAF source of this billHSDIAG1 Char 5 $ICD9D. Diagnosis code 1HSDIAG2 Char 5 $ICD9D. Diagnosis code 2HSDIAG3 Char 5 $ICD9D. Diagnosis code 3HSDIAG4 Char 5 $ICD9D. Diagnosis code 4HSDIAG5 Char 5 $ICD9D. Diagnosis code 5HSDIAG6 Char 5 $ICD9D. Diagnosis code 6HSDIAG7 Char 5 $ICD9D. Diagnosis code 7HSDIAG8 Char 5 $ICD9D. Diagnosis code 8HSDIAG9 Char 5 $ICD9D. Diagnosis code 9HSDIAG10 Char 5 $ICD9D. Diagnosis code 10HSSURG1 Char 5 $ICD9P. Surgical procedure code 1HSSURG2 Char 5 $ICD9P. Surgical procedure code 2HSSURG3 Char 5 $ICD9P. Surgical procedure code 3HSSURG4 Char 5 $ICD9P. Surgical procedure code 4HSSURG5 Char 5 $ICD9P. Surgical procedure code 5HSSURG6 Char 5 $ICD9P. Surgical procedure code 6HSSURG7 Char 5 $ICD9P. Surgical procedure code 7HSSURG8 Char 5 $ICD9P. Surgical procedure code 8HSSURG9 Char 5 $ICD9P. Surgical procedure code 9HSSURG10 Char 5 $ICD9P. Surgical procedure code 10MEDCODE Char 1 $MEDCODE. Version of ICD9 codingNUMDIAG Num 8 Number of diagnosis codes recordedNUMSURG Num 8 Number of surgical codes recordedPRIMDIAG Char 1 $YESNO. First diagnosis is primaryRXCAT Char 1 $RXCATIC. Dialysis treatment modalitySEQ_KEYC Char 2 Sequence # to ensure unique key


INCLAIM: Institutional ClaimsConsists of all Part A Claims

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST8. USRDS Assigned Patient IDCLM_AMT Num 8 8 Medicare paymentsCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Service through dateCLM_TOT Num 8 8 Total chargesCVR_DCNT Num 8 BEST22. Medicare covered days-use with PER_DIEMDIALCASH Num 8 8 Claim amounts for dialysisDIALCRC Char 1 $DIALCRC. Claim related condition for dialysisDIALREVC Char 2 $DIALRVC. Revenue center code for dialysisDIALSESS Num 8 3 dialysis sessions reportedDISCSTAT Char 2 $DRG_DES. Discharge statusDRG_CD Char 3 $DRGLAB. Diagnosis Related Group codeEPOADMIN Num 8 4 EPO administrationsEPOCASH Num 8 8 Claim amounts for EPOEPODOSE Num 8 BEST7. Epo doseHCFASAF Char 1 $HCFASAF. HCFA SAF source of this billHCRIT Num 8 4 HematocritPER_DIEM Num 8 BEST22. Per diem pass through amountPRM_PYR Char 1 $PRPAYR. Primary payer for this billPROVUSRD Num 8 7 USRDS provider ID numberRXCAT Char 1 $RXCATIC. Dialysis treatment modalitySEQ_KEYC Char 2 $2 Sequence # to ensure unique key

DMMS CLAIMS CD-2


INDETAIL: Institutional Claim DetailsContains details like DRG, diagnoses, and procedures. For many analyses, the Claims Details file will not be needed.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST8. USRDS Assigned Patient IDCDTYPE Char 1 $CDTYPEI. Code typeCLM_FROM Num 8 MMDDYY10. claim from dateCODE Char 5 Code valueHCFASAF Char 1 $HCFASAF. HCFASAFHCPCS Char 5 hcfa common procedure coding system codeREV_CH Num 8 BEST22. Total chargesREVPMT Num 8 Rev Cntr Paymant Amout, Effective ISEQ_KEYC Char 2 SEQ_KEYCUNITS Num 8 BEST22. UnitsURR_CD Char 8 $URRFMT.

DMMS CLAIMS CD-3



PSCLAIM1: Physician/Supplier claimsAll the physician/supplier claims are Medicare Part B. There is one type of file with one record for each claim line-item. The files includes dollaramount, dates of service, diagnosis and procedure codes, type, and place of service.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS patient ID numberALOWCH Num 8 Allowed chargesCDTYPE Char 1 $CDTYPEP. Line Item TypeCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Thru date of serviceDIAG Char 5 5 ICD-9-Cm Diagnostic codeHCFASAF Char 1 $HCFASFP. HCFA SAF source of this billHCPCS Char 5 5 HCPCS CodeHCSRVC Char 1 $HCFASVC. HCFA Service CodePLCSRV Char 2 $PLACESV. Place of ServicePMTAMT Num 8 Claim Payment AmountPYRCOD Char 1 $PRPAYR. Primary Payer codeSBMTCH Num 8 Submitted ChargesSPCLTY Char 2 $PROVSP. Provider Specialty CodeSRVCCT Num 8 Total Number Line Item Services

DMMS CLAIMS CD-4


PSCLAIM 2All the physician/supplier claims are Medicare Part B. There is one type of file with one record for each claim line-item.The files includes dollar amount, dates of service, diagnosis and procedure codes, type, and place of service.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST8. USRDS Assigned Patient IDALOWCH Num 8 Allowed chargesCDTYPE Char 1 $HCCDTYP. Line Item TypeCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Thru date of serviceDIAG Char 5 5 ICD-9-cm Diagnostic codeHCFASAF Char 1 $HCFASAF. HCFA SAF source of this billHCPCS Char 5 5 HCPCS codeHCSRVC Char 1 $HCFASVC. HCFA service codePLCSRV Char 2 $PLACESV. Place of ServicePMTAMT Num 8 Claim Payment AmountPYRCOD Char 1 $PRPAYR. Primary Payer codeSBMTCH Num 8 Submitted ChargesSPCLTY Char 2 $PROVSP. Provider Specalty CodeSRVCCT Num 8 Total Number Line Item Services

CASE MIX ADEQUACY CD


HOSP: HospitalizationHospitalization inpatient data from the USRDS database are a subset of the data in the Institutional Claims file. No payment or cost variablesare included on this CD. This CD is for researchers who need data on hospital inpatient stays and on diagnoses and procedures for those staysbut who do not need payment data.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST8. USRDS patient ID numberCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Service through dateDIALSESS Num 8 3 Dialysis sessionsDISCSTAT Char 2 $DRG_DES. Status and destination at DischargeDRG_CD Char 3 $DRGLAB. DRG CodeHCFASAF Char 1 $HCFASFI. HCFA SAF source of this billHSDIAG1 Char 5 $ICD9D. Diagnosis code 1HSDIAG2 Char 5 $ICD9D. Diagnosis code 2HSDIAG3 Char 5 $ICD9D. Diagnosis code 3HSDIAG4 Char 5 $ICD9D. Diagnosis code 4HSDIAG5 Char 5 $ICD9D. Diagnosis code 5HSDIAG6 Char 5 $ICD9D. Diagnosis code 6HSDIAG7 Char 5 $ICD9D. Diagnosis code 7HSDIAG8 Char 5 $ICD9D. Diagnosis code 8HSDIAG9 Char 5 $ICD9D. Diagnosis code 9HSDIAG10 Char 5 $ICD9D. Diagnosis code 10HSSURG1 Char 5 $ICD9P. Surgical procedure code 1HSSURG2 Char 5 $ICD9P. Surgical procedure code 2HSSURG3 Char 5 $ICD9P. Surgical procedure code 3HSSURG4 Char 5 $ICD9P. Surgical procedure code 4HSSURG5 Char 5 $ICD9P. Surgical procedure code 5HSSURG6 Char 5 $ICD9P. Surgical procedure code 6HSSURG7 Char 5 $ICD9P. Surgical procedure code 7HSSURG8 Char 5 $ICD9P. Surgical procedure code 8HSSURG9 Char 5 $ICD9P. Surgical procedure code 9HSSURG10 Char 5 $ICD9P. Surgical procedure code 10MEDCODE Char 1 $MEDCODE. Version of ICD9 codingNUMDIAG Num 8 Number of diagnosis codes recordedNUMSURG Num 8 Number of surgical codes recordedPRIMDIAG Char 1 $YESNO. First diagnosis is primaryRXCAT Char 1 $RXCATIC. Dialysis treatment modalitySEQ_KEYC Char 2 Sequence # to ensure unique key


INCLAIM: Institutional ClaimsConsists of all Part A Claims

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST8. USRDS patient ID numberCLM_AMT Num 8 F8. Medicare paymentsCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Service through dateCLM_TOT Num 8 F8. Total chargesCVR_DCNT Num 8 BEST22. Medicare covered days-use with PER_DIEMDIALCASH Num 8 F8. Claim amounts for dialysisDIALCRC Char 5 $DIALCRC. Claim related condition for dialysisDIALREVC Char 5 $DIALRVC. Revenue center code for dialysisDIALSESS Num 8 F3. dialysis sessions reportedDISCSTAT Char 2 $DRG_DES. Discharge statusDRG_CD Char 3 $DRGLAB. Diagnosis Related Group codeEPOADMIN Num 8 F4. EPO administrationsEPOCASH Num 8 F8. Claim amounts for EPOEPODOSE Num 8 BEST22. Epo doseHCFASAF Char 1 $HCFASAF. HCFA SAF source of this billHCRIT Num 8 F4. HematocritPER_DIEM Num 8 BEST22. Per diem pass through amountPRM_PYR Char 1 $PRPAYR. Primary payer for this billPROVUSRD Num 8 F7. USRDS provider ID numberRXCAT Char 1 $RXCATIC. Dialysis treatment modalitySEQ_KEYC Char 2 2 Sequence # to ensure unique key


INDETAIL: Institutional Claim DetailsContains details like DRG, diagnoses, and procedures. For many analyses, the Claims Details file will not be needed.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST8. USRDS patient ID numberCDTYPE Char 1 $CDTYPEI. Code typeCLM_FROM Num 8 MMDDYY10. claim from dateCODE Char 5 Code valueHCFASAF Char 1 $HCFASAF. HCFASAFHCPCS Char 5 hcfa common procedure coding system codeREV_CH Num 8 BEST22. Total chargesREVPMT Num 8 Rev Cntr Paymant Amout, Effective ISEQ_KEYC Char 2 2 SEQ_KEYCUNITS Num 8 BEST22. UnitsURR_CD Char 8 $URRFMT.


PSCLAIM: Physician/Supplier claimsContains all the physician/supplier claims of the Case Mix patients. There is one type of file with one record for each claim line-item.The files include dollar amounts, dates of service, diagnosis and procedure codes, type, and place of service.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST8. USRDS patient ID numberALOWCH Num 8 Allowed chargesCDTYPE Char 1 $HCCDTYP. Line Item TypeCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Thru date of serviceDIAG Char 5 ICD-9-cm Diagnostic codeHCFASAF Char 1 $HCFASAF. HCFA SAF source of this billHCPCS Char 5 HCPCS codeHCSRVC Char 1 $HCFASVC. HCFA service codePLCSRV Char 2 $PLACESV. Place of ServicePMTAMT Num 8 Claim Payment AmountPYRCOD Char 1 $PRPAYR. Primary Payer codeSBMTCH Num 8 Submitted ChargesSPCLTY Char 2 $PROVSP. Provider Specalty CodeSRVCCT Num 8 Total Number Line Item Services

INSTITUTIONAL DETAIL CLAIMS CD


INC2002: Institutional ClaimsConsists of all Part A Claims of all ESRD patients.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS patient ID numberCLM_AMT Num 8 BEST22. Medicare paymentsCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Service through dateCLM_TOT Num 8 BEST22. Total chargesCVR_DCNT Num 8 BEST22. Medicare covered days-use with PER_DIEMDIALCASH Num 8 BEST22. Claim amounts for dialysisDIALCRC Char 5 $DIALCRC. Claim related condition for dialysisDIALREVC Char 5 $DIALRVC. Revenue center code for dialysisDIALSESS Num 8 BEST22. dialysis sessions reportedDISCSTAT Char 2 $DRG_DES. Discharge statusDRG_CD Char 3 $DRGLAB. Diagnosis Related Group codeEPOADMIN Num 8 BEST22. EPO administrationsEPOCASH Num 8 BEST22. Claim amounts for EPOEPODOSE Num 8 BEST22. Epo doseHCFASAF Char 1 $HCFASAF. HCFA SAF source of this billHCRIT Num 8 BEST22. HematocritPER_DIEM Num 8 BEST22. Per diem pass through amountPRM_PYR Char 1 $PRPAYR. Primary payer for this billPROVUSRD Num 8 BEST. USRDS provider ID numberRXCAT Char 1 $RXCATIC. Dialysis treatment modalitySEQ_KEYC Char 2 Sequence # to ensure unique key


DET2002: Institutional Claims DetailContains details like diagnoses and procedures of all ESRD patients. For many analyses, the Claims Details file will not be needed.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS_IDCDTYPE Char 1 $CDTYPEI.CLM_FROM Num 8 MMDDYY10. Claim from dateCODE Char 5 See documentation for specific detailsHCFASAF Char 1 $HCFASAF. HCFASAFHCPCS Char 5 HCPCS codeREV_CH Num 8 BEST22.REVPMT Num 8 Rev Cntr Paymant Amout, Effective ISEQ_KEYC Char 2 SEQ_KEYCUNITS Num 8 BEST22.URR_CD Char 8 $URRFMT.

PHYSICIAN/SUPPLIER CLAIMS CD


PS2002: Physician/Supplier ClaimsContains all the physician/supplier claims of all ESRD patients. There is one type of file with one record for each claim line-item. The filesinclude dollar amounts, dates of service, diagnosis and procedure codes, types, and places of service.

VVVVVararararariabiabiabiabiablelelelele TTTTTyyyyypppppeeeee LLLLLeeeeengthngthngthngthngth FFFFFooooorrrrrmatmatmatmatmat CCCCCooooommemmemmemmemmentntntntntUSRDS_ID Num 8 BEST22. USRDS patient ID numberALOWCH Num 8 Allowed chargesCDTYPE Char 1 $HCCDTYP. Line Item TypeCLM_FROM Num 8 MMDDYY10. From date of serviceCLM_THRU Num 8 MMDDYY10. Thru date of serviceDIAG Char 5 ICD-9-cm Diagnostic codeHCFASAF Char 1 $HCFASAF. HCFA SAF source of this billHCPCS Char 5 HCPCS codeHCSRVC Char 1 $HCFASVC. HCFA service codePLCSRV Char 2 $PLACESV. Place of ServicePMTAMT Num 8 Claim Payment AmountPYRCOD Char 1 $PRPAYR. Primary Payer codeSBMTCH Num 8 Submitted ChargesSPCLTY Char 2 $PROVSP. Provider Specalty CodeSRVCCT Num 8 Total Number Line Item Services

Data Formatt

ing

210 Data Formattingh


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllACCFMTACCFMTACCFMTACCFMTACCFMT Character ‘ Missing

1 Fistula2 Goretex graft3 Bovine graft4 Temporary Line5 Permanent subclavian catheter6 Other

ACCTYPEACCTYPEACCTYPEACCTYPEACCTYPE Character 1 Right2 Left3 Right and Left4 Neither

ADRINDTADRINDTADRINDTADRINDTADRINDT Character 1 First service date before 19632 First service date and DOD on same day3 No first service date

AGE5YRCAGE5YRCAGE5YRCAGE5YRCAGE5YRC Character ## Total04 0- 409 5- 914 10-1419 15-1924 20-2429 25-2934 30-3439 35-3944 40-4449 45-4954 50-5459 55-5964 60-6469 65-6974 70-7479 75-7984 80-8485 85 plus90 All Age91 Age AdjTT All Age

AGEUNITAGEUNITAGEUNITAGEUNITAGEUNIT Character M MonthsY Years

AGREE6AAGREE6AAGREE6AAGREE6AAGREE6A Character 1 Strongly Agree2 Agree3 Neutral4 Disagree5 Strongly Disagree6 Dont Know

AIDSFMTAIDSFMTAIDSFMTAIDSFMTAIDSFMT Character 1 Yes2 No3 Unknown4 Cant disclose

ALONEALONEALONEALONEALONE Character ‘ Missing1 Yes2 No3 Nursing home, institution4 Homeless


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllANGINAANGINAANGINAANGINAANGINA Numeric 1 No

2 Angina, Unstable3 Angina, Stable4 Angina, Stability Unknown998 Unknown

ANTISEPANTISEPANTISEPANTISEPANTISEP Character ‘ Missing1 Dakins2 Amuchina3 Other hypochlorite8 Other

BANFFBANFFBANFFBANFFBANFF Numeric 1 No2 1A Stage3 1B Stage4 2 Stage5 3 Stage

BIOP_SECBIOP_SECBIOP_SECBIOP_SECBIOP_SEC Numeric 1 No Biopsy Done2 Frozen Left Kidney3 Permanent Left Kidney4 Frozen Right Kidney5 Permanent Right Kidney6 Frozen En-bloc7 Permanent En-bloc

BLOODBLOODBLOODBLOODBLOOD Character 1 O2 A3 B4 AB5 A16 A27 A1B8 A2B998 Unk

CAREPROVCAREPROVCAREPROVCAREPROVCAREPROV Numeric 1 Tx Center2 Non Tx Center Specialty Physician3 Primary Care Physician4 Other Specify

CACACACACATHBYTHBYTHBYTHBYTHBY Character ‘ Missing1 Surgeon2 Nephrologist9 Unknown

CACACACACATHFMTTHFMTTHFMTTHFMTTHFMT Character ‘ Missing01 Tenckhoff, straight02 Tenckhoff, str/with permanent bend tunnel segment03 Tenckhoff, curled04 Tenckhoff, cur/with permanent bend tunnel segment05 Toronto Western06 Toronto West./with permanent bend tunnel segment07 Missouri, straight with permanent bend tunnel segment08 Missouri, curled with permanent bend tunnel segment09 Lifecath, Column-Disc with permanent bend tunnel segment88 Other


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllCACACACACATHREMTHREMTHREMTHREMTHREM Character ‘ Missing

1 Yes

CACACACACATHTECTHTECTHTECTHTECTHTEC Character ‘ Missing1 By surgical dissection2 With peritoneoscopy3 Blind, with trocar or guidewire8 Other9 Unknown

CDTYPECDTYPECDTYPECDTYPECDTYPE Character B Phys/Supp ln itC Claim conditionG DRGH HCPCSI ICD9 diagnosisJ ICD8 diagnosisP ICD9 procedureQ ICD8 procedureR Revenue centerS Discharge statusV Claim value

CDTYPEICDTYPEICDTYPEICDTYPEICDTYPEI Character C Claim conditionI ICD9 diagnosisJ ICD8 diagnosisP ICD9 procedureQ ICD8 procedureR Revenue centerS Discharge statusV Claim value

CDTYPEPCDTYPEPCDTYPEPCDTYPEPCDTYPEP Character B Phys/Supp ln itI ICD9 diagnosis

CELL_TYCELL_TYCELL_TYCELL_TYCELL_TY Numeric 1 T-cell2 B-cell3 Unseparated lymphocytes4 Purified Class I antigen5 Purified Class II antigen6 Purified Class I and II antigen7 Platelets8 Monocytes9 Endothelial cells

CITIZENCITIZENCITIZENCITIZENCITIZEN Numeric 1 U.S. Citizen2 Resident Alien3 Non-resident Alien, Specify Country998 Unknown(for Cadaver Donors and Donor Referrals Only)

CLOTCLOTCLOTCLOTCLOT Character 1 Yes completely clotted2 No not completely clotted


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllCNCRSITECNCRSITECNCRSITECNCRSITECNCRSITE Numeric 1 No

2 Skin-Squamous, Basal Cell3 Skin-Melanoma4 CNS Tumor-Astrocytoma5 CNS Tumor-Glioblastoma Multiforme6 CNS Tumor-Medulloblastoma7 CNS Tumor-Neuroblastoma8 CNS Tumor-Angioblastoma9 CNS Tumor-Meningioma10 CNS Tumor-Intracranial Surgery11 CNS Tumor-Intracranial No Surgery12 CNS Tumor-Other13 Genitourinary-Bladder14 Genitourinary-Uterine Cervix15 Genitourinary-Uterine Body Endometrial16 Genitourinary-Uterine Body Choriocarcinoma17 Genitourinary-Vulva18 Genitourinary-Ovarian19 Genitourinary-Penis, Testicular20 Genitourinary-Prostate21 Genitourinary-Kidney22 Genitourinary-Unknown23 Genitourinary-Esophageal24 Genitourinary-Stomach25 Genitourinary-Small Intestine26 Genitourinary-Colo-Rectal27 Genitourinary-Liver&Biliary Tract28 Genitourinary-Pancreas29 Breast31 Thyroid32 Tongue/Throat33 Larynx34 Lung(include broncial)35 Leukemia/Lymphoma998 Unknown999 Other Specify

CODFMTCODFMTCODFMTCODFMTCODFMT Character 3200 Graft Fail:Prim Failure3201 Graft Fail:Rejection3202 Graft Fail:Technical3203 Graft Fail:Graft Infection3204 Graft Fail:Recurr. Disease3299 Graft Fail: Other,specify3300 Infect:Bacterial Peritonitis3301 Infect:Bacterial Pneumonia3302 Infect:Bacterial Septicemia3303 Infect:Fungal3304 Infect:Mixed,Specify3305 Infect:Opportunistic,specify3306 Infect:Urinary Tract3307 Infect:Viral3308 Infection:AIDS3399 Infect:Other,Specify3400 Cardiovas:Myocardial Infarct3401 Cardiovas:Arterial Embolism3499 Cardiovas:Other, specify3500 Cerebrovas:Stroke3599 Cerebrovas:Other,specify3600 Hemorrhage:Gastrointestinal


