Fatimid Foundation - 2015

Blood bags of promise

Fatimid Foundation Head Office 393 Britto Road, Garden East,Karachi-74800, Pakistan.Tel: +92-21-32225284, 32253323, 32258656Fax: +92-21-32257356Email: ho@fatimid.orgwww.fatimid.org D

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To maintain and project Fatimid Foundation on the world map.

To shape the blood banking and haematological sector by integrating test results and medical information.

To provide awareness and prevention of thalassaemia in Pakistan so as to support decision makers and superior patient management

Our Vision

Our Mission To provide first class quality blood banking and haematological services safely to deserving

patients and the community at large.

To ensure the use of FDA/CE approved high quality material and equipments for the treatment of thalassemia, haemophilia and other genetic blood disorders.

To achieve managerial and technical excellence in the field of blood banking and haematological services.

To engage professional manpower in the field of blood banking and haematological services.

To provide in-house and outside training and development to staff in all functional areas.

To ensure complete transparency, good governance and management practices as a non-profit organisation

Fatimid Foundation greatly appreciates its close collaboration with Government representatives at

Federal, Provisional and Regional levels alongwith its stakeholders example the private sector, overseas,

foreign government, corporate and individual donors, youth group and civil society in the preparation for

this partnership strategy in raising funds for the organization. This strategy is also a result of a team effort

of Fatimid Foundation's staff on all Pakistan basis. Although, it is impossible to name them all, we

gratefully acknowledge and thank them for sharing their guidance, knowledge and experience.

Acknowlegement

• Chairman's Message

• Year in Review

• Profile- Fatimid Foundation

• Who Are We?

• Certifications

• Grant Contracts

• Down Memory Lane

• Fatimid Foundation Activities

• Partner in Progress

• Financial Highlights

• Six Year at a Glance

• Appreciation and rosemary bead presented by

Prof. Dr. Anthony K.C Chan

• Thalassaemia

• Haemophilia

• Physiotherapy Management

• FAQ & Protocols on Blood Management

• Save a Life

• Donation Flow Chart

• Acknowledgement

• Centers of Fatimid Foundation

• How to Donate

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Contents

Chairman's Message

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On behalf of the Board of Trustees, I am pleased to present the Trust's Annual Report and activities for the year 2015.

This has been a year of coming together, of cohesion for Fatimid Foundation. We have begun to change the structure of our operations to concentrate on expertise and capacity to prepare for growth.

Fatimid Foundation have begun to develop a multi disciplinary research consortium and enhance donor and patient care. We collaborated with reputable hospitals and overseas bodies to bring about individual strength and expertise to fully round out our strategic abilities.

We have throughout our history taken bold steps to fulfill our mission to make a difference for our underprivileged patients and blood donors who depend on us. This would not have been possible without the generous and continuous support of its donors which includes individuals, corporate sector, local and foreign Governments.

By the grace of Allah, donation, zakat, and grant-in-aid have excelled this year as compared to last year by 19% to Rs. 301.0 million. We plan to construct new Centres at Peshawar, Karachi and Hyderabad in the coming years.

In addition, substantial overseas donations from American and European citizens of Pakistani origin alongwith local, corporate and individual donors have seen value addition for the creation of new projects, thus placing trust and confidence with us in order to serve the underprivileged sick children patients in our society.

I would like to thank the Federal and Provincial Government of Pakistan, the Government of Japan, our Trustees, Mr. S. M. Muneer, Sardar Yasin Malik, Mr. Arif Habib, Mrs. Nasreen K. Kasuri, Dr. Gaffar Billoo, Dr. Mohammad Khurshid and our eminent Board of Trustees for their continuous and generous philanthropic donation to Fatimid Foundation this year to enable us to provide the necessary support and services to our less deprived sick children patients of genetic blood disorders.

Finally, my special thanks go to our dedicated employees for their commitment and efforts without which none of this would have been possible. In all humbleness we bow down to God Almighty and look forward to your continuous support in the coming years in order that we are able to serve and promote our noble cause for these underprivileged children patients of genetic blood disorders in our society.

Lt. Gen. (R) Moinuddin HaiderChairman

Year in Review

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During the year in review Fatimid Foundation have achieved quite a few milestones in partnering ourselves globally and within the country on our resource mobilization strategy, health, safety, environment, systems, controls and facilities i.e.

a. Internal audit for renewal of ISO 9001:2008 certification and preparation for 9001:2015.

b. Successful installation of a first class modern PCR lab at the Head Office with special reference in undertaking CVS (Chronic Villous Sampling) and DNA testing for Thalassaemia major foetus in order to avoid and reduce the number of Thalassaemia major patients in Pakistan. Hopefully we would also undertake PCR for Hep. 'B' and Hep. 'C' reactive patients in our PCR lab.

c. Installed and implemented the grant agreement ceremony against GGP (Grant Assistance for Grassroots Human Security Project) by the Government of Japan for the sum of US $ 83,755/- with a Cell Separator (to provide mega units), Automated Coagulation Analyzer for the diagnosis of blood coagulation defects in patients, Ultra Low Temperature Freezer -86 C° and a Mobile Blood Donation Vehicle.

d. Increased collection of donation, Sponsor-a-Child, Grant-in-Aid , Zakat and other services and income during the year by over Rs. 48.2 million or 19.1 % on all Pakistan basis. Fatimid Foundation increased its patient's strength from 12,000 to 14,000+ during the year under review.

e. Repairs and renovation of the Head Office Karachi for improvement of health, safety and environment for its clinical and operational needs and comfort for our underprivileged sick children patients e.g. brand new thalassaemia chairs and blood collection camp cots.

f. Audit in process with A.F.Ferguson and Co. Chartered Accountants (PwC) for the year ended June 30th, 2013 and year ended June 30th, 2014.

g. Continuous training and development of our staff's education both in clinical and administrative management.

h. Approved annual recurring grant-in-aid by The Punjab Government of Rs. 25.00 million to be shared equally by Lahore and Multan Centres.

i. Installation of Cobas E411 screening ( a ECLIA system) for Hyderabad and Quetta Centre and a

brand new donated Cryofuge equipment of Thermo Fisher HERAEUS 5500i brand for Quetta Centre.

j. Though our total blood collection vis-à-vis last year decreased from 56976 pints to 53034 pints - a decrease of 7% over the previous year, its manufacturing treatment of its blood and blood products in real terms have increased from 93964 to 100226 pints in volume or by 6% during the year under review. In spite of security issues, numbers of blood banks, Thalassaemia Centres and fly by night sub standard blood banks in the past few years, Fatimid Foundation have still been able to step up its manufacturing treatment and maintain its blood collection through road side and corporate blood camps. Fatimid Foundation also participated in the Shaheed Benazir Bhutto birthday blood transfusion campaign and transfused 500 pints of blood to the underprivileged sick children patients in Karachi.

