Janeway Telethon – And How it all Happens

On Saturday, June 1 and Sunday, June 2 the

Janeway Children’s Hospital Foundation

will celebrate the 35th Annual Janeway

Children’s Miracle Network Telethon. As the

Foundation’s largest fundraising event, the

Telethon provides us with an opportunity to

share inspiring stories about our children, our

staff and our hospital.

It takes months of filming and editing to

produce the more than 60 pieces aired

throughout Telethon Weekend. From Nine

Island Communications and their production

team you will see the incredible stories of

our Champion Child, Sammi-Jo MacKenzie

James and Miracle Kids Logan Millard; Ravyn

Turpin; Kaleb Slaney; Peyton Toms; Maria

Greene and Hunter Hollett. Also featured

N E W S L E T T E RS P R I N G 2 0 1 9

PAGE 1 OF 8

Janeway Telethon – And How it all Happens throughout the year, support the purchase

of vital medical equipment; life-saving

research; ongoing staff education and

specialized pediatric programs.

Lynn Sparkes, President and CEO, Janeway

Foundation recognizes the commitment

and support of Newfoundlanders and

Labradorians. “Thank you for investing in

doing what is right to help our Newfoundland

and Labrador children live their longest,

healthiest and most fulfilling lives. Through

your gifts we purchase modern, adaptable

medical equipment, making procedures less

invasive and traumatic for children who are

undergoing treatment.”

will be the Outpatient and Development and

Rehabilitation Departments and the care

and treatment that our Janeway kids receive

from our dedicated team. Plus so much more.

Each year the Telethon provides us with

an opportunity to highlight the kindness

and generosity of our donors whose gifts,

Filming continues for the 2019 Janeway Telethon

Miracle Kid Peyton

OF 8

Janeway Telethon – And How it all Happens During the 35th Annual Telethon, we will

continue to showcase the incredible talents

of our musical performers who all volunteer

their time for the Janeway. As well, you will

see many of our media personalities and

guest hosts, coming together on Telethon

Weekend, “For all our Kids”.

2019 will mark the 8th year working with our

Broadcast Partner NTV. General Manager,

Lindsey Andrews and his committed team

began preparations in October to ensure

that everything will be in place to broadcast

the Janeway Telethon from four locations

throughout the province.

And this year due to the kindness and

generosity of NTV and the Stirling Family we

will be on air for an additional hour, beginning

at 5:30 pm Saturday, June 1. “NTV is very

pleased to offer this one extra hour of air

time for the 2019 Janeway Telethon as part

of our continued commitment to the children

of Newfoundland and Labrador”, stated

Lindsey Andrews. “This additional hour

will offer more time to showcase Janeway

patient stories , features and presentations

from our generous donors.”

Tune in to Canada’s Superstation, NTV on -

Saturday, June 1 (On Air – 5:30 pm – 9:30 pm)

and Sunday, June 2 (On Air – 9:00 am – 7:00

pm) from these locations:

NTV Studio 107

Avalon Mall – Entertainment Central

Gander International Airport

Corner Brook City Hall

For Telethon updates, follow on Facebook,

Twitter (JanewayNL) and Instagram

(janeway.foundation).

Behind the Scenes

Cut and mail to: Janeway Foundation | 300 Prince Philip Drive | St. John’s, NL A1B 3V6

Yes! I will make a difference in the lives of our province’s children.

Please accept my gift of...$25 $50 $75 $500 Other $ EMAIL

Official income tax receipt for gifts of $15 or more.This name will appear on your receipt. Please indicate any changes to your name or address.

CHARITABLE REGISTRATION NO. 119239127 RR 0001

MAIL TO: Janeway Foundation 300 Prince Philip Drive St. John’s, NL A1B 3V6

Please make yourcheque payable to:

Do not publicly acknowledge my gift.

CARDHOLDER’S NAME (please print)

EXPIRY DATE /M M Y Y SIGNATURE

FULL NAME

MAILING ADDRESS

PHONE

$100

VISA AMEXMasterCardI prefer to use my:

OF 8

2019 Janeway Champion Child Sammi-Jo MacKenzie JamesThis is Sammi-Jo MacKenzie James, the 2019 Champion for the Janeway Children’s Health and Rehabilitation Centre. Sammi-Jo recently returned from an extraordinary experience as the Janeway Ambassador at Children’s Hospital Week in Orlando, generously sponsored by Walmart Canada.