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllCODFMT (cont.)CODFMT (cont.)CODFMT (cont.)CODFMT (cont.)CODFMT (cont.) 3601 Hemorrhage:Intraoperative

3699 Hemorrhage:Other,specify3700 Malignancy:Metastatic,specify3701 Malignancy:Primary,specify3702 Malignancy:Post-Tx Lymphoprol.Disorder3799 Malignancy:Other,specify3800 Trauma:Motor Vehicle3899 Trauma:Other,specify3900 Misc.:Diabetes Mellitus3901 Misc.:Inraoperative,(not hemor) specify3902 Misc. Pancreatitis3903 Misc. Renal Failure3904 Misc. Resp.Fail(xcept pneum)3905 Misc. Suicide3906 Non-Compliance3998 Other,specify3999 Unknown

COMPFMTCOMPFMTCOMPFMTCOMPFMTCOMPFMT Character 1 Much better now than one year ago2 Somewhat better now than one year ago3 About the same4 Somewhat worse now than a year ago5 Much worse now than one year ago

CREACREACREACREACREAT_MTT_MTT_MTT_MTT_MT Numeric 1 Isotope2 Measured Standard3 Calculated

CTRCTRCTRCTRCTRYYYYY Character ADR AndorraAFG AfghanistanAGB Antigua and BarbudaAIL AnguillaALB AlbaniaALR AlgeriaAMN ArmeniaAOL AngolaARG ArgentinaARU ArubaASM American SamoaATR AustriaAUS AustraliaAZB AzerbaijanAZO AzoresBBD BarbadosBDS Brunei DarussalamBEL BelgiumBEN BeninBER BermudaBGD BangladeshBHG Bosnia-HercegovinaBHR BahrainBHS BahamasBHT BhutanBIT British Indian Ocean TerritoryBLG BulgariaBOL BoliviaBRA BrazilBUD BurundiBUK Burkina


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllCTRCTRCTRCTRCTRY (cY (cY (cY (cY (cooooont.)nt.)nt.)nt.)nt.) BUR Burma(Myanmar)

BVI British Virgin IslandsBWA BotswanaBYL ByelarusBZE BelizeCAI Canary IslandsCAM CambodiaCAN CanadaCAR Central African RepublicCCI Cocos(keeling) IslandCEI Canton and Enderbury IslandsCGO CongoCHD ChadCHI ChinaCHL ChileCKI Cook IslandsCMR CameroonCMS ComorosCOL ColombiaCRO CroatiaCSR Costa ricaCUB CubaCVD Cape verdeCXI Christmas IslandsCYI Cayman IslandCYP CyprusCZR Czech Republic: TheDJI DjiboutiDMK DemarkDMN DominicaDOR Dominican RepublicECU EcuadorEET EstoniaEGQ Equatorial GuineaEGY EgyptENG EnglandESV El SalvadorETH EthiopiaFGF French GuianaFIN FinlandFJI FijiFKI Falkland Islands(Malvinas)FOI Faroe IslandsFPF French PolynesiaFRA FranceFSA French Southern and AntarcticGAB GabonGDA GrenadaGDP GuadeloupeGEO GeorgiaGER Germany:Federal Republic ofGHA GhanaGIB GibraitarGLD GreenlandGMB Gambia:TheGRC GreeceGTL GuatemalaGUB Guinea-BissauGUM Guam


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllCTRCTRCTRCTRCTRY (cY (cY (cY (cY (cooooont.)nt.)nt.)nt.)nt.) GUN Guinea

GYA GuyanaGZS Gaza StripHKG Hong KongHMI Heard Island and Mcdonald IslandsHON HonurasHTI HaitiHUG HungaryICI Ivory CoastICL IcelandIDN IndonesiaIND IndiaIRE IrelandIRN IranIRQ IraqISR IsraelITL ItalyJMC JamaicaJOR JordanJPN JapanJSA Johnston AtollKEY KenyaKGS KyrgyzstanKIR KiribatiKOR KoreaKPH Kampuchea:DemocraticKUW KuwaitKZK KazakhstanLAD Lao Peoples’Democratic RepublicLAT Latin AmericaLBY LibyaLCT LiechtensteinLEB LebanonLIB LibariaLST LesothoLTN LithuaniaLTV LatviaLUX LuxembourgMAC MacauMCD Macedonia(Skopje)MDG MadegascarMDI Madeira IslandMDV MoldovaMEX MexicoMFM Micronesia:Federated States ofMHI Marshall IslandsMLD MaldivesMLI MaliMNC MonacoMNG MongoliaMOR MoroccoMRT MauritaniaMST MontseratMTA MaltaMTQ MartiniqueMUR MauritiusMWI MalawiMWS Midway IslandsMYS Malaysia


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllCTRCTRCTRCTRCTRY (cY (cY (cY (cY (cooooont.)nt.)nt.)nt.)nt.) MZB Mozambique

NAM MamibiaNAN Netherlands AntillesNCD New CaledoniaNET NetherlandsNFI Norfolk IslandNGA NigeriaNIC NicaraguaNIG NigerNKR North KoreaNOR NorwayNPI Northern Mariana IslandsNPL NepalNRU NauruNUE NiueNZD New ZealandOMN OmanPAL PalauPAN PanamaPER PeruPHI Pitcairn IslandPHL PhillipinesPKT PakistanPLD PolandPNG Papua New GuineaPRO Puerto RicoPRY ParaguayPTL PortugalQAT QatarREN ReunionROM RomaniaRUS RussiaRWD RwandaSAF South AfricaSAM SamoaSAU Saudi ArabiaSCL SeychellesSDN SudanSED SwedenSGP SingaporeSJM Svalbard and Jan Mayen IslandsSKA SlovakiaSKR South KoreaSLI Solomon IslandsSLK SrilankaSLV SloveniaSMO San MarinoSNG SenegalSOM SomaliaSPA SpainSPM St.Pierre and MiquelonSRL Sierra LeoneSRN SurinameSTA Spanish AfricaSTC St.ChristopherSTH St.HelenaSTK St.Kitts and MevisSTL Saint LuciaSTP Sao Tome and Principe


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllCTRCTRCTRCTRCTRY (cY (cY (cY (cY (cooooont.)nt.)nt.)nt.)nt.) SVC Saint Vincent and The Grenadines

SWT SwitzerlandSYA Syrian Arab RepublicSZL SwazilandTCI Turks and Caicos IslandTDT Trinidad and TobagoTGO TogoTHL ThailandTJK TajikistanTKL TokelauTMS TurkmenistanTNS TunisiaTOG TongaTRK TurkeyTVL TuvaluTWN TaiwanTZN Tanzania:United Republic ofUAE United Arab EmiratesUGD UgandaUKA UkraineUKD United KingdomUMI USA Minor Outlying IslandsUNK UnknownURG UruguayUSA United StatesUZB UzbekistanVAC Vatican CityVEN VenezuelaVGI Virgin Islands of the USAVTN Viet NamVUT VanuataYEM Yemen:Republic ofYUG YugoslaiaZAM ZambiaZAR ZaireZIM Zimbabwe

CUFFFMTCUFFFMTCUFFFMTCUFFFMTCUFFFMT Character ‘ Missing1 One deep2 One superficial3 Two cuffs (deep and superficial)9 Unknown

CUFFPLCCUFFPLCCUFFPLCCUFFPLCCUFFPLC Character ‘ Missing1 Midline2 Lateral3 Paramedian (in rectus muscle or fascia)9 Unknown

CWHLACWHLACWHLACWHLACWHLA Numeric 1 12 23 34 45 56 67 78 89 910 10


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllCWHLA (cont.)CWHLA (cont.)CWHLA (cont.)CWHLA (cont.)CWHLA (cont.) 17 17

97 Unknown98 Confirmed Blk99 Not Tested

CYCYCYCYCYCLERCLERCLERCLERCLER Character 1 four times or more2 three times3 twice4 once5 not at all6 I am not on a cycler

C_GRF_FUC_GRF_FUC_GRF_FUC_GRF_FUC_GRF_FU Numeric 2 Acute rejection3 Primary Failure4 Graft Thrombosis5 Infection7 Urological Complications8 Recurrent Disease10 Chronic Rejection999 Other Specify

DCANCDCANCDCANCDCANCDCANC Character 1 Intracranial2 Extracranial3 None

DCRFMTDCRFMTDCRFMTDCRFMTDCRFMT Character ‘ Missing1 Gram pos2 Gram neg, single3 Gram neg, multiple4 Gram pos and neg5 Fungal6 Fungal and bacterial7 No growth8 Other9 Unknown

DEADEADEADEADEATHFMTHFMTHFMTHFMTHFM Character 01 Pericarditis(incl. Cardiac Tamponade)02 Myocardial Infarction, Acute03 Cardiac (Other Than 01 Or 02)04 Cerebrovascular05 Embolism, Air06 Embolism, Pulmonary07 Gi Hemorrhage08 Vascular Access09 Hemorrhage (Other Than 04, 07, Or 08)10 Pulmonary Infection11 Septicemia12 Viral Hepatitis13 Infection (Other Than 10, 11, Or 12)14 Hyperkalemia15 Pancreatitis16 Malignancy17 Withdrawl From Dialysis18 Suicide19 Accidental, Treatment Related (Not 05)20 Accidental, Not Treatment Related21 Unknown Cause22 Other (Specify In Remarks)23 Myocardial Infarction, Acute


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDEADEADEADEADEATHFM (cTHFM (cTHFM (cTHFM (cTHFM (cooooont.)nt.)nt.)nt.)nt.) 24 Hyperkalemia

25 Pericarditis, Incl. Cardiac Tamponade26 Atherosclerotic Heart Disease27 Cardiomyopathy28 Cardiac Arrhythmia29 Cardiac Arrest, Cause Unknown30 Valvular Heart Disease31 Pulmonary Edema Due To Exogenous Fluid35 Pulmonary Embolus36 Cerebro-Vascular Accident Including Intracranial Hemorrhage37 Ischemic Brain Damage/Anoxic Enecephalopathy38 Hemorrhage From Transplant Site39 Hemorrhage From Vascular Access40 Hemorrhage From Dialysis Circuit41 Hemorrhage From Ruptured Vascular Aneurysm42 Hemorrhage From Surgery (Not 38,39 Or 40)43 Other Hemorrhage (Not Codes 38-42,72)44 Mesenteric Infarction/Ischemic Bowel49 Septicemia, Due To Vascular Access50 Septicemia, Due To Peritonitis51 Septicemia, Due To Peripheral Vascular Disease, Gangrene52 Septicemia, Other53 Pulmonary Infection (Bacterial)54 Pulmonary Infection (Fungal))55 Pulmonary Infection (Other)56 Viral Infection, Cmv57 Viral Infection, Other (Not 64 Or 65)58 Tuberculosis59 Aids60 Infection, Other64 Hepatitis B65 Other Viral Hepatitis66 Liver-Drug Toxicity67 Cirrhosis68 Polycystic Liver Disease69 Liver Failure, Cause Unknown Other72 Gastro-Intestinal Hemorrhage73 Pancreatitis74 Fungal Peritonitis75 Perforation Of Peptic Ulcer76 Perforation Of Bowel (Not 75)80 Bone Marrow Depression81 Cachexia82 Malignant Disease, Patient Ever On Immunosuppressive Therapy83 Malignant Disease (Not 82)84 Dementia, Incl. Dialysis Dementia, Alzheimers85 Seizures86 Diabetic Coma, Hyperglycemia, Hypoglycemia87 Chronic Obstructive Lung Disease (Copd)88 Complications Of Surgery89 Air Embolism90 Accident Related To Treatment91 Accident Unrelated To Treatment92 Suicide93 Drug Overdose (Street Drugs)94 Drug Overdose (Not 92 Or 93)98 Other Identified Cause Of Death, Please Specify99 Unknown


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDESCFMTDESCFMTDESCFMTDESCFMTDESCFMT Character 1 RENAL RECOVERY

2 DIED3 CURRENT (12/90)4 LOST TO FOLLOWUP

DIABFMTDIABFMTDIABFMTDIABFMTDIABFMT Character ‘ Missing1 IDDM (Juv. Type I)2 NIDDM (Adult Type II)

DIAG Character 128 128 DEEP VEIN THROMBOPHLEBITIS129 129 CARDIAC ARREST, UNEXPLAINED130 130 PERIPHERAL VASCULAR DISORDERS W CC131 131 PERIPHERAL VASCULAR DISORDERS W/O CC132 132 ATHEROSCLEROSIS W CC133 133 ATHEROSCLEROSIS W/O CC134 134 HYPERTENSION135 135 CARDIAC CONGENITAL & VALVULAR DISORDERS AGE >17 W CC136 136 CARDIAC CONGENITAL & VALVULAR DISORDERS AGE >17 W/O CC137 137 CARDIAC CONGENITAL & VALVULAR DISORDERS AGE 0-17138 138 CARDIAC ARRHYTHMIA & CONDUCTION DISORDERS W CC139 139 CARDIAC ARRHYTHMIA & CONDUCTION DISORDERS W/O CC140 140 ANGINA PECTORIS141 141 SYNCOPE & COLLAPSE W CC142 142 SYNCOPE & COLLAPSE W/O CC143 143 CHEST PAIN144 144 OTHER CIRCULATORY SYSTEM DIAGNOSES W CC145 145 OTHER CIRCULATORY SYSTEM DIAGNOSES W/O CC146 146 RECTAL RESECTION W CC147 147 RECTAL RESECTION W/O CC148 148 MAJOR SMALL & LARGE BOWEL PROCEDURES W CC149 149 MAJOR SMALL & LARGE BOWEL PROCEDURES W/O CC150 150 PERITONEAL ADHESIOLYSIS W CC151 151 PERITONEAL ADHESIOLYSIS W/O CC152 152 MINOR SMALL & LARGE BOWEL PROCEDURES W CC153 153 MINOR SMALL & LARGE BOWEL PROCEDURES W/O CC154 154 STOMACH, ESOPHAGEAL & DUODENAL PROCEDURES AGE >17 W CC155 155 STOMACH, ESOPHAGEAL & DUODENAL PROCEDURES AGE >17 W/O CC156 156 STOMACH, ESOPHAGEAL & DUODENAL PROCEDURES AGE 0-17157 157 ANAL & STOMAL PROCEDURES W CC158 158 ANAL & STOMAL PROCEDURES W/O CC159 159 HERNIA PROCEDURES EXCEPT INGUINAL & FEMORAL AGE >17 W CC160 160 HERNIA PROCEDURES EXCEPT INGUINAL & FEMORAL AGE >17 W/O CC161 161 INGUINAL & FEMORAL HERNIA PROCEDURES AGE >17 W CC162 162 INGUINAL & FEMORAL HERNIA PROCEDURES AGE >17 W/O CC163 163 HERNIA PROCEDURES AGE 0-17164 164 APPENDECTOMY W COMPLICATED PRINCIPAL DIAG W CC165 165 APPENDECTOMY W COMPLICATED PRINCIPAL DIAG W/O CC166 166 APPENDECTOMY W/O COMPLICATED PRINCIPAL DIAG W CC167 167 APPENDECTOMY W/O COMPLICATED PRINCIPAL DIAG W/O CC168 168 MOUTH PROCEDURES W CC169 169 MOUTH PROCEDURES W/O CC170 170 OTHER DIGESTIVE SYSTEM O.R. PROCEDURES W CC171 171 OTHER DIGESTIVE SYSTEM O.R. PROCEDURES W/O CC172 172 DIGESTIVE MALIGNANCY W CC173 173 DIGESTIVE MALIGNANCY W/O CC174 174 G.I. HEMORRHAGE W CC175 175 G.I. HEMORRHAGE W/O CC176 176 COMPLICATED PEPTIC ULCER177 177 UNCOMPLICATED PEPTIC ULCER W CC


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDIAG (cont.) 178 178 UNCOMPLICATED PEPTIC ULCER W/O CC

179 179 INFLAMMATORY BOWEL DISEASE180 180 G.I. OBSTRUCTION W CC181 181 G.I. OBSTRUCTION W/O CC182 182 ESOPHAGITIS, GASTROENT & MISC DIGEST DISORDERS AGE >17 W CC183 183 ESOPHAGITIS, GASTROENT & MISC DIGEST DISORDERS AGE >17 W/O184 184 ESOPHAGITIS, GASTROENT & MISC DIGEST DISORDERS AGE 0-17185 185 DENTAL & ORAL DIS EXCEPT EXTRACTIONS & RESTORATIONS, AGE >17186 186 DENTAL & ORAL DIS EXCEPT EXTRACTIONS & RESTORATIONS, AGE 0-17187 187 DENTAL EXTRACTIONS & RESTORATIONS188 188 OTHER DIGESTIVE SYSTEM DIAGNOSES AGE >17 W CC189 189 OTHER DIGESTIVE SYSTEM DIAGNOSES AGE >17 W/O CC190 190 OTHER DIGESTIVE SYSTEM DIAGNOSES AGE 0-17191 191 PANCREAS, LIVER & SHUNT PROCEDURES W CC192 192 PANCREAS, LIVER & SHUNT PROCEDURES W/O CC193 193 BILIARY TRACT PROC EXCEPT ONLY CHOLECYST W OR W/O C.D.E. W CC194 194 BILIARY TRACT PROC EXCEPT ONLY CHOLECYST W OR W/O C.D.E. W/O195 195 CHOLECYSTECTOMY W C.D.E. W CC196 196 CHOLECYSTECTOMY W C.D.E. W/O CC197 197 CHOLECYSTECTOMY EXCEPT BY LAPAROSCOPE W/O C.D.E. W CC198 198 CHOLECYSTECTOMY EXCEPT BY LAPAROSCOPE W/O C.D.E. W/O CC199 199 HEPATOBILIARY DIAGNOSTIC PROCEDURE FOR MALIGNANCY200 200 HEPATOBILIARY DIAGNOSTIC PROCEDURE FOR NON-MALIGNANCY201 201 OTHER HEPATOBILIARY OR PANCREAS O.R. PROCEDURES202 202 CIRRHOSIS & ALCOHOLIC HEPATITIS203 203 MALIGNANCY OF HEPATOBILIARY SYSTEM OR PANCREAS204 204 DISORDERS OF PANCREAS EXCEPT MALIGNANCY205 205 DISORDERS OF LIVER EXCEPT MALIG,CIRR,ALC HEPA W CC206 206 DISORDERS OF LIVER EXCEPT MALIG,CIRR,ALC HEPA W/O CC207 207 DISORDERS OF THE BILIARY TRACT W CC208 208 DISORDERS OF THE BILIARY TRACT W/O CC209 209 MAJOR JOINT & LIMB REATTACHMENT PROCEDURES OF LOWER EXTREM210 210 HIP & FEMUR PROCEDURES EXCEPT MAJOR JOINT AGE >17 W CC211 211 HIP & FEMUR PROCEDURES EXCEPT MAJOR JOINT AGE >17 W/O CC212 212 HIP & FEMUR PROCEDURES EXCEPT MAJOR JOINT AGE 0-17213 213 AMPUTATION FOR MUSCULOSKELETAL SYSTEM & CONN TISSUE DISORDERS214 214 BACK & NECK PROCEDURES W CC215 215 BACK & NECK PROCEDURES W/O CC216 216 BIOPSIES OF MUSCULOSKELETAL SYSTEM & CONNECTIVE TISSUE217 217 WND DEBRID & SKN GRFT EXCEPT HAND,FOR MUSCSKELET & CONN TISS DIS218 218 LOWER EXTREM & HUMER PROC EXCEPT HIP,FOOT,FEMUR AGE >17 W CC219 219 LOWER EXTREM & HUMER PROC EXCEPT HIP,FOOT,FEMUR AGE >17 W/O CC220 220 LOWER EXTREM & HUMER PROC EXCEPT HIP,FOOT,FEMUR AGE 0-17221 221 KNEE PROCEDURES W CC222 222 KNEE PROCEDURES W/O CC223 223 MAJOR SHOULDER/ELBOW PROC, OR OTHER UPPER EXTREMITY PROC W CC224 224 SHOULDER,ELBOW OR FOREARM PROC,EXC MAJOR JOINT PROC, W/O CC225 225 FOOT PROCEDURES226 226 SOFT TISSUE PROCEDURES W CC227 227 SOFT TISSUE PROCEDURES W/O CC228 228 MAJOR THUMB OR JOINT PROC,OR OTH HAND OR WRIST PROC W CC229 229 HAND OR WRIST PROC, EXCEPT MAJOR JOINT PROC, W/O CC230 230 LOCAL EXCISION & REMOVAL OF INT FIX DEVICES OF HIP & FEMUR231 231 LOCAL EXCISION & REMOVAL OF INT FIX DEVICES EXCEPT HIP &

DIAGFMTDIAGFMTDIAGFMTDIAGFMTDIAGFMT Character 1 DIABETES2 HYPERTENSION3 GLOMERULONEPH4 CYSTIC KIDNEY


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDIAGFMT (cont.)DIAGFMT (cont.)DIAGFMT (cont.)DIAGFMT (cont.)DIAGFMT (cont.) 5 OTHER UROLOGIC

6 OTHER CAUSE

DIAINSDPDIAINSDPDIAINSDPDIAINSDPDIAINSDP Numeric 1 No2 Insulin Dependent Diabetes3 Non-insulin Dependent Diabetes4 Diabetes, Dependency Unknown998 Unknown

DIALCRCDIALCRCDIALCRCDIALCRCDIALCRC Character 1 FULL CARE UNIT2 SELF CARE UNIT3 SELF CARE TRAINING4 HOME5 HOME 100 PERCENT6 BACK-UP FACILITY

