PumelFercfrst.ffitFEIIIGOLD*Newsletter of the Feingoldo Associations of the United States

June, 1991 Vol. 15, No. 5

DisneyWorld!Feingold members can, and do, have enjoyable vacations at this famous attraction.

rrrhe staff at Disnev World deser-I ves hish marks foi tbeir desire to

help Feingofuers, but our requirementsare a bit too complex for them to be ableto provide all of the information wewould like to have. Here are some bitsand pieces from the Disney World of-fice and from members who have toldus how they handled things.

Some of the lodging facilities in andnear the park have kitchens, and if youhave a car it should not be hard to findsuitable foods in nearby supermarkets.There is a small grocery store in DisneyWorld as well.

The trailers in Fort Wilderness alsohave kitchen facilities; they're small,but wel l equipped, and includemicrowave ovens. All of the silverware

and cookhg utensils are provided, andthe maids will even wash the dishes foryou!

The Guest Relations office at theentrance to the park will provide infor-mation about special diets, such as

vegetarian (which would probably con-tain fewer additives), but they camotprovide information about additive-free eating.

A member wrote that her farailyvisited the park several years ago andwere able to eat naturally. "When wemade reservations to eat at the specialevents (such as breakfast with Disneycharacters, Hawaiian show, etc.) wecalled the kitch€n early in the day anddescribed our diet restrictions. Thechef either met us when we arrived forour meal, or talked with us on thephone. They prepared meals without[the prohibited] additives. Sometimes,because we had phoned iIr advance, the

Continued on page 2

New Study Nearing CompletionA three year study at the University of Iowa - with funding from food, chemical andpharmaceutical companies - will be completed this summer

r lb is major research e f for t.f proposesto investigate how food

ingredients, including synthetic dyes,preservatives, aspartame (Nutra-Sweet), and sugar affect a child's be-havior and school performance.

FAUS requested information on thedesign ald other details of this study,but the researchers declined to provideit. According to newspaper reports,the study was initially plamed to cover80 children from the ages of 3 to 12, ona special diet lasting 16 weeks. Thenumbers have been scaled down to just24 children diagnosed as having atten-tion deficit disorder (ADD) and hyper-activity and ar equal number with nosuch svmDtoms. The duration has bccn

reduced as well to nine weeks. Theresearchers reported they have had dif-hculty recruiting children to participatein the study, despite the offer of freefood for the entire family.

Like previous studies, this one con-tains numerous potential pitfalls suchas: salicylate sensitivity; hidden addi-tives, such as antioxidant preservativesin mil( colored/flavored toothpaste,mouthwash, vitamins or medicine; hid-den synthetic flavoringsl swappingfoods at school; delayed reactions;cumulative reactions; combined effectsof additives; undetected food or en-vironmental allergies; reactions to dyeson the skin; reactions to scentedoroducts.

Alother potential problem of thestudy design is that the children will beevaluated by a researcher only once aweek. This duplicates ooe oftbe majorflaws of the early industry-sponsoredWisconsin study. Diet diaries of Fein-gold members reflect how significantlyand often a sensitive child's behavrorcan change; school performance is sub-iect to wide fluctuations as well. Aonceweekly evaluation is too imprecise ameasurement to be very meaningful.

The $600,000 study is being spon-sored by the Institute of Child Healthand Human Development of the Na-tional Institutes of Health, with fundingheln from the [trternational Lile Scien-

Continued on page j

new Fast Food Guide enclosed

Dear Friends,

The Story of a Good Boy

In November we began to suspect that our middle child, Robert (Bobby), age 8, had alearning problem.

A ctually, teachers in the past alsoflhave made comments in tbe

same vein.In January a doctor at Fort

Campbell, KY confrmed that Bobbywas ADHD. Among his problems:

1) He was restless - couldn't fallasleep before 11 pm since age 2.

2) He bit his nails until they bled.3) He was VERY impulsive and as a

result had no friends.4) He was LOUD. Couldn' t

talMad to yell!5) His handwriting (printing) was

terrible and seldom hit the lines.6) Always in a hurry.7) Sad - unhappy with himself.8) Demanded constant watching.9) Always in trouble in P.E. class,

naughty at church, on the schoolbus, onthe church bus.