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K. With these above achievements, Fatimid Foundation have been able to build on its capacity of blood banking and haematological services effectively and efficiently to carry out its tasks in hand.

l. In October 2016 , Dr Shabneez Hussain , Consultant Haematologist, went to Montreal , Canada to

attend the “9th Global Forum on Research and Treatment Products for Bleeding Disorders”, a

conference organized by the World Federation of Haemophilia (WFH) . Another purpose was to

create a liaison between Fatimid Foundation and WFH. She also visited the haemophilia treatment

center at McMaster University and met Karen Strike (physiotherapist), Dr Alfonso Lorio

(Haematologist) and Dr Anthony Chan (Pediatric Haematologist) who are willing to have a good

collaboration with Fatimid foundation.

Future Outlook:In order to bring about an increased level of efficiency, facilities, services, FF have approached local corporate donors as part of their CSR policy to seek help and support for the improvement of our facilities and services in order to provide free of cost medical and clinical treatment to our underprivileged sick children patients of various genetic blood disorders.

Further it intends to collaborate with overseas donors in the coming year, enhance mobilization of resources, sponsorships and enable us to also create an effective endowment fund for balancing, modernization and replacement of equipments, and providing relief and support in the event of natural disasters in the coming years.

To approach the KPK Government for constructing a state-of-the-art Centre through its own resources on a lease of the BHU premises. This will go a long way to benefit our underprivileged sick children patients of Thalassaemia and Haemophilia in the province of Khyber Pakhtun Khwa (KPK).

On completion of the construction of our Centre, to follow up with the KPK Government for an Annual Recurring Grant-in-Aid to support its Centre since facilities are not being provided by Government hospitals towards these clinical and health care services.

To collaborate with various hospitals and clinics to offer mega units to the general public if and when required and CVS sampling/DNA testing to expectant mothers to detect thalassaemia major foetus in minor couples.

Rumi DossalChief Operating Officer& Secretary of the Trust

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Profile - Fatimid Foundation Date of Incorporation of Emergency Medical Service:FEBRUARY 12, 1980 Date of Incorporation of Blood Bankand Haematological Services: MARCH 04, 1984 Patron-in Chief: President of the Islamic Republic of Pakistan Board of Trustees - PakistanLt. General (R) Moinuddin Haider - Chairman Dr. Abdul Gaffar Billoo Dr. Amir Mohammad Khan Jogezai Professor Dr. Muhammed Khurshid Taher A. Khan Seema Taher A. Khan S.M. Muneer Nasreen M. Kasuri Shahid Sethi Mian Tanvir Ahmed Sheikh Khalid Sultan Khwaja Arif Habib Dr. Tufail Muhammad Khan M. Yasin Malik Dr. M.Farooq Memon Maqbool Ahmed Memon Sh. Ahsan Rashid Jalil Tareen Brig (R) Agha Gul Chief Operating Officer Secretary of Trust: Rumi Dossal

Auditors & Management Consultants: A.F Ferguson & Co., Chartered Accountants (A member firm of the PwC network)

Actuarial Services Sidat Hyder Morshed Associates (Pvt) Ltd. (A member of Ernst & Young International) Legal & Tax Adviser: Aziz Khan Advocate

Bankers: Allied Bank Limited Bank Al Habib Limited Faysal Bank Limited Habib Bank LimitedHabib Metro Bank LimitedMeezan Bank Limited National Bank of Pakistan Soneri Bank LimitedThe Bank of Punjab United Bank Limited In house Technology:CMIA, ECLIA and ELFA systems for blood screening In-house facilities:Process blood components packed red cells, washed packedred cells, fresh frozen plasma, cryosupernatent, platelet concentrate and whole blood.- All blood and blood components as a standard are safelyscreened on CMIA, ECLIA and ELFA systems for HbsAg; Anti HCV; HIV I & II: Also blood is screened for syphilis & malaria parasite- Diagnostic facility for thalassaemia & bleeding disorders- Thalassaemia, Haemophilia patient care & treatment- Clinical laboratory- Emergency 24 hours patient care- Physiotherapy facility.- PCR laboratory- CVS- Mega units on Apheresis Equipment Overseas Board of Trustees U.K. (Registration No. 291878 The Charity Commission England & Wales)- MA Siddiqi - S Mohsin Akhter - M Khaleel Chowdhree

Board of Directors U.S.A. - Under IRS 501c(3)- Dr. Shahina Qureshi- Atif Kazmi- Dr. Waleed Bin Azhar Bankers: U.K.Title of Account: FATIMID FOUNDATIONHabib Bank AG Zurich

U.S.ATitle of Account: FATIMID USA INC.JP Morgan Chase Bank.

Overseas offices are purely for fund raising activities.

Fatimid Foundation was established as a Non-Profit Organisation by late Mr. Nazim Jiwa in 1978 in

Karachi. The major aim of establishing this organisation was to provide free of charge blood and

blood components to patients suffering from various chronic blood disorders requiring blood/blood

component therapy as an essential part of their treatment. With the passage of time, the

Organisation has grown in stature to" National" level with the opening of treatment Centres in

Lahore, Peshawar, Multan, Quetta, Hyderabad, Tando Allahyar and Khairpur in addition to Karachi

Centre which also serve as its Head Office. Fatimid Foundation is the largest Blood Bank &

Haematological Services provider in the NGO sector, which is providing free of charge treatment to

poor & needy patients. It was the first blood bank in Pakistan to introduce the concept of voluntary

blood donors, and discourage professional donors. It has been collecting and distributing approx.