DIALRDIALRDIALRDIALRDIALRVVVVVCCCCC Character 00 INPATIENT01 INP HEMO02 INP PERI NONCAPD03 INP CAPD04 INP CCPD09 INP OTHER10 Organ Acquis.20 HEMO OP/H GENERAL21 HEMO OP/H RATE22 HEMO HOME SUPPLIES23 HEMO HOME EQUIPMENT24 HEMO OP/H MAINTENANCE25 HEMO OP/H SUPPORT29 HEMO OP/H OTHER30 PERI OP/H GENERAL31 PERI OP/H RATE32 PERI OP/H HOME SUPPLIES33 PERI OP/H HOME EQUIP34 PERI OP/H MAINT35 PERI OP/H SUPPORT39 PERI OP/H OTHER40 CAPD OP/H GENERAL41 CAPD OP/H RATE42 CAPD OP/H HOME SUPPLIES43 CAPD OP/H HOME EQUIP44 CAPD OP/H MAINT45 CAPD OP/H SUPPORT49 CAPD OP/H OTHER50 CCPD OP/H GENERAL51 CCPD OP/H RATE52 CCPD OP/H HOME SUPPLIES53 CCPD OP/H HOME EQUIP54 CCPD OP/H MAINT55 CCPD OP/H SUPPORT59 CCPD OP/H OTHER80 MISC DIAL GENERAL81 DIALYSIS ULTRAFILTRATION82 DIALYSIS HOME AIDE89 MISC DIAL OTHER90 Organ Bank


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDIAL_TYDIAL_TYDIAL_TYDIAL_TYDIAL_TY Numeric 1 No Dialysis

2 Hemodialysis3 Peritoneal Dialysis998 Unknown

DIA_MNTDIA_MNTDIA_MNTDIA_MNTDIA_MNT Numeric 1 No2 Yes, Resumed Maintenance Dialysis3 Yes, No Maintenance Resumption4 Yes, Maintenance Resumption Unknown998 Unknown

DINFECDINFECDINFECDINFECDINFEC Character A YesB NoC Unknown

DISADISADISADISADISATETETETETE Character 1 bicarbonate2 acetate

DISCD_CDDISCD_CDDISCD_CDDISCD_CDDISCD_CD Numeric 601 Too Old on Pump602 Too Old on Ice603 Vascular Damage604 Ureteral Damage605 Inadequate Urine Output606 Donor Medical History607 Donor Social History608 Positive CMV609 Positive HIV610 Positive Hepatitis611 Warm Ischemic Time too Long612 Organ Trauma613 Organ not as Described614 Biopsy Findings615 Recipient Determined to be Unsuitable for Tx in OR616 Poor Organ Function617 Infection618 Diseased Organ619 Anatomical Abnormalities620 No Recipent Located-List Exhausted699 Other, specify

DISGRPCDISGRPCDISGRPCDISGRPCDISGRPC Character 1 Diabetes2 Hypertension3 Glomeruloneph.4 Cystic Kidney5 Other Urologic6 Other Cause7 Unknown Cause8 Missing Cause**OTHER** Missing Cause

DISPOSDISPOSDISPOSDISPOSDISPOS Numeric 1 Consent Not Requested2 Consent Not Obtained3 Organ Not Recovered4 Recovered Not for Tx5 Recovered for Tx But Not Tx6 Transplanted


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDISTDISTDISTDISTDIST Character 1 15 minutes or less

2 16 minutes to half an hour3 31 minutes to one hour4 More than one hour

DNRSUITRDNRSUITRDNRSUITRDNRSUITRDNRSUITR Numeric 1 Yes2 No, HIV+3 No, HCV+4 No, Hepatitus B+5 No, Tuberculosis6 No, Brain Death Criteria not Met7 No, Medical History8 No, Social History9 No, cancer10 No, Age999 No, Other Specify

DNRTYPDNRTYPDNRTYPDNRTYPDNRTYP Character ‘ Missing1 Cadaver2 Living Related3 Living Unrelated

DONORDONORDONORDONORDONOR Character MissingC CadavericF Foreign Donor (import)L LivingU Unknown**OTHER** Unknown

DON_CODDON_CODDON_CODDON_CODDON_COD Numeric 1 Anoxia2 Cerebrovascular/Stroke3 Head Trauma4 CNS Tumor999 Other Specify

DON_PDON_PDON_PDON_PDON_P Character C CadavericF Foreign ImportL Living RelatedU Unspecified

DON_RELDON_RELDON_RELDON_RELDON_REL Numeric 1 Parent2 Child3 Identical Twin4 Full Sibling5 Half Sibling6 Other Relative7 Spouse:Unrelated999 Other Unrelated:Specify

DPHLADPHLADPHLADPHLADPHLA Character 1 12 23 34 45 56 697 Unknown98 Confirmed Blk99 Not Tested


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDPHLA (cont.)DPHLA (cont.)DPHLA (cont.)DPHLA (cont.)DPHLA (cont.) Numeric 1 1

2 23 34 45 56 697 Unknown98 Confirmed Blk99 Not Tested

DQHLADQHLADQHLADQHLADQHLA Character 1 12 23 34 45 56 67 78 89 997 Unknown98 Confirmed Blk99 Not Tested

Numeric 1 12 23 34 45 56 67 78 89 997 Unknown98 Confirmed Blk99 Not Tested

DRGLABDRGLABDRGLABDRGLABDRGLAB Character 0 0 Unknown000 000 Unknown001 001 CRANIOTOMY AGE >17 EXCEPT FOR TRAUMA002 002 CRANIOTOMY FOR TRAUMA AGE >17003 003 CRANIOTOMY AGE 0-17004 004 SPINAL PROCEDURES005 005 EXTRACRANIAL VASCULAR PROCEDURES006 006 CARPAL TUNNEL RELEASE007 007 PERIPH & CRANIAL NERVE & OTHER NERV SYST PROC W CC008 008 PERIPH & CRANIAL NERVE & OTHER NERV SYST PROC W/O CC009 009 SPINAL DISORDERS & INJURIES010 010 NERVOUS SYSTEM NEOPLASMS W CC011 011 NERVOUS SYSTEM NEOPLASMS W/O CC012 012 DEGENERATIVE NERVOUS SYSTEM DISORDERS013 013 MULTIPLE SCLEROSIS & CEREBELLAR ATAXIA014 014 SPECIFIC CEREBROVASCULAR DISORDERS EXCEPT TIA015 015 TRANSIENT ISCHEMIC ATTACK & PRECEREBRAL OCCLUSIONS016 016 NONSPECIFIC CEREBROVASCULAR DISORDERS W CC017 017 NONSPECIFIC CEREBROVASCULAR DISORDERS W/O CC018 018 CRANIAL & PERIPHERAL NERVE DISORDERS W CC019 019 CRANIAL & PERIPHERAL NERVE DISORDERS W/O CC020 020 NERVOUS SYSTEM INFECTION EXCEPT VIRAL MENINGITIS021 021 VIRAL MENINGITIS022 022 HYPERTENSIVE ENCEPHALOPATHY


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDRGLAB (cont.)DRGLAB (cont.)DRGLAB (cont.)DRGLAB (cont.)DRGLAB (cont.) 023 023 NONTRAUMATIC STUPOR & COMA

024 024 SEIZURE & HEADACHE AGE >17 W CC025 025 SEIZURE & HEADACHE AGE >17 W/O CC026 026 SEIZURE & HEADACHE AGE 0-17027 027 TRAUMATIC STUPOR & COMA, COMA >1 HR028 028 TRAUMATIC STUPOR & COMA, COMA <1 HR AGE >17 W CC029 029 TRAUMATIC STUPOR & COMA, COMA <1 HR AGE >17 W/O CC030 030 TRAUMATIC STUPOR & COMA, COMA <1 HR AGE 0-17031 031 CONCUSSION AGE >17 W CC032 032 CONCUSSION AGE >17 W/O CC033 033 CONCUSSION AGE 0-17034 034 OTHER DISORDERS OF NERVOUS SYSTEM W CC035 035 OTHER DISORDERS OF NERVOUS SYSTEM W/O CC036 036 RETINAL PROCEDURES037 037 ORBITAL PROCEDURES038 038 PRIMARY IRIS PROCEDURES039 039 LENS PROCEDURES WITH OR WITHOUT VITRECTOMY040 040 EXTRAOCULAR PROCEDURES EXCEPT ORBIT AGE >17041 041 EXTRAOCULAR PROCEDURES EXCEPT ORBIT AGE 0-17042 042 INTRAOCULAR PROCEDURES EXCEPT RETINA, IRIS & LENS043 043 HYPHEMA044 044 ACUTE MAJOR EYE INFECTIONS045 045 NEUROLOGICAL EYE DISORDERS046 046 OTHER DISORDERS OF THE EYE AGE >17 W CC047 047 OTHER DISORDERS OF THE EYE AGE >17 W/O CC048 048 OTHER DISORDERS OF THE EYE AGE 0-17049 049 MAJOR HEAD & NECK PROCEDURES050 050 SIALOADENECTOMY051 051 SALIVARY GLAND PROCEDURES EXCEPT SIALOADENECTOMY052 052 CLEFT LIP & PALATE REPAIR053 053 SINUS & MASTOID PROCEDURES AGE >17054 054 SINUS & MASTOID PROCEDURES AGE 0-17055 055 MISCELLANEOUS EAR, NOSE, MOUTH & THROAT PROCEDURES056 056 RHINOPLASTY057 057 T&A PROC, EXCEPT TONSILLECTOMY &/OR ADENOIDECTOMY ONLY, AGE >17058 058 T&A PROC, EXCEPT TONSILLECTOMY &/OR ADENOIDECTOMY ONLY, AGE 0-17059 059 TONSILLECTOMY &/OR ADENOIDECTOMY ONLY, AGE >17060 060 TONSILLECTOMY &/OR ADENOIDECTOMY ONLY, AGE 0-17061 061 MYRINGOTOMY W TUBE INSERTION AGE >17062 062 MYRINGOTOMY W TUBE INSERTION AGE 0-17063 063 OTHER EAR, NOSE, MOUTH & THROAT O.R. PROCEDURES064 064 EAR, NOSE, MOUTH & THROAT MALIGNANCY065 065 DYSEQUILIBRIUM066 066 EPISTAXIS067 067 EPIGLOTTITIS068 068 OTITIS MEDIA & URI AGE >17 W CC069 069 OTITIS MEDIA & URI AGE >17 W/O CC070 070 OTITIS MEDIA & URI AGE 0-17071 071 LARYNGOTRACHEITIS072 072 NASAL TRAUMA & DEFORMITY073 073 OTHER EAR, NOSE, MOUTH & THROAT DIAGNOSES AGE >17074 074 OTHER EAR, NOSE, MOUTH & THROAT DIAGNOSES AGE 0-17075 075 MAJOR CHEST PROCEDURES076 076 OTHER RESP SYSTEM O.R. PROCEDURES W CC077 077 OTHER RESP SYSTEM O.R. PROCEDURES W/O CC078 078 PULMONARY EMBOLISM079 079 RESPIRATORY INFECTIONS & INFLAMMATIONS AGE >17 W CC080 080 RESPIRATORY INFECTIONS & INFLAMMATIONS AGE >17 W/O CC


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDRGLAB (cont.)DRGLAB (cont.)DRGLAB (cont.)DRGLAB (cont.)DRGLAB (cont.) 081 081 RESPIRATORY INFECTIONS & INFLAMMATIONS AGE 0-17

082 082 RESPIRATORY NEOPLASMS083 083 MAJOR CHEST TRAUMA W CC084 084 MAJOR CHEST TRAUMA W/O CC085 085 PLEURAL EFFUSION W CC086 086 PLEURAL EFFUSION W/O CC087 087 PULMONARY EDEMA & RESPIRATORY FAILURE088 088 CHRONIC OBSTRUCTIVE PULMONARY DISEASE089 089 SIMPLE PNEUMONIA & PLEURISY AGE >17 W CC090 090 SIMPLE PNEUMONIA & PLEURISY AGE >17 W/O CC091 091 SIMPLE PNEUMONIA & PLEURISY AGE 0-17092 092 INTERSTITIAL LUNG DISEASE W CC093 093 INTERSTITIAL LUNG DISEASE W/O CC094 094 PNEUMOTHORAX W CC095 095 PNEUMOTHORAX W/O CC096 096 BRONCHITIS & ASTHMA AGE >17 W CC097 097 BRONCHITIS & ASTHMA AGE >17 W/O CC098 098 BRONCHITIS & ASTHMA AGE 0-17099 099 RESPIRATORY SIGNS & SYMPTOMS W CC100 100 RESPIRATORY SIGNS & SYMPTOMS W/O CC101 101 OTHER RESPIRATORY SYSTEM DIAGNOSES W CC102 102 OTHER RESPIRATORY SYSTEM DIAGNOSES W/O CC103 103 HEART TRANSPLANT104 104 CARDIAC VALVE PROCEDURES W CARDIAC CATH105 105 CARDIAC VALVE PROCEDURES W/O CARDIAC CATH106 106 CORONARY BYPASS W CARDIAC CATH107 107 CORONARY BYPASS W/O CARDIAC CATH108 108 OTHER CARDIOTHORACIC PROCEDURES109 109 OTH CARDIOTHORACIC PROC W/O PUMP/CORO BYPASS W/O CARD CATH110 110 MAJOR CARDIOVASCULAR PROCEDURES W CC111 111 MAJOR CARDIOVASCULAR PROCEDURES W/O CC112 112 PERCUTANEOUS CARDIOVASCULAR PROCEDURES113 113 AMPUTATION FOR CIRC SYSTEM DISORDERS EXCEPT UPPER LIMB & TOE114 114 UPPER LIMB & TOE AMPUTATION FOR CIRC SYSTEM DISORDERS115 115 PERM CARDIAC PACEMAKER IMPLANT W AMI, HEART FAILURE OR SHOCK116 116 OTH PERM CARD PACEMKR IMPLANT/AICD LEAD/GENERATOR PROC/

PTCA W CORONARY ART STENT117 117 CARDIAC PACEMAKER REVISION EXCEPT DEVICE REPLACEMENT118 118 CARDIAC PACEMAKER DEVICE REPLACEMENT119 119 VEIN LIGATION & STRIPPING120 120 OTHER CIRCULATORY SYSTEM O.R. PROCEDURES121 121 CIRCULATORY DISORDERS W AMI & C.V. COMP DISCH ALIVE122 122 CIRCULATORY DISORDERS W AMI W/O C.V. COMP DISCH ALIVE123 123 CIRCULATORY DISORDERS W AMI, EXPIRED124 124 CIRCULATORY DISORDERS EXCEPT AMI, W CARD CATH & COMPLEX125 125 CIRCULATORY DISORDERS EXCEPT AMI, W CARD CATH W/O COMPLEX126 126 ACUTE & SUBACUTE ENDOCARDITIS127 127 HEART FAILURE & SHOCK

DRG_DESDRG_DESDRG_DESDRG_DESDRG_DES Character 01 01 HOME, SELF CARE02 02 SHORT TERM HOSPITAL03 03 SNF04 04 ICF05 05 OTHER TYPE FACILTIY06 06 HOME, HEALTH SERVICE CARE07 07 LEFT AGAINST MEDICAL ADVICE20 20 DIED30 30 STILL PATIENT99 99 MISSING


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDRLOCUS DRLOCUS DRLOCUS DRLOCUS DRLOCUS (cont.)Character 1 1

10 10103 10311 1112 1213 1314 141403 14031404 140415 1516 1617 1718 182 23 34 45 56 67 78 89 997 Unknown98 Confirmed Blk99 Not Tested

Numeric 1 12 23 34 45 56 67 78 89 910 1011 1112 1213 1314 1415 1516 1617 1718 1897 Unknown98 Confirmed Blk99 Not Tested103 1031403 14031404 1404

DRUGDRUGDRUGDRUGDRUG Numeric -4 Cyclosporin G-3 OKT4-2 Cyclosporin-1 ALG1 Prednisone(Deltasone, Orasone)2 Methylprednisolone(Solu-medrol, Medrol, A-Methapred)3 Cyclosporin A(CSA, Sandimmune, CyA, CyS)4 Neoral(CyA-NOF)5 FK506(Prograf, Tacrolimus)6 Rapamycin(RAPA, Sirolimus, Rapamune)


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllDRUG (cont.)DRUG (cont.)DRUG (cont.)DRUG (cont.)DRUG (cont.) 7 Leflunomide(LFL)

8 Azathioprine(AZA, Imuran)9 Mycophenolate Mofetil(MMF, Cellecept, RS61443)10 Cytoxan(Cyclophosphamide)11 Methotrexate(Folex, PFS, Mexate-AQ, Rheumatrex)12 Brequinar Sodium(BQR)13 Mizoribine(Bredinin)14 ATG(Atgam, Anti-thymocyte Globulin)NRATG/NRATS15 Nratg/Nrats16 OKT3(Orthoclone, Muromonab)19 Xoma Zyme-CD5+20 DAB486-IL-221 Anti-LFA-122 Anti-ICAM-123 IL-1 Receptor Antagonist24 Anti-IL-625 Anti-TNF26 Soluble IL-1 Receptor27 Aldesleukin(IL-2)28 T10B9(Medimmune)30 Deoxyspergualin(DSG, 15-DSG, Gusperimus, Spanidin)40 Sang Cy A41 Thymoglobulin42 Zenapax43 Simulect44 Gengraf(Abbott CyA)45 Certican(RAD, Enverolimus)46 EON(Generic Cyclosporine)47 ERL(Myfortic)

DTYPEDTDTYPEDTDTYPEDTDTYPEDTDTYPEDT Character 1 Monozygotic Twin2 Dizygotic Twin3 Sibling4 Genetic Parent5 Child6 Cadaver7 Other8 Living related9 Unspecified

DTYPFMTDTYPFMTDTYPFMTDTYPFMTDTYPFMT Character 1 Living Related2 Living Related3 Living Related4 Living Related5 Living Related6 Cadaver7 Other8 Living Related9 Unspecified**OTHER** Unspecified

D_CIRCUMD_CIRCUMD_CIRCUMD_CIRCUMD_CIRCUM Numeric 1 MVA2 Suicide3 Homicide4 Child-Abuse5 Non-MVA6 Death From Natural Causes**OTHER** Other Specify


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllD_MECHD_MECHD_MECHD_MECHD_MECH Numeric 1 Drowning

2 Seizure3 Drug Intoxication4 Asphyxiation5 Cardiovascular6 Electrical7 Gunshot Wound8 Stab9 Blunt Injury10 Sids11 Intracranial Hemorrhage/Stroke12 Death from Natural Causes**OTHER** Other Specify

EDLEVEDLEVEDLEVEDLEVEDLEV Character ‘ Missing1 Less then 12 Yrs.2 High School Grad3 Some College4 College Grad

EDUCEDUCEDUCEDUCEDUC Character 1 Less than 12 Years2 High school graduate3 Some college4 College graduate5 Unknown

ED_LEVELED_LEVELED_LEVELED_LEVELED_LEVEL Numeric 1 None2 Grade School(0-8)3 High School(9-12)

4 Attended College/Technical School5 Associate/Bachelor Degree6 Post-college Graduate Degree996 N/A(<5 yrs old)998 Unknown

EMPEMPEMPEMPEMP Character 1 Working Full Time2 Working Part Time by choice3 Working Part Time due to disease4 Working Part Time Reason Unknown5 Not Working by choice6 Not Working due to disease7 Not Working Unable to find employ8 Not Working Reason Unknown9 Retired996 Not Applicable998 Employment Status Unknown

EMPDMMSEMPDMMSEMPDMMSEMPDMMSEMPDMMS Character 1 Employed or student fulltime2 Employed or student part time3 Homemaker4 Retired5 Never employed6 Unemployed7 Disabled8 Other


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllEMPLEVEMPLEVEMPLEVEMPLEVEMPLEV Character ‘ Missing

1 Employed full time or full time student2 Employed part time or part time student3 Homemaker4 Retired5 Unemployed6 Disabled7 Other

EMPLOYEMPLOYEMPLOYEMPLOYEMPLOY Character 1 Employed full time2 Employed part time3 Full time student4 Part time student5 Retired6 Not empl outside home/homemaker7 Unemployed8 Disabled9 Other

EMPSTEMPSTEMPSTEMPSTEMPSTAAAAATTTTT Character Missing1 Unemployed2 Emp full-time3 Emp pt-time4 Homemaker5 Ret-age6 Ret-disab7 Med LOA8 Student9 Other

EPOEPOEPOEPOEPOADMADMADMADMADM Character 1 Intravenous2 Subcutaneous

ETHFMTETHFMTETHFMTETHFMTETHFMT Character 1 Hispanic Origin2 Not of Hispanic Origin

EXEREXEREXEREXEREXER Character 1 Daily or almost daily2 4-5 times a week3 2-3 times a week4 About once a week5 Less than once a week6 Almost never or never

EXTEN5AEXTEN5AEXTEN5AEXTEN5AEXTEN5A Character 1 Not at all2 Slightly3 Moderately4 Quite a bit5 Extremely

EXTEN5BEXTEN5BEXTEN5BEXTEN5BEXTEN5B Character 1 Not at all2 Somewhat3 Moderately4 Very much5 Extremely


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllEXTEN5CEXTEN5CEXTEN5CEXTEN5CEXTEN5C Character 1 Extremely

2 Quite a bit3 Moderately4 Slightly5 Not at all

FEMUR 232 232 ARTHROSCOPY233 233 OTHER MUSCULOSKELET SYS & CONN TISS O.R. PROC W CC234 234 OTHER MUSCULOSKELET SYS & CONN TISS O.R. PROC W/O CC235 235 FRACTURES OF FEMUR236 236 FRACTURES OF HIP & PELVIS237 237 SPRAINS, STRAINS, & DISLOCATIONS OF HIP, PELVIS & THIGH238 238 OSTEOMYELITIS