At two and a half, Sammi-Jo was diagnosed with Cystic Fibrosis. Her health care journey was only just beginning. Each and every day, Sammi-Jo takes special medications and has to undergo chest physiotherapy. Now at 13, she is very well known at the Janeway, from the fourth floor medical staff to the

first floor physiotherapy team. She adores each and every one of her caregivers, and the feelings are mutual.

Sammi-Jo is very close to her younger brother Morgan, and loves to spend time with him and her family and friends, learning about their Native culture. Shy at first, but sweet and gentle, Sammi-Jo always wears a smile, even when she is not feeling 100%.

Sammi-Jo is so thankful to the people of Newfoundland and Labrador who support the Janeway. She knows that they are helping her and her many Janeway friends to get the best care. And as she says, “that is the most important thing.”

While Sammi-Jo was in Orlando she had the opportunity to meet Champions from across Canada and the United States, making many friends during her short stay.

“I always knew how important the Janeway is to me and to the friends that I have made there”, said Sammi-Jo. “Now I have friends from all over Canada and the United States, and they need special care, just like me. It’s really important for all of us to have a hospital and doctors and nurses, who put us first. We are very lucky to have the Janeway.”

“I am really proud to be the Janeway Champion.”

Photo courtesy of Sara Rostotski

Children’s Hospital Week, Canadian Champions

OF 8

The Janeway Fights for You

Chronic conditions and serious diseases not

only rob children of their health, but of their

childhoods. As parents, if we could take

on these conditions and leave our children

safe and happy, we would. But that, as we all

know, will never be possible.

That is why our Janeway Hospital and our

medical team are so important to the well-

being of our province’s pediatric population.

Parents and medical teams work together

to ensure that our children are provided

with the best outcomes possible.

This year, the Janeway Foundation,

working with Nine Island Communications,

has developed two Public Service

Announcements that speak to how families

are affected by the conditions or illnesses

of their precious children.

These messages show our kids and their

families, who come from every corner of our

province, and our Janeway staff. Each and

every day the fight continues. The fight to

be well. The fight to support our children.

The fight to ensure that each and every

child that walks through the doors of the

Janeway receives the best care possible.

“We wanted to show people in the province

the incredible love and courage parents

show for their kids,” said Nine Island Co-

owner, Peter Walsh. “But we also wanted to

show just how hard the fight can be and how

the Janeway staff is there to fight alongside

families. We think these PSAs capture that

in a powerful way.”

We could not do what we do without the

support of you, our donors. Your gifts

provide our medical team with the tools

needed to fight for our province’s children

and their healthcare.

Watch our new PSA’s here:

Janeway - Across NL 30 sec https://youtu.be/37hcgdCz3zw

Janeway - We Fight for You 30 sec https://youtu.be/UIzCJjF2Ya4

https://youtu.be/37hcgdCz3zw

https://youtu.be/UIzCJjF2Ya4

OF 8

Hey, Look at Where Your Money Goes!

Continued Educational Opportunities for Janeway Medical TeamWhy is the continuing education of our Janeway staff so important to our patients?

For those in the medical profession, learning does not stop when a university or post-secondary degree is obtained.

To ensure the enhancement of clinical practices and the provision of best care, medical professionals enter into a practice of life-long learning. Imagine the changes

that have taken place, over the past 10

years, in the diagnosis and treatment

of illness and injury. It is truly difficult

to grasp how important those medical

advancements are, and how much time our

medical professionals spend enhancing

their knowledge base to keep pace.

Each year, the Janeway Foundation awards educational and bursary grants, totalling $100,000 to staff who treat our pediatric population. These grants have enabled staff to take part in courses and conferences in Canada, as well as hosting educational opportunities, right here at home.

Topics in emergency medicine; congenital hear t disease; advanced fetal monitoring ; cognitive behavioural therapy; dynamics in critical care and the neonatal/ pediatric airborne conference are just a few of the courses that our staff have attended this past year.