Our poor child was rapidly gettingthe message that he was a BAD boy.We were given Ritalin and told it wasthe ONLY treatment that worked.When I came home I could not give itto my chi ld. I began to searcheveryvhere for another solution. Itried other doctors who all gave meIarge bills and the same solution -Ritalin.

Finally, in reading a cookbook I sawDr. Feingold's name and then foundyour association.

I must admit I did not buy "the diet"idea at first. But I was willing to try anysafe solution. Bobbywas also willing totry.

Also, no doctor could explain whyBobby was such a peaceful and totallyenjoyable baby and toddler. He be-came difficult about the time he hittable foods, stopped nursing, andstarted brushing his teeth.

Now Bobby has been on Stage I ofthe diet for approximately 8 weeks. Heis a completely new boy. within twoweeks his teacher was so inpressedwith this change she requested infor-mation on the diet to help otherchildren. HisP.E. teacher (who did not

know about the diet) voiced how wellbehaved he is now, "Wtrat a dramaticchaage!"

A good friend of mine who is also ateacher observed Bobby for 6 hoursand summed it up by saying "He is notthe same boy."

Bobby now walks vs running.He talks vs yelling.He problem solves vs hitting.He excells in school and his nen-

manship isjust great and on the lhes.He now gets to sleep (since we

changed to Tom's toothpaste) by 8:30pm. And his nails are growing. Thebest result is Bobby is learning to likehimself and mate friends. I could crywhen I think of how this has chansedour ljves. ln [act, I have.

We are an Army family and my hus-band was overseas during this entiresituation. We have 3 cbildren, andwere in a new community with no sup-port. This was a difficult time to try thediet ard if we succeeded under thesecircumstances anybody can,

To those considering giving "thediet" a try let me say"go for it". I thankGod I did.

Sincerely,Susan FrisinaCkvksville, TN

Disney World, from page 1

meal was ready by the time we arrivedand we got ushered in promptly. Wefelt like V.I.P.'s! During the day wealways went back to the place thatserved natural food [the Lunching Pad]in Tomorrowland. We had no reac-tions!"

Sherry Cruise, in the Disney WorldFood Office, agreed it is a good idea tocontact the kitchen well in advance, butat a time when they are not busy. Thiswould not work at the snack bars, how-ever, where the food is alreadyprepared. She said the park tries toavoid the use of MSG, but this additivecan be hidden in foods. MSG is oftenfound in other additives and is not indi-cated on ingredient labels. In somecases it is deliberately added to otheradditives. The nhone number for the

Disney World Food Office is (407) 824-5993.

Once you understand your cbild'sdegree of sensitivity and know thoseadditives to which he reacts, you will beable to decide how many meals to eatout, and what you should prepare rnyour kitchenette. If you followed thediet carefully when you were new to theProgram and kept a diet diary, youshould have a good underslarding ofbow sensitive your child is, if there is asalicylate-sensitivity, and how liberalyou can be.

Feingold members are invited tocontact FAUS and share your informa-tion and exeriences with us.

Note: Many theme and amusementparks stamp your hand to indicate youhave paid the admission fee. Don't letyour chemically-sensitive cbild have hishand stamped; call the park in advanceand let them know that your youngsteris very sensitive to dyes, which can beabsorbed through the skin (ust as med-icines can be). Ask them to stamp acard, or to arrange for a different formof identification.

Ifyou feel that you will need to bringyour own food into an amusement park,theatre, etc., have your doctor write anote to this effect on his prescriptionpad, and carry this note with you whenyou go to entertainment facilities.

2 Pure Factsllune, 1991

AnesthesiaDear Pure Facts

Pure Fackllune. 19 I 3

ThankYou!Thanks to the efforts ofldaho mem-

bers, especially Joan Falconer, we arereaching many families in this state.

A new Idaho member, CarolFrongner, shared her family's recipefor a maple-type s).rup.

Mix 2 cups sugar with I heapingteaspoon of Postum ilstant beverage(the one with the blue arrd silver label).Add 1 cup water and bring the mixtureto a boil. Boil briefly; store in therefrigerator.

Carol lives in Rigby, ID, and wouldlike to communicate with Feingoldmembers to compare notes and shareideas on how to find products. Herphone number is (208) 745-842:7 .