239 239 PATHOLOGICAL FRACTURES & MUSCULOSKELETAL & CONN TISS MALIGN

240 240 CONNECTIVE TISSUE DISORDERS W CC241 241 CONNECTIVE TISSUE DISORDERS W/O CC242 242 SEPTIC ARTHRITIS243 243 MEDICAL BACK PROBLEMS244 244 BONE DISEASES & SPECIFIC ARTHROPATHIES W CC245 245 BONE DISEASES & SPECIFIC ARTHROPATHIES W/O CC246 246 NON-SPECIFIC ARTHROPATHIES247 247 SIGNS & SYMPTOMS OF MUSCULOSKELETAL SYSTEM & CONN TISSUE248 248 TENDONITIS, MYOSITIS & BURSITIS249 249 AFTERCARE, MUSCULOSKELETAL SYSTEM & CONNECTIVE TISSUE250 250 FX, SPRN, STRN & DISL OF FOREARM, HAND, FOOT AGE >17 W CC251 251 FX, SPRN, STRN & DISL OF FOREARM, HAND, FOOT AGE >17 W/O CC252 252 FX, SPRN, STRN & DISL OF FOREARM, HAND, FOOT AGE 0-17253 253 FX, SPRN, STRN & DISL OF UPARM,LOWLEG EX FOOT AGE >17 W CC254 254 FX, SPRN, STRN & DISL OF UPARM,LOWLEG EX FOOT AGE >17 W/O CC255 255 FX, SPRN, STRN & DISL OF UPARM,LOWLEG EX FOOT AGE 0-17256 256 OTHER MUSCULOSKELETAL SYSTEM & CONNECTIVE TISSUE DIAGNOSES257 257 TOTAL MASTECTOMY FOR MALIGNANCY W CC258 258 TOTAL MASTECTOMY FOR MALIGNANCY W/O CC259 259 SUBTOTAL MASTECTOMY FOR MALIGNANCY W CC260 260 SUBTOTAL MASTECTOMY FOR MALIGNANCY W/O CC261 261 BREAST PROC FOR NON-MALIGNANCY EXCEPT BIOPSY & LOCAL EXCISION262 262 BREAST BIOPSY & LOCAL EXCISION FOR NON-MALIGNANCY263 263 SKIN GRAFT &/OR DEBRID FOR SKN ULCER OR CELLULITIS W CC264 264 SKIN GRAFT &/OR DEBRID FOR SKN ULCER OR CELLULITIS W/O CC265 265 SKIN GRAFT &/OR DEBRID EXCEPT FOR SKIN ULCER OR CELLULITIS W CC266 266 SKIN GRAFT &/OR DEBRID EXCEPT FOR SKIN ULCER OR CELLULITIS W/O CC267 267 PERIANAL & PILONIDAL PROCEDURES268 268 SKIN, SUBCUTANEOUS TISSUE & BREAST PLASTIC PROCEDURES269 269 OTHER SKIN, SUBCUT TISS & BREAST PROC W CC270 270 OTHER SKIN, SUBCUT TISS & BREAST PROC W/O CC271 271 SKIN ULCERS272 272 MAJOR SKIN DISORDERS W CC273 273 MAJOR SKIN DISORDERS W/O CC274 274 MALIGNANT BREAST DISORDERS W CC275 275 MALIGNANT BREAST DISORDERS W/O CC276 276 NON-MALIGANT BREAST DISORDERS277 277 CELLULITIS AGE >17 W CC278 278 CELLULITIS AGE >17 W/O CC279 279 CELLULITIS AGE 0-17280 280 TRAUMA TO THE SKIN, SUBCUT TISS & BREAST AGE >17 W CC281 281 TRAUMA TO THE SKIN, SUBCUT TISS & BREAST AGE >17 W/O CC282 282 TRAUMA TO THE SKIN, SUBCUT TISS & BREAST AGE 0-17283 283 MINOR SKIN DISORDERS W CC284 284 MINOR SKIN DISORDERS W/O CC


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllFEMUR (cont.) 285 285 AMPUTAT OF LOWER LIMB FOR ENDOCRINE,NUTRIT,& METABOL DISORDERS

286 286 ADRENAL & PITUITARY PROCEDURES287 287 SKIN GRAFTS & WOUND DEBRID FOR ENDOC, NUTRIT & METAB DISORDERS288 288 O.R. PROCEDURES FOR OBESITY289 289 PARATHYROID PROCEDURES290 290 THYROID PROCEDURES291 291 THYROGLOSSAL PROCEDURES292 292 OTHER ENDOCRINE, NUTRIT & METAB O.R. PROC W CC293 293 OTHER ENDOCRINE, NUTRIT & METAB O.R. PROC W/O CC294 294 DIABETES AGE >35295 295 DIABETES AGE 0-35296 296 NUTRITIONAL & MISC METABOLIC DISORDERS AGE >17 W CC297 297 NUTRITIONAL & MISC METABOLIC DISORDERS AGE >17 W/O CC298 298 NUTRITIONAL & MISC METABOLIC DISORDERS AGE 0-17299 299 INBORN ERRORS OF METABOLISM300 300 ENDOCRINE DISORDERS W CC301 301 ENDOCRINE DISORDERS W/O CC302 302 KIDNEY TRANSPLANT303 303 KIDNEY,URETER & MAJOR BLADDER PROCEDURES FOR NEOPLASM304 304 KIDNEY,URETER & MAJOR BLADDER PROC FOR NON-NEOPL W CC305 305 KIDNEY,URETER & MAJOR BLADDER PROC FOR NON-NEOPL W/O CC306 306 PROSTATECTOMY W CC307 307 PROSTATECTOMY W/O CC308 308 MINOR BLADDER PROCEDURES W CC309 309 MINOR BLADDER PROCEDURES W/O CC310 310 TRANSURETHRAL PROCEDURES W CC311 311 TRANSURETHRAL PROCEDURES W/O CC312 312 URETHRAL PROCEDURES, AGE >17 W CC313 313 URETHRAL PROCEDURES, AGE >17 W/O CC314 314 URETHRAL PROCEDURES, AGE 0-17315 315 OTHER KIDNEY & URINARY TRACT O.R. PROCEDURES316 316 RENAL FAILURE317 317 ADMIT FOR RENAL DIALYSIS318 318 KIDNEY & URINARY TRACT NEOPLASMS W CC319 319 KIDNEY & URINARY TRACT NEOPLASMS W/O CC320 320 KIDNEY & URINARY TRACT INFECTIONS AGE >17 W CC321 321 KIDNEY & URINARY TRACT INFECTIONS AGE >17 W/O CC322 322 KIDNEY & URINARY TRACT INFECTIONS AGE 0-17323 323 URINARY STONES W CC, &/OR ESW LITHOTRIPSY324 324 URINARY STONES W/O CC325 325 KIDNEY & URINARY TRACT SIGNS & SYMPTOMS AGE >17 W CC326 326 KIDNEY & URINARY TRACT SIGNS & SYMPTOMS AGE >17 W/O CC327 327 KIDNEY & URINARY TRACT SIGNS & SYMPTOMS AGE 0-17328 328 URETHRAL STRICTURE AGE >17 W CC329 329 URETHRAL STRICTURE AGE >17 W/O CC330 330 URETHRAL STRICTURE AGE 0-17331 331 OTHER KIDNEY & URINARY TRACT DIAGNOSES AGE >17 W CC332 332 OTHER KIDNEY & URINARY TRACT DIAGNOSES AGE >17 W/O CC333 333 OTHER KIDNEY & URINARY TRACT DIAGNOSES AGE 0-17334 334 MAJOR MALE PELVIC PROCEDURES W CC335 335 MAJOR MALE PELVIC PROCEDURES W/O CC336 336 TRANSURETHRAL PROSTATECTOMY W CC337 337 TRANSURETHRAL PROSTATECTOMY W/O CC338 338 TESTES PROCEDURES, FOR MALIGNANCY339 339 TESTES PROCEDURES, NON-MALIGNANCY AGE >17340 340 TESTES PROCEDURES, NON-MALIGNANCY AGE 0-17341 341 PENIS PROCEDURES342 342 CIRCUMCISION AGE >17343 343 CIRCUMCISION AGE 0-17344 344 OTHER MALE REPRODUCTIVE SYSTEM O.R. PROCEDURES FOR MALIGNANCY


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllFEMUR (cont.) 345 345 OTHER MALE REPRODUCTIVE SYSTEM O.R. PROC EXCEPT FOR MALIGNANCY

346 346 MALIGNANCY, MALE REPRODUCTIVE SYSTEM, W CC347 347 MALIGNANCY, MALE REPRODUCTIVE SYSTEM, W/O CC348 348 BENIGN PROSTATIC HYPERTROPHY W CC349 349 BENIGN PROSTATIC HYPERTROPHY W/O CC350 350 INFLAMMATION OF THE MALE REPRODUCTIVE SYSTEM351 351 STERILIZATION, MALE352 352 OTHER MALE REPRODUCTIVE SYSTEM DIAGNOSES353 353 PELVIC EVISCERATION, RADICAL HYSTERECTOMY & RADICAL VULVECTOMY354 354 UTERINE,ADNEXA PROC FOR NON-OVARIAN/ADNEXAL MALIG W CC355 355 UTERINE,ADNEXA PROC FOR NON-OVARIAN/ADNEXAL MALIG W/O CC356 356 FEMALE REPRODUCTIVE SYSTEM RECONSTRUCTIVE PROCEDURES357 357 UTERINE & ADNEXA PROC FOR OVARIAN OR ADNEXAL MALIGNANCY358 358 UTERINE & ADNEXA PROC FOR NON-MALIGNANCY W CC359 359 UTERINE & ADNEXA PROC FOR NON-MALIGNANCY W/O CC360 360 VAGINA, CERVIX & VULVA PROCEDURES361 361 LAPAROSCOPY & INCISIONAL TUBAL INTERRUPTION362 362 ENDOSCOPIC TUBAL INTERRUPTION363 363 D&C, CONIZATION & RADIO-IMPLANT, FOR MALIGNANCY364 364 D&C, CONIZATION EXCEPT FOR MALIGNANCY365 365 OTHER FEMALE REPRODUCTIVE SYSTEM O.R. PROCEDURES366 366 MALIGNANCY, FEMALE REPRODUCTIVE SYSTEM W CC367 367 MALIGNANCY, FEMALE REPRODUCTIVE SYSTEM W/O CC368 368 INFECTIONS, FEMALE REPRODUCTIVE SYSTEM369 369 MENSTRUAL & OTHER FEMALE REPRODUCTIVE SYSTEM DISORDERS370 370 CESAREAN SECTION W CC371 371 CESAREAN SECTION W/O CC372 372 VAGINAL DELIVERY W COMPLICATING DIAGNOSES373 373 VAGINAL DELIVERY W/O COMPLICATING DIAGNOSES374 374 VAGINAL DELIVERY W STERILIZATION &/OR D&C375 375 VAGINAL DELIVERY W O.R. PROC EXCEPT STERIL &/OR D&C376 376 POSTPARTUM & POST ABORTION DIAGNOSES W/O O.R. PROCEDURE377 377 POSTPARTUM & POST ABORTION DIAGNOSES W O.R. PROCEDURE378 378 ECTOPIC PREGNANCY379 379 THREATENED ABORTION380 380 ABORTION W/O D&C381 381 ABORTION W D&C, ASPIRATION CURETTAGE OR HYSTEROTOMY382 382 FALSE LABOR383 383 OTHER ANTEPARTUM DIAGNOSES W MEDICAL COMPLICATIONS384 384 OTHER ANTEPARTUM DIAGNOSES W/O MEDICAL COMPLICATIONS385 385 NEONATES, DIED OR TRANSFERRED TO ANOTHER ACUTE CARE FACILITY386 386 EXTREME IMMATURITY OR RESPIRATORY DISTRESS SYNDROME, NEONATE387 387 PREMATURITY W MAJOR PROBLEMS388 388 PREMATURITY W/O MAJOR PROBLEMS389 389 FULL TERM NEONATE W MAJOR PROBLEMS390 390 NEONATE W OTHER SIGNIFICANT PROBLEMS391 391 NORMAL NEWBORN392 392 SPLENECTOMY AGE >17393 393 SPLENECTOMY AGE 0-17394 394 OTHER O.R. PROCEDURES OF THE BLOOD AND BLOOD FORMING395 395 RED BLOOD CELL DISORDERS AGE >17396 396 RED BLOOD CELL DISORDERS AGE 0-17397 397 COAGULATION DISORDERS398 398 RETICULOENDOTHELIAL & IMMUNITY DISORDERS W CC399 399 RETICULOENDOTHELIAL & IMMUNITY DISORDERS W/O CC


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllFLFLFLFLFLUSH USH USH USH USH Numeric 300 Viospan(UW/Belzer)

301 Eurocollins302 Modified Collins303 Cardioplege304 Pulmoplege305 Saline306 Ringers998 Unknown999 Other Specify

FOLFMTFOLFMTFOLFMTFOLFMTFOLFMT Character 001 Hospital Discharge003 3 Month After Tx006 6 Month After Tx010 1 year After Tx020 2 year After Tx030 3 year After Tx040 4 year After Tx050 5 year After Tx060 6 year After Tx070 7 year After Tx080 8 year After Tx090 9 year After Tx100 10 year After Tx110 11 year After Tx120 12 year After Tx130 13 year After Tx140 14 year After Tx150 15 year After Tx160 16 year After Tx170 17 year After Tx180 18 year After Tx190 19 year After Tx200 20 year After Tx210 21 year After Tx220 22 year After Tx230 23 year After Tx240 24 year After Tx250 25 year After Tx260 26 year After Tx270 27 year After Tx280 28 year After Tx290 39 year After Tx300 30 year After Tx310 31 year After Tx320 32 year After Tx330 33 year After Tx340 34 year After Tx350 35 year After Tx360 36 year After Tx370 37 year After Tx380 38 year After Tx390 39 year After Tx400 40 year After Tx410 41 year After Tx420 42 year After Tx430 43 year After Tx440 44 year After Tx450 45 year After Tx460 46 year After Tx


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllFOLFMT (cont.)FOLFMT (cont.)FOLFMT (cont.)FOLFMT (cont.)FOLFMT (cont.) 470 47 year After Tx

480 48 year After Tx490 49 year After Tx500 50 year After Tx510 51 year After Tx520 52 year After Tx530 53 year After Tx540 54 year After Tx550 55 year After Tx560 56 year After Tx570 57 year After Tx580 58 year After Tx590 59 year After Tx600 60 year After Tx610 61 year After Tx620 62 year After Tx630 63 year After Tx640 64 year After Tx650 65 year After Tx660 66 year After Tx670 67 year After Tx680 68 year After Tx690 69 year After Tx700 70 year After Tx710 71 year After Tx720 72 year After Tx730 73 year After Tx740 74 year After Tx750 75 year After Tx760 76 year After Tx770 77 year After Tx780 78 year After Tx790 79 year After Tx800 Graft Failure801 1 Year After Graft Failure802 2 Year After Graft Failure803 3 Year After Graft Failure804 4 Year After Graft Failure805 5 Year After Graft Failure806 6 Year After Graft Failure807 7 Year After Graft Failure808 8 Year After Graft Failure809 9 Year After Graft Failure810 10 Year After Graft Failure811 11 Year After Graft Failure812 12 Year After Graft Failure813 13 Year After Graft Failure814 14 Year After Graft Failure815 15 Year After Graft Failure816 16 Year After Graft Failure817 17 Year After Graft Failure818 18 Year After Graft Failure819 19 Year After Graft Failure820 20 Year After Graft Failure821 21 Year After Graft Failure822 22 Year After Graft Failure823 23 Year After Graft Failure824 24 Year After Graft Failure825 25 Year After Graft Failure


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllFOLFMT (cont.)FOLFMT (cont.)FOLFMT (cont.)FOLFMT (cont.)FOLFMT (cont.) 826 26 Year After Graft Failure

827 27 Year After Graft Failure828 28 Year After Graft Failure829 29 Year After Graft Failure830 30 Year After Graft Failure831 31 Year After Graft Failure832 32 Year After Graft Failure833 33 Year After Graft Failure834 34 Year After Graft Failure835 35 Year After Graft Failure836 36 Year After Graft Failure837 37 Year After Graft Failure838 38 Year After Graft Failure839 39 Year After Graft Failure840 40 Year After Graft Failure841 41 Year After Graft Failure842 42 Year After Graft Failure843 43 Year After Graft Failure844 44 Year After Graft Failure845 45 Year After Graft Failure846 46 Year After Graft Failure847 47 Year After Graft Failure848 48 Year After Graft Failure849 49 Year After Graft Failure850 50 Year After Graft Failure900 Lost to Follow up:Reported Alive998 Lost to Follow up999 Recipient Death**OTHER** Unknown

FSCERTFSCERTFSCERTFSCERTFSCERT Character 1 TRANSPLANT CENTER2 DIALYSIS CENTER3 DIALYSIS FACIL HOSPITAL4 DIALYSIS FACIL (FREE-STANDING)5 TRANSPLANT AND DIALYSIS CENTER6 OBSOLETED CATEGORY7 INPATIENT CARE ONLY

FSOWNFSOWNFSOWNFSOWNFSOWN Character 01 INDIVIDUAL-FOR PROFIT02 PARTNERSHIP-FOR PROFIT03 CORPORATION-FOR PROFIT04 OTHER-FOR PROFIT05 INDIVIDUAL-NOT-FOR-PROFIT06 PARTNERSHIP-NOT-FOR-PROFIT07 CORPORATION-NOT-FOR-PROFIT08 OTHER-NOT-FOR-PROFIT09 STATE-GOV NON-FED10 COUNTY-GOV NON-FED11 CITY-GOV NON-FED12 CITY/COUNTY-GOV NON-FED13 HOSPITAL DIST/AUTH GOV NON-FED14 OTHER-GOV NON-FED15 VETERANS ADMIN - HCFA CERT15a VETERANS ADMIN - NOT CERTIFIED16 PUBLIC HEALTH SERVICE- GOV FED17 MILITARY-GOV FED18 OTHER-GOV FED99 UNKNOWN-MISSING ON FORM


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllFUCHGTYFUCHGTYFUCHGTYFUCHGTYFUCHGTY Character 01 no change in status or modality

02 changed to PD (for at least 2 weeks)03 changed to hemodialysis (for at least 2 weeks)04 changed to home hemodialysis (for at least 2 weeks)05 return of renal function06 transferred to another facility07 kidney transplant08 died09 lost to followup10 withdrew from dialysis

FUMODFUMODFUMODFUMODFUMODALALALALAL Character 1 hemo2 PD

FUNCSTFUNCSTFUNCSTFUNCSTFUNCSTAAAAATTTTT Numeric 1 No Activity Limitations. NYHA Cls I or Cls II2 Performs Activities of Daily Living w/ some assistance. HYHA Cls III3 Performs Activities of Daily Living w/ total assistance. NYHA Cls IV996 N/A998 Unknowm

FUNITYPFUNITYPFUNITYPFUNITYPFUNITYP Character 1 mg/vol2 mg/24hrs.3 mg/dl=mg%

FUNUMFUNUMFUNUMFUNUMFUNUM Numeric 0 Unknown1 At Discharge2 Disch-6 mths post tx3 7 mths-1 yr post tx4 1-2 yr post tx5 2-3 yr post tx6 Annually

FUPSTFUPSTFUPSTFUPSTFUPSTAAAAATTTTT Character 1 alive2 died3 lost to followup

FUREVTYFUREVTYFUREVTYFUREVTYFUREVTY Character 1 Thrombolysis2 Balloon angioplasty .w/.wout thrombolysis3 Surgical repair or declotting4 New AV Fistula5 New PTFE graft6 Another permanent access7 Other

FUURINEFUURINEFUURINEFUURINEFUURINE Character 1 > 200 ml/day2 < 200 ml/day

FUVFUVFUVFUVFUVAAAAATYPTYPTYPTYPTYP Character 1 AV Fistula2 PTFE graft3 Bovine graft4 Other

GENDFMTGENDFMTGENDFMTGENDFMTGENDFMT Character 1 MALE2 FEMALE

GFGFGFGFGFAILAILAILAILAIL Character 01 Acute rejection02 Chronic rejection03 Hyperacute rejection, biopsy-proved04 accelerated humoral rejection


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllGFGFGFGFGFAIL (cAIL (cAIL (cAIL (cAIL (cooooont.)nt.)nt.)nt.)nt.) 05 Primary non-function

06 Recurrence of original disease, biopsy07 Papillary necrosis08 Parenchymal abscess09 Parenchymal hemorrhage10 Local Wound Infection11 Arterial hemorrhage12 Venous hemorrhage13 Renal vein thrombosis14 Renal artery thrombosis15 Renal artery stenosis16 Inadequate graft vasculature17 Bladder leak18 Ureteral leak19 Ureteral obstruction20 Renal pelvic or cortical leak21A Stop immunosuppression, infection21B Stop IS, gastro-intestinal hemorrhage21C Stop IS, visceral perforation21D Stop immunosuppression, malignancy21E Stop IS, skeletal complications21F Stop IS, steroid psychosis21G Stop immunosuppression, other22 Poor compliance with immunosupression23 OtherNo No Formunk Unknown

GOOD5AGOOD5AGOOD5AGOOD5AGOOD5A Character 1 Excellent2 Very good3 Good4 Fair5 Poor

GOOD5BGOOD5BGOOD5BGOOD5BGOOD5B Character 1 Poor2 Fair3 Good4 Very Good5 Excellent

GOOD7AGOOD7AGOOD7AGOOD7AGOOD7A Character 1 Very poor2 Poor3 Fair4 Good5 Very Good6 Excellent7 The Best

HAPLOTYHAPLOTYHAPLOTYHAPLOTYHAPLOTY Numeric 1 02 0.53 14 1.55 2998 Unknown

HBSAGHBSAGHBSAGHBSAGHBSAG Character 1 positive2 negative


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllHCCDTYPHCCDTYPHCCDTYPHCCDTYPHCCDTYP Character B Phys/supp ln it

C Claim conditionG DRGH HCPCSI ICD9 diagnosisJ ICD8 diagnosisP ICD9 procedureQ ICD8 procedureR Revenue CenterS Discharge statusV Claim value

