Conducting research in corrections: challenges and solutions

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Conducting Research in Corrections: Challenges and Solutions Sara Wakai, Ph.D. * , Deborah Shelton, Ph.D., R.N., B.C.-N.E. y , Robert L. Trestman, Ph.D., M.D. yy and Karen Kesten, M.S. yyy Research in correctional settings has progressed from the exploitation of a vulnerable population in the years prior to 1978 to its current overly protective and restrictive state. With the considerable growth in the numbers of inmates with medical and mental health care needs, developing effective interventions to serve this population is para- mount. There now appear to be signs of interest in and support for research with inmates by correctional agencies, academia, and health care organizations. Innes (2003) has articulated the following strategies for imple- menting research in prison: (1) gather stakeholders; (2) include one or more experienced research collaborators; (3) consider obtaining technical assistance from a university or the National Institute of Corrections (NIC); (4) define potential opportunities/interests that support the institu- tion’s mission; (5) develop a relationship with an IRB; (6) pilot a small proposal that is of interest and potential value to the organization. The authors illustrate the imple- mentation of a study in a correctional system that uses these strategies. Copyright # 2009 John Wiley & Sons, Ltd. The correctional population has grown to a record seven million people who are incarcerated, on probation, or on parole (U.S. Department of Justice, 2005). Data on health status and illness prevalence in adult correctional settings (Fazel & Danesh, 2002) suggest that incarcerated adults are at higher risk than the general Behavioral Sciences and the Law Behav. Sci. Law 27: 743–752 (2009) Published online 10 September 2009 in Wiley InterScience (www.interscience.wiley.com) DOI: 10.1002/bsl.894 * Correspondence to: Sara Wakai, Ph.D., Assistant Professor, Center for Correctional Mental Health Services Research, Department of Medicine-MC6210, University of Connecticut Health Center, 270 Farmington Ave., Suite 262, Farmington, CT 06032, U.S.A. E-mail: [email protected] y Correctional Managed Health Care, University of Connecticut, School of Nursing and Department of Medicine, Division of Public Health and Population Sciences. yy Correctional Managed Health Care, Department of Medicine and Psychiatry, University of Connecticut Health Center. yyy Center for Correctional Mental Health Services Research, Department of Medicine, University of Connecticut Health Center. Copyright # 2009 John Wiley & Sons, Ltd.

Transcript of Conducting research in corrections: challenges and solutions

Behavioral Sciences and the Law

Behav. Sci. Law 27: 743–752 (2009)

Published online 10 September 2009 in Wiley InterScience

(www.interscience.wiley.com) DOI: 10.1002/bsl.894

*Correspondence to: Sara WaServices Research, DepartmenFarmington Ave., Suite 262, FyCorrectional Managed HealthMedicine, Division of Public HyyCorrectional Managed HealthHealth Center.yyyCenter for Correctional MeConnecticut Health Center.

Copyright # 2009 John W

Conducting Research inCorrections: Challengesand Solutions

Sara Wakai, Ph.D.*,Deborah Shelton, Ph.D., R.N., B.C.-N.E.y,Robert L. Trestman, Ph.D., M.D.yy

and Karen Kesten, M.S.yyy

Research in correctional settings has progressed from theexploitation of a vulnerable population in the years prior to1978 to its current overly protective and restrictive state.With the considerable growth in the numbers of inmateswith medical and mental health care needs, developingeffective interventions to serve this population is para-mount. There now appear to be signs of interest in andsupport for research with inmates by correctionalagencies, academia, and health care organizations. Innes(2003) has articulated the following strategies for imple-menting research in prison: (1) gather stakeholders;(2) include one or more experienced research collaborators;(3) consider obtaining technical assistance from a universityor the National Institute of Corrections (NIC); (4) definepotential opportunities/interests that support the institu-tion’s mission; (5) develop a relationship with an IRB;(6) pilot a small proposal that is of interest and potentialvalue to the organization. The authors illustrate the imple-mentation of a study in a correctional system that usesthese strategies. Copyright# 2009 JohnWiley & Sons, Ltd.