100,000 pints of blood and blood components annually from healthy voluntary donors.

Fatimid Foundation- Pakistan was established under a trust deed registered in Karachi. The trust deed vests powers to a "Board of Trustees" (BOT) to run the affairs of the Foundation. The Foundation provides specialized services for patients with blood disorders nationally and transfuses around 8,200 bags of healthy, screened blood and blood products every month to its registered patients, who number more than 14,000.

Fatimid Foundation Centres are equipped with the latest blood screening state-of-the-art equipments on CMIA/MEIA system, being operated with high quality blood screening kits of Abbott laboratories USA. Fatimid is also the pioneer of voluntary blood transfusion service in Pakistan and in terms of quantitative output of blood and blood products it is the leader amongst blood transfusion services in the country. It has recently been accredited an ISO-9001:2008 certification for Quality Management System and has certified as a CSO with PCP and approved charity with The i-Care Foundation

Fatimid Foundation is affiliated with the:

Thalassaemia Federation of Pakistan

Blood Transfusion Control Authorities in Pakistan

World Federation of Haemophilia

International Society of Blood Transfusion

Thalassaemia International Federation

ISO (International Organisation for Standardisation)

PCP (Pakistan Centre of Philanthropy)

The i-Care Foundation

Who Are We?

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Certifications

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Executive Director

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Grant Contracts

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Down Memory Lane Visitor’s Album - Selected Writeups

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Down Memory Lane Visitor’s Album - Pictures

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Fatimid Foundation Activities

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Ensuring Effective Treatment For Those Who Need It MostFatimid Foundation also arranged corporate blood camps with the following institutions (with over 50

pints a camp). These exclude road side camps and institutions with less than 50 pints.

§ Mondelez International Pakistan Limited

Karachi

§ Musa College - Quetta

§ National University of Computer & Emerging

Sciences - Karachi

§ Navy Poly Technic Institute - Karachi

§ NED University of Engineering & Technology

Karachi

§ New College - Quetta

§ Novartis Pharma Pvt. Ltd. - Jamshoro

§ PIA - Quetta

§ Power Cement Pvt Ltd - Nooriabad

§ Punjab Group of Colleges-Multan

§ Serena Hotel - Quetta

§ Shah Abdul Latif University - Khairpur

§ Shah Abdul Latif University Campus -

Shikarpur

§ Shaheed Zulfiqar Ali Bhutto Institute of

Sciences & Technology - Karachi

§ Sindh Agriculture University - Tando Jam

§ Sir Syed University of Engineering &

Technology - Karachi

§ SMA Rizvi Textile Institute - Karachi

§ St. Patrick's College - Karachi

§ Tameer e- Nau College - Quetta

§ Universal - Quetta

§ University of Sindh - Jamshoro

§ UOB (Art) - Quetta

§ UOB (Carnival) - Quetta

§ UOB (Micro) - Quetta

§ Usman Institute of Technology - Karachi

§ Y.M.C.A Poly Technical Institute - Karachi

§ Yunus Textile Mills (6) - Nooriabad

§ Yunus Textile Mills Landhi - Karachi

§ A1 City College - Quetta

§ Asian Institute of Fashion Design - Karachi

§ Atlas Honda Pvt Limited - Karachi

§ Bahria University Medical Dental College -

Karachi

§ Bisconni (Ismail Industries) - Karachi

§ Boys Degree College - Quetta

§ Bryaun League - Hyderabad

§ BUITMS - Quetta

§ Candy Land (Ismail Industries) - Hub

§ Engro Fertilizer Company - Daharki

§ Girls College - Quetta

§ Govt. Inter College D. G. Khan

§ Greenwich University- Karachi

§ Hyderabad Social Welfare Society - Hyderabad

§ IBA College - Sukkur

§ ICAMS (Insititute of Cost Accounting &

Management Science) - Hyderabad

§ Institute of Business Management - Karachi

§ Institute of Business Technology (Korangi

Creek) - Karachi

§ International Textile Mills - Karachi

§ Iqra University (North Campus) - Karachi

§ Islamia Boys College - Quetta

§ Island Textile Mill - Hyderabad

§ Isra University - Hyderabad

§ Lakyari Trust Hingorja Taluka Sobho Dero -

Khairpur

§ Law College - Quetta

§ Liaquat University of Medical Health & Science -

Hyderabad

§ Mari Petroleum Company - Daharki

§ Matiari Sugar Mill - Hyderabad

§ Mehran University of Engineering & Technology

- Jamshoro

§ Mehran University of Engineering And

Technology - Khairpur

Visit of His Excellency Mr. Akira Ouchi Consul General Japan in April 2015

o Inauguration of the automated Ultra Low Freezers -86 C by His ExcellencyMr. Akira Ouchi Consul General Japan in April 2015

Inauguration of the automated cogulation analyser by His Excellency Mr. Akira Ouchi Consul General Japan in April 2015

Page | 15

Inauguration of the Apheresis Equipment by His Excellency Mr. Akira OuchiConsul General Japan and the successful mega unit transfusion of a patientin April 2015

Mobile Blood Donation Vehicle donated by the People of Japan under the GrantAssistance for Grassroots Human Security Project (GGP) – October 2015

Inspection by His Excellency Mr. Mitsuaki Tosa Consul for Cultural & Public Affairs,Consulate General of Japan Karachi and a brief being explained by Sardar Yasin MalikTrustee Fatimid Foundation on the specifications of the Mobile Blood Donation Vehicle– October 2015

Page | 16

Visit and inspection of FF’s Mobile Blood Donation Vehicle by His Excellency Mr. MitsuakiTosa Consul for Cultural & Public Affairs, Consulate General of Japan, Karachi and celebratingits inauguration with Sardar Yasin Malik Trustee Fatimid Foundation – October 2015

Visit by Allama Qazi Aziz Chisti Chairman The Bismillah Charity – UK sponsoring thalassaemia children patients treatment along with Dr. Farrukh Shah ConsultantHaematologist, Whittington Hospital, London in April 2015

Visit by Dr. Farrukh Shah Consultant Haematologist, Whittington Hospital,London undertaking a clinic of underprivileged sick children patients of geneticblood disorders at Karachi in April 2015

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Visit by Allama Qazi Aziz Chisti Chairman The Bismillah Charity – UK at Karachi Centre with distribution of gifts to Thalassaemia children by him

Ms. Saba Hasan Director Pizza Hut presenting a cheque of donation toMr. Rumi Dossal C.O.O. Fatimid Foundation Karachi 2015.