HCFHCFHCFHCFHCFASAFASAFASAFASAFASAF Character D DialysisE Durable Medical EquipmentH HHAI InpatientM PMMIS inpat stayN SNFO OutpatientP Phys/supplierQ PMMIS qtrly dialS Hospice

HCFHCFHCFHCFHCFASFIASFIASFIASFIASFI Character D DialysisH HHAI InpatientM PMMIS inpat stayN SNFO OutpatientQ PMMIS qtrly dialS Hospice

HCFHCFHCFHCFHCFASFPASFPASFPASFPASFP Character E Durable Medical EquipmentP Phys/supplier value $hcfasfe

HCFHCFHCFHCFHCFASVASVASVASVASVCCCCC Character 0 Whole Blood or Packed Red Cells1 Medical Care2 Surgery3 Consultation4 Diagnostic Radiology5 Diagnostic Laboratory6 Therapeutic Radiology7 Anesthesia8 Assistance at Surgery9 Other Medical ServiceA Used DME, Prosthetics, OrthoticsB High Risk MammographyC Low Risk MammographyF Ambulatory Surgical CenterG Immunosuppresive DrugsH Hospice ServicesI Purchase of DME (Installment Plan)L Renal Supplier in the HomeM Monthly Capitation Paym,ent (Dialysis)N Kidney DonorP Lumpsum Purchase of DME


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllHCFHCFHCFHCFHCFASVASVASVASVASVC (cC (cC (cC (cC (cooooont.)nt.)nt.)nt.)nt.) R Rental of DME

T Psychological TherapyU Occupational TherapyV Pneumococcal VaccineW Physical TherapyY Second Opinion/Elective SurgZ Third Opinion/Elective Surg

HDPDHDPDHDPDHDPDHDPD Character 1 HD2 PD

HEMOFMTHEMOFMTHEMOFMTHEMOFMTHEMOFMT Character ‘ Missing1 In Center2 Home Training3 At Home

HISTDIABHISTDIABHISTDIABHISTDIABHISTDIAB Numeric 1 No2 Yes, 0-5 Years3 Yes, 6-10 Years4 Yes, >10 Years5 Yes, Duration Unknown998 Unknown

HISTECHHISTECHHISTECHHISTECHHISTECH Numeric 1 NIH/extended, w/IgM2 NIH/extended, w/o IgM3 Wash/extended, w/IgM4 Wash/extended, w/o IgM5 Anti-Globulin, w/ IgM6 Anti-Globulin, w/o IgM7 Flow, w/ IgM8 Flow, w/o IgM9 Elisa, w/ IgM10 Elisa, w/o IgM11 Indirect IF w/ IgM12 Indirect IF w/o IgM13 Auto: Pre-1994 forms only

HISTHYPEHISTHYPEHISTHYPEHISTHYPEHISTHYPE Numeric 1 No2 Yes, 0-5 Years3 Yes, 6-10 Years4 Yes, >10 Years5 Yes, Duration Unknown998 Unknown

HIVFMTHIVFMTHIVFMTHIVFMTHIVFMT Character 1 Positive2 Negative3 Unknown4 Cant disclose

HLA_TYMTHLA_TYMTHLA_TYMTHLA_TYMTHLA_TYMT Numeric 1 Serology2 DNA999 Other, specify

HMANMOHMANMOHMANMOHMANMOHMANMO Character 1 Althin/Drake 48010 Baxter 155011 Baxter SPS45012 C2 & C2RX13 C2RX UFCM14 CS 3


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllHMANMO (cont.)HMANMO (cont.)HMANMO (cont.)HMANMO (cont.)HMANMO (cont.) 15 Braun HD Secura

16 Gambro AK1017 Gambro Monitrol18 travenol mod-?19 baxter mod-?2 Althin/D 480UF20 cobe mod-?21 drake mod-?22 braun mod-?3 Althin/Drake10004 Althin/Drake45215 Althin/Drake40096 Fresenius7 Baxter 3508 Baxter 4509 Baxter 550

Numeric 1 Althin/Drake 4802 Althin/D 480UF3 Althin/Drake10004 Althin/Drake45215 Althin/Drake40096 Fresenius7 Baxter 3508 Baxter 4509 Baxter 55010 Baxter 155011 Baxter SPS45012 C2 & C2RX13 C2RX UFCM14 CS 315 Braun HD Secura16 Gambro AK1017 Gambro Monitrol18 travenol mod-?19 baxter mod-?20 cobe mod-?21 drake mod-?22 braun mod-?

HOSPFMTHOSPFMTHOSPFMTHOSPFMTHOSPFMT Character ‘ Missing1 Yes2 No3 In Hosp.9 Unknown

HOWMEASHOWMEASHOWMEASHOWMEASHOWMEAS Character 1 METRIC2 NONMETRIC3 NOT INDICATED4 NOT MEASURED5 METRIC (PROB)6 NONMETRIC (PROB)

HPOSFMTHPOSFMTHPOSFMTHPOSFMTHPOSFMT Character 1 STANDING2 LYING3 NOT INDICATED4 NO HEIGHT GIVEN9 UNABLE TO DETERM


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllIMPORTIMPORTIMPORTIMPORTIMPORT Character 1 no effect

2 small effect3 some effect4 important5 very important6 dont know

INSDEPINSDEPINSDEPINSDEPINSDEP Numeric 1 No2 Yes, 0-5 Years3 Yes, 6-10 Years4 Yes, >10 Years998 Yes, Duration Unknown

INSLFMTINSLFMTINSLFMTINSLFMTINSLFMT Character 1 active2 stopped3 never

INSUFMTINSUFMTINSUFMTINSUFMTINSUFMT Character ‘ Missing1 Active2 Stopped3 Never

IRONADMIRONADMIRONADMIRONADMIRONADM Character 1 Intravenous2 Intramuscular

KIBIOPSYKIBIOPSYKIBIOPSYKIBIOPSYKIBIOPSY Numeric 1 None2 Mild3 Moderate4 Large998 Unknown

KI_CODKI_CODKI_CODKI_CODKI_COD Numeric 998 Unknown999 Other Specify3200 Graft Failure:Primary Failure3201 Graft Failure:Rejection3202 Graft Failure:Technical3203 Graft Failure:Graft Infection3204 Graft Failure:Recurrent Disease3299 Graft Failure:Other Specify3300 Infection:Bacterial Peritonitis3301 Infection:Bacterial Pneumonia3302 Infection:Bacterial Septicemia3303 Infection:Fungal3304 Infection:Mixed Other Specify3305 Infection:Opportunistic Other Specify3306 Infection:Urinary Tract3307 Infection:Viral3308 Infection:Aids3399 Infection:Other Specify3400 Cardiovascular:Myocardial Infarctoin3401 Cardiovascular:Arterial Embolism3499 Cardiovascular:Other Specify3500 Cerebrovascular:Stroke3599 Cerebrovascular:Other Specify3600 Hemorrhage:Gastrointestinal3601 Hemorrhage:Intraoperative3699 Hemorrhage:Other Specify3700 Malignancy:Metastatic Other Spcify


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllKI_COD (cont.)KI_COD (cont.)KI_COD (cont.)KI_COD (cont.)KI_COD (cont.) 3701 Malignancy:Primary Other specify

3702 Malignancy:Post-tx Lymphoproliferative3799 Malignancy:Other specify3800 Trauma:Motor Vehicle3899 Trauma:Other Specify3900 Miscellaneous:Diabetes Mellitus3901 Miscellaneous:Intraoperative Other SP3902 Miscellaneous:Pancreatitis3903 Miscellaneous:Renal Faulure3904 Miscellaneous:Respiratory Failure3905 Miscellaneous:Suicide3906 Non-Compliance

KI_C_GRFKI_C_GRFKI_C_GRFKI_C_GRFKI_C_GRF Numeric 1 Hyperacute Rejection2 Acute rejection3 Primary Failure4 Graft Thrombosis5 Infection6 Surgical Complications7 Urological Complications8 Recurrent Disease999 Other Specify Cause

KI_DGNKI_DGNKI_DGNKI_DGNKI_DGN Numeric 999 Other specify3000 IDIO/Post-Inf Crescentic Glomerulonephritis3001 Membranous Glomerulonephritis3002 Mesangio-Capillary 1 Glomerulonephritis3003 Mesangio-Capillary 2 Glomerulonephritis3004 IGA Nephropathy3005 Anti-GBM3006 Focal Glomerularscherosis3007 Chronic Pyelonephritis/Reflux Nephropath3008 Polycystic Kidneys3009 Nephritis3010 Nephrophthisis3011 Diabetes-Type I Insulin Dep/Juv Onset3012 Diabetes-Type II Non-Insulin Dep/Adult3013 Oxalate Nephropathy3014 Cystinosis3015 Fabry’s Disease3016 Amyloidosis3017 Gout3018 Systemic Lupus Erythematosus3019 Progressive Systemic Sclerosis3020 Wilms’Tumor3021 Renal Cell Carcinoma3022 Incidental Carcinoma3023 Myeloma3024 Hemolytic Uremic Syndrome3025 Hypoplasia/Dysplasia/dysgensis/Agenesis3026 Cortical Necrosis3027 Acute Tubular Necrosis3028 Medullary Cystic Disease3029 Sickle Cell Anemia3030 Acquired Obstructive Nephropathy3031 Alport’s Syndrome3032 Familial Nephropathy


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllKI_DGN (cont.)KI_DGN (cont.)KI_DGN (cont.)KI_DGN (cont.)KI_DGN (cont.) 3033 Goodpasture’s Syndrome

3034 Malignant Hypertension3035 Henoch-Schoenlein Purpura3036 Prune Belly Syndrome3037 Retransplant/Graft Failure3038 Diabetes-Type I Non-Insulin Dep/Juv Onset3039 Diabetes-Type II Insulin Dep/Adult Onset3040 Hypertensive Nephrosclerosis3041 Chronic Glomerulonephritis Unspecified3042 Membranous Nephropathy3043 Chronic Glomerulosclerosis Unspecified3044 Analgesic Nephropathy3045 Radiation Nephritis3046 Antibiotic-Inducde Nephritis3047 Cancer Chemotherapy Induced Nephritis3048 Cyclosporin Nephrotoxicity3049 Heroin Nephrotoxicity3050 Renal Artery Thrombosis3051 Chronic Nephrosclerosis-Unspecified3052 Congenital Obstructive Uropathy3053 Scleroderma3054 Wegeners Granulomatosis3055 Polyarteritis3056 Rheumatoid Arthritis3057 Sarcoidosis3058 Lymphoma3059 Nephrolithiasis3060 Urolithiasis3061 Dysplasia3062 Pre-Bmtransplantation Total Body Irradiation

KI_GLKI_GLKI_GLKI_GLKI_GLUMRUMRUMRUMRUMR Numeric 1 0-52 6-103 11-154 16-205 20+

KI_PR_TYKI_PR_TYKI_PR_TYKI_PR_TYKI_PR_TY Numeric 1 Transabdominal2 Flank3 Laparoscopic

KP_PROCKP_PROCKP_PROCKP_PROCKP_PROC Numeric 101 Left Kidney102 Right Kidney103 En-bloc104 Double105 Hemi-renal201 Pancreas Segment202 Whole Pancreas w/Duodenum203 Whole Pancreas w/Duodenal Patch204 Whole Pancreas301 Pancreas Segment/Kidney Rigtht302 Pancreas Segment/Kidney Left303 Pancreas Segment/En-bloc Kidney304 Pancreas Segment/Double Kidneys305 Pancreas Segment/Hemi-renal Kidney306 Whole Pancreas w/Duodenum/Left Kidney307 Whole Pancreas w/Duodenum/Right Kidney308 Whole Pancreas w/Duodenum/En-bloc Kidneys309 Whole Pancreas w/Duodenum/Double Kidneys


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllKP_PROC (cont.)KP_PROC (cont.)KP_PROC (cont.)KP_PROC (cont.)KP_PROC (cont.)

310 Whole Pancreas w/Duodenum/Hemi-renal Kidney311 Whole Pancreas w/Duodenal Patch/Left Kidney312 Whole Pancreas w/Duodenal Patch/Right Kidney313 Whole Pancreas w/Duodenal Patch/En-bloc Kidneys314 Whole Pancreas w/Duodenal Patch/Double Kidneys315 Whole Pancreas w/Duodenal Patch/Hemi-renal Kidney316 Whole Pancreas /Left Kidney317 Whole Pancreas /Right Kidney318 Whole Pancreas /En-bloc Kidneys319 Whole Pancreas /Double Kidneys320 Whole Pancreas /Hemi-renal Kidney

LBKLBKLBKLBKLBKGGGGG Character 1 LBS2 KG

LCRESLCRESLCRESLCRESLCRES Character 1 Not Performed2 Positive3 Negative4 Equivocal

LHAPLHAPLHAPLHAPLHAP Character 1 HLA IDENTICAL2 HAPLO IDENTICAL3 HAPLO DISSSIM4 ID TWIN5 UNKNOWN

LIMIT3ALIMIT3ALIMIT3ALIMIT3ALIMIT3A Character 1 Yes, Limited a lot2 Yes, Limited a little3 No, Not Limited at all

LIVFMTLIVFMTLIVFMTLIVFMTLIVFMT Character 1 yes2 no3 nursing home, institution4 homeless

LRELLRELLRELLRELLREL Character 1 PARENT2 CHILD3 ID TWIN4 FULL SIBL5 HALF SIBL6 OTHER REL7 SPOUSE8 UNKNOWN9 OTHER UNRELATED998 UNKNOWN999 OTHER UNRELATED

MANUFMTMANUFMTMANUFMTMANUFMTMANUFMT Character ‘ Missing1 Abbott2 Baxter/Travenol3 Delmed4 NMC8 Other9 Unknown


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllMARSTMARSTMARSTMARSTMARST Character ‘ Missing

1 Single2 Married3 Widowed4 Divorced5 Separated

MARSTMARSTMARSTMARSTMARSTAAAAATTTTT Character 1 Single2 Married3 Widowed4 Divorced5 Separated6 Unknown

MEDCODEMEDCODEMEDCODEMEDCODEMEDCODE Character 0 ICDA.81 ICD9.CM

MEDIAMEDIAMEDIAMEDIAMEDIATPTPTPTPTP Character 1 Hemo2 IPD3 CAPD4 CCPD5 Other6 Unknown

MEDMEDMEDMEDMEDVVVVVAAAAA Character A Non VA FacilityV Non-Medicare VA FacilityW Medicare VA FacilityY Other

MED_CONDMED_CONDMED_CONDMED_CONDMED_COND Numeric 1 In Intensive Care Unit2 Hospitalized Not In ICU3 Not Hospitalized

MEETHMEETHMEETHMEETHMEETH Character 1 Hisp:Mex2 Hisp Other3 Non-Hisp4 Unknown

MERACEMERACEMERACEMERACEMERACE Character Missing1 American Indian/Alaskan Native2 Asian3 Black4 White5 Unknown6 Pacific Islander7 MidEast8 Indian SubCo9 Other/Multi-racial

MESETMESETMESETMESETMESET Character 1 Hospital Inpatient2 Dialysis Facility3 Home4 Unknown

MESEXMESEXMESEXMESEXMESEX Character 1 Male2 FemaleF FemaleM MaleU Unknown


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllMETXSTMETXSTMETXSTMETXSTMETXST Character 1 Functioning

2 Non-Functioning3 Unknown

MISSEDXMISSEDXMISSEDXMISSEDXMISSEDX Character 1 7 or more times2 4 to 6 times3 2 to 3 times4 once5 not at all

MLCMLCMLCMLCMLC Character A One wayB Two wayC Not Done

MODFMTMODFMTMODFMTMODFMTMODFMT Character 1 HEMODIALYSIS2 CAPD3 CCPD 6-7 DAYS/WK4 IPD <= 5 DAYS/WK5 1ST TX6 SUBSEQUENT TX9 UNABLE TO DETERM

NEOFMTNEOFMTNEOFMTNEOFMTNEOFMT Character 10 Lung11 esophagus/stom.12 breast13 pancreas14 prostate15 liver16 colon/rectal17 myeloma18 lymp./leukemia19 brain20 ovary/uterus21 melanoma/skin22 bladder23 oral/larynx24 kidney25 other/unknown

NEOSITENEOSITENEOSITENEOSITENEOSITE Character 10 Lung11 Stomach/Esophagus12 Breast13 Pancreas14 Prostate15 Liver16 Colon/Rectal17 Myeloma18 Lymphoma/Leukemia19 Brain20 Ovary/Uterus21 Melanoma of skin22 Bladder23 Oral/Larynx24 Kidney25 Other/Unknown

NEPHNEPHNEPHNEPHNEPH Character 1 one2 two3 No


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllNEPHREANEPHREANEPHREANEPHREANEPHREA Character 1 Uncontrolled Hypertension

2 Infection3 Reflux4 Routine Preparation for tx5 Other

NETFMTNETFMTNETFMTNETFMTNETFMT Character 01 (CT) Net. of New England02 (NY) Net. of N.Y.03 (NJ) Trans-Atlantic R. C.04 (PA) ESRD Net. Org. #405 (VA) Mid Atlantic R. C.06 (NC) Southeastern Kidney Council07 (FL) ESRD Net. of Florida08 (MS) Network 809 (IN) Tri-state R. N.10 (IL) Renal Net. of Illinois11 (MN) Renal Net. of upper midwest12 (MO) ESRD net. #1213 (OK) ESRD net. #1314 (TX) Net. of Texas15 (CO) Inter-mountain ESRD net.16 (WA) Northwest Renal Net.17 (N-CA) Trans-pacific ESRD Net.18 (S-CA) Southern California Net.CA (CA,HI) Networks 17 and 18NJ Network 3, New Jersey Only**OTHER** Unknown Network

NETFMTNNETFMTNNETFMTNNETFMTNNETFMTN Character ## Total01 (01 CT) Net. of New England02 (02 NY) Net. of N.Y.03 (03 NJ) Trans-Atlantic R. C.04 (04 PA) ESRD Net. Org. #405 (05 VA) Mid Atlantic R. C.06 (06 NC) Southeastern Kidney Council07 (07 FL) ESRD Net. of Florida08 (08 MS) Network 809 (09 IN) Tri-state R. N.10 (10 IL) Renal Net. of Illinois11 (11 MN) Renal Net. of upper midwest12 (12 MO) ESRD net. #1213 (13 OK) ESRD net. #1314 (14 TX) Net. of Texas15 (15 CO) Inter-mountain ESRD net.16 (16 WA) Northwest Renal Net.17 (17 N-CA) Trans-pacific ESRD Net.18 (18 S-CA) Southern California Net.CA (CA,HI) Networks 17 and 18**OTHER** Unknown Network

NEVRFMTNEVRFMTNEVRFMTNEVRFMTNEVRFMT Character 1 Active2 former3 Never

NOYESNOYESNOYESNOYESNOYES Character 0 No1 Yes

NUTFMTNUTFMTNUTFMTNUTFMTNUTFMT Character 1 Obese/overweight2 Under-nourished/cachetic3 Well-nourished


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllOCCLEVOCCLEVOCCLEVOCCLEVOCCLEV Character ‘ Missing

1 Clerical2 Professional3 Tradeperson4 Manual Labor5 Housewife6 Student7 Other

OCCUPOCCUPOCCUPOCCUPOCCUP Character 1 Clerical2 Professional3 Tradeperson4 Manual Labor5 Student6 Other7 Not employed outside home8 Homemaker9 Disabled

ONCE3AONCE3AONCE3AONCE3AONCE3A Character 1 Once2 More than once3 No, never

ORGANS 400 400 LYMPHOMA & LEUKEMIA W MAJOR O.R. PROCEDURE401 401 LYMPHOMA & NON-ACUTE LEUKEMIA W OTHER O.R. PROC W CC402 402 LYMPHOMA & NON-ACUTE LEUKEMIA W OTHER O.R. PROC W/O CC403 403 LYMPHOMA & NON-ACUTE LEUKEMIA W CC404 404 LYMPHOMA & NON-ACUTE LEUKEMIA W/O CC405 405 ACUTE LEUKEMIA W/O MAJOR O.R. PROCEDURE AGE 0-17406 406 MYELOPROLIF DISORD OR POORLY DIFF NEOPL W MAJ O.R.PROC W CC407 407 MYELOPROLIF DISORD OR POORLY DIFF NEOPL W MAJ O.R.PROC W/O CC408 408 MYELOPROLIF DISORD OR POORLY DIFF NEOPL W OTHER O.R.PROC409 409 RADIOTHERAPY410 410 CHEMOTHERAPY W/O ACUTE LEUKEMIA AS SECONDARY DIAGNOSIS411 411 HISTORY OF MALIGNANCY W/O ENDOSCOPY412 412 HISTORY OF MALIGNANCY W ENDOSCOPY413 413 OTHER MYELOPROLIF DIS OR POORLY DIFF NEOPL DIAG W CC414 414 OTHER MYELOPROLIF DIS OR POORLY DIFF NEOPL DIAG W/O CC415 415 O.R. PROCEDURE FOR INFECTIOUS & PARASITIC DISEASES416 416 SEPTICEMIA AGE >17417 417 SEPTICEMIA AGE 0-17418 418 POSTOPERATIVE & POST-TRAUMATIC INFECTIONS419 419 FEVER OF UNKNOWN ORIGIN AGE >17 W CC420 420 FEVER OF UNKNOWN ORIGIN AGE >17 W/O CC421 421 VIRAL ILLNESS AGE >17422 422 VIRAL ILLNESS & FEVER OF UNKNOWN ORIGIN AGE 0-17423 423 OTHER INFECTIOUS & PARASITIC DISEASES DIAGNOSES424 424 O.R. PROCEDURE W PRINCIPAL DIAGNOSES OF MENTAL ILLNESS425 425 ACUTE ADJUST REACT & DISTURBANCES OF PSYCHOSOCIAL DYSFUNCTION426 426 DEPRESSIVE NEUROSES427 427 NEUROSES EXCEPT DEPRESSIVE428 428 DISORDERS OF PERSONALITY & IMPULSE CONTROL429 429 ORGANIC DISTURBANCES & MENTAL RETARDATION430 430 PSYCHOSES431 431 CHILDHOOD MENTAL DISORDERS432 432 OTHER MENTAL DISORDER DIAGNOSES433 433 ALCOHOL/DRUG ABUSE OR DEPENDENCE, LEFT AMA434 434 ALC/DRUG ABUSE OR DEPEND, DETOX OR OTH SYMPT TREAT W CC435 435 ALC/DRUG ABUSE OR DEPEND, DETOX OR OTH SYMPT TREAT W/O CC