Phone calls are corning in to ournational office from parents who haveseen our flier. It 's especially gratifingwhen these are parents of pre-schoolchildren - before they must deal withlabels, low self-esteem and Ritalin.Please contact the FAUS office if youwould like more copies of our flier topost. You can write, or call (703) 768-FAUS and leave a message on theanswering tape.

FAUS Education Committee chat-person, Barb Keele, has developedsome great new brochures for you toplace in your library, and if they don'talready have one, FAUS will donate acopy of our Handbook to the library.Giveus a call ifyou'd liketo have either.(Please include a small donation tohelp us payprinting and postage costs.)

Summertime is a good time to tellthe PTAJPTO program chairperson inyour child's school thal our videotape isavailable for the next school year'sprograms. You can also get additionalcopies of "Color Johnny Hyperac-tive/ADD" - the insert in the MarchPure Fqcts.

Some United Way donations arecoming in from members who desig-nated the Feingold Association asrecipient last fall. Thank you!

With the economy in such badshaoe. we have received an unusualnumber of requests for reduced feememberships, and this has made an al-ready tight budget even tighter.

Are you a member of an ADD sup-port group? Contact the FAUS officefor information to share.

Label Caution ProposedThe I l l inois House of Repre-

sentatives is considerhg a bill whichwould require food producers andpackagers to place warning labels onfoods which contain "significantamounts" of chemicals known to causecancer or birth defects.

Since malry of the additives removedby the Feingold Program are known orsuspec(ed cancer-causing agents. this isof interest to the Association. Even ifsuch a bill were to make it all the waythrough the General Assembly, andreceive the Governor's signature, how-ever, it is unlikely it would male muchdilference for the Feingolder. This isbecause ofthe stioulation that the foodwould be labeled only if it containedsignificant amounts. Even a few parls-per-million can alfect a sensilive Feio-golder. Despite these limitations, how-ever, such a law would be a remarkable

The next Pure Facts willbe our combined

July/August issue.

SummerNoteIf you are sensitive to benzoates,

Barbara Ballmer warns that the PABAfound in some suntan lotions stands foroara-arnino-BENZOIC acid.

OccupationalHazards

pemember how Ralph Cramden-[\(aka Jackie Cleason) always

came home from work in such agrouchy mood? You may recall that"the Honeymooners" character was acity bus driver, and this meant breath-ing in exhaust fumes all day. Of courseGleason probably never saw the insideof a bus, but his character was so trueto life, it has endured for years afler theshow ended.

Chernically sensitive adults - andchildren riding on school buses - canexperience both physical and be-bavioral reactions to many things, in-cluding gasoline exhaust fumes.

Ralph's longsulfering wife, Alice,would have been glad to learn of a newproduct now being tested on buses inStockholm and Copenhagen. It is aceramic hlter, manufacturerd by VolvoBus Corp., which replaces the tradi-tional muffler. The filter reducesnoises and traps 80Vo of the soot and60Vo of the hydrocarbon ard carbon-monoxide emissions.

At this stage, the product is expen-sive, and requires regular cleaning, butit could be a smart investment forbeleaguered cities.

Editor's note: This leads one tospeculate on lhe possible effect oftoxicfumes found in the workplace ofRalph's notso-bright buddy, Norton.As you recall, Norton worked in thesewers,

Chemically-sensitive people can runinto problems in many occupations.The introduction of carbonless copypaper in offices has made life neater,but has created problems for some ofthe people who are continually exposedto it, according to the Allergy Informa-tion Association of Canada.

The resin in this paper can causereactions which include headaches,swollen eyes, hoarseness, flushing,rashes, itching, and swelling of thelar'ru<. A person might find they donot react initially, but develop a sen-sitivity after frequent exposure to thepaper.

Pure FactsEditor: Jane Hersey

Contibuting Editors

Fort Worth: Carolyn AllenIowa: Barbara KeeleLos Angeles: Colleen SmethersNew York: Pat PalmerOntario: l,ois GowalsSan Francisco: Lynn MurphySt. Paul: Sue Maldonado

Pure tractsis published ten times a yearand is a portion ofthe materialprovidedto menibers of the Feingold Associa-tion. For further information, write to:FAUS, P-O.Box 6550, Alexandria, VA22306 or phone (703) 768-FAUS.

4 Pure Factsllune, 19 I

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