Air Commodore Ahmad Salam Khan SI(M) Assistant Chief of the Air Staff (Works) PAF-AHQ, Islamabad with Rumi Dossal C.O.O. Fatimid Foundation donating blood at the Head Office Karachi Centre - Jan 16, 2015

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Air Commodore Ahmad Salam Khan SI(M) Assistant Chief of the Air Staff (Works) PAF - AHQ, Islamabad along with his staff donating blood at the Head Office Karachi Centre - Jan 16, 2015

International Thalassaemia Day and seminar organised in May 2015; L to R Rumi Dossal COOFatimid.Foundation; Dr Zia ur Rahman Medical Director, Abdul Bari Khan CEO Indus Hospital & Chief Guest; Aijaz Ahmed Mahesar Guest of Honour PC CDP; Dr Nazneen Zaidi Dir. ThalassaemiaAwareness Programme; Dr. Mrs. Tanveer Zuberi Consultant Radiologist.

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Speech by Mr. S. M. Muneer Trustee Fatimid Foundation and Chief Guest onHaemophilia Day April 2015

Walk organised by Fatimid Foundation on International Thalassaemia Day at Karachi – May 2015

Speech by Dr. Abdul Bari Khan CEO Indus Hospital and Chief Guest on theoccasion of Thalassaemia Day – May 2015

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His Excellency Yasuharo Shinto Acting Consul General Consulate of Japan, Karachi Chief Guest on Blood Donor Day June 2015 and presentation by Dr. Usman Sheikh Assistant Professor Aga Khan University Hospital on the benefits of blood donation.

Dr Jose Manuel Cardenas Diaz De Espade Spain Quality Manual Expert and Mr Kohorst Paulof GiZ visit to Fatimid Foundation – October 2015

Mr Paul of GiZ visit to Fatimid Foundation – October 2015Kohorst

Visit of Col. Junaid ADMS Rangers alongwith his team to Fatimid Foundation in 2015

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Chairman Lt. Gen. (R) Moinuddin Haider presenting an award to Dr. Yasmin RashidthSecretary General TFP at the 10 National Thalassaemia Conference held in

Karachi in November 2015

Dr. Farrukh Shah Consultant Haematologist, Whittington Hospital, London, Dr. MichaelAngastiniotis Medical Advisor TIF and Mr. Stavros Melides Director Melides Limited UKon a round of the Thalassaemia Ward at Karachi Centre – November 2015

Dr. Farrukh Shah Consultant Haematologist, Whittington Hospital, London, Dr. MichaelAngastiniotis Medical Advisor TIF & Mr. Stavros Melides Director Melides Ltd. on a roundof the Blood Bank and Laboratory at Karachi Centre– November 2015

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Community Development Workshop at Badin

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Visit by Dr. Michael Angastiniotis Medical Advisor TIF and Mr. Stavros Melides Director Melides Limited at Fatimid Foundation Head Office – November 2015

Fatimid Foundation's Blood Donation Camp at Institute of Business Management - 2015

Fatimid Foundation's Blood Donation Camp at Engro Fertilizers 2015

Fatimid Foundation's Blood Donation Camp at Jubilee Insurance 2015

Fatimid Foundation's Blood Donation Camp at ICI Pakistan Limited 2015

Fatimid Foundation's Blood Donation Camp at Institute of Business & Technology 2015

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Fatimid Foundation's Blood Donation Camp at Mari Petroleum Company Limited -2015

Fatimid Foundation's Blood Donation Camp at YMCA Polytechnic Institute-2015

Fatimid Foundation's Blood Donation Camp at Sir Syed College of Medical Science

Trust Hospital-2015

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Fatimid Foundation's Blood Donation Camp at NIB Bank 2015

Fatimid Foundation's Blood Donation Camp at Bahria University 2015

Fatimid Foundation's Blood Donation Camp at Shaheed Zulfiqar Ali Bhutto Institute of

Science & Technology-2015

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Mr. Ruhail Mohammed CEO Engro Fertilizer donating blood in one of FatimidFoundation’s blood camp at Engro-Fertilizer-2015

Mr. Bilawal Bhutto Zardari Chairman PPP donates blood at the ShaheedMohtarma Benazir Bhutto’s free medical camp installed at Fatimid Foundation’s stall in Larkana – December 2015

Mr. Bilawal Bhutto Zardari Chairman PPP donates blood at the Shaheed Mohtarma Benazir Bhutto’s free medical camp installed at Fatimid Foundation’s stall in Larkana – December 2015

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Children’s Painting on Thalassemia Day

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· Aaj TV· Abbott Laboratories Pakistan Limited · Aga Khan University Hospital· AJM Pharma Private Limited · Ajar Foundation· Arif Habib Investments Limited · ARY· B.P Factory · Bank Al Habib Limited· Beach Luxury Hotel· Beacon House School System · Blessings Rehabilitation Centre· Bohra Developers

· Children Hospital- Lahore

· Chiniot Hospital

· Community Development Programme-

Planning & Development Dept. Govt. of Sindh

· Din Group of Companies · District Government-Khairpur· English Biscuits Limited· English Boot House Private Limited · ENI Pakistan Limited· Famiy Educational Services Foundation

· Ganga Ram Hospital- Lahore

· GiZ- Gesellschaft fur International Zusammenarbeit· Global Pharmaceuticals Pvt. Ltd. · Government of Japan· Haemophilia Patient Welfare Society· Hamdard Foundation · Hamdard Medical Centre · HBL Foundation· Hilton Pharma Private Limited · Hospital Supply Corporation· Hussaini Blood Bank· Interflow Communications Private Limited · ISBT- International Society of Blood Transfusion· ISO - Quay Audit UK Limited Pakistan· J.P.M.C- Jinnah Post Medical Centre