The correctional population has grown to a record seven million people who are

incarcerated, on probation, or on parole (U.S. Department of Justice, 2005). Data

on health status and illness prevalence in adult correctional settings (Fazel &

Danesh, 2002) suggest that incarcerated adults are at higher risk than the general

kai, Ph.D., Assistant Professor, Center for Correctional Mental Healtht of Medicine-MC6210, University of Connecticut Health Center, 270armington, CT 06032, U.S.A. E-mail: [email protected], University of Connecticut, School of Nursing and Department ofealth and Population Sciences.Care, Department of Medicine and Psychiatry, University of Connecticut

ntal Health Services Research, Department of Medicine, University of

iley & Sons, Ltd.

744 S. Wakai et al.

population for a number of medical and mental illnesses, including hepatitis C

(Hunt & Saab, 2009), tuberculosis (Bick, 2007), HIV/AIDS (Copenhaver,

Chowdhury, & Altice, 2009), oral health (Walsh, Tickle, Milsom, Buchanan &

Zoitopoulos, 2008), substance abuse problems (Fazel, Bains, & Doll, 2006) and

mental disorders (Baillargeon, Binswanger, Penn, Williams, & Murray, 2009).

Health care providers in correctional facilities are faced with an increased need to

care for this growing population. In order to provide effective, evidence-based care

for inmates, it is essential to conduct research with this population to reflect their

particular circumstances, health histories, and environmental exposures. However,

there is a considerable deficiency in research and research capacity in corrections due

to cumbersome organizational processes and lengthy investigational review

processes. The purpose of this article is to provide background information on

the challenges of conducting research in correctional environments, factors that

facilitate the research process and examples of effective research practices in

corrections.

CHALLENGES OF CONDUCTING RESEARCH INPRISONS

History of Inmates as Research Subjects

The present dearth of research with inmates is due in large part to the necessary

regulatory responses to the exploitation of this vulnerable population primarily

during the second half of the 20th century. In the 1950s and 1960s state and federal

prisons allowed researchers, particularly those from the pharmaceutical industry, to

conduct studies including the introduction of infectious hepatitis, syphilis, or cancer

to otherwise healthy individuals (Hornblum, 1997) with little or no oversight or

meaningful informed consent process. In the early 1970s, the vast majority of drug

toxicity trials and investigational new drug trials were conducted using inmates as

research subjects (Hoffman, 2000; Kalmbach & Lyons, 2003). The Nuremberg

Code, the Tuskegee Study, the Belmont Report and the establishment of the

National Commission for the Protection of Human Subjects of Biomedical and

Behavioral Research contributed to the federal government essentially banning

research with prisoners in 1978. The much needed restrictions placed on prisoner

research may have led prisoners to become an over-protected group (Moser et al.,

2004).

Institutional Review Boards

In response to the exploitation of human subjects, institutional review boards (IRBs)

were established to ensure that the rights and welfare of all who participate in

research are protected. IRBs have proven to be a necessary but challenging obstacle

for researchers working in corrections. For example, special IRB panels have been

designated to review research that involves inmates as participants and must include

a prisoner representative as a member. Recruiting, training, and retaining someone

for this role can be very time consuming. IRB panels with prisoner representatives do

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Conducting research in corrections: challenges and solutions 745

not necessarily meet monthly and full board reviews are standard for studies with

vulnerable populations such as prisoners, thus slowing the review process. In

addition, when collaborating with colleagues at other universities or agencies, the

IRB (or equivalent) at each institution must review and approve the study.

