1.6 Komunikasi Pada Kasus Tertentu

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    COMMUNICA TION B ETWEENDOCTORS, PA TIENTS & THEIR

    FAMILIESBREAKING BAD NEWS

    R. Sjamsu hid ajatTjakra Wibaw a Manu aba

    Sutr isno Al ibasyahPerioperat ive Cour se.

    Col leg iums o f Surgery & Anes thes io logy.Indonesia

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    DOCTORS PA TIENTSRELATIONSHIP.

    Not an ym o re p aternali smSho u ld b e p ar tnership b as is .

    Equal

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    Communication is not:as some would say, simply goodmanners, empathy, being nice or

    pandering to the patients.

    BUT it offers a much more effectiveconsultation, and improved outcomesboth patients and doctors.

    HOPEFULLY.NOT The blind leading the blind?

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    ISSUES IN DOCTOR PATIENTCOMMUNICATION

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    Why teach and learn co m m un icat ionski l ls .

    Is there evidenc e that com m un icat ionsk i l ls can ov ercom e these p rob lem s andm ake a d i fference to p at ien ts , do cto rs , andou tcom es o f care (pro cess o f in terview ,pat ient s at isfact io n, pat ient r ecall &un ders tand ing , adherenc e, ou t com e)

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    Can yo u teach and learn com m un icat ion sk i l l s .

    Is th ere ev idence tha t com m unic at ion c an betaugh t and learned.

    Is th ere evid ence th at learnin g is retained.

    Is th e pr ize on o ffer to d octo rs and p at ien ts w or thth e effor t .

    w i l l expand ing the effo r t on com m unica tion sk i l lsteaching , p rod uce wo r thw hi le rew ards fo r bo thdoc tors and pat ien ts .

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    The answers are .yes

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    Und erly ing Prem ises

    - Com m un icat ion sk i l ls t each ing and learn ing

    need to b e evidenc e based.

    - Uni fied app roach to com m un icat ion sk i l lsteaching in m edic in e i s needed.

    - Com m un icat ion sk i l ls t each ing sho u ld c ross

    cu l tura l and n ation al bo un dar ies .

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    Underlying Premises..

    - Coord ina ted app roach to com m unica t ion

    ski l l s teaching throu gh out m edica l edu cat ionis necess ary.

    - A sk i l l, based on app roach to com m un icat ion

    sk i l ls teachin g is ess ent ial .

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    HUMA N REA CTION IN FA CINGDISEA SE WITHOUT

    ANY HOPE. Patients , Fam ilies, &Health pr ofess ion als .

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    In Critically ill patients :We have to deal with stressful depressed

    patient, and the families.

    We have to deal with other colleaguesother doctors, nurses who sometimesare also depressed

    in a very tense and depressingsituation or atmosphere!

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    How hu m an being faces c r i t ica l/ severediseases?

    Emo t ional Changes .

    Negat ive Emo t ional Chang es ( no m ore

    h op e, ang er, d isb elief , reject io n /denialandfinally acceptance.

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    Emo t iona l ch ang es

    Usual ly tem po rary

    Depending on Em otio nal Stabil i ty, pastexper ienc es, ps yc ho log ical m atur i ty, in ternalrepresenta t ion , cog ni t ive pro cess ing , t raum at ics t ressor and probably edu cat ion ?

    Aw areness o f Em ot ion al react ion .

    Return toward normal balance (inm ajor i ty cases)

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    Severe Physical / PsychologicalInjuries

    Emotional Reaction

    Emotional Processing

    Awareness of Emotional Reaction

    Returns

    Towards Normal Balance(majority of cases) PTSD ( small percentage)

    DEPRESSED!

    ?

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    In Facing a Serious & Critical Disease /TERMINAL Condition

    To Fly (to run awayFrom the situation) To Fight (to face, to accept &to cope with the condition)

    HUMAN BEING REACTION

    Painful Intrusive Recollection

    Human reaction would be.

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    STRESS/ DEPRESSION

    Suppressed intoSubconsciousness- Becoming chronic- Change of value system- Reappraisal- Disturbance of emotional processing- Failure to complete the emotional processing

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    By Understanding The WholePsychological Process in CriticalSituation/ Terminal cancer

    BETTER COMMUNICATION-Clearer-More effective & efficient communication-Honesty & openness.-Trust-Mutual respect-Politeness

    - Adherence-Collaboration.-More accurate information-Prevention of violent situation-Informed consent-Legal aspects

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    RELA XING & CORRECT POSITION DURING M EDICAL INTERVIEW.

    EQUAL (LEVEL) EYE C ONTACT.

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    BREAKING BAD NEWS.