· KITC- Kashif Iqbal Thalassaemia Centre

· Lab 21- UK · Liaquat National Hospital· Merck (Private) Limited Pakistan

· Ministry of CADD- Govt. of Pakistan

· Health Dept- Govt. of Sindh

· Ministry of Zakat- Govt. of Sindh & KPK

· N.I.B.D- National Institute of Blood Disease· NICH - National Institute of Child Health· NICVD- National Institute of Cardio Vascular Disease · Novartis Pharma Pakistan Limited

Partners in Progress. Pakistan State Oil · Pakistan Television Corporation · PCP- Pakistan Centre for Philanthropy· PNS Shifa Hospital· Rashidabad Memorial Welfare- Organization- Tando Allahyar· Red Crescent Society of Pakistan Sindh · Regal Textile Mills · Reliable Mechanical Services· Roche Pakistan Limited · S. Ejazuddin & Co. Private Limited

· Services Hospital- Lahore

· Shama Ghee & General Mills

· Sindh Blood Transfusion Authority· Technology Links Private Limited· Thalassaemia Federation of Pakistan· Thalassaemia International Federation . The i.Care Foundation. World Federation of Haemophilia

2015

Financial Highlight Balance Sheet

Page | 31

167,961,642

6,452,415

2,468,155

9,911,714

67,606,080

254,400,006

360,549,657

308,516,674

(7,802,398)

59,835,381

360,549,657

33 : 1

30 : 1

0.03 : 1

0.90 : 1

0.98 : 1

Rs. 662,967Rs. 55,247

363

Rs. 13,40814,121

104,841,599 1,308,052

106,149,651

7,539,695

26,734,657

211,746,425

308,516,674

63,498,128

308,516,674

22:1

106,949,369 86,994,629 6,954,740 13,000,000

193,145,162 64,893,647 28,000,000 57,667,420 20,064,340 18,969,552 3,550,203

300,094,531

106,949,369 26,222,144 7,465,616 37,530,353 13,879,160 19,803,621 1,908,480 139,995

133,309,781 64,110,566 7,465,616 1,975,282 730,482 1,042,296 13,663,533 208,007 7,668,001 5,101,278 3,004,023 5,500,827 1,209,692 6,686,918 7,062,303 1,075,113 223,904 183,874 198,994 64,560 752,034 34,852

4,362,510 985,116

240,259,150

59,835,381

ReceiptsFrom Zakat FundZakat from general publicSponsor a Child schemeProvincial zakat fundFrom Donation and OthersDonation and charity from general publicGrant in Aid from Ministry of CADDGrant in Aid from Provincial GovtMedical and service chargesProfit from PLS account and investmentOther incomeGrand Total

Expenditure

From Zakat FundSalaries and benefits UtilitiesLaboratory expenses Blood bags Medicine and suppliesCamp expensesFactored blood expensesFrom Donation and OthersSalaries and benefits Utilities Laboratory expenses Blood bags Medicine and supplies DepreciationAmortizationVehicle runningPrinting , stationary and communicationCleaning and upkeepingRepair and maintenanceTravelling and conveyanceAdvertisementLegal and professionalMeeting and receptionFees and subscriptionRent rate and taxesBank chargesComputer programming and networkingGratuity paidNewspaper and periodicalsCDP-expenditure *MiscellaneousGrand Total

Surplus for the year

86,304,377 67,165,606 6,138,771 13,000,000

163,458,423 39,043,196 28,000,000 71,391,400 11,924,607 8,472,488 4,626,732

249,762,800

86,304,377 13,861,774 4,738,559 33,804,668 12,873,166 17,644,031 1,706,117 1,676,062

99,960,295 52,060,073 4,738,558 1,779,193 677,535 926,833

11,102,154 208,507 6,833,458 4,980,696 2,469,533 4,916,029 1,079,350 4,958,700 137,955 1,018,006 242,988 196,641 163,007 23,245 716,691 22,718

- 708,425

186,264,672

63,498,128

Receipts and Expenditure Account

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2015

* Note: - CDP Expenses in 2015 was a result of grant received of Rs.8.891 million in June 2014 and incurred in subsequent year. Hence no expenses incurred in 2014. - Figures of 2015 now includes the receipt & expenditure of Quetta Centre.

YEAR ENDED JUNE 30

Six Years at a Glance (All Pakistan Basis)

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Blood Collected

Blood and Blood Products Produced

Registered Patients with Fatimid Foundation

ThalassaemiaHaemophilia

2009 ~ 2010

2010 ~ 2011

2011 ~ 2012

2012 ~ 2013

2013 ~ 2014

2014 ~ 2015

58768

60566

58249

52028

56976

53034

2009 ~ 2010

2010 ~ 2011

2011 ~ 2012

2012 ~ 2013

2013 ~ 2014

2014 ~ 2015

101785

100687

103155

98188

93964

100226

2009 ~ 2010

2010 ~ 2011

2011 ~ 2012

2012 ~ 2013

2013 ~ 2014

2014 ~ 2015

3236

3078

3142

3176

3193

8695

8860

8577

8501

8685

10466

3655

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Whole Blood/ Pack Cells Transfused/ Issued

Platlets/ FFP/ CP/ CS/ Transfused/ Issued

ThalassaemiaHaemophilia

ThalassaemiaHaemophilia

2009 ~ 2010

2010 ~ 2011

2011 ~ 2012

2012 ~ 2013

2013 ~ 2014

2014 ~ 2015

1112

1114

857

958

867

1325

43793

43061

44757

45346

46954

44209

2009 ~ 2010

2010 ~ 2011

2011 ~ 2012

2012 ~ 2013

2013 ~ 2014

2014 ~ 2015

1124

1140

2144

1968

2417

1473

43789

41636

45500

43954

43748

46463

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Appreciation and rosemary beadpresented by Prof. Dr. Anthony K.C Chan

What is Thalassaemia?Thalassaemia is an inherited genetic blood disorder in which there is an abnormality in one or more of the globin genes. Thalassaemia is caused by variant or missing genes that affect how the body makes haemoglobin. Haemoglobin is the protein in red blood cells that carries oxygen. People with thalassaemia make abnormal haemoglobin and that results in breakdown of red blood cells immediately after formation, which results in mild or severe anaemia.Children with thalassaemia major are normal at birth but become anaemic between the ages of three months to eighteen months. They become pale, do not sleep well, do not want to eat, and may vomit their feeds. If children with thalassaemia major are not treated, they have miserable lives and usually die between one to eight years of age.