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllORGANS (cont.)(cont.)(cont.)(cont.)(cont.) 436 436 ALC/DRUG DEPENDENCE W REHABILITATION THERAPY

437 437 ALC/DRUG DEPENDENCE, COMBINED REHAB & DETOX THERAPY438 438 NO LONGER VALID439 439 SKIN GRAFTS FOR INJURIES440 440 WOUND DEBRIDEMENTS FOR INJURIES441 441 HAND PROCEDURES FOR INJURIES442 442 OTHER O.R. PROCEDURES FOR INJURIES W CC443 443 OTHER O.R. PROCEDURES FOR INJURIES W/O CC444 444 TRAUMATIC INJURY AGE >17 W CC445 445 TRAUMATIC INJURY AGE >17 W/O CC446 446 TRAUMATIC INJURY AGE 0-17447 447 ALLERGIC REACTIONS AGE >17448 448 ALLERGIC REACTIONS AGE 0-17449 449 POISONING & TOXIC EFFECTS OF DRUGS AGE >17 W CC450 450 POISONING & TOXIC EFFECTS OF DRUGS AGE >17 W/O CC451 451 POISONING & TOXIC EFFECTS OF DRUGS AGE 0-17452 452 COMPLICATIONS OF TREATMENT W CC453 453 COMPLICATIONS OF TREATMENT W/O CC454 454 OTHER INJURY, POISONING & TOXIC EFFECT DIAG W CC455 455 OTHER INJURY, POISONING & TOXIC EFFECT DIAG W/O CC456 456 BURNS, TRANSFERRED TO ANOTHER ACUTE CARE FACILITY457 457 EXTENSIVE BURNS W/O O.R. PROCEDURE458 458 NON-EXTENSIVE BURNS W SKIN GRAFT400 400 LYMPHOMA & LEUKEMIA W MAJOR O.R. PROCEDURE459 459 NON-EXTENSIVE BURNS W WOUND DEBRIDEMENT OR OTHER O.R. PROC460 460 NON-EXTENSIVE BURNS W/O O.R. PROCEDURE461 461 O.R. PROC W DIAGNOSES OF OTHER CONTACT W HEALTH SERVICES462 462 REHABILITATION463 463 SIGNS & SYMPTOMS W CC464 464 SIGNS & SYMPTOMS W/O CC465 465 AFTERCARE W HISTORY OF MALIGNANCY AS SECONDARY DIAGNOSIS466 466 AFTERCARE W/O HISTORY OF MALIGNANCY AS SECONDARY DIAGNOSIS467 467 OTHER FACTORS INFLUENCING HEALTH STATUS468 468 EXTENSIVE O.R. PROCEDURE UNRELATED TO PRINCIPAL DIAGNOSIS469 469 PRINCIPAL DIAGNOSIS INVALID AS DISCHARGE DIAGNOSIS470 470 UNGROUPABLE471 471 BILATERAL OR MULTIPLE MAJOR JOINT PROCS OF LOWER EXTREMITY472 472 EXTENSIVE BURNS W O.R. PROCEDURE473 473 ACUTE LEUKEMIA W/O MAJOR O.R. PROCEDURE AGE >17475 475 RESPIRATORY SYSTEM DIAGNOSIS WITH VENTILATOR SUPPORT476 476 PROSTATIC O.R. PROCEDURE UNRELATED TO PRINCIPAL DIAGNOSIS477 477 NON-EXTENSIVE O.R. PROCEDURE UNRELATED TO PRINCIPAL DIAGNOSIS478 478 OTHER VASCULAR PROCEDURES W CC479 479 OTHER VASCULAR PROCEDURES W/O CC480 480 LIVER TRANSPLANT481 481 BONE MARROW TRANSPLANT482 482 TRACHEOSTOMY FOR FACE,MOUTH & NECK DIAGNOSES483 483 TRACHEOSTOMY EXCEPT FOR FACE,MOUTH & NECK DIAGNOSES484 484 CRANIOTOMY FOR MULTIPLE SIGNIFICANT TRAUMA485 485 LIMB REATTACHMENT, HIP AND FEMUR PROC FOR MULTIPLE SIGNIF TRAUM486 486 OTHER O.R. PROCEDURES FOR MULTIPLE SIGNIFICANT TRAUMA487 487 OTHER MULTIPLE SIGNIFICANT TRAUMA488 488 HIV W EXTENSIVE O.R. PROCEDURE489 489 HIV W MAJOR RELATED CONDITION490 490 HIV W OR W/O OTHER RELATED CONDITION491 491 MAJOR JOINT & LIMB REATTACHMENT PROCEDURES OF UPPER EXTREMITY492 492 CHEMOTHERAPY W ACUTE LEUKEMIA AS SECONDARY DIAGNOSIS493 493 LAPAROSCOPIC CHOLECYSTECTOMY W/O C.D.E. W CC494 494 LAPAROSCOPIC CHOLECYSTECTOMY W/O C.D.E. W/O CC


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllORGANS (cont.)(cont.)(cont.)(cont.)(cont.) 495 495 LUNG TRANSPLANT

496 496 COMBINED ANTERIOR/POSTERIOR SPINAL FUSION497 497 SPINAL FUSION W CC498 498 SPINAL FUSION W/O CC499 499 BACK & NECK PROCS EXCEPT SPINAL FUSION W CC500 500 BACK & NECK PROCS EXCEPT SPINAL FUSION W/O CC501 501 KNEE PROC W PDX OF INFECTION W CC502 502 KNEE PROC W PDX OF INFECTION W/O CC503 503 KNEE PROCEDURES W/O PDX OF INFECTION504 504 EXTENSIVE 3RD DEGREE BURN W SKIN GRAFT505 505 EXTENSIVE 3RD DEGREE BURN W/O SKIN GRAFT506 506 FULL THICK BURN W SK GRAFT OR INHAL INJ W CC OR SIG TR507 507 FULL THICK BURN W SK GRAFT OR INHAL INJ W/O CC OR SIG TR508 508 FULL THICK BURN W/O SK GRAFT OR INHAL INJ W CC OR SIG TR509 509 FULL THICK BURN W/O SK GRAFT OR INHAL INJ W/O CC OR SIG TR510 510 NON-EXTENSIVE BURNS W CC OR SIGNIFICANT TRAUMA511 511 NON-EXTENSIVE BURNS W/O CC OR SIGNIFICANT TRAUMA999 999 MissingT 5 T 5 Unknown

ORGTPORGTPORGTPORGTPORGTP Character KI KidneyKP Kidney PancreasLI LiverPA Orig Registered for Pancreas

ORG_TYPORG_TYPORG_TYPORG_TYPORG_TYP Character HL Heart/LungHR HeartIN IntestineKI KidneyKP Kidney/PancreasLI LiverLU LungPA PancreasPI Pancreas Islet

PPPPPAIN6AAIN6AAIN6AAIN6AAIN6A Character 1 None2 Very mild3 Mild4 Moderate5 Severe6 Very severe

PPPPPARARARARARTTTTTABABABABAB Character IN Institutional ClaimsPS Physician/Supplier Claims

PPPPPAAAAATTTTTSTSTSTSTSTAAAAATTTTT Character ‘ Missing1 Dead2 Hemodialysis3 Peritoneal dialysis4 Transplanted5 Recovered renal function6 Lost to follow-up/transfered

PPPPPAAAAAYYYYYCACACACACATTTTT Character HMO Group Health OrganizationMED MedicareMM Medicare and MedicaidMSP Medicare as Secondary PayerOTH Other/Unknown


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllPPPPPA_DA_DA_DA_DA_DGNGNGNGNGN Numeric 999 Other Specify

5000 Retransplant/Graft Failure5001 Diabetes Mellitus-Type I5002 Diabetes Mellitus-Type II5003 Diabetes Sec To Chron Pancreatitis W/O P5004 Diabetes Sec To CF W/O Pancreatectomy5005 Pancreatic Cancer5006 Bile Duct Cancer5007 Other Cancers5008 Pancreatectomy Prior To Pancreas TX

PD96DETPD96DETPD96DETPD96DETPD96DET Character ***UNRECONCILABLE CODE******** NO MEDICAL EVIDENCE FORM00000Z MISSING ON MEDICAL EVIDENCE FORM00U CODE IS IN PMMIS BUT NOT DEFINED IN RENAL PROVIDER INSTRUCTIONS0160Z RENAL TUBERCULOSIS0429A AIDS nephropathy0429Z AIDS, OR HIV INFECTION WITH SPECIFIED OR MALIGNANT NEOPLASMS0439Z AIDS-LIKE SYNDROME, OR HIV INFECTION WITH OTHER SPECIFIED MANIFEST0449Z HIV INFECTION (DISEASE) (ILLNESS), OR OTHER HIV INFECTION NOT CLASSIFIED135Z SARCOIDOSIS1890B Renal tumor (malignant)1890Z CANCER OF KIDNEY, EXCEPT PELVIS1891Z CANCER OF RENAL PELVIS (CALYX, HILUS)1899A Urinary tract tumor (malignant)1899Z ***UNRECONCILABLE CODE***189Z CANCER OF KIDNEY AND OTHER UNSPECIFIED URINARY ORGANS20280A Lymphoma of kidneys20283Z LYMPHOMA, INTRA-ABDOMINAL20285Z LYMPHOMA, INGUINAL REGION20286Z LYMPHOMA, INTRAPELVIC2028Z LYMPHOMAS2030A Multiple myeloma2030B Light chain nephropathy2030Z MULTIPLE MYELOMA / LIGHT CHAIN DISEASE203Z MULTIPLE MYELOMA AND IMMUNOPROLIFERATIVE NEOPLASMS2230A Renal tumor (benign)2239A Urinary tract tumor (benign)2395A Renal tumor (unspecified)2395B Urinary tract tumor (unspecified)25000A Type II, adult-onset type or unspecified type diabetes25000Z DIABETES, ADULT / DIABETES TYPE II / NIDDM25001A Type I, juvenile type, ketosis prone diabetes25001Z JUVENILE ONSET DIABETES MELLITUS / DIABETES TYPE I / IDDM2500Z DIABETES2501Z DIABETES (CODE NOT IN HCFA LISTS).25040Z DIABETES WITH RENAL MANIFESTATIONS TYPE II25041Z DIABETES WITH RENAL MANIFESTATIONS TYPE I2504Z DIABETES WITH RENAL MANIFESTATIONS2700A Cystinosis2700Z CYSTINOSIS, MALIGNANT2718B Primary oxalosis2718Z OXALATE NEPHROPATHY / OXALOSIS2727A Fabrys disease2727Z FABRYS DISEASE2733Z MACROGLOBULINEMIA27410A Gouty nephropathy27410Z GOUTY NEPHROPATHY, UNSPECIFIED27411Z URATE NEPHROPATHY / URIC ACID NEPHROLITHIASIS


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllPD96DET (cont.)PD96DET (cont.)PD96DET (cont.)PD96DET (cont.)PD96DET (cont.) 2741Z GOUTY NEPHROPATHY / URATE NEPHROPATHY

2754A Nephrocalcinosis2773A Amyloidosis2773Z AMYLOIDOSIS28260A Sickle cell disease/anemia28260Z SICKLE-CELL ANEMIA, UNSPECIFIED28261Z HB-S DISEASE WITHOUT MENTION OF CRISIS28262Z HB-S DISEASE WITH CRISIS28263Z SICKLE-CELL/HB-C DISEASE (HB-S/HB-C DISEASE)28269A Sickle cell trait and other sickle cell (HbS/Hb other)28269Z OTHER SICKLE-CELL (INCLUDES: HB-S/HB-D DISEASE, HB-S/HB-E DISEASE)2826Z SICKLE CELL DISEASE28283Z LYMPHOMA, INTRA-ABDOMINAL REGION28286Z LYMPHOMA, INTRA-PELVIC REGION2831A Hemolytic uremic syndrome2831Z HEMOLYTIC UREMIC SYNDROME2870A Henoch-Schonlein syndrome2870Z HENOCH-SCHONLEIN SYNDROME2873Z AMYLOIDOSIS (CODE NOT IN CURR HCFA LISTS-ASSUMED MISCODE OF 2773)4010Z MALIGNANT HYPERTENSION4011Z BENIGN HYPERTENSION4019Z ESSENTIAL HYPERTENSION, UNSPECIFIED401Z ESSENTIAL HYPERTENSION4030Z NEPHROSCLEROSIS, MALIGNANT / HYPERTENSIVE RENAL DISEASE, MALIG4031Z NEPHROSCLEROSIS, BENIGN / HYPERTENSIVE RENAL DISEASE, BENIGN4039D Renal disease due to hypertension (no primary renal disease)4039Z NEPHROSCLEROSIS / HYPERTENSIVE RENAL DISEASE / OTHERS403Z HYPERTENSIVE RENAL DISEASE4040Z HYPERTENSIVE HEART AND RENAL DISEASE, MALIGNANT4041Z HYPERTENSIVE HEART AND RENAL DISEASE, BENIGN4049Z CARDIORENAL SYNDROME/HYPERTENSIVE HEART & RENAL DISEASE, UNSPEC404Z HYPERTENSIVE HEART AND RENAL DISEASE4401A Renal artery stenosis4401Z STENOSIS, RENAL ARTERY4431Z BUERGERS (BERGERS) DISEASE4460C Polyarteritis4460Z POLYARTERITIS, RENAL44629Z *** CODE IN ERROR: ASSUMED TO BE 4462.4462A Vasculitis and its derivatives4462Z ANTI-GLOMERULOBASEMENT MEMBRANE GLOMER./GOODPAST DISEASE/VASC4464B Wegeners granulomatosis4464Z GRANULOMATOSIS / WEGENERS GRANULOMATOSIS / WEGENERS SYNDROME4466Z THROMBOTIC THROMBOCYTOPENIC PURPURA5724A Hepatorenal syndrome5724Z HEPATORENAL SYNDROME5800C Post infectious GN, SBE5800Z GLOMERULONEPHRITIS, ACUTE5804B Rapidly progressive GN5804Z GLOMERULONEPHRITIS, ACUTE W/ LESION OF RAPIDLY PROG GLOM58089A Acute interstitial nephritis58089Z ACUTE INTERSTITIAL NEPHRITIS5809Z ACUTE GLOMERULONEPHRITIS W/ UNSPECIFIED PATHOLOGICAL LESION IN KID5811Z FOCAL GLOMERULONEPH/FOCAL GLOMERULOSCLEROSIS W/ NEPHROTIC SYND5818Z FOCAL GLOMERULOSCLEROSIS WITH NEPHROTIC SYNDROME5819Z NEPHROTIC SYNDROME / NEPHROSIS5820A Other proliferative GN5820Z ***UNRECONCILABLE CODE***5821A Focal glomerulosclerosis, focal sclerosing GN5821Z FOCAL GLOMERULOSCLEROSIS


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllPD96DET (cont.)PD96DET (cont.)PD96DET (cont.)PD96DET (cont.)PD96DET (cont.) 58289Z CHRONIC INTERSTITIAL NEPHRITIS / HEREDITARY INTERSTITIAL NEPHRITIS

5829A Glomerulonephritis (GN)5829Z CHRONIC GLOMERULONEPHRITIS, INCLUD W/ UNSPEC PATH LESION IN KID5830B Radiation nephritis5830Z PROLIFERATIVE GLOMERULONEPHRITIS / RADIATION NEPHRITIS/SHUNT NEPH5831A Membranous nephropathy5831Z MEMBRANOUS GLOMERULONEPHRITIS5832A Membranoproliferative GN type 1, diffuse MPGN5832C Dense deposit disease, MPGN type 25832Z MEMBRANOPROLIFERATIVE GLOM ONEPHRITIS/MESANGIOCAPILLARY GLOM5834C Goodpastures Syndrome5834Z ANTI-GBN GLOMERULONEPHRITIS5836A Tubular necrosis (no recovery)5836Z ***UNRECONCILABLE CODE***5837Z NEPHRITIS OR NEPHROPATHY WITH RENAL MEDULLARY LESION58381B IgA nephropathy, Bergers disease58381C IgM nephropathy58381Z NEPHRITIS AND NEPHROPATHY, NOT SPECIFIED AS ACUTE OR CHRONIC58389B Chronic interstitial nephritis58389Z ANALGESIC NEPHROPATHY/OTHER INTERST NEPHRITIS/INTERSTIT RENAL DIS5839B Secondary GN, other5839C Nephropathy due to heroin abuse and related drugs5839D Drash syndrome, mesangial sclerosis5839Z GLOMERULON./NEPHRITIS/NEPHROPATHY/BRIGHTS DISEASE/RENAL INSUFF5845Z NEPHROTOXINS (VARIOUS)/TOXIC NEPHROPATHY (SPECIFY)/RENAL TUB DIS585Z CHRONIC RENAL FAILURE/CHRONIC UREMIA/HEROIN ABUSE NEPHROPATHY586Z RENAL FAILURE, UNSPECIFIED / UREMIA, NOT OTHERWISE SPECIFIED587Z GLOMERULOSCLEROSIS5890Z UNILATERAL SMALL KIDNEY5891Z BILATERAL SMALL KIDNEY5899Z SMALL KIDNEY, UNSPECIFIED589Z SMALL KIDNEY OF UNKNOWN CAUSE59000Z CHRONIC PYELONEPHRITIS W/OUT LESION OF RENAL MEDULLARY NECROSIS59001Z PYELONEPHRITIS, CHRONIC WITH LESION OF RENAL MEDULLARY NECROSIS5900A Chronic pyelonephritis, reflux nephropathy5900Z CHRONIC PYELONEPHRITIS59080Z PYELONEPHRITIS, UNSPECI/NECROSIS, RENAL (GANGRENE)/TUBULAR NECROSIS5909A Nephropathy caused by other agents5909Z INFECTIONS OF KIDNEY591Z HYDRONEPHROSIS5920C Nephrolithiasis5920Z CALCULI (RENAL)/NEPHROLITHIASIS/STAGHORN CALCULUS5929B Urolithiasis5929Z URINARY CALCULUS, UNSPECIFIED59381B Renal artery occlusion59381E Cholesterol emboli, renal emboli59381Z THROMBOSIS RENAL ART/KIDNEY ART EMBOLISM/OCCLUSION RENAL ARTERY59389A Other renal disorders59389Z OBSTRUCTIVE KIDNEY / OBSTRUCTIVE NEPHROPATHY5939Z RENAL INSUFFICIENCY5990Z URINARY TRACT INFECTION, SITE NOT SPECIFIED5996A Acquired obstuctive uropathy5996Z URINARY OBSTRUCTION, UNSPECIFIED / OBSTRUCTIVE UROPATHY599Z OBSTRUCTIVE UROPATHY, ACQUIRED / URINARY OBSTRUCTION (SPECIFY)600Z HYPERPLASIA OF PROSTATE6393Z CHRO UREMIA/UREMIA/***PMMIS DOC. ERROR-SHOULDN’T GET THIS CODE ***64620A Post partum renal failure64620Z RENAL FAILURE (IN PREGNANCY, CHILDBIRTH, PUERPERIUM)6462Z RENAL FAILURE (IN PREGNANCY, CHILDBIRTH, PUERPERIUM)


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllPD96DET (cont.)PD96DET (cont.)PD96DET (cont.)PD96DET (cont.)PD96DET (cont.) 6954Z LUPUS ERYTHEMATOSUS

7100E Lupus erythematosus, (SLE nephritis)7100Z SYSTEMIC LUPUS ERYTHEMATOSUS / LUPUS NEPHRITIS7101B Scleroderma7101Z SCLERODERMA7140Z RHEUMATOID ARTHRITIS72889Z RAMBDOMYOLYSIS7530B Renal hypoplasia, dysplasia, oligonephronia7530Z HYPOPLASIA KIDNEY DISEASE / SOLITARY KIDNEY75313A Polycystic kidneys, adult type (dominant)75313Z ***UNRECONCILABLE CODE***75314A Polycystic, infantile (recessive)75316A Medullary cystic disease, including nephronophthisis7531Z CYSTIC KID DISEASE/MEDULLARY CYSTIC, MULTICYSTIC, POLYCYSTIC KID DIS7532A Congenital obstructive uropathy7532Z OBSTRUCTIVE DEFECTS OF RENAL PELVIS AND URETER7533A Congenital nephrotic syndrome7533Z CALCULI RENAL, CONGENITAL / OBSTRUCTIVE UROPATHY, CONGENITAL7539Z DYSPLASIA (ANOMALY) OF KIDNEY753Z CONGENITAL ANOMALIES OF URINARY SYSTEM/RENAL AGENESIS & DYSGENESIS7567A Prune belly syndrome7567Z ***UNRECONCILABLE CODE***7595A Tuberous sclerosis7595Z TUBEROUS SCLEROSIS7598A Hereditary nephritis, Alports syndrome7598B Hereditary/familial nephropathy7598Z ALPORTS SYNDROME7999A Etiology uncertain7999Z CAUSE UNKNOWN8660A Traumatic or surgical loss of kidney(s)8660Z ***UNRECONCILABLE CODE***88888Z DIAGNOSIS NOT ON CODING LIST8999Z CAUSE UNKNOWN [CODE IN ERROR—ASSUMED TO BE 7999]9654Z AROMATIC ANALGESICS, PHENACETIN (ACETOPHENETIDIN)9659A Analgesic abuse9659Z ANALGESIC ABUSE (SPECIFY)9778Z RHABDOMYOLYSIS (X-RAY DYE REACTION)9828Z ETHYLENE GLYCOL INGESTION9849A Lead nephropathy99680A Complication post bone marrow or other transplant99681Z REJECTION, TRANSPLANT, KIDNEY9968Z REJECTION, TRANSPLANT99999Z CAUSE UNKNOWN9999Z CAUSE UNKNOWNU CAUSE UNKNOWNUUUUU CAUSE UNKNOWN**OTHER** ***UNRECONCILABLE CODE***