    EXPLANATIONPLANNINGCONDITIONING

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    CONSIDERATION IN BREA K ING B A D NEWS

    SHOULD THE PATIENT BE TOLD : HE/ SHE ISSERIOUSL Y ILL .

    HOW MUCH THE PATIENT SHOULD K NOW A B OUTHIS/ HER COND ITION.

    SHOULD THE FAMILY K NOW A B OUT THE ILL NESS

    HOW MUCH THE FAMILY SHOUL D K NOW THEILLNESS.

    SHOUL D PATIENT K NOW THA T HIS/ HER IL L NESSCA N NOT BE TREA TED/ CURED.

    HOW MUCH THE PA TIENT AND THE FAMILYSHOULD K NOW A B OUT THIS.

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    CONSIDERA TION IN BREA K ING B A D NEWS

    DIVERGENCE BETWEEN PATIENT AND DOCTORSPERPECTIVES PATIENT & FAMILY HOPES OFGOOD NEWS. AND .DOCTORS NEWS (Tuckett et

    al, 1985)The Doctor must change the newshow? MOST DOCTORS w il l f ind th is du ty v ery diff icu l t! !!

    Psyc ho log ical Sequ elae of B REAK ING BA D NEWS

    DEVASTATING and L ONG LA STING (Finley &Dallimore 1991). Many reports expressing doctorsdef iciencies in th is m atter.

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    How Muc h Th e Pat ient and The FamilyShou ld kn ow abou t the ir Cr i t ical Cond i t ion .

    THE PATIENT A ND THE FA MILY SHOULD K NOWENOUGH A BOUT th eir Cri t ical Il lness/ Cond it ion.THEY SHOULD K NOW THA T THEIR CONDITION CA N

    NOT/ DIFFICULT TO BE CURED, THAT THEPA TIENT WILL DIE? (THE PATIENT OR THE FAMILYONL Y ?).IN THE CA SE OF INDONESIA, PROB A B LY THEFAMILY SHOULD KNOW MORE? .

    IN OTHER CO UNTRIES (USA ) THE PA TIENT MUSTB E TOL D FIRST.DO NOT EVER TELL THE PATIENT, HOW L ONG HE/SHE WILL LIVE !!!!!.

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    K EY CORE SKILL FOR BREAK ING B AD NEWSEXPLA NA TION & PLA NNING .

    Preparat ion

    Summariz ing

    Negot ia t ing the A genda

    Lis ten ingPick in g up Cues

    The use o f Si lenc e

    Discovering the patients concern and ideas

    Encou raging the express ion fee lingPick in g up the non v erbal cues

    Bui ld ing rappor t

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    K EY CORE SKILL FOR BREAK ING B AD NEWS.

    Cond i t ion ingEmpathyAcceptanceDiscov er ing th e pat ien t s tar t ing p oin tDiscovering the patients feelingGauging w hat and h ow m uch in fo rm at ion to g iveDisco ver ing w hether a pat ient is a seeker or andavoider of in form ationGiv ing sup por tGiving clear jargon - f ree explanat ionChunk ing and check ing in fo rm at ion g iv ing

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    Sugg es t ion for B reaking B ad New s.

    PREPA RATION :

    - Set Up appointm ent as so on as po ssible

    - Un interrupted t im e- com for table & famil iar a tmos ph ere

    - Inv ite sp ou se, family , fr iend s as appro priate

    - adequately p repared for pat ient b ackgrou nd, educat ion

    si tuat ion, records .

    - Doctor s hou ld pu t as ide personal feel ing .

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    PLEA SE NOTICE THE POSITION OF DOCTOR PATIENT.

    IT IS CLOSER, FAMILIAR, AND THERE IS NO BARRIERBETTER.

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    Sugg es t ion for B reaking B ad New s.

    B EGINNING THE SESSION.

    - sum m arizing w here thing s have reached to date

    - Discov er what has h appened s inc e las t seen- Cal ibrate how the pat ient i s th inking / feeling

    - Nego tiate an ag end a.

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    Sugg es t ion for B reaking B ad New s.

    SHARING THE INFORMATION- ASSESS THE PATIENTS UNDERSTANDING - GAUGE HOW MUCH THE PA TIENT WISHES TO KNOW- GIVE WARNING .CONDITIONING I am afraid w e have

    som e bad news to te ll ; I am afraid i t loo ks mo re ser ious

    than we hope - GIVE BASIC INFORMATION, simply and honestrepeat

    impor tan t p o in t s .- Relate your information to the patients framework - Do no t g ive too m uch in fo rmat ion too ear ly ; do no t

    p u s s y fo o t b u t d o n o t o v e rw h el m- Give inform at ion in s mal l chun ks; categorize inform at ion- Watch th e pace; check repeatedly for u nd ers tand ing, feel ing as

    you p roceed.- Use proper langu age, avoid jargon !