How widespread is Thalassaemia in Pakistan? 5-7% of our population (approx 9 ~ 13 million) carries genes of thalassaemia minor. They do not need blood transfusions themselves but marriage of two such persons may give birth to children with thalassaemia major who would need regular blood transfusion for the rest of their life. Due to the carrier rate in our society, more than 6,000 children with thalassaemia major are born every year in Pakistan. More than 110,000 thalassaemia major children may be found in our country, getting half hearted treatment with infrequent blood transfusions and inadequate iron chelating therapy.

Can it be treated?The only known treatment for thalassaemia major is regular blood transfusions, usually every two or three weeks. Most children, who have these transfusions, grow normally and live quite happily into their early twenties. But to live longer, they need other treatments as well. After each blood transfusion the red cells in the new blood are broken down slowly over the next four months. The iron from the red blood cells stays in the body. If it is not removed, it builds up and damages the liver, the heart and other parts of the body. If this damage is not prevented most people with thalassaemia major die in their teens. The only known cure for thalassaemia major is bone marrow transplant. It is very expensive (approx. Rs. 2.0 million) and results have not been encouraging in Pakistan.

Can it be prevented? Yes, it can be prevented by

• Detection of carrier

• Pre-marital screening

• Avoid marriages between two carriers• Discourage consangeneous marriages

• Pre-natal diagnosis

The treatment of Thalassaemia without an attempt to control numbers of patients born with thalessaemia major, will result in unavoidable drain on family and national economy, that is why we have to focus on preventive management. Treatment of Thalassamia includes repeated Blood Transfusion and Chelation therapy to reduce iron over load. Permanent cure of Thalassaemia is Bone-Marrow Transplantation, expensive, with not so encouraging results in our setup, further more only 12% of Beta-Thalassaemia Patients have access to Blood transfusion Centers and remaining balance, remain undiagnosed and die at an early stage, hence to tackle this menace effectively the only measure is prevention.

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Thalassaemia

Do you care?

It is an irony of fate that the vast majority of thalassaemic belong to low income groups. Often the cost of

treating one child is 2 or even 3 times the monthly earning of the child's parents. should then such children

be left to die a painful death?

All religions of the world teach us that compassion and charity are amongst the greatest of virtues. We

beseech you to spare a thought for these children. We beseech you to express your gratitude for all

kindness the Creator has bestowed upon you by helping us ease the pain and suffering of thalassaemic

children. Surely you will be rewarded many times over.

What Can be done?

There is really only one long-term solution and that is to stop birth of Thalassaemia Major children. This is

possible. Countries like Italy, Greece & Cyprus where carrier rates were very high and 18% of population

carried different genes of haemoglobinopathies, have completely stopped birth of new Thalassaemic

children. In Iran, compulsory pre-marriage blood tests and genetic counseling have resulted in very high

success rate.

In our country, illiteracy and poverty makes this problem harder to tackle. Lack of understanding of

genetic disorders due to inter-marriages and resistance to pre-marital screenings also makes it difficult to

control such deadly disorders. There is a strong need to educate our people both in rural and urban areas

about these disorders and ways to stop their occurrence.

Till we achieve this level of awareness and response in Pakistan, we need to continue treatment of

thalassaemic children. For optimum treatment every thalassaemic child needs frequent transfusions of

screened packed red cells and regular iron chelation therapy. This costs more than USD 100 per child per

month.

What is Thalassaemia Major?

The child who has it, cannot make enough haemoglobin in his or her blood, So he or she would need

transfusion.

We suffer from Thalassaemia because by chance both our parents were carrying the genes of

Thalassaemia Minor.

Blood is made of 3 types of cells.

· Red Blood Cells

· White Blood Cells

· Platelets

The Red Blood Cells are little bags full of little bits called Haemoglobin which is red. That's what makes our

blood red. Each bit of Haemoglobin has iron granules attached to it.

Red Blood Cells are made in the bone marrow, which is a factory inside the bone. It is responsible for

the production of the blood cells. They go through the lungs and collect oxygen which sticks to the

iron granules and they carry it to our tissues. Oxygen gives us energy.

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What is Anaemia?

Anaemia means there are not enough red blood cells and less haemoglobin. You are ill because your bone marrow can't make haemoglobin and red cells properly. In fact, these red blood cells are smaller with less haemoglobin and don't collect much oxygen.

The best ammunition you have against anaemia due to thalassaemia is blood transfusion.

Blood transfusion of Red Blood Cells will replace the empty Red Blood Cells with new healthy ones andyour anaemia will go away and you will feel better.

Now be careful! The red blood cells are broken down slowly over the weeks but the granules of ironwhich were attached to bits of haemoglobin remain in the body.

What shall we do?

Fortunately, there is a drug used which is called DESFERRIOXAMINE, Desferrioxamine is like a ringmagnet, it picks up all the excess iron and carries it out of the body in the urine and the faeces.

The best way to inject it is from a small portable pump five to seven (5-7) nights a week.

Hi! I am the pump. I am here to help you. If you operate me correctly, you can receive Desferrioxamine perfectly and we can be life-time friends.

The pump is a little machine which helps push the syringe a little at a time and makes the injection last as long as 8-12 hours.

Overnight is the best time to use it and the most convenient, therefore, I sleep with my friend the pump every night and we are “ Friends for life”.

The needle is small and it is put under the skin, it hurts a little bit. You can put it in at night-time and take it out in the morning. That way the medicine is taken a drop at a time and moves around the body to catch the iron granules.

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Anaemia

What is Haemophilia?