Additionally, the Connecticut Department of Correction (CDOC), in this instance,

has established a research advisory committee (RAC) to review all research being

conducted in its facilities. The RAC review seeks to explore additional issues related

to burden upon the system including costs to their agency. Consequently, once an

institution’s IRB has approved a study, there is an additional authorization process

via the RAC that reviews the study to ensure that it meets CDOC’s requirements. At

this point, IRB authorization agreements are executed to ensure that oversight is

maintained and all human subject protection requirements of the Federal Wide

Assurance are met. Gaining approval from the multiple IRB panels from all

institutions involved can delay the initiation of a project for several months, as any

change at any institution necessitates a subsequent change and review at the other

institutions.

In addition to standard IRB requirements, Federal Regulation Code 46.306(a)

Subpart C mandates supplementary safeguards for prisoners who participate in

research. For example, placebos and control groups with limited benefit are not

allowed. In addition, coercion must be minimized. Therefore, little or no financial

compensation can be offered to inmates who participate in research studies.

Certificates of participation or completion are allowed but often include a disclaimer

such as ‘‘Can not be used in parole review’’ predominantly printed across it

(Trestman, 2005), making recruitment for research studies particularly challenging.

Organizational Structure of Prisons

Correctional facilities traditionally have relied on a bureaucratic, paramilitary

organizational configuration that is, by definition, hierarchical, routinized, risk

averse, and security focused. Historically, this control-oriented model has worked

effectively for prisons; however, it has also greatly limited the inclusion of potentially

beneficial functions such as conducting research. Highly structured organizations,

such as prisons, are by design risk averse and often resistant to change associated with

research. For a department of correction (DOC), safety and security is paramount

and potential risks to prisoner subjects, researchers, custody and medical staff must

be kept to a minimum even at the expense of losing beneficial research findings.

Logistics

The hurdles that a researcher must address while preparing and implementing a

research project in a correctional setting are numerous and unpredictable but not

insurmountable. It is helpful to keep in mind that the hurdles are in place for a

reason: to promote safety and security. For example, just entering the front gates

requires permission from the commissioner and warden, DOC training, a

background check, a search of items being brought into the facility, clearing a

metal detector, and two sources of official identification.

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746 S. Wakai et al.

Risks are presented each time prisoners are moved. Researchers need to plan their

research consenting procedures, recruitment processes, and actual data collection in

ways that minimize the burden to corrections staff and minimize prisoner movement.

Because no two facilities are alike even within our system, the early part of a study is

spent in establishing best practices for recruitment, consent, and data collection

processes. Consideration needs to be given as to whether data collection is in a jail

where prisoners are in detoxification, or in a prison facility.

The timeline for completing a research project in a correctional environment will

be months, if not years, longer than a comparable one conducted in a community

setting (Trestman, 2005). The delays are due in large part to facility related

constraints such as lock-downs, turnover of contact people, shift changes, lack of a

private interview area, and escort status of visitors. Retaining research participants is

always a concern for researchers, but inmates have exceptionally high attrition rates

due to a variety of factors (e.g., transfers, releases, court dates, administrative

segregation, count, meal time, commissary hours, work, school, therapeutic groups),

which are often unexpected and unannounced.

The researcher must consider the burden to the correctional system. Researchers

put additional, although unintended, demands on correctional officers for escorting

researchers, transporting inmates, and providing security. In addition, the

importance of having a contact person who can act as a liaison on behalf of the

researcher cannot be over-emphasized. Assistance with activities such as scheduling

rooms, obtaining inmate lists, and facilitating entry into the facility expedite the

research process and give legitimacy to the project. It is wise to prepare for the fact

that the challenges encountered in the system are on-going and a realistic part of

conducting a research project.