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    Sug ges t ion for B reaking B ad New s.

    B EING SENSITIVE TO THE PA TIENT.- Read th e non -verbal cu es : face, bo dy langu age

    si lenc e, tears- Allow for shut down (when patient turn off,

    s top l i s tening, s i lence) give t ime & space;al low denial .

    - Keep pausing to g ive pat ient t im e to askquest ion.

    - Gauge the patients need for further information pat ient w i l l react var iously, demand

    differently.- Encou rage express io n of feel ing : I am sorry that was

    difficult for you.

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    A HA UNTED SITUATION?

    A PROVO CATIVE ATMOSPHERE FOR C ONSULTATION?

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    Sugg est ion for B reakin g B ad New s.

    BEING SENSITIVE TO THE PATIENT - Respo nse to the pat ient feel ing and predicam ent wi th

    acceptance, em pathy, and con cern.- Check the patients previous knowledge about the

    inform at ion given.- Specifically elicit all the patients concern - Check th e und ers tandin g o f info rm at ion given, e.g . :

    would you like to run through what you are going totell your wife/ family

    - Be aware of u nsh ared m eaning , e.g . : w hat cancer m eansor the pat ient com pared w hat i t means to the phy sician.

    - Do n ot a f raid to s how emot ion & dis t ress (phys ic ianhu m an being ) .

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    Sugg est ion for B reakin g B ad New s.

    FOLL OW UP & CL OSING.

    - Sum m arize and check w i th pat ient .- Do n ot ru sh pat ient to t reatm ent .

    - Set u p ear ly fu r ther appoin tm ent , offers te leph one c alls ,

    - Ident i fy su pp ort sy stems : invo lve relat ives and f r iend s,

    re l igion or c ul tural leader or oth er rela ted p rofess ion al

    - Offer to see/ tel l spo us e or ot hers.

    - Make w rit ten m aterial available.

    ( Bu ck m an1994; Faulkn er 1988)

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    SPECIA L ISSUES

    DOCTORS sh ould a lw ays ask qu es t ions forthems elves :

    - Am I in po si t ion to g ive this pat ient accu rateinformat ion?

    - Have I discovered the patients illnessframework : his thought, feeling ? - Have I developed su ff ic ient rappor t w i th th e

    patient?.- What i s th e effect on the pat ient o f w hat I am

    saying?- Am I go ing at the pace of the pat ient?- Am I being f lexible , sup po rt ive and emp athic?- Am I negot ia t ing an effect ive plan fo r the futu re?

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    SPECIA L ISSUES

    CUL TURA L ISSUES.- Cros s Cu ltural Persp ect ive- Ethnic Com plexi ties- Do no t s tereoty pe pat ients- Cultur e is a textu red pat tern of b eliefs &

    pract ices .- Patients culture provide him/her ideas about

    heal th and i l lness , no t ion s abou t causal i ty, e tc

    - Modern doc tors very of ten enco un ter prob lem srelat ing to c ul tu res , t radi t ion s etc .

    Chu gh 1993; Myersco ug h 1992; Eleftheriadou 1996.

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    SPECIA L ISSUES

    REL IGION A ND SPIRITUA L GUIDA NCE A REIMPORTANT FACTOR IN BREAKING BAD NEWSIN CRITICA L L Y ILL PA TIENTS, WHEN THERE IS NOMORE HOPE FROM THE POINT OF MEDICA L VIEW.

    - Rel ig ion and sp i r i tua l gu idance w i l l b r ing th e

    patient o ver and faster to the acceptancephase , and g iv ing up to th e Lord th e fate forthem

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    Painful maybe, but a good supportive communication

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    MA JORITY (70%) OF MEDICAL

    L AW SUING IS

    CA USED BY PROBL EMOF DOCTORS PATIENTS/ FA MIL IESCOMMUNICATION

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    Exam ples of Medical Law - Suing

    Rude way of communication Mas tec tom y wi thou t b iopsy wi thou t su ff ic ien tm edical in form at ion .

    Ster i l iza tion w i thou t p roper c on sent .Fai lure to d iagn os e in a very rare i l lness .

    Operat ion w i thou t con sent .

    Repr imand fo r doc to r wh o speak too m uch .

    Mul tip le m iscondu c t o f a doc to r

    Miscon duc t because of profess ion delegat ion .

    Etc.

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    .AND MAY LORD GIVE US THE HEALERS THE STRENGTH, TO SEE OUR FEL L OW C RITICA L LY

    IL L PATIENTS AS A SUFFERING HUMA N B EING,

    A ND THAT THEY NEED OUR B EST EFFORT A ND

    EXPERTISE TO HELP THEM OVER COMING THEIR

    PROBLEMS, .AND NOT.. TO AD

    THANK YOU.