PDISD2WPDISD2WPDISD2WPDISD2WPDISD2W Character 1 Diabetes2 Hypertension3 Primary glomerulonephritis4 Other

PDTYPEPDTYPEPDTYPEPDTYPEPDTYPE Character 1 CAPD only2 Cycler(full when off cycler)3 Cycler(empty when off cycler)4 Combined


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllPEPULCERPEPULCERPEPULCERPEPULCERPEPULCER Numeric 1 No

2 Yes, Drug Treated3 Yes, Not Drug Treated4 Yes, Treatment Unknown998 Unknown

PERILOCPERILOCPERILOCPERILOCPERILOC Character ‘ Missing1 Home2 Home Training3 In-center

PERITYPPERITYPPERITYPPERITYPPERITYP Character ‘ Missing1 CAPD2 CCPD3 IPD

PLACESVPLACESVPLACESVPLACESVPLACESV Character 11 Office12 Home21 Inpatient Hospital22 Outpatient Hospital23 Emergence Room - Hospital24 Ambulatory Surgical Center25 Birthing Center26 Military Treatment Facility31 Skilled Nursing Facility32 Nursing Facility33 Custodial Care Center34 Hospice41 Ambulance - Land42 Ambulance - Air or Water51 Inpatient Psychiatric Facility52 Psych Facil Partial Hospitalization53 Community Mental Health Center54 Intermed Care Facility/Mentally Retarded55 Residential Substance Abuse Facility56 Psychiatric Residential Center61 Comprehensive Inpatient Rehab Facility62 Comprehensive Outpatient Rehab Facility65 End Stage Renal Disease Treatment71 State/Local Public Health Clinic81 Independent Laboratory99 Other Unlisted Facility

PMBLDPMBLDPMBLDPMBLDPMBLD Character 1 O2 A3 B4 AB

PMETHNPMETHNPMETHNPMETHNPMETHN Character 1 Hispanic Origin2 Not of Hispanic Origin3 UnknownU Unknown

POSFMTPOSFMTPOSFMTPOSFMTPOSFMT Character ‘ Missing1 Positive2 Negative

PRIORPRIORPRIORPRIORPRIOR Character 1 0-5 hrs prior to harvest2 5 or more hrs prior to harvest


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllPROBLEMPROBLEMPROBLEMPROBLEMPROBLEM Character 1 No problem

2 A little problem3 Somewhat of a problem4 Very much a problem5 Severe problem

PROVSPPROVSPPROVSPPROVSPPROVSP Character 00 Carrier Wide01 General Practice02 General Surgery03 Allergy/Immunology04 Otolaryngology05 Anesthesiology06 Cardiology07 Dermatology08 Family Practice09 Gynecology (DOs to 10/91)10 Gastroenterology11 Internal Medicine12 Osteopathic Manipulative Therapy13 Neurology14 Neurosurgery15 Obstetrics (DOs to 10/91)16 OB-Gynecology17 Ophth-Oto-Rhino-Laryn (DOs to 10/91)18 Ophthalmology19 Oral Surgery (Dentists Only)20 Orthopedic Surgery21 Path Anat/Clin Path (DOs to 10/91)22 Pathology23 Periph Vasc Disease (DOs to 10/91)24 Plastic and Reconstructive Surg25 Phys Med and Rehab26 Psychiatry27 Psych/Neurology (DOs to 10/91)28 Colorectal Surgery29 Pulmonary Disease30 Diagnostic Radiology31 Roentgenology (DOs to 10/91)32 Radiation Therapy (DOs to 10/91)33 Thoracic Surgery34 Urology35 Chiropractic36 Nuclear Medicine37 Pediatric Medicine38 Geriatric Medicine39 Nephrology40 Hand Surgery41 Optometrist42 Certified Nurse Midwife43 CRNA, Anesthesia Asst.44 Infectious Disease45 Mammography Screening Center46 Endocrinology48 Podiatry49 Ambulatory Surg. Center50 Nurse Practitioner51 Med Supply Co. w/ Orthotist52 Med Supply Co. w/ Prosthetist53 Med Supply Co. w/ Prosth-Orthot


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllPROVSP (cont.)PROVSP (cont.)PROVSP (cont.)PROVSP (cont.)PROVSP (cont.) 54 Other Med SUpply Co.

55 Individual Cert Orthotist56 Individual Cert Prosthetist57 Individual Cert Prosth-Orthot58 Inds not above (10/93 Med suppl w/ Pharm)59 Ambulance Service Supplier60 Publ Health or Welfare Agencies61 Volun Health or Charitable Agencies62 Psychologist63 Portable X-Ray Supplier64 Audiologist65 Physical Therapist66 Rheumatology67 Occupational Therapist68 Clinical Psychologist69 Clinical Laboratory70 Multispecialty Clinic/Group Practice71 Diagnostic X-Ray (no use after 5/92)72 Diagnostic Lab (no use after 5/92)73 Physiotherapist (no use after 5/92)74 Occupat Therapist (no use after 5/92)75 Other Med Care (no use after 5/92)76 Peripheral Vascular Disease77 Vascular Surgery78 Cardiac Surgery79 Addiction Medicine80 Clinical Social Worker81 Critical Care (Intensivists)82 Hematology83 Hematology/Oncology84 Preventative Medicine85 Maxillofacial Surgery86 Neuropsychiatry87 All other Suppliers (Drug/Department Stores)88 Unknown Provider/Supplier Specialty89 Cert Clinical nurse Specialist90 Medical Oncology91 Surgical Oncology92 Radiation Oncology93 Emergency Medicine94 Interventional Radiology95 Indep Physiological Lab96 Optician (on 10/93/Unknown Phys Spec before)97 Physician Assistant99 Unknown Supplier/ProviderA0 Hospital (Eff 10/93)A1 SNF (Eff 10/93)A2 Intermed Care Nursing Facility (Eff 10/93)A3 Other Nursing Facility (Eff 10/93)A4 HHA (Eff 10/93)A5 Pharmacy (Eff 10/93)A6 Med Supply Co. w/ Respir Therapist (Eff 10/93)A7 Department Store (Eff 10/93)A8 Grocery Store (Eff 10/93)

PRPPRPPRPPRPPRPAAAAAYR YR YR YR YR Character 01 Pos WORKERS COMP2 Pos. BLACK LUNG3 Pos. DVA


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllPRPPRPPRPPRPPRPAAAAAYR (cYR (cYR (cYR (cYR (cooooont.)nt.)nt.)nt.)nt.) A WORKING W EGHP

B ESRD EGHP—MSPC CONDITIONAL PAYMD AUTOMOBILE INSE WORKERS COMPF PHS / OTHER FEDG WORKING DISABLEDH BLACK LUNGI DVAJ LIABILITY INSM OR: EGHPN OR: NON-EGHPX OR: NO MSP COSTYZ

PRV_PREGPRV_PREGPRV_PREGPRV_PREGPRV_PREG Numeric 0 No Previous Pregnancy1 1 Previous Pregnancies2 2 Previous Pregnancies3 3 Previous Pregnancies4 4 Previous Pregnancies5 5 Previous Pregnancies6 More than 5 Previous Pregnancies996 N/A:Male**OTHER** Other

PSTPSTPSTPSTPSTAAAAATTTTT Character A AliveD DeadL LostR Retransplanted

PXSTIIPXSTIIPXSTIIPXSTIIPXSTII Character A LivingD DeadL Lost to Follow-upR Retransplated

P_N_UP_N_UP_N_UP_N_UP_N_U Character N NegativeP PositiveU Unknown

P_S_PP_S_PP_S_PP_S_PP_S_PAAAAAYYYYY Numeric 1 Medicare2 Medicaid3 US/State Govt Agency4 Private Insurance5 HMO/PPO6 Self7 Donation8 Free Care9 Dept Veterans Affairs10 Pending11 Foreign Govt, Specify

QOLHDPDQOLHDPDQOLHDPDQOLHDPDQOLHDPD Character 1 Hemodialysis2 Peritoneal dialysis3 Peritoneal and hemodialysis are same4 Dont know

QQQQQUUUUUAL10AAL10AAL10AAL10AAL10A Character 00 Poor Quality10 High Quality


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllRACEDMSRACEDMSRACEDMSRACEDMSRACEDMS Character 1 White

2 Black3 Asian4 NAmer5 other

RACEFMTRACEFMTRACEFMTRACEFMTRACEFMT Character # All1 Native Amer.2 Asian3 Black4 White5 Unknown9 OtherT All

REASFMTREASFMTREASFMTREASFMTREASFMT Character 1 BORN < 1/1/712 DIED < 2/1/903 TREATED <30 DAYS

REHABREHABREHABREHABREHAB Character 1 Complete disability: hosp. or bedridden2 Unable to work or attend school3 Works/school part-time (<50%)4 Works/school part-time (>50%)5 Works/school FT, below pre-illness level6 Works/school FT at pre-illness level7 Able to work/school, chooses not to8 Able to work but cannot find work**OTHER** Unknown

REJ_TRETREJ_TRETREJ_TRETREJ_TRETREJ_TRET Numeric 1 Not Treated2 Treated/no Biopsy3 Treated/Biopsy Done/Rej Confirmed4 Treated/Biopsy Done/Rej not Confirmed

REMCDREMCDREMCDREMCDREMCD Number 4 “Cadaveric Tx, Removed by Tx Center”5 Medically Unsuitable (code removed 4/95) 6 Refused Transplant7 Transferred to Another Center8 Died9 Other10 Listed in Error11 Listed for AddL Unacceptable Antigens Only12 “Condition Improved, Tx Not Needed”13 “Condition Deteriorated, Too sick for Tx”14 Transplanted at Another Center15 “Living Donor Tx, Removed by Tx Center”16 Removed in Error17 Changed KP (by system)18 Cadaveric Emergency Tx19 Cadaveric Multi-Organ Tx20 Program inactive for 2+ years21 Patient died during Tx Procedure

REU_TECREU_TECREU_TECREU_TECREU_TEC Character 1 Manual2 Automated3 Both Man and Auto


FFFFFooooorrrrrmat Fmat Fmat Fmat Fmat Fooooorrrrrmat Smat Smat Smat Smat Startartartartarttttting ing ing ing ing VVVVValalalalalue Fue Fue Fue Fue FooooorrrrrmatmatmatmatmatNNNNName Tame Tame Tame Tame Tyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllREVTYPEREVTYPEREVTYPEREVTYPEREVTYPE Character 01 Med. declotting

02 B.Angio.w/throm03 B.A. wout throm04 Surg declotting05 SRev of ExistAcc06 New AV Fistula07 New PTFE graft08 New Other P.A.09 Other

RFIFMTRFIFMTRFIFMTRFIFMTRFIFMT Character 0 Pre-1981 record1 Post-1981 record

RRRRRXXXXXCACACACACATDTTDTTDTTDTTDT Character 1 Center hemo2 Center self hemo3 Home hemo4 Hemo Training5 CAPD6 CAPD Training7 CCPD8 CCPD Training9 Other periA UncertainD DeathT TransplantX Lost to followup

RRRRRXXXXXCACACACACATTTTTGPGPGPGPGP Character 1 Center hemo2 Center self hemo3 Home hemo5 CAPD7 CCPD9 Other periA UncertaiD DeathT TransplantX Lost to followup

RRRRRXXXXXCACACACACATICTICTICTICTIC Character 1 Center hemo2 Center self hemo3 Home hemo4 Hemo Training5 CAPD6 CAPD Training7 CCPD8 CCPD Training9 Other periA UncertainT Transplant

RRRRRXXXXXGRGRGRGRGROUPOUPOUPOUPOUP Character 1 Death2 Transplant3 Unknown4 Center hemo5 Home hemo6 Center self hemo7 CAPD8 CCPD


FFFFFooooorrrrrmat Fmat Fmat Fmat Fmat Fooooorrrrrmat Smat Smat Smat Smat Startartartartarttttting ing ing ing ing VVVVValalalalalue Fue Fue Fue Fue FooooorrrrrmatmatmatmatmatNNNNName Tame Tame Tame Tame Tyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllRRRRRXXXXXGRGRGRGRGROUP (cOUP (cOUP (cOUP (cOUP (cooooont.)nt.)nt.)nt.)nt.) 9 Other peri

A Unknown dialysisB Unstable dialysisX Lost to followup

RXSTOPRXSTOPRXSTOPRXSTOPRXSTOP Character A Yes, following HD and/or PD access failureB Yes, following transplant failureC Yes, following chronic failure to thriveD Yes, following acute medical complicationE Yes, otherN NoU UnknownY Yes, Dialysis stop reason unknown

SCHOFMTSCHOFMTSCHOFMTSCHOFMTSCHOFMT Character 1 MOSTLY FULL TIME2 MOSTLY PART TIME3 MOSTLY HOMEBOUND4 NONE/NO DIPLOMA5 NONE/HAS DIPLOMA9 NO INFO AVAIL.

SCREENSCREENSCREENSCREENSCREEN Character C Cannot DiscloseI IndeterminateN NegativeND Not DoneP PositiveU Unknown

SELECTSELECTSELECTSELECTSELECT Character 1 I took the lead in selecting my treatmnt2 The medical team took the lead in select3 The medical team and I contributed equal

SEXFMTSEXFMTSEXFMTSEXFMTSEXFMT Character # All1 Male2 FemaleT All**OTHER** Unknown

SHARE_TYSHARE_TYSHARE_TYSHARE_TYSHARE_TY Numeric 1 Zero Antigen Mismatch2 Payback3 Local4 Regional5 National

SIDESIDESIDESIDESIDE Character 1 Right2 Left

SMOKFMTSMOKFMTSMOKFMTSMOKFMTSMOKFMT Character ‘ Missing1 Active Smoker2 Former Smoker3 Smoker, curr status unknown.4 Non-Smoker

STSTSTSTSTAAAAATETETETETE Character AK ALASKAAL ALABAMAAR ARKANSASAZ ARIZONACA CALIFORNIACO COLORADO


FFFFFooooorrrrrmat Fmat Fmat Fmat Fmat Fooooorrrrrmat Smat Smat Smat Smat Startartartartarttttting ing ing ing ing VVVVValalalalalue Fue Fue Fue Fue FooooorrrrrmatmatmatmatmatNNNNName Tame Tame Tame Tame Tyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllSTSTSTSTSTAAAAATE (cTE (cTE (cTE (cTE (cooooont.)nt.)nt.)nt.)nt.) CT CONNECTICUT

DC DIST. OF COLUMBIADE DELAWAREFL FLORIDAGA GEORGIAGU GUAMHI HAWAIIIA IOWAID IDAHOIL ILLINOISIN INDIANAKS KANSASKY KENTUCKYLA LOUISIANAMA MASSACHUSETTSMD MARYLANDME MAINEMI MICHIGANMN MINNESOTAMO MISSOURIMS MISSISSIPPIMT MONTANANA FOREIGN COUNTRYNC NORTH CAROLINAND NORTH DAKOTANE NEBRASKANH NEW HAMPSHIRENJ NEW JERSEYNM NEW MEXICONV NEVADANY NEW YORKOH OHIOOK OKLAHOMAOR OREGONPA PENNSYLVANIAPR PUERTO RICORI RHODE ISLANDSC SOUTH CAROLINASD SOUTH DAKOTATN TENNESSEETX TEXASUT UTAHVA VIRGINIAVI VIRGIN ISLANDSVT VERMONTWA WASHINGTONWI WISCONSINWV WEST VIRGINIAWY WYOMINGZZ UNKNOWN01 Alabama02 Alaska03 American Samoa04 Arizona05 Arkansas06 California08 Colorado09 Connecticut10 Delaware


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllSTSTSTSTSTAAAAATE (cTE (cTE (cTE (cTE (cooooont.)nt.)nt.)nt.)nt.) 11 District of Columbia

12 Florida13 Georgia15 Hawaii16 Idaho17 Illinois18 Indiana19 Iowa20 Kansas21 Kentucky22 Louisiana23 Maine24 Maryland25 Massachusetts26 Michigan27 Minnesota28 Mississippi29 Missouri30 Montana31 Nebraska32 Nevada33 New Hampshire34 New Jersey35 New Mexico36 New York37 North Carolina38 North Dakota39 Ohio40 Oklahoma41 Oregon42 Pennsylvania44 Rhode Island45 South Carolina46 South Dakota47 Tennessee48 Texas49 Utah50 Vermont51 Virginia53 Washington54 West Virginia55 Wisconsin56 Wyoming60 American Samoa61 Panama Canal Zone62 Canton/Enderbury Is.64 Micronesia66 Guam67 Johnston Atoll68 Marshall Islands69 North Mariana Islands70 Palua71 Midway Island72 Puerto Rico74 Minor Islands75 Pacific Trust Territories76 US Carribean Is.77 US misc Pacific Is.78 Virgin Islands


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllSTSTSTSTSTAAAAATE (cTE (cTE (cTE (cTE (cooooont.)nt.)nt.)nt.)nt.) 79 Wake Island

81 Baker Island84 Howland Island86 Jarvis Island89 Kingman Reef95 Palmyra Atoll98 Foreign (SSA code)FR Foreign (SSA code)OC Oceania (SSA code)UP US Poss.(SSA code)**OTHER** Unknown State

STERFMTSTERFMTSTERFMTSTERFMTSTERFMT Character 1 YES, DAILY2 YES, ALTERN. DAY3 NO9 NO INFO AVAIL.

STORSOLNSTORSOLNSTORSOLNSTORSOLNSTORSOLN Numeric 400 Viospan(UW/Belzer)401 Eurocollins402 Modified Collins403 Saline404 Ringers998 Unknown999 Other SPecify

SUSPCTSUSPCTSUSPCTSUSPCTSUSPCT Character 1 yes2 no3 suspected

TTTTTANFMTANFMTANFMTANFMTANFMT Character 1 STAGE 12 STAGE 23 STAGE 34 STAGE 45 STAGE 5

TECFMTTECFMTTECFMTTECFMTTECFMT Character ‘ Missing01 Standard spike02 Standard luer lock03 Standard spike assist04 Sterile connecting device05 O-set (no antiseptic)06 O-set (with antiseptic)07 Y-set (no antiseptic, disposable)08 Y-set (with antiseptic)09 Y-set (UV)10 Standard ultraviolet device (UV)88 Other

TECFMTTECFMTTECFMTTECFMTTECFMT Numeric 1 Standard2 Y-set3 UV4 Other5 O-set


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllTERMCODTERMCODTERMCODTERMCODTERMCOD Character 1 Invol. Withdrawal

2 Fail meet Hlth/Sfty Stan3 Fail meet Min Util. Rate4 Fail meet Need Reqrments5 Closed6 Other

TGT_CELLTGT_CELLTGT_CELLTGT_CELLTGT_CELL Numeric 1 Peripheral Blood Lymphocytes2 Lymph nodes3 Spleen4 Multiple6 Thymocytes7 Cell lines/clonal Cells8 Solid Matrix

TIMBF1ATIMBF1ATIMBF1ATIMBF1ATIMBF1A Character 1 More than 1 year prior to starting dialy2 Between 4 months and 1 year before start3 Between 2 months and 3 months4 Between 1 and 4 weeks before starting di5 Less than a week before dial/not at all6 Not sure

TIMBF2ATIMBF2ATIMBF2ATIMBF2ATIMBF2A Character 1 Yes, between 1 and 2 years prior to dial2 Between 4 months and 1 year before start3 Between 1 month and 3 months4 Less than 1 month5 Not sure

TIMBF3ATIMBF3ATIMBF3ATIMBF3ATIMBF3A Character 1 More than 1 year prior to starting dial2 Between 4 months and 1 year before start3 Between 1 month and 3 months4 Less than 1 month5 Did not ...(N/A)6 Not sure

TIMBF4ATIMBF4ATIMBF4ATIMBF4ATIMBF4A Character 1 More than 6 months2 3-6 months3 1-2 months4 Less than 1 month5 I did not ... (N/A)6 Not sure

TIME5ATIME5ATIME5ATIME5ATIME5A Character 1 All of the time2 Most of the time3 Some of the time4 A little of the time5 None of the time

TIME6ATIME6ATIME6ATIME6ATIME6A Character 1 All of the Time2 Most of the Time3 A Good Bit of the Time4 Some of the Time5 A Little of the Time6 None of the Time

TIMEZONETIMEZONETIMEZONETIMEZONETIMEZONE Numeric 1 Eastern2 Central3 Mountain4 Pacific


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllTIMEZONE (cont.)TIMEZONE (cont.)TIMEZONE (cont.)TIMEZONE (cont.)TIMEZONE (cont.) 5 Alaska

6 Hawaii

TRANSTRANSTRANSTRANSTRANS Character 1 Drive myself2 Walk3 By car driven by someone else4 The dialysis unit/hospital sends trans.5 By taxi6 By bus or subway/train7 By ambulance

TRANSFUSTRANSFUSTRANSFUSTRANSFUSTRANSFUS Numeric 0 None1 1-52 6-103 Greater than 10998 Unknown

TRINDTRINDTRINDTRINDTRIND Character A Not ApplicableD Not DoneM MissingU Unknown

TRUE5ATRUE5ATRUE5ATRUE5ATRUE5A Character 1 Definitely True2 Mostly True3 Dont Know4 Mostly False5 Definitely False

TRUE5BTRUE5BTRUE5BTRUE5BTRUE5B Character 1 Definitely True2 Mostly True3 Neither True or False4 Mostly False5 Definitely False