Diverse Missions

The missions of research and corrections are strikingly diverse, which poses

considerable limitations for the convergence of collaborative efforts. Prisons are

designed to incarcerate inmates, to control behavior, and to provide adequate basic

care. As Trestman (2005) has stated, ‘‘. . .from the perspective of the correctional

institution safety always comes first, treatment is second, and research a distant third

(if even considered)’’ (p. 12). Magaletta, Morgan, Reitzel, and Innes (2007) point

out that DOC places very little emphasis on research. In fact, DOC is the only

industry (a $50-billion-a-year industry) that spends ‘‘almost none of its resources on

research and development’’ (Magaletta et al., 2007, p. 935). In contrast, academic

research is more of an entrepreneurial process that stresses the importance of

generating new knowledge. A typical research university has a research budget of

close to $200 million to advance this endeavor (UConn, 2009). Researchers also

have the luxury of writing up results as ‘‘objective findings’’ without concern about

how unfavorable outcomes may be used against the facility in litigation. Universities

(and their affiliates) have their own set of priorities to which researchers must adhere,

such as publish or perish, training students, and grant timelines.

The challenges described above began primarily to provide safety and security for

inmates, custody, and researchers. They now have evolved into barriers that limit the

investigation and implementation of evidence-based practices that are potentially

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Conducting research in corrections: challenges and solutions 747

beneficial to inmates, correctional facilities, and correctional systems. An effective

way to mitigate these challenges is to develop a partnership between researcher,

custody, and clinicians and encourage each group to contribute their expertise to the

research process.

STRATEGIES FOR CONDUCTING RESEARCH INCORRECTIONS

The challenges of conducting research in corrections have been well documented

(Brewer-Smyth, 2008; Kalmbach & Lyons, 2003; Quina et al., 2007) and the need

for developing a research infrastructure has been duly noted (Magaletta et al., 2007;

Trestman, 2005). Simply documenting the concerns, however, does not bring us any

closer to conducting applied research and implementing evidence-based practices to

provide effective treatment to inmates. Innes (2003) has articulated the following

strategies for implementing research in prison: (1) gather stakeholders; (2) include

one or more experienced research collaborators; (3) consider obtaining technical

assistance from a university or the NIC; (4) define potential opportunities/interests

that support the institution’s mission; (5) develop a relationship with an IRB;

(6) pilot a small proposal that is of interest and potential value to the organization.

The authors are currently conducting a study in a correctional system that illustrates

the use of these strategies.

THE IMPLEMENTATION OF A RESEARCH PROJECTIN CORRECTIONS

A study funded by the National Institutes of Health Partners in Research Program

(R03) (RFA-OD-07-001) is currently being implemented in Connecticut and

focuses on identifying ways to formalize a collaborative partnership between the

University of Connecticut Health Center (UCHC)/Correctional Health Managed

Care (CMHC) researchers and the Connecticut Department of Correction

(CDOC). The purpose of the study is to assess the utility of a newly modified

assessment tool, the Corrections Modified Global Assessment of Functioning (CM-

GAF) (initially modified with funding from Mental Health Research Infrastructure

in Corrections Grant 5R24-MH067030-04), designed to evaluate the psychological,

social, and occupational functioning of inmates. This tool was selected because the

management of mentally ill and behaviorally disturbed offenders is a major public

safety issue involving not just correctional facilities, but the community at large

(Ditton, 1999). Without appropriate screening, inmates may not receive needed

services and treatment, leading to behavioral dyscontrol, safety concerns, manage-

ment crisis, and a failure to integrate successfully into the community on release.

This study builds upon a statewide strategic planning process initiated in 2007

that recognizes the benefits of research, and the uniqueness of conducting research in

correctional settings—that adaptations and accommodations are required for

evidence-based practices to be applied in correctional settings. To this end, a joint

team of UCHC/CMHC and CDOC partners have collaborated to design the

study to investigate procedures that contribute to effective research planning,

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implementation, and evaluation activities with the mutual goal of addressing the

health and safety of inmates and employees. The aim of the study is to continue work

in refining and validating the CM-GAF as a vehicle to formalize the partnership

between UCHC/CMHC and CDOC that will lead to the institutionalization of on-

going research processes that can facilitate application of research findings that are

potentially beneficial to inmates, correctional facilities, and correctional systems and

will lead to recommendations for system research policies and procedures. The study

will be used as a framework to illustrate the practical application of Innes’ (2003)

research strategies for conducting research in corrections.