Within the Janeway Hospital there are 15 specially trained staff (NICU Nurses and Respiratory Therapists) who work in collaboration with neonatologists transporting premature babies, or babies who require emergency care, to the Janeway or out-of-province medical centres. These staff have to be ready and prepared for any eventuality, any emergency that may arise, especially when travelling at 20,000 feet.

During the Neonatal/ Pediatric Airborne Conference, our staff took part in training modules focusing on - additional skills in the assessment and stabilization of neonates with suspected congenital heart disease; workshops to offer hands-on experience in delivering high frequency ventilation during transport; and, sessions to expand their knowledge base for difficult intubation, placement of needles directly into the marrow of bone; and chest tube placement.

Through donor generosity we continue our practice of offering life-long learning opportunities to our dedicated medical team, all to provide best care to our young patients, within each and every Janeway Hospital department.

The Janeway Foundation, along with the generosity of its donors, make it possible for healthcare providers, like myself, to obtain funding allowing us to participate in a variety of educational opportunities.

I had the opportunity to attend an International Neonatal Transport Conference. I was able to meet and learn from global experts in the same field, become familiar with cutting edge research and techniques, and practice new skills. I was able to return with a variety of information to pass forward to my colleagues.

Opportunities like this are vital as it helps us learn and grow as professionals and equips us to better care for the children of this province. The Foundation’s commitment to staff education is irreplaceable and immeasurable and we are so grateful for them. It certainly benefits “all our kids”.

Jillian Parsons Haynes, BN RN Neonatal Transport Nurse

Collette Smith, VP Clinical Services, Arlene Scott, Regional Director of Children and Women’s Health, Lynn Sparkes, President and CEO, Janeway Foundation

NICU Transport Team

OF 8

Look Where Your Money Goes!

Pediatric ResearchThe Janeway Children’s Health & Rehabilitation Centre houses the only pediatric research unit in the province, overseeing more than 60 research projects at any given time. Serving the needs of Newfoundland and Labrador children, the Janeway Pediatric Research Unit has, and will continue to, enhance and expand clinical research through current and future clinical trials, clinical studies and health service initiatives.

Affiliated with Memorial University, the Janeway serves as a primary clinical resource for vital pediatric medical research. Without funding for ongoing research, advancements in the diagnosis and treatment of illness and injury would not be achievable.

When we speak about the Janeway Hospital and the equipment needed we always refer to “one size does not fit all” as equipment used for a 3lb baby is not the same as that used for a 150 lb teenager. That analogy also refers to pediatric research, “one size certainly does not fit all”.

As children are constantly changing and growing, so too will their medical needs, as it relates to doses of medication, types of therapy required and devices that are used in their care. The body of a one month old premature baby will handle medications completely different than the body of a 4 year old or a 13 year old. Pediatric research helps us to answer these most important questions – what medical interventions will our children need as they grow and age.

“Funding and support for research from the Janeway Foundation and its generous donors has enabled many local and provincial research projects to occur for more than 2 decades”, stated Dr. Leigh Anne Newhook, Director of the Janeway Pediatric Research Unit. “It has also supported many healthcare and research trainees at the undergraduate to post-graduate levels answer important clinical and research questions whilst undergoing their research or health care-related training. This locally funded research is addressing health problems relevant to children living in NL, and has resulted in substantial progress in child health, however many problems remain to be tackled.”

Here is a quick glimpse of some of the studies that are taking place.

• Public Health Policy to Protect Children

• Acute Lymphoblastic Leukemia

• Use of Simulation in Canadian Pediatric Post-Graduate Training Programs

• Hydration for Infants Admitted with Bronchiolitis

• Type 1 Diabetes

• Breastfeeding and Donor Milk in the NICU

• Autism Spectrum Disorders

Mural Painting by JJ Allwood: Wall Mural at the JPRU

OF 8

What’s NewSpecial Care Unit Each department within the Janeway provides medical treatment to children from all areas of NL and must be equipped and prepared for any eventuality at a moment’s notice. Ensuring our team has the tools needed to care for our children is the Foundation’s highest priority. In a world where medical technologies and treatment protocols are ever-changing, the support of our partners allows us to stay current and helps to introduce new state-of-the-art methods to enhance and keep pace with on-going advancements in pediatric care. Advancements such as the new Special Care Unit, which will allow us to care for our children more efficiently and effectively.