Haemophilia is an inherited genetic bleeding disorder. The defect lies in the clotting mechanism of the

blood and is characterised by a life long tendency to excessive internal or external bleeding. This bleeding disorder can be classified into: Haemophilia 'A' due to the deficiency of factor VIII, Haemophilia 'B' also known as Christmas disease due to the deficiency of factor IX, the third kind 'C' due to the deficiency of factor XI. Another common bleeding disorder is Von Willebrand's disease, which is due to deficiency of Von Willebrand factor.

Symptoms:Patients with haemophilia very often have internal or external bleeding, both spontaneously or on trauma i.e. gums bleeding, bleeding from nose, bleeding in large joints of the body such as elbows, knees, ankles and shoulder joints, bleeding in urine, bleeding in stool or they may even get bleeding in the brain. These internal bleedings can vary in frequency from thrice a week to three or more times a year.

Consequences:If haemophilic patients remain untreated, the result would be prolonged excessive bleeding which may prove fatal or cause severe anaemia. Bleeding in joints causes severe deformities of joints, flexion/extension deformities, weakness of legs, shortening of leg and so on, which makes a patient crippled. Bleeding in the brain and abdomen are very dangerous and may even cause death.

Cost of treatment: Cost of treatment varies with degree of deficiency from mild to severe. In Pakistan the cost of one injection of Factor VIII in the open market is approximately USD 80/- If a severely affected patient needs 12-16 injections per month, the cost of treatment would be approximately USD 12,240 ~USD 16,320 per

patient per year. All Centres of Fatimid Foundation are equipped to make various blood components itself, which includes factors VIII, IX and other factors as well and therefore are able to shoulder part of the above cost through its fund raising efforts. Fatimid Foundation treats around 3200 registered haemophiliac patients free of charge but substantial government support is needed to subsidise this cost of treatment.

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Haemophilia

Physiotherapy is important for the bleeding disorder patients. Patients with bleeding disorder like Haemophilia bleed in their joints and muscles and experience severe pain in the affected area and movements are restricted. Factor replacement therapy controls the bleeding and accompanying pain. After the pain is relieved, physiotherapy plays a very important role and helps to restore muscle power and function, restores motion, blood circulation, improvement of muscle mass and power and helps to prevent deformities of the joints and improves pain.

Fatimid Foundation's physiotherapy department was started alongwith its haemophilia department in 1984. Today Fatimid Foundation's physiotherapy department has all the instruments required for modern physiotherapy treatment . Under the supervision of senior well experienced Physiotherapists, this department is catering to the needs of more than 2000 Haemophilia A & B patients. The complications and outcome of repeated joint and muscle bleed is much controlled and patients are now experiencing great benefits of a well equipped department.

At a very nominal charge facility of physiotherapy is also offered to OPD patients of the area

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Physiotherapy Management

FAQ & Protocols On Blood Management

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CONDITIONS

Abortion

History of blood transfusion

Surgery

Typhoid fever

Tattoo

Breast feeding

6 months

6 months

12 months

6 months

12 months after recovery

12 months after delivery

Immunization (Cholera, Gammaglobulin,

Typhoid, Diphtheria, Tetanus, Plague)

Hepatitis in family or close contact

History of Malaria duly treated

Rabies Vaccination

PERIOD OF DEFERMENT CONDITIONS PERIOD OF DEFERMENT

15 days

12 months

3 months (endemic)

3 years (non endemic area)

1 year after vaccination

Millions of patients whose lives depend on blood transfusions owe their indebtedness to millions of blood donors all over the world. There is no substitute for blood and there is no cause nobler than donating, as such. One until of blood donation can save three lives rather than one.

It is an established medical fact that blood donating activates the blood making system in the body and as such makes fresh and healthier blood, Since olden times, physicians advised persons to bleed, which was considered a cure for many diseases and ailments. Modern medical research confirms that regular blood donors are less susceptible to heart attacks. Blood donors are also more active physically and mentally. The joy and relief is immense in all spiritual terms by donating blood for saving three lives rather than one.

• Any healthy person between the ages of 18 years to 65 can safely donate blood.• The blood cells are always in the process of breaking and reforming, therefore, you can safely donate blood after three months.

• Medical examination of blood donors are always carried out by a doctor.• It only takes about ten minutes to donate blood and ten minutes to remain in lying position for recovery.

• The blood of the donor is fully screened for deadly and fast spreading Hepatitis B, Hepatitis C,

HIV, Syphilis and Malarial Parasite. The blood donor gets a report of his screened blood.

Can there be any other form of service to the suffering humanity better than this?

This is an appeal to you to become a regular donor of Fatimid Foundation. The choice is yours,

Either you can ignore this brochure and go about your life as if you know nothing, or you can show that you do care.

Save a Life!!

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Donations Flow Chart

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Donor

Outreach

Reporting Brand

Pitch

Blood

Money

Fatimid Foundation

Patients

Operational,Fixed &WorkingCapitalNeedsThalassaemia Haemophilia

Patients

Monitoring

Auditin

g

Money

Blo

od

Acknowledgement

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• Grant Assistance for Grassroots Human Security Project (GGP) 2014 from the People of

Japan for "The Project for Provision of Medical Equipments" - Karachi Centre.

• Funds for the Thalassaemia Prevention & Awareness Programme donated by CDP, Planning

and Development Department, Government of Sindh, Karachi.

• Mr. Shahnawaz Sultan's donation to Tando Allahyar Centre (Rashidabad).

• Technology Links Private Limited donation of Blood Bank Refrigerator for Karachi Centre.

• Donation by PSO to Multan Centre.

• Bismillah Charity UK Sponsorship of under privileged Thalassaemia children patients to Karachi Centre.

• Donation by Habib Bank Limited Foundation for Quetta Centre.

• Mrs. Iqbal's zakat donation of Novartis Deferral Injection for Karachi Centre.

• Engro Fertilizer Dharki for Sponsor of Thalassaemia Day - Khairpur Centre.

• A. F. Fergusons & Co. (PwC) Chartered Accountants for providing honorary professional services.

• One time Grant-in-Aid District Govt. Khairpur for establishment of Park for children patients.

• One time Grant-in-Aid District Govt. Khairpur for operational expenses.

• Mr. Saif-ul-Memon donation for Thalassaemia children - Khairpur Centre.