Gather Stakeholders

A critical element of this research project is the identification and gathering of

stakeholders, which the investigators defined as individuals who have a stake in the

inmate population, the capacity to affect and facilitate change at a systems level, and

the ability to make a commitment to the process. The investigators divided the

stakeholders into three groups based on their function within the research project.

First, the Commissioner, the Deputy Commissioner, the Director of Health and

Addiction Services, the Executive Director of CMHC, and the principal

investigators comprise the leadership group, which was formed to make policy

decisions, review reports, monitor progress of research project, and function as an

external validity check. The stakeholder group consists of wardens, inmate advocate,

IRB representative, Director of Quality Improvement, Director of Offender

Programs and Victim Services, Statewide Director of Psychiatric Services, Statewide

Director of Mental Health, and Manager, Center for Research, Program Analysis,

and Quality Improvement. The stakeholder group meets on a quarterly basis to

provide feedback on the research activities and help to recruit personnel (clinicians,

MSW, CTOs, and wardens) for focus groups, which are a central data collection

method for the study. The working group consists of the co-principal investigators,

the evaluator, and selected persons from the CDCO and UCHC/CMHC research

offices. The working group meets every two months to manage the grant, conduct

the research, provide logistical support for the leadership group, build relationships

to deal with implementation issues at the departmental level, and address

recommendations made by the stakeholder policy group. The working group

sponsored a ‘‘kick-off’’ meeting and invited members of the stakeholder group and

leadership group for an afternoon to introduce the project and garner support.

Twelve representatives attended, provided valuable feedback on the research design

and implementation, and offered support.

Include One or More Experienced Research Collaborators

The research collaboration for this study began with conversations between the

principal investigator (PI) and co-principal investigator (co-PI) about ways to further

develop the research infrastructure in CDOC. The conversations led to a grant

proposal and subsequent study that has brought together professionals who have

worked in corrections or conducted research in corrections and are committed to

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Conducting research in corrections: challenges and solutions 749

formalizing a research partnership. The work group for the grant includes the PI,

who holds a joint appointment at the School of Nursing and Department of

Medicine and is the Director for Research and Evaluation for Correctional Managed

Health Care; the co-PI is the Director of Organizational Development for CDOC;

the evaluator holds an academic appointment in the Center for Correctional Health

Services Research; and the CDOC representative is a counselor supervisor. Their

combined professional experience provides a rich resource for research collabor-

ation.

It is within this group that the majority of the work has taken place. Many co-

teaching and policy drafts have been developed to assist the CDOC to articulate and

streamline its research processes. Outcomes have led to a monthly statewide research

meeting that reaches across multiple public–academic CDOC partnerships and sets

the foundation for developing a research network and reduction of burden upon

CDOC.

Obtain Technical Assistance from a University or NIC

Technical assistance (TA) has been described as the transmission of specific

technical or content knowledge from an expert to an individual or group who has

identified a need (Hunter et al., 2009). TA is a critical component of collaborative or

community-based research since it helps to bridge the gap between evaluation and

improvement by placing stakeholders in the central role of designing the study,

interpreting the results, and improving a program or procedure. In order for the

current study to effectively reach its goals, a collaborative organizational structure

was designed, which resulted in a multi-directional TA process. For instance, the

stakeholder groups have individuals who represent IRB, the National Alliance of

Mental Illness (NAMI), clinicians, wardens, and researchers. Each of the

stakeholders brings expertise, insight, and perspective that contribute to the group.