Babies under 2 years of age who are admitted to the Janeway, for much-needed, or emergent, surgeries necessitate specialized Level I care.

This level of care does not require a one-to-one nurse to patient ratio and is mainly for patients who do not require organ support. For example, they may need an IV, or oxygen by face mask, but would not need to be intubated.

Like the majority of Canadian children’s hospitals, Level I is the appropriate tier of care to be provided in the Special Care Unit.

The Janeway’s Chief of Surgery – Dr. David Price – and Janeway leadership, have requested a four-bed, Special Care Unit to

be built on the 4th floor. Close observation, frequent assessment, cardiac monitoring, and highly skilled medical intervention for surgical neonates and young children can be better managed in a Special Care Unit.

This new Unit will increase efficiencies for the NICU and PICU by freeing up beds, as it will allow critically ill neonates and children to continue receiving the Level III care they require, while graduating surgical babies to the Level I Special Care Unit built specifically for their needs.

The particular care required by these young patients includes nursing personnel trained in surgical care, a specialized area to monitor them, and unique equipment including, but not limited to:

• Isolettes – incubators for infants, which provide controlled temperature, humidity, and oxygen levels. They also have armholes through which the infant can be reached with minimum disturbance to the controlled environment.

• Monitors – display and record a patient’s vitals, such as their heart rate, blood pressure, respiratory rate, and oxygen saturation levels.

• Syringe pumps – provide children with necessary medications and fluids through an IV.

This Special Care Unit would provide the optimal environment for the care of all our young surgical patients and families at the Janeway.

JANEWAY

Each year there are approximately

120,000 patient visitsand admissions to the Janeway

FACTS & FIGURES

54,332

33,887

15,582

3,811

3,485

1,998

1,979

380

174

2,282

1,577

Outpatient Visits

Emergency Department Visits

Development & Rehabilitation Visits

Surgeries Performed

Medical Day Care Visits

Dental Clinic Visits

Admissions to J4 Medicine& J4 Surgery

Admissions to NICU

Admissions to PICU

Number of babies born at the Janeway

Pre-Admission Clinic Visits

STAFF OF THE JANEWAY

JANEWAY PATIENT VISIT DATA2018/2019 CALENDAR YEAR

JANEWAY FOUNDATION VOLUNTEERS

800 Nurses, Technicians, Therapists, Support Staff

Doctors85

1,350 Volunteers

Our corporate and community friends hold more than 400 events each year to benefit the health care of our province’s

sick and injured children.

Special Care Unit Floor Plan

OF 8

Janeway Children’s Hospital FoundationBoard of Directors (2018-2020)Executive Martin Sullivan – Chair Chris Facey – Secretary Krista Ryan – Treasurer

Directors Will Eisener Charlene Johnson Chris King Kevin King Marvin Way

Ex-Officio Sister Sheila O’Dea Marilyn PardyLynn Sparkes Elaine Warren

Cut and mail to: Janeway Foundation | 300 Prince Philip Drive | St. John’s, NL A1B 3V6

Yes! I want to become a Monthly Miracle Maker.

• Allow 2-4 weeks for processing of first payment.• You will receive your cumulative income tax receipt at the end of each calendar year.• You may change or cancel your monthly gift at any time by contacting the Janeway

Children’s Hospital Foundation.

SIGNATURE

DATE SIGNED

Pre-authorized withdrawal from my bank account (please attach a void cheque)Withdrawal dates: 15th or 30th (check one)

$25 $20 $15 Other $Minimum monthly gift of $15

CARDHOLDER’S NAME (please print)

EXPIRY DATE /M M Y Y SIGNATURE

FULL NAME

MAILING ADDRESS

PHONE

VISA AMEXMasterCardI prefer to use my:

Janeway Telethon – And How it all Happens

Documents

Transcript of Janeway Telethon – And How it all Happens