TTTTTSTSTSTSTSTAAAAATTTTT Character 1 1st tx2 2nd tx3 3rd tx4 4th or more

TXSRCTXSRCTXSRCTXSRCTXSRC Character H Record is HCFA TransplantM Record from Medical Evidence 2728S ESRD NetworksU Record is UNOS Transplant

TYPDIABTYPDIABTYPDIABTYPDIABTYPDIAB Character 1 IDDM, Juvenile, Type I2 NIDDM, Adult, Type II

TYPREUSTYPREUSTYPREUSTYPREUSTYPREUS Character ‘ Missing1 Manual2 Automated3 Both

T_FT_FT_FT_FT_F Character 0 False1 True

Numeric 0 False1 True


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllURRFMTURRFMTURRFMTURRFMTURRFMT Character G1 URR < 60%

G2 URR 60 - <65%G3 URR 65 - <70%G4 URR 70 - <75%G5 URR 75+ %

USTUSTUSTUSTUSTAAAAATTTTT Character 1 Working full-time2 Working pt-time by choice3 Working pt-time due to disease4 Working pt-time, reason unknown5 Not working by choice6 Not working due to disease7 Not working, unable to find empl.8 Not working, reason unknown9 Retired996 Not applicable998 Employment status unknown

VVVVVAD_TAD_TAD_TAD_TAD_TAHAHAHAHAH Numeric 1 Cardio West2 Abiomed3 Novacor4 Heartmate5 VAD Type Unspecified6 VAD not Used

VVVVVASCFMTASCFMTASCFMTASCFMTASCFMT Character 1 fistula2 goretex graft3 bovine graft4 temporary line5 permanent subclavian cathetar6 other

VVVVVASTYPASTYPASTYPASTYPASTYPEEEEE Character 1 AV Fistula2 PTFE graft3 Bovine graft4 Perm Catheter5 Temp IJ cath6 T.Subc. cath7 T.Femoral Cath8 Other

VISITSVISITSVISITSVISITSVISITS Character 1 5 or more visits2 2-4 visits3 1 visit4 No visits5 Not sure

WWWWWADJFMTADJFMTADJFMTADJFMTADJFMT Character 1 YES2 NO3 NOT INDICATED4 NO WEIGHT GIVEN9 UNABLE TO DETERM

WWWWWANTWRKANTWRKANTWRKANTWRKANTWRK Character 1 Full time2 Part time3 Not at all4 Not sure


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllWWWWWAAAAATRSRTRSRTRSRTRSRTRSRCCCCC Character ‘ Missing

1 Public Water System2 Well

WWWWWAAAAAT_SRT_SRT_SRT_SRT_SRCCCCC Character 1 Public Water System2 Well Water System

WHHLP2AWHHLP2AWHHLP2AWHHLP2AWHHLP2A Character 1 Spouse or partner2 Any other relative (unpaid)3 A friend or volunteer (unpaid)4 A paid person5 A medical professional

WHOHELPWHOHELPWHOHELPWHOHELPWHOHELP Character 1 Family member2 Unit personnel3 Other

WKWKWKWKWKGRPGRPGRPGRPGRPHLHLHLHLHLAAAAA Numeric 95 Positive96 Negative98 Confirmed Blank99 Not Tested998 Unknown

WWWWWORK8AORK8AORK8AORK8AORK8A Character 1 Working full-time2 Working part-time3 Unemployed, laid off, or looking for wrk4 Retired5 Disabled6 In school7 Keeping house8 None of the above

X_MAX_MAX_MAX_MAX_MATTTTTCHCHCHCHCH Numeric 0 Indeterminate1 Negative2 Positive3 Weak Positive

YESNOYESNOYESNOYESNOYESNO Character 1 Yes2 No

YESNONYESNONYESNONYESNONYESNON Character 1 Yes2 No3 Not sure

YN12FMTYN12FMTYN12FMTYN12FMTYN12FMT Character ‘ Missing1 Yes2 No

YNCFMTYNCFMTYNCFMTYNCFMTYNCFMT Character C can not discloseN noY yes

YNFMTYNFMTYNFMTYNFMTYNFMT Character ‘ Missing1 Yes2 No


FormatFormatFormatFormatFormat FormatFormatFormatFormatFormat SSSSStartartartartarttttting ing ing ing ing VVVVValalalalalueueueueueNameNameNameNameName TTTTTyyyyypppppeeeee for Formatfor Formatfor Formatfor Formatfor Format FFFFFooooorrrrrmat mat mat mat mat VVVVValalalalalue Lue Lue Lue Lue LabababababeeeeelllllYNSFMTYNSFMTYNSFMTYNSFMTYNSFMT Character ‘ Missing

1 Yes2 No3 Suspected

YNUDETYNUDETYNUDETYNUDETYNUDET Character 1 Yes2 No3 Unable to determine

YNUFMTYNUFMTYNUFMTYNUFMTYNUFMT Character ‘ Missing1 Yes2 No3 Unknown9 UnknownN NoU UnknownY Yes**OTHER** Unknown

YNUNKYNUNKYNUNKYNUNKYNUNK Character N NoU UnknownY Yes

YNYNFMTYNYNFMTYNYNFMTYNYNFMTYNYNFMT Character ‘ MissingN NoY Yes

ESRD Data

Forms

276 ESRD Data Formsh


♦ CMS ESRD FormsCMS ESRD FormsCMS ESRD FormsCMS ESRD FormsCMS ESRD FormsPrevious CMS 2728-Chronic Renal Disease Medical Evidence ReportCMS 2728-ESRD Medical Evidence Report Medicare Entitlement &/or Patient RegistrationCMS 2746-ESRD Death NotificationCMS 2744-ESRD Facility SurveyUB92-CMS 1450-Uniform BillCMS 1500-Health Insurance Claim Form

♦ CDC National Surveillance of Dialysis-Associated Diseases FormCDC National Surveillance of Dialysis-Associated Diseases FormCDC National Surveillance of Dialysis-Associated Diseases FormCDC National Surveillance of Dialysis-Associated Diseases FormCDC National Surveillance of Dialysis-Associated Diseases Form19931994199519971999200020012002

♦ UNOS TUNOS TUNOS TUNOS TUNOS Trrrrransplant Fansplant Fansplant Fansplant Fansplant FooooorrrrrmsmsmsmsmsTransplant Candidate Registration FormKidney Transplant Recipient Registration FormCadaver Donor Registration FormCadaver Donor Referral FormLiving Donor RegistrationLiving Donor FollowupRecipient Histocompatibility FormDonor Histocompatibility FormKidney Transplant Recipient Followup Form

Note:The 1996 CDC form is not available. The CDC did not conduct a study in 1998.

278 ESRD Data Formsh

Special S

tudy D

ata F

orm

s

280 Special Study Data Formsh


♦ Special Study Data FormsSpecial Study Data FormsSpecial Study Data FormsSpecial Study Data FormsSpecial Study Data FormsCase Mix/Adequacy Study

Confidential ReportCAPD Peritonitis Study

Confidential ReportData Validation Study

Transplant InformationPatient HistoryDialysis TreatmentsHospital Stay Information

EPO & Quality of Life StudyHealth Status MeasurementSocial Worker QuestionnairePhysician QuestionnaireSix-month Followup

Pediatric ESRD Growth & Development StudyPatient History

Renal Biopsy StudyPrognosis After ESRD

282 Special Study Data Formsh

D

MM

S Wav

e I

Special

Study D

ata F

orm

s

284 DMMS Wave I Special Study Data Formsh284 DMMS Wave I Special Study Data Formsh

♦ DMMS DMMS DMMS DMMS DMMS WWWWWaaaaavvvvve I Spe I Spe I Spe I Spe I Speeeeecial Scial Scial Scial Scial Studtudtudtudtudy Data Fy Data Fy Data Fy Data Fy Data FooooorrrrrmsmsmsmsmsInstructions: USRDS Dialysis Morbidity & Mortality StudyDialysis Facility/Unit QuestionnaireVascular Access QuestionnaireVascular Access in Incident PatientsUSRDS DMMS-Core Confidential ReportAnemia QuestionnaireUSRDS DMMS-Anemia Confidential ReportNutrition QuestionnaireUSRDS DMMS-Nutrition Confidential ReportPatient Tracking form


286 DMMS Wave I Special Study Data Formsh

D

MM

S Wav

e II

Special

Study D

ata F

orm

s

288 DMMS Wave II Special Study Data Formsh288 DMMS Wave II Special Study Data Formsh

♦ DMMS DMMS DMMS DMMS DMMS WWWWWaaaaavvvvve II Spe II Spe II Spe II Spe II Speeeeecial Scial Scial Scial Scial Studtudtudtudtudy Data Fy Data Fy Data Fy Data Fy Data FooooorrrrrmsmsmsmsmsCover Sheet & Patient Consent formInstruction ManualDialysis Facility/Unit Questionnaire InstructionsDialysis Patient QustionnaireMedical Questionnaire Confidential ReportUSRDS DMMS Prospective Followup Study-InstructionsCover Sheet for Medical Update QuestionnaireMedical Update & QuestionnaireCover Sheet & Patient Consent formDialysis Patient QuestionnairePatient Tracking & Identification form


290 DMMS Wave II Special Study Data Formsh

DMM

S Wav

e I

II, IV

, & F

ACS

Special

Study D

ata F

orm

s

292 DMMS Wave III, IV, & FACS Special Study Data Formsh


♦ DMMS DMMS DMMS DMMS DMMS WWWWWaaaaavvvvve III-IV Spe III-IV Spe III-IV Spe III-IV Spe III-IV Speeeeecial Scial Scial Scial Scial Studtudtudtudtudy Data Fy Data Fy Data Fy Data Fy Data FooooorrrrrmsmsmsmsmsInstruction Manual for Clinical QuestionnaireClinical QuestionnaireConfidential Report: Clinical QuestionnairePatient Tracking

♦ DMMS FDMMS FDMMS FDMMS FDMMS FAAAAACS SpCS SpCS SpCS SpCS Speeeeecial Scial Scial Scial Scial Studtudtudtudtudy Data Fy Data Fy Data Fy Data Fy Data FooooorrrrrmsmsmsmsmsDialysis Facility/Unit Questionnaire

294 DMMS Wave III, IV, & FACS Special Study Data Formsh

Glossary

296 Glossaryh


Some of these definitions have been taken from Dorland’sIllustrated Medical Dictionary and from the On-line Medi-cal Dictionary (http://www. graylab.ac.uk/omd/index.html).

Centers for Medicare & Medicaid Services (CMS)Centers for Medicare & Medicaid Services (CMS)Centers for Medicare & Medicaid Services (CMS)Centers for Medicare & Medicaid Services (CMS)Centers for Medicare & Medicaid Services (CMS)Created in 1977 and formerly named the Health Care Fi-nancing Administration (HCFA), renamed in June 2001,this federal agency is responsible for the administration ofthe nation’s largest healthcare programs, Medicare and Med-icaid.

Centers for Disease Control &Prevention (CDC)Centers for Disease Control &Prevention (CDC)Centers for Disease Control &Prevention (CDC)Centers for Disease Control &Prevention (CDC)Centers for Disease Control &Prevention (CDC)Recognized as the lead federal agency for protecting thehealth and safety of people at home and abroad, and servesas the national focus for disease prevention by developingand applying programs designed to improve the health ofthe people of the United States.

Chain providerChain providerChain providerChain providerChain providerA single business entity that owns 20 or more dialysis unitslocated in more than one state. (This definition applies to allchain affiliation references in the USRDS’s 2000-2002 an-nual data reports. An alternative definition from the Cen-ters for Medicare and Medicaid Services can be found un-der “definitions” in the Health Care Provider/SupplierApplication Form CMS 855).

Continuous ambulatory peritoneal dialysis (CAPD)Continuous ambulatory peritoneal dialysis (CAPD)Continuous ambulatory peritoneal dialysis (CAPD)Continuous ambulatory peritoneal dialysis (CAPD)Continuous ambulatory peritoneal dialysis (CAPD)Continuous ambulatory peritoneal dialysis, a method of di-alysis where dialysate is always present in the abdomen andis usually exchanged at least every two hours. Normal treat-ment length is 48-72 hours.

Continuous cycler-assisted peritoneal dialysis (CCPD)Continuous cycler-assisted peritoneal dialysis (CCPD)Continuous cycler-assisted peritoneal dialysis (CCPD)Continuous cycler-assisted peritoneal dialysis (CCPD)Continuous cycler-assisted peritoneal dialysis (CCPD)Continuous cycler-assisted peritoneal dialysis, a method ofdialysis where the patient is connected to a machine(cycler)¾usually at bedtime¾ and dialysate in the patientsabdomen is replaced with fresh dialysate 3-5 times duringthe night.

CCCCCommon Wommon Wommon Wommon Wommon Worororororking Fking Fking Fking Fking File (CWF) Sile (CWF) Sile (CWF) Sile (CWF) Sile (CWF) SyyyyystststststeeeeemmmmmThe Medicare Part A and Part B benefit coordination andclaims validation system. Under the CWF, CMS maintainsboth institutional and physician supplier claims-level data.CWF claims records are the data source for most claimsand utilization files used by the USRDS.

Death Notification Form (CMS-2746)Death Notification Form (CMS-2746)Death Notification Form (CMS-2746)Death Notification Form (CMS-2746)Death Notification Form (CMS-2746)A form submitted following the death of an ESRD patient,and containing basic patient demographic information inaddition to information on the primary cause of death.

End-stage renal disease (ESRD)End-stage renal disease (ESRD)End-stage renal disease (ESRD)End-stage renal disease (ESRD)End-stage renal disease (ESRD)A condition in which an individual’s kidney function is notadequate to support life.

Erythropoietin (EPO)Erythropoietin (EPO)Erythropoietin (EPO)Erythropoietin (EPO)Erythropoietin (EPO)A hormone secreted chiefly by the adult kidney; acts on thebone marrow to stimulate red cell production.

ESRD Facility Survey (CMS-2744)ESRD Facility Survey (CMS-2744)ESRD Facility Survey (CMS-2744)ESRD Facility Survey (CMS-2744)ESRD Facility Survey (CMS-2744)The End Stage Renal Disease (ESRD) Renal Facility Surveydata are collected annually by CMS from all facilities certi-fied to provide Medicare-covered renal dialysis and trans-plantation. The survey, which includes the entire UnitedStates, uses Form HCFA 2744 and encompasses the fullcalendar year. Geographical data are included to the level ofZIP code for the facility. Each record contains facility infor-mation and information on the number of patients served,the number of dialysis treatments provided and the numberof kidney transplants performed. The data includes servicesto both Medicare and non-Medicare patients.

For-profit facilityFor-profit facilityFor-profit facilityFor-profit facilityFor-profit facilityA dialysis facility which is owned, leased or through anyother devices, controlled by a single business entity.

Freestanding facilityFreestanding facilityFreestanding facilityFreestanding facilityFreestanding facilityA dialysis facility licensed to provide only outpatient andhome maintenance dialysis; sometimes referred to as anindependent unit.

Health Care Financing AdministrationHealth Care Financing AdministrationHealth Care Financing AdministrationHealth Care Financing AdministrationHealth Care Financing AdministrationCreated in 1977, this federal agency is responsible for theadministration of the nation’s largest healthcare programs,Medicare and Medicaid. The Health Care Financing Ad-ministration (HCFA), was renamed the Centers for Medi-care and Medicaid Serverices (CMS) in June 2001.

Hospital-based facilityHospital-based facilityHospital-based facilityHospital-based facilityHospital-based facilityA dialysis facility attached to or located in a hospital andlicensed to provide outpatient dialysis services directly toESRD patients.

Incident patientIncident patientIncident patientIncident patientIncident patientA patient starting renal replacement therapy for end-stagerenal disease during the calendar year. This definition ex-cludes persons with acute renal failure, persons with chronicrenal failure who die before receiving treatment for ESRD,and persons whose ESRD treatments are not reportedthrough CMS.

Medical Evidence Form (CMS-2728)Medical Evidence Form (CMS-2728)Medical Evidence Form (CMS-2728)Medical Evidence Form (CMS-2728)Medical Evidence Form (CMS-2728)A form which provides source data about ESRD patients,including information on patient demographics, primarycause of renal disease, comorbidity, laboratory values, di-alysis treatment, transplant, dialysis training, employmentstatus, and initial insurance coverage.

National Claims History (NCH) 100% Nearline FileNational Claims History (NCH) 100% Nearline FileNational Claims History (NCH) 100% Nearline FileNational Claims History (NCH) 100% Nearline FileNational Claims History (NCH) 100% Nearline FileA file which contains all Common Working File (CWF) PartA (provider) and Part B (physician/supplier) Medicareclaims and adjusted claims information.

298 Glossaryh

National Institutes of Health (NIH)National Institutes of Health (NIH)National Institutes of Health (NIH)National Institutes of Health (NIH)National Institutes of Health (NIH)The federal focal point for medical research in the UnitedStates and one of eight health agencies of the Public HealthServices which in turn is part of the Department of Healthand Human Services.

Period prevalent patientPeriod prevalent patientPeriod prevalent patientPeriod prevalent patientPeriod prevalent patientA patient receiving treatment for ESRD at some point dur-ing a period of time, usually six months or a year. Patientsmay die during the period or be point prevalent at the end ofthe period.

Peritoneal dialysisPeritoneal dialysisPeritoneal dialysisPeritoneal dialysisPeritoneal dialysisA type of dialysis in which fluid (dialysate) is introducedinto the abdominal cavity and uremic toxins are removedacross the peritoneum.

PPPPPoint point point point point prrrrreeeeevvvvvalealealealealent pnt pnt pnt pnt patatatatatieieieieientntntntntA patient reported as receiving treatment for ESRD on aparticular day of the calendar year (i.e. December 31st).

Program Medical Management and Information SystemProgram Medical Management and Information SystemProgram Medical Management and Information SystemProgram Medical Management and Information SystemProgram Medical Management and Information Systemfor ESRD and Renal Beneficiary and Utilization System /for ESRD and Renal Beneficiary and Utilization System /for ESRD and Renal Beneficiary and Utilization System /for ESRD and Renal Beneficiary and Utilization System /for ESRD and Renal Beneficiary and Utilization System /Program (PMMIS/REBUS)Program (PMMIS/REBUS)Program (PMMIS/REBUS)Program (PMMIS/REBUS)Program (PMMIS/REBUS)The major source of data for the USRDS. This CMS fileincorporates data from the Medical Evidence Form (CMS-2728), the Death Notification Form (CMS-2746), the Medi-care Enrollment Database, CMS Paid Claims Records, andthe UNOS Transplant Database.

Prevalent patientPrevalent patientPrevalent patientPrevalent patientPrevalent patientA patient receiving renal replacement therapy or having afunctioning kidney transplant (regardless of when the trans-plant was performed). This definition excludes persons withacute renal failure, persons with chronic renal failure whodie before receiving treatment for ESRD, and persons whoseESRD treatments are not reported through CMS.

ReuseReuseReuseReuseReuseA process through which a hemodialyzer is cleaned anddisinfected, allowing it to be used multiple times on thesame patient.

Standard Analysis Files (SAFs)Standard Analysis Files (SAFs)Standard Analysis Files (SAFs)Standard Analysis Files (SAFs)Standard Analysis Files (SAFs)CMS files which contain final action Medicare Part A claimsdata. SAFs are comprised of eight files: Inpatient, Outpa-tient, Home Health Agency, Hospice, Skilled Nursing Fa-cility, Clinical Laboratory, Durable Medical Equipment, and5% Sample Beneficiary.

Standardized hospitalization ratio (SHR)Standardized hospitalization ratio (SHR)Standardized hospitalization ratio (SHR)Standardized hospitalization ratio (SHR)Standardized hospitalization ratio (SHR)Used to compare hospitalization rates for a selected groupof patients by computing the ratio of the group’s observedhospitalization rate to the expected hospitalization rate forthe national ESRD population.

Standardized mortality ratio ( SMR )Standardized mortality ratio ( SMR )Standardized mortality ratio ( SMR )Standardized mortality ratio ( SMR )Standardized mortality ratio ( SMR )Used to compare dialysis patient mortality rates from yearto year. Mortality rates for a subgroup of patients are com-pared to a set of reference rates, with adjustments for age,race, gender, and diabetes as a cause of ESRD.

Standardized transplantation ratio (STR)Standardized transplantation ratio (STR)Standardized transplantation ratio (STR)Standardized transplantation ratio (STR)Standardized transplantation ratio (STR)Used to compare the transplant rate of a sub-group of pa-tients to the national transplant rate.

Statistical Analysis System (SAS)Statistical Analysis System (SAS)Statistical Analysis System (SAS)Statistical Analysis System (SAS)Statistical Analysis System (SAS)A SAS® format was chosen forthe USRDS SAFs because it iswidely used, easily transported, and largely self-document-ing. SAS® is a commercially available data management andstatistical analysis software system that runs on most com-puters, from mainframes to PCs, and it is almost universallyavailable on university computer systems. The USRDS SAFstake full advantage of the program’s ability to incorporate alarge amount of documentation into the file.

TTTTTrrrrranspanspanspanspansplant clant clant clant clant ceeeeentntntntnteeeeerrrrrA hospital unit licensed to provide transplantation and othermedical and surgical specialty services for the care of kid-ney transplant patients, including inpatient dialysis furnisheddirectly or under arrangement.

United Network for Organ Sharing (UNOS)United Network for Organ Sharing (UNOS)United Network for Organ Sharing (UNOS)United Network for Organ Sharing (UNOS)United Network for Organ Sharing (UNOS)A private, non-profit organization that maintains the organtransplant list for the nation and coordinates the matchingand distribution of organs to patients awaiting transplant.

WWWWWait-listait-listait-listait-listait-listA list, maintained by the United Network for Organ Sharing(UNOS), of patients awaiting an organ transplant.

Researcher's Guide 2004 (entire document) - united states ...

Documents

Transcript of Researcher's Guide 2004 (entire document) - united states ...