Define Opportunities and Interests that Support the Institution’sMission

In the early stages of preparing the grant, the researchers met with representatives

from CDOC and CMHC to identify correctional health care needs that would

benefit the inmates and support the missions of these entities. A primary concern for

mental health professionals and custody staff was assessing and monitoring mental

illness in corrections. Without appropriate screening, indicators for a need of clinical

care or behavioral management may be missed. A second concern, unique to the

correction environment, is related to unit placement based upon the prisoner’s

mental health risk score or rating score. A standard tool for monitoring behavior and

functioning is The Global Assessment of Functioning (GAF), which is included as

Axis V in theDiagnostic and StatisticalManual, Fourth Edition-Text Revision (DSM-

IV-TR, American Psychiatric Association, 2000). Designed to assess an individual’s

overall ‘‘psychological, social and occupational functioning on a hypothetical

continuum of mental health–illness,’’ it is used extensively in research and clinical

settings (Basco, Krebaum, & Rush, 1997).

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Although certain inmate behaviors appear to be highly dysfunctional from a

community perspective, they actually can serve a survival function in prison (Foster,

1982). The Corrections Modified Global Assessment of Functioning, which was

developed under a previous grant (Mental Health Research Infrastructure in

Corrections Grant 5R24-MH067030-04), needed to be validated with inmates. The

assessment became the conduit for formalizing a research partnership since it

supported the mission of conducting research that can be applied to benefit inmates,

custody staff, and mental health professionals by improving mental health treatment,

treatment planning, and security.

Develop relationship with IRB

The research team has had a ten-year productive relationship with the institution’s

IRB. Working with an IRB that is accredited by the AAHRPP (Association for the

Accreditation of Human Research Protection Programs) has provided the research

team with an exceptional knowledge base of regulatory requirements. Educational

sessions are offered to research groups when new studies are approved. In addition to

maintaining the required Human Subjects and HIPAA certifications, research

coordinators and staff attend training and workshops to enhance skills, keep abreast

of current information, and ensure adherence to research guidelines. Shortly after

the grant notification letter arrived for this project, the research team met with IRB

representatives and the chair of the IRB prisoner panel to discuss the design of the

project, issues of confidentiality during the focus groups, and data collection

procedures. These informational sessions were extremely helpful in this initial phase

of the project and aided in the further refinement of the protocol. The IRB

representatives suggested re-structuring the study into two phases. Although this will

require submitting an IRB modification to begin phase II, it has helped to clarify the

dual purposes of the grant (e.g., building a research infrastructure and validating a

modified assessment tool). To further foster this collaboration, the researchers

extended an invitation to IRB representatives at the two campuses of the university to

participate in the stakeholder meetings. One IRB representative from one campus

agreed to be a member of the stakeholder group and has provided a valuable

perspective during meetings.

Pilot a Small Proposal

The current project is a small pilot study. The stakeholders will be asked to

participate in an iterative process that balances problem solving actions implemented

in a collaborative context with data-driven collaborative analysis to understand

perceptions of safety and security, quality of communication, leadership style,

organizational structure, demands on time and other resources, and value of

outcomes. In addition, four focus groups will be conducted, each consisting of

approximately five to seven correctional officers, correctional treatment officers,

captains, lieutenants, wardens, and medical and mental health clinicians. The topic

of the focus groups will address clinician’s ability to accurately assess inmate

functioning and this may ultimately help to make recommendations for appropriate

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Conducting research in corrections: challenges and solutions 751

housing and to provide treatment services safely. Next, the CM-GAF and the GAF

will be administered to 50 inmates (25 male and 25 female adults). Descriptive

correlation analyses are planned to examine relationships among the two assessment

ratings and CDOC risk scores.

CONCLUSION

Research in correctional settings has moved from the exploitation of a vulnerable

population to become overly protective and restrictive. With considerable growth of

the number of inmates with medical and mental health care needs, developing

effective interventions to serve this population is paramount. There now appear to be

signs of interest in and support for collaborative research with inmates as subjects by

corrections, academia and health care. Correctional research is maturing into a

discipline that emphasizes the importance of research findings that benefit prisoners

rather than coercing a susceptible group simply for convenience and economy.

Obstacles still exist, and well they should, to continually ensure the ethnical

treatment of prisoners and robust research practices.

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