• Mr. Abdul Sattar donation of Desferral Injections - Karachi Centre.

• Ms. Zubaida donation of Blood Bags with BT sets - Hyderabad Centre.

• Mr. Muhammad Muneeb Salim donation of Blood Bags with BT sets- Hyderabad Centre.

• Mr. Imtiaz of USA donation of Desferral Injection/ Blood Bags with BT sets - Hyderabad Centre.

• Ms. Fatima Ahmad Amdani donation of Blood Bags with BT set - Hyderabad Centre.

• Dr. Khalid Yousuf Memon donation of Desferral Injection - Hyderabad Centre.

• Mr. Saleem Memon donation of MPV Ambulance Van - Hyderabad Centre.

• Mr. Haji Fazal Ellahi donation of Centrifuge Machine - Peshawar Centre.

• Mr. Shoukat Hayat donation of Micro Lab and UPS - Peshawar Centre.

• Mr. Muhammad Amin Nathani UAE for Karachi Centre.

• M/S Plaspack Limited donation for Lahore Centre.

• M/S Jalal Sons donation for Lahore Centre.

• Mr. Shehzad Ahmed Malik donation for Lahore Centre.

• Mrs. Mehreen Haider donation for Lahore Centre.

• Mr. Imran Ahmed donation for Lahore Centre.

• Ms. Rashida Ijaz and Ms. Shagufta Khanum Sponsor of Physiotherapy Room - Lahore Centre.

• M/S Asia Paint Industries donation of Shortwave Diathermy and 2 Visicooler - Lahore Centre.

• Mr. Moghees donation of 1 Visicoller - Lahore Centre.

• M/S Hilton Pharma donation of medicines - Karachi, Lahore, Peshawar Centres.

• Abbott Laboratories Pakistan Limited, Hilton Pharma (Private) Limited,

AJM Pharma Private Limited, Arif Habib Corporation Limited,

Global Marketing Services, Roche Pakistan Ltd., Global Pharmaceuticals Pvt. Ltd.,

Sure Bio Diagnostics for co-sponsoring the Brochure/ Annual Report 2015 as of the date and

time of publishing.

Fatimid Foundation Centres

KARACHI - Estb. 1980

PESHAWAR - Estb. 1988 MULTAN - Estb. 1991

HYDERABAD - Estb. 2007 RASHIDABAD(Tando Allahyar)-Estb. 2010

QUETTA - Estb. 2006 KHAIRPUR - Estb. 2012

LAHORE - Estb. 1986

Page | 45

2183 Stanley Road, Suite C Plainfield IN 46468

Contact persons:ATIF KAZMI

Email: atifkazmi@gmail.comDr. SHAHINA QURESHI

Email: shahinaq@hotmail.comDr. WALEED BIN AZHAR

Email: wbazhar@gmail.com

North

admin@fatimiduk.org.uk

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How to Donate

IBAN Code

PK14 HABB 0012 1679 0057 2103

PK39 SONE 0001 3010 2007 5286

PK02 SONE 0001 3020 1042 0926

PK67 FAYS 0330 0001 1660 1108

PK07 BPUN 0850 0280 0346 0006PK72 HABB 0001 3502 5465 6303PK66 MPBL 0284 0271 4011 3900

PK67 ABPA 0010 0156 6727 0010PK51 SONE 0002 2010 2029 1335

PK94 NBPA 1759 0013 0003 0144PK81 MEZN 0007 0401 0016 0611

PK14 HABB 0012 1679 0057 3603PK57 SONE 0000 6010 2121 9403

PK67 SONE 0014 7010 2152 5232PK46 HABB 0012 1679 0057 3803

PK66 SONE 0020 9010 2191 5171

GB26 HBZU 7006 7210 1030 96

ABA WIRE 026009593

Habib Bank Limited

Soneri Bank Limited

Soneri Bank Limited

Faysal Bank Limited

Allied Bank of Pakistan Ltd.Soneri Bank Limited

GBP 10103096

HABBPKKA

SONEPKKA

SONEPKKA

FAYSPKKA

Karachi Centre

Lahore Centre The Bank of Punjab Habib Bank LimitedHabib Metro Bank Limited

Multan Centre

Peshawar Centre National Bank of Pakistan Meezan Bank Limited

Hyderabad Centre Habib Bank LimitedSoneri Bank Limited

Rashidabad Centre Soneri Bank Limited Habib Bank Limited

Khairpur Centre Soneri Bank Limited

Quetta Centre Meezan Bank Limited

UK Centre Habib Bank AG Zurich

London, England.

USA Centre Bank of America

(Through The i-Care Fund America A/C)

CD 1216-79005721-03

SS 01020075286

CD 02010420926

PLS 116601-108

CD 0085-800346-000-6CD 0135-02546563-03

TD 6-284-20410-714-113900

PLS 0010015667270010SS 01020291335

PLS 003014-4TDC 0100160611

CD 1216-79005736-03SS 01021219403

SS 01021525232CD 1216-79005738-03

PLS 01021915171

0100399291

4636612240

PK37 MEZN 0011 0101 0039 9291

BPUNPKKAA HABBPKKA MPBLPKKA

ABPAPKKAAMULSONEPKKAMTN

NBPAPKKAAMEZNPKKA

HABBPKKA SONEPKKA

SONEPKKAHABBPKKA

SONEPKKA

MEZNPKKA

HBZUGB2L

BOFAUS3N

Swift codeAccount NoBank Name/Centres

You can send donations in USD, GBP, AED, EUR or PKR drawing out a Cheque, Bank Draft or Pay Order, or by instructing your Bank to transfer the donation amount in favour of “Fatimid Foundation” to any of our account number (s) as shown below.

You could also mail your cheques of donation to "Fatimid Foundation" 393 Britto Road, Garden East,

Karachi-74800, Pakistan

For electronic tax-exempt receipt, email the following information to ho@fatimid.org

1.Name

2.Contact Number

3.Mailing Address (for receipt)

4.Donation / Zakat is for

Fatimid Foundation, is a registered tax organisation in Pakistan, the United States and UK. We will provide receipts that can be used to claim tax exemption.

J.P. Morgan Chase 449858500 Routing #: 